Buyer's CJ ubs 1 Comp i 1 ed by W!F, Updated October 1, 1991

DIRECTOR CLUB tW1E ADDRESS CITY ST ZIP PHEI~E PACT Buyer-'s Club 3833 E. 2nd St. Tucson AZ 85716 602/322-9808 LosAngeles Buyer /s Coop.B543 Santa Monica Blvd. #14 Los Ange 1 es CA 90069 213/854-6230

Torn Hanson Alliance? 3115 Gregory Lane · San Diego CA 92104 619/281-5360 He a 1 i ngA 1 tern at i ves Fdn. 1748 Harke t St. 8204 San Francisco CA 94102 415./626-2316

Ken Reiche Boulder Buyer's Club 569 University Ave. Boulder co 80302 303/444-7647 Ed NcNorr is HealthAction Project P. 0. Box 18726 Denver co 80218 303/894-8650 Ron Nealey Carl Vogel Foundation 1413 SKI Washington DC 20005 202/289-4898 L£tnny Kaplan PWA~ 1223 N. Andrews Ave. Ft. Lauderda 1 e FL 33316 305/568-3001 Peter Uitdenbosch AIDS Manasota 1817 BayWood Dr. Sarasota FL 34231 813/954-6011

Atlanta Buyer's Club P. 0. Bo• 77003 Atlanta GA 30357 404/874-4845 Steve Katz The Aliveness Project 730 E. 38th St. Ninneapol is ttl 55407 612/822-7946 Derek Hode 1 PI.J)A He a 1 th Group 31 West 26th St. New YorK NY 10010 212/532-0280 Ron Woodruff DallasBuyer's Club 2306 N. Prairie Dallas T.X 75204 214/826-7455

from : Richard Copeland Heal i ng A l te t- natives Foundation 415/626-4053 Fax: 415/861-0579

To: Buyer's Clubs

Hello An}

12/21/9

Si nee our co nfe renee ca 11 , several people have ex p res:sed i nte rest i n sub mi tti ng 1 dea:s for the agenda for the .January meeting. So by way of soHciti ng 'JOUr ideas .. i am sending my ideas that I derived from our calL Please respond} your input is valuable . Agenda ideas can be faxed to Tom Blount in Atlanta .. preferably by the flrst week of January _. at 404/233-5613. I also suggested that _. if you ha .. /e specific proposals or approaches to dealing \ ... ·Hh these issues .1 that you \.Jrite them up and distr1 bute them to the attendees well before the meeting to allow time for thoughtful consideration. The plan is to start the meeting on Saturday around noon and finish up on Sunday in the late afternoon.

I ~ee thi~ a:S an oppot-tunity to find out \VtJere we agree and where we disagree and where we can ··1ork: together. I don't think anyone has any del u:sion:s about mak· ng other c1 ubs do anythi ng. But if \r/e can eoordi nate our efforts in areas that \r/e agree on.~ then "vte can ttopefu11 y improve our ·:services to our cllents .~gain more credibility and deal \·lith the FDA more effectively.

Thanks ..

Richard Copeland

Draft Agenda for- Meeting of 1/24 & 25/1992

Product T esti ng Guidelines for c:l ub:s to follow

Testing Doc u mentation

'l·lorki ng Together to Test Products

Standard GuideH nes for Operation as a Buyer's Club

A Coo rdi nated Approach to dea 11 ng ~tlt h the fDA

Other V1ays for CltJbs to V·lork Together Di:Stri bute Pt-ice li~ts for Referals Sources Discounts on products

Cpe a .ing

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Lewin:

This is the draft that we discussed. Whaddya think? We still need to work out: who takes minutes (I think Tom's a great idea), the schedule, etc.

Any topics I left out? Are there people out there who'd make good chairs that I overlooked? Do you have a final list of who's coming? What do you think of the format? Any other ideas?

As I mentioned, I'll be in my office tomorrow from 10:00 to 2:30 (EST), so we should try to talk during that time.

---------dh

BUYERS' CLUB MEETING

Ft. Lauderdale, FL

25-26 January 1992

GROUND RULES:

• No media will be permitted at the meeting. Period. No observers or other persons not connected with buyers' clubs (exceptions: Martin Delaney, Curtis Ponzi, David Barr) will be permitted to attend. [Can someone take minutes?]

7 • The basic purpose of this meeting will be information sharing. '

No group decisions will be made except by consensus. + C~~s~,o~

""'"4 '::J AGENDA:

25 January

Call to order. (CHAIRS: Lewin Usilton, Healing Alternatives Foundation, and Derek Hodel, PWA Health Group)

Introductions and announcements. Health Alliance)

(HOST: Lenny Kaplan, PWA

1 DISCUSSION: meeting agenda and goals (CHAIR: Usilton)

• What do we wish to accomplish? • Are there decisions that we wish to make as a group?

A~/:.---- £-!'J ---" Is there value in continuing this process after this meeting?

• Is it possible to reach consensus on any of the following issues: minimum/optimal operating standards, formation of a national organization, coordinated response to FDA, self-policing/regulation?

2 DISCUSSION: FDA . investigation (CHAIR: Hodel)

• Update: Has anything happened? • NOTES FROM THE UNDERGROUND:

discussion • Politics and the law discussion

"Crackdown Crackup!"

3 INFORMATION SHARING: Mission statements, statements of purpose (CHAIR: Tom Blount, Atlanta Buyers' Club)

• Each representative will share their mission statement, if available, or describe why the guiding principals of their organization, if any:--' ·

4 INFORMATION SHARING: organizational framework (CHAIR: Hodel)

• Is it important to formally organize as a non-profit corporation?

• Is it important to be incorporated at all? • Is there value in operating with a board of directors? • Is there value in promulgating formal operating policies?

5 POLICY DISCUSSION: Information (CHAIR: Martin Delaney, Project Inform)

• Medical claims and the art of "we don't know" • What is "promotion?"

6 POLICY DISCUSSION: Quality Control (CHAIR: Hodel)

• What is our responsibility in this area? • Can individual groups be expected to perform QC tests? • What assurances can/cannot be provided to clients? • Who's to say how much QC is adequate? • How do you quality control quality control?

C02''- c.> ~· coD/d(VLC\..'f.e Q C. P 7 POLICY DISCUSSION: Pricing (CHAIR: Usilton)

• What are the objectives of our pricing strategies? • What is the most ethical method for setting prices? • CASE STUDY: PWA Health Group (PWAHG), Healing

Alternatives Foundation (HAF) • What about indigent clients? (CASE STUDY: PWA Health

Group)

8 TECHNICAL ASSISTANCE ROUNDTABLE: (CHAIR: Hodel)

• Development, fundraising • Personnel, staffing, volunteers • Operations: accounting, inventory control, • Compliance: paying taxes, payroll, audit, financial

reporting • Budgeting, forecasting

9 STRATEGY_ROUNDTABLE: Public Relations (CHAIR: Kaplan)

• Dealing with the media? Is there value in additional media? Is there harm?

• Dealing with the government -- how does media (good or bad) impact upon the government? What about participating with the government on other levels (hearings, panels, etc.)

• Dealing with the local government

10 FINAL ROUNDTABLE: (CHAIR: Usilton)

• Our response to government harassment • Can we coordinate our efforts? Are there issues on which

we agree? Are there ways in which we can support each other? Are there ways in which such support might be harmful?

• What are our next steps? Do we need to meet further? Regular conference call? Working groups? Co ~ u {.4 ,AJt:_./-w o J:.; ~ - i G- C