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April 2018 Newsletter
Offering support, care, and hope…right here at home!
Indiana Support Group Meeting Dates
Evansville, IN support group will meet Saturday, April 14th, at 10:00 a.m. at the TSMSA office,
971-C S. Kenmore Drive. Richard Ogilvy will discuss and demonstrate Qigong, a holistic system of
coordinated body posture and movement, breathing, and meditation. Qigong is practiced worldwide
for recreation, exercise and relaxation, preventive medicine and self-healing, alternative
medicine, meditation and self-cultivation, and training for martial arts.
Contacts: Nita Ruxer / 812-479-3544 or Sharon Omer / 270-333-4701.
Tell City, IN support group will meet Tuesday, April 10th, at 11:00 a.m. at Twilight Towers, 1648
10th Street, in the cafeteria. Join us for an open discussion.
Contacts: Terri Hasty / 812-649-4013 or Mary Ann Weatherholt / 812-719-2666.
Washington, IN support group will meet Saturday, April 21st, at 10:00 a.m. at Daviess Community
Hospital. Join us for an open discussion.
Contacts: Fran Neal / 812-259-1565 or TSMSA / 1-866-514-4312.
Kentucky Support Group Meeting Dates
Henderson, KY support group will meet Saturday, April 7th, at 10:00 a.m. at Calvary Missionary
Baptist Church, 2360 Green River Road, Henderson, KY. Join us for an open discussion.
Contacts: Cheryl Walker / 270-823-4752 or Debbie Whittington / 270-827-8298.
Owensboro, KY support group will meet Saturday, April 14th, at 11:00 a.m. at HealthPark -
Owensboro Health, 1006 Ford Ave, Owensboro, KY. Join us for an open discussion and
refreshments.
Contacts: Susan Reynolds / 812-228-6100 or TSMSA / 1-866-514-5312.
Illinois Support Group Meeting Dates
Fairfield, IL support group will meet Saturday, April 7th, at 11:00 a.m. at Fairfield Memorial
Hospital in the Board Room of Horizon Clinic. Join us for an open discussion.
Contacts: Carol Anne Greenwood / 618-558-1045 or TSMSA / 1-866-514-4312.
The Mission of the Tri-State Multiple Sclerosis Association
is to enhance the quality of life for individuals living with multiple sclerosis and their families in Southern Indiana, Southern Illinois, and Western Kentucky.
971-C S. Kenmore Drive
Evansville, IN 47714
Phone: 812-423-5943 Toll-Free: 1-866-514-4312
www.tristatems.org
“Like” us on Facebook
Calendar of Events
April 18, Wednesday, Genzyme (Aubagio) Educational Lunch Program
Speaker: Dr. Mark J. Janicki, Neurologist, Witham Health Services, Lebanon, IN
Time: 12:00 p.m. (noon)
Location: Moonlite Bar-B-Q, Owensboro, KY
RSVP: You and 1 (one) guest: 1-877-895-1136 or www.aubagio.com/events
April 18, Wednesday, Genzyme (Aubagio) Educational Dinner Program
Speaker: Dr. Mark J. Janicki, Neurologist, Witham Health Services, Lebanon, IN
Time: 6:00 p.m.
Location: The Patio Steakhouse, 3120 E State Rd 66, Tell City, IN
RSVP: You and 1 (one) guest: 1-877-895-1136 or www.aubagio.com/events
April 19, Thursday, Genzyme (Aubagio) Educational Lunch Program
Speaker: Dr. Mark J. Janicki, Neurologist, Witham Health Services, Lebanon, IN
Time: 12:00 p.m. (noon)
Location: Biaggi’s, 6401 E Lloyd Expwy, Evansville, IN
RSVP: You and 1 (one) guest: 1-877-895-1136 or www.aubagio.com/events
April 19, Thursday, Genzyme (Aubagio) Educational Dinner Program
Speaker: Dr. Mark J. Janicki, Neurologist, Witham Health Services, Lebanon, IN
Time: 6:00 p.m. (eastern); 5:00 p.m. (central)
Location: Schnitzelbank Restaurant, 393 3rd Ave, Jasper, IN
RSVP: You and 1 (one) guest: 1-877-895-1136 or www.aubagio.com/events
April 20, Friday, Monthly Newsletter Folding Time: 10:30 a.m. Location: TSMSA Office – Come help, while you make new friends!
