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The Real Social Media Question
@alex__butler
#PmDigi
http://uk.linkedin.com/in/alexbutler2
Why do we all need to care about health 2.0
The greatest change to
Health Care since the inception
of the NHS
This time the patient is really in
control
Social media broadly refers to all activities, practices and behaviours among communities of people
gathering online to share information, knowledge & opinions using conversational media.
Chris Shipley is widely accepted as the first person to use the phrase ‘social media’ leading up to a
conference in 2004.
This is web 2.0 &
health 2.0
what is social media?
gamingpublishing
social networking audio
photo
video
microblogging
livecasting
Virtual worlds
aggregators
RSS
search
mobileInter personal
52% of adult europeans actively use health 2.0 to manage their own or a loved ones condition
Twice as likely as the average ehealth consumer to request a prescription.
Others rely on them to make
decisions...They are influencers.
More than half discuss information they found online with their physician
health 2.0 consumers are...
74% of european physicians get medical information from blogs, message boards and online social networks
Re-defined the patient-physician relationshipchanged patients path to treatment
& patient expectations...
& nearly 50% of EU physicians recommend websites to patients...
What are we trying to Achieve
Are you listening to your customers?
Have you joined the conversation and developed a dialogue?
Are you adding value?
Do you want to be a valued member of the community?
What are the challenges of implementing social media
strategies
@JanssenUK
Rock stars highlight #hepatitis C risks-watch Get Tested Get Treated #NHS animation here
with Keith Moon & Jimi Hendrixhttp://bit.ly/9fzFMN 2:00 PM Mar 6th via
HootSuite
Beach Boy Guitar legend David Marks talks about how he was diagnosed with #
HepC by chance and his treatment success http://bit.ly/bMeSgd
Sadie Frost talks of her childhood and her fathers #HepC, She supports the @
GETTESTED campaign http://bit.ly/cxkczO
Clubbers with condoms can jump the Q at Ministry of Sound-Great partnership
with #NHS Havering PCT http://bit.ly/bBYkK2
AE’s
The realityWhat constitutes an adverse event online?
...Very few (less than 0.1%) could be a reportable AE.
HoweverRecent survey with antibiotics conducted by John Mack
971 updates113 discussed side effects/negative reaction
Question: Rather than avoiding AE’s should we as an industry be doing more to actively capture real
world data?
Patientslikeme500 Randomly selected blog
posts out of 364,000 made in 2009
7% incorporated all 4 elements necessary for an FDA reportable AE
•Epilepsy Community
•Patient centred research.
•Patients can openly track progress
• Open online community for organ transplant recipients.
• Novartis supported this development
The Real Social Media Questions
Is the industry genuinely ready to enter the social media community?
Do we really want to listen?
Are we prepared to offer real value?
Are we able to meet the challenge of real world data?
Thank You.