Annual Report 2012

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R I L E Y C H I L D R E N ’ S F O U N D AT I O N

Dear Friends:

Last year we celebrated the conclusion of Hope Happens Here: The Campaign for Indiana’s Children. Raising over $201 million was an extraordinary accomplishment for our state and made an incredible impact on Riley Hospital for Children and the thousands of children who receive care here every year as well as the countless children throughout the world who benefi t from the research conducted by Riley physician scientists. The end of the campaign brings new opportunities. Riley Hospital serves families from all 92 Indiana counties. Now, we are actively reaching out to those counties, connecting with community leaders, working with area schools and businesses and increasing awareness. With this new statewide team of Riley ambassadors we will take

bold new steps in building support for critical programs and research. The story of one of those areas of research, type 1 diabetes, is recounted in this report. With one of the best type 1 diabetes research laboratories in the country—made possible through the generosity of Eli Lilly and Company, Lilly Endowment, Inc., and other foundation and individual donors— Riley researchers are poised to contribute to the discoveries that will revolutionize the way type 1 diabetes is treated and, one day soon, will be cured. Your contributions to this and other research efforts have great potential to impact the future. Vital support programs at Riley Hospital, such as Child Life and palliative care, depend upon generosity. These programs are not reimbursed by patients’ insurance and yet they are critical in assisting them with the healing process. Hospitalization can be frightening and overwhelming. These specialists and therapists help children express and deal with those feelings as they seek a sense of normalcy in a very abnormal situation. With increased statewide support, we are determined to fund and expand upon these services. This past year we are proud that we reached our fundraising goal. We are grateful to all the individuals, businesses, foundations and schools that contributed to this achievement. But we know there is more that we must do to meet growing needs and to advance research efforts. We have ambitious goals for the future, but we know we can achieve them with your support. Thank you for your generosity and commitment to the children we all serve.

Sincerely,

Jim MorrisChairman, Board of GovernorsRiley Children’s Foundation

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Jim Morris with Riley Patient Olivia Pierce


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Dear Friends:

Riley Children’s Foundation is poised at an exciting time in our history. Moving forward our focus is on reaching out to people in every Indiana county and utilizing the latest technology in communicating with and engaging supporters. As we expand our fundraising efforts, I would like to start by sharing the stories of three Riley patients who inspire us with their courage and teach us by their example how hope happens every day at Riley. Lesley, whose story is shared in this report, has faced a lifetime of

medical and personal challenges connected with cerebral palsy, including being bullied in school. But she has risen above these challenges and greets life with joy and a sense of adventure. A long time camper at Camp Riley, she recently completed her fi rst summer as a counselor and intends to pursue a degree in nursing. Lesley speaks passionately about what Camp Riley means to her and how it is a place where she is accepted and where she sets and meets high goals. Lesley has had setbacks, but she has always pushed forward with increased determination. Clare was diagnosed with leukemia a few weeks after she graduated from Mater Dei high school in Evansville. One day she was working as a lifeguard in a community pool and the next she was driving to Riley Hospital to begin treatment. A few months later she was fi ghting for her life in the intensive care unit after losing her leg to severe infection. Clare has dealt with tremendous emotional and physi-cal pain, but you would never know that when you meet her. She reaches out to her fellow patients in friendship, raises funds for Riley and always keeps believing in the promise her future holds. We were fi rst introduced to Cory by his father Doug who asked us to consider his son as a Colts Coin Toss Kid, an opportunity for Riley patients to walk to midfi eld and witness the offi cial game coin toss. Cory had been diagnosed with Crohn’s Disease and was hospitalized numerous times before medication put the disease in remission. Once he resumed normal activity Cory became a strong Riley supporter, speaking on radiothons and at events, announcing at last year’s Riley Annual Luncheon and even appearing in a commercial with Tony Dungy, one of his personal heroes. A few weeks ago we learned that Cory has been diagnosed with osteosarcoma, bone cancer. He has begun treatment and is facing this latest challenge with his own quiet strength. Cory knows he can climb this mountain because he’s done it before relying on family, faith and Riley Hospital. Thank you for supporting thousands of Riley patients like Lesley, Clare and Cory. They inspire us with their courage and optimism. All Riley kids need and deserve the very best we have to give…our love, caring and generosity.