Monday, April 23, EMD Serono (Rebif) Educational Dinner Program Speaker: Dr. Kristi Nord, Neurologist, Memorial Hospital, Jasper, IN
Time: 6:30 p.m.
Location: Biaggi’s Ristorante Italiano, 6401 E Lloyd Exp, Evansville, IN
RSVP: You and 1 (one) guest: 1-877-969-1722 or mslifelines.com/liveevents
April 30, Monday, Genzyme (Lemtrada) Educational Lunch Program
Speaker: Dr. Nicole Everman, St. Joseph’s Neurology, Lexington, KY
Time: 12:00 (noon)
Location: Biaggi’s Ristorante Italiano, 6401 E Lloyd Exp, Evansville, IN
RSVP: You and 1 (one) guest: 877-895-1136 or Lemtrada.com
April 30, Monday, Genzyme (Lemtrada) Educational Dinner Program
Speaker: Dr. Nicole Everman, St. Joseph’s Neurology, Lexington, KY
Time: 6:00 p.m.
Location: Moonlite Bar-B-Q, Owensboro, KY
RSVP: You and 1 (one) guest: 877-895-1136 or Lemtrada.com
NOTE: Day and time change is for this month (April) only.
Upcoming Events
May 2, Wednesday, Genzyme (Lemtrada) Educational Dinner Program
Speaker: Dr. David Robertson, Neurologist, University of Louisville, Louisville, KY
Time: 6:00 p.m. (eastern); 5:00 p.m. (central)
Location: Schnitzelbank Restaurant, 393 Third Ave, Jasper, IN
RSVP: You and 1 (one) guest: 1-877-895-1136 or Lemtrada.com
May 3, Thursday, Celebrating All Women…. Mothers, Daughters, Sisters
Time: 6:00 to 8:00 p.m.
Location: Gehlhausen Floral, 735 S. Green River Rd, Evansville, IN
Tickets: In Advance: $15; At the Door: $20 (All ticket proceeds will benefit TSMSA.)
5% GiveBack to TSMSA 25% Off Entire Purchase Fashions by: Gehlhausen Floral
May 8, Tuesday, EMD Serono (Rebif) Educational Dinner Program Speaker: Dr. Kristi Nord, Neurologist, Memorial Hospital, Jasper, IN
Time: 6:30 p.m. (eastern); 5:30 p.m. (central)
Location: Schnitzelbank Restaurant, 393 Third Ave, Jasper, IN
RSVP: You and 1 (one) guest: 1-877-969-1722 or mslifelines.com/liveevents
May 9, Wednesday, Genzyme (Aubagio) Educational Dinner Program
Speaker: Dr. Kristi Nord, Neurologist, Memorial Hospital, Jasper, IN
Time: 6:00 p.m.
Location: Biaggi’s Ristorante Italiano, 6401 E Lloyd Exp, Evansville, IN
RSVP: You and 1 (one) guest: 1-877-895-1136 or www.aubagio.com/events
May 16, Wednesday, Genzyme (Lemtrada) Educational Lunch Program
Speaker: Dr. David Robertson, Neurologist, University of Louisville, Louisville, KY
Time: 12:00 p.m. (noon)
Location: Moonlite Bar-B-Q, Owensboro, KY
RSVP: You and 1 (one) guest: 1-877-895-1136 or Lemtrada.com
May 16, Wednesday, Genzyme (Lemtrada) Educational Dinner Program
Speaker: Dr. David Robertson, Neurologist, University of Louisville, Louisville, KY
Time: 6:00 p.m.
Location: Haub Steak House, 101 E Haub Street, Haubstadt, IN 47639
RSVP: You and 1 (one) guest: 1-877-895-1136 or Lemtrada.com
May 21, Monday, EMD Serono (Rebif) Educational Dinner Program Speaker: Dr. Harold Moses, Neurologist, Vanderbilt, Nashville, TN
Time: 6:30 p.m.
Location: Biaggi’s Ristorante Italiano, 6401 E Lloyd Exp, Evansville, IN
RSVP: You and 1 (one) guest: 1-877-969-1722 or mslifelines.com/liveevents
June 4, Monday, The Ted Donosky MS Golf Scramble
Location: Rolling Hills Country Club
Save the Date!
