8
W henever I share the work of John Tracy Clinic with people in our community, I feel so much pride for the success of our unique parent-centered programs and the commitment of our dedicated staff who quite literally transform the lives of thousands of families each year. Our emphasis on parent parƟcipaƟon and educaƟon to nurture a child’s progress is central to JTC’s philosophy; in fact, it drives our effecƟveness in helping children with hearing loss to be able to speak, listen and thrive in the hearing world. As parent Brian Friese points out, “JTC has learned well how to empower the family unit rather than make them co-dependent on your services.” In many ways, the best illustraƟons of our non-profit work are in the end results - the outcomes and success rates for the children who are the ulƟmate beneficiaries of our work. For example, last year 100% of preschool children transiƟoned to either mainstream schools to communicate on par with their hearing classmates or other educaƟonal programs that use spoken language as the main communicaƟon medium. In our parent-infant program, 92% of the young children demonstrated improvements in hearing and oral communicaƟons. In our Distance EducaƟon program, 83% of families reported growth in their child’s listening and language abiliƟes. JTC’s audiology services staff assessed the hearing abiliƟes of more than 3,500 infants and toddlers, and our Graduate Program, in partnership with Mount Saint Mary’s University, contributed six language preschool to learn techniques to help their children develop listening and speech skills. In addiƟon, siblings parƟcipated in camp-like educaƟonal and recreaƟonal group fun. Specialists provided audiology evaluaƟons, counseling and child development consultaƟons. This year, aŌer parents completed the Summer Session, several of them collectively donated a record of more than $20,000 to JTC Message from JTC’s President & CEO The leading diagnostic and education center for young children with hearing loss Summer-Fall 2015 new teachers with Master’s Degrees in EducaƟon, who will carry forward JTC’s standards and legacy of early intervenƟon educaƟon for thousands of future children with hearing loss in their new careers. Every day, we receive comments from parents on their children’s achievements that they didn’t dream would be possible unƟl they came to JTC. For example, Brenda Gonzalez brought her two children, Alexa and Kevin, to JTC for early intervenƟon services, first enrolling in our Parent-Infant program, and then taking advantage of our Auditory-Verbal Preschool. While sƟll at JTC, both children excelled enough to aƩend a parƟal mainstream school; upon leaving JTC, both had developed the communicaƟons skills to succeed at grade level in a mainstream elementary school. Another parent, L. Murphy, said recently “Our daughter went in less than one year from not being able to say ‘good morning’ to reading, counƟng backwards from 20... and scoring a 96% in her school tests.” Parent Dieu Ly, commented “My daughter is mainstreamed at the age of 5. I couldn’t be prouder of her.” I hope you will join me as a community advocate in sharing your enthusiasm for John Tracy Clinic. With your voices of support, we can conƟnue to provide vital diagnosƟc and educaƟonal services to help more children impacted by hearing loss to aƩain speech, language and listening skills and a lifeƟme of success in the hearing world. Thank you for your involvement. Sincerely, Gaston Kent JTC hosted its annual series of three Summer Sessions in June and July. Sessions were offered for U.S. and InternaƟonal families – one in English and one in Spanish, and one designed for local area families. Families came together from all corners of the globe and LA. area for an intensive mulƟ-week program at the JTC main campus. As a result of these programs, supporƟve bonds develop between the families, and oŌen lifelong long-distance friendships blossom from the two and three week programs. This year we welcomed families from Canada, India, Ireland, ArgenƟna, Pakistan, Spain, UAE, Mexico, United Kingdom, and the USA (CA, IL, PA and TX). The comprehensive sessions are designed for parents and their children with hearing loss and their hearing peers. Parents parƟcipated in a full range of family learning programs on childhood hearing loss, auditory-verbal techniques, language development, emoƟonal support and educational services. They also took part with their children in JTC’s demonstraƟon spoken in support of its programs. “All of us at JTC are so honored and grateful for the generosity of the parents, many whom have traveled far to benefit from our Summer Session program,” said Gaston Kent. TALKS: Parents Program Growing Globally Now groups of parents from just about anywhere in the world who have an Internet connecƟon, a computer with a web-cam, mic, speakers, and a monitor or projecƟon screen can take advantage of live Web-based sessions with a JTC educator in real-Ɵme. Topics are for parents new to early childhood hearing loss and focus on encouraging their children’s listening, and language and speech development. As part of our Distance EducaƟon Department, the program – JTC TALKS: Parents – is achieving internaƟonal acclaim, with a recent parent group from Ireland publicizing their experiences of it to their local news media. Visit the JTC. org Website or email [email protected] for more informaƟon about scheduling a program. (News conƟnued on page 3) What’s Happening A Glimpse of Recent JTC News & AcƟvity Highlights Summer Sessions Draw 48 International Families to L.A.

