Addition Needs Handbook

A really useful book for families in Ealing

Parents of Ealing Self-Help Training Scheme

Additional Needs

Handbook

the

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FOREWORD

FOREWORD

Dear parents,

We are delighted to be launching the 5th edition of the handbook for parents with children with additional needs. The book is a tribute to Jayne Koji who as a parent of a child with disabilities initiated the idea in 1992, when she came to Ealing with her daughter Emily. To this date it continues to be of immense help to many parents, children and professionals.

Aiming High for Disabled Children (AHDC) was launched in May 2007, with view to transforming services in England for disabled children and their families. The vision is for all families to have the support they need to lead ordinary lives. One of the major themes within AHDC is access to information for families and therefore this handbook was commissioned to provide up to date information about services, things to do, places to go and where to get help. The handbook aims to offer practical advice and positive ways to manage some of the challenges you may encounter. You’ll find information on local services as well some further a field.

In addition, Ealing Family Information Service and the EalingHELP website are able to provide assistance with finding your way around services, activities, advice, as well as ideas and tips that can be used to tackle specific issues.

We hope this handbook provides you with all the information you require and the confidence to seek information when you need it.

We would like to thank the many parents and professionals who have tirelessly worked at gathering the information and in particular we extend our thanks to Sue Meacham, Project Manager P.E.S.T.S and Nick Radclyffe, Ealing Mencap, for compiling and designing the book.

Best wishes,

Ghazala Sheikh and Debbie Grey

Joint Assistant Directors, ESCAN

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FOREWORD - INTRODUCTION

INTRODUCTION

Welcome to the 5th Edition of the Parents of Ealing Self-Help Training Scheme (P.E.S.T.S.) special needs directory. This book was the original idea of Jayne Koji, who moved to Ealing with her disabled daughter Emily in 1992. It is again dedicated to Jayne and Emily’s memory.

Jayne found it difficult when she first came to Ealing to know what help and services she wanted for Emily or what was available. She joined P.E.S.T.S. after hearing about it from the Specialist Health Visitor. She became an active member on the Committee and, after Emily started school , Jayne was appointed P.E.S.T.S.’ Project Worker. P.E.S.T.S. began in 1981 when a group of parents got together to continue a portage pilot scheme that was coming to an end. Parents wanted to continue helping their children and continue supporting each other. That explains the T for Training in P.E.S.T.S. The acronym itself described how the parents felt they had to be, in those days, to get what they needed for their children. (And not how they felt about their children – well not all the time!) Jayne thought that a booklet, compiling all the relevant information she could find, would be a great help to other parents and carers. The view from parents and carers is that despite access to the internet this book is still a fantastic resource allowing easy access to information.

This book begins with health services in Ealing and describes what the various professionals, that you will meet, do. It also describes the education process for children with additional needs. Not least, it describes short breaks for children and how you can access them. We have also included places to go and useful websites. Places that are regarded as “mainstream” are not usually included as this would make the book too big! You will be able to find out about them from other sources. This book tries to identify those providing something particularly interesting or useful for children with additional needs. As an example there are many cafes in Ealing where people with disabilities are welcome but the Cafe Koochi is known to be extremely welcoming and accepting of challenging children, so it gets a mention. We have included a contents list and an index to help you find information more quickly. The book has been expanded to include more information for young people at transition age.

Many of you reading this book have been caring for your child for some years and although always striving to get the best for your child have perhaps reached acceptance and come to terms with their disability. For those who have recently come to know that their child has a disability it can be a difficult time. But there is a lot of help these days and a lot of support. Hopefully this directory will help too.

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INTRODUCTION

This book has been updated in conjunction with the EalingHELP website. The information in this book is designed to last for several years! Remember to check www.ealinghelp.org.uk to get more detailed information and times (e.g. details of summer activities) and a lot more besides. In particular check out their event calendar.

I would like to thank Nick Radclyffe at EalingHELP who has entered all the updated information on EalingHELP and who has created the design of this book. We are also grateful to the help and funding from Ealing Council, without whom this book would not have been published.

I would also like to dedicate this book to my own daughter, Alana, who is the reason I have become involved with P.E.S.T.S. She has severe delay, autism and epilepsy and is so much fun. And she is relentlessly ensuring that people with learning difficulties are taken notice of and accepted!

Sue Meacham

Project Manager, Parents of Ealing Self-Help Training Scheme

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CONTENTS

CONTENTS

FOREWORD 1

INTRODUCTION 2

DISCLAIMER 10

1 Health Services 12

ESCAN 12The Child Development Team 13Community Paediatric Consultants and Specialist Registrars 13Specialist Health Visitor 13Early Support Keyworkers 14Paediatric Physiotherapy 14Paediatric Occupational Therapy 14Paediatric Speech and Language Therapy 15Behaviour Management 15SAFE 16Paediatric Dietitian 16Paediatric Audiology 16North West Thames Regional Genetic Services 16Ealing Bladder and Bowel Health Service 17GPs 17Pharmacists/Chemists 18Community Dentist 18Hospitals 18

2 Short Breaks 24

What is a short break? 24Which children and young people can be considered for short breaks? 24Types of short breaks 25Overnight and day care with a short break foster carer or salaried carers 26Befriending / Buddying 27Community and Leisure Activities 27Therapeutic short breaks 28Direct Payments 28How to access short breaks 28Reviewing the short break provision 29Short break services for children (Easy Table) 30

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CONTENTS

3 Social Services 32

Children in Need Team 32Children with Disabilities Team 32Children’s Disability Register 32

4 Housing 33

Energy Saving Trust 33ESCAN Housing Surgery 33Housing Needs, Access and Support 34Repairs & Adaptations Service 34

5 Education 36

Overview 36Early Years/Pre–school 44Primary Schools with Specialist Provision 48Secondary Schools with Specialist Provision 50Independent Schools in Ealing 51Out of Borough Placements 52Colleges 53

6 Mobility 58

Action for Kids 58Brent and Ealing Wheelchair Service 58Get Kids Going 58Quest 88 59Whizz–Kidz 59

7 Getting Around 59

Blue Badge Scheme 59The Blue Badge map 60Computer Cab 61Disabled Person’s Railcard 61Dial A Ride 61Ealing Mencap Travel Training Project 62Exemption from Congestion Charge 62Exemption from Road Tax 62Freedom Pass 62Healthcare Travel Costs Scheme 63London Councils – Taxicard Section 63Motability Scheme 64Recreation & Easy Access for Disabled Youth (READY) 64Passenger Assistance National Rail 64Transport for London 65

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CONTENTS

8 BenefitsandFunding 68

Disability Living Allowance (DLA) 68Carers Allowance 70Income Support 71Child Tax Credit and Working Families Tax Credit 71Child Trust Fund vouchers 71Direct Payments 72

9 Legal 72

Law for All 72Asylum Aid 73Contact a Family 73Ealing Centre for Independent Living 74Social Care Online 74The Children’s Legal Centre (CLC) 74The Disability Law Service 74Equality and Human Rights Commission 75Working Families 75Wills and Trust Funds 75

10 Local Support 78

3Cs Counselling Service 78ASSIST 78Carer’s Emergency Card 78Carers Centre 78Contact a Family – Ealing 79Contact a Family Autism Group 79Contact a Family – Southall 79Ealing Allergy Support Group 80Ealing Centre for Independent Living 80Ealing Crossroads – Caring for Carers 80Ealing Down Syndrome Group 80Ealing Dyslexia Association 81Ealing Early Years Childcare and Play 81Ealing Mencap 81Ealing Parents Forum 81Epilepsy Action West London 82Family Information Service 82KIDS Ealing Young Carers Project 82Local Groups that can help with translation 82Me Too & Co (Richmond) 83Parents in Touch 83P.E.S.T.S 83

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CONTENTS

Signing In Deaf Club 84Scope 84Support for Living 84Sure Start Acton 84Sure Start South Northolt 85Three Wings Trust 85Twenty One & Co 85

11 Other Support 88

Bereavement 88Clothing & Footwear 88Computers / IT 89Counselling 91Equipment & Aids 91Information & Support 92Learning / Education 105Music 111Nutrition 113Speech & Communication 113Syndromes & Conditions 116Toys, Games & Sensory Equipment 122Transition 124

12 Clubs 128

2000 Club 128Asperger’s Syndrome Foundation Saturday Social Club 128Crossroads 128Deaf Children’s Society – London South and West 128Ealing Music Therapy Project 129The Log Cabin 129Gateway Clubs 129Royal Association for Deaf people (RAD) – Full Potential Ealing 130Signing In Deaf Club 130W13 Youth Club 130

13 Holiday Playschemes 131

Extended Schools in Ealing 131The Log Cabin 131Futureversity 132

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CONTENTS

14 Holidays 132

3H Fund 132Activenture (London Youth) 132Badaguish Centre 133BREAK 133Calvert Trust 133Holidays with Help 134Kids Out 134Orchyd 134RADAR (Royal Association for Disability and Rehabilitation) 134Siblu 135St John’s Handicapped Children’s Trust 135Personal Travel Advisors 136Pilgrimage Trust 136The Scout Holiday Homes Trust 136Trefoil 137Ty Glyn Davis Trust 137Vitalise 137

15 Leisure 140

Arts 140Crafts 142Dance and Theatre Groups 143Farms and Animals 146General 150Leisure Centres and Swimming 151Libraries 155Playgrounds and Parks 161

16 Sports 168

Basketball 168Climbing 168Bowling 169Cycling 169Football 170Horse Riding 170Martial Arts 171Multi Sports 171Other Sports 173Sailing and Watersports 174Sports Associations 175Table Tennis 176

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CONTENTS

17 Complementary Therapies 178

ABA (Interventions for children with Autism) 178bibic 178Brain Gym 178Brainwave South East 179Foundation for Paediatric Osteopathy 179Music Therapy 180PEACH 180The Bobath Approach 180The Henry Spink Foundation 181The Listening Centre (Lewes) 182National Institute of Conductive Education 182

Glossary 184

Index 190

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DISCLAIMER

DISCLAIMER

Whilst every effort has been made to ensure the accuracy of the information in these pages P.E.S.T.S, EalingHELP and Ealing Council wish to emphasise that no guarantee whatsoever is provided and no liability is accepted for the loss or damage of any kind resulting from inaccuracy in this information. It is the responsibility of the reader to check the relevant facts with the appropriate people before using any information based upon them.

Material accessed through this directory may be subject to copyright of third parties. You must obtain authorisation to reproduce such material from the copyright holders concerned.

HealthServices

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Health Services

Health Services1

ESCAN

Integrated Support and Partnership that make a difference

Ealing Service for Children with Additional Needs (ESCAN) is a joint initiative between Ealing NHS and Ealing Council, to join up services for children and young people with disabilities within Health, Education and Children’s Services. The aim is to improve outcomes for children and young people with disabilities.

ESCAN’s vision is that children and young people with disabilities will have access to and are supported by high quality and well–coordinated services offering advice, information, assessment and appropriate interventions when they need it.

All practitioners are co–located in Ealing to enable ESCAN to provide a more–coordinated and integrated service so that attending appointments, access to services and information is easier for families.

Access and eligibility to these services vary. If you require information about how to access individual services please ring the number attached to the service.

Contact detailsCarmelita House, 21–22 The Mall, Ealing W5 2PJ

Tel: 020 8825 8700

Email: [email protected]

Who is involved?

The following staff and teams are part of ESCAN:

Health (The Child Development Team)

Tel. 020 8825 8716

Paediatric Occupational Therapy•

Paediatric Physiotherapy•

Paediatric Speech and Language • Therapy

Community Paediatric Consultants and • Registrars

Specialist Health Visitor•

Clinical Psychology•

Dietitians•

Audiology•

Education (Special Educational Needs)

Tel: 020 8825 5050

Educational Psychology•

Portage•

Special Educational Needs Service • (SENS)

Special Educational Needs Admin•

Special Educational Needs Transport•

Early Support Keyworking Service•

Children’s Social Services

Tel: 020 8825 8000

Children with Disabilities Team•

Children in Need Team•

Family Link and Sitting Service – see • entry on page 27

Heller House – see entry on page 25.•

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Health Services

The Child Development Team

The team provides coordinated health care for children with additional needs aged 0 – 18. They work with children who have severe or complex problems, including physical disabilities, learning difficulties, autism spectrum disorders, or hearing and vision impairments.

Any health professional can refer to the Child Development Team: usually the child’s GP or health visitor, or perhaps a speech and language therapist or physiotherapist who has seen the child in the primary care setting. Usually an initial assessment is arranged with a paediatrician before the child is referred on to other team members as appropriate.

The team members are the Community Paediatric Consultants and Registrars, Specialist Health Visitor, Paediatric Physiotherapy, Paediatric Occupational Therapy, Paediatric Speech and Language, Clinical Psychology, Dietetics, Paediatric Audiology and Special Schools Nursing.


Tel: 020 8825 8716

Community Paediatric Consultants and Specialist Registrars

Community Paediatric Consultants are senior children’s doctors specialising in the care of children with developmental or neurological problems. The doctor will ask about your child’s present difficulties, early life and your family’s health, to get a clear

picture of the problem and its likely causes. He or she will examine your child and assess their development, and may arrange further tests before referring you to the other members of the Child Development Team. Specialist Registrars are specialist doctors junior to a consultant but working towards consultancy.


Tel: 020 8825 8716

Specialist Health Visitor

The Specialist Health Visitor (SHV) is a trained nurse with additional qualifications and extra experience both as a health visitor and with children who have additional needs. As a member of the Child Development Team the SHV may visit you at home or offer you an appointment at Carmelita House as part of your child’s assessment. Once your child has had the nature of their problem assessed the SHV will help explain how this could affect them in the future and discuss any questions you have. The SHV provides information about help available including preschool provision, short breaks and benefits, and can put families in touch with local and national support groups.


Tel: 020 8825 8710

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Health Services

Early Support Keyworkers

Early Support is a government initiative that provides the opportunity to develop new and more coordinated ways of working with young children with disabilities and their families. A Keyworker can be allocated to families who meet with a lot of professionals for their child.

A Keyworker will:

be the first point of contact for advice • and information;

provide support to your family;•

will signpost you to relevant • information/services/agencies;

will visit/contact you on a regular basis • at a time and place agreed between you and the Keyworker;

will identify any gaps in service and • ensure appropriate referrals to services but this will not involve any queue jumping;

will attend review meetings with you;•

will monitor current plans for your • child;

will ensure equality and promote you, • the parents/carers, as equal partners;

will be available during their normal • working hours.


Tel: 020 8825 6269

Paediatric Physiotherapy

Physiotherapists deal with problems related to movement, using exercises to improve movement and balance, minimise stiffness in joints, strengthen muscles or help with breathing problems. Physiotherapists assess and review the equipment needs of the children to help them get around, sit and stand comfortably.


Tel: 020 8825 8702

Paediatric Occupational Therapy

Occupational therapists have a special understanding of the skills children need to play, learn and look after themselves e.g. feeding, drawing, writing etc. They can develop programmes to help children overcome their difficulties in these areas. In Ealing they work with both parents and other professionals involved with the child to ensure they deliver the best possible service.

Paediatric Occupational Therapists assess and treat the child’s needs in the following areas:

The need for therapeutic equipment • i.e. Special seating, bathing and toileting equipment, buggies and wheelchairs, etc.

Sensorimotor functions i.e. effective • use of body.

Fine motor skills, i.e. effective use of • hands.

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Health Services

Basic learning and play skills, i.e. • attention, turn taking, etc.

Sensory integrative functions, i.e. • The ability to regulate and integrate different sensory information for effective motor planning, learning and organisation of behaviour.

Perceptual and cognitive functions, • e.g. body awareness, visual perception, auditory perception, memory etc.

Handwriting skills, e.g. pencil control, • letter formation etc.

Self–care skills, i.e. Feeding, dressing, • toileting, etc.

The need for hand splinting to • improve hand function.

The needs for environmental • adaptations, e.g. rails and ramps.


Tel: 020 8825 8768

Paediatric Speech and Language Therapy

Speech and Language Therapists help with feeding, early communication and speech and language delay. Speech and Language Therapists will complete assessments and develop programs to help children with any problems in these areas. Where speech is delayed, they can offer alternative means of communication such as signs (Makaton) and symbols (PECS).


Tel 020 8825 8856

Behaviour Management

Children with disabilities, particularly those with sensory difficulties, learning problems or those with autistic spectrum disorder can display behaviour that is difficult to manage, understand and socially unacceptable to the general population. Special schools, nurseries and units are usually very helpful and supportive and will work with parents to help moderate and control behaviour by providing consistent strategies. Challenging behaviour will often have a purpose. The Clinical Psychology service can also offer advice, support and strategies.

Clinical Psychology

The Child Clinical Psychology Service provides psychological assessment and intervention for children and young people with disabilities and their families where there are concerns about emotional and behavioural difficulties, including challenging behaviours, and also with regard to family relationship difficulties. The Clinical Psychologists also contribute to the multidisciplinary assessment of children’s developmental needs and social communication difficulties. They work closely with the Paediatricians, Specialist Health Visitors and other members of the Child Development Team, and provide consultation and advice to schools with regard to the behavioural and emotional needs of children who are referred to the Service.

The service runs parent groups focusing on the management of challenging behaviours and provides consultation and training to staff in frontline services with regard to the

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assessment and management of challenging behaviours.

Where necessary they also undertake cognitive and neuropsychological assessment of children and young people.


Tel: 020 8825 8700

SAFE

SAFE can give information and advice to families facing difficult situations and can help families access the right services and support. SAFE can help many families with many different problems. These include help with debt management, parenting classes, help for parents worried about their child being excluded from school or worried about drugs, alcohol or pregnancy.

The SAFE teams are made up of health professionals, psychologists, therapists, counsellors, social workers, school and family workers.

Contact details

SAFE 0 – 12 years Teams

Acton, Ealing, Hanwell 020 8825 7819

Northolt, Greenford, and Perivale 020 8842 0220

Southall 020 8825 9800

SAFE 12–19 years Team 020 8825 7606

Paediatric Dietitian

The Community Paediatric Dietitian provides advice to families and children about the best way to get the right amount of nutrients to support a child’s growth, development and learning. The

dietitian will advise on healthy diets and the use of specialised nutritional drinks and supplements, as well as work closely with other professionals (family doctors, paediatricians, nurses, therapists) when considering a nutrition and dietary plan for a child. The dietitian can also provide advice on nutrition and diet to women who are pregnant or planning to become pregnant.


Tel: 020 8825 8709

Paediatric Audiology

The Paediatric Audiology Service provides a hearing assessment and follow up services for children from 3 months to 18 years resident or attending school in the Borough of Ealing. The service is provided at community clinics across the borough. Children will be referred on to other services as necessary, e.g. ENT, speech therapy, the Child Development Team. Children who have a significant hearing loss, for which they may need to wear hearing aids, will usually be referred to the Children’s Hearing Clinic at Hounslow.


Tel: 020 8825 6281

North West Thames Regional Genetic Services

The Regional Genetic Service for the North West Thames Region.

They offer genetics services to people living within this area and offer a diagnostic and

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counselling service to people with a family history of a genetic condition.

Carrier testing is offered to families • with a history of a genetic condition e.g. Cystic Fibrosis, Haemachromatosis.

Predictive testing for adult onset • disease such as Huntington’s Disease and certain familial cancers.

Prenatal diagnostic testing.•

Mode of referral

Referrals are accepted from Health Professionals, e.g. GPs, Nurses, Health Visitors.

They operate a partial booking system, patients receive a letter asking them to contact the service to book their appointment at a time that suits them on the day that the clinic is being held at their local hospital.

What can you expect to happen?

The appointment time given to each patient is about 45 mins. They endeavour to see their patients at the allotted time of their appointment.

When do you get an appointment?

After the receipt of a referral letter, they aim to see patients within a 12 week time frame. This may vary occasionally depending on the demand on the service but every effort is made to see the patient as soon as possible.

Who you might meet?

The Genetics team consist of a Consultant, Specialist Registrar and Genetic Counsellor. The patient may be seen by any one of these or a combination at their appointment. Sometimes there may be other doctors or trainees observing the clinic.

Contact detailsKennedy Galton Centre, Watford Road, Harrow HA1 2UJ

Tel: 020 8869 2795

Ealing Bladder and Bowel Health Service

The Bladder and Bowel Health Service caters for children of 4 years and above. If your child has a learning disability and is not fully toilet trained or has a physical disability that prevents them being fully toilet trained, they offer a full assessment of your child’s needs. They will try to identify the problem and advice on appropriate treatment and/or devices needed. This includes nappies where appropriate. It is a free service. There is regular re–assessment to ensure that your child’s needs are being met. The assessments are usually done in your own home by a Health Visitor. In the future the service hopes to expand to include a nursery nurse who can train and advise parents.

Contact detailsMattock Lane Health Centre, 77–78 Mattock Lane, Ealing W13 9NZ

Tel: 020 8383 5702

GPs

General Practitioners (GPs) are located in the local community (surgeries or practices). They are often your first point of contact when you have a concern about your child’s development or health. Some of them have special experience in paediatrics. Their role is to keep their patients healthy, to pick up and treat illnesses and to refer to specialists as and when necessary. It is important for you to feel confident in your GP. Ask around for

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advice particularly from other parents who have a child with a disability. It is possible to change your GP if necessary.

See www.nhs.uk for a list of GP’s near where you live.

Pharmacists/Chemists

Pharmacists (also known as chemists) are experts in medicines and how they work. They play a key role in providing quality healthcare to patients. Working in the community, primary care and hospitals, pharmacists use their clinical expertise together with their practical knowledge to ensure the safe supply and use of medicines by patients and members of the public. They dispense your prescriptions, provide a range of services related to specific health–related issues and can advise on minor ailments. Minor ailments include:

Bugs and viruses•

Minor injuries•

Tummy troubles•

Women’s health•

Skin conditions•

Allergies•

Aches and pains•

Children’s problems.•

Your pharmacist may be a qualified supplementary prescriber. This means that they can prescribe certain drugs without the need for a prescription from your GP.

See www.nhs.uk and look for Other Services to find a list of Pharmacists near where you live.

Community Dentist

Ealing has a community dentist that may be able to help if your child finds it difficult to access a regular dentist because of their disability. You must be referred by a health professional to the community dentist. This may be your child’s current dentist, GP or Specialist Health Visitor

Contact detailsHanwell Health Centre, 20 Church Road, Hanwell W7 1DR

Tel: 020 8383 5410

Hospitals

Central Middlesex Hospital

Provides EEG services for Ealing residents. So you’re likely to spend some time here if your child is being diagnosed for epilepsy.

There are a limited number of disabled spaces that are free to permit holders.

Parking is free for disabled people, or their carers when driving a disabled person to hospital. Vehicles must display a valid Blue Badge and time clock and must park in designated bays.

Contact detailsActon Lane, Park Royal, NW10 7NS

Tel: 020 8965 5733

PALS: 020 8453 2569

Web site: www.nwlh.nhs.uk

Chelsea & Westminster Hospital

A large London hospital with separate Accident and Emergency department for children. Chelsea and Westminister offer a wide range of specialist hospital

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services within an environment of academic specialisation. The hospital was designed and built with the purpose of providing specialist healthcare. They have 5 main clinical Directorates: Anaesthetics & Imaging – Medicine – Surgery – Women & Children – HIV and GUM. The hospital has an underground car park, but spaces are limited. There are parking meters in nearby streets. The hospital is in the Congestion Charging Zone.

Contact details369 Fulham Road, London SW10 9NH

Tel: 020 8746 8000

PALS: 020 8846 6727

Web site: www.chelwest.nhs.uk

Ealing Hospital

Ealing Hospital is a busy district general hospital providing acute services for patients in the west London area. Has an Accident and Emergency department with separate waiting area for children.

Parking spaces are limited and it is advisable to allow extra time before an appointment as you may have to queue for a space. Ealing Hospital advises patients, where possible, to arrive by public transport. Parking is 24 hour pay and display and cars parked without a valid ticket will be clamped. There are some free disabled parking spaces but very few.

Contact detailsUxbridge Road, Southall, UB1 3HW

Tel: 020 8967 5000

PALS: 0800 0641120

Web site: www.ealinghospital.nhs.uk

Support for Living at Ealing Hospital

Support for Living are working with Ealing Hospital as part of the ‘Treat Me Right!’ Campaign to improve people with learning difficulties’ experience of hospitals. They have a Hospital Passport which you can fill in and take with you to hospital. You can use the passport to describe how your child communicates, what upsets them, how they show pain, what support they need to eat and drink.

If you would like to complete one contact:

Support For Living, Project Manager

154–156 Broadway, West Ealing, W13 0TL

Tel: 020 8354 5944


Web site: www.supportforliving.org.uk

Great Ormond Street Hospital for Children (GOSH)

GOSH together with UCL Institute of Child Health form an international centre of excellence for treating sick children and teaching and training children’s specialists. They are the largest centre for research into childhood illness outside the United States. To get an appointment at GOSH you will need to be referred by your local paediatrician or occasionally, your GP may be able to refer you.

As GOSH is in the centre of London parking is very limited and generally on a ‘pay and display’ basis, either on a parking meter for a limited amount of time or in a car park. You can obtain a parking permit in some circumstances. For information about car parking, parking permits or directions

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to other car parking facilities, please ask at the main reception desk or ring them on extension 5276 or 5277.

Contact detailsGreat Ormond Street, London WC1N 3JH

Tel: 020 7405 9200

PALS: 020 7829 7862

Web site: www.ich.ucl.ac.uk

Guy’s Hospital

Guy’s and St Thomas’s provide specialist services for patients from across London the South East and further afield. Children’s services includes the following specialties:

Cardiology and cardiac surgery for • babies and children

Fetal cardiology •

General and specialist surgery, • including cleft lip and palate

Genetics •

Kidney services •

Neonatal intensive care •

Paediatric allergy •

Paediatric intensive care •

Paediatric metabolic medicine •

Paediatric neurology services •

Paediatric sleep centre •

Children’s magnetic resonance imaging • (MRI).

There is no general parking, although there is limited disabled parking, and a drop off facility. There is an NCP car park at the junction of Snowsfield and Kipling Streets,

about a 2 minute walk from the hospital. However, this car park is often full. Charges are displayed at the entrance.

Contact detailsGreat Maze Pond, London SE1 9RT

Tel: 020 7188 7188

PALS: 020 7188 8801

Web site: www.guysandstthomas.nhs.uk

MoorfieldsatEalingHospital

Community eye hospital holding the following clinics:

Cataract•

Glaucoma •

Medical retina •

Primary care•

Strabismus•

Uveitis.•

Day case surgery also takes place for cataract and glaucoma.

Contact detailsUxbridge Road, Southall, UB1 3HW

PALS: 020 7566 2324

Tel: 020 8967 5766

MoorfieldsEyeHospital

One of the world’s leading hospitals for eye health.

Contact details162 City Road, London EC1V 2PD

Tel: 020 7253 3411

PALS: 020 7566 2324

Web site: www.moorfields.nhs.uk

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Royal National Orthopaedic Hospital

The Royal National Orthopaedic Hospital NHS Trust (RNOH) provides a comprehensive range of neuro–musculoskeletal health care, ranging from the most acute spinal injury or complex bone tumour to orthopaedic medicine and specialist rehabilitation for chronic back pain sufferers. This broad range of neuro–musculoskeletal services is unique within the NHS.

Contact detailsBrockley Hill, Stanmore, HA7 4LP

Tel: 020 8954 2300

PALS: 020 8909 5439

Web site: www.rnoh.nhs.uk

Royal Orthopaedic Hospital

The children’s orthopaedic service provides treatment for children in a dedicated outpatient and ward environment. Around 15% of the Trust’s total activity is dedicated to the treatment of children. The service works closely with surgeons and doctors at Birmingham Children’s Hospital, where some specialised orthopaedic procedures are also carried out. As well as common problems and minor deformities requiring surgery, children are also seen from all over the UK and overseas with rare bone injuries and deformities.

Some of the most common cases seen are:

lengthening or straightening limbs; •

the management and surgery for club • foot;

surgical management of serious bone • injuries;

correction and management of spinal • deformities;

complex hip surgery for perthes • disease and congenital dislocated hip.

Regional centre for the treatment of children with bone tumours.

Contact detailsThe Woodlands. Bristol Road South, Northfield Birmingham B31 2AP

Tel: 0121 685 4000

PALS: 0121 685 4128

Web site: http://www.ward11.roh.nhs.uk/

St Thomas’ Hospital

St. Thomas’ has an Accident & Emergency department. It is one of the busiest in London and treats over 120,000 patients every year.

Open 24 hours a day, 365 days a year.

Guy’s and St Thomas’s provide specialist services for patients from across London the South East and further afield.

Children’s services as for Guy’s Hospital

Parking for patients and visitors is very limited, and there is often a queue. The car park is pay on foot so please make sure you have the correct change. You should pay before you return to your car so you have an exit ticket.

The charge is applicable 24 hours a day.

Parking is free for disabled patients with an appointment, but the patient needs to pick up a form from the main reception and ask one of the clinicians to sign it for them. There are occasions when the car park is full and you will have to wait. There are also 16

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free disabled parking bays outside the main car park for visitors and relatives.

Contact detailsWestminster Bridge Road, London SE1 7EH

Tel: 020 7188 7188

PALS: 020 7188 8801

Web site: www.guysandstthomas.nhs.uk

The Royal Marsden Hospital Children’s Unit

The children’s unit is one of the larger centres in the UK and is a leading centre for the development of new treatments for children suffering from cancer.

The Royal Marsden Children’s Unit, in conjunction with the paediatric department at St George’s Hospital, provides a comprehensive paediatric oncology service which actively promotes shared care with a number of experienced general paediatric departments.

Please note that the hospital is unable to offer car parking facilities and that apart from a few metered bays and some disabled bays in Dudmaston Mews, on–street parking is strictly prohibited. Cars illegally parked are likely to be clamped. Cars parked in ‘Resident Only’ bays in Chelsea Square are likely to be towed away. Patients and visitors are strongly advised not to travel by car to the London site.

Contact detailsFulham Road, London SW3 6JJ

Tel: 020 7352 8171

PALS: 0800 783 7176

Web site: www.royalmarsden.nhs.uk/RMH/patients/forchildren/introchildrensunit.htm

West Middlesex University Hospital

Busy modern hospital. Has a separate children’s Accident and Emergency Area.

They offer a concessionary parking scheme for the main carer who is visiting a patient whose stay exceeds 5 consecutive days. Please ask a member of staff for further information. This scheme becomes effective after three days for those visiting children on Starlight ward.

Contact detailsTwickenham Road, Isleworth, TW7 6AF

Tel: 020 8560 2121

PALS: 020 8321 6261

Web site: www.west–middlesex–hospital.nhs.uk

Patient Advice & Liaison Service (PALS)

PALS is a central part of the new system of patient and public involvement in England. This service is available within all trusts.

PALS provide:

Confidential advice and support to • patients, families and their carers

Information on the NHS and health • related matters

Confidential assistance in resolving • problems and concerns quickly

Information on and explanations of • NHS complaints procedures and how to get in touch with someone who can help.

Contact detailsSee each hospital for PALS contact numbers.

Web site: www.pals.nhs.uk

ShortBreaks

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Short Breaks

Short Breaks2

What is a short break?

Short breaks are preventative family support services that can also enhance disabled children and young people’s personal, social and emotional development. They form part of the wider package of support available to disabled children and their families.