With gratitude,

Kevin O’KeefePresident and CEORiley Children’s Foundation

HOPE HAPPENS HERE

Kevin O’ Keefe with Riley Patient Tatum Parker



Plymouth

Speedway

manager Trella

McGee with her

daughter Cora

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hen the person behind the counter at Indiana Speedway stores asks customers to donate their change to Riley Hospital for Children, many are happy to drop their coins into the bucket with the Riley wagon. That change definitely adds up—Speedway and its customers contributed over $1.1 million to Riley last year. In honor of Speedway LLC’s support during the Hope Happens Here campaign, Riley Hospital will name the new burn unit in the Simon Family Tower—Indiana’s only pediatric burn center—in Speedway’s honor. Speedway adopted Children’s Miracle Network Hospitals as its primary charitable

focus in 1991. Riley Hospital is Indiana’s only Children’s Miracle Network hospital and receives all the support given at Indiana Speedway stores. “Speedway is committed to making a positive difference in the lives of our customers and the neighborhoods in which we operate,” says Company President Tony Kenney. “For Speedway associates, raising money for Riley is not only a privilege but also the basis of our store culture,” Kenney says. “It is humbling to see both the dedication of our employees and to hear the inspiring stories of the families we’re able to help.” One such family belongs to Trella McGee,

manager of the Speedway store in Plymouth, Ind. McGee’s energetic 4-year-old daughter Cora was just 15 months old when she fell off a couch and bumped her head in November 2008. That tumble likely saved Cora’s life, her mother says. Tests revealed that Cora was far from okay, but not because of her fall: A fist-sized tumor on the left side of her brain was diagnosed as an aggressive cancer called choroid plexus carcinoma. Cora was transported by helicopter to a hospital in Fort Wayne and then by ambulance to Riley Hospital, where neurosurgeon Joel Boaz, M.D. removed the tumor in a 10-1/2-hour surgery. Dr. Boaz would perform three more

surgeries. At her nine-month checkup in July 2011, Cora showed no signs of cancer. “When you meet people in Indiana and you mention Riley Hospital, there’s always someone who has a Riley kid, or is related to one, or who has a neighbor who’s a Riley kid,” says Scott Rittenburg, regional director of Speedway’s Heartland Division, comprising 240 stores in Indiana and Kentucky. “We appreciate all the customers who frequent our stores,” Rittenburg adds. “Support-ing an institution like Riley, which benefits our customers and the whole community, is a wonderful way to show our gratitude.”

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“For Speedway associates, raising money for Riley is not only a privilege but also the basis of our store culture” - Tony Kenney, Speedway President

C O R P O R AT E D O N O R

Speedway Success

HOPE HAPPENS HERE

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“It means the world to go somewhere and to be loved.” - Lesley Marsh


f Lesley Marsh had a magic wand, she would grant one wish: make the entire world a little more like Camp Riley. “When you go you’re not judged because, ‘Oh, you’re in a wheelchair,’ or ‘Oh, you have braces on your legs!’ It’s, ‘Hey, I’m Lesley! How are you?’” Twenty years ago, Lesley and her twin brother, Wesley, were born at just 25 weeks gestation at a hospital in Cincinnati. Lesley weighed just two pounds, but size wasn’t her greatest battle. While her brother Wesley grew and thrived, the water running through Lesley’s incubator became contaminated, leaving her with a rare form of meningitis and hydrocephalus, which led to cerebral palsy. “Nothing in my life has come easy,” Lesley admits. Lesley’s mother, Lori, recalls watching her daughter deal with cruel words from school bullies. But Lori refused to put limitations on her dreams for Lesley. “I’ve always told her there’s nothing in this world you can’t do. It may take you a little longer and be a little harder, but there’s nothing you can’t do.” Lesley found the perfect chance to prove that at Camp Riley. She spent her fi rst week at Indiana University’s 2500-acre outdoor wonderland, Bradford Woods, when she was 8 years old. She says she cried when the week was over. “It’s not ‘Ooh, you can’t do that!’” Lesley explains. “It’s, ‘If you want to do that, we’re going to fi nd a way for you to do that.’” Camp Riley counselors found a way for

Lesley to do things she never dreamed of doing: adaptive waterskiing; exploring caves; playing wheelchair basketball; and, most important, fi tting in. “It means the world to go somewhere and to be…loved. And to have friends who know you for who you are,” Lesley says. Lesley was so transformed by her summers at Camp Riley that she decided to become a counselor at Bradford Woods, which hosts Camp Riley and other camps. At a camp for young cancer patients, Lesley’s mind raced back to when she was 10 years old, having her head shaved for surgery. She decided she could not leave camp without a bold move of solidarity. She let a camper shave her head. “I wouldn’t trade having them know that I care,” Lesley said, fi lled with emotion. “To know that someone’s been there and know that they care in those times means everything.” Lesley, now a college student at Ivy Tech’s Richmond campus, is studying to be a nurse practitioner. She never misses an opportunity to speak on behalf of Riley Children’s Foundation, explaining how much campers appreciate the generosity of donors. More than 230 children experienced the magic of Camp Riley last summer, with donors covering most of the individual cost. “What you do by funding Camp Riley is amazing. To have people that are willing to say, ‘We’re gonna help you,’ it means the most. That atmosphere of love that we have at camp is nowhere else in the world.”