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Page 1: Bulletin Newsletter - Summer Fall 2015

Whenever I share the work of John Tracy Clinic with people in our community,

I feel so much pride for the success of our unique parent-centered programs and the commitment of our dedicated staff who quite literally transform the lives of thousands of families each year. Our emphasis on parent par cipa on and educa on to nurture a child’s progress is central to JTC’s philosophy; in fact, it drives our eff ec veness in helping children with hearing loss to be able to speak, listen and thrive in the hearing world. As parent Brian Friese points out, “JTC has

learned well how to empower the family unit rather than make them co-dependent on your services.” In many ways, the best illustra ons of our non-profi t work are in the end results - the outcomes and success rates for the children who are the ul mate benefi ciaries of our work. For example, last year 100% of preschool children transi oned to either mainstream schools to communicate on par with their hearing classmates or other educa onal programs that use spoken language as the main communica on medium. In our parent-infant program, 92% of the young children demonstrated improvements in hearing and oral communica ons. In our Distance Educa on program, 83% of families reported growth in their child’s listening and language abili es. JTC’s audiology services staff assessed the hearing abili es of more than 3,500 infants and toddlers, and our Graduate Program, in partnership with Mount Saint Mary’s University, contributed six

language preschool to learn techniques to help their children develop listening and speech skills. In addi on, siblings par cipated in camp-like educa onal and

recrea onal group fun. Specialists provided audiology evalua ons, counseling and child development consulta ons.

This year, a er parents completed the Summer Session, several of them collectively donated a record of more than $20,000 to JTC

Message from JTC’s President & CEO

The leading diagnostic and education center for young children with hearing loss

Summer-Fall 2015

new teachers with Master’s Degrees in Educa on, who will carry forward JTC’s standards and legacy of early interven on educa on for thousands of future children with hearing loss in their new careers. Every day, we receive comments from parents on their children’s achievements that they didn’t dream would be possible un l they came to JTC. For example, Brenda Gonzalez brought her two children, Alexa and Kevin, to JTC for early interven on services, fi rst enrolling in our Parent-Infant program, and then taking advantage of our Auditory-Verbal Preschool. While s ll at JTC, both children excelled enough to a end a par al mainstream school; upon leaving JTC, both had developed the communica ons skills to succeed at grade level in a mainstream elementary school. Another parent, L. Murphy, said recently “Our daughter went in less than one year from not being able to say ‘good morning’ to reading, coun ng backwards from 20... and scoring a 96% in her school tests.” Parent Dieu Ly, commented “My daughter is mainstreamed at the age of 5. I couldn’t be prouder of her.” I hope you will join me as a community advocate in sharing your enthusiasm for John Tracy Clinic. With your voices of support, we can con nue to provide vital diagnos c and educa onal services to help more children impacted by hearing loss to a ain speech, language and listening skills and a life me of success in the hearing world. Thank you for your involvement. Sincerely,

Gaston Kent

JTC hosted its annual series of three Summer Sessions in June and July. Sessions were off ered for U.S. and Interna onal families – one in English and one in Spanish, and one designed for local area families. Families came together from all corners of the globe and LA. area for an intensive mul -week program at the JTC main campus. As a result of these programs, suppor ve bonds develop between the families, and o en lifelong long-distance friendships blossom from the two and three week programs.

This year we welcomed families from Canada, India, Ireland, Argen na, Pakistan, Spain, UAE, Mexico, United Kingdom, and the USA (CA, IL, PA and TX). The comprehensive sessions are designed for parents and their children with hearing loss and their hearing peers.