Short breaks provide opportunities for disabled children and young people to spend time away from their primary carers. These include day, evening, overnight or weekend activities and take place in your child’s own home, the home of an approved carer, a residential or community setting.

Provision of short breaks should be based on an assessment of the child’s whole family addressing their social needs. Short breaks usually occur on a regular and planned basis and should be part of an integrated programme of support, which is regularly reviewed. No short break should exceed 28 days continuous care and total provision over a year should not exceed 120 days.

Short break services are additional services required to support disabled children and their families: in other words, short breaks are services over and above the universal services expected and available to all families”. (Taken from ‘Definition of short Breaks’ - Together for Disabled Children, October 2008)

Short breaks range from supporting your disabled children or young person to access universal, mainstream services through to providing specialist services at local level.

Short break services are commissioned jointly or separately by the statutory sector and are provided by a range of agencies including Ealing Council, health providers, voluntary, private or independent sector organisations.

Children can access short break provision following an assessment of their family’s social, emotional and health needs and referral to the ESCAN Resource Panel.

Which children and young people can be considered for short breaks?

If your child or young person has a disability, is aged 0-18 years and living in the London Borough of Ealing they can be considered for short breaks.

Particular focus is given to:

Children with complex health needs • (requiring invasive care)

Older children with moving and • handling needs

Children on the autistic spectrum, • (usually with severe learning disabilities)

Disabled children with ‘challenging • behaviour’

Older disabled children.•

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Short Breaks

Types of short breaks

The range of short break provision on offer locally is described below.

Residential services

These include residential units run by Ealing Council, the independent sector or health services, as well as hospices. It also includes special schools that offer overnight stays to their students as part of their 24-hour curriculum.

Residential services may offer overnight care, day care and outreach support to families.

Residential services cater primarily for children who are more difficult to place in family based settings. This may include children who require moving and handling, children who require invasive clinical procedures and those with severely challenging behaviour. Some older children may also need a setting with other young people to a family-based short break.

Heller House

Heller House is a residential children’s home in Southall, which provides a short break for young people with complex disabilities from 10 to 18 years old living in Ealing. Young people who go to Heller House go for overnight stays.

There are many activities at Heller. There is an extensive garden with a climbing frame, slide, swings, a basket swing, a wheelchair accessible roundabout and a trampoline. There is an art room, a computer room, a large play room, a sensory room and a lounge and dining room. These are all available on the ground floor which

is wheelchair accessible. There are 9 bedrooms, 4 on the ground floor.

Young people will also be taken out on excursions. This type of short break is intended for disabled children and families with complex needs.

Referral process: Accessed following a Core Assessment by a children’s social services team – see ‘How to access short breaks’ on page 28.

Contact details124 Norwood Road, Southall, UB2 4DX

Tel: 020 8574 5835

Rainbow Trust

Rainbow Trust is a specialist provider of non–medical short breaks for children and young people with a terminal or life threatening illness. The sessions will be delivered on a one to one basis and aim to provide enjoyable activities based on the child’s/ young person’s needs and interests providing a break for both young person and carer.

Priority Groups: Children and young people, aged 0-18 years, with a life limiting, life threatening illness or those requiring medical support on a regular basis that needs a higher level of clinical skill.

Referral Process: Assessment by a health professional.

Cost: Free apart from cost of admissions to the families for mainstream attractions or venues.

Contact detailsTel: 020 8825 8987

Web site: www.rainbowtrust.org.uk

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Short Breaks

The Shooting Star Children’s Hospice

The Shooting Star Children’s Hospice provides care, support and advice for children and young people with life–limiting conditions and their families. These care services are offered free of charge to families, 365 days a year across the western half of London (including Ealing) and North Surrey.

Families benefit from Shooting Star’s care services in the community, in their own homes and at Shooting Star House, the purpose–built facility based in Hampton, Middlesex. These services include Short Breaks, Community Outreach, Day Care, Family Support and Therapies and End of Life Care. Our Community Outreach team regularly visit families across Ealing

The care services are based around the needs of the whole family, so as well as providing medical, social and educational care for the children and young people, there are activities and support groups for siblings, parents and grandparents. This makes a real difference to families – helping them live life to the full by providing opportunities for fun and laughter, as well as helping them through tougher times.

Referral process: Accessed following a Core Assessment by a children’s social services team or by a specialist health assessment – see ‘How to access short breaks’ on page 28.

Contact detailsShooting Star House, The Avenue, Hampton, TW12 3RA

Tel: 020 8783 2000

Web site: www.shootingstar.org.uk

Overnight and day care with a short break foster carer or salaried carers

These are carers who are approved as foster carers (Family Link Carers/Short Break Carers) by a Fostering Panel and can provide day care and overnight stays to a child in the carer’s home. They can be approved for 1 – 3 or more ‘link’ children who stay with the carer at different times, mainly at weekends and occasionally after school.

Ealing Family Link Scheme

The Family Link Scheme is an Ealing Council service. The Family Link Carer can provide up to 42 hours per month of day and overnight care to a child, usually at weekends. Priority is given to children aged 5 years plus.

Referral process: Accessed following a Core Assessment by a children’s social services team – see How to Access Short Breaks.

Contact detailsCarmelita House, 22-22 The Mall, Ealing, W5 2PJ

Tel: 020 8825 5797

Community care packages

Agency carer to provide buddying support to a child or young person at home or in the community. For some agencies, their service level agreement specifies that their carers can care for the child without the parent being present; otherwise the parents must supervise the carer.

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Short Breaks

Sitting service

This is care that takes place in your own home and/or out and about. The sitter can look after your other children at the same time as looking after your disabled child, depending on the children’s ages and supervision needs. Sitters are employed by either the London Borough of Ealing, or a private or a voluntary agency. Overnight sitting may be provided in certain circumstances. Sitting works well for children who need an environment that is suitably adapted for their needs or for those with Autistic Spectrum Disorders who do not adjust easily to new environments.

Ealing Family Link Sitting Service

The Family Link Sitting Service provides carers to look after children with a disability in their own home or out in the community. Usually in evenings and weekends although some daytime care during the week may be available. The carers can also care for siblings if appropriate.

Families typically get 8 – 12 hours per month.

Age range 0 – 18 years. Priority given to children under 10 years.

This type of short break is intended for disabled children and families with additional needs.

Referral process: Can be accessed through a CAF – see ‘How to access short breaks’ on page 28.


Tel: 020 8825 5797

Befriending / Buddying

Befriending and buddying services take the form of a one to one relationship that enables your child or young person to access a range of community or leisure activities, individually or in a group. A befriender/buddy can be a volunteer or a paid worker.

See www.ealinghelp.org.uk for more information.

Community and Leisure Activities

Community and Leisure activities refer to a range of organised group activities that include play schemes, Children’s Centres, extended school activities, Saturday clubs, after school clubs, evening and youth clubs. These may be specifically organised for disabled children or be universal community activities that include both disabled and non-disabled children and young people.

Ealing Council’s philosophy is that more disabled children and young people should be included in mainstream, universal community and leisure settings. It is recognised that disabled children may require one to one support to access inclusive services, either until they are settled or long term.

See sections on Clubs, Holiday Play Schemes (p128) and Local Support (p78) which include the following short breaks services:

Contact a Family• day trips, holidays and parties

Crossroads• after-school club, Life Skills course, parent carer service, Futureversity programme.

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Short Breaks

Extended Schools Service•

Futureversity• (Summer University)

Gateway Clubs• Mencap Saturday and after school clubs

Log Cabin Adventure Playground• after school club, Saturday club, holiday play schemes

P.E.S.T.S.• family fun days and parties

The W13 Social Club• youth and social club.

Therapeutic short breaks

Therapeutic short breaks are an intensive package of short term clinical psychology support, behavioural intervention and short breaks, to support families with a child or young person with severe learning difficulties and severe challenging behaviours, aged over 11 years. Therapeutic short breaks are designed to prevent family breakdown and minimise the need for the child or young person to be accommodated or go into a residential placement. A Core Assessment is required and referral is via a Clinical Psychologist – see ‘How to access short breaks’.

Direct Payments

Direct payments are a means of arranging short break services that give families the flexibility and control to decide how to meet their particular needs. A person with parental responsibility for the disabled child or young person is given money to purchase their own services rather than relying on the local authority to arrange it.

A Direct Payment is given instead of a service.

Most parents use direct payments to employ a person – usually someone within their network of contacts. Parents cannot use direct payments to purchase a local authority service. See the Benefits and Funding section on page 68.

Direct Payments for young people aged 18 plus are known as Cash Budgets.

How to access short breaks

Whilst universal, mainstream provision can be accessed directly by parents themselves, the targeted allocated and intensive provision can only be accessed following the completion of a Common Assessment Framework (CAF) form, or an Initial or Core Assessment or similar, and an action plan by a professional who knows the family. Initial and Core Assessments are undertaken by the Children with Disability or Children in Need social services teams.

The assessment and action plan must have been undertaken collaboratively with the family and child or young person within the three months prior to the ESCAN Resource Panel.

The CAF/ Initial or Core Assessment and action plan is then used as a referral to the ESCAN Resource Panel.

The following professionals can make referrals :

Social workers (from the area social • work teams and the Children With Disabilities team)

SAFE teams•

Educational social workers, •

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Short Breaks

SENCOs and other educational • professionals

Early Support Key workers•

Health Visitors and other health • professionals

Professionals from voluntary agencies.•

Referrers must assess the needs of the whole family, not just the disabled child. The assessment must consider the social, emotional and health needs of all adults and siblings in the household. The referrer will need to clarify whether the child meets the short break criteria for eligibility.

As parents you should be supported to familiarise themselves with all short break options either by discussion or by visiting the service. Information is available through the Family Information Service. See the Local Support section on page 78 and online at www.EalingHelp.org.uk.

The ESCAN Resource Panel considers all new referrals for short breaks and support as well as requests for a change or addition to any existing provision.

Reviewing the short break provision

Reviews of short break provision will be dealt with in different ways according to the service provided and whether a CAF or Initial/Core Assessment is done.

Children who had an Initial/Core Assessment will be reviewed in line with statutory requirements. Parents and children should be involved in the reviewing process. Reviews will be completed at 6 monthly intervals and will include a review of any short break provision.

The ESCAN Resource Panel may make a recommendation that the short break provision be reviewed earlier than guidance would expect, if the package of care needs to be revisited sooner.

Following review the level of service/short break may change if the child’s needs have changed.

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Short Breaks

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Social Services&Housing

Page 32

Social Services

Social Services3

Children in Need Team

Children in Need team offer a social work service to families where children are deemed to be ‘in need’ as defined by section 17 of the Children Act 1989. They work predominantly with:

Children whose names are on the • child protection register.

Children deemed to be in need of • family support services due to an assessed level of need.

Children with a disability that is not • deemed to be ‘severe and profound’ – the latter are referred to the Children with Disability Team.

Social workers will assess family needs and draw up a family support package with parents to enable children to be safely and effectively cared for within their families.

Contact detailsPerceval House, 14–16 Uxbridge Road, Ealing, W5 2HL

Tel: 020 8825 8000.

Web site: www.ealing.gov.uk

Children with Disabilities Team

The Children with Disabilities Team provides advice and information, assessment, family support, care packages, access to respite, child protection and looked after children’s services to families who have a ‘severe or

profoundly disabled’ child or whose child has a chronic or terminal illness.

What support is available?

Practical support•

Personal care in the family home • (home care package)

Short Breaks (in house short breaks • and day care support)

Residential services•

Information on specialist support for • carers

Support parents to apply for Direct • Payments

Additionally, under the Carers Act 1995 anyone who regularly provides a substantial amount of care has the right to ask social services for a carer’s assessment. You are eligible if you are the main carer, you live with the person you care for and being a carer has a substantial impact on your life.

To arrange an assessment of your needs, call the telephone number below. However, additional support may be very limited.

Contact detailsCarmelita House, 21–22 The Mall, Ealing, W5 2PJ

Tel: 020 8825 8000


Children’s Disability Register

The children’s disability register is a list of Ealing children with disabilities or additional needs. It is for children 0–18 years who receive specialist services from Health, Education, Social Care or the Voluntary

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Social Services - Housing

Sector. It is a legal requirement under the Children Act 1989 that local authorities keep a register.

The disability register is to collect accurate information about the needs of children and young people in Ealing. There is a short form to complete. This helps Ealing to plan services for disabled children and young people and improve services for families in the future. Ealing are signed up to the Every Disabled Children Matters Charter and the first requirement of this is to know the number of children with disabilities there are in Ealing. For more information visit www.edcm.org.uk

What are the benefits of joining the register?

You will be able to receive information about relevant services and invited to parent forums.

You will receive a newsletter and you will be helping Ealing Council to plan future services for children and young people with disabilities and additional needs.

Contact details:Children’s Disability Register Administrator

ESCAN, Carmelita House, 21–22 The Mall, Ealing W5 2PJ

Tel: 020 8825 6621

Housing4

Energy Saving Trust

Energy grants have been replaced by the Energy Saving Trust advice centre (ESTac) London. This is the first point of contact for all Ealing residents and small businesses who need energy advice. It provides free and independent advice on behalf of the council on grants, general energy efficiency, tariff switching, renewable energy, and referrals to certain schemes.


Email: enquiries@est–london.org.uk

Web site: www.energysavingtrust.org.uk

ESCAN Housing Surgery

This is a housing surgery, to help families who have children with disabilities and have housing problems. The surgery is held once a month at Carmelita House. To get an appointment at the surgery you must be referred by a professional. See your Keyworker, social services or any other professional.

Contact detailsChildren’s Social Services

Carmelita House, 21–22 The Mall, Ealing, W5 2PJ

Tel: 020 8825 8000

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Housing

Housing Needs, Access and Support

The service seeks to cater for all special needs, but has specialist staff to cater for only the following disabilities: mental health, HIV/AIDS and physical disability (through referral to the Housing Occupational Therapist). Mobility needs and properties advertised through Locata are assessed by the service according to three levels of need:

Wheelchair users indoors and • outdoors

People who cannot manage stairs and • may use a wheelchair some of the day

People who are able to manage 1 or 2 • steps or stairs.

The Housing Occupational Therapist assesses both people and properties in relation to Mobility Group and suitability for the family’s’ needs.

Contact detailsHousing Resource Centre, Perceval House, 14 – 16 Uxbridge Road, Ealing, W5 2HL

Tel: 020 8825 8888


Web site: www.ealinghomes.net

There are specific helplines for the following:

For housing advice

Tel: 020 8825 7274

For choice–based lettings

Tel: 020 8825 7410

For problems with temporary accommodation

Tel: 020 8825 8866

Hours:

Mon, Tue, Fri: 9.00am – 4.30pm

Wed, Thu: 1.00pm – 4.30pm

Repairs & Adaptations Service

Assisting vulnerable people to live independently and safely at home through the following services:

Process Disabled Facilities Grants•

Handyperson Service•

Handyperson Plus (repairs)•

Houseproud (equity release) Scheme•

Energy Grants (See Energy Saving • Trust on page 33)

General Repairs Assistance.•

Contact details4th Floor, Perceval House, 14/16 Uxbridge Road, Ealing W5 2HL

Tel: 020 8825 6070



Hours: Mon – Fri: 8.30am – 5.30pm

Education

Page 36

Education

Education5

Overview

DefinitionofSpecialEducationalNeeds (SEN)

Some children have Special Educational Needs. This means that he or she has greater difficulty in learning than most other children of about the same age. Special Educational Needs (SEN) can arise for a number of reasons and may be due to a disability that makes it hard for a child to use the same kind of educational facilities provided for the majority of children. Up to 20% of all children will experience a special educational need of some kind at one time or another. Quite often these can be sorted out when the child is at school or by additional intervention before the child goes to school.

A number of children will have complex long–term and more severe educational needs for example:

Learning difficulties in acquiring basic • skills

Specific learning difficulties with • reading, writing or maths which can mean the child needs a more structured approach to learning

Emotional, behavioural or social • difficulties where a child might have difficulty in forming relationships and focusing on school work

Speech and language difficulties • (impairment) where children have a

particular reason for not being able to speak, or a delay in the development of speech and language skills

Visual impairment where children have • been born partially sighted or blind or have become so through accidents, illness or a deteriorating condition

Hearing impairment involving • significant hearing loss or deafness that can seriously affect speech and the ability to benefit from teaching and communication with others

Physical disability present from birth or • arising from illness or injury

Medical or health conditions which • may slow down a child’s progress

Complex communication difficulties • such as Autistic Spectrum Disorder (ASD) or Asperger Syndrome.

Children at School

Many children at some stage in their lives will have greater difficulty with learning or with the way they behave at school. This is not unusual. For some children this may be a temporary difficulty with, for example reading, maths or behaviour which can be overcome with the help of parents and the school.

Only a small number of children have severe long term and complex special educational needs. However, if you have any concerns it is important to act quickly as things take time to organise. You may wish to have a look at the Special Educational Needs Code of Practice which took effect from January 2002. It is quite long but useful to have as

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Education

various support groups may make reference to it if you seek their help.

You can get free copies of the “SEN Code of Practice” or a document summarizing the code called “SEN, a guide for parents and carers” from the Department for Education at www.teachernet.gov.uk/wholeschool/sen or from DE Publications Centre on 0845 602 2260.

Differentiated Learning / School Action / School Action Plus

If you or your child’s school thinks there is some cause for concern regarding your child’s progress either academically or socially it is likely that the school will start by:

Differentiated Learning

This means that the class teacher creates learning opportunities that are paced differently. It may be that the work is broken down into easy manageable steps, or that the child has worksheets specially designed for them to suit their developing abilities.

School Action

At School Action, a child should be given support that is either extra to and/or different from that which the school gives through its usual differentiation. The school’s special educational needs co–ordinator (SENCO) and the teacher(s) collect all the information about the child and ask parents for more information. Once it has been decided what help to offer a child, this should be recorded on an Individual Education Plan (IEP), which should be reviewed regularly. You should be involved at all stages.

School Action Plus

Again, if progress on School Action is inadequate, a child should move on to School Action Plus. At this stage the help will be more intensive and outside specialists will be involved, e.g. speech therapist, educational psychologist etc. They will give support, advice and help set new targets for your child’s IEP.

Statutory Assessment

Your child’s needs may be sufficiently complex to warrant a Statement of Special Educational Needs. If this is the case then you must begin a process called statutory assessment.

If your child has a specific disability this process may be undertaken before the child goes into nursery so that everyone is clear about the help he/she needs. More often than not, a professional working with the child will refer him/her for an assessment but you have the right to do so if this does not happen. It can happen that the child’s difficulties may not be recognised until he/she is at nursery or school. If you or the school decide that your child’s needs are not being met effectively then the Local Authority (LA) should be asked to make a statutory assessment.

This will mean that various professionals linked to the school will see the child. The decision on whether or not to proceed with this assessment must be taken within a 6–week period – parents have 29 days within this period to provide information on their child’s needs. If the LA decide not to go ahead with a statutory assessment they must inform you in writing and explain the

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Education

reasons why not, along with the steps they are going to take to meet your child’s needs. If you do not agree, you may appeal to the SEN and Disability Tribunal.

If the LA decide to proceed with a statutory assessment, information about your child is gathered from:

You, the parent/carer•

Your child’s school, nursery or • playgroup

Social Services if child is known to the • service

Educational Psychologist•

Health professionals such as • paediatrician, occupational therapist, speech therapist, physiotherapist or health visitor.

Professionals must respond within 6 weeks. When all the information has been gathered, the Special Educational Needs Panel (which includes Head of Special Educational Needs Service, an Educational Psychologist and head teachers) will decide whether a statement of special educational needs will be agreed for your child. The period of time within which this decision must be given is 10 weeks.

Again, if you do not agree with their decision you may appeal to the SEN and Disability Tribunal.

People you will meet during the Statutory Assessment Process

When the statutory assessment process begins you will be contacted by a named LA officer (in Ealing they are called Special Education Officers – SEO)

He or she will:

liaise with you over all the • arrangements relating to the statutory assessment, statementing and annual review of your child’s special educational needs (SEN);

gather advice from various • professionals during the statutory assessment process;

maintain and update information about • your child;

send the information about your child • to the special educational needs panel;

inform you of the decisions made by • the special educational needs panel;

provide general advice on procedures • relating to special educational needs processes.

Special Educational Needs Administration

The Special Educational Needs Administration section is responsible for administering the statutory assessment, statementing, placement and review of children and young people with special educational needs within the framework of the 1996 and 2001 Education Acts and the Code of Practice on the Identification and Assessment of Children with Special Educational Needs. The timeframe for the completion of the statutory assessment process is 26 weeks. Nurseries, schools, parents, social care or health professionals can request a statutory assessment.

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The team provides information, advice and guidance to parents, school staff and other professionals on a wide range of issues relating to special educational needs. The team also works closely with the voluntary sector and Parent Partnership Services regarding the statutory assessment, statementing, placement and review process.


Tel: 020 8825 5533

It is hard work going through the assessment process and you may want support. There are Independent Parental Supporters (IPS) to give free and confidential independent support to parents when they have a child whose special educational needs are being assessed.

An IPS can be a friend, a neighbour, a professional or a member of a voluntary organisation. This person should be someone you can trust, who can offer you support and who is able to help you express your views. If your child has specific needs you may prefer someone who knows more about your child’s medical condition or disability. The Parent Partnership Office will be able to suggest someone willing to be your IPS.

The Parent Partnership Service

The Independent Parental Supporter (IPS) can help you by:

discussing any letters or reports sent • to you by the LA, the school or other services;

assisting in writing any replies or • reports that may be needed;

attending meetings with you;•

supporting you in expressing your • views;

explaining the assessment process and • the roles of professionals;

enabling you to keep track of meetings, • reports and letters;

negotiating on your behalf;•

putting you in touch with interpreters • and translators.

You can have as much or as little support as you need. It’s your decision.

Your Rights

As the parent/carer of a child with Special Educational Needs you have a right to:

request a statutory assessment;•

request a re–assessment (after 6 • months);

contribute to the statutory assessment;•

be represented and make • representation during the statutory assessment process;

express a preference for a school•

receive a copy of the proposed and • final statement;

appeal against an la decision, including • the content of a statement;

initially to the la and then to the • special educational needs tribunal;

Access, on request, your child’s school/• LA records.

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ContinYou Ealing Parent Partnership Service (CEPPS)

CEPPS is Ealing’s Parent Partnership Service. They provide free advice, information, and support to Ealing’s parents of children with special educational needs (SEN). CEPPS can help parents with a variety of issues such as requesting a statutory assessment, school transfer and exclusions.

Caseworkers can also signpost parents to relevant professionals and organisations and accompany them to meetings with the school or local authority and help to mediate any disagreements.

Contact detailsThe Lido Centre, 63 Mattock Lane, Ealing, W13 9LA

Tel: 020 8280 2251

Web site: www. continyou.org.uk/cepps

People You May Meet at School

Special Educational Needs Co–ordinator (SENCO)

The role of the SENCO can differ slightly from school to school. Ask your school for information about their SENCO including how much time this person is available to do this job. Quite often the SENCO will have other responsibilities like teaching, deputy head etc. In general the SENCO should:

oversee the day–to–day operation of • the school’s SEN (Special Educational Needs) policy;

liaise with the SEN team of teachers • and teaching assistants;

co–ordinate the help pupils with • special educational needs should get;

liaise with parents of pupils with special • educational needs;

liaise with outside agencies including • the LA’s support and educational psychology services, Connexions, health and social services and voluntary bodies.

Ask your school for a copy of their Special Educational Needs policy.

Learning Support Assistant (LSA)

Teaching/Learning support assistants provide vital support to teachers in the classroom. A proportion of these will provide support for children with Special Educational Needs as well as assisting the class teacher with day–to–day support.

The Individual Educational Plan

An Individual Educational Plan (IEP) is a detailed plan which is about how the teacher will help your child to develop. These are the guidelines set out by the Code of Practice.

Those preparing Individual Educational Plans:

should focus on the specific learning • difficulties of the child;

should take account of what the child • has already achieved, building on the curriculum the child is following;

should show clear targets to be • achieved over a specific period of time;.

should involve both the child and, • where possible, the parent in its preparation and review;

should seek the advice of outside • specialists (school action plus).

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The IEP should be reviewed regularly but at least 3 times a year. You may want to agree a date with the school about 3 weeks into the first term. This gives the teacher some time to get to know your child. Once the IEP has been completed you should be asked to sign it and you should be given a copy. Always take it along to the next review so that you are clear on how your child is progressing against the targets set.

The Annual Review

By law all statements of special educational needs should be reviewed each year for school–age children and every 6 months for children under 5. In some cases, particularly if there is increasing concern about your child’s progress and if parents and schools agree, then the annual review may be brought forward. The purpose of the review meeting is to:

bring together the views of you, your • child and those involved in helping your child;

ensure that targets set previously are • being achieved;

set new targets for the coming year ;•

recommend possible amendments to • the statement, if appropriate.

Every so often, a child will have made such progress that it will be recommended that the statement is no longer required.

Certain people must be invited to the meeting:

Parent/carer (you may wish to ask a • friend, advisor or Independent Parental Supporter to go along with you)

The teacher who knows your child • best

Someone from your local authority • (LA).

The head teacher may also invite:

A representative of the health • authority

A representative of social services•

Anyone else whom the head feels will • be able to provide helpful information and advice such as an educational psychologist, specialist teacher, careers advisor or Connexions personal advisor.

It may not be possible for everyone invited to attend but at the very least the people who have the most contact with your child should be there. Do check with the school before the meeting on the people who are going to be there. Before the meeting all those people invited will be asked to send in written reports. These should arrive at the school 2 weeks before the meeting takes place. You should also be invited to send in your comments and those of your child if appropriate.

The meeting normally takes place at the school. The discussion about your child should include:

your views of the past year’s progress • as well as the views of your child and the school;

how your child has progressed against • the objectives set the previous year ;

national curriculum requirements;•

targets for the coming year ;•

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any further action required and if so, • who will be responsible;

whether the statement needs • amending or is no longer required.

After the meeting the school will prepare a report detailing the results of the meeting and the targets for the coming year. Copies will be sent to all those concerned whether they attended the meeting or not.

Educational Psychology Service (EPS)

This is an Integrated Service for Children with Disabilities

The Service applies psychological principles to the processes of teaching, learning and behaviour and works closely with parents, teachers, school special educational needs co–ordinators (SENCOs) and other professionals involved with children and young people.

The majority of requests for involvement come from schools and each Educational Psychologist is allocated responsibility for a number of schools, which they visit on a regular basis. They often act as consultants to parents and staff within the school, advising them on the problems that have been identified. Educational Psychologists also work on a one–to–one basis with pupils, assessing their difficulties and advising on strategies for helping them.

Children who have not reached school age but who have significant difficulties are referred to the Educational Psychologist for advice by Early Year’s settings or by the Child Development Team. Parental permission is required before a child is individually seen

and, in any case, an Educational Psychologist would always want to talk to a child’s parents as part of an assessment.


Tel: 020 8825 5050

Service details

Disability Access: Most of the work of the EP takes place in schools, nurseries and playgroups. Where a pre–schooler is referred who does not attend a pre–school facility the EP would arrange to pay a home visit.

Opening Hours:

Mon – Fr : 9.00am – 5.00pm

Age Range: 0 –18 years

The Service will see young people up to the age of 19 years if they have a statement of special educational needs.

SEN and Disability Tribunal

Special Educational Needs and Disability Tribunal is an independent body based in London that makes decisions on appeals from parents against decisions made by the LA on statutory assessments and statements. Tribunal decisions are binding on all parties involved in the appeal. The Tribunal also hears cases of disability discrimination. You can appeal to the Tribunal if:

the LA refuses to make a statutory • assessment of your child although you have requested it;

the LA refuses to make a statement • of special educational needs for your child after carrying out an assessment;

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you disagree with part 2, 3 or 4 of the • statement and it cannot be resolved with the LA;

your child already has a statement • and the LA refuses to assess your child again or change the name of the school in that statement;

the LA decides to stop maintaining • your child’s statement.

The Tribunal will look at the evidence and make a final decision based on all the facts presented. However, either you or the LA can appeal to the Upper Tribunal against the First Tier Tribunal’s decision if you believe they have got the law wrong. More information about the Tribunal is available in a special booklet you can get from the SEN Tribunal.

You can go to the Tribunal on your own, or voluntary organisations or parents’ groups can help you prepare your case and go with you. You can also ask up to two people who know your child to speak for you at the Tribunal. Many parents have employed a barrister to represent them but be wary and ensure you get detailed costs. Parents have reported spending between £6000 and £10,000 on law services to assist them at tribunal.

SEN TribunalSENDIST, Podium 31, Mowden Hall, Staindrop Road, Darlington DL3 9BG

Tel: 0870 241 2555 / 01325 392760

Web site: www.sendist.gov.uk

When should you appeal?

You should apply to the Tribunal no later than 2 months after the LA give you a

decision, so that the appeal procedure does not delay any special educational help your child needs.

Complaints

If you have, for example, a complaint about the LA’s failure to:

keep within time limits•

make sure that the help your child • needs is provided, as set out in the statement

which a Tribunal would not deal with, you may be able to make a complaint to the Local Government Ombudsman.

The Local Government OmbudsmanPO Box 4771, Coventry CV4 0EH

Tel: 0300 061 0614 / 0845 602 1983.

Web: www.lgo.org.uk

Special Education Needs Transport (SEN Transport)

The SEN Transport section is responsible for providing home to school transport for pupils with special education needs who have been assessed by the Special Education Administration service as having met the criteria for assistance with travel arrangements to and from school. A variety of vehicles are used (cars, minibuses, coaches and tail lifts) to cater for pupils’ disabilities and, where needed through an assessment, passenger assistants and marshals are employed to cater to the needs of the pupils and ensure they arrive at their destination safely whilst on transport.

Contact details: Tel: 020 8825 5544

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Choosing and Changing Schools

Where possible the LA likes to educate children in mainstream schools. If your child has a statement you have a right to state a preference for either a mainstream school with additional support, a day special school or a specialist class or base attached to a mainstream school.

It is important that you note the difference between expressing a preference for a school and choosing a school. The LA may not agree with your preference, however you have the right to appeal against their decision. Transport for your child MAY be arranged in some circumstances if the school named in part 4 of the statement is a special school, class or base and is some distance from your home. If your child’s special educational needs cannot be met in a school in Ealing, provision outside the borough will be considered.

Making the Choice

There is no ‘best school’ able to meet the needs of every child. When choosing a school or nursery for your child, have a look at the brochures produced by the school, talk to family and friends, but most importantly visit the school.

Schools often have open days or you can sometimes arrange a visit during normal school hours. Do try and visit several schools so that you can compare what is on offer.

Ask yourself the questions:

“Will my child be happy here?”

“Is it the right kind of environment to meet his social and educational needs?”

Many schools prefer to see a copy of the draft statement or relevant reports before your visit so they have a picture of your child’s needs and can assess whether the provision they offer is appropriate for your child.

Early Years/Pre–school

Portage

Portage is a home –visiting educational service for pre–school children with additional support needs, and their families.

The aim of the service is to support the development of your children’s play, communication and relationships and to encourage full participation in day to day life within the family and beyond the home.

Support offered through Portage is based on the principle that parents are the key figures in the care and development of their child and Portage aims to help parents to be confident in this role whatever their child’s needs may be, working in partnership with parents to make learning fun!

Contact details:Tel: 020 8825 7746

Early Years Consultants

Provide practical on-going support for setting based SENCOs, Managers and Head Teachers from the Private, Voluntary and Independent sectors.