Single and foursomes available. For sponsorship opportunities: www.tristatems.org
Call TSMSA for more information: 812-423-5943 or 1-866-514-4312
Biogen and AbbVie Have Voluntarily Withdrawn Marketing Authorizations for Zinbryta
Susan M. Reynolds RN MSCN
In May 2016, the United States Food and Drug Administration approved the disease-modifying
therapy Zinbryta (daclizumab) for treating relapsing-remitting MS.
Zinbryta is a medication given underneath the skin (subcutaneous injection) every four weeks. The
therapy is an antibody engineered to reduce inflammation. It targets MS patients’ T-cells, which are
key immune cells in inflammation. It is believed that Zinbryta works by blocking the binding site,
called the receptor, on interleukin-2 (IL-2), a molecule in the immune system that activates T-cells.
By blocking the receptor on interleukin-2, T cells are not activated to attack the myelin sheath in
your brain and spinal cord. Zinbryta may also work by increasing cells in the immune system called
natural killer cells, which kill activated T-cells that are programmed to attack the myelin sheath.
Biogen and AbbVie have voluntarily withdrawn global marketing authorizations for their relapsing
multiple sclerosis therapy Zinbryta (daclizumab) because of serious side effects that include
encephalitis (brain inflammation).
The European Medicine Agency, which oversees medications across the European Union, also
released a statement recommending an “immediate suspension” of Zinbryta’s use and a recall.
Twelve cases of immune-mediated inflammatory disorders, including encephalitis, may be linked to
the medication’s use based on a preliminary review of data, the EMA states. Three people have died.
Most cases started within eight months of starting treatment.
Biogen believes the voluntary worldwide withdrawal of Zinbryta is in the best interest of patients.
“We continue to prioritize patient safety and the care of multiple sclerosis patients worldwide,”
Alfred Sandrock, Biogen’s executive vice president and chief medical officer, said in a press release.
Biogen said it will work with regulatory authorities to withdraw Zinbryta and with healthcare
providers to support patients who have been affected.
Zinbryta carries a warning on its label about the potential of patients developing a liver injury that
could be life-threatening. It advises doctors who prescribe the treatment to keep a close watch on
patients’ liver function. Due to its risks, the medication is normally given to patients who have tried
two or more MS treatments without success. To date, over 8,000 patients worldwide have been
treated with Zinbryta.
If you are taking Zinbryta, or if you have taken Zinbryta in the past, please contact your healthcare
provider if you have any questions or concerns.
Sources: Biogen and AbbVie press release. European Medicines Agency
Fidget Cubes
The fidget cube is a hand held device that can have therapeutic benefits! It has sensory tools
on all sides: a switch, gears, a rolling ball, a small joystick, a spinning disc, and five buttons.
Often, individuals with MS (and elderly persons) have trouble with hand weakness. Fidget cubes can
help with dexterity, keeping the fingers and hands stronger. In addition, they can provide stress relief,
soothing agitated minds.
Toys R’ Us has fidget cubes for $7.98 each. They can also be purchased online at Amazon.com.
Happy Birthday To You!
Peggy Wade
Sue Hartig
Kristi Williams
.If you would like to have your birthday included in our newsletter, please send a note that includes
your name, date of birth, and signed permission for us to print it.
Thank you to our awesome Speakers!
Below is contact information for each Speakers and details on the services they provide.
USI Occupational Therapy Students discussed and demonstrated tips about occupational therapy.
Instructor: Jessica Woods
Students: Kelsey Greenwell, Alison Jones, Lauren Davis, Leo Scheller, Emily Moers, Miranda Camp
Laughing Yoga was led by Tiffany Floyd, Owner of “All That Is.” Tiffany taught us how to laugh and
breathe for wellness.
Email: [email protected] Phone: (812) 632-1650
Tiffany’s specialties: Shamanic Healer, Licensed Massage Therapist, Sacred Song Carrier, Earth
Keeper, Certified Reiki Master, Wellness Advocate, Intuitive Guide, Aromatherapist, Sound Healer,
Conscious Creator, Hamanic Yoga Teacher CYT, Occasional Blogger, and Meditation Leader.
Stay Healthy and Fit with MS was our lunch time program discussion by Laura Miller, PT DPT, NCS,
MSCS, ATP. Laura is the coordinator of clinical education for Norton Neurosciences & Spine
Rehabilitation Center as well as a mentor for the Norton Physical Therapy Residency Program.
