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Beginning with the end in mind: active user involvement in the research
process
Sarah [email protected]
JSWEC Cambridge, July 2008
Plan for the workshop
• INVOLVE•Why public involvement is important•How people are getting involved in research
• Your experiences of involvement
•Challenges for involvement•Overcoming challenges
JSWEC Cambridge, July 2008
National advisory group. Funded by the Department of Health, since 1996
Promotes active involvement of the public in NHS, public health and social care research
JSWEC Cambridge, July 2008
INVOLVE
What do we mean by active involvement in the research process?
• Public - eg service users, carers, patients
• Research carried out ‘with’ or ‘by’ the public rather than ‘to’, ‘about’ or ‘for’
• Consultation – Collaboration – User controlled
JSWEC Cambridge, July 2008
• Influencing policy and practice
• Increasing awareness and sharing experiences of others
- website- newsletters- databases
• Giving advice and guidance- publications- enquiries
• Improving understanding of extent, nature and effects of involvement
Role of INVOLVE
• Influencing practice
• Improving relevance of research
• Improving quality of research design, methods and findings
• Assisting in dissemination of research
JSWEC Cambridge, July 2008
Value of public involvement
IMPLEMENTATION
IDENTIFYING & PRIORITISING
TOPICS
DESIGNING & MANAGING
ANALYSING & INTERPRETING
COMMISSIONING
UNDERTAKING RESEARCH DISSEMINATION
MONITORING & EVALUATION
researchcycle
INVOLVENovember 2004
• As a researcher involving service users in your work
• As a service user or carer getting involved in research
JSWEC Cambridge, July 2008
Experiences of involvement
• For researchers involving the public
• For service users and carers getting involved in research
JSWEC Cambridge, July 2008
What are the challenges for public involvement in research
JSWEC Cambridge, July 2008
Overcoming the challenges to involvement
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