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Best PracticeWhat Rights Are Most Important?
Presenters
Jennifer GledhillLeanne Mull
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VisionA world of dignity, opportunity and community for all
people.
MissionCQL is dedicated to the definition, measurement and
improvement of personal quality of life.
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Our WorkCQL assists communities, systems and organizations to
help people discover and define their own quality of life, measure
personal quality of life for individuals, organizations and systems
and improve the quality of life for people with disabilities,
people with mental illness and older adults ― and the people,
organizations and communities that support them.
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The ACF/MR was established through an MOAwith JCAH
The Accreditation CouncilACF/MR standards are used as basis for
35 Wyatt standards
Wyatt v. Stickney…are consolidated into one set
ACF/MR StandardsThe Council on Quality and Leadership
CQL
First edition of standards are developed – focus on large
residential facilities
ACF/MR StandardsStandards are adapted for use by DHEW for
certification of ICFs/MR.
Accreditation Council publishes second set of standards for
community settings
ACF/MR StandardsThe Accreditation Council for MRDD
ACMRDD
1969 1972 1977 1997
1971 1973 1979
THE HISTORY OF CQL
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• Access to the Courts• Right to Free Association• Right to
Contract for, own, dispose of property• Equal Education
Opportunity• Equal Protection and Due Process• Freedom from Cruel
and Unusual Punishment• Freedom if Speech and Free Expression• The
right to marry, procreate, raise children• The Right to Vote• Right
to bear arms
OUR CIVIL RIGHTS
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OUR HUMAN RIGHTS
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• Provide answers• Direct response• Review policy• Educational
options
• Solicit feedback• Encourage advocacy• Site reports• Task
force
• Educate/inform• Trainings• Forums• ‘All About Me’
BEFORE WE ASK, WE TEACH
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BEFORE WE ASK, WE TEACH
THREE WAYS TO SHARE INFORMATION
1. Rights Handbook• Agency’s discretion, Micro-to-Macro
2. Monthly Trainings• Self-Advocacy Forums Day
Training/Residential• ‘All About Me’ Folders• Ask narrow
questions
3. Focus Groups• Ask specific questions about a specific topic•
Create teaching modules/presentations from the
questions and concerns
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BEFORE WE ASK, WE TEACH
Rights Handbook
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BEFORE WE ASK, WE TEACH
Macro Trainings: Macro
Self-Advocacy Forum Sept 2018
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House Name: ____________________________________________
Who in your home is interested in participating in the 2018
general election? Please write down a response for EVERY
resident
even if it is “No Response” (NR)
WANT TO VOTE?IF ‘YES,” HOW?
Name: _________________________ Yes No NR In person By Mail
Name: _________________________ Yes No NR In person By Mail
Name: _________________________ Yes No NR In person By Mail
Name: _________________________ Yes No NR In person By Mail
Name: _________________________ Yes No NR In person By Mail
Name: _________________________ Yes No NR In person By Mail
Name: _________________________ Yes No NR In person By Mail
Name: _________________________ Yes No NR In person By Mail
For those who mark “yes” as their answer, in the next few weeks
we will be offering several workshops at DT sites that will explore
the candidates – local and national – and where they stand on those
issues most important to you. We will also offer non-partisan
assistance with the ballot for those choosing mail ballots. Or, if
you choose to vote in person, we will be arranging day trips to
early voting sites.
For all of those reasons, It’s very important that these get
back to Jennifer at KNS ASAP! Thanks!
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BEFORE WE ASK, WE TEACH
Micro Trainings: Micro
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BEFORE WE ASK, WE TEACH
Focus Group: Ask specific
questions to a group of self-advocates
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Create presentations that
answer those questions inspired by previous steps
BEFORE WE ASK, WE TEACH
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BEFORE WE ASK, WE TEACH
QUESTIONS/ANSWERS
Q. How can/do we have our medical bills paid? - Lawrence
House
A. Your insurance covers all medical bills as long as the
providers are in the network.
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BEFORE WE ASK, WE TEACH
RECAP
MEDICARE:EVERYWHERE
• Federal program/US Government• Everyone over 65
• People with certain disabilities
• SSI payments are part of the
Medicare program
• Same in every state
MEDICAID:IT’S THE STATE
• A state AND federal program• For people with a low income
• For people with certain disabilities
• Different in every state
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• Johnson Center Home Inc.
• Search Inc.
WHAT RIGHTS ARE IMPORTANT?
THANK YOU!
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A special tradition: If there wassomething you always did — a
tradition -that you did on a holiday, please let usknow. An example
might be opening onegift on Christmas Eve, or baking aspecial kind
of cookie or cake on acertain holiday.
Is your faith/religion important to you?
____Yes, very____Kind of. I can take it or leave it.____No, not
at all.
RIGHTS ASSESSMENT EXAMPLES
Do you go to church/services?____Yes____No
If you wrote "no," Would you like to?
____Yes____No
Do you enjoy watching religious services on TV?____yes
____no
Do you have a favorite TV pastor/church program
p___________________________________
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2. Right to Privacya. Exercises the right to send and receive
unopened mail? Yes No
b. Talks on the phone to friends/family without others hearing?
Yes No
c. Visits with friends/family in private? Yes No
d. Spends time alone if he/she wants? Yes No
e. Determines what information is shared with others? Yes No
F. Receives his/her medications in private? Yes No
g. Afforded privacy during personal cares? Yes No
Is this right understood? Yes NoIs this right of interest to the
individual? Yes No
List any supports needed to exercise this right:
RIGHTS ASSESSMENT EXAMPLES
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List any supports needed to exercise this right:
20. Choice of Clothinga. I choose what clothes I want to wear
Yes No
b. I choose what clothes I want to buy Yes No
c. I get help selecting clothes, if I need it Yes No
Is this right understood? Yes NoIs this right of interest to the
individual? Yes No
RIGHTS ASSESSMENT EXAMPLES
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Jennifer GledhillLeanne Mull
[email protected]
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