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C A M P R I L E Y

Lesley Marsh

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R I L E Y H O S P I T A L

Diabetes Research and Care A

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n expression often heard in research centers is “bench to bedside.” At Riley Hospital, that literally means that basic science taking place in laboratories at the Herman B Wells Center for Pediatric Research is improving the treatment of children with type 1 diabetes in clinical settings right next door. In turn, feed-back from the medical teams providing care at Riley Hospital and its diabetes outpatient clinics impacts the research. Different insulins and new technology have dramatically improved the lives of patients with diabetes, but that doesn’t satisfy Riley researchers: “We’re after something much, much bigger than that,” says Raghu Mirmira, M.D., Ph.D., Lilly Foundation Professor in Pediatric Diabetes. “What we’re doing here is focusing primarily on why the beta cell, which produces insulin in type I diabetes, fails and ways that we can cause these beta cells to grow again, to function better.” Indiana University School of Medicine faculty researchers and Riley Hospital clinicians work collaboratively as part of an international effort to fi nd a cure. “Right now we’re at the brink,” Mirmira says. “We want to leverage all of our knowledge, all of our technology. It’s a belief that we can actually do it that’s driving this.” That’s welcome news to Jim Kaminski and Dawn Malenfant, whose 4-year-old daughter Emerson Kaminski was diagnosed with type 1 diabetes in February 2011. They never expected Emerson’s fl u-like symptoms to quickly deteriorate into a life-threatening condition that landed her in the intensive care unit at Riley at IU Health North Hospital. Once Emerson’s

Raghu Mirmira, M.D., Ph.D., Lilly Foundation Professor in Pediatric Diabetes


condition was stabilized, her parents completed Riley’s two-day inpatient educational program to learn to manage her disease—their education is ongoing. Today, Emerson loves to dance, do gymnastics and play outside. She was excited to go to school and show everyone her new insulin pump. However, while insulin is the treatment, it is not the cure, says Emerson’s physician, Tamara Hannon, M.D., associate professor of pediatrics: “We’re not able to match the beautiful physiology that the body does on its own in a person without diabetes.” Jim and Dawn worry about the long-term implications of Emerson’s disease. Therefore, they appreciate the research occurring at Riley.

“It’s one of the best in the world, so you know you’re in good hands,” Jim says. “You know that you’re very close to advances that are going to be made.” Patrick Fueger, Ph.D., assistant professor of pediatrics and cellular and integrated physiology, was diagnosed with type 1 diabetes at Riley Hospital in 1984 and now works at the Wells Center laboratory 50 yards from where he was told he had the disease. Having the hospital just outside his window fuels this former Riley kid’s passion for diabetes research. Dr. Fueger says someone asks him at least

one a week when diabetes will be cured. He thinks it’s a great question, but he can’t promise a date. “What I can say is that in the last 10 years, there’s been an explosion of research with type 1 diabetes. I think we’re at an exponential part of our learning where we’re learning a lot more about what causes this disease and then maybe potential things that can prevent it or cure it.”

Gifts from Riley Children’s Foundation donors are crucial to helping researchers secure the larger grants that may lead to a cure. “The seed monies allow us the freedom to explore the projects and ideas that we think are more innovative,” says Linda DiMeglio, M.D., M.P.H., associate professor of pediatrics. She explains that researchers then use this preliminary data to approach larger funding entities like the National Institutes of Health. The scientists’ work also helps ensure the best patient care. As Dr. Hannon says, “Diabetes research and diabetes care go hand in hand.”

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Diabetes Research and Care

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“Right now we’re at the brink. We want to leverage all of our knowledge, all of our technology. It’s a belief that we can actually do it that’s driving this.” - Raghu Mirmira, M.D., Ph.D., director of the Wells Diabetes Research Group

Emerson Kaminski, Zionsville

Raghu Mirmira, M.D., Ph.D., Lilly Foundation Professor in Pediatric Diabetes


Madison Schaffner lives in Rockford, Ohio, a small town about 50 miles southeast of Fort Wayne, Ind. This fall she will enter eighth grade at Parkway Middle School, where she earned straight As last year. Her favorite subject is math, and, like most 14-year-olds, her favorite activity is hanging out with her friends. “She’s very bubbly, hard-working and determined,” her father summarizes. Madison, her parents Danny and Kimberly Schaffner and her brother Taylor 16, enjoy spending time together, with lots of swimming and family cookouts on their summer schedule. Madison is such a typical teen that few would guess she has battled a debilitating disease. In August 2007, at age 10, she was diagnosed with ulcerative colitis, a type of inflammatory bowel disease that causes ulcers in the lining of the rectum and colon. From that August to December, while being treated by a specialist in Fort Wayne, “she was having a real rough time of it,” her father recalls. Steroids helped but caused Madison to gain weight; when she was weaned off the drugs, her symptoms recurred. She was always tired because her body could not produce blood as fast as she was losing it. As her condition deteriorated, her specialist sent the family to Indianapolis and Riley Hospital. “Our Fort Wayne doctor highly recommended the surgeons [at Riley],” Danny says. “He actually did his internship there,



