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Building Resilience Through Research: NIH Disaster Research Response Program Siobhan Champ-Blackwell National Library of Medicine Stacey Arnesen National Library of Medicine Aubrey Miller National Institute of Environmental Health Science Robin Taylor ICF Steven Ramsey Social & Scientific Systems, Inc Richard Rosselli Social & Scientific Systems, Inc April Bennett Contractor, National Institute of Environmental Health Science PROGRAM OBJECTIVES • Identify important disaster research questions • Improve researchers’ access to data collection tools • Improve researchers’ capability to quickly collect heath research data • Integrate Disaster Research Response (DR2) into planning and emergency response systems • Create a comprehensive disaster research process that includes public health, academia, emegency management, and affected workers and communities • Develop the Rapid Acquisition of Pre-and Post-Incident Disaster Data (RAPIDD) pre-positioned protocol METHODS The National Institute of Environmental Health Sciences (NIEHS) and the National Library of Medicine (NLM) developed a program to improve and enhance biomedical research following disasters and public health emergencies. • Evaluation of a long-standing need for clinical research in disasters (e.g., H1N1 experience) Creation of a Public Health Emergency Research Review Board (PHERRB) Report with ten recommendations to improve disaster research Review of research as part of public health emergency response efforts The NIH Disaster Research Response (DR2) Program provides ready-to-use data collection tools, surveys, forms, and research protocols. RESULTS NLM and NIEHS presented a framework for research on the medical and public health aspects of disasters and public health emergencies. The framework includes: A repository of data collection tools. Includes custom metadata to standardize the repository, improve retrieval, and aid researchers’ selection of tools. Exercises conducted by the DR2 program. Data collection protocols and IRB approval. NIEHS developed the RAPIDD data collection protocol and received pre- approval from the NIEHS IRB. Resources for disaster researcher deployment, e.g., training resources are available for preparing scientists to conduct research in the post-disaster field environment. CONCLUSIONS The DR2 program continues to improve the state of environmental health disaster research by: • providing a central repository for disaster health research tools • conducting exercises • supporting a network of disaster “Research Responders” DR2’s success led to a transition from a pilot project to a full-fledged program that will have increased cross-cutting impact across programs at NIH. DR2 aims to support the creation of a national disaster research framework that builds upon the existing emergency management infastructure.

Building Resilience Through Research: NIH Disaster Research … · 2018-06-29 · • Creation of a Public Health Emergency Research Review Board (PHERRB) • Report with ten recommendations

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Page 1: Building Resilience Through Research: NIH Disaster Research … · 2018-06-29 · • Creation of a Public Health Emergency Research Review Board (PHERRB) • Report with ten recommendations

Building Resilience Through Research: NIH Disaster Research Response Program

Siobhan Champ-BlackwellNational Library of Medicine

Stacey ArnesenNational Library of Medicine

Aubrey MillerNational Institute of Environmental Health Science

Robin TaylorICF

Steven RamseySocial & Scientific Systems, Inc

Richard RosselliSocial & Scientific Systems, Inc

April BennettContractor, National Institute of Environmental Health Science

PROGRAM OBJECTIVES• Identify important disaster research questions• Improve researchers’ access to data collection tools• Improve researchers’ capability to quickly collect heath research data• Integrate Disaster Research Response (DR2) into planning and

emergency response systems• Create a comprehensive disaster research process that includes public

health, academia, emegency management, and affected workers and communities

• Develop the Rapid Acquisition of Pre-and Post-Incident Disaster Data (RAPIDD) pre-positioned protocol

METHODSThe National Institute of Environmental Health Sciences (NIEHS) and the National Library of Medicine (NLM) developed a program to improve and enhance biomedical research following disasters and public health emergencies.

• Evaluation of a long-standing need for clinical research in disasters (e.g., H1N1 experience)

• Creation of a Public Health Emergency Research Review Board (PHERRB)

• Report with ten recommendations to improve disaster research• Review of research as part of public health emergency response

efforts

The NIH Disaster Research Response (DR2) Program provides ready-to-use data collection tools, surveys, forms, and research protocols.

RESULTSNLM and NIEHS presented a framework for research on the medical and public health aspects of disasters and public health emergencies. The framework includes:

A repository of data collection tools. Includes custom metadata to standardize the repository, improve retrieval, and aid researchers’ selection of tools.

Exercises conducted by the DR2 program.

Data collection protocols and IRB approval. NIEHS developed the RAPIDD data collection protocol and received pre-approval from the NIEHS IRB.

Resources for disaster researcher deployment, e.g., training resources are available for preparing scientists to conduct research in the post-disaster field environment.

CONCLUSIONSThe DR2 program continues to improve the state of environmental health disaster research by:

• providing a central repository for disaster health research tools• conducting exercises• supporting a network of disaster “Research Responders”

DR2’s success led to a transition from a pilot project to a full-fledged program that will have increased cross-cutting impact across programs at NIH.

DR2 aims to support the creation of a national disaster research framework that builds upon the existing emergency management infastructure.