Parents par cipated in a full range of family learning programs on childhood hearing loss, auditory-verbal techniques, language development, emo onal support and educational services. They also took part with their children in JTC’s demonstra on spoken

in support of its programs. “All of us at JTC are so honored and grateful for the generosity of the parents, many whom have traveled far to benefi t from our Summer Session program,” said Gaston Kent.

TALKS: Parents Program Growing Globally

Now groups of parents from just about anywhere in the world who have an Internet connec on, a computer with a web-cam, mic, speakers, and a monitor or projec on screen can take advantage of live Web-based sessions with a JTC educator in real- me. Topics are for parents new to early childhood hearing loss and focus on encouraging their children’s listening, and language and speech development.

As part of our Distance Educa on Department, the program – JTC TALKS: Parents – is achieving interna onal acclaim, with a recent parent group from Ireland publicizing their experiences of it to their local news media. Visit the JTC.org Website or email [email protected] for more informa on about scheduling a program.

(News con nued on page 3)

What’s Happening A Glimpse of Recent JTC News & Ac vity Highlights

Summer Sessions Draw 48 International Families to L.A.

Page 2: Bulletin Newsletter - Summer Fall 2015

2

Each summer, JTC greets Spanish-speaking families from countries around the world for an intensive educa on and support program to help them with their children’s hearing

loss. Over the course of the two week program, families gain skills with auditory-verbal techniques and childhood language development. They receive emo onal support as well as audiology, educa on and counseling services, as well as par cipate in a demonstra on auditory-verbal preschool.

What many people don’t realize is that alongside the Spanish Summer Session is a parallel hub for visi ng teachers, audiologists, counselors, and auditory-oral therapists from Spanish-speaking countries. The program, referred to as “JTC’s Professional Spanish Summer Session,” allows early interven on professionals to observe the family session and receive training to hone their professional skills and enhance their exper se in their own prac ces.

“Celebra ng its 6th year, JTC’s Professional Spanish Summer Session has become so popular there is now a wai ng list of professionals seeking a space in the program,” said Mary Beth Goring, LMFT, director of counseling and child development services at JTC, who directs the Professional Summer Sessions.

This year JTC hosted seven professionals from Argen na, three from Colombia and one from Mexico. In addi on, JTC welcomed back a few professionals from previous years to share their exper se as volunteers for the Summer Session families.

Mirna Armenta Gil returned to JTC this year as one of the Spanish Summer Session volunteers. Mirna has a degree in Special Educa on in the area of listening and language. She has worked with children with hearing loss for 19 years, and is now applying the principles of Auditory-Verbal Therapy in her prac ce in Sinaloa, Mexico.

Mirna shares her thoughts on the JTC Professional Summer Session program:

When I was at JTC for the professional course, I realized that I wanted more of this experience. So when I received the invita on to return in a suppor ng role for the parent summer session, I didn’t hesitate a moment, and I immediately accepted. Professionally, it’s an experience that has no comparison; these are the “major leagues.”

JTC represents the model that I wish to follow, and it inspires professionals like me to want to learn from JTC. My main mo va on in taking this course are my pa ents; I understood that at JTC I would have the opportunity to learn this model of prac ce, and from there, be able to off er the best to my pa ents.

Without a doubt you do learn that the parents are the primary key in the development of an interven on plan for their children. Also, you learn some technical guidelines to follow in your professional prac ce. It made me redesign the way I work, and completely change course. There was a dividing line before and a er the professional course, in terms of the way that I work.

I would broadly recommend this course. There is no aspect of your professional prac ce that is not addressed in the course. Every minute of the two weeks guides you to change from the inside out, and it truly achieves that aim.

International Professionals Find Continuing Education Opportunities at JTC’s Spanish Summer Sessions for Families

For more information on the Professional Spanish Summer Session

Program, contact Mary Beth Goring, LMFT at [email protected].