Good Clean Fun was taught by Mary Allen, Owner of Sixth Street Soapery. Mary demonstrated some
of her processes for creating pure, honest products for everyday use.
Email: [email protected] Phone: (812) 431-3835
Address: 44 Washington Ave; Evansville, IN
Let’s Get Organized! was a great discussion by Jamie Pfeiffer, Organizer with ‘Lasting Order
Professional Organizing Services.’ Services provided include: home organizing; business productivity;
photo organizing and scanning; and much more.
Phone: (812) 858-2457 Website: www.lastingorder.net
What’s All the Fuss About CBD Oils? This discussion was led by Mark Haywood, Pharmacist /
Owner of Optimum Wellness Pharmacy. Mark talked about the potential benefits of CBD oil. He also
described some of the discussions among Indiana lawmakers.
Email: [email protected] Phone: (812) 518-3428
Address: 8900 Ruffian Ln; Newburgh, IN
Offering Support, Care, and Hope….Right Here at Home!
As you can see from our monthly newsletter, the Tri-State MS Association provides many services and
resources for individuals living with MS and their family members in the tri-state area. We could not
work our mission without support from you and community-minded businesses. Your help enables us to
keep the dollars we raise local, providing needed services. Please join us by asking your employers,
neighbors, families, and friends to get involved in our upcoming events. Think of the impact that,
together, we will make for the local MS community when we partner to support the following events!
Do you know a company that may have an interest in supporting the Tri-State MS Association? Call us
today! We will gladly contact that company, and you will receive a TSMSA t-shirt!
2018 Fundraising Events
May 3 Ladies Night Out Gehlhausen Floral, Green River Rd
June 4 MS Golf Scramble Rolling Hills Country Club
June 17 – July 28 Holy Hoops H.O.R.S.E. Shootout for MS holyhoops4ms.com
August 24 Evening of Excellence Dinner Honoring Holly Dunn Pendleton
September 13 Girls Night Out Evansville Country Club
October 28 Owensboro Autumn Walk Moreland Park; Owensboro, KY
November 4 Evansville Autumn Walk Harrison High School, Evansville, IN
To be announced Family Day
United Leasing Championship
“Golf Gives Back”
United Leasing, Inc., is proud to sponsor the United Leasing Championship at Victoria National, an
official event of the PGA TOUR. The tournament will be at Victoria National April 23-29, 2018.
TSMSA has the opportunity to raise money through the Old National Bank ‘Golf Gives Back’ program.
Visit www.ulcgolf.com. Purchase your full-week pass. Select ‘Tri-State Multiple Sclerosis Assoc’ from
the drop down menu. The price of the ticket will be donated back to TSMSA. Print your own ticket and
head to Victoria National to watch some great golf! It’s that simple! Thank you for your support!
In Memory of…… In Honor of……
This is a wonderful way to acknowledge those individuals in our lives that have made a difference.
Please include a note of who the donation is ‘In Memory of’ or ‘In Honor of’.
In Honor of Tri-State MS Association
Dr. Rick Yeager
Mr. Mike Cherry
Mr. Michael Clauson
Mr. Jeffrey Curtis
Ms. Denise Love Orrick
Ms. Marcy Powers
Ms. Autumn Brown
Ms. Nancy Arapios
Open Door UU Church
Gibson County United Way
Toyota MMI Employees Giving
In Memory of Joni Gentry
Bruce Adler
In Memory of Dr. Ricky Ballou
Kathy Williams
In Memory of John Oran
Diana Wellmeien
Mr. & Mrs. Jim Gilham
Mr. & Mrs. Dwight Owen
Mr. & Mrs. Ray Turpin
In Memory of Barbara Corbett Mary Dawn Clary
Mr. & Mrs. John Dewig
Debbie Hebbeler
Linda Mattingly
Thursday, May 3rd, 6:00 – 8:00 p.m.
Gehlhausen Floral
735 S Green River Rd; Evansville, IN
Door Prizes & Light Refreshments
Fashions by Gehlhausen Floral
Ticket proceeds will benefit TSMSA.
Tickets: $15 in advance; $20 at the door
20% off entire purchase
5% GiveBack to TSMSA
