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Arlene WilkieChief Executive
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The role of Regional Neurological Alliances
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We are the only collective voice for the 8 million children, young people and adults in England with a neurological condition.
A better quality of life for each individual diagnosed with a neurological condition
To raise awareness and understanding of neurological conditions to ensure that every person diagnosed with a neurological condition has access to high quality, joined up services and information from their first symptoms and throughout their life
Our national members
Regional Neurological Alliances
West Berkshire NA
Hounslow and Richmond Neurological Partnership
London NA
Lincolnshire NAYHANO
Northern NA
Tees Valley, Durham and N. Yorkshire NA
Lancashire and South Cumbria NA
Greater Manchester NA
Merseyside and Cheshire NA
CAN-DO
Gloucestershire NA
Swindon and Wiltshire NA
Oxfordshire NA
Hampshire NA
BANO
SWANO
http://goo.gl/dBVFs
• To speak for neurological community with an authoritative and united voice
• To create a network of RNA’s across England
• To support new RNA’s and to strengthen existing RNA’s
Our aims for our regional work
• Policy set nationally - priorities determined locally
• Local services, local people with local knowledge
• Easier for local commissioners to talk with one organisation
• Identify and campaign for common causes across all neuro conditions
• Exchange information – locally and through the network
• RNA better placed to contribute……..
…One credible, united group speaks with a louder voice and is better heard
Why have an RNA?
SizeSHA PCT
MembershipStaff Volunteers
ConstitutionLooser Associations Independent
Charities
What do RNAs look like?
• Reflect the Alliance at local level
• Engagement with service users and carers
• Influence decision-making at local level
• Provide a credible, united voice and point of contact for commissioners across the neuro spectrum
Common principles
‘Stronger together’ https://goo.gl/yl116
WBNA: Rare Conditions Nurse, hydrotherapypool, pain surveys, conferences
GMNA: 1 member of staff, PCT funded usersurveys and research
SWANO: website, workforce training sessions,directory of local services
What have they achieved?
• Users directly involved at heart of planning• Acted as conduit for service user views• Acted as the single point of contact for all matters
neuro re commissioners• Run training / awareness days • Produced information leaflets• Set up charity, raised funds• Forged alliances with other alliances• Secured a new Neuro Consultant post• Membership of hospital boards• “What you need to know…” adopted in hospitals
More examples….
What can you do now?Take action!
• Use the campaigning document• Sign up here http://goo.gl/yInPr
Network• Circulate info to committee and members
• With the RNA network• Follow us on Twitter @NeuroAlliance
Help us with national consultations