From left - Natalia Mutti; Claudia Lopardo; Cecilia Dappiano; Montserrat Castro; Silvia Vanegas; Paula Ramirez; Patricia Camacho; Isabel Alvarez, JTC summer psychologist; Eugenia Ares; Ángeles Lincho; Patricia Obertti; Mary Beth Goring; Lucrecia Graciela Pintado

from left - Mirna Armenta Gil, Susana Rodriguez, Mireya Diaz, and Spanish Summer Session Director Fernanda Hinojosa

Page 3: Bulletin Newsletter - Summer Fall 2015

3

On May 11th, JTC, in partnership with Mount Saint Mary’s University Los Angeles, awarded the annual Karen Rothwell-Vivian Memorial Scholarship Award to Chelsea Scerri, M.S., a 2015 MSMU-LA/JTC graduate. From le : Jayna Randi, board member, KRVMS Program;

Mary Mc Ginnis, Cand PhD, LSLS Cert AVT director, Mount Saint Mary’s U. LA/JTC DHH Graduate Program; Chelsea Scerri, M.S.,MSMU-LA/JTC graduate, KRVMS Award recipient; Bill Vivian, board member, KRVMS Program; Diane Browne, board member, KRVMS Program

“Chelsea’s applica on for the scholarship revealed a passion for carrying on Karen’s legacy in listening and spoken language,” said Mary McGinnis, Cand PhD, LSLS Cert AVT, who is JTC’s Director, DHH Graduate Program. “Chelsea’s goal is to become a Listening and Spoken Language Specialist Cer fi ed Auditory-Verbal Therapist. We hired her for the JTC Summer Session to provide therapy for our families. She displayed amazing professionalism, skill, and crea vity when working with the families.”

Each year, the award is presented to one graduate student in recogni on of outstanding achievement and academic excellence. Well done, Chelsea! Congratula ons and best wishes from all of us at JTC!

Alumni Panel and Pizza Night – A Valuable Evening for JTC Parents

Parents who came to a Tuesday evening Support Group at JTC last spring were treated to an engaging group of 8 young panelists – all JTC alums between the ages of 6 and 15. The kids shared what their lives were like out in the mainstream world. Many also shared warm memories of their preschool years at JTC. Their parents were able to share their own valuable insights and advice to the new parents in the audience. The evening’s program received rave reviews by all the parents who a ended.

Expansion of AVT Tele-PracticeFollowing a trial introduc on in 2014, JTC is expanding

its tele-prac ce sessions on a limited basis. Our tele-prac ce sessions guide parents to enhance speech therapy or preschool services for their young child with hearing loss. Families from around the world can connect with JTC’s auditory verbal therapists and spoken language specialists. Interac ve, individual sessions via the Internet are available in English or Spanish. Sessions are individually designed and arranged to meet parent needs. Interested families can email JTC at [email protected].

Music to Their Ears! This spring, JTC’s preschool students were treated to two educa onal performances by musician trios from USC’s Thornton School of Music, thanks to Raymond L. Goldsworthy, Ph.D., associate professor of Otolaryngology, USC, who helped arrange both programs. Musicians from USC’s Roamin’ Reeds trio

and the USC’s Gluck Fellows Kaleidoscope Trio performed songs and then demonstrated how their musical instruments produce sound, giving them a chance to handle and explore each one.

Both programs proved to be fun training for the kids, most of whom are learning to discriminate pitch, rhythm, and the sounds of diff erent instruments with their cochlear implants or other sensory devices. They also iden fi ed popular tunes. According to the musicians, seeing the children and their reac ons to musical sound was a great learning experience for them too.

A New jtc Website is Coming! As you read this newsle er, development of a new, improved JTC Website is underway! Look for easier naviga on and an updated design, as well as other user friendly features. Stay tuned for news about it in the weeks ahead. We’ll welcome your feedback too!

2015 Summer Celebration & Annual Picnic The summer heat proved no deterrent for more than 525 JTC alumni parents and children who enjoyed the outdoor fun and camaraderie at this year’s JTC Summer Celebra on & Annual Picnic event! From In-N-Out Burgers and ice cream treats to exhibits by hearing device manufacturers, face pain ng, a pe ng zoo and an acroba c performance, a fun social a ernoon was had by all. Hats off to the vendors, staff and generosity of our corporate sponsors for making this year’s event a success!

