CAAI- National Interdisciplinary TrainingInterdisciplinary Training

Resource CenterGeorge Jesien, Ph.D.December 16, 2008December 16, 2008

Washington DC

Three National NetworksThree National Networks

• University Centers for Excellence in• University Centers for Excellence in Developmental Disabilities (UCEDDs) -6767

• Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs - 38Disabilities (LEND) Programs 38

• Intellectual & Developmental Disabilities R h C t (DDRC ) 20Research Centers (DDRCs) - 20

AUCD Supports Its MembersAUCD Supports Its Members through:

• Technical Assistance• Data Collection & Dissemination• Resource Compilation/Development• Liaison & Representation to Federal• Liaison & Representation to Federal

Agencies, National Disability OrganizationsOrganizations

• Policy Development & Legislative AdvocacyAdvocacy

• Subcontract Administration

LEND Network (38)( )

Leadership Education in Neurodevelopment and RelatedNeurodevelopment and Related

Disabilities (LEND) Programs

• Involve 13 disciplines• Emphasize Leadership skills• Emphasize Leadership skills • Provide Interdisciplinary clinical training• Community & Continuing Education• Address unique needs of children with q

special health care needs & their families• Directly involve Parents & familiesDirectly involve Parents & families• Focus on cultural competence

Leadership in Developmental-Behavioral Pediatrics Training

The projects are committed to honoring

e a o a ed a cs a g

The projects are committed to honoring diversity within our society and promoting inclusion of individuals with disabilities in all aspects of community life. They train health care leaders who have the capacity to develop programs, services, and interventions within the cultural context and social environments relevant to those beingsocial environments relevant to those being served.

Developmental Behavioral d ( )Pediatrics (DBPs)

• 10 DBPs – recently funded• 10 DBPs recently funded• To prepare fellows with clinical, research

and leadership skillsand leadership skills• To educate and mentor the next

ti f l d i d l t lgeneration of leaders in developmental-behavioral pediatrics

• Contribute new knowledge to the field, • Consult with educators and policy p y

makers.

NITRC Project Major Activitiesj j

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Technical Assistance Meetingg

• Select Hotel• Select Dates• Develop Agenda

M k ti• Marketing• Invite Speakers• Develop materialsp• Coordination w Partners

– Bi-monthly calls• Next Year?

10

Needs Assessment

• Develop SurveyDevelop Survey• Gather existing resources & practices

A l R lt• Analyze Results• Develop Priorities

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Resource DevelopmentResource Development

• Gathering existing ResourcesGathering existing Resources• Develop resource compendium

Id tif d d• Identify needed resources• Developing new/additional• Disseminate resources• Evaluate utilityEvaluate utility

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General TA

• Web Resources – PublicWeb Resources Public • Shared secure portal/collaboration

T i l bi• Topical webinars• Possible topical meetings• List serv

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CAAI NITRC SharePoint Portal

Site Visit Support

• Identify sites to be visitedIdentify sites to be visited• Identify consultants

P id t i l• Provide prep materials• Expense reimbursement

15

Act Early Regional Summitsy gCDC & MCHB Collaboration

• Identify participants• Assist in planning & coordination• Assist in planning & coordination• Participate in facilitation• Follow-up and eval data collection• Assist in mini-grant follow-up and g p

monitoring

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Overall Summit FrameworkOverall Summit Framework

Principlesp

• Focus on early identification, assessment, provision of services and coordinationp

• Include stakeholders from all important sectors• Provide venue for shared learning & sharing g g

across and within states• Work toward actionable plans and prioritiesp p• Summit as step in the process of developing

comprehensive, family-centered system

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Act Early State teams : Regional Summit ParticipantsParticipants

• Part C Early Intervention • American Academy of Pediatrics State Chapter• Preschool Special Education

–Section 619 of IDEA • Children with Special Health

Pediatrics State Chapter • UCEDD/UCEDD • Autism Organizations–Children with Special Health

Care Needs – Title V • State Developmental

Disabilities Office (DD)

gAutism Society of America, Autism Speaks, Easter Seals, NATTAP, etc.

Disabilities Office (DD)• State Public Health• Child Care Resource and

• Parent Organizations–Parent Training Center, Family Support, or Parent Health Information CenterReferral

• Foster Care BureauHead Sta t and Ea l Head

Health Information Center• Medicaid and Health

Insurance Program

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• Head Start and Early Head Start

• Legislature- member or staff

Phase II Summit Regions

Phase I Summit Regions

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Phase II Summit Regions

2008 Act Early Minigrant Recipients2008 Act Early Minigrant Recipients

• Region V • Region VII1. Indiana2. Ohio3. Wisconsin

1. Arkansas2. New Mexico3. Louisiana

• Region VII1 Iowa

4. Oklahoma5. Texas

1. Iowa2. Kansas3. Nebraska

* Project Period: November 1, 2008 - October 31, 2009

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2008-2009 Act Early Regional2008 2009 Act Early Regional Summits

• Partnership and collaboration between• Partnership and collaboration between NCBDD, MCHB & AUCD

• Regional Summits• Regional Summits– Region IVa Nashville,TN Jan 8-9, 2009– Region VIII Salt Lake City UT Mar 5-6 2009Region VIII Salt Lake City, UT Mar 5 6, 2009– Region II Bronx, NY Mar 26-27, 2009

• Opportunities to participate• Opportunities to participate

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Act Early Regional Summit hPhase II

• Strengthen partnerships with CAAI, NATTAP, NPDC and ASANPDC, and ASA

• Coordinate three (3) Act Early Summits

• Provide catalytic mini-grants to states that have participated in Region 5, 6, and 7 Summits

A ti St t L i l ti D t b N ti l• Autism State Legislative Database – National Conference of State Legislatures

St th ll t hi f d l d• Strengthen overall partnership on federal and state level

Autism Database Home

Last Updated: November 3, 2008This searchable database tracks autism legislation from the 2008 session to present. SearchThis searchable database tracks autism legislation from the 2008 session to present. Search legislation by state, topic, status, primary sponsor, bill number or keyword. To select more than one item (e.g., state or category) in the following lists, hold down the Control-key and click the desired selections.

State(s): Topic(s):

Keyword in Title or Summary:

Status:

Year: Bill Number:

Primary Sponsor:

http://www.ncsl.org/programs/health/autism.cfm

Any TopicAwarenessEducationFinancingHealth and Human ServicesInfrastructureInsuranceMiscellaneousProfessional TrainingScreening

S e a rc h

Coordination with Partners

• Plan and develop partners meetingPlan and develop partners meeting• Gather input

I l t d ti• Implement recommendations• Maintain Communications

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http://www aucd orghttp://www.aucd.org

Thank You

www.aucd.org