Madison Schaffner

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and he knew how good they were. He wouldn’t have sent us anywhere else.” Over time, Madison would undergo three surgeries. The first, a colectomy and ileostomy, removed her diseased large intestine and created a surgical opening through which her intestinal waste was collected in an external pouch. Her second surgery involved resection of the rectum and reconstruction with an internal pouch. A third surgery reversed the ileostomy. “This was a difficult time for Madison and her family, and they spent many hours in our clinic,” says her surgeon, Fred Rescorla, M.D., professor and director of pediatric surgery. Despite her health challenges, “Madison is very outgoing, engaging and energetic,” he adds. Madison says the important people in her life helped her keep her spirits up during the worst stretches of her illness: “My family made me feel happy. My friends supported me,” she says. “We could not ask for anything better,” Danny says of his daughter’s progress. The Schaffners also saw first-hand how Madison’s positive attitude helped train future physicians. “The surgeon would come by every morning to let us know what to expect,” Danny recalls. “We knew Riley was a teaching hospital, and he always had three to five medical students with him. He would keep them up to date on


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Madison. He even does that to this day at our yearly checkups. “We were just down there a month-and-a half ago, and he had Madison show her belly and quizzed the students on what procedures she’d had—just by looking at her scars.”

Life is a lot better now, Madison says. She can focus on school, as her top-notch grades reflect, and enjoy her friends. And what does she tell them about Riley Hospital? “That they made me feel better and that it’s a good hospital,” says this not-so-typical teenager.

Dr. Fred Rescorla, professor and director of pediatric surgery, meets with Madison.


Madison Schaffner lives in Rockford, Ohio, a small town about 50 miles southeast of Fort


R i l e y C h i l d r e n ’ s F o u n d a t i o n

Financial Overview F i s c a l Y e a r E n d e d J u n e 3 0 , 2 0 1 1

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Wayne, Ind. This fall she will enter eighth grade at Parkway Middle School, where she earned straight As last year. Her favorite subject is math, and like most 14-year-old girls, her favorite activ-ity is hanging out with her friends. “She’s very bubbly, hard-working and deter-mined,” her father summarizes. Madison, her parents Danny and Kimberly Schaffner and her brother Taylor 16, enjoy spending time together, with lots of swimming and family cookouts on their summer schedule. Madison is such a typical teen that few would guess she has battled a debilitating disease. In August 2007, at age 10, she was diagnosed with ulcerative colitis, a type of infl ammatory bowel disease that causes ulcers in the lining of the rec-tum and colon. From that August to December, when her specialist in Fort Wayne referred heily

Contributions $ 23,647,435 Fundraising Expenses $ 4,373,053

Cash Disbursements in Support of Riley Hospital for Children $ 19,235,850

Net Assets $284,845,355

Kameron Mitchell from Evansville fi nishes an art project with a Child Life Specialist.


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Total ContributionsDonor Restrictions

Temporarily Restricted

PermanentlyRestricted

Unrestricted

Unrestricted $ 2,510,692

Temporarily Restricted 18,075,856

PermanentlyRestricted 3,060,887

Total Contribution $ 23,647,435

Source of Contributions

Schools

Organizations/Foundations

Corporations

Individuals

Planned Giving

Corporations 33%

Individuals 25%

Planned Giving 20%

Schools 12%

Organizations/Foundations 10%


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Cash Disbursements

Chairs/Professorships/Education

Buildings andEquipment

Research

Buildings andEquipment $ 7,334,975

Research 3,684,629

Chairs/Professorships/Education 2,819,045

Clinical Programs/Patient Care/ Family Support 2,660,349

Camp Riley 1,858,202

Museum Home 283,941

Other 594,710

Total $ 19,235,851

Clinical Programs/ Patient Care/ Famly Support

Camp Rileyand OtherCampsMuseum Home

Other

Dr. Jeff Sperring and Riley patient Mi’Kwon Lee

Dr. Mark Payne

Catie Cox, Crawfordsville

Riley Museum Home


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HOPE HAPPENS HERE

Net AssetsBy Category

UnrestrictedBoard Designated

TemporarilyRestricted

PermanentlyRestricted

Unrestricted $32,451,238

Unrestricted Board Designated $55,968,894

TemporarilyRestricted $102,980,909

PermanentlyRestricted $93,444,314

Net Assets $284,845,355

Unrestricted

Jackson Fetter from West Lafayette with Riley nurse Stephanie Strickland



Documents

Annual Report 2012