Chelsea Scerri, M.S., Receives this year’s Karen Rothwell-Vivian Memorial Scholarship Award

f th i h l t

Page 4: Bulletin Newsletter - Summer Fall 2015

4

When a parent fi rst learns that their child has a hearing loss, the news is o en shocking and overwhelming. But, as Fanny Heninger’s fi rst-hand account illustrates, developing a good network of support from the

start, and keeping a posi ve outlook, can have immediate and las ng eff ects on the perspec ves, choices and outcomes for both the child and parent. In Fanny’s case, both her daughters were diagnosed with deafness in infancy. Two decades later, the Heningers stay in touch with JTC and share their inspiring stories with other families who are now going through their own journeys of raising a child with hearing loss.

Describe your experience when you fi rst learned your children had profound hearing loss.

Fanny: The kind ENT who diagnosed my oldest daughter, Vi oria, with a profound, bi-lateral hearing loss at age of 10 months had fortunately been aware of John Tracy Clinic and was familiar with Mrs. Tracy’s book. When

he told me, he was very gentle and said something to this eff ect: “What I will tell you is not coming from me; it has already been told to another mother several decades ago: Your life is about to make a dras c change. Everything you know about language and paren ng will change. You will travel and learn many new things and see life from a diff erent

perspec ve. This child is very special and will change your lives for the be er. You will learn to appreciate many things that

you took for granted and may even help others. Here is your prescrip on.” With that, he handed me the phone number and address to JTC.

“I suggest you call them right away,” he said. “Your child has a profound, bi-lateral hearing loss but it doesn’t mean she won’t learn to listen or talk.” With that kind of presenta on, I actually felt as if I had won a lo ery. Rather than focusing on the nega ve aspects, I immersed myself in the Parent-Infant Correspondence Program from John Tracy Clinic. I looked forward to those packets by mail and to the responses.

My second child, Francesca, was diagnosed at birth through the Early Detec on Evalua on and had an auditory brainstem response (ABR) test before leaving the hospital. The experience was actually good because I was glad that both girls were going to be able to support and understand each other. By that me, I had fully immersed myself and my children in an Auditory-Oral Program. I later found out that their hearing loss was due to recessive genes. I felt prepared and able to raise a second child with a profound, bilateral hearing loss.

The only nega ve experience at diagnosis was my poli cal family. My then husband and biological father to the girls could not accept the hearing loss in either child and did not try to understand the process of habilita on. He gave up on us which turned out to be a blessing in disguise because by not having nega vity in our lives we were able to look forward to what the future held for us. I would say that in the case of hearing loss and trying to cope with it, my ex -husband was much more of a burden than my children ever were.

The diagnosis came to me as a way to improve myself and prove to his

family that the girls were very capable. There used to be a mo o for AG BELL: There are no limits for deaf and hard of hearing children and indeed, there are not. I look forward to seeing the girls as they reach adulthood and make their own dreams become a reality.

How did you approach helping your children to hear and to develop speech and listening skills?

Fanny: My oldest child started off with hearing aids. At the me, I lived in South America and obtaining good ear molds was a challenge. I had to learn how to troubleshoot the hearing aids and was even given the pu y to make my own impressions to mail off to San Francisco to obtain the ear molds. Things have since changed in that country, thankfully. I had done my best to raise my daughter to be oral and really worked a lot with her.

I learned so much from my correspondence courses through JTC and the lending library with the AG BELL Associa on. I devoured everything that was sent to me and took the task seriously. I set up one of the bedrooms in the house as a play area and encouraged my friends to bring their babies for play dates so my eldest could have language models. I also a ended Gymboree and enrolled her at a daycare program where she had typical language models at least two hours a day. I learned to narrate life, use wait me for responses and made sure that the hearing aids were on during all waking hours. We went to LA to get a second opinion and made our fi rst visit to JTC.