The aim of the service is to respond quickly and effectively by devising early intervention strategies to enable practitioners to meet children’s identified needs and to advocate good practice in early years settings.

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All early years settings in the Private, Voluntary and Independent Sector can access this service by phone or through regular consultation visits.

Each Early Years Consultant has a responsibility for a number of settings in designated areas.

Contact details:Tel: 020 8825 5290

Early Years Action

If your child needs special help with their learning, preschools or nurseries may provide this through a way of helping children called ‘Early Years Action’. Your child’s teachers or SENCO will discuss your child’s needs with you, assess their needs and decide what help to give. You should be asked about the help your child is given and its results.

Help under Early Years Action could mean a different way of teaching certain things, or some help from an extra adult. This help, and the short–term targets for your child’s learning, may be written down in a document called an Individual Education Plan (IEP). Alternatively your child’s progress may be recorded in the same way as it is for all other children.

See the Education section for a description of an IEP.

Early Years Action Plus

If your child does not make enough progress in Early Years Action, their teacher or SENCO should talk to you about getting extra help for them. This could be from, for example, a specialist teacher or a speech

therapist. This kind of help is called ‘Early Years Action Plus’.

External specialists may start by making an assessment of what is needed. Specialists advise on the IEP and sometimes teach or help your child directly.

If your child needs a large amount of help or extra resources, your local authority may agree to provide this through Early Years Action Plus. They might also decide to make a statutory assessment.

A statutory assessment (often known simply as an ‘assessment’) brings in a number of specialists to decide what extra help your child needs.

See page 40 for a description of an IEP and the process of getting a statutory assessment.

Pre–School Learning Alliance

The Preschool Learning Alliance is a leading early years membership organisation and one of the largest providers of quality childcare in England. They offer support to over 15,000 settings and impact positively on the care and education of over 800,000 young children and their families every year.

Contact details:Pre-school Learning Alliance Ealing, Hanwell Library, Cherington Road, Hanwell, W7 3HL

Tel: 020 8567 5247

Web site: www.pre-school.org.uk

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Children’s Centres and Nurseries with Specialist Provision

Children’s Centres provide multi–agency services that are flexible and meet the needs of young children and their families. The core offer includes integrated early learning, care, family support, health services, outreach services to children and families not attending the Centre and access to training and employment advice. High quality learning and full day care for children from birth is at the heart of these centres.

Acton Park Children’s CentreActon Park, East Acton Lane, Acton W3 7LA

Tel: 020 8743 6133


Copley Close Children’s Centre363 Copley Close, Hanwell W7 1QG

Tel: 020 8566 6260

Email: copleyclose@pre–school.org.uk

Dormers Wells Children’s CentreDormers Wells Lane, Southall UB1 3HX

Tel: 020 8574 1200


Downe Manor Primary School Nursery*Down Way, Kingshill Avenue, Northolt UB5 6NW

Tel: 020 8845 1155


Specialist Speech and Language provision in conjunction with ICAN

Ealing Hospital Children’s CentreUxbridge Road, Southall UB1 3HW

Tel: 020 8967 5478


EaseThe Base, 187 Copley Close, Hanwell W7 1AZ

Tel: 020 8575 6139

Email: jackie.sear@empowering–acton.org.uk

Featherstone Primary and Nursery School*Featherstone Road, Southall UB2 5AG

Tel: 020 8571 4862

Email: admin@featherstone–pri.ealing.sch.uk


Grove House Children’s Centre77a North Road, Southall UB1 2JG

Tel: 020 8571 0878


Greenfield’s Children’s CentreRecreation Road, Southall UB2 5PF

Tel: 020 8813 8079


Havelock Children’s Centre17 Trubshaw Road, Southall UB2 4XW

Tel: 020 8843 0548


Horsenden Children’s CentreHorsenden Lane North,Greenford UB6 0PB

Tel: 020 8422 5985


Islip Manor Children’s CentreEastcote Lane, Northolt UB5 5RE

Tel: 020 8845 0601


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John Chilton School Nursery

John Chilton School has a nursery and takes pupils who have physical and/or medical disabilities. See page 50 for details.

John Perryn Primary SchoolLong Drive, Acton W3 7PD

Tel: 020 8743 5648


Jubilee Children’s CentreJubilee Hall, West Ealing W13 0FE

Tel: 020 8567 6251

Email: mborlase@st–johns.ealing.sch.uk

Limetrees Children’s CentreThorndike Avenue, Northolt UB5 5LA

Tel: 020 8845 3807


Mandeville School Nursery

Mandeville Special School provides 2 nurseries, one for pupils with severe learning delay and autistic spectrum disorder and a separate one for children with profound and multiple learning delay. See page 50 for details.

Maples Children’s CentreEast Churchfield Road, Acton W3 7LL

Tel: 020 8743 7128


Medcliffe Community Nursery41 Woburn Tower, Broomcroft Avenue Northolt UB5 6HT

Tel: 020 8841 1289


Medcliffe Open Door Children’s Centre10 Kensington Road, Northolt UB5 6AL

Tel: 020 8575 3985


Northolt Park Children’s CentreOff Newmarket Avenue, Northolt UB5 4HB

Tel: 020 8864 7614


Oaktree Community Centre

Osbourne Road, Acton W3 8SJ

Tel: 020 8993 6308


Petts Hill Children’s CentreNewmarket Avenue, Northolt UB5 4HB

Tel: 020 8422 4095


South Acton Children’s Centre*Castle Close, Acton W3 8RX

Tel: 020 8992 0724



Southall Opportunity Pre SchoolSpikesbridge Park Play Centre, Spikesbridge Road, Southall, UB1 2AS

Tel: 020 8813 8220

Email: [email protected] Park Children’s Centre

Boyd Avenue, Southall UB1 3BT

Tel: 020 8813 8275 or 020 574 2612


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Sunlight Community Nursery & Resource Centre5 –11 Hanbury Road, South Acton Estate, Acton W3 8RF

Tel: 020 8896 3809


St John’s Primary School Nursery*Specialist Speech and Language provision in conjunction with ICAN

See page 50 for details.

Viking Children’s CentreViking Primary School, Radcliffe Way, Yeading Lane Northolt UB5 6HW

Tel: 020 8845 3186


Windmill Children’s Centre

135 Windmill Lane, Greenford UB6 9DZ

Tel: 020 8813 1295


Windmill Park Children’s CentreWindmill Park Community Centre,1 Tulip Close, Windmill Park Estate, Southall UB2 4UZ

Tel: 020 8571 6467


Sure Start South NortholtDrop In Centre.1 Academy Gardens, Northolt UB5 5QN

Tel: 020 8842 0220


West London Academy Primary School Compton Crescent, Northolt UB5 5LP

Tel: 020 8842 7949


Centres planned for 2010

Grange Primary SchoolChurch Gardens, Ealing W5 4HN

Tel: 020 8567 1432


* Ealing, in partnership with the national charity, ICAN, has set up 4 provisions for nursery aged children who are identified as having severe specific speech and language difficulties. Each provision caters for up to 10 children. The children who attend this provision are aged 3 or 4 years and do not need a statement to access these facilities. All of the children will be known to the Speech and Language Therapy Service.

Referrals to Children’s Centres For Children in Need

Children’s Services provide places for Children in Need within its Children’s Centres and Nursery Centres across the borough.

For information on how to apply for a place, please contact Sally Osmond (Childcare Manager for Children in Need) on: [email protected] or 020 8825 9466. You can also contact FIS on 020 8825 5588.

Primary Schools with Specialist Provision

Schools that cater for both primary and secondary students are included in the Secondary section.

Allenby Primary School

Allenby has a unit, across the primary range, which caters for children who have

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severe learning difficulties with autistic spectrum disorder, developmental delay or communication delay.

Contact detailsAllenby Road, Southall, UB1 2HX

Tel: 020 8578 6636

Web site: www.allenbyprimary.com

Castlebar School

Castlebar is a school for children aged 4 to 11 years who have complex moderate to severe learning difficulties, including autistic spectrum disorders.

The school is purpose built with modern facilities. There are specialist rooms for music, science, occupation and speech & language therapies. There is a kitchen area for cooking and washing activities, a medical room, changing room, bathroom and laundry.

Outside there are 3 hard surface play areas with a variety of large equipment and a separate play area for younger children. There is a grass playing field with a football pitch and a fenced all weather football court. They also have a garden and pond.

Pupils are taught the National Curriculum with appropriate modifications according to each individual child’s abilities. Each class has between 6 & 8 pupils taught by a teacher & assisted by either a Nursery Nurse or a Special Support Assistant.

Please have a look at their website for a full prospectus or contact the school.

Contact detailsHathaway Gardens, Ealing, W13 0DH

Tel: 020 8998 3135

Web site: www.castlebar.ealing.sch.uk

Coston Primary School

Has Additionally Resourced Provision for Key Stage 1 (Reception – Year 2) which caters for a small group of statemented children with a range of complex learning difficulties. The children participate in the mainstream environment wherever possible.

Contact detailsOldfield Lane South, Greenford, UB6 9JU

Tel: 020 8578 1515

Web site: www.coston.ealing.lgfl.net

Drayton Green Primary School

Has Additionally Resourced Provision for Key Stage 1 and 2 (Reception – Year 6) which caters for a small group of statemented children with a range of complex learning difficulties. The children participate in the mainstream environment wherever possible.

Contact detailsDrayton Grove, Ealing, W13 0LA

Tel: 020 8997 2307

Gifford Primary School

Has a Hearing Impaired Unit for 20 pupils across the primary age range. The hearing impaired pupils are fully included in the school with the help of acoustically treated accommodation in some areas as well as radio aids.

Contact detailsGreenhill Gardens, Northolt,

Tel: 020 8845 4661

Web site: www.gifford.ealing.lgfl.net

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Mandeville School

Mandeville is a school for children age 2 to 11 years who have complex severe to profound learning difficulties, including autistic spectrum disorders. Newly built, Mandeville is a state of the art special school. The school has increased the number of pupils it takes and now provides 2 nurseries, one for pupils with SLD and ASD and a separate one for children with PMLD.

Contact detailsHorsenden Lane North, Greenford, UB6 0PA

Tel: 020 8864 4921 or 0911

Web site: www.mandeville.ealing.sch.uk

St John’s Primary School

St John’s has speech and language Additionally Resourced Provision for children with severe speech and language difficulties.

The children are fully included within the mainstream school.

Contact detailsFelix Road, West Ealing, Ealing, W13 0NY

Tel: 020 8567 6251

Web site: www.stjohns.ealing.lgfl.net

Secondary Schools with Specialist Provision

Belvue School

Belvue is a school for young people aged 11 to 19 years who have complex moderate to severe learning difficulties including autistic spectrum disorders.

Contact details

Rowdell Road, Northolt, UB5 6AG

Tel: 020 8845 5766

Web site: www.belvueschool.org

John Chilton School

The school takes pupils ranging from 2 to 18 years who have physical and/or medical disabilities.

Facilities include:

Physiotherapy, Occupational therapy, • Speech & Language therapy

Hydro–therapy pool•

Full–time medical support•

Attached Education Social worker•

High level ICT and support for aided • communication

Minibuses (2) to enable access to a • wider curriculum and for school trips.

The school campus is shared with the West London Academy Primary and Secondary Schools both of which offer opportunities for the inclusion of pupils into mainstream school.

Contact detailsCompton Crescent, Northolt, UB5 5LD

Tel: 020 8842 1329

Web site: www.john–chilton.ealing.sch.uk

Springhallow School

Springhallow is a school for children aged 4 to 16 years who have complex autistic spectrum disorders. Children at the school have learning difficulties, ranging from moderate to severe. All pupils have impairment in social, language and

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communication, thought and behaviour. Pupils are from a range of social and ethnic backgrounds.

Contact detailsCompton Close, Ealing, W13 0JG

Tel: 020 8998 2700

Web site: www.springhallow.ealing.sch.uk

St Ann’s School

St Ann’s School caters for young people, aged 11 – 19 years, with severe learning difficulties or profound and multiple learning difficulties, including autistic spectrum disorders. Many students also have complex medical conditions, severe communication disorders, bi–modal sensory impairment and challenging behaviours.

St Ann’s School believe all their pupils have the capacity to learn, mature and develop self–esteem. This is best developed within an inclusive environment where each achievement can be acknowledged and celebrated.

Contact detailsSpringfield Road, Hanwell, W7 3JP

Tel: 020 8567 6291

Independent Schools in Ealing

Insights Independent School

Insights school and skills academy provides a specialized education and training for pupils, students and young people who are experiencing difficulties in mainstream learning environments and social settings. Insights is an independent, co–educational

school that provides full–time education for students aged 11–19 with special educational needs. From September 2010 the school will expand to take pupils aged 7–11. There will be an upper and lower school on separate sites. Insights School caters for up to 50 pupils with a wide range of educational and behavioural difficulties.

Referral to the school is made through your child’s current school or educational psychologist.

Contact details3–5 Alexandria Road, West Ealing, W13 0NP

Tel: 020 8840 9099

Web site: www.intuitionppims.co.uk

Sybil Elgar School

The Sybil Elgar School is a National Autistic Society (NAS) School for children aged 11–19+. The school can take up to 72 pupils as day, weekly or termly boarders. Go to the NAS website – www.autism.org.uk or contact the school for more information.

Contact detailsHavelock Road, Southall, Ealing, UB2 4NR

Tel: 020 8813 9168

Other Considerations

For pupils with Behaviour Emotional and Social Difficulties (BESD), the majority are included in mainstream schools. A small minority have needs which cannot be met in mainstream schools. These pupils can be assisted on a short term basis by attendance at The Primary Centre or The Study Centre. However this provision is not suitable for their long term needs. These pupils may

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attend a special provision or school in a neighbouring borough.

Other Future plans

The primary Additional Resourced Provisions (ARPs) are very successful and Ealing is considering the establishment of 2 further ARPs. The intention is to look at appropriate sites in the Southall and Acton areas, and thus provide an ARP in each quadrant of the borough by December 2012.

Out of Borough Placements

If you require advice and information about out of borough schools it is strongly recommended that you seek this early in the process rather than leaving your enquiry until later. If you would like personal support in applying for a school, the admissions service can provide a named contact officer to assist you.

If you wish to apply for a school in a neighbouring borough, contact the local authority for that area.

Ealing Education department2nd Floor NE, Perceval House, 14–16 Uxbridge Road, Ealing W5 2HL

Primary School admissionsTel: 020 8825 5511

High School admissionsTel: 020 8825 5522

Hours: 9.00am – 5.00pm

Visiting the School

Remember you can get help from the Parent Partnership service in preparing for a school visit.

Take any relevant up–to–date reports • or assessments of your child.

Prepare a list of questions.•

Talk to your child about where they • would like to go.

Take your child with you if you and the • school feel it would be helpful. (Some schools may want to meet and assess your child).

Take a friend or relative with you.•

Questions to Ask

What are the school’s policies on • special needs, equal opportunities, bullying and behaviour?

What are the school rules?•

How is homework set and how often?•

What school meals are provided?•

Can they cater for special diets?•

Are there after–school clubs and • activities?

Will the school respect and support • their family’s religious and cultural beliefs?

How does the school communicate • with parents?

What extra help is available to meet • my child’s special needs?

How many children are there with • similar needs?

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Is there access to physiotherapy, • speech therapy etc?

Have the staff got qualifications in • Special Educational Needs?

Remember to get a copy of the school’s Special Educational Needs policy.

Colleges

Ealing, Hammersmith and West London College (EHWLC)

The Supported Learning division at Ealing, Hammersmith & West London College runs programmes for learners with a variety of severe, moderate and profound learning difficulties and disabilities, including Autism, Asperger Syndrome, challenging behaviour, mental health issues and physical disabilities, across three main sites and 12 community venues.

They strive to meet the diverse needs of their students from the outset by acknowledging their goals and aspirations and conducting effective initial and continuous assessments. They offer personalised learning programmes, delivered through realistic working environments, which embed essential skills and information and learning technology in a creative and imaginative way.

Please contact them for details of their taster days when you can come and experience life at college!

There are three campuses with different specialities as follows:

Acton

There are two distinct groups on this campus:

Provision for learners with severe learning difficulties

Learning for living courses are designed to develop independent living skills.

Stepping into work concentrates on employment and travel training.


Provision for learners with moderate learningdifficulties

The Moderate Learning division at Acton is designed for students making the transition on from local schools. The transition courses are full–time and are suited for students wanting to progress onto further study or employment.


Hammersmith

There is more provision for learners with severe learning difficulties at this college with a variety of options:

Team Enterprise will develop your • independence and give you the chance to work in a small business running a shop on site.

Work Experience challenge looks at • developing the skills you’ll need to get a job.

Twilight courses are also available in • Sports and Performing Arts.


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Education

Southall

The provision for students with learning difficulties and disabilities at Southall consists of a range of discrete courses.

Learning for Living is designed for students who want to develop their independent living skills both within the home environment and the community.

Vocational Skills Development builds on learners’ vocational aspirations, allowing learners to specialise in their subject knowledge in catering, horticulture or retail.

Skills for Work & Employment focus courses are for students who aspire to progress onto employment in the future.

They also offer part–time courses in Art & Design Enterprise which involves producing art work to sell, Employment Plus which is designed to support learners already in employment, Health & Fitness and Mentoring Skills.

Contact Lynda Elson on 07796 195 500 or Sadaf Aslam on 07917 211 170 for more information

Contact detailsEaling, Hammersmith and West London College Gunnersbury Lane, London W3 8EA

Tel: 020 8231 6396

Web site: www.westlondoncollege.ac.uk

Note

This college is establishing a centre of excellence for students with Asperger Syndrome. They offer students with AS the chance to discover their full potential by accessing a development curriculum specifically for their needs. Access to a full range of accredited courses such as BTEC,

GNVQ, NVQ etc. Support, where needed, when accessing mainstream courses of the students’ choice at any of the four sites.


Richmond upon Thames College

Richmond upon Thames College (RuTC) exists to help all of its students to achieve their full potential. It seeks to do that by providing:

a broad and responsive curriculum;•

outstanding teaching, learning and • training;

comprehensive systems of academic • and personal support;

opportunities to engage in a wide • range of enrichment activities;

an institutional commitment to • excellence.

Thereby fostering the skills, qualifications and experiences likely to enhance personal development, employability and citizenship. Whilst sensitive to changing political and economic priorities, and aware of the need for prudent financial management, the fundamental purpose of the College is teaching, learning and student achievement.

RuTC is pleased to welcome students from many different backgrounds and abilities. The College’s primary focus is full–time students aged 16 to 19 and their preparation for university, training or the workplace.

The following courses are suitable for students with learning disabilities

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Education

Skillwise course

2 years

For students with severe learning disabilities

Age 16 to 25

Co–ordinator: Sue Byrne

Workwise course

2 years

For students with moderate learning disabilities

Age 16 to 21

Co–ordinator: Nuala Orton

Further Education Award (FEA)

1 year

For school leavers

Age 16+

Helping students get ready for a job

Foundation Training Entry 2 (FTE)

1 year

For school leavers with a moderate learning disability or problems with their behaviour or emotions

Aged 16 to 18 or students who have completed an FEA

Contact detailsEgerton Road, Twickenham, TW2 7SJ

Tel: 020 8607 8000

Web site: www.rutc.ac.uk

South Thames College

South Thames College welcomes people with disabilities, learning difficulties and medical conditions. You can contact Gail Walmsley who is Head of Service Learner Support on either 020 8918 7777 (voice) or 020 8918 7372 (text–phone) for more information.

The College runs a Skills for Living Course which includes cooking, out in the community, travel training, dance and drama modules. There is one–on–one support available where necessary.

Contact details71 Tooting High Street, London SW17 0TQ

Tel: 020 8918 7301


Web site: www.south–thames.ac.uk

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Education

West Thames College

West Thames College is a vibrant and successful college. Currently the Isleworth campus is being transformed to provide state–of–the–art learning facilities, with their first building already opened. This boasts an airy new atrium glass building which includes a new canteen, library, gym, sports hall, theatre and many more exciting things.

Students and visitors alike comment on West Thames College’s welcoming, safe and friendly atmosphere. It is the perfect place for you to meet lots of different people from different backgrounds, not just from London but from all over the world. The college is conveniently located in West London in the Borough of Hounslow with good transport links.

Open Days

Go along to one of their Open Days to find out more about the college and their courses, take a tour of their brand new facilities, speak to tutors, course advisers and careers advisers and apply or enrol for a course. Check their website for dates.

Contact detailsLondon Road, Isleworth, TW7 4HS

Tel: 020 8326 2000

Email: info@west–thames.ac.uk

Web site: www.west–thames.ac.uk

Notes

Mobility& Getting Around

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Mobility

Mobility6

Action for Kids

Provides mobility aids for young people up to the age of 26 years. They range from sophisticated indoor/outdoor powered wheelchairs through to walking frames or trikes – practically anything that can aid mobility that is unavailable on the NHS. The charity also offers other services for disabled young people at school or work including training, with an emphasis on employment, work experience and related outreach projects. They also provide communication aids.

Applicants are to contact: Service Delivery Manager, Family Welfare Department.

For further information contact the help line. Tel: 0845 300 0237 (local call rates).

Contact detailsAbility House, 15a Tottenham Lane, London N8 9DJ

Tel: 020 8347 8111

Web site: www.actionforkids.org

Brent and Ealing Wheelchair Service

Wheelchairs are supplied for mobility purposes from the age of 2 1/2 years upwards. They operate an open referral system where anyone can refer themselves or a family member. Assessments are completed by an occupational therapist or a physiotherapist and cover postural and pressure relief requirements as well as mobility. Ongoing assessment and

maintenance will be provided by the service. If the wheelchair is to be used solely in an educational setting, it should be supplied by the education department. To provide more choice, as an alternative to a wheelchair through the NHS, a voucher scheme is available for those wishing to make a financial contribution and purchase outside the NHS range.

Booking Info:

Clinic assessments by appointment. Domiciliary visits also carried out as appropriate, again by appointment.

Note:

Contact the service for further information. Referral form will be sent out on request to be completed and returned before they can see a client.

Contact detailsUnit 2, Phoenix Trading Estate, Bilton Road, Perivale, UB6 7DZ

Tel: 020 8997 5819


Get Kids Going

Provides specially built sports wheel chairs to encourage children and young people up to 26 years old with disabilities to do sport. Also sports training and physiotherapy and travel to sporting events. Get in touch for application form.

Contact details10 King Charles Terrace, Sovereign Close, London E1W 3HL

Tel: 020 7481 8110

Web site: www.getkidsgoing.com

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Mobility - Getting Around

Quest 88

Founded in 1988, Quest88 supplies activity based therapy products for all ages.

The main categories are:

Standing•

Walking•

Therapy•

Cycling•

Inclusive Leisure•

Contact detailsAston Street, Shifnal, TF11 8DW

Tel: 01952 463050

Web site: www.quest88.com

Whizz–Kidz

Improves the quality of life of children and young people up to 18 in the UK by providing customised mobility equipment such as powered wheelchairs and tricycles. Also provides help and advice to the children and their families and raises awareness of mobility–related issues through national campaigning.

Contact detailsElliot House, 10–12 Allington Street, London SW1E 5EH

Tel: 020 7233 6600

Web site: www.whizz–kidz.org.uk

Getting Around7

Blue Badge Scheme

The Blue Badge Scheme provides a national arrangement of parking concessions for people with severe walking difficulties who travel either as passengers or are registered blind.

A Blue Badge will make it much easier to park, and can be used free on the streets for up to three hours on any yellow line (single or double but look out for local restrictions e.g. loading bays.) It can also be used free in any parking bay and in council owned car parks.

Children qualify for a blue badge if:

they are a resident in the borough;•

they receive the higher rate of the • mobility component of the Disability Living Allowance (DLA);

they are registered blind;•

they have a permanent and substantial • disability, which means you are unable to walk or have very considerable difficulty in walking. (Your doctor may be asked to answer a series of questions to help the local authority determine whether you are eligible).

To apply you will need an application form, which you can get from your local Social Services office tel: 020 8825 8000.

When you have completed the form you should return it together with two passport–sized photographs signed on the back together with a fee of £2. You will also

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need proof of the category you are applying under e.g. the latest copy of your child’s DLA letter and proof of age e.g. a passport or birth certificate.

Children under the age of two years do not qualify because they would not normally be expected to walk independently.

If you need help completing the form ask Contact a Family or your Specialist Health Visitor to help you.

Contact detailsTel: 020 8825 8000Blue Badge Advice Line: 020 7944 2914

Web site: www.direct.gov.uk/en/DisabledPeople/MotoringAndTransport/DG_4001061

The Blue Badge map

Online version

Use Directgov’s interactive Blue Badge Map online to find Blue Badge parking bays, local council parking rules, accessible public toilets, train stations, shopmobility centres, accessible beaches and much more near you and across the UK.

The Blue Badge map can be used to find:

Blue Badge parking bays in over 100 • towns and cities across the UK;

Red Route parking bays in London; •

petrol stations and their service • facilities on major routes in the UK;

accessible public toilets in over 100 • towns and cities across the UK;

railway stations and their accessibility;•

Underground stations and their • accessibility in London;

Taxi ranks; •

Shopmobility centres;•

football stadiums and their accessibility; •

accessible beaches; •

Wheelyboat locations; •

Mobility Centres; •

locations of interest, like town halls, • hospitals, museums and tourist attractions;

parking rules for all councils in the UK. •

Contact detailsWeb site: www.bluebadge.direct.gov.uk

Paper version

This is a map of London with all the disabled bays highlighted as well as an explanation of how you may use your disabled badges. It covers the London boroughs of Kensington, Chelsea & Westminster, Camden and The City of London where there are restrictions on the usage of badges.

If you would like one, please contact the Public Information Exchange 020 7952 0456 £4.99 + postage. Or guides can also be bought from www.amazon.co.uk

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Getting Around

Computer Cab

Computer Cab plc provide wheelchair accessible black taxis throughout London. They require a Taxi Card or a Credit Card payment for immediate and advance bookings up to 3 months ahead. You can book by phone or online at their website.


Web site: www.comcablondon.co.uk

Disabled Person’s Railcard

If you have a disability that makes travelling by train difficult you might qualify for the Disabled Persons Railcard. The Railcard allows you to get a 1/3 off most rail fares throughout Great Britain. If you’re travelling with an adult companion they also can get the same discount . Cost £18 for a One Year Railcard. £48 for a Three Year Railcard. You need to give proof that you are eligible for a Railcard. You might qualify if you: have a visual impairment or a hearing impairment or have epilepsy or are in receipt of a disability–related benefit.

Contact detailsRail Travel Made Easy, PO Box 11631, Laurencekirk AB30 9AA

Tel: 0845 605 0525 or 0191 212 8103

Minicom: 0845 601 0132


Web site: www.disabledpersons–railcard.co.uk

Dial A Ride

Dial–a–Ride is a free door–to–door service for people who are unable to use public

transport. It uses mini buses which are specially designed to take wheelchairs for people with disabilities.

You can’t use it to attend hospital appointments, to travel to and from work and from local authority day centres or for school transport as there are other services available for these purposes.

You are automatically eligible for membership if you are:

a current member of Taxicard;•

in receipt of the Higher Rate Mobility • Component of Disability Living Allowance;

registered blind;•

aged 85 of over; •

in receipt of Higher Rate Attendance • Allowance;

in receipt of a War Pension Mobility • Supplement.

If you do not fulfil any of the criteria above, you may still be eligible for Dial–a–Ride but may have to provide further evidence of your mobility problems.

Contact detailsDial–a–Ride, Progress House, 5 Mandela Way, London SE1 5SS


Web site: www.tfl.gov.uk/gettingaround/3222. aspx

To join or make a bookingTel: 0845 999 1 999 or 020 7309 8900

Hours: 9am–4pm, Mon – Fri.

To check on progress of your vehicleTel: 0845 300 4717 or 020 7309 0015

Hours: 6am – midnight, seven days a week.

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Getting Around

Ealing Mencap Travel Training Project

Their team of travel trainers offer individual travel training to students with disabilities aged 11-25 years. They teach their students to travel independently from home to school or college and back. To be eligible for the service students must live in the borough of Ealing.

They work most frequently into special schools but are available to work into mainstream schools and colleges. They work with each student for as long as is necessary for them to be able to undertake their journey alone. Their experience indicates that placements can take anything from 6 weeks to 18 months. As well as learning their route they teach students how to cope if things go wrong on their journey and raise students’ community and stranger awareness. They work closely with parents or carers and schools/colleges throughout the training, ensuring everyone is informed, consulted and comfortable with what is happening.

They continue to be involved with their students when they are travelling independently, offering top up training and support if any problems arise.

Contact details173a Uxbridge Road, Hanwell W7 3TH

Tel: 020 8567 9085


Exemption from Congestion Charge

You are entitled to an exemption from Congestion charging if you are a Disabled

Badge holder. This is especially helpful to those who travel in and out of town for lots of medical appointments.

To apply for exemption contact Transport for London.


Web site: www.tfl.gov.uk

Exemption from Road Tax

Any adult or child receiving the higher rate mobility component of Disability Living Allowance should qualify for this service.

If your child is over 3 and receiving the higher rate mobility component of Disability Living Allowance and the car is used solely for his/her purposes, then the vehicle may be eligible. Contact the Benefit Enquiry Line (shown below) for people with disabilities.

Contact detailsDisability Living Allowance Unit, Warbreck House, Warbreck Hill, Blackpool, FY20YE

Tel: 0800 882200

Web site: www.direct.gov.uk

Freedom Pass

If you have an eligible disability you can travel free on London’s public transport, including National Rail with a Freedom Pass. (Currently children aged 11 years and over have to pay on the tube and National Rail and also have to pay on buses once they are 16 years.)

You can get a Freedom Pass if you:

are blind or partially sighted;•

or are profoundly or severely deaf;•

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Getting Around

or are without speech;•

or have a disability, or have suffered • an injury which makes walking more difficult;

or have no arms or have a long–term • loss of the use of both arms;

or have a learning disability that is • defined as ‘a state of arrested or incomplete development of mind which includes significant impairment of intelligence and social functioning’.

To apply for a pass contact Ealing Social services on 020 8825 8000

Contact detailsTel: 0845 275 7054 or 020 7934 9633

Hours: Mon– Fri: 9.0am – 5.0pm


Web site: www.londoncouncils.gov.uk/ freedompass

Healthcare Travel Costs Scheme

If you are on Income Support or Family Credit, you will automatically get all your hospital travel costs paid. Your claim can include public transport fares; petrol costs or taxi fares (if this is the only way you can travel). You should take your travel receipts, appointment letter or card and proof that you are receiving one of the qualifying benefits to a nominated cashier’s office to claim your reimbursement.

Note: In some hospitals, the name of the office that you need to go to may be different e.g. the General Office or the Patient Affairs Office. If you are not sure, ask reception or Patient Advice and Liaison

Services (PALS) staff where you should go. Alternatively, you can complete an HC5 form – claim travel charges and post this together with your travel receipts to the address given in the form. You can make a postal claim up to three months after your appointment has taken place. You should be able to receive payments in advance of travel to your appointment, if you wish. Please contact the hospital or PCT concerned for further information on how to do this. If you are not getting these benefits and you want to claim travel costs on low income grounds call the Health Cost Advice Line or see the NHS Low Income Scheme (LIS) at www.nhsbsa.nhs.uk

Contact detailsTel: 0845 850 1166 or 0191 232 5371

Web site: www.nhs.uk/NHSEngland/ Healthcosts/Pages/Travelcosts.aspx

London Councils – Taxicard Section

This scheme allows disabled and registered blind people to use London black cabs at a subsidised rate. A taxi card with photo ID is issued automatically on proof of receipt of the higher rate of the mobility component of Disability Living Allowance. If you don’t have the higher rate the application form also has a section which your GP can sign confirming mobility difficulties. Taxis can be booked by phone through Computer Cab or you can hire their taxis from the street (they have the red and yellow Com Cab logo on the doors).