I’ll never forget the fi rst me I stepped into JTC and I felt as if I had arrived into a warm and loving cocoon. Everyone was wonderful and suppor ve and to this day, I s ll keep in touch with all the teachers and audiologists who were there at the me and con nue to be with JTC. My life did change for the be er. I found hope! I knew I had to sign up for the Interna onal Summer Program, which I

The Heninger Family - From Childhood to

Adulthood, A Thriving

Connection with JTC

Vittoria and Fanny Heninger

Vittoria and Francesca Heninger as young girls

Page 5: Bulletin Newsletter - Summer Fall 2015

5

a ended with Vi oria and my parents a year and a half later. I got so much from that hands-on experience, being exposed to so many families with whom I later was able to keep in contact and make friendships. It was nice to know there were so many people who were experiencing the same things as I was and that there was hope. The con nuous message I got was that it didn’t ma er where you lived, ul mately the work and dedica on fell on the parents’ responsibility, not the school’s. This was encouraging because I felt so empowered by the sessions and the posi ve environment.

By the me my second daughter, Francesca, was born, I was already living in the U.S. and she was diagnosed at birth, as I men oned before. I received the JTC correspondence courses for her as well, along with ECI services that included

AI services from an oral school. Since she wore her hearing aids at thirteen days old, the transi on into ge ng a cochlear implant was not diffi cult. She had already been used to wearing her hearing aids during all waking

and even napping hours. Even though they did not increase her hearing because she defi nitely had a

profound loss, I knew that we were working towards keeping those hair cells alive in the cochlea so as to s mulate the brain. A er all, listening is about the brain and not the ears!

Both girls got their fi rst cochlear implant in 1998 - one at age 3.5 and the other at age one. They con nued to hear with a hearing aid on the other side, again, for nerve s mula on un l 2010 when they both got their second cochlear implant on the same day. It was a memorable day!

What were your impressions of JTC from a “then-and-now” perspec ve? Fanny: John Tracy Clinic is very dear and near to our hearts. My fi rst experience was, of course, posi ve and it con nues to be so every me I visit. I was fortunate enough that since I had two children who were born by all defi ni ons, deaf, with a small “d”, I was able to a end two Summer Session experiences with them and my parents. I have also made it a point to visit the clinic every me we go to LA, like a pilgrimage.

I don’t ever want to forget that feeling of hope that I got when I fi rst received those correspondence courses via mail and when I met the John Tracy Clinic Staff for the fi rst me! Every me I step inside, to this day, I feel a lump in my throat and my eyes well up with tears of joy because I had come to a good place. John Tracy Clinic empowered me as a parent and taught me to advocate for my children so that I could teach them to advocate for themselves. Then I had to invest a great deal of pa ence and eff ort so that our lives could be more like that of our peers. Now I fi nd that life has more similari es than diff erences, but part of it is because taking me to double the eff orts has become second nature to the girls.

In Her Own Words... Vittoria Shares

Her Cochlear Implant Experience

I was [fi rst] implanted when I was 3-and-a-half years old. Before that I was born profoundly deaf. I remember not being

able to hear and [then] being able to hear. I was happy to be able to hear, but I was delayed in speech as well, so it took me a few years to be able to speak normally. I was happy to be able to hear and do things that other kids could do. I was mainstreamed by the me I was in third grade. I was in the orchestra by the me I was in fourth grade all the way to high school - fi rst I played the violin then the viola. I’ve also played the piano since I was 12 years old. By the me I was in 9th grade I no ced something was off with my hearing… that I started to miss parts of conversa ons and got frustrated as well.

Some of my friends who I knew who wore cochlear implants soon started to get second ones, and I started asking them what it was like to have a second one. They said it was clearer and be er to hear [than] before. So I started to do some research and soon was determined to get a second one. It took me awhile to convince my mom to let me get a second one and that summer I got my second one. It was very diff erent. I no ced that I was able to hear clearly and understood things be er and that was amazing for me. I was happy that I made the choice to get my second implant and it really improved my life. But unfortunately six years later my new side had a hard failure -- it seems that I got my new side from a bad batch and it failed.

I made the choice to be re-implanted again for the third me on my le side and from the fi rst week of June to now it has been working great and I’m really happy that I made the choice to have two cochlear implants.

shttanawa

Francesca practicing speech with her little cousin

5

above - Vittoria Heninger before her 3rd implant

surgery, shown with Neurotologist William

M. Luxford, M.D. and Audiologist Jocelyn H.

Goubeaux, MARight - Vittoria two days

after surgery.