There is a maximum number of trips you can make a year and a maximum subsidy

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Getting Around

per fare. You can apply online for a taxicard on their website. You can also book taxis by phone or online.( Taxicard’s website will automatically redirect you to Computer Cab’s website.)

Contact details59 ½ Southwark Street, London SE1 0AL

Tel: 020 7934 9791


Web site: www.taxicard.co.uk

Motability Scheme

If your child is 3 years or over and receives higher mobility component of the Disability Living Allowance you will qualify for a Motability car. This is a scheme whereby the DSS will pay your mobility benefit directly to Motability and in return you can lease a new car for the period of your benefit (usually 3 years). Depending on the model of the car that you choose there will be an additional down payment that you will have to pay. However, if you are unable to meet the costs and can demonstrate your need for help, you may be able to apply for a grant. All maintenance and servicing costs are covered for the 3 year period of the scheme. The car will also be covered by Motability’s fully comprehensive fleet insurance policy at no extra cost to you.

At the end of the 3 year period you return the car to the dealer and, if you still receive the higher mobility component of the Disability Living Allowance you can choose another car.

Contact detailsMotability Operations, City Gate House, 22 Southwark Bridge RoadLondon SE1 9HB

Tel: 0845 456 4566

Minicom: 0845 675 0009

Web site: www.motability.co.uk

Recreation & Easy Access for Disabled Youth (READY)

Assists young people with disabilities up 21 years to participate in recreational and sporting pursuits. It will make grants and donations to groups, organisations and individuals to help meet their aims. Contact Colin Smith.

They can also provide assistance to help with travel to sporting events.

Contact details46 Hillside, Banstead, Surrey SM7 1HF


Web site: www.readycharity.org

Passenger Assistance National Rail

If you would like assistance when making a journey, such as help getting on or off a train, or ramps for a wheelchair, you need to contact the train company that manages the station you are starting your journey from. (Please try and give a minimum of 24 hours notice before your journey as this will allow time for any special arrangements to be made.)

See www.nationalrail.co.uk/passenger_services/disabled_passengers. Assisted Travel contact details can be found in the “Support and Information” section of the appropriate Train Company page on this site or call National Rail Enquiries (see below) for the telephone number of the Train Company.

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Getting Around

Contact detailsNational Rail Enquiries: 0845 748 49 50 020 7068 0520

Textphone: 0845 60 50 600

Transport for London

Very useful web site with a lot of guidance for people travelling in London. Includes the journey planner for working out routes. Make sure you use the advanced options as that gives you the ability to fine tune your journey according to your child’s ability. You can indicate maximum walking time amongst other preferences.

Take a look at the Transport Accessibility section for Accessibility Guides. They have many useful guides including large print tube maps, an audio tube map, the ‘Getting Around London’ guide to accessibility, guides for people with learning disabilities and more.


Minicom: 020 7918 3015

Web site: www.tfl.gov.uk

Notes

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Getting Around

Notes

Benefits,Funding and Legal

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BenefitsandFunding

BenefitsandFunding8

As you have a child with a disability there are various benefits which can help you care for your child. Find out as soon as possible what is available. You can do this in many different ways:

• Talk to your specialist health visitor.

• Contact the Community Benefit Team

• Contact the Benefit Enquiry Line

• See online at www.direct.gov.uk

• Network with other parents.

If English is not your first language and you need help please call the Community Benefits Office. They should have a selection of leaflets on all benefit entitlements, some in other languages, to assist you.

N.B. Benefits are subject to change by government. Any rates below are as of 2010.

Contact details

Benefits Enquiry Line: 0800 882200

Textphone: 0800 243355

Hours: Mon – Fri: 8.30 am – 6.30 pm

Sat: 9.00 am – 1.00pm

Ealing Council’s Community Benefits Team

Helpline: 020 8825 8555

Hours: Mon – Fri: 10.00 am – 4.00 pm

Also see the Disabled People section of www.direct.gov.uk

Disability Living Allowance (DLA)

It is a tax–free, non–means tested benefit for people under the age of 65 who need more care than the average person because

of a learning or physical disability. Parents may think that because their child is mobile they are not entitled to DLA but this is simply not the case. A child with a learning disability or ADHD is eligible to apply and the earlier you do it the better. If your child is awarded DLA at the moderate or high rate for care you may be eligible to receive Carers Allowance. It can be a “passport” benefit to other kinds of help as well.

The basic element in your child being eligible is that they need a lot more help and care than another child of the same age. There are two components to DLA – help with personal care (low, middle and high rate) and help with getting around (lower and higher rate). You can put in a claim for the care component of DLA once your child is 3 months old. You can claim before the age of 3 months if your child is terminally ill. You cannot claim for the mobility part of DLA until your child is aged 3 years (or 5 years if they need less help). Current rates are listed below (April 2010)

Care component Weekly rate

Highest rate £71.40

Middle rate £47.80

Lowest rate £18.95

Mobility component Weekly rate

Higher rate £49.85

Lower rate £18.95

If your child gets the higher rate of mobility you have the option of using the money to get a Motability car. Please see the Motability entry on page 64.

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BenefitsandFunding

Completing DLA Forms

These are long complicated forms and not exactly easy to complete. The main reason for this is that they make you focus on the negative aspects of caring for your child with a disability. It is important to put down every little detail about your child and repeat yourself as much as necessary. It is strongly advised that you get help when filling in these forms. There are lots of different sources of help available:

The government plan to introduce a medical test to claim Disability Living Allowance from 2013. You will have to take the test whether you’re a new or existing claimant. The test will replace the current application forms.

Contact details

In addition to the contacts listed under Benefits and Funding the following contacts can help with DLA.:

Carer’s Centre: 020 8840 1566 • The carers centre have an advisor who attends the centre weekly to help with benefits advice. Call to arrange an appointment.

Contact a Family Ealing: 020 8810 8151 •

Contact a Family Southall: 020 8571 6381•

DIAL UK: 01302 310 123 • Disability Information Advice Line Telephone advice about benefits.

DIAL UK Textphone: 01302 310 123 • Please use voice announcer

You Keyworker, if you have one•

Your Educational Social Worker, if your • child attends a special school

Guidelines for completing DLA forms

Contact a Family Helpline: Tel: 0808 808 3555

Hours: Mon – Fri: 9.00am to 5.30pm.

Textphone: 0808 808 3556

Web site: www.cafamily.org.uk

They supply a free fact sheet called Child Disability Benefits and Other Sources of Help.

National Autistic Society Tel: 0845 070 4004

Web site: www.autism.org.uk

Ask for the following fact sheets:

Keeping a DLA Diary•

Tips for filling out Disability Allowance • applications forms.

You can also call them for other information sheets.

Down’s Syndrome Association Helpline Tel: 0845 230 0372


Web site: www.downs-syndrome.org.uk

National Deaf Children’s Society (NDCS) Tel: 0808 800 8880

Web site: www.ndcs.org.uk

Cerebra Tel: 0800 328 1159

Web site: www.cerebra.org.uk

What happens next?

Send off your completed forms but make sure you keep a copy as you may have to

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BenefitsandFunding

go through this process again. It is useful to have reference to the original forms (particularly if they have brought you a good result).

You will receive a letter stating the level of care and mobility you have been awarded or not, as the case may be. If you are not happy with the decision you can call the number given on the letter and ask for a fuller explanation of their decision. You can then ask them to re–consider. This means that your forms will be passed to another decision maker you can write to them with more supporting evidence if you wish. When you hear from them again, if you are not happy with the decision you have the right to appeal. Ring their number and ask for an Appeal form. This is actually quite a simple form but you must state clearly why you disagree with their decision. It is a good idea to get someone to check what you have done. If you are not happy with the outcome of the appeal you can then go to tribunal. This can be done as an oral hearing (where you actually meet a panel of people) or a paper hearing where you send in the paperwork. In either case there is a form to be completed and it is essential to present supporting evidence. This may be by way of letters from any of the professionals working with your child. Letters from health professionals are particularly well received. You also have the opportunity of writing about your child in great detail and submitting it with any other supporting letters you have managed to get. If you do decide to go to tribunal you can elect to take someone with you. Please do so, especially if this person knows your child and can support you verbally at the hearing.

Carers Allowance

If your child receives higher or middle rate Disability Living Allowance (care component) you can claim Carer’s Allowance which is currently £53.90 per week (April 2010). If you receive certain other benefits at £53.90 or more a week, Carer’s Allowance may not be paid to you as well but you may have what is called an “underlying entitlement”. Being in receipt of Carer’s Allowance or having an underlying entitlement may qualify you for the carers premium of other benefits – such as Income Support. Carer’s Allowance is regarded as income and you may have to pay tax on the amount you receive.

In order to qualify you must:

earn £100 or less a week (April 2010);•

spend at least 35 hours a week looking • after your child;

be living in the UK when you claim • Carer’s Allowance;

not be a full–time student.•

It is sensible to get someone to help you complete this form. See page 69 for a list of contacts who can help.

See the Caring for Others section of www.direct.gov.uk

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BenefitsandFunding

Income Support

This is a means tested benefit intended to bring a person’s income up to the minimum level set by the Government. It is for people, aged from 16 years up to the age they get Pension Credit, who are on a low income. If you have to attend your Jobcentre regularly, you cannot get Income Support.

You are eligible if you:

live in Great Britain;•

are aged between 16 and the age they • get Pension Credit;

have a low income;•

don’t have savings above £16,000;•

are not working or working on • average less than 16 hours a week;

are not in full time study;•

don’t get Jobseekers Allowance or • Employment and Support Allowance.

If you are on income support (or even if you do not qualify for income support) you may be entitled to help with rent, housing benefit and council tax benefit.


Ealing: 020 8258 3001

Website: www.direct.gov.uk

Child Tax Credit and Working Families Tax Credit

Child Tax Credit is an income related payment for people responsible for children, whether they are in work or not. If you have a child with a disability you may be entitled to higher child tax credit. Working Families Tax Credit is also income related. If you or your partner are working for 16 hours or more a week, you may be eligible depending on your income and family circumstances, and you may get help to pay for childcare.

Contact detailsHelpline: 0845 300 3900 or 028 9053 8192

Textphone: 0845 300 3909

Hours: Seven days a week 8.00am – 8.00pm except Christmas Day, Boxing Day and New Years Day.

See Financial Support for Parents and Children section of www.direct.gov.uk

Child Trust Fund vouchers

Since 2002, all babies have been entitled to the vouchers, which can be invested in any one of a range of Child Trust Fund accounts to provide a lump sum for the child, at age eighteen.

The government intends to reduce and then stop these payments between August 2010 and January 2011.

Contact details

Helpline: 0845 302 1470 or 01355 359002

Textphone: 0845 366 7870

Hours: 8.00am – 8.00pm seven days a week

Web site: www.childtrustfund.gov.uk

See also Family Fund Trust on page 97.

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BenefitsandFunding-Legal

Direct Payments

Direct Payments is the payment of money direct to the person with parental responsibility for the child or young person with a disability in order to purchase shorts breaks directly. It is designed to give parents more flexibility and control. Direct Payments are given instead of a service. Parents often use this money to employ someone they know. Parents cannot use the money to purchase services from the London Borough of Ealing. The money can only be used for the purpose it was intended and monitoring forms must be completed quarterly by the parent responsible. There is an organisation, Ealing Direct, who can help parents with Direct Payments and they also offer a free payroll service.

Contact detailsEaling Direct, 2nd Floor (Green Zone), Perceval House, 14–16 Uxbridge Road, Ealing W5 2HL

Tel: 020 8825 8475

Legal9

You should be aware of your child’s legal rights in relation to disability. These laws bind your statutory services – health, education and social services. They are obliged to ensure that they are acting within the law when providing services to your child. More often than not this is the case, but once in a while, if you feel you are being treated unfairly, it is worth doing a bit of homework and having a look at what the law says.

Remember that you can seek help from the organisations who provide advice via helplines.

Law for All

Law for All provide not–for–profit legal services in social welfare law in the London Boroughs of Ealing and other boroughs. They provide assistance in connection with housing, debt, welfare benefits, immigration, employment and family. They can also help with community care, education and consumer problems. They can provide anything from initial advice to representation in the highest courts.

Below is a list of places where they provide advice. They hold drop in sessions at the locations listed below. You will need to take with you proof of your income.

Contact details

Access Team: 020 8600 3100

Website: www.lawforall.org.uk

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Local sessions

ActonLaw for All Office, 191 The Vale, Acton W3 7QS

Hours: Mon, Tue, Thur and Fri 9.30am – 12.30pm and 1.30pm – 5.30pm

Brentford121B High Street, Brentford TW8 8AT

Hours: Mon, Tue, Thur and Fri: 1.30pm – 5.30pm

Ealing Quaker Meeting House, 17 Woodville Road, Ealing W5 2SE

Hours: Tue and Thur: 9.30am – 12.30pm and 1.30pm – 5.30pm

NortholtViking Community Centre, Radcliffe Way, Northolt UB5 6HW

Hours: Mon, Tue and Thur: 2pm – 5.30pm

Fri: 9.30am – 12.30pm

SouthallSouthall Day Centre, 20 Western Road, Southall UB2 5DS

Hours: Mon, Tue, Thur and Fri 9.30am – 12.30pm

West Ealing Age Concern, 135 Uxbridge Road, West Ealing W13 9AU

Contact Age Concern for an appointment

ECIL, 1 Bayham Road, West Ealing W13 0TQ

Tel: 020 8840 8573

Contact ECIL for an appointment

Salvation Army Citadel, Leeland Road, West Ealing W13 9HH

Hours: Mon, Thur and Fri: 9.30am – 12.30pm and 1.30pm – 5.30pm

Tue: 9.30am – 12.30pm

Asylum Aid

An independent, national charity providing advice and legal representation to asylum seekers and refugees in the UK. They assist people seeking asylum in the UK by giving them free legal advice and representing them in their asylum application

Contact detailsClub Union House, 253–254 Upper Street, London N1 1RY

Tel: 020 7377 5123

Web site: www.asylumaid.org.uk

Contact a Family

Contact a Family now provide an hour of free financial advice for families on the telephone on Child Trust Funds. Ask them for more information and/or to book an appointment.


E–mail: [email protected]

Web site: www.cafamily.org.uk

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Legal

Ealing Centre for Independent Living

Ealing’s Centre for Independent Living offers free welfare benefit and legal advice to people with disabilities and their families.

Sessions take place every Tue morning between 10am and 1pm at the centre.

You can book an appointment by dropping in to the centre or you can ring them or send an e–mail.

Contact details1 Bayham Road, West Ealing, W13

Tel: 020 8840 8573

Social Care Online

Social Care Online is an extensive database of social care information with everything from research briefings, to reports, government documents, journal articles and websites

This is the UK’s most complete range of information and research on all aspects of social care and social work.

Contact detailsGoldings House, 2 Hays Lane, London SE1 2HB

Tel: 020 7089 6840

Web site: www.scie–socialcareonline.org.uk

The Children’s Legal Centre (CLC)

An independent national charity concerned with law and policy affecting children and young people.

Please note that the Children’s Legal Centre does not provide advice on criminal offences or juvenile justice.

If English is not your first language help can be provided through language line.

They also produce a series of very useful publications.

Contact detailsYoung People’s Freephone Number: 0800 783 2187

CLS Direct: 0845 345 4345 (Press 3 for Education)

Child Law Advice Line: 0845 120 2948 (Advice for parents on legal issues e.g. contact and residence)


Web site: www.childrenslegalcentre.com

The Disability Law Service

The Disability Law Service (DLS) has provided high quality information and advice to disabled and deaf people for over 30 years. DLS is run by and for disabled people as an independent, national registered charity. Disabled people and their families, carers and advocates, are all welcome to get in touch with their helpline for advice.

DLS only provides advice and information in these six areas of law:

Disability Discrimination •

Consumer•

Community Care•

Further and Higher Education•

Employment•

Welfare Benefits (Greater London • Area).

Contact details39–45 Cavell Street, London E1 2BP

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Adviceline: 020 7791 9800

Minicom: 020 7791 9801



Web site: www.dls.org.uk

Equality and Human Rights Commission

The Disability Rights Commission was established in April 2000 to stop discrimination and promote equality of opportunity for disabled people. The passing of the Equality Act 2006 meant that in October 2007 the Disability Rights Commission was replaced by a new Equality and Human Rights Commission with powers across all equality law (race, sex, disability, religion and belief, sexual orientation and age). The commissions job is to promote equality and human rights, and to create a fairer Britain. They provide advice and guidance, working to implement an effective legislative framework and raising awareness of their rights.

Contact detailsArndale House, Arndale Centre Manchester M4 3AQ

Helpline: 0845 604 6610 or 0161 829 8100

Textphone: 0845 604 6620

Hours: Mon – Fri: 8:00am – 6:00pm

Email: englandhelpline@ equalityhumanrights.com

Web site: www.equalityhumanrights.com

Working Families

Free Legal Advice for Working Parents & Carers. Specifically they offer advice on:

negotiating family friendly hours;•

maternity & paternity leave;•

time off for family emergencies;•

tax credits and benefits available to • working parents;

childcare options.•

Contact details1–3 Berry Street, London EC1V 0AA

Tel: 0800 013 0313


Web site: www.workingfamilies.org.uk

Wills and Trust Funds

Making Financial Provision by Will for a child who may be unable to lead an independent life because of mental or physical disability must be approached with special care and usually involves the setting up of a Special Needs Trust. Your child may be or become dependent upon means–tested income support paid by the Benefits Agency or funding or services provided by local authority. If your child requires special care it will be means tested. Local authorities can claim some or all of their costs back. If parents disinherit special needs children to avoid this problem the will could be contested. A solution is to establish a Trust within your Wills. Provision has then been made for your special needs child however it cannot be claimed for care costs. You will need specialist advice form a Wills/Trusts specialist or solicitor. The Law Society can provide a list of names of Solicitors in your area who may be able to assist with setting up a trust – the Law Society itself cannot provide advice to the public.

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Legal

Contact details

The Inheritance Planning Company

(Wills/Trusts specialists)

Home Farm Works, Little Gaddesden, Berkhamsted, Hertfordshire HP4 1PN

Email [email protected]

Tel 01442 843939

Website: www.inheritance.uk.com

Law Society Tel: 020 7242 1222

Web site: www.lawsociety.org.uk

There are several other organisations that provide help is setting up wills and trusts specifically for families with children with disabilities. See Asylum Aid, Cerebra, Mencap and Working Families in the Other Support section and Contact A Family and ECIL in the Local Support Group Section. Check the index at the back for page numbers. Cerebra also offer a Wills and Trust grant scheme to help families with children with a brain–related condition and aged 16 and under. It is however heavily subscribed.

Notes

Local Support

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Local Support

Local Support10

3Cs Counselling Service

3Cs is a free, confidential service for families of all children with special needs, living/working in the boroughs of Ealing, Hounslow, Hammersmith & Fulham. They provide counselling at venues in Ealing, Hounslow and Brentford; all are wheelchair accessible. They offer individual, couple and family work.

What is counselling?

Counselling is a way of using planned time with a trained professional in a confidential non–judgemental, safe environment. It is an opportunity to talk and think about a wide range of feelings and issues, both past and present.

Counselling can be a source of help around the time of your child’s diagnosis, or at times of transition or change as your child gets older. Or when you feel overwhelmed and find it hard to cope and it feels hard to tell friends or relatives. Or perhaps when you need space to acknowledge you are an individual and a parent, as well as a carer.

On contacting 3Cs, you will be offered a one–hour appointment at a time and venue convenient to you, and regular sessions can then be arranged if you would like this. All counsellors follow the British Association of Counselling and Psychotherapy Code of Ethics.

Contact detailsAlexandra House, 241 High Street, Brentford, TW8 9QL

Tel: 020 8580 1027

ASSIST

Assist is a free service for Ealing residents aged 18 and over, funded by Ealing Social Services and NHS Ealing, who have or who are actively seeking a diagnosis of Asperger syndrome, their families and carers. They provide individual 1:1 support sessions with trained members of staff. The content of the sessions are decided on by the client and there is no limit to the number of sessions available.

Contact details84 Uxbridge Road, West Ealing, London W13 8RA

Tel: 020 8962 3010

Carer’s Emergency Card

Carer’s cards are designed to give family carer’s peace of mind that should they have an emergency, accident or illness, others would be made aware of their caring responsibility and be able to contact the right people to support their loved one.

The Carers Centre and Ealing Mencap can both supply a Carer’s Card.

Contact detailsCarer’s Centre: 020 8840 1566

Mencap: 080 8808 1111


Web site: www.mencap.org.uk

Carers Centre

A centre for carers where they can meet, relax, socialise, receive specialist support and advice. The centre has the following facilities:

Self service cafe, counselling service, with a separate entrance, holistic therapies 3 days

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Local Support

a week, space for special events and benefits advice.

Contact details46 South Ealing Road, London W5 4QA

Tel: 020 8840 1566

Contact a Family – Ealing

Contact a Family Ealing provides advice, support and information to families with disabled children.

They provide information on disabilities and rare disorders.

They link families together through support groups and a large database of members.

They provide advice on disability living allowance, carers allowance and other benefits.

They provide advice on housing and education; they provide free internet access to their members.

They produce factsheets and publications and a regular newsletter. They provide practical online information through their website.

They can liaise with health, social services, education and other voluntary organisations.

They can offer appointments in their office or at home.

They offer family outings during the summer and a Christmas party.

They also provide advice for parent carers interested in taking up or returning to training or employment.

Contact detailsSt Andrew’s Church Centre, Mount Park Road, Ealing W5 2RS

Tel: 020 8810 8151

Web site: www.cafamily.org.uk/ealing

Contact a Family Autism Group

Open to all parents who have a child or young person on the autistic spectrum. Call to find out when meetings are being held.

Contact detailsSt Andrew’s Church Centre, Mount Park Road, Ealing W5 2RS

Tel: 020 8810 8151

Contact a Family – Southall

Southall Contact a Family was established in 1985 to support families in the area who are caring for children with any disability or additional needs.

All their staff members speak languages relevant to the area.

They provide support and information about benefits. They help with form filling and organise parent workshops.

They bring families together to form self help and mutual support groups.

They have a weekly Carers’ Group on Tuesdays where relevant speakers are invited and lunch is provided.

Every Thursday they have a Young Mothers’ Group where mothers come to support each other, enjoy relaxation therapies and meet speakers from other voluntary and statutory organisations.

They organise an annual Carer’s Break to places like Butlin’s and Pontin’s. This is a 4 day break for the whole family.

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During the summer they arrange day trips for the whole family to theme parks, historical landmarks and seaside resorts.

Southall Contact a Family holds cultural events such as Eid, Diwali, Vaisakhi and Christmas to celebrate the cultural diversity of Southall and their members.

They publish and distribute a quarterly Newsletter detailing all their activities and events.

Contact details8–12 Lancaster Road, Southall UB1 1NW

Tel: 020 8571 6381

Web site: www.cafamily.org.uk/southall

Ealing Allergy Support Group

This group is open to all those affected by allergies and will give people the opportunity to meet others who either live with or have a child with allergies allowing them to share experiences and advice in an informal environment. Navida Sayed, who is a volunteer for the Anaphylaxis Campaign, facilitates the group and she also has a young daughter with severe food & latex allergies. Additionally Navida can also converse in Urdu, Hindi and Punjabi.

Members from the local allergy specialist teams will also attend some of the groups to offer general practical advice on managing allergies.

The group focuses on looking into ways of supporting one another as well as arranging family fun days, trips etc.



Ealing Centre for Independent Living

See entry on page 74.

Ealing Crossroads – Caring for Carers

Ealing Crossroads provide a respite service for carers in their own homes, usually for three hours once a week. Their staff are carefully selected and trained care workers who will care for the young person for 3 hours, either staying at home, or going out to access activities in the community. A care plan will be carefully devised in partnership with parents.

They also hold 2 after–school club sessions a week at the Greenford Community Centre, Oldfield Lane South, for children with a range of needs aged 11–16 years. At the club, children are able to form new friendships, develop skills for daily living and to try new activities.

Families use either the home based service, or after school club, but not both, in order to provide a service to as many families as possible.

Contact detailsHillview Surgery, 179C Bilton Road, Greenford, UB6 7HQ.

Tel: 020 8728 7000

Ealing Down Syndrome Group

A group of parents and their children that meet throughout the year to educate, share, support, encourage, laugh, cry and all those other things that come with having a child with a disability. If you would like to join in

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then use the contact details on this page to find out more.


Ealing Dyslexia Association

The first Saturday morning of every month a member of EDA will be available to talk and advise how to get support for dyslexia locally. The drop–in centre is at ECIL, 1 Bayham Road, West Ealing from 10.00am –12.00pm.

If you would like a list of specialist teachers or educational psychologists in and around the Ealing area please email your name, address and email details to [email protected].

They have an extensive resource centre where learning resources and books are available to members.

Contact details114 Grove Avenue, London W7 3ES

Adults: 020 8997 4945 (12–2pm)

Children: 020 8998 0552 / 020 8997 4945

Web site: www.ealingdyslexia.org.uk

These helplines are manned by volunteers and are not answered 24 hours a day. If they can’t take your call, please leave your name and a number and they will call you back.

Ealing Early Years Childcare and Play

Ealing Early Years Childcare and Play is a department of Ealing Council. Their role is to ensure all Ealing families have access to high quality childcare, play and out of school services.

Contact details25a Laurel Gardens, Hanwell, W7 3JG

Tel: 020 8825 8200


Web site: www.childrenscentres.org.uk

Ealing Mencap

Ealing Mencap is a campaigning and advocacy organisation that supports people with learning disabilities and their carers. They provide a range of different services including information, advocacy and support.

Contact details173 A Uxbridge Road, Hanwell, W7 3TH

Tel: 020 8567 9185

Web site: www.ealingmencap.org.uk

Ealing Parents Forum

This excellent forum was set up to give local parents a voice in planning and delivering services to children with disabilities/additional needs. It is parent led. To get on their mailing list email use the contacts below.

Please note that there are no paid workers – parent volunteers do all the work. They can’t do casework but can point parents in the right direction.

Contact detailsTel: 07749 542467


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Epilepsy Action West London

Support group for over 16s with epilepsy but parents of children with epilepsy are welcome. They meet at 7.15pm on the first Monday of every month at Ealing Town Hall, New Broadway, Ealing W5 2BY


Family Information Service

The Family Information Service (FIS) provides up–to–date information on childcare options available in the London Borough of Ealing. The FIS also provides information on a broad range of other topics including childcare funding, early years education and local support services for children and parents.

They hold details of childminders, nurseries, playgroups, creches, breakfast and after school clubs, holiday play schemes and other childcare options available in the Ealing Borough. They can help find childcare specific to your needs.

They also provide information on childcare recruitment, training opportunities and information for young people.

Disabilities

During term time, two part–time specialist information officers can provide help tailored to the needs of parents/carers of children with disabilities/additional needs. They have a direct number 020 8825 8619 and their emails are shown as follows:

[email protected]

[email protected]

Contact details25a Laurel Gardens, Hanwell, W7 3JG

Tel: 020 8825 5588

Web site: www.childrenscentres.org.uk

KIDS Ealing Young Carers Project

The Kids Ealing Young Carers Project offers support through 1–1 meetings, peer support groups, advice and advocacy and activities through the holidays. At this present time the age range is 9–17 years.

The project’s main aim is to give the ‘young carer’ time away from caring responsibilities and the opportunity to have fun!! By taking part in activities and support groups the young person will meet with other young carers who will have an understanding of what it’s like to be a young carer. 1–1 support will give the young person an opportunity to talk freely about any issues in their lives and ask for advice or advocacy.

Contact detailsSuite 44, Mill House, Windmill Place Business Centre, 2/4 Windmill Lane, Southall, UB2 4NJ

Tel: 07891 941 478 or 020 8843 2941

Local Groups that can help with translation

There are several local groups that can help with translation.

Contact a Family SouthallTel: 020 8571 6381


Contact a Family EalingTel: 020 8810 8151


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Local Support

See www.ealinghelp.org.uk for further details of groups that can help.

Me Too & Co (Richmond)

A voluntary organisation in Richmond providing play sessions for children with additional needs. Families from surrounding areas are welcome.

Play sessions on Friday mornings and Tuesday afternoons during term time. Other activities include some therapy sessions, counselling, support and advice.

Contact detailsThe CrossWay Centre, 306 Richmond Road East Twickenham TW1 2PD

Tel: 07946 646033

Web site: www.metooandco.org.uk

Parents in Touch

Parents in Touch (PiT) is a voluntary organisation run by and for parents and carers of children with disabilities that aims to address the needs of the whole family.

They formed in 2001 in response to a number of proposals around Children and Family Centres in the London Borough of Hounslow.

Contact detailsSt Denys House, Church Street, Chiswick W4 2PD

Tel: 020 8994 9602

Hours: Tue – Thur: 10.00am – 2.00pm

Web site: sites.google.com/site/parentsintouch

P.E.S.T.S

P.E.S.T.S. is a support group for under 5’s with a disability, and their families. They provide a playgroup on Tuesday and Friday mornings (term time only). As well as allowing the children to play together there are visiting speakers and therapists who work with the group.

Transport is arranged to and from P.E.S.T.S. for the families that need this service. Support is offered through advice, information and befriending. The helpline is available out of office hours. The group is drawn from all over the Borough of Ealing.

Once a term there is a Parents and Carers (adults only) evening where parents are able to hear a speaker and talk to other parents in a friendly and informal atmosphere.

P.E.S.T.S. also organises family fun days and parties.

Contact detailsP.E.S.T.S Office, Heller House Annexe, 124 Norwood Road, Southall, UB2 4DX

Tel: 020 8571 9954


Web site: www.pests-ealing.org.uk

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Local Support

Signing In Deaf Club

A club for deaf / hearing impaired children, their parents/carers and siblings offering the same opportunities and experiences as their hearing peers. They also provide support and guidance for parents. Activities include: cooking, crafts, games, BSL library, outings and fun. All leaders are BSL qualified and all volunteers use BSL. BSL is used all of the time with voice over. Healthy eating ethos, fruit and drinks available every session.

Contact detailsSt Mary’s Church Hall, Greenford Avenue, Hanwell W7 3QP

Tel: 07724 192 404


Scope

The London Community Team offers advice and information for families who have a child with Cerebral Palsy. The service includes Early Years Support, Advocacy, Education and Statement Support, Housing.

Scope is a national disability organisation for people with CP and campaigning for disability equality for all. They have many departments including Press and PR, Research and Public Policy and Marketing and Campaigns.


Web site: www.scope.org.uk

Support for Living

Support for Living is a leading provider of personal support and social care.

Their vision is that people lead a life which is truly their own.

They aim to make this happen by providing a diverse range of responsive, valued, excellent services for people with learning disabilities and people with mental health needs, so individuals choose us to support them in achieving their aims in life, and in having maximum independence and control.