Page 6: Bulletin Newsletter - Summer Fall 2015

6

This spring, all of us at John Tracy Clinic enthusias cally welcomed Maria Manotok as our newest member of our Board of Directors. Maria brings outstanding skills, energy and resources to JTC. We

are so fortunate to have her involvement on our team. Meet Maria Manotok!

Maria, tell us about your background. I was born and raised in the Philippines, but decided to pursue a college educa on in the U.S. I a ended Smith College on the East Coast and a er a few winters there, I realized something, which probably should have been obvious from the beginning -- I was more compa ble with the climate of the West Coast. I decided to a end UCLA

Law School, where I met my husband nearly 20 years ago. Without a doubt, our greatest accomplishments have been our two young children, an inquisi ve li le girl and an energe c li le boy.

How did fi rst learn about JTC and what motivated you most about joining our Board? A good friend and colleague of mine also serves on the JTC Board of Directors, Mark Brubaker. Before my involvement with the organiza on, he would share stories about the great work being done at John Tracy Clinic. Having two fairly young children, I am sympathe c to parents who want nothing but the best for their children and would do anything to help them overcome any challenges, especially something that comes up earlier in their lives. He suggested a tour of the facili es and as everyone probably already knows, it’s hard not to be impressed by the JTC programs, the quality of individuals that support it and their level of commitment. When Mark asked if I would be interested in joining the Board, I was thrilled!

I con nue to be impressed with the professionalism, persistence and integrity with which JTC pursues its mission. As a new director, I had a ton of ques ons and everyone was so pa ent with me. It quickly became obvious that every aspect of their programs was though ully considered and more importantly, ul mately designed to benefi t the children.

What are your observations concerning the importance of early intervention for children with hearing loss?

The beauty of children is that they’re amazingly brave and resilient. They also learn so much faster in their fi rst few years. With early interven on, children with hearing loss can sooner start to develop the skills and adapt to any hearing device technologies they may need to assimilate into their environment. By providing families of children with hearing loss with early interven on opportuni es, JTC’s programs help children adjust to their hearing loss before this can start to act as an obstacle in their lives.

JTC is thankful for the passionate commitment of all of our highly talented professionals who comprise the JTC Board of Directors! See our complete Board member roster on the back cover.

Welcome Maria!Our Newest Member of JTC’s Board of Directors

MAR IA

MANOTOK

With the support of Vivosonic, a manufacturer of hearing diagnos c measurement and newborn hearing screening device technologies, JTC’s Audiology

Services Department acquired a new Integrity V500 System for use in detec ng infant and toddler hearing abili es.

JTC’s audiology professionals provide comprehensive audio logical evalua ons to more than 2,500 infants and toddlers each year. The Integrity V500 System will provide JTC’s audiologists with

innova ve auditory evoked response detec on technology to help ensure their con nued delivery of the high quality diagnos c assessment services.

“Since JTC is a private non-profi t provider, we are dependent on support from organiza ons, such as Vivosonic, for func onal, reliable technology equipment that can keep pace with the high demand for our pediatric audiology services,” said Claire

(con nued next page)

Vivosonic and JTC Forge Hearing Diagnos cs Partnership

Page 7: Bulletin Newsletter - Summer Fall 2015

7

A Congressional vote is on the fall docket that will determine whether the U.S. will amend the Public Health Service Act to reauthorize the federal program

for early detec on, diagnosis, and treatment regarding deaf and hard-of-hearing newborns, infants, and young children. The outcome of bill HR 1344, also referred to as the “Early Hearing Detec on and Interven on Act of 2015,” has a major impact on the federal government’s support of early interven on programs, including newborn screening requirements.

The bill was introduced to Congress on March 10, 2015, by Congressman Bre Guthrie (KY) and Congresswoman Lois Capps (CA). Updated informa on about the status of the bill, including cosponsors can be found at www.congress.gov/bill/114th-congress/house-bill/1344. Vo ng could take place as early as September.

How can you help ensure the success of the EHDI Reauthoriza on Act (HR 1344)?

Contact your Congressman or Congresswoman and ask them to sign on as a cosponsor of HR 1344.

Generally, the more cosponsors a bill has, the more quickly it can become a law.

Step 1. Find your Representa ve at www.house.gov/representa ves/fi nd/. Click on the link under his or her picture

Your Voice Counts! Ask your Congressional Representative to Support Renewal of the

Early Hearing Detection and Intervention Act

Sanchez, director, Audiology Services, JTC. “We are grateful to have the Vivosonic product and look forward to pu ng the latest technology to great use for the benefi t of the infants, toddlers and their parents who depend on us for comprehensive, high quality results.”

Mike Schnekenburger, president and CEO, Vivosonic, said “We are pleased to con nue our partner-ship with John Tracy Clinic. They have used the Vivosonic Integrity V500 ABR system for many years and their new Integrity system will help pro-vide ABR diagnos c services to many

more families. The equipment is infant and parent friendly. The Integrity V500 lets clinics perform assessments without seda- on on awake, quiet pa ents or on pa ents in natural sleep. The

unique technology and wireless capabili es allow caregivers to comfort and carry a child during tes ng to keep them calm and sleeping to facilitate a faster test result.”

to visit their website and get their telephone number. It is generally most eff ec ve to call the DC offi ce.

Step 2. Call your Representa ve. Phone calls have been shown to be more eff ec ve than emails and le ers.

Introduce yourself and c learly state that you live in their district:

“Hello, my name is [your name] and I am a cons tuent in Representa ve _____’s district. I am a [parent of a child with hearing loss or audiologist or early interven on provider or teacher of the deaf or …] and am calling to encourage Rep. _______ to vote for HR 1344, which reauthorizes the Early Hearing Detec on and Interven on program.”

Give reasons you support EHDI - If possible, cite data. Use statements from documents like the NIH Fact Sheet online: http://report.nih.gov/nihfactsheets/ViewFactSheet.aspx?csid=104.

Make a plan to follow up: e.g., “Can I call back in a week to make sure you’ve had me to read the bill and fi nd out if Representa ve [name] is willing to sign on a co-sponsor?”

Don’t give up -- As Congressman Guthrie pointed out, cons tuents who make the eff ort to personally communicate with their Senators and Representa ves are more infl uen al than lobbyists.

Turn your love for JTC into tangible support that will help us benefi t more families, both now and into

the future.

Put your support to work right away by making a gi of cash or stock today.

Magnify your support by hol ding a fundraiser or crowdfunding campaign with proceeds benefi ng JTC; or, fi nd out whether your employer could contribute a corporate matching gi .

Finally, consider a legacy gi to benefi t JTC in years to come by including JTC in your estate plans. For details and recogni on informa on, visit the donors sec on of our website at jtc.org or contact Joey Perlmu er in our Offi ce of Development at (213) 748-5481, ext. 229; email jperlmu [email protected].

Ways to Turn Your Passion into Support for JTC!

Page 8: Bulletin Newsletter - Summer Fall 2015

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The leading diagnostic and education center for young children with hearing loss

806 W. Adams BoulevardLos Angeles, Calif. 90007 USA

Web: www.jtc.orgTel: (213) 748-5481 E-mail: [email protected]

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BOARD OF DIRECTORS

Michael D. BarkerChair

Speed FryVice Chair

Kurt A. RameyTreasurer

Joseph F. Coyne, Jr.Secretary

Mark Brubaker

Eric P. Crabtree

Jerry F. Dietrick

Maria Manotok

Paul E. Slye

Susie Tracy

Anzor Zurhaev

BOARD OF TRUSTEES

Patricia W. Barry

David L. Buell

Patricia A. Fry, R.N.

Lyle V. Krapf

William G. McGagh

Jay J. Rakow

Gary U. Rollé

Dickinson C. Ross

Robert J. Wagner

EXECUTIVE TEAM

Gaston KentPresident & CEO

Kevin Ma hewsChief Financial Offi cer

Jill Muhs, M.S.Ed.Vice President, Programs

Joey Perlmu erVice President, Development & Communica ons

JTC BULLETINEditor and Designer:Marilee J. Po hoff Assoc. Director,Development & Communica ons

Select Photography:Greg WilsonMedia Producer

Make a lasting difference in the lives of young children with hearing loss.

Donate to JTC today!www.jtc.org