They do this through active and meaningful communication with, and involvement of, those who use their services, through nurturing and developing their staff, and through ensuring their financial stability.

They always seek appropriate opportunities to grow, develop and diversify.

There are several projects run by Support for Living, including:

Breakaway•

My Time•

Treat Me Right!•

Out and About•

Contact details154–156 Broadway, London W13 0TL

Tel: 020 8354 5900


Web site: www.supportforliving.org.uk

Sure Start Acton

Family support service for families with children under 4 years old living on the South Acton Estate, Acton Vale Estate

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Local Support

or Rufford and Moreton Towers. Groups include Bumps and Babies group, Stay and Play group, MoveStart, keep fit for mothers, family book club, toy library, health groups, talkstart, ante–natal and postnatal groups, breastfeeding support group, smoking cessation, infant massage and yoga and parenting classes.

Contact detailsCastle Close, South Acton, Ealing, W3 8RX

Tel: 020 993 4049

Web site: www.surestartacton.org.uk (coming soon)

Sure Start South Northolt

Family support service for families with children under 4 years living in the South Northolt area. They provide services and additional staff and resources to:

Improve family health•

Improve children’s ability to learn•

Strengthen families and communities•

Improve children’s social and • emotional development through better access to:

Family support•

Advice on nurturing•

Health services•

Early learning opportunities•

They also have a sensory room.

Contact detailsSure Start Drop In Centre, 1 Academy Gardens, Northolt UB5 5QN

Tel: 020 8842 0220

Three Wings Trust

Supports children and young people with additional needs (0 – 19 years), their siblings, carers and family members in the local area. Services include information and advice, a resource library, parent support group, newsletters and counselling for children and young people.

Contact detailsCroft Centre, 20 Windham Road, Richmond TW9 2HP

Tel: 020 8831 6175

E–mail: [email protected]

Web site: www.threewingstrust.org

Twenty One & Co

21 & Co is a support group in Surrey and South West London dedicated to giving support to families who have children with Down Syndrome.

Their members meet regularly to share their experiences and give each other advice, support and friendship, whilst they offer information and knowledge about Down Syndrome.


Web site: www.21andco.org.uk

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Notes

Other Support

Page 88

Other Support

Other Support11

Bereavement

Child Bereavement Charity

The Child Bereavement Charity provides support to families and professionals when a child dies or when a child is bereaved of someone important in their lives. Services offered include a support and information line, interactive website with a families and professionals forum, resources and professionals training programme.

Contact detailsAston House, West Wycombe, High Wycombe HP14 3AG

Tel: 01494 446648


Web site: www.childbereavement.org.uk

The Compassionate Friends (TCF)

The Compassionate Friends (TCF) is an organisation of bereaved parents and their families offering understanding, support and encouragement to others after the death of a child or children. They also offer support, advice and information to other relatives, friends and professionals who are helping the family.

Services include:

A Helpline •

Local group meetings •

One–To–One visiting •

Telephone and/or letter contact •

A range of publications •

A Postal Library •

Retreats and gatherings. •

Contact detailsHelpline: 0845 1 23 23 04

Hours: 10.00am – 4.00pm and 7.00pm –10.00pm

The line is always answered by a bereaved parent


Web site: www.tcf.org.uk

Winston’s Wish

Winston’s Wish helps families that have suffered a bereavement to deal with the many aspects of their loss.

Their website has lots of practical advice and guidance.

Contact detailsWestmoreland House, 80-86 Bath Road, Cheltenham GL53 7JT

Tel: 08452 03 04 05


Web site: www.winstonswish.org.uk

Clothing & Footwear

Rackety’s

Indoor and outdoor clothes for children with special needs. Also swim wear and some toys. “Special needs clothing that blends in with your regular wardrobe and works with you not against you. Clothing for disabled adults and disabled kids to enjoy!”

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Other Support

Contact detailsUnit 16, Town Yard Business Park, Station Street, Leek, ST13 8BF

Tel: 01538 381 430


Web site: www.disabled–clothing.co.uk

Computers / IT

4Mation

Educational software. Very good section on software for SEN. They can provide advice about the correct software for your child and technical back up if you experience problems.

Contact detailsFirst Floor, 63 Boutport Street, Barnstaple, EX31 1HG

Tel: 01271 325 353


Web site: www.4Mation.co.uk

Ability Hub

Assistive Technology for people with a disability who find operating a computer difficult, maybe even impossible. The web site will direct you to adaptive equipment and alternative methods available for accessing computers

Contact detailsTel: 00 1 802 775 1993 (USA)


Web site: www.abilityhub.com

AbilityNET

A national charity offering advice and support to people with disabilities, professionals and employers on all computers related issues. Including helping disabled adults and children use computers and the internet by adapting and adjusting their technology.

Contact detailsAbilityNET Thames Valley c/o Microsoft Ltd, Microsoft Campus, Thames Valley Park, Reading, RG6 1WG

Tel: 0800 269 545 or 01926 312 847

Web site: www.abilitynet.org.uk

Closing the Gap

Changing lives with assistive technology resources for children and adults with special needs.

A very comprehensive site full of news, developments, hardware and software.

Contact detailsWeb site: www.closingthegap.com

Notes

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Other Support

Crick Software

Makers & suppliers of easy to use reading and writing software for children of all abilities and children/people with special needs. They cater for learners of all abilities, including those with special needs such as learning difficulties, dyslexia and physical disabilities.

Contact detailsCrick House, Broaden Close, Moulton Park, Northampton, NN3 6LF

Tel: 01604 671 691


Web site: www.cricksoftware.com

Inclusive Technology

Education software, switches, computer access devices, simple communication aids and assistive technology for learners with special needs.

Contact detailsRiverside Court, Huddersfield Road, Delph, Oldham, OL3 5FZ

Tel: 01457 819790


Web site: www.inclusive.co.uk

Keytools – Making IT easier.

Keytools specialises in making computers more accessible to a wide range of users including people with disabilities, young children and educational users.

They have a very useful page on their site called ‘Shop by need’ which helps you find the best solutions.



Web site: www.keytools.co.uk

Nanogames

Nanogames has adapted 30 fun games (arcade games, memory games, logic games and puzzle games).

Using the standard settings, all Nanogames will play like typical computer games. Experienced gamers without disabilities will be able to play them comfortably.

However, unlike most computer games, Nanogames are extremely flexible and if the player needs to use alternative controllers, or needs the games to be much slower or easier to play then Nanogames can do that too – easily.

Contact detailsTel: 0064 21 273 3611 (New Zealand)

Web site: www.arcess.com

RJ Cooper and Associates

Makers of software and hardware products for children/people with special needs. American site with a very broad range of equipment, and provides online technical support. Worth a look.

Contact detailsEmail: [email protected]

Web site: www.rjcooper.com

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Other Support

Counselling

3Cs Counselling Service


Aspect

An organisation dedicated to furthering recognition & understanding of Autism Spectrum Disorders.

They provide training, INSET days and counselling.

Contact detailsPO Box 27566, London SE4 2XJ

Tel: 07981 323 015


Web site: www.aspectcounsel.co.uk

Respond

Supports children and people with learning difficulties who have suffered trauma and/or abuse. Support is extended to their families, carers and professionals who work with them.

Their website is very informative and has Easy Read for people who find reading difficult. (Large fonts, simpler words with pictures). CAUTION – some pictures may be upsetting.

Contact details3rd Floor, 24–32 Stephenson Way, London NW1 2HD

Tel: 0808 808 0700


Web site: www.respond.org.uk

Equipment & Aids

Crelling Harnesses for the Disabled

Suppliers of belts and harnesses for children and adults with disabilities.

Contact details12 Crescent East, Cleveleys, FY5 3LJ

Tel: 01253 852298


Web site: www.crelling.com

Demand

This company can design and manufacture equipment which will improve the quality of life for disabled individuals. Their work is not dependent on the person’s ability to pay.

They can also make adjustments to existing equipment to improve the life of the person with the disability and their carer.



Web site: www.demand.org.uk

Fledglings

Fledglings is a not–for–profit organisation which helps parents and carers of a child with a disability of any kind to find simple, affordable solutions to practical problems.

Contact detailsWendens Court, Station Approach, Saffron Walden, Essex CB11 4LB

Tel: 0845 458 1124


Web site: www.fledglings.org.uk

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Other Support

MERU

This company can custom make products for children with disabilities which are not available commercially.

The main areas are:

Communication and control•

Lifestyle assistance•

Information and advice•

Early years mobility.•

Contact detailsUnit 2, Eclipse Estate, 30 West Hill, Epsom KT19 8JD


Web site: www.meru.org.uk

Information & Support

Action for Sick Children

A Children’s healthcare charity, which provides information and publications for families with sick children on issues such as hospital care and pain.

Contact details32b Buxton Road, High Lane, Stockport SK6 8BH

Tel: 01663 763 004

Web site: www.actionforsickchildren.org

Advice Guard (Citizen’s Advice Bureau)

Advice guide is a public information website produced by Citizens Advice which, provides information and on line help on your rights, including benefits, housing, family matters

and employment, and on debt, consumer and legal issues.

Contact detailsCitizens Advice Bureaux, Middleton House, 115–123 Pentonville Road, London N1 9LZ

Web site: www.adviceguide.org.uk

Art Spider

A website for disability arts aimed at young people run by Mencap. Activities include art galleries, films, music and links to art organisations.

Contact detailsArt Spider Team, Mencap, Burrell Road, Haywards Heath, RH16 1TW

Web site: www.artspider.org.uk

Askability

This is a site presented entirely in symbols. The idea came from the Children’s Society to provide children with information on current affairs in an understandable format. In addition the site enables children to express their views through the central forum.

Contact details625 Warwick Road, Solihull, B91 1AP

Tel: 0121 709 2609


Web site: www.askability.org.uk

ASSISTSee entry on page 78.

Asylum AidSee entry on page 73.

Page 93

Other Support

The Big Tree

An amazing portal with fantastic links to all sorts of other sites with a ‘disability’ focus. This site has been created by the Rix Centre at the University of East London. There are links to the research being carried out at the centre and also some excellent learning resources. Try the Infinite Wheel.

Contact detailsThe Rix Centre, University of East London Docklands Campus, University Way, London E16 2RD

Tel: 020 8223 7561


Web site: www.thebigtree.org

The Care Quality Commission

The Care Quality Commission (CQS) is the independent regulator of health and social care in England. CQS regulate care provided by the NHS, local authorities, private companies and voluntary organisations. They aim to make sure better care is provided for everyone – in hospitals, care homes and people’s own homes.

Contact detailsNational Correspondence, Citygate, Gallowgate, Newcastle upon Tyne, NE1 4PA

Tel: 03000 616 161

Web site: www.cqc.org.uk

Carers UK

Carers UK is the voice of carers. The site has a lot of interesting information about the role of carers and the problems they encounter.

Carers UK improves carers lives by:

campaigning for the changes that make • a real difference to carers;

providing information and advice to • carers about their rights and how to get support;

mobilising carers and supporters to • influence decision–making;

gathering hard evidence about what • needs to change;

transforming the understanding of • caring so that carers are valued and not discriminated against.


Web site: www.carersuk.org

Notes

Page 94

Other Support

Cerebra (Positively Different)

A charity that funds research on brain conditions and provides support to parents, carers and professionals. Examples of ways they help include a quarterly newsletter, postal lending library of books and sensory equipment and an enquiry service. Does have a grant scheme for equipment for children aged 16 or under who have a brain injury, neurological disorder, mental disability or developmental problem. Equipment considered must not be available through the NHS or social services and enhance the child’s quality of life. They are also continuing their Wills and Trust Voucher Scheme into 2010 for children as described above. The voucher is worth up to £350. Cerebra also run a Speech Therapy Voucher Scheme for children who have not received group or individual speech therapy in the last 6 months. The voucher is currently worth £500.

Contact detailsSecond Floor Offices, The Lyric Building, King Street, Carmarthan SA31 1BD

Parent Support Helpline 0800 328 1159


Web site: www.cerebra.org.uk

The Challenging Behaviour Foundation

The Challenging Behaviour Foundation wants to see children and adults with severe learning disabilities, who are described as having challenging behaviour, having the same life opportunities as everyone else,

including home life, education, employment and leisure.

Contact detailsThe Old Courthouse, New Road Avenue, Chatham, Kent ME4 6BE

Tel: 0845 602 7885


Web site: www.thecbf.org.uk

Children’s Commissioner

The Children’s Commissioner is an independent organisation that was set up by parliament as part of the Children Act 2004.

They look after the interests and act as the voice of children and young people. They do this by:

exposing issues informed by children • and young people themselves;

provoking and facilitating quality • discussion and debate;

influencing the public, parents, carers • and politicians through effective advocacy, particularly through the media;

informing and scrutinising government • policy;

holding organisations to account; •

celebrating and promoting the • participation of children and young people.

The Office of the Children’s Commissioner is focusing on eight themes:

Children and young people in society•

Tackling discrimination•

Youth justice and antisocial behaviour•

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Other Support

Bullying•

Asylum seeking and immigration•

Vulnerable children•

Disabled children and young people•

The health and wellbeing of children • and young people.

The Commissioner has a very broad area of responsibility but in carrying out his work, the Commissioner has to work within the framework of the five outcomes described in the Government’s Green Paper, Every Child Matters and have regard to the United Nations Convention on the Rights of the Child.

Contact details1London Bridge, London SE1 9BG

Tel: 0844 800 9113


Web site: www.childrenscommissioner.gov.uk

The Children’s Legal Centre (CLC)

An independent national charity concerned with law and policy affecting children and young people.

Please note that the Children’s Legal Centre does not provide advice on criminal offences or juvenile justice.

If English is not your first language help can be provided through language line. They also produce a series of very useful publications.

Contact detailsWivenhoe Park, Colchester, CO4 3SQ

Tel: 01206 877 910



Web site: www.childrenslegalcentre.com

Young People’s Freephone Number: 0800 783 2187

Child Law Advice Line: 08088 020 008

The Children’s Trust (Tadworth)

Short Breaks for children aged 0–18 with profound and multiple disabilities. As the service is nurse led children with a tracheostomy and/or enteral feeding can be included.

Children from a wide geographical area can apply particularly when there is little other respite available in their area.

Referrals may be made by a professional or a family member. It is well worth contacting the trust and discussing your child’s needs.

Contact detailsTadworth Court, Tadworth, KT20 5RU

Tel: 01737 365 000


Web site: www.thechildrenstrust.org.uk

Choice and Voice

A website for people with disabilities run by people with disabilities. Enables you to make new friends around the world.

Contact detailsFreeways Trust, Leigh Court Daycentre, Pill Road, Abbots Leigh, BS8 3RA


Web site: www.choiceandvoice.co.uk

Page 96

Other Support

Choice Support

Provides a huge variety of services for adults with learning disabilities. Including personalisation, housing, training and supported living.

Contact details100 Westminster Bridge Road, London SE1 7XA

Tel: 020 7261 4100


Web site: www.choicesupport.org.uk

Christians Against Poverty

A national UK counselling charity that works with churches to help people out of debt and poverty. CAP Ealing supports people in different ways including offering a sustainable solution to their financial difficulties, attending monthly prayer meetings to pray for CAP clients, supporting other CAP activities, including leaflet drops to raise awareness about CAP Ealing.

Contact details Jubilee Mill, North Street, Bradford, BD1 4EW

Tel: 01274 760720

Web site: www.capuk.org

Concept Training

Offer a wide range of training programmes for anyone working or living with Children, Young People and Adults with Special Needs, including:

Autistic Spectrum Disorder•

Complex Needs•

Learning Disability•

Sensory Impairment•

Early Years to Older People•

Challenging Behaviour•

Attention Deficit Hyperactivity • Disorder

Behavioural, Emotional and Social • Difficulties.

Contact details15 Beach Street, Morecambe LA4 6BT

Tel: 01524 832 828

Email: info@concept–training.co.uk

Web site: www.concept–training.co.uk

Dimensions

This organisation helps people with learning difficulties live the life they want. They run projects all over the UK.

Contact details9 – 10 Commerce Park, Brunel Road, Theale RG7 4AB

Tel: 0118 929 7900

Email: info@dimensions–uk.org

Web site: www.dimensions–uk.org

Disability Alliance

Disability Alliance (DA), publishers of the Disability Rights Handbook, is regarded as the leading authority on social security benefits for disabled people.

Disability Alliance is committed to breaking the link between poverty and disability by providing information to disabled people about their entitlements and campaigning for improvements to the social security system and for increases in disability benefits so that they better reflect the real costs of disability.

Page 97

Other Support

Contact detailsUniversal House, 88–94 Wentworth Street, London E1 7SA

Tel: 020 7247 8776


Web site: www.disabilityalliance.org

Disability Now

Disability Now (DN) online, is a website for the UK’s biggest selling disability related newspaper. They publish a fortnightly publication.

Contact details6 Market Road, London N7 9PW

Tel: 020 7619 7323

Minicom: 020 7619 7332


Web site: www.disabilitynow.org.uk

Family Fund Trust

The Family Fund Trust champion an inclusive society where families with severely disabled or seriously ill children have choices and the opportunity to enjoy ordinary life. They help families of disabled or seriously ill children under 16 years by giving grants related to the care of the child including holidays, leisure, laundry equipment, driving lessons and lots more.

A wide range of information is available, on their website or printed on request, which includes benefits, holidays, transport, and more. If your income is £23,000 or less they may be able to help.

Apply by phone or visit their website.

Contact details4 Alpha Court, Monks Cross Drive, York YO32 9WN

Tel: 0845 130 4542 01904 621115

Textphone: 01904 658085


Web site: www.familyfund.org.uk

Genetic Interest Group

The Genetic Interest Group (GIG) is a national alliance of organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders.

Contact detailsUnit 4D, Leroy House, 436 Essex Road, London N1 3QP

Tel: 020 7704 3141


Web site: www.gig.org.uk

Housing Options

Housing advice for people with disabilities, their families and supporters. This service is for over 17s.

Contact detailsStanelaw House, Sutton Lane, Sutton, Witney, OX29 5RY

Tel: 0845 456 1497


Web site: www.housingoptions.org.uk

Page 98

Other Support

Interconnections

Interconnections was established in 1995 by Peter Limbrick to support all practitioners and managers, from nursery nurses to neurologists and from health visitors to head teachers, who work with babies, children and young people (0 – 25 years) who have ongoing special needs for whatever reasons.

As a multi–disciplinary resource, the icwhatsnew.com website is designed for everyone in statutory, voluntary and private agencies and will also be of interest to young people with disabilities / special needs, family members and carers.

Peter says “I think the best thing is to make your readers aware of the free Interconnections Electronic Bulletin.” You can either read it on line or contact him for a copy.

Contact detailsParks Farm, Clifford, HR3 5HH

Tel: 01497 831550


Web site: www.icwhatsnew.com/index.htm

L’Arche Communities

L’Arche is a family of 130 Communities in 30 countries all round the world. In L’Arche Communities people with learning disabilities and their assistants live and work together.

L’Arche means the Ark in French. L’Arche has nine Communities in the UK. Another 2 are being planned. They are all ordinary houses and real homes. More than 100 people with learning disabilities live there and another 100 assistants live with them.

L’Arche is based on Christian principles, welcoming people of all faiths and none. Men and women with learning disabilities aged 18 and over are at their heart. They are people with a wide range of disabilities, independence and needs, from varied backgrounds and of different ages.

Contact details10 Briggate, Silsden, Keighley, BD20 9JT

Tel: 01535 656186


Web site: www.larche.org.uk

Livability

Provide a range of services for people with disabilities including respite and nursing care, independent living, housing, holidays, colleges.

They were formerly known as Grooms Shaftesbury.

Contact details50 Scrutton Street, London EC2A 4XQ

Tel: 020 7452 2000


Web site: www.livability.org.uk

MacIntyre

MacIntyre is a national charity providing support to children and adults with learning disabilities throughout the UK.

Contact details602 South Seventh Street, Milton Keynes, MK9 2JA

Tel: 01908 230 100


Web site: www.macintyrecharity.org

Page 99

Other Support

Mencap

A support organisation for people with a learning disability. They offer advice, run residential / day care services, support people with a learning disability and their families and lobby government to change laws to allow people with a learning disability to have more control over their lives.

Contact details123 Golden Lane, London EC14 0RT

Tel: 0808 808 1111


Web site: www.mencap.org.uk

Wills and Trust TeamTel: 020 7696 6925


National Centre for Independent Living

A support, advice and consultancy service for disabled people. Information on independent living, direct payments and individual budgets.

Contact detailsUnit 3.40, Canterbury Court, 1-3 Brixton Road London SW9 6DE

Tel: 020 7587 1663


Web site: www.ncil.org.uk

National Children’s Bureau

A charity which aims to promote the interests of all children and young people. Does some very good work with children with disabilities.

NCB offers essential support to those working with and on behalf of children, their families and carers.

Contact details8 Wakley Street, London EC1V 7QE

Tel: 020 7843 6000


Web site: www.ncb.org.uk

National Family Carer Network

The Network gives a national focal point for the issues affecting families that include an adult with a learning disability. As well as regular updates by email and newsletter, the network hosts conferences across the country.

Contact details5/6 Brook Office Park, Folly Brook Road, Bristol BS16 7FL

Tel: 01883 722 311


Web site: www.familycarers.org.uk

Notes

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Other Support

NHS Direct – 0845 4647

NHS Direct operates a 24–hour nurse advice and health information service, providing confidential information on:

what to do if you or your family are • feeling ill;

particular health conditions;•

local healthcare services, such as • doctors, dentists or late night opening pharmacies;

self help and support organisations;•

Initial Assessment NHS Stress Line.•

Please Note: You can contact them for out of hours pharmacy services in your area.


Web site: www.nhsdirect.nhs.uk

NSPCC (National Society for the Prevention of Cruelty to Children)

The NSPCC Helpline is a free, 24–hour helpline that provides support, information and advice on a range of child welfare issues and to anyone concerned about a child at risk of abuse. Callers can remain anonymous. The NSPCC Helpline can provide specialist advice on child welfare or safeguarding issues. Where children are at risk of harm they will seek to refer the details to Children’s Services and/or the Police to ensure the safety of the child.

Contact detailsWeston House, 42 Curtain Road, London EC2A 3NH

Helpline: 0808 800 5000 (24hrs all year)

Asian helpline: 0800 096 7719 Mon – Fri: 10.00am – 6.00pm


Web site: www.nspcc.org.uk

One for Us

A website for people who have learning difficulties. Enables them to be proud of their achievements and to learn how to take more control over their own lives. The website offers advice on Advocacy, Heath, Housing, Leisure, Money, Relationships, Rights and Work.


Web site: www.oneforus.com

Parent Line Plus

A website for parents who are concerned about bullying in their child’s life, both outside and within school. They are there to help you support your child build healthy friendships and be safe at every stage of their life. Free parenting advice and tips

The Helpline is open 24 hours a day and is free. Advises on bullying, abuse, hard to handle behaviour, prejudice, money worries, living with disabilities, depression etc.

Contact details520 Highgate Studios, 53–79 Highgate Road, London NW5 1TL

Tel: 0808 800 2222

Web site: www.parentlineplus.org.uk

Page 101

Other Support

Parent to Parent

This is a befriending service offered to families who have recently discovered that their child has a disability. Trained befrienders are parents of children with a wide range of disabilities such as Down Syndrome, ADHD, Autism, Visual Impairments etc.

Telephone Anna Walker if you want more information on the service or you can e–mail her.



People First

People First is an organisation run by and for people with learning difficulties to raise awareness of and campaign for the rights of people with learning difficulties and to support self advocacy groups across the country.

Contact detailsUnit 3.46 Canterbury Court, Kennington Park Business Centre, 1–3 Brixton Road, London SW9 6DE

Tel: 020 7820 6655


Web site: www.peoplefirstltd.com

PHAB

Phab creates opportunities for children and adults of all abilities to enjoy life together by:

supporting a network of nearly 200 • clubs throughout England and Wales for all age ranges, offering activities and holidays which members can share and enjoy together;

promoting and encouraging the self • confidence and independence of young people of all abilities through a range of diverse projects;

funding special short breaks – inclusive • experiences for disabled and non–disabled children and young people to share in a full range of adventurous outdoor activities at fully accessible activity centres offering specialist tuition;

providing specially equipped and fully • accessible holiday units at an award winning beach site in Dorset at very affordable weekly rates;

organising national and regional • events for Phab club members and supporters to enjoy together and to promote the Phab philosophy of inclusion.

Contact detailsSummit House, 50 Wandle Road, Croydon, CR0 1DF

Tel: 020 8667 9443


Web site: www.phab.org.uk

Page 102

Other Support

Princess Royal Trust for Carers

The Trust currently provides quality information, advice and support services to over 400,000 carers, including approximately 25,000 young carers. In addition, The Trust also acts independently in the interests of carers through:

Research, development and • consultation

Influence on national, regional and • local policy

Partnerships with other national • organisations

Information through their interactive • websites, providing advice and access to support groups.

Contact detailsUnit 14, Bourne Court, Southend Road, Woodford Green, IG8 8HD

Tel: 0844 800 4361


Web site: www.carers.org

The Prince’s Trust

Offer practical support, training, mentoring and financial assistance to young people aged 14 – 30 years, to help them succeed and transform their lives. The types of programmes they offer include working on a community project; a 6 day residential music course; financial support to get into work, training or education; and support to set up your own business.

Contact details18 Park Square East, London NW1 4LH

Tel: 0207 543 1400

Email: webinfolo@princes–trust.org.uk

Web site: www.princes–trust.org.uk

Remploy

Remploy helps to find work for disabled people. They work in partnership with Jobcentre Plus and some of the UK’s top employers such as BT, Asda and Tesco.

Contact details18c Meridian East, Leicester, LE19 1WZ

Tel: 0845 155 2700


Web site: www.remploy.co.uk

SEBDA

SEBDA campaigns for better services for children and young people experiencing social, emotional and behavioural difficulties and better support for those who work with them. SEBDA provides its growing number of members with up–to–date information, support and professional development through its magazine/newsletter, research journal, networking and web–site. Please note: SEBDA does not have the staffing or other resources to provide a direct support or advice service to parents or to young people.

Contact detailsRoom 211, The Triangle, Exchange Square, Manchester M4 3TR

Tel: 0161 240 2418


Web site: www.sebda.org

Page 103

Other Support

Sibs

Sibs is the UK charity for people who grow up with a disabled brother or sister. They support siblings who are growing up with or who have grown up with a brother or sister with any disability, long term chronic illness, or life limiting condition.

Sibs provides fact sheets, workshops and conferences, plus training on supporting siblings.

Contact detailsMeadowfield, Oxenhope BD22 9JD

Tel: 01535 645453

Web site: www.sibs.org.uk

Social Care Online


A Special Child in the Family

A site put together by the mother of 2 boys with special needs. Lots of sound advice and practical guidance.

Contact detailsWeb site: www.specialchild.co.uk

Special Kids in the UK

Providing support, information and contact between families of children with any special need.

Good newsletter and links section

Contact detailsPO Box 1225, Enfield, EN1 9TH.

Web site: www.specialkidsintheuk.org

Special Olympics Great Britain

You may have thought that Special Olympics was just a few days of games once or twice a year – In reality, the training for competition never stops and is as important as the competition itself. Special Olympics is a lifetime of learning through sport and involves individuals with a learning disability of all ages and ability levels – from low motor abilities to highly–skilled athletes.

Visit their website to find out more.

Contact detailsCorinthian House, 6–8 Great Eastern Street, London EC2A 3NT

Tel: 020 7247 8891


Web site: www.sogb.org.uk

TreeHouse

TreeHouse is a national charity for autism education. They were founded in 1997 by parents of children with autism and today they campaign for better autism education nationally and run a school for children and young people with autism. TreeHouse undertake policy and parliamentary work and research to ensure autism is a national priority, they support parents to campaign locally and offers training and consultancy on autism.

Contact detailsThe Pears National Centre for Autism Education, Woodside Avenue, London N10 3JA

Tel: 020 8815 5444


Web site: www.treehouse.org.uk

Page 104

Other Support

Working Families

Working Families is a UK organisation which is all about work life balance. They help and give a voice to working parents and carers, whilst also helping employers create workplaces which encourage work–life balance for everyone.

Free Legal Advice for Working Parents & Carers. Specifically they offer advice on:

negotiating family friendly hours;•

maternity & paternity leave;•

time off for family emergencies;•

tax credits and benefits available to • working parents;

childcare options.•

Contact details1–3 Berry Street, London EC1V 0AA

Tel: 0800 013 0313


Web site: www.workingfamilies.org.uk

Young Ealing

The website for young people who live, work or study anywhere in Ealing. There is a section on most pages for ‘Looked after young people’ you’ll find a lot of relevant stuff there if you have a disability.

Contact detailsWeb site: www.youngealing.co.uk

Young Foundations

Young Foundations provides a range of services for children and young people – with or without learning disabilities –

through residential care, transition and fostering.

Contact details1a Enterprise House, Valley Street North, Darlington, DL1 1GY

Tel: 01325 366 365


Web site: www.youngfoundations.com

Young Mencap

The Young Mencap website is a fun and friendly website for 13 – 19 year olds. Mencap’s children and young people team worked with young people to make this a fun and safe website where they can go for help and advice, learn new life skills and share their experiences.


Web site: young.mencap.org.uk

Young Minds

Committed to improving the mental health of all children. Services include the Parents’ Information Service, a free confidential telephone helpline offering information and advice to any adult with concerns about the mental health of a child or young person. There are various magazines and publications available. They also offer consultancy, seminars and training.

Contact details48–50 St John Street, London EC1M 4DG

Helpline: 0808 802 5544


Web site: www.youngminds.org.uk

Page 105

Other Support

Learning / Education

4MationSee entry on page 89.

ACE (The Advisory Centre for Education)

ACE is an independent registered charity which offers information and advice about education in England and Wales, for school age children.

You can use their free telephone service to ask questions on a range of topics such as:

Exclusion from school•

Bullying•

Special Educational Needs•

School Admissions Appeals.•

Tip: Use the General Advice line for all questions other than those related to exclusions. There is a dedicated line for exclusions. They also run training seminars for professionals and have a very comprehensive publications section.

Some publications may be downloaded for a small cost, can be purchased on line or by post.

Contact details1C Aberdeen Studios, 22 Highbury Grove, London N5 2DQ

General Advice Line: 0808 800 5793

Exclusion Advice Line: 0808 800 0327

Exclusion Info Line: 020 7704 9822

Email: enquiries@ace–ed.org.uk

Web site: www.ace–ed.org.uk

Audiblox

Audiblox is a multisensory cognitive enhancement program, aimed at the development of foundational learning skills such as concentration, perception, memory, and logical thought. It improves performance in reading, spelling, writing and maths. Audiblox is adaptable for the gifted and less gifted, can be used at home and in school, and is applicable for all age groups. It can develop the learning skills of the high school learner to a very high degree, while it can also be used to prepare the preschool child for reading and learning from as early as three years of age. Audiblox is effective for a variety of learning difficulties including dyslexia and dysgraphia.

Contact detailsWeb site: www.audiblox2000.com

Notes

Page 106

Other Support

Cambian Education

Specialist residential education for children with Autism and Aspergers.

They are actually the UK’s largest provider of specialist residential education and care for young people with autism, Asperger syndrome and other associated complex needs. With over 30 years’ experience, they have the trust of over 70 Local Authorities and more than 5000 parents. Their approach is outcome–focused and centred on effective partnerships with families and carers. With this foundation, their students can attain the education, living skills and confidence required for a fulfilling and productive life.



Web site: www.cambianeducation.com

DC Educational Service

Provides specialist testing, consultancy, counselling and other services to establish a child’s problems and how they may be met.

Contact details6 Lower Grosvenor Place, Victoria, London SW1W 0EN

Tel: 020 7834 0033


Web site: www.dcedservices.com

Do2Learn

Games, songs, communication cards, print resources and information for special needs.


Web site: www. do2learn.com

Equals

EQUALS is committed to improving the lives of children and young people with learning difficulties and disabilities through supporting high quality education.

Lots of information about workshops, conferences and good practice around effective education of children with special needs.

Contact detailsWeb site: www.equals.co.uk

Gabbitas

Gabbitas advise on choice of schools and can provide assessments.

They also publish a comprehensive directory of special schools and independent mainstream schools with provision for special needs.

Contact detailsCarrington House, 126–130 Regent Street, London W1B 5EE

Tel: 020 7734 0161

Web site: www.gabbitas.co.uk

Page 107

Other Support

HE Special

A site providing information and advice on home educating children with special educational needs including articles and book reviews in relation to home education. There are also separate sections on Dyslexia and Asperger Syndrome. This is the web site of the HE Special UK mailing list. A group of families who Home Educate children with Special Educational Needs. To ask a question then you will need to join whether you are a home educator or still thinking about it.

Contact detailsWeb site: www.he–special.org.uk

Inclusion

A useful site for parents and teachers. Lots of advice and information available on including children successfully. A huge collection of resources with excellent search facilities.

This website also provides a catalogue of resources to support individual learning needs for teaching professionals, parents, carers and learners. Resources include publications, software, equipment and online information.


Web site: www.inclusion.ngfl.gov.uk

IPSEA (Independent Panel of Special Education Advice)

They provide advice and guidance on the assessment and statement process.

Their website has lots of useful sample letters which can help you communicate with your local authority.

Contact details6 Carlow Mews, Woodbridge, IP12 1EA

Helpline: 0800 018 4016

Hours: Mon – Thur: 10.00am – 4.00pm 7.00pm – 9.00pm Fri: 10.00am – 1.00pm 7.00pm – 9.00pm

Web site: www.ipsea.org.uk

Joseph Rowntree Foundation

Provides information on consulting with children and young people who have a disability.

Contact detailsCaledonia House, 5th Floor, 223 Pentonville Road, London N1 9NG

Tel: 020 7837 3268


Web site: www.jrf.org.uk

Page 108

Other Support

Kidscape

Kidscape is a charity, which provides advice on keeping children safe from bullying. They offer a number of workshops and downloads, covering child protection, peer support and anti bullying strategies for parents and professionals. Please note: The helpline is for the use of parents, guardians or concerned relatives and friends of bullied children. Look out for the very useful guide to cyberbullying.

Contact details2 Grosvenor Gardens, London SW1W 0DH

Helpline: 08451 205 204


Web site: www.kidscape.org.uk

London SEN Mediation Service

They are an independent disagreement resolution service. Their service aims to settle disagreements that arise between parents of children with special needs and local authorities/schools about the special educational needs of children, and how to meet those needs. This is done by providing mediation meetings. Parties work together, with the help of the mediator, to find a resolution which is right for them. This service is provided free for parents.

Contact details49 Mecklenburgh Square, London, WC1N 2NY

Tel: 020 7837 2900


Web site: www.kids.org.uk/mediation

Maths Extra

Maths Structured resources and teaching materials for Early Years and Primary School. Especially important for children with special educational needs and EAL pupils. Very good maths kit and ‘simplified method of learning about time’ the Charlotte Clock. They also provide a consultancy and training service. Look out for the interactive puzzle!

Contact details3 North Street, Mere, Warminster, BA12 6HH


Web site: http://www.mathsextra.com

NASEN (The National Association for Special Educational Needs)

The association aims to promote the education, training, advancement and development of all those with special educational needs. They have an excellent research database and an extensive collection of publications for purchase.

Contact detailsNASEN House, 4/5 Amber Business Village, Amber Close, Amington, Tamworth, B77 4RP

Tel: 01827 311500


Web site: www.nasen.org.uk

Network 81

This organisation is committed to the inclusion of children with special educational needs in mainstream schools.

Contact details1–7 Woodfield Terrace, Stansted, CM23 8AJ

Helpline: 0870 770 3306

Page 109

Other Support



Web site: www.network81.org

Rathbone

A national charity and voluntary organisation which provides training and apprenticeships for people with additional needs.

Contact detailsChurchgate House, 56 Oxford Street, Manchester M1 6EU

Tel: 0800 731 5321


Web site: www.rathboneuk.org

SEN Legal

Specialists in Education Law.

Ask them about fees before engaging their help.

They have a Statement Healthcheck service for about £160 which is well worth looking at if you are having problems getting your child’s statement to reflect their needs rather than what the LEA can afford!

Contact details9 Looms Lane, Bury St Edmunds, IP33 1HE

Tel: 01284 723 952


Web site: www.senlegal.co.uk

SEN Teacher

Very useful site for teachers and parents, loads of ideas with free teaching aids, games and other resources. Also a great links page sorted by condition.

Contact detailsWeb site: www.senteacher.org

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SOS!SEN

Free, friendly, independent, confidential helpline on Special Educational Needs.

SOS!SEN offer a great, friendly, independent, confidential and local telephone helpline for parents and others looking for information and advice on Special Educational Needs (SEN). They concentrate on helping people to find their way through the legal and procedural maze which is so daunting to so many who try to obtain satisfactory provision for a child’s special needs.

Their aim is to encourage parents and carers eventually to become empowered and confident to tackle for themselves the obstacles and difficulties, which arise, and in turn to use their knowledge and experience to help others.

They are all volunteers who have spent much of their lives in education or related services.

They offer the following help:

Interpreting official letters•

Checking proposed and revised • Statements of special educational needs

Helping prepare letters of request, • comment and complaint

Finding independent professional • advice – e.g. independent educational psychologists, lawyers etc.

Giving guidance on the next available • procedures which may be suitable

Acting as a ‘friend’ to accompany • parents on visits to the offices of officials in the education, health and

social services and to meetings in schools

Advising on preparation of case • statements for SENDIST (Special Educational Needs and Disability Tribunal)

Presenting cases at Tribunal•

Helping with complaints to the Local • Government Ombudsman

Organising training workshops and • other opportunities for parents and carers to come together.

Contact details35 Staines Road, Twickenham TW2 5BG

Tel: 020 8538 3731


Web site: www. sossen.org.uk

Teachernet

Primarily a site for teachers. However, there is a very good section on Special Educational Needs (SEN) which professionals and parents should find useful. It covers a wide range of disability issues and provides advice and suggestions for materials for teachers, parents and other professionals working with children with SEN in England.

Contact detailsSanctuary Buildings, Great Smith Street, London SW1P 3BT

Tel: 0870 000 2288

Web site: www.teachernet.gov.uk/wholeschool/ sen/

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The Association of National Specialist Colleges (NATSPEC)

Natspec is a membership organisation of 70 specialist independent colleges for students with disabilities and/or learning difficulties. These colleges offered personalised learning programmes in mostly residential settings nationally.

They have both a print directory and a website directory which includes a ‘college finder’ which allows you to set parameters for your search, in order to determine the most appropriate college. Natspec colleges offer further education for learners aged 16 -25 years.

Contact detailsDerwen College, Oswestry LE12 8JN

Tel: 0117 923 2830


Web site: http://www.natspec.org.uk

Music

Colour Muse

A colour coding system to encourage children to learn to play the piano and read music.

Contact details125 Duck Street, Tisbury, SP3 6LJ


Web site: www.colourmuse.org

Dissimilis

Dissimilis are based in Norway. They have evolved a music teaching method over the years that uses colour notation, similar to the English system Colour Muse. Not only that but they use 2 string basses, 4 string guitars and various other modified instruments.


Web site: www.dissimilis.com

Joy of Sound

An amazing group of musicians working primarily around Lambeth but interested in working in other boroughs. Their sessions are completely inclusive and very moving. They have a variety of instruments which are all tuned to an open chord allowing everyone to join in regardless of their difficulties, whether physical, educational or musical!

They have recently started courses for people interested in the work they do.

Contact details28 Peckford Place, Brixton SW9 7BP

Tel: 07906 916 524


Web site: www.joyofsound.net

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Melody

Melody is an inclusive, collaborative organisation, dedicated to the promotion of instrumental teaching for people with learning disabilities.

Contact details52 Woodland Road, Northfield, Birmingham B31 2HY

Tel: 0121 628 3300


Web site: www.melody.me.uk

Otakar Kraus Music Trust

An extraordinary group of music therapists, the Otakar Kraus Music Trust was started by Margaret Lobo, who is one of those amazing women that just never seems to stop achieving whatever she wants. Luckily her drive is very much focused on helping kids with all sorts of disabilities. Apart from music therapy they also provide the following:

Music Club, •

Club OK•

A Mother and Toddler Group •

Music Therapy Workshops for parents • of special needs children.

You should contact them for more information

Contact details3 Twining Avenue, Twickenham, TW2 5LL

Tel: 020 8894 2007


Web site: www.okmtrust.co.uk

The Drake Music Project

Drake Music works nationally with disabled musicians of all ages to explore, compose and perform music.

They use technology in innovative ways to foster creativity, nurture talent, develop new skills and bring together disabled and non–disabled artists. Make sure you follow the link to YouTube as there is some really encouraging footage there.

Contact detailsRichMix, 35–47 Bethnal Green Road, London E1 6LA

Tel: 020 7739 5444


Web site: www.drakemusicproject.org

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Other Support

Nutrition

Matthew’s Friends (Ketogenic Diet for Epilepsy)

Information and support on the subject of the Ketogenic Diet as a means of helping to control epilepsy. Their aim is to bring you the latest information possible on all aspects of dietary treatments for epilepsy straight from the leading experts here in the UK and around the globe

Contact detailsPO Box 191, Oxted, RH8 191


Web site: www.matthewsfriends.org

The GFCF Diet (Gluten Free Casein Free)

This site has lots of information about gluten free and casein free diets.

In their words, Dietary Intervention may be that one piece of “the puzzle” which helps a child with ASD toward the road for recovery. American website

Contact detailsWeb site: www.gfcfdiet.com

Speech & Communication

1 Voice

1Voice takes a family and social perspective on communication and recognises the great need for adult role models to inspire children and families alike. 1Voice promotes

families supporting each other to overcome the isolation that being unable to speak can bring. Most of their members use a communication aid or work with people that do.

They have Family Conferences, Network Days and issue newsletters. There is a South East Group that organises get–togethers. See the website for more information.

Please note, they do not give advice on communication aids.

Contact detailsP.O. Box 559, Halifax HX1 2XT

Tel: 0845 330 7862


Web site: www.1voice.info

AFASIC

Afasic was founded in 1968 as a parent–led organisation to help children and young people with speech and language impairments and their families.They provide information and training for parents – and professionals – and produces a range of publications. Members meet in local groups in many areas of the UK.

The helpline is open Mon – Fri, 10.30am to 2.30pm

Contact details1st Floor, 20 Bowling Green Lane, London EC1R 0BD

Tel: 0845 3 55 55 77


Web site: www.afasic.org.uk

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Association of Speech & Language Therapists

Provides information on private speech therapists and their areas of expertise. You can search by post code and area of specialisation which will give you a list of local practitioners and their contact details.

The site also offers advice and information on related topics including resources. As an association they also support professional speech therapists in independent practice.

Contact detailsColeheath Bottom, Speen, Princes Risborough, HP27 0SZ

Tel: 01494 488 306

Web site: www.helpwithtalking.com

Blissymbol Communication (UK)

Blissymbols form a system of meaning–based symbols which can be used by people with severe difficulties in speaking to communicate without speech. The system has a large and flexible vocabulary and contains logical rules for expanding vocabulary and grammar.

Contact detailsACE Centre, 92 Windmill Road, Oxford OX3 7DR

Tel: 07811 452 444

Email: gillian@aac–consultancy.co.uk

Web site: www.blissymbols.co.uk

I CAN

I CAN is a charity that helps children with speech and language difficulties across the UK. I CAN provides a combination of specialist therapy and education for children,

information for parents and professionals and training and advice for teachers and other professionals.

Contact details4 Dyer’s Building, London EC1N 2QP

Tel: 0845 225 4071


Web site: www.ican.org.uk

Pyramid Educational Consultants Uk Ltd (PECS)

Pyramid are the official provider of PECS (Picture Exchange Communication System) and the Pyramid Approach to training in the UK and Ireland. Since 1998 when their UK office first opened, they have helped over 100,000 people with autism and communication difficulties. They provide high quality training, consultation and support to parents, carers and professionals. Using functional and practical interventions they aim to teach individuals how to communicate, function independently, and be successful in their schools, homes, places of employment, and the community.

Contact detailsPavilion House, 6 Old Steine, Brighton BN1 1EJ

Tel: 01273 609 555


Web site: www.pecs.org.uk

Singing Hands

A very dynamic and lively pair of ladies that have made it their objective to reach out and help children and their parents to learn how to sign whilst having as much

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Other Support

fun as possible. They have an excellent web site with access to information on all the workshops they run and you can also purchase their Books and CDs.

Contact detailsElectroline House, 15 Lion Road, Twickenham TW1 4JH

Tel: 020 8288 1706


Web site: www.singinghands.co.uk

Talking Point

Useful information on speech development and disability.

The site also signposts to other organisations which can offer advice on specific areas of difficulty.

Contact details4 Dyers Buildings, London EC1N 2QP

Tel: 0845 225 4073


Web site: www.talkingpoint.org.uk

The Makaton Charity

Makaton is the UK’s leading language programme for children and adults with communication and learning difficulties, enabling them to interact with others. Makaton uses signs, symbols and speech to develop communication, language and literacy skills.

Their services include:

Training for parents, carers and • professionals

Resource Materials including books, • CDs, databases, DVDs etc

Translation Service•

Sign and Symbol advice•

Family Advisory Service.•

Most Makaton users are children and adults who need it as their main means of communication. But everyone else who shares their lives will also use Makaton. These include the families, carers, friends and professionals such as teachers, speech and language therapists, social workers, playgroup staff, college lecturers, instructors and health professionals.

Contact detailsManor House, 46 London Road, Camberley, GU17 0AA

Tel: 01276 606 760


Web site: www.makaton.org

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Syndromes & Conditions

Arthritis Care

Arthritis Care is the largest UK–wide voluntary organisation working with and for all people with arthritis.

They have specific pages for young people and children.

Phone free: 0808 800 4050 from 12pm to 4pm Mon – Fri or 020 7380 6555 from 10am to 4pm (standard call charges)

Contact details18 Stephenson Way, London NW1 2HD

Tel: 020 7380 6500


Web site: www.arthritiscare.org.uk

ASBAH (The Association for Spina BifidaandHydrocephalus)

ASBAH is the leading UK registered charity providing information and advice about spina bifida and hydrocephalus to individuals, families and carers.

Contact details42 Park Road, Peterborough PE1 2UQ

Tel: 01733 555988


Web site: www.asbah.org

ASD Friendly

ASD Friendly is a support network of parents with Autistic and Aspergers children, who discuss life as they know it in their friendly forums. Need help, or have advice to offer? Join in the discussions on the message boards on a variety of topics.

There are no specific means of contacting ASD Friendly apart from using the ‘Contact Us’ page on the website. However once you’re on the site there are plenty of blogs to read.

Contact detailsWeb site: www.asdfriendly.org

Breatheon UK

Breatheon UK are a charity which specifically helps families with children on long–term ventilation (LTV). It is estimated that 600 children in the UK have this condition and that this is growing at 15% per annum.

They have published two booklets for parents and families with young people on LTV which you can download on this website. Their website also lists ongoing activities, events and news to date, care support and publications as well as much more.

Contact detailsKnights Cottage, Marnhull DT10 1PN

Tel: 01258 820274

Web site: www.breatheon.org.uk

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Other Support

British Dyslexia Association (BDA)

The British Dyslexia Association (BDA) is a national charity and their vision is that of a dyslexia friendly society that enables dyslexic people of all ages to reach their full potential.

Contact detailsUnit 8 Bracknell Beeches, Old Bracknell Lane, Bracknell RG12 7BW

Tel: 0845 251 9002


Web site: www.bdadyslexia.org.uk

CReSTed

The aim of this charity is to help parents and those who advise them to choose an appropriate school for their dyslexic child.

Very good website with helpful links and a great checklist for parents.

Contact detailsGreygarth, Littleworth, Winchcombe, Cheltenham GL54 5BT

Tel: 01242 604 852

Web site: www.crested.org.uk

Creating Solutions

This is an Oregon (USA) based organisation, dedicated to promoting independence and improved quality of life for people with developmental disabilities. Their particular focus is on the dual diagnosis of Down Syndrome and Autism and as such this site may be a useful reference point for parents/carers grappling with this issue. The majority of the site consists of a publication called ‘Disability Solutions’ whose articles deal with issues as diverse as Transition and Healthy

Eating. Articles are practically rather than academically based, written with a wealth of personal experience and are often relevant across the spectrum of learning disability not just for specific conditions.


Web site: www.disabilitysolutions.org

Down’s Heart Group

This charity provides information and support on heart conditions associated with Down Syndrome.

One to one support•

Telephone helpline•

Newsletters•

Contact detailsPO Box 4260, Dunstable, LU6 2ZT

Tel: 0845 166 8061


Web site: www.dhg.org.uk

Down’s Syndrome Association

Provides independent advice and support to individuals and families in the UK

Contact detailsLangdon Down Centre, 2a Langdon Park, Teddington,TW11 9PS

Tel: 0845 230 0372

Email: info@downs–syndrome.org.uk

Web site: www.downs–syndrome.org.uk

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Other Support

Downsed International

The Down Syndrome Educational Trust is a registered charity, based in the UK, and a recognised leader in scientific research into the development and education of individuals with Down syndrome.

The Trust publishes practical information about Down Syndrome, organises conferences and workshops, and provides advice and consultancy services.

Contact detailsThe Sarah Duffen Centre, Belmont Street, Southsea PO5 1NA

Tel: 023 9285 5337


Web site: www.downsed.org

downsyndromeOK

downsyndromeOK is a registered charity affiliated to the Down’s Syndrome Association. It has taken over the work of the South West Thames branch. Areas covered are West and South West London Surrey and West Sussex. Have a look at their site; there is loads of very useful information and an opportunity for you to ask questions and share your views.

Contact details28 Stopham Road, Maidenbower, Crawley RH10 7JF


Web site: www.downsyndromeOK.org.uk

Dyslexia Action

Information and advice on Dyslexia. Offers assessments to identify Dyslexia in children and adults and specialised multisensory teaching for all ages.

Contact details2 Grosvenor Gardens, London SW1W 0DH

Tel: 020 7730 0273


Web site: www.dyslexiaaction.org.uk

Ealing Dyslexia AssociationSee entry on page 81.

The Dyspraxia Foundation

A UK charity which exists to help people to understand and cope with dyspraxia. A resource for parents, teenagers and adults who have the condition and for professionals who help all of them.

Contact details8 West Alley, Hitchin, SG5 1EG

Helpline: 01462 454 986


Web site: www.dyspraxiafoundation.org.uk

Ehlers–Danlos Support Group

This website has many purposes:

To share medical information about • EDS

To make people aware of various • support groups and events available

To highlight the latest research on EDS•

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Advice on how to cope with living • with EDS

Show available publications•

Interactive Message Board – Discuss • personal issues on EDS with other people.

Contact detailsPO Box 337, Aldershot, GU12 6WZ

Tel: 01252 690 940

Web site: www. ehlers–danlos.org

Elyons Foundation

The Elyons Foundation is a voluntary organization dedicated to helping children with heart disease and their families. They are trying to reach as many children in London as possible, and would like to offer their services to any child in Ealing that requires it.

They offer :

emotional and practical support;•

support groups; information on heart • conditions and medical terminology;

guides to grants and benefits;•

assistance in transportation to medical • appointments and assistance in organizing parental accommodation during the child’s hospital stays.

Contact detailsPO BOX 1031, Enfield, EN1 9EU

Tel: 020 8350 3758


Web site: www.ehf.org.uk

Epilepsy Action

They offer a nationwide network of branches and publish a quarterly newsletter for members and has a wide range of information available. Aims to provide information about epilepsy, improve understanding in schools and support to carers.

Epilepsy Action offer a nationwide network of branches. They publish a quarterly newsletter for members and they have a wide range of information available. Their aim is to provide information about epilepsy, improve understanding in schools and support to carers.

Contact detailsNew Anstey House, Gate Way Drive, Yeadon, Leeds, LS19 7XY

Tel: 0113 210 8800

Helpline: 0808 800 5050


Web site: www.epilepsy.org.uk

Fragile X Society

The society provides support and information for families with children with Fragile X and professionals. They support both children and adults.

Contact detailsRood End House, 6 Stortford Road, Great Dunmow CM6 1DA

Tel: 01371 875100


Web site: www.fragilex.org.uk

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Other Support

Heartline Association

The Association offers support and information on aspects of congenital heart disease in babies and children and parent contact through a nationwide network of groups.

Contact detailsSurrey Heath House, Knoll Road, Camberley, GU15 3HH

Tel: 01276 707636


Web site: www.heartline.org.uk

Hemihelp

Information and support for children & young people with Hemiplegia:

Newsletters•

Helpline (open Mon–Fri, 10am–1pm)•

Support by e–mail•

Information leaflets•

Conferences•

Sports and Activities.•

Contact details6 Market Road, London N7 9PW

Helpline: 0845 123 2372


Web site: www.hemihelp.org.uk

The Hyperactive Children’s Support Group (HACSG)

The Hyperactive Children’s Support Group is a registered charity which has been successfully helping ADHD/Hyperactive children and their families for over 25 years. The HACSG is Britain’s leading proponent of a dietary approach to the problem of hyperactivity

Contact details71 Whyke Lane, Chichester, PO19 7PD


Web site: www.hacsg.org.uk

Meningitis Trust

The Meningitis Trust is an international charity with a strong community focus, fighting meningitis through the provision of support, education, awareness and research.

Contact detailsFern House, Bath Road, Stroud, GL5 3TJ

Tel: 01453 768000

Email: info@meningitis–trust.org

Web site: www.meningitis–trust.org

National Autistic Society

The National Autistic Society exists to champion the rights and interests of all people with autism and to ensure that they and their families receive quality services appropriate to their needs.

The Autism Helpline service provides confidential advice, information and support for people with an autism spectrum disorder, their family members and professionals.

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Contact details393 City Road, London EC1V 1NG

Helpline: 0845 070 4004

Mon – Fri: 10.00am – 4.00pm.


Web site: www.autism.org.uk

The National Centre for Young People with Epilepsy (NCYPE)

They provide education, treatment and care for children and young people with severe epilepsy and other neurological disorders.

Their site includes St. Piers School, St Piers Further Education College and other services such as epilepsy diagnosis, assessment and rehabilitation.

You can sign up for their newsletter.

Contact detailsSt Piers Lane, Lingfield, RH7 6PW

Tel: 01342 8322 243


Web site: www.ncype.org.uk

National Deaf Children’s Society

The NDCS is an organisation of families, parents and carers which exists to enable deaf children and young people to make the most of their skills and abilities.

Contact details18 Dufferin Street, London EC1Y 8UR

Helpline: 0808 800 8880


Web site: www.ndcs.org.uk

The National Society for Epilepsy

The National Society for Epilepsy (NSE) delivers a variety of training events to a wide range of clients, from carers, school escorts and post graduate students to commercial organisations, GP surgeries and drug company representatives. They also work with the public sector including primary care trusts, local councils and schools. They are one of the UK’s leading epilepsy medical charities working for everyone affected by epilepsy through medical research, epilepsy information, residential and respite care, training and treatments and facilities.

Contact detailsChesham Lane, Chalfont St Peter, SL9 0RJ

Helpline: 01494 601 400

Web site: www.epilepsysociety.org.uk

OCD UK

OCD are a national charity that provide telephone and online support specifically for people with Obsessive Compulsive Disorder (OCD). Open to all ages, telephone 0845 120 3778 (manned by volunteers on intermittent hours). Services for support are free, but they do offer a membership in return for a donation.

Members receive discounts on self help books, conferences, a magazine and more.


Web site: www.ocduk.org

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Other Support

Royal National Institute for Deaf and Hard of Hearing

Represents deaf and hard of hearing people in the UK.


Textphone: 0808 808 9000


Web site: www.rnid.org.uk

Royal National Institute of the Blind

Represents blind and partially sighted people in the UK

Contact detailsPO Box 173, Peterborough PE2 6WS

Tel: 0303 123 9999

Helpline: 0845 766 9999


Web site: www.rnib.org.uk

Sense – UK Deafblind Charity

A national voluntary organisation working with and supporting people of all ages who are deafblind or have associated disabilities.

Contact details11–13 Clifton Terrace, Finsbury Park, London N4 3SR

Tel: 020 7272 7774

Textphone: 0845 127 0062


Web site: www.sense.org.uk

Tourettes Action

Tourettes Action is the UK’s leading support and research charity for people with Tourettes Syndrome (TS) and their families.

They want people with TS to receive the practical support and social acceptance they need to help them live their lives to the full. They deal with all forms of TS, including the most challenging.

Contact detailsSouthbank House Black Prince Road, London SE1 7SJ

Tel: 0845 458 1252

Email: admin@tourettes–action.org.uk

Web site: www.tourettes–action.org.uk

Toys, Games & Sensory Equipment

AblePlay

AblePlay is a toy rating system and website that provides comprehensive information on toys for children with special needs. AblePlay was created so parents, special educators, therapists and others can make the best decisions when purchasing products for children in their lives with disabilities The website provides play products for children with special needs. Products have a ableplay rating in terms of the disability category for i.e Physical, Sensory, Communicative and Cognitive.

Contact detailsWeb site: www.ableplay.org

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Other Support

Acorn Educational

Acorn Educational are UK based specialists in creating educational toys and educational games for children within their pre–school or early years and children with special needs. Acorn supplies educational toys and educational games for children under six years of age. These have been carefully chosen to encourage specific aspects of a child’s development with resources to aid language skills, co–ordination and tracking skills, numeracy, manual dexterity, and creativity.

There are also many products to help children with visual or hearing difficulties. Also has a range of books on various topics such as:

Loss•

Bullying•

Hopes and dreams•

Fear•

Low self–esteem.•

Contact detailsWhitegates Farm, Rushton, Kettering, NN14 1QS

Tel: 01536 713 123


Web site: www.acorneducational.co.uk

Amusica

Baby and young children’s music specialist. They supply musical toys, musical instruments, music books and CDs for baby and young children’s music groups, parents, carers, nurseries, schools and playgroups.

Contact detailsSuite 10, The Exchange, 15 Spring Lane, Colne, Lancashire, BB8 9BD

Tel: 01282 725247


Web site: www.amusica.co.uk

Beyond Play

American site with all kinds of resources for early intervention, speech and language, oral motor, fine motor and much more.

It is one of those sites that contains all those interesting games or bits of equipment that you may of heard of but cannot find.

Contact details1442A Walnut Street, #52, Berkeley, CA 94709, USA,

Tel: 001 510 548 0600


Web site: www.beyondplay.com

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STEPS (Special Toys Education Postal Service)

Steps buys and adapts toys. The service is free to profoundly disabled children between the ages of 0–16.

Mainstream toys are adapted so that, with a special external switch, children can play with the toys activating the switch by blowing, sucking, bashing, squeezing, pressing or whatever movement the child has. Have a look at their website or call them to talk about your child’s play needs.

Workshop opening hours:

Mon: 11am – 4pm

Tue – Fri: 10am – 3pm

Contact detailsFirst Floor, 50–52 Torwood Street, Torquay, Devon TQ1 1DT

Tel: 01803 214124


Web site: www.stepscharity.org

Transition

After 16

This is a website for young disabled people. It is about important choices they will have to make about further education, daytime activities, work, changes in income, where to live, and lots more. It’s also about the rights and responsibilities that go with them.

Resources for disabled teenagers who are leaving school. Includes information on money matters, further education and work.

Contact detailsWeb site: www.after16.org.uk

Learning Curve

The Learning Curve centre, based in Acton, provides training for 90 adults with learning disabilities in Ealing. Their aim is to help people get the skills needed to get into work and further education. It is a fully accredited training centre (meaning you will get official qualifications).

You can get trained in basic skills, catering, stores and warehousing, horticulture, administration, retail and information technology. It runs a community cafe called Cafe Eat, which earns money through external catering.

If you want to go to Learning Curve, you can refer yourself or get someone to do it for you. You can also go and visit Learning Curve to take part in some sessions, talk to people there and see if you like it. You will need to have an assessment before you can go to Learning Curve.

Contact details3 Roslin Road, Acton, W3 8DH

Tel: 020 8752 1907


Web site: www.lcurve.info

Trans–active

Trans–active is a project in which teenagers with and without severe learning disabilities work together

They use multimedia to explore and communicate choices they will have when they leave school.

The project is about using and giving support, making plans, making friends and having fun.

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The site has three sections:

Information zone – resources and • information for parents, carers and teachers

e–zine – The latest from Trans–active•

Teenzone – Fun and games for • teenagers.

Contact details4 Swan Courtyard, Coventry Road, Birmingham B26 1BU

Tel: 0121 707 7877

Email: trans–[email protected]

Web site: www.trans–active.org.uk

Transition Information Network (TIN)

TIN is a source of information for disabled young people, families and professionals about issues affecting disabled young people in transition to adulthood. TIN provides this information through its website, magazine My Future Choices, e–newsletter Getting a Life and events.

Please note that TIN does not have a helpline and is not resourced to give advice to individuals.

Contact detailsc/o Council for Disabled Children, 8 Wakely Street, London EC1V 7QE

Tel: 020 7843 6006


Web site: www.transitioninfonetwork.org.uk

Notes

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Other Support

Notes

Clubs,playschemes and holidays

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Clubs

Clubs12

This section covers after school clubs specifically organised for children with additional needs, Mainstream breakfast and after–school clubs can access extra funding if your child needs additional support to attend. The organisation rather than the parent/carer organises the funding but if you would like to discuss what needs your child may have please contact the Out of School Development Officer, Fran Regan on 020 8825 5431.

2000 Club

Social and sports club offering activities indoors and out for adults and children with physical, sensory and learning disabilities.

2nd Sunday each month 2.00pm – 5.00pm.

Membership £10 per annum.

Contact detailsHeston Community Sports Hall, Heston Rd, Hounslow TW5

Tel: 020 8572 8901 or 07944 394270

Asperger’s Syndrome Foundation Saturday Social Club

Social club for young people aged 18–25 years old with Asperger Syndrome. Meets once a month on a Saturday, 11am– 3.30pm. Lunch provided.

Contact detailsMary Ward House, 5–7 Tavistock Place, London WC1H 9SN

Tel: 020 7374 2012 (Mon – Wed only)


Web site: www.aspergerfoundation.org.uk

Crossroads

Crossroads run 2 after–school club sessions a week at the Greenford Community Centre, Oldfield Lane South, for children with a range of needs aged 11–16 years. At the club, children are able to form new friendships, develop skills for daily living and to try new activities. Families using Crossroads’ home based respite service cannot use the after school club, and vice versa, in order to provide a service to as many families as possible.

Contact detailsHillview Surgery, 179C Bilton Road, Greenford, UB6 7HQ

Tel: 020 8728 7000


Deaf Children’s Society – London South and West

Drop in for families with deaf children. A great opportunity for families to share experiences and for deaf children to spend time together.

1st Saturday of each month, 3.00 – 5.00pm

Contact detailsBrunswick Club, 34 Haldane Road, Fulham SW6 7EU

Tel: 07956 874688

Email: vickie.ambrose@lsw–dcs.org.uk

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Ealing Music Therapy Project

This project offers music therapy to children with disabilities at various schools and centres throughout the borough. In addition they run a group for parents and pre–school children, on their waiting list, to offer parents practical help in making music with their children at home.

Contact details149a Argyle Road, Ealing, W13 0DB

Tel: 020 8248 2258


The Log Cabin

The Log Cabin is an inclusive adventure playground for children and young people aged 4–15 years who have special needs or disabilities or who are in need.

They are open for After School Club and for Easter and summer holiday and half term Playschemes, as well as for pre–arranged after school sessions. All services are bookable in advance.

They are registered with OFSTED and they also have Quality in Play accreditation from London Play. The After School Club runs in term time only.

1:1 support and the Saturday Club can be accessed following a Core Assessment by a children’s social services team – see How to Access Short Breaks or call Alia at the Log Cabin.

Contact details259 Northfield Avenue, Ealing, W5 4UA

Tel: 020 8840 3400


Web site: www.logcabin.org.uk

Gateway Clubs

The Gateway Clubs are run by Ealing Mencap. Their normal home, Enterprise Lodge (Stockdove Way, Perivale UB6 8TJ) is being rebuilt and due for completion towards the end of this year (2010). Whilst this work is going on the Gateway Clubs have been relocated but they’re due to return early in 2011. Please register in advance for all clubs.

Tuesday evening Youth Club

A social club for young people with learning difficulties aged 14 – 25 years. From 6.30 – 8.30pm

Contact detailsActivity Resource Centre, Stockdove Way, Greenford UB6 8TJ


Tel: 07837 186740

Saturday afternoon Youth Club

Club for children with learning difficulties aged 8 – 13 years. The club runs from 1.00pm till 4.30pm. Both indoor and outdoor activities are encouraged. In future the club plans to cater for 5 –15 years.

Contact detailsThe Log Cabin, 259 Northfield Avenue, Ealing W5 4UA

Tel: 020 8567 9185

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Royal Association for Deaf people (RAD) – Full Potential Ealing

RAD promotes the welfare and interests of deaf people whose first or preferred language is sign language. Full Potential activities will provide a variety of social learning activities running 10 Saturdays in the year.

Activities include:

Art, drama and photography • workshops exploring self–expression

Health and beauty sessions, raising • self–esteem

Food on a shoestring, learning to cook • for a small group and keeping to a budget.

Costs: £10 per session (50% reduction for families on benefits)

Contact detailsSt Saviours Centre for the Deaf, 1 Armstrong Road, London W3 7JL

Tel: 0845 688 2525

Textphone: 0845 688 2527

Mobile/SMS: 07872 840 418


Web site: www.myfullpotential.org.uk

www.royaldeaf.org.uk

Signing In Deaf Club

This is a club for deaf children aged from birth to 11 years of age, their siblings, parents and carers. Their aim is to provide the same opportunities as their hearing peers. British sign language is the main method of communication. The club offers a

support group once per month in Hanwell as well as different trips and activities.

Contact detailsSt Mary’s Church Hall, Greenford Avenue, Hanwell W7 3QP

Tel: 07724 192404 or 07724 192374 (both are text or voice)


Web site: www.signingindeafclub.co.uk

W13 Youth Club

If you are looking for a wide range of activities to stretch and challenge your child that will enable them to take risks in a safe controlled environment, then check the place out.

Young people are given the right support to create opportunities for themselves that can be fun as well as informative. They can take part in the music production studio, cookery school, internet café, sewing suite, arts and crafts, participation group, street dance, fundraising, pool/table tennis, basketball/badminton and outdoor activities.

W13 runs a youth and social club for young people with disabilities and special needs aged 13 plus. The club takes place on Wed evenings from 7.00 – 9.00pm. Brothers, sisters and friends are also welcome. The centre also runs an After School Club on Thursdays from 4.00–6.00pm for young people with disabilities only.

Contact detailsChurchfield Road, West Ealing, W13 9NF

Tel: 020 8567 2821


Web site: www.youngealing.co.uk/group–ealing– w13centre.html

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Holiday Playschemes13

This section covers holiday play schemes specifically organised for children with additional needs, Mainstream holiday play schemes can access extra funding if your child needs additional support to attend. The organisation rather than the parent/carer organises the funding but if you would like to discuss what needs you child may have please contact the Out of School Development Office, Fran Regan 020 8825 5431.

Extended Schools in Ealing

The Extended Schools service offers:

Quality childcare – high quality ‘wraparaound’ childcare for primary age pupils, either on the school site or signposted to local providers and a safe place to be after school for secondary age pupils.

Out of school activities – a varied menu of activities to be on offer such as homework clubs and study support, sport (at least two hours a week beyond the school day for those who want it), music tuition, dance and drama, arts and crafts, special interest clubs.

Parenting support – including information sessions for parents at key transition points, parenting programmes and family learning sessions to allow children to learn with their parents.

Swift and easy access to a wide range of services – to provide support at an early stage for children and young people with

additional needs such as behavioural, emotional, health or other difficulties.

Community access to school facilities – to enable greater community use of school facilities such as ICT suites, sports and arts facilities, and access to adult learning opportunities.

Contact details2nd Floor, Perceval House NE, 14–16 Uxbridge Road, Ealing, W5 2HL

Tel: 07940 021 120

Email: See website for details

Web site: www.extendedschools.co.uk

The Log Cabin

They run Playschemes in holidays and you can choose the provision most suited to your needs. Ealing Social services use the Log Cabin for short breaks and Direct Payment can be used to pay for the play scheme.

Normal day (9.30am to 3.30pm)

£12.30 for Children with Special Needs

£19.00 for Children at Mainstream School

Extended day (8.30am to 5.45pm)

£16.40 for Children with Special Needs

£21.00 for Children at Mainstream School

1:1 support and the Saturday Club can be accessed following a Core Assessment by a children’s social services team. See ‘How to Access Short Breaks’ or call Alicia at The Log Cabin.

Contact details259 Northfield Avenue, Ealing, W5 4UA

Tel: 020 8840 3400

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Holiday Playschemes - Holidays


Web site: www.logcabin.org.uk

Futureversity

Free courses during the summer holidays are available to children and young people aged 11 – 19 years (up to 25 years for young people with learning difficulties and disabilities). Example courses are:

Arts and Fashion: Including Fashion and • Textiles, Pottery and Hair and Beauty

Digital Media, Film and Photography: • Including Film Making, Digital Photography and Animation

Music and Performing Arts: Including • Music Production, Street Dance and Guitar Skills

Skills for Life: Including Uni Life Day, • Cooking and Off–Road Driving

Sports, Fitness And Wellbeing: Including • Football, Trampolining and Canoeing.



Web site: www.futureversity.org

Holidays14

3H Fund

Holidays for disabled people and respite for carers.

This charity organises subsidised group holidays for children and adults with physical disabilities with the help of volunteers. The idea is that carers can have a separate holiday or period of respite at the same time.

The charity also provides grants to families with a physically or mentally disabled member on low income to have a modest break in the UK. This is dependent on funds being available. Age 13 years and over.

Contact detailsB2 Speldhurst Business Park, Langton Road, Speldhurst TN3 0AQ

Tel: 01892 860207


Web site: www.3hfund.org.uk

Activenture (London Youth)

Activenture gives disabled young people a sociable, carefree, adventurous time away from their daily routine, enabling them to develop self confidence, improve social skills and physical mobility and gain independence which will improve their quality of life.

Weeks include activities that are adventurous like abseiling and obstacle courses, and others which are plain fun – shopping expeditions and karaoke evenings. At the end of the week guests go home exhausted and happy to well rested parents.

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Demand is high so please book early to avoid disappointment.

They run 11 Activenture weeks a year during the school holidays. Age 8 – 18 years.

Contact detailsActiventure Office, Hindleap Warren, Wych Cross, East Sussex RH18 5JH

Tel: 01342 822625


Web site: www.activenture.org

Badaguish Centre

Badaguish, an outdoor activity centre located near Aviemore in the Cairngorms National Park, is designed especially for people of all abilities as a place for them to explore, learn and develop new and exciting skills.

Speyside Trust is a charitable trust set–up to provide a special service to people with disabilities. This includes a fully staffed programme and purpose built Activity Holiday Unit which people with disabilities can visit unaccompanied (24 hour respite care). They welcome adult and children of all abilities.

Badaguish is registered with the Care Commission Scotland and the Activity Licensing Authority and welcomes pre–visits from clients, parents, carers and social work staff.

Contact detailsBadaguish Outdoor Centre, Aviemore, Invernesshire PH22 1QU

Tel: 01479 861 285


Web site: www.badaguish.org

BREAK

They provide a variety of services for adults, children and families including Holidays and Respite Care. The holidays take place at three different centres.

Rainbow, Sheringham•

Golden Bay Village, Westwood Ho!•

Morley House, Kings Lynn.•

Contact detailsDavison House, 1 Montague Road, Sheringham, NR26 8WN

Tel: 01263 822 161

Email: office@break–charity.org

Web site: www.break–charity.org

Calvert Trust

The Calvert Trust specialises in outdoor activities for disabled people and their families and friends. There is both catered and self–catered accommodation available.

There are three different locations to choose from at Exmoor, Keswick and Kielder with a wide variety of outdoor activities. See their website for more details.

Contact detailsWistlandpound, Kentisbury, Barnstaple EX31 4SJ

Exmoor: 01598 763221

Keswick: 01768 772255

Kielder: 01434 250232

Web site: www.calvert–trust.org.uk

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Holidays with Help

They focus on holidays for people with disabilities and their carers and have 30 years experience in specialist respite care breaks. They can provide trained and experienced helpers, choice of activities i.e. craft workshops, archery, indoor canoeing, all led by trained tutors, day and evening entertainment programme.

All holidays include 3 meals a day, entertainment, leisure facilities and trained, experienced helpers. Transport is not included. Insurance is recommended but will be removed if not required.

Contact details39 The Avenue, Ingol, Preston, PR2 7AX

Tel: 07539 063327


Web site: www.holidayswithhelp.org.uk.

Kids Out

They qualify themselves as the Fun and Happiness Charity! Which is quite a good thing to aspire to be.

Apart from other things they organise a Fun Day Out in conjunction with the Rotary Club.

Contact details14 Church Square, Leighton Buzzard, LU7 1AE

Tel: 01525 385252


Web site: www.kidsout.org.uk

Orchyd

Orchyd are a registered charity which create an annual holiday for physically disabled children. They produce an unforgettable ten days in August for twenty children from the UK. If your child can confirm the following then you are eligible to apply:

I live within the UK•

My doctor, teacher or local authority • will nominate me

I’m between eight and twelve years of • age

I’m physically disabled.•

Contact details18 St Catherines Road, Ruislip, HA4 7RU

Tel: 01895 635 213


Web site: www.orchyd.org.uk

RADAR (Royal Association for Disability and Rehabilitation)

RADAR is the UK’s largest disability campaigning organisation, with a membership of over 900 disability organisations and individual campaigners. Their vision is a just and equal society whose strength is human difference. Their mission is to enable individuals, networks and policy–makers to do things differently.

They produce the excellent ‘Where to Stay – guide to accessible accommodation in the UK and Ireland’. The latest edition is 2009. Also a huge amount of information on leisure activities such as sport, outdoor activities and arts and crafts.

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Contact details12, City Forum, 250 City Road, London EC1V 8AF

Tel: 020 7250 3222


Web site: www.radar.org.uk

Siblu

Holiday parcs in France, Italy and Spain.

They seem to be enthusiastic about including children with disabilities. They have an on–line chat facility where you can ask questions and an e–mail enquiry facility.


Web site: www.siblu.com

St John’s Handicapped Children’s Trust

St John’s Handicapped Children’s Trust (SJHCT) is a small charity which runs two annual holidays for children with special needs. The holidays give the children a marvellous adventure. Parents and carers enjoy a well–earned break, often from 24/7 care. The holidays’ helpers provide an experience that will enrich their lives forever.

The children

The children are mainly from schools within the Thames Valley area. No child will ever be turned down on grounds of disability, but to achieve the highest level of care, it’s sometimes necessary to strike a balance and take some more able children. Parents, social workers and schools can apply for a child to go on the holidays. The Trust aims to choose

children who will reap the most direct benefits from the trip to Staffordshire.

The holidays

The holidays are based in Alton Castle, a striking building perched on a cliff top in Staffordshire across a valley from Alton Towers theme park. The castle’s many facilities, including a climbing wall, painting room and extensive grounds, are used to the full. The children also enjoy a host of local activities, such as riding, swimming, a cinema trip, and of course, a day at Alton Towers theme park, with wrist bands that allow them and their helpers to skip every queue.

Contact detailsContact only by post or by enquiry form on website.

Hudnall Lane, Little Gaddesden, HP4 1QE

Web site: www.sjhct.org.uk

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Personal Travel Advisors

Offer a specialist service in finding the right holiday for you. They offer :

holidays across europe, africa, • australasia and the americas for both blind/visually impaired and sighted travellers;

a wide range of exciting holidays • accessible for customers with reduced mobility;

adaptive skiing holidays suited for • customers with disabilities and their families;

group holidays with dedicated guides • skilled in helping hearing impaired people to communicate.

They have also agreed the availability of additional services from mainstream tour operators – making everyday holidays more accessible for you.

Contact detailsTel: 0844 871 2135 or 07904 012480

Email: [email protected],uk

Web site: www.personaltraveladvisors.co.uk/ specialist–travel

Pilgrimage Trust

Each year the trust takes several thousand children with disabilities to Lourdes. The children can be of any religion or none at all. The idea is for children to have a lovely holiday amongst people who will really care for them. From 7 - 18 years old.

Contact detailsOakfield Park 32 Bilton Rd, Rugby CV22 7HQ

Tel: 01788 564646


Web site: www.hcpt.org.uk

The Scout Holiday Homes Trust

The Scout Holiday Homes Trust has been providing holidays for any family with special needs since it started in 1969.

These holiday homes, at various holiday sites in the UK, are available to families, carers, or groups who have a member with a physical or mental disability, or age–related illness and to low income and lone parent families. All units have access ramps, wider doors, wheelchair accessible wc/shower room and easy access to the dining area.

Please note, there is no Scouting connection required to make use of their facilities.

Contact detailsGilwell Park, Chingford E4 7QW

Tel: 0208 433 7290


Web site: www.scoutbase.org.uk/hq/holhomes

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Trefoil

Trefoil House has a holiday grant fund for children/people to take a holiday where there is no funding available from elsewhere.

You can download an application form from the site and you must include an invoice for the holiday. There is a grant limit and you cannot claim after a holiday.

Contact detailsEast Lodge, Gogarmuir Road, Edinburgh EH12 9BZ

Tel: 0131 339 3148


Web site: www.trefoil.org.uk

Ty Glyn Davis Trust

The Ty Glyn Davis Trust offers a fully accessible self–catering holiday centre for children and young people with special needs.

There are specialist facilities for wheelchair users as well as portable hoists and an adjustable powered bed. Children and young people with any sort of physical or learning disability are welcome with their families, friends and carers.

Contact detailsHafod, Llanarth, Ceredigion, SA47 0QB

Tel: 01545 580708

Web site: www.tyglyndavistrust.co.uk

Vitalise

Provides holidays (lots of activities) for people with disabilities at various different locations.

Note: Churchtown is the main centre that caters for children but their services are expanding all the time.The age range is 6+. Children under 12 must be accompanied by a carer.

Churchtown Contact detailsLanlivery, Bodwin PL30 5BT

Tel: 01208 872 148


Web site: www.vitalise.org.uk

Respite breaks, short breaks and holidays at other Vitalise CentresShort Break Bookings Team, Shap Road Industrial Estate, Shap Road, Kendal, Cumbria LA9 6NZ

Tel: 0845 345 1970

Fax: 01539 735 567


Notes

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Notes

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Leisure15

Arts

Art Spider

A website for disability arts aimed at young people run by Mencap. Activities include art galleries, films, music and links to art organisations.

Contact detailsArt Spider Team, Mencap, Burrell Road, Haywards Heath, RH16 1TW

Web site: www.artspider.org.uk

Autism Friendly Cinema Screenings

Picturehouse Cinemas has been holding a series of autism friendly screenings at their sites around the country.

These screenings, arranged in partnership with The National Autistic Society (NAS), are designed for people on the autism spectrum, their families, friends and carers. During the film, low lights are left on inside the auditorium and the volume of the soundtrack is reduced. Cinemagoers are free to move around, make a noise or take a break during the film if they need to – these are activities not usually encouraged at regular screenings.

Various venues so check to see about times, films, etc.

Ritzy Picturehouse • Coldharbour Lane, Brixton SW2 1JG

Clapham Picturehouse • 76 Venn Street, Clapham SW4 0AT



Web site: www.picturehouses.co.uk

The Beck Theatre

600 seat venue in the London Borough of Hillingdon. The programme aims to present the finest local, national and international productions and performers possible with a balance of concerts, comedy, drama, dance, family shows and their annual pantomime.

Every August they hold their Summer Youth Project which is open to all 9 – 19 year olds. 120 local youngsters put on a full scale musical working alongside a professional production team in just 2 weeks!

The Coffee Shop offers a range of hot and cold snacks including children’s lunchboxes. Large foyer, patio and garden area. Free car park including 13 blue badge and 4 brown badge spaces. An Arts Award centre.

Contact detailsGrange Road, Hayes, UB3 2UE

Tel: Box Office 020 8561 8371


Web site: www.becktheatre.org.uk

Free Cinema Tickets

The Cinema Exhibitor’s Association card is a national card that can be used to verify that the holder is entitled to one free ticket for a person accompanying them to the cinema. To qualify you need to be getting Disability Living Allowance or be registered blind. Download an application from the website

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or ring. Not all cinemas participate – check website for details.



Web site: www.ceacard.co.uk

Lyric Hammersmith

There are lots of productions for young children and sometimes special productions for children with disabilities. The theatre is wheelchair accessible. Can book online.

Concessions available for the disabled.

Contact detailsLyric Square, King St, London W6 0QL

Tel: 0871 22 117 29

Web site: www.lyric.co.uk

Oily Cart

Oily Cart create multi-sensory theatre for young children (6 months - 6 years) and for young people with profound and multiple learning disabilities or an Autistic Spectrum Disorder (3-19 years). They take their shows to arts venues, special schools and community venues across the UK and in Europe. By transforming everyday environments into colourful, tactile ‘wonderlands’ they take their audience to a world of the imagination. Using hydro-therapy pools and trampolines, aromatherapy, video projection, and puppetry together with a vast array of multi-sensory techniques, they create original and highly specialised theatre for their audiences.

Contact detailsSmallwood School Annexe, Smallwood Road, London SW17 0TW

Tel: 020 8672 6329


Web site: www.oilycart.org.uk

Polka Theatre

Polka Theatre is one of the few venues in the UK which is dedicated to producing and presenting work for young audiences. Since the doors opened in 1979, this unique venue has been entertaining children with resonant, engaging and exciting theatre. Over 100,000 children a year come to Polka and are inspired, stimulated and engaged by theatre, often for the first time. Polka strives to stir the emotions, spark the imagination and, most of all, entertain. Its two theatre spaces, the Main Theatre and the Adventure Theatre are designed especially for children so that their first taste of theatre is welcoming and relevant. There are special packages for schools and can provide multi-sensory workshops for special schools.

Ask them about any special access requirements you may have.

Contact details240 The Broadway, Wimbledon, SW19 1SB

Tel: 020 8543 4888


Web site: www.polkatheatre.com

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Turtle Key Arts

TKA’s main objective is participation in the arts for all. Ongoing projects include Key Club, a monthly club for Asperger’s or high functioning autistic youths (aged 16 – 30 years), various short term projects for children with ASD and Turtle Song for people with dementia. TKA frequently work in partnership with other organisations to deliver exciting outreach and education projects. Currently this list includes the National Portrait Gallery, Wigmore Hall, English National Opera, Royal College of Music, Paddington Arts and Buckinghamshire County Council.

Contact detailsLadbroke Hall, 79 Barlby Road, London W10 6AZ

Tel: 020 8964 5060


Web site: www.turtlekeyarts.org.uk

Unicorn Theatre

A theatre with professional productions created specifically for young people up to the age of 18. Situated near London Bridge, the building itself is beautiful and the productions are wonderful.

Carers go free but you have to phone the theatre to book - you can’t book online.

Ticket prices range from £10.50 - £16.50 for adults and £6 - £10.50 for children & concessions.

Contact details147 Tooley Street, London SE1 2HZ

Tel: 020 7645 0560 (box office & enquiries)


Web site: www.unicorntheatre.com

Watermans Art Centre

Saturday morning cinema for children at 11am. Regular theatre productions for various ages. Watermans is situated by the river on the London Road in Brentford. There is a restaurant which offers a wide range of Nepalese food and also a small children’s playground, a walkway by the river and a small green area that is nice for picnics. They do offer concessions. Please phone the Box Office for information or visit the website.

Contact details40 High Street, Brentford TW8 0DS

Tel: 020 8232 1010


Web site: www.watermans.org.uk

Crafts

The Kids Cookery School

Kids Cookery School is a registered charity, with cookery courses available for children from the age of three years upwards. A large percentage of those that take part are children with additional needs and over 40 percent of the places supplied by the school are assisted places for disadvantaged children whose families might not normally be able to afford such a course.

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Contact details107 Gunnersbury Lane, Acton W3 8HQ

Tel: 020 8992 8882


Web site: www.thekidscookeryschool.co.uk

The Little Art Room

The Little Art Room is a quirky and unique cafe located in Hanwell. This venue offers a variety of art and family fun in a relaxed atmosphere. They are bursting with activities, events, creative gifts and workshops for both children and adults. Organisers are experienced with SEN and are able to develop and adapt any activities they provide. They also offer a mobile service so they can bring the Little Art Room to you.

Mon – Fri: 9.00am – 5.00pm

Sat: 10.00am – 5.00pm

Closed Sundays and Bank Holidays.

Contact details52 Boston Road, Hanwell W7 3TR

Tel: 020 8567 5959


Web site: www.thelittleartroom.co.uk

Dance and Theatre Groups

Amanda Action Kids

Amanda’s Action Kids are interactive physical development classes that kids just love. Age range is 4 months up to 5 years. Each session lasts an action packed 45 minutes and children are encouraged through exercise and movement to have fun and let off steam. Many of the early learning goals

are achieved through the varied movements and activities and special needs children are well catered for and actively welcomed too. Amanda uses lots of different types of music throughout the classes including nursery rhyme classics as well as the latest pop sounds. Parents are encouraged to join in throughout the class and help out with some parachute fun too. A large assortment of props and musical instruments are used to stimulate creativity and encourage children to explore. Pay as you go classes.

Contact detailsVarious locations including

Chiswick Town Hall, Heathfield Terrace, London W4 4JN

Snakes and Ladders Syon Park, Brentford TW8 8JF

Tel: 0771 775 6445


Web site: www.amandasactionkids.co.uk

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AMICI Dance Theatre Company

AMICI is a unique dance theatre company integrating able-bodied & disabled artists and performers. AMICI was founded in 1980. Since then its productions and workshops have had a major impact challenging conventional attitudes about disability and the arts.

AMICI runs regular classes (once a week during term time) for its 30+ members at The Lyric, Hammersmith, in the newly built Education Room. AMICI are the resident community arts company at The Lyric. Classes every Wed (term time only) 7pm - 9pm. Cost: £5 (£2.50 concessions) per class. Contact for a trial term. For 18 + years.

AMICI gives workshop residencies, student placements, and performances throughout the year.

Contact detailsTurtle Key Arts, Ladbroke Hall, 79 Barbly Road, London W10 6AZ

Tel: 020 8964 5060

Fax: 020 8964 4080

Chickenshed

Chickenshed is one of the longest established performing arts group with an inclusive policy. They run workshops, BTEC, Foundation and MA courses amongst other things. The main difficulty is their location over in Southgate, which is a considerable distance from Ealing. However worth keeping an eye out for performances nearer to home.

In their own words:

“Chickenshed is a theatre company that makes beautiful and inspirational theatre working on the basis that everyone and anyone should be included, regardless of their background, age, race or ability. At Chickenshed, everyone is welcome, and everyone is valued.”

Contact detailsChase Side, Southgate, London N14 4PE

Tel: 020 8351 6161


Web site: www.chickenshed.org.uk

Creative Movement Classes

‘Creative Movement’ is an inclusive dance/movement group for children and young people with learning and/or physical disabilities and their siblings and friends. They have a wide age range amongst pupils and two teachers and a number of regular helpers. Everyone works on a voluntary basis and the parents pay a small contribution to cover the cost of the hall and to buy props and equipment. Parents meet for tea and coffee in a nearby room and join the group towards the end of the session, making it a social event for them as well as for their children. Currently £3.50 per child (Apr 2010). Children needing 1 to 1 easily accommodated at no extra cost.

Contact detailsMethodist Church, Pitshanger Lane, Ealing W5 1TT

Tel: 020 8579 9816


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Margaret Dance Academy

RAD Ballet and ISTD Tap Lessons, 2 –18 years.

Also does ballet classes for girls with additional needs from 14 years upwards (30 minutes).

Classes are by arrangement - please contact Margaret for details. Margaret also teaches at the Creative Movement classes – see Creative Movement in this section or contact Margaret.

Contact detailsMethodist Church, Pitshanger Lane, Ealing W5 1TT

Tel: 020 8740 0727


Web site: www.margaretdanceacademy.co.uk

Extreme Ability - Dance

A fun dance/exercise to music session led by a qualified dance instructor. For people with disabilities and additional/supported needs aged 14 years and above. Male and female participants welcome. Phone for dates and times as these change throughout the year.

Contact detailsGurnell Leisure Centre, Ruislip Road East, Ealing W13 0AL

Tel: 020 8825 6675


Impact Theatre Co & Outreach Network

Young and Creative Workshops from May – October

Performing and creative arts sessions for children with additional needs, focussing on learning, enabling expression and having fun. Participants will work with performers with learning disabilities and experienced facilitators and artists.

Group sessions on Saturdays and one to one sessions after school. Places must be booked in advance

Cost is free when funding is available, One to One sessions can also be arranged and paid for privately.

Contact detailsStirling Road Centre, Stirling Road, Acton W3 8DJ

Tel: 020 8896 3682


Web site: www.ionda.co.uk

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Interact

Interact works with young people aged 10 –16 years (or 18 for young people with special needs) in creative drama sessions using dialogue and stagecraft as well as music and movement. The group consists of up to 30 young people, 3 teachers, 2 helpers and a qualified nurse. Each year the group performs in a show created to use some of the skills gained through the experience. The sessions are free and are held at St John’s Centre, St John’s Road, Isleworth, Thur evenings from 4pm to 6.30pm and at United Reformed Church Hall, Hampton Hill, Hampton, Fri evenings from 4pm to 6.30pm.

Contact detailsThe Courthouse, Elm Grove, Walton-on-Thames, KT12 1LZ

Tel: 01932 254 333

Web site: www.interactnetwork.org.uk

Graeae Theatre Company

Graeae is a disabled-led theatre company that profiles the skills of actors, writers and directors with physical and sensory impairments. The artistic approach creates aesthetically accessible productions that include a disabled and non-disabled audience.

Graeae promotes the inclusion of disabled people in professional performance, has developed a unique programme of theatre training and offers writing commissions and training to disabled writers.

Contact detailsBradbury Studios, 138 Kingsland Road, London E2 8DY

Tel: 020 7613 6900


Web site: www.graeae.org

Wheelchair Dance Sport

Everybody Dance, with support from Brent Sports Service, has started a wheelchair dance sport club in Brent. Learn Ballroom and Latin Dance steps for wheelchair users and friends. The dance can be done with two wheelchair users or a wheelchair user and a standing partner.

Contact detailsStrathcona Social Education Centre, 5 Strathcona Road, Wembley HA9 8QR

Tel: 0779 551 7876


Farms and Animals

Ashford Community Farm

Community Farm.

Contact detailsNorth School, Essella Road, Ashford N24 8AL

Tel: 01233 620 518

Bocketts Farm Park

Here is what they have to say for themselves:

“Set in beautiful countryside, have a great day out whatever the weather! There are a large variety of friendly farm animals to feed and stroke and lots of attractions for all the

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family, both inside and out. Daily activities include pony rides, goat milking, tractor rides and pig racing. The covered area houses six trampolines and two Playbarns, including a 70ft, 4-lane astro slide. Outside are play trails, an amazing jumping pillow and giant slide tower. You can also pan for ‘gold’ at their Last Chance Mine! The Old Barn tearooms serve food all day and the Gift Shop also sells a range of garden play equipment and trampolines.”

There is disabled access to the indoor farm park, the shop and the tearooms. They also have a disabled toilet. Outside on the farm is mainly accessible but there are areas of uneven and sloping ground. Wheelchairs can travel on the tractor-trailer ride.

Contact detailsYoung Street, Fetcham, Nr. Leatherhead, KT22 9BS

Tel: 01372 363764


Web site: www.bockettsfarm.co.uk

Brooks Farm

A semi-working farm with traditional livestock. Visitors from outside the Waltham Forest area are charged £1 admission fee.

Resident animals include: Dairy short horn cows, Jacob and Ryeland sheep, Dairy goats, Gloucester Old Spot Pigs, Merlin the famous llama, also a whole area designated to small animals like chinchillas, gerbils, rats, hamsters, rabbits, guinea pigs and mice, chickens ducks and ponies

Contact detailsSkeltons Lane, Leyton, E10

Tel: 0208 539 4278


Freightliners City Farm

Freightliners farm provides an opportunity to see a real working farm in action. It is open all year round from Tuesday to Sunday and is open on Bank Holiday Mondays. It closes during Christmas week.

Check their website for other activities associated with the farm such as bee keeping and weaving courses.

Contact detailsSheringham Road, Islington, N7 8PF

Tel: 020 7609 0467


Web site: www.freightlinersfarm.org.uk

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Heathrow Special Needs Farm

Heathrow Special Needs Farm has been in existence since 1986 and sits on 10 acres of land, very close to Heathrow’s Terminal 5. It is a small charitable community farm with facilities designed to cater for people of all ages with special needs.

The Farm’s prime aim is:

to provide an experience of a working • farm to the local community;

dedicated to people with special needs • and disabilities;

providing therapeutic benefits • and fostering a sense of personal achievement;

to provide a place of happiness.•

They offer their visitors a number of activities, from walking around the farm, looking at and stroking the animals, to a more ‘hands on’ experience, where they can help to care for the animals including cleaning out, feeding and grooming of the ponies, donkeys and small pets such as rabbits and guinea pigs. Their extensive raised bed gardens and large poly tunnel provide an excellent environment to grow organic fruit, vegetables and flowers all of which are grown and cared for by visitors. The farm is also approved by the Riding for the Disabled Association and they have a number of friendly horses and ponies. Riding in their all weather arena provides much pleasure and many therapeutic benefits for all visitors, as it improves balance, co-ordination and boosts confidence.

Contact detailsBath Road, Longford Village, UB7 0EF

Tel: 01753 680 330


Web site: www.heathrowspecialneedsfarm.co.uk

Hounslow Urban Farm

Hounslow Urban Farm is one of the largest community farms in the capital.

There is a good variety of colourful and unusual farm animals close-up, including 5 types of pigs, Exmoor ponies, 15 breeds of chicken, goats, rabbits, ducks, geese and lots more.

Feeding time starts at 3.30 every day.

Contact detailsFaggs Road, Feltham TW14 0LZ

Tel: 020 8831 9658

Email: urban.farm@continental-landscapes. co.uk

London Zoo

London Zoo is the world’s oldest scientific zoo. With almost 750 different species of animal, ZSL London Zoo is a brilliant way to immerse yourself into the animal kingdom.

The Zoo, located in the north east corner of London’s Regent’s Park, is open every day of the year except Christmas Day.

There are six disabled parking bays near the Zoo entrance. Five are in the small car park opposite the entrance and one bay is immediately in front of the entrance. Otherwise there is pay and display parking on the Outer Circle and in the Zoo car park – about 500 yards along the same road. Disabled badge holders park free in the

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Zoo car park. It is outside of the congestion charging zone.

The Zoo is more than 170 years old and contains many old buildings, 12 of which are listed. However, most of the Zoo is accessible for wheelchair users and those with walking difficulties.

There are concessions.

Look out for the Special Needs Day which they have been organizing for one Saturday a year during the spring/summer. Families who have a child with a special need can get discounted tickets. The day is not advertised and you must apply by post for tickets. Application forms for tickets are distributed to organisations that work with children with special needs. A great day out.

Contact detailsOuter Circle, Regent’s Park, London NW1 4RY

Tel: 020 7722 3333

Web site: www.zsl.org/zsl-london-zoo

The Look Out Discovery Centre

Fantastic hands-on science and nature exhibition with over 90 exhibits. All accessible, except for the 22m tall tower, but there is a view from the top of the tower in the exhibition. All exhibits are bright, colourful and appealing to all ages. The Look Out is very popular with Special Educational Needs schools, groups and individuals.

Contact detailsNine Mile Ride, Bracknell, RG12 7QW

Tel: 01344 354400


Web site: www.bracknell-forest.gov.uk/leisure/ leis-the-look-out-discovery-centre.ht

Odds Farm Park

A combination of fun play and education at this farm. Puppet show at weekends and lots of seasonal activities such as sheep racing, easter egg hunt, pumpkin carving, Santa visiting and more.

Their website has some good animal orientated games.

Contact detailsWooburn Common Road, Wooburn Common, High Wycombe HP10 0LX

Tel: 01628 520 188


Web site: www.oddsfarm.co.uk

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The Tropical Zoo

The Tropical Zoo, based in London is a zoo that offers an indoor children’s zoo experience. Get involved in their animal encounter shows and learn more about and even touch various animals. You can also participate in feeding some of the animals and fish. This is hands on and interactive. Their animals are normally found in the tropics, so their entire Zoo is indoors and heated to tropical temperatures. They have a great range of animals including crocodiles, tarantulas, piranhas and snakes.

Note: The Tropical Zoo is looking for new premises – check before you go!

Mon to Sun: 10am to 5:30pm

Closed Christmas Day, Boxing Day and New Year’s Day.

Disabled Access, Free Parking

Contact detailsThe Tropical Zoo, Syon Park Brentford, TW8 8JF

Tel: 020 8847 4730


Web site: www.tropicalforest.co.uk

London Wetland Centre

105 acres of recreated wetland habitats, developed on the site of disused Victorian reservoirs. The centre provides a unique new education and leisure resource for London. The Peter Scott Visitor Centre allows people to get closer to wildlife by using new technology. TV monitors in the buildings allow people to see pictures beamed from the wilderness areas of the reserve and interactive computers allow the visitor to explore the secret world of birds

and wetlands wildlife. Free guided tours and bird feeds twice a day.

Open 7 days a week, except December 25th (Early closing on 24th December)

Summer 9.30am – 6.00pm (last admission 5.00pm)

Winter 9.30am – 5.00pm (last admission 4.00pm)

Step free access

Cafe

Contact detailsQueen Elizabeth’s Walk, Barnes SW13 9WT

Tel: 020 8409 4400


Web site: www.wwt.org.uk

General

Cafe Koochi

Cafe Koochi in West Ealing is very friendly and welcoming to people with disabilities. Simon, who runs the place, is very patient and understanding. The food is standard fare including all day breakfasts, jacket potatoes, burger and chips etc. You’re better off going after 2pm as it’s quieter then.

Contact details24, Broadway, West Ealing W13 0SU

Tel: 020 8840 1272

Kew Bridge Steam Museum

The museum is an ideal place to visit with the family. They have hands-on activities including a dressing up box with Victorian costumes, a wooden train kit, a large gears kit, Meccano, plus a working model

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of a beam engine that children can ‘drive’ themselves, and during the summer months a ‘Splashzone’ is available outside (You will get wet). At weekends their steam engines are operated for the public and between April and October the small railway runs on Sundays.

Contact detailsGreen Dragon Lane, Brentford, TW8 0EN

Tel: 020 8568 4757


Web site: www.kbsm.org

Ruislip Miniature Railway

The Ruislip Lido Railway provides rides on miniature trains, it’s a great day out for the whole family.

Close by is a children’s play area, woods and Ruislip Common

The railway provides a journey through some of the woods and on down to the Water’s Edge Pub & Restaurant.

Contact detailsWeb site: www.ruisliplidorailway.org

Watercress Line

Steam Engines - featuring Thomas the Tank Engine & Others

Formerly part of Britain’s national rail network between the towns of Alton and Alresford, this preserved heritage steam railway line is now operated by dedicated volunteers for the enjoyment of all.

Check their website for Thomas the Tank Engine Dates - normally in August.

Contact detailsThe Railway Station, Alresford, SO24 9JG

Tel: 01962 733 810


Web site: www.watercressline.co.uk

Leisure Centres and Swimming

Swim Safely Rules

Each swimming pool may have its own swim safely rules but these are the rules for Gurnell, Dormers Wells and Acton and are typical of swim safely rules. Please check with the specific pool you are attending to avoid being refused entry.

Non-swimmers and under 8s must be • accompanied by a competent adult swimmer (who can swim 25m using a recognized stroke).

No more than two non-swimmers • or under 8s to each competent adult swimmer.

The competent adult swimmers must • actively supervise under 8s and non-swimmers (no sitting on the side!).

Non-swimmers must remain in shallow • water and it is strongly recommended that they use armbands and/or rubber rings.

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Acton Swimming Baths

Fitness Centre•

Swimming Pool•

Group Exercise Classes•

Women Only Sessions•

Birthday parties•

Hoist•

Contact detailsSalisbury Street, Acton W3 8NW

Tel: 020 8992 8877


Web site: www.gll.org/centre/acton–swimming– baths.asp

Brentford Fountain Leisure Centre

Brentford Fountain Leisure Centre is a large multi–purpose leisure centre. They are currently putting the finishing touches to the centre following the extensive refurbishment work. On the first floor you will now find a stunning 100 station gym with the latest fitness equipment, a cafe–bar, a welcoming new reception area and a new creche. Downstairs, the wet and dry changing areas have been refurbished and fitted out to the highest standards. There are 2 new studios, both with sprung floors and now including a designated room for spinning. The sports hall and squash courts have also been refurbished.

Facilities include:

Café •

Crèche•

Flume •

Group exercise studio•

Gym •

Indoor badminton courts•

Indoor netball court •

Leisure pool •

Short mat bowls •

Soft play •

Sports hall •

Squash courts •

Swimming pool •

Trampolines •

Volleyball courts. •

Sessions for people with disabilities

Mon 7.30pm – 9.45pm

Swimming pool and the Leisure pool.

Mon: 7.00pm – 9.00pm

Badminton, table tennis, short tennis and short mat bowls. All free for people with a disability and their carers.

Contact details658 Chiswick High Road, London TW8 0HJ

Tel: 0845 456 6675

Email: Use contact form on web site

Web site: www.fusion–lifestyle.com/centres/Brentford_Fountain_Leisure_Centre/home

Coral Reef

A large leisure pool:

A place of warmth and enjoyment in • the Coral Pools

The excitement of their fast flowing • water.

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The thrill of the Snake River Flumes. •

The rush of the rapids. •

The gentle fun of the Little Corals • Toddlers Pools, now with new features including a large yellow diving bell and drench buckets to entertain the kids!

Giant slides not working during off peak times.

Contact detailsNine Mile Ride, Bracknell RG12 7JQ

Tel: 01344 862525

Email: coral.reef@bracknell–forest.gov.uk

Web site: www.bracknell–forest.gov.uk/coralreef

Dormers Wells Leisure Pool

Fitness Centre•

Swimming Pool – disabled session•



Sports Hall•

Indoor Facilities•

Outdoor Facilities•

Dance Studio(s)•

Birthday parties•

Trampolining•

Hoist•

Swimming session for people with a disability.

Families, including siblings, with a child with a disability are welcome. No swimming instructors or teachers present. Friday afternoons 5.30pm to 6.30pm Contact them for information on costs.

Contact detailsDormers Wells Lane, Southall UB1 3HX

Tel: 020 8571 7207


[email protected]

Web site: www.gll.org/centre/dormers–wells– leisure–centre.asp

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Gurnell Leisure Centre

A well established leisure centre with the following facilities:

Warm, walk in, recreational pool with • two small slides

Pool for lane swimming•

Pool for free swimming•


Health Suite•


Outdoor Facilities•

Dance Studio(s)•

Cafe / Bar•

Birthday parties catered for.•

Contact detailsRuislip Road East, Ealing, W13 0AL

Tel: 020 8998 3241


Web site: www.gll.org/centre/gurnell–leisure– centre.asp

Extreme Ability – Swimming Project

A structured swimming/aquatics session in the main shallow pool for children and young people with disabilities aged 13 years and over. Led by 2 qualified swimming teachers. The session is a drop in where the level and numbers can vary. Children need to be water confident and can bring a carer/support worker if required. The session is free and also encourages parents/guardians to attend.

Phone for dates and times as these change throughout the year.



New Chiswick Pool

Crèche, Group Exercise Studio, Gym, Health Suite and a Swimming pool. Hoist and disabled changing cabin. Limited free parking.

Mon Fri: 7.00am – 10.00pm

Sat, Sun: 8.30am – 6.00pm

Session for people with disabilities

Wed 9.00am-12.00am. Disabled person goes free. Carer £1.90

Contact detailsEdensor Road, Chiswick W4 2RG

Tel: 0845 456 6675

Web site: www.fusion–lifestyle.com/centres/ New_Chiswick_Pool

Teddington Pool

Offers swimming lessons to children with special needs this summer, both crash courses and weekly lesson. Experienced teachers work 1:1 in the main and learner pools.

Hydrotherapy Pool public sessions are available Mon 4.00pm – 6.00pm and Saturday 12.00pm –3.00pm. Booking is essential.


Hydro: 020 8977 9911

Northolt Leisure Centre

The new, multi-million-pound Northolt Leisure Centre opened for use in January 2010. It boasts a wide array of facilities.

Swimming pools

An eight-lane, 25-metre pool with 190 person viewing area. There is also a 12 x 16

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metre learner pool with a moveable floor, ideal for learning to swim, aqua based fitness classes and children’s parties.

Gym

The state-of-the-art gym includes:

120 fitness stations •

Cardiovascular equipment with • integrated TV screens and music

Free weights area•

Plasma screen entertainment•

Treatment room (available for hire)•

Personal trainers.•

Dance studio

Community hall

It can be used for a range of sports including:

table tennis•

short mat bowls •

martial arts.•

Opening hours:

Mon – Fri: 6.30am – 10.00pm

Sat, Sun: 8.00am – 8.00pm

Contact detailsNortholt Leisure Centre, Eastcote Lane North, Northolt UB5 4AB

Tel: 020 8825 7014


Libraries

Acton Library

The library stock includes a wide range of books including large print collection, audio books. There are books available in a range of community languages which include: Arabic, Hindi, Gujarati, Punjabi, Urdu, Farsi, Somali and Polish. There is a separate reference library and study room on the first floor. They also lend magazines on a weekly loan. 16p per day fine if late. No toilets.

Opening hours

Mon, Fri, Sat: 9.00am – 5.00pm

Tue, Wed, Thur: 9.00am – 7.45pm

Storytime Fri: 11.00am – 11.30am

Contact detailsHigh Street, Acton W3 6NA

Tel: 020 8752 0999

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Ealing Central Library

The library houses 20,000 new books and 85 public computers. There is a silent study room, free from mobile phones, a learning centre for adult education classes and a refreshment area and toilets for visitors. A new performance space has capacity for a seated audience of up to 80. Younger children have their own department complete with an activity area for book readings and other events. An illustrated story wall offers prompts for children and their parents or friends to create their own tales. Older children also have their own hugely expanded section. The teens’ department includes a space for gaming, complete with games to borrow or to play on the large flat–screen TV. Toilets.

Opening hours


Wed, Thur: 9.00am – 7.45pm

Sun: 1.00pm – 4.00pm

Toddlers Storytime Wed: 11.00am – 11.30am

Baby Bounce n’ Rhyme Fri: 10.00am – 10.30am

Contact details103 Ealing Broadway Centre, The Broadway, London W5 5JY

Tel: 020 8567 3670


Greenford Library

The library stock includes books in Asian languages, DVDs, CDs, videos, a wide range of large print and talking books. It has a

children’s section with activity sessions in the school holidays.

Greenford Reading Group meets on the last Thur of each month at 6.30 pm. The group reads a particular book each month. No toilets. Public toilets next door.

Opening hours

Wed, Thur: 9.00am – 7.45pm

Fri, Sat: 9.00am – 5.00pm

Toddler Storytime Tue: 2.30pm – 3.00pm

Contact detailsOldfield Lane South, Greenford UB6 9LG

Tel: 020 8578 1466


Hanwell Library

This library has a quick reference and a children’s section. An unusual feature is the collection of over 100 jigsaw puzzles that users can borrow like any other item of stock. It has an upstairs hall that is available for hire by arrangement.

Opening hours

Tue, Thur: 9.00am – 7.45pm


Baby Bounce ‘n’ Rhyme Thur: 10.30am – 11.00am

2.15am – 2.45pm

Closed for lunch: 1.00pm – 2.00pm

Contact detailsCherington Road, Hanwell W7 3HL

Tel: 020 8567 5041


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Home Library Service

The home library service will deliver books to your home every month if you are unable to visit your local library due to an illness, disability or if you are elderly

The service offers:

Books on tape, CDs, videos, DVDs•

Books in community and main • European languages

Books in ordinary and large print•

Talking books•

Home visits.•



Web site: www.ealing.gov.uk/services/leisure/ libraries/home_library_service/

Jubilee Gardens Library

The library has a full range of books, DVDs and talking books for adults, teenagers and children and there are PCs for public use within the library and in the waiting area for the health centre.

Opening hours



Baby Bounce ‘n Rhyme Thur: 11.00am – 11.30am

Toddlers Storytime Tue: 11.00am – 11.30am

Contact detailsJubilee Gardens Health Centre, Southall UB1 2TJ

Tel: 020 3313 7900


Mobile Library Service

The mobile library service calls weekly or fortnightly at 43 sites in the borough. To find out where, call the number below.

On the mobile library you can:

borrow books for four weeks and • children’s videos for two weeks;

borrow up to 15 items if you’re over • 11 years or over and 10 items if you’re under 11;

reserve items;•

look at the full library catalogue on the • web.


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NorthfieldsLibrary

Northfields Library provides a modern, welcoming community library with full disabled access. They have a comfortable seating area with newspapers and a selection of books. The library provides popular adult fiction and non–fiction, books in large print, a quick reference section and a small study area. DVDs and talking books are also available.They have public access computers and photocopying facilities. There is a also a bright inviting children’s area as well as books for teenagers and young people.There is a vending machine for hot drinks, a water cooler and also a toilet and baby changing facilitiesOpening hours



Toddlers Storytime Sat: 11.00am – 11.30am

Contact detailsNorthfield Avenue, Ealing, W5 4UA

Tel: 020 8567 5700


Northolt Leisure Centre Library

Books and DVDs for adults and children. You can also use the People’s Network computers for free and also join them for events and activities.

Opening hours

Mon – Fri: 9.00am – 7.00pm

Sat: 9.00am – 5.00pm

Baby Bounce ‘n Rhyme Wed: 11.30am – 12.00am

Toddlers Storytime Thur: 11.30am – 12.00am

Contact detailsNortholt Leisure Centre, Eastcote Lane North, Northolt UB5 4AB

Tel: 020 8825 7014

Northolt Library

This well–designed, modern, community library offers:

Extended opening hours•

Community rooms for events and • activities

Surgery room for private meetings and • consultations

Youth and children’s sections•

Learning Centre•

Reading areas•

A study room•

Computers with free internet access•

Events and classes•

A sensory garden•

Toilets•

Opening hours

Mon – Thur: 9.00am – 7.00pm


Toddlers Storytime Fri: 10.00am – 10.30am

Toy library Mon, Wed: 10.00am – 11.30am

Contact detailsChurch Road, Northolt, UB5 5AS

Tel: 020 8825 7296


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Perivale Library

The library keeps a collection of information covering local areas of interest such as the Selbourne Society Nature Reserve and holds the keys to admit members. Those wishing to join the reserve can apply at the library. No toilet.

Opening hours



Storytime Thur: 10.30am – 11.00am

Contact detailsHorsenden Lane South, Greenford, UB6 7NT

Tel: 020 8997 2830


Pitshanger Library

The library has a quick reference, a community information and children’s section. Photocopying facilities (a charge will be made for this service). No toilet.

Opening hours



Toddler’s Storytime Sat: 11.00am – 11.30am

Contact details143/145 Pitshanger Lane, Ealing, W5 1RH

Tel: 020 8997 0230


Southall Library

Southall Library has an extensive selection of books in Gujarati, Hindi, Punjabi and Urdu. There are also dual language books for children in Arabic, Bengali and Somali.

There is a large selection of audio–visual material in English and Asian languages. A separate reference library on the first floor includes a sizeable collection of books on the Indian subcontinent, a variety of Asian language newspapers and magazines and local community information.

There is also free internet–access terminals, a photocopier, CD Rom network, word processing and study space. CDs, DVDs and videos are available for loan. No toilet.

Opening hours



Sun: 1.00pm – 4.00pm

Baby Bounce ‘n Rhyme: Wed 11.30am – 12.00pm

Toddlers Storytime Mon: 11.30am – 12.00pm

Contact detailsOsterley Park Road, Southall, UB2 4BL

Tel: 020 8574 3412


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Toy libraries

The Council–Run nursery centres listed here offer a toy library facility, which is open to the public. Toys and books can be borrowed for one or two weeks for a small charge per item

Hanbury Nursery Centre Park Road North, Acton W3 8RX Tel: 020 8992 0724

Sure Start Toy Library Gainsborough Tower, Academy Gardens, Northolt UB5 5PF Tel: 020 8842 0220

Disraeli Nursery Centre 111 Hamborough Road, Southall, UB1 1HY Tel: 020 8813 8078

Hanwell Library Cherington Road, Hanwell W7 3HL Tel: 020 8566 2545

Northolt Library Church Road Northolt UB5 5AS Tel: 020 8825 7296 Mon, Wed: 10.00am – 11.30am

Windmill Nursery Centre 135–139 Windmill Lane, Greenford Tel: 020 8813 1295

P.E.S.T.S. ‘Special Needs’ Toy Library

Toys specifically for children age 0 – 5 years with disabilities, available on loan to any childminder/carer in the borough. Open 10.30am –11.30am every other Tuesday, in term time. Call for which Tuesdays. Email for a list of toys in the library.

Contact details

P.E.S.T.S., Heller House, 124 Northwood Road, Southall.

Tel: 020 8571 9954

Email: pests–[email protected]

West Ealing Library

This modern well designed library offers:

Youth and children’s sections•

Reading area•

Study area•

Self–issue terminals•

Computers with free internet access•

Events•

Toilets•

Opening hours


Wed, Fri, Sat: 9.00am – 5.00pm

Toddler’s Storytime Tue: 10.00am – 10.30am

Contact detailsMelbourne Avenue, Ealing, W13 9BT

Tel: 020 8567 2812


Wood End Library

The library has a large print collection, a jigsaw swapping service, talking books and a quick reference section. No toilet.

Opening hours



Baby Bounce ‘n Rhyme Thur: 2.30pm – 3.00pm

Storytime Sat: 11.00am – 11.20am

Contact detailsWhitton Avenue West, Greenford, UB6 0EE

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Tel: 020 8422 3965


Playgrounds and Parks

Battersea Park Adventure Playground

The Adventure Playground is designed for children aged 5 to 16 years. Children aged 5 to 7 must be accompanied by an adult (16+). Groups are welcome and although no booking is required, please ring the playground before you go to confirm. Opening times on weekdays during school terms are after school hours only.

Contact detailsBattersea Park, Battersea Bridge Road, London SW11

Tel: 020 8871 7539

Web site: www.batterseapark.org

Battersea Park One O’Clock Club

The One O’Clock Club is aimed at children aged 0–5 years. It provides indoor and outdoor play areas with a large sandpit, trikes, bikes and a dedicated baby area.

Contact detailsBattersea Park, Battersea Bridge Road, London SW11

Tel: 020 8891 2517

Web site: www.batterseapark.org

The Bunny Park

Sometimes known as Brent Lodge Park, but very rarely! A great park and very popular

with children. Good slopes for tobogganing – although snow would help!

Public toilets•

Café•

2 Playgrounds at either end of the • park

Animal centre •

Millennium maze•

Tennis courts•

Multi use games area•

Small car park with 2 disabled bays. Parking along Church Road and surrounding streets but parking restrictions are in force so do check.

Contact detailsEnd of Church Road, Hanwell, W7

Notes

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Camp Mohawk

Camp Mohawk is a day centre for autistic spectrum children and other special needs children. Adults are also very welcome. Facilities available are:

Special needs swimming pool, with • so–called ‘beach’ design and unusually warm water.

An adventure playground.•

Two sensory rooms, with music, light • effects, a water bed and things to touch.

A ball pool.•

A quiet room for children to watch • videos and chill out.

It is beautifully situated on the side of a hill, surrounded by woods, near Wargrave. It has great understanding of children with disabilities and extends a very warm welcome.

Parents must stay with their children but staff are on hand to try and ensure that parents get little breaks during the day. Siblings are also very welcome.

Contact detailsHighfield Lane, Wargrave, RG10 8PU

Tel: 01189 404045


Web site: www.campmohawk.org.uk

Cassionbury Park (Watford)

Situated near Watford Town tube, the park has lovely paddling pools and a children’s putting golf course.

Paddling pools are usually open between May and September.

Contact detailsShepherds Road, Watford,

Web site: www.watford.gov.uk

Coram’s Fields

Coram’s Fields has a wide variety of activities including extensive lawns for free play (and very suitable for family picnics), artificial turf sports pitches, a paddling pool, sandpits, a flying fox and other slides, a pets corner (with sheep, goats, ducks, hens and much more), vegetarian cafe, a nursery and drop–ins for under 5’s as well lots of other organised activities.

An adult cannot enter the area without a child. Facilities are disability friendly and there is a sensory area.

Contact details93 Guildford Street, London WC1N 1DN

Tel: 020 7837 6138

Diana, Princess of Wales Memorial Playground

The focal point of this Playground is an intricately detailed pirate ship; moored aground in a sea of immaculately kept fine white sand. Children up to the age of twelve can clamber up the rigging all the way to the crow’s nest, turn the giant wheel, explore the cabins and tug on a myriad of pulleys and ropes.

The mermaids fountains and rocky out crops are lovely spots to splash around in water and cool down. Beyond the land of pirates lie the tepee camp and the tree

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house encampment. With walkways slung between trees and ladders and slides it’s a fun, energetic environment for kids to play in.

The playground appeals to the senses: scented shrubs, whispering willows and bamboo are peppered across the area and football chimes ring out, while curvy sculptures are there to be stroked and prodded. Much of the equipment was designed so less active children with special needs can still enjoy the playground. This extends to those in wheelchairs.

Contact detailsBlack Lion Gate, Kensington Gardens, Broad Walk, London W2 2UH

Tel: 020 7298 2141


Web site: www.royalparks.org.uk/parks/ kensington_gardens/diana_playground.cfm

Gunnersbury Park

Gunnersbury Park has a large playground within the park. The playground is surrounded by a low fence with gates and is divided into two areas for younger and older children. Plenty of space within the fenced area for picnics. There is a roundabout that is low to the ground for easier access. There are toilet facilities in the park but a walk from the playground. Ornamental gardens including woods and lakes, nine hole golf, tennis courts, football and cricket pitches. There is also a very pleasant cafe.

Contact details

Popes Lane, Acton, W3 8LQ

Heathrow Gym and Sensory Room

Heathrow Gym has parents supervised play sessions in a huge gym. There are climbing frames, foam pits, trampoline, bars, beams, climbing wall and soft play equipment. Also incorporated into the main gym is a great sensory room with light and sound sensory equipment, ball pond and a soft play area. Sessions, which give access to the gym and sensory room, run for an hour on the hour.

Contact detailsGreen Lane, Hounslow, TW4 6DH

Tel: 020 8569 5069

Web site: www.heathrowgymnastics.org.uk

KIDS Chelsea Playground

KIDS provide a play service for disabled children and their families who are aged between 5 and 15 years of age. The environment offers adventurous play in a safe, creative and stimulating environment. Equipment and resources are available for the children to access as and when they want whatever their ability. Play is freely chosen, personally directed by the children so they choose when, how and what to play.

Contact detailsRoyal Hospital Grounds, London SW3 4SR

Tel: 0207 730 4093


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Leisure

King George’s Fields Playscape

The Playscape is an innovative playground that incorporates grass, sand, bark, mounds, trees and unusual climbing equipment to encourage adventure and creativity in play. There are traditional toddler and older children’s swings but the usual rubber safety matting is replaced by sand. There is a large flat basket swing which may be useful for disabled children and a wide slide accessible by climbing a hill, not steps. Aromatic plans and herbs are also planted around the playground making it a very sensory experience. There is wheel chair access along paths but sand does creep over paths and all equipment is surrounded by sand which could be a problem for wheelchair users. Gates immediately accessible to the playground can be closed but there is no fence dividing the playground from the grass in the rest of the park. There is then easy exit at the Lower Boston Road end of the grassed area.

There are no toilets in the park.

Contact detailsSt Marks Road, Hanwell, W7

Londonplay

A great organisation and web site dedicated to improving play opportunities for children in London. There is a complete listing of all playgrounds in and around London with short descriptions. Generally the playgrounds will all welcome children with disabilities but depending on the level of support your child needs you might need to be contact the playground for more information.

Contact details89 – 93 Fonthill Road, London N4 3JH

Tel: 020 7272 2464

Web site: www.londonplay.org.uk

Moberly Sports and Education Centre

Multi–Sensory Room. Light and sound sensory equipment, soft play area, and provision for under 5’s accompanied by their carer’s.

Contact detailsThe Quadrant, Kilburn Lane, London W10 4AH

Tel: 020 7641 4807

Northala Fields

You might well recognise this park even if the name isn’t familiar. It has three conical mounds which are clearly visible from the A40 as you drive out of London.

Disabled access/facilities - mixture of • tarmac and crushed brick/gravel path surfaces with some steep slopes, gently sloping spiral path to the panoramic viewpoint at the top of mound three. There is good provision of benches throughout the park.

Playgrounds – two well equipped • playgrounds for the under-14s, one at Dolphin Road and one with wooden style play equipment and a large slide in the centre of the park

Model boating lake, six fishing lakes, • and three wildlife ponds.

Focal core area has a colourful mosaic • celebrating learning in Northolt in 2008. The mosaic was designed by

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students from West London Academy and Belvue School and constructed by young people and members of the local community with the support of artists from Art4Space, the Northolt Extended Schools Project and Ealing Council.

Café – coming soon in new building.•

Public toilets – currently none but • coming soon in new building.

Contact detailsKensington Road, Northolt, UB5

Marble Hill Park One O’Clock Club and Adventure Playground

The One O’Clock club is aimed at children aged 0–5 years. It provides indoor and outdoor play areas with a large sandpit, trikes, bikes and a dedicated baby area.

Its neighbour, the Adventure Playground offers loads of rope swings, football and indoor games. Last year it installed a bird’s nest and a cradle swing, particularly suitable for children with limited mobility. Age range is 5 – 15 years old.

Contact detailsMarble Hill Park, Richmond Rd, Twickenham, TW1 2NL

Tel: 020 8891 2517

Web site: www.facebook.com/pages/Marble–Hill– Playcentres/302708886909?v=info

Ravenscourt Park

A lovely working park with plenty for everyone to do. There are sports facilities,

two playgrounds, one with a large paddling pool (summer only) and a large sand pit.

There are also two cafés in the park:

Fait Maison,• in the old stable block at the northern end of the Avenue.

Café Ginkgo,• part of the garden centre at the southern end of the Avenue. Toilets are adjacent to the café at the northern end of the Avenue, and at the children’s play area.

There is also a One O’Clock Club – For children under the age of 5, run by the local council and free.

Contact detailsKing Street, London W6

ReflectionsProject

A multi sensory environment for disabled children that is both stimulating and relaxing. Children can take control of sounds, smells, light, colours and movement, or can play in the soft–play area, which includes a ball pond, and giant tubes and tunnels. Also has a great outdoor play area with basket swings, a trampoline, go karts and sensory equipment.

Drop in sessions every other Sunday between 10am and 2pm. Call to check which Sundays.

Contact detailsHounslow Urban Farm, Faggs Road, Feltham TW4 0LZ

Tel: 020 8893 2429


Web site: www.hounslow.info/reflections

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Leisure

Snakes and Ladders

Huge indoor soft play area, also has a great playground outside. The indoor area is divided into separate sections to accommodate different age groups. It can get very busy, so try to go early or late.

They have recently introduced a registration scheme which will mean visitors will need to produce their membership card for entry and exit. There is a £5.00 administration fee for this.

Massive three tier playframe •

Slides, tunnels, ball ponds & rope • climbs

Dedicated zone for 2–5 year olds•

Toddlers separate safe play area•

Electric motor bikes •

Comfortable Café & Air Hockey •

Outdoor Adventure Assault Course •

There is a height restriction of 4ft. 8ins

Contact detailsSyon Park, Brentford, TW8 8JF

Tel: 020 8847 0946

Email: syonpark@snakes–and–ladders.co.uk

Web site: www.snakes–and–ladders.co.uk

Thames Valley Adventure Playground (TAPLOW)

Located in Bath Road, Maidenhead, TAPLOW is an adventure playground specially designed for people of all ages with special needs. There are crafts as well as indoor and outdoor equipment.

Opening hours

Tue – Fri: 10.00am – 4.00pm

Sat: 10.00am – 3.30pm

Contact detailsBath Road, Taplow, SL6 0PR

Tel: 01628 628 599


Web site: www.tvap.co.uk

Wacky Warehouse

Let your kids dash around the fantastic soft play structure with aerial runs, cargo nets and astro slides, plus there’s a safe toddler area with squishy, squashy shapes for little ones. All children using the play area must be under the age of 12 and below 4ft 9inches (1.45m) in height.

Contact details

Ballot Box Horsenden Lane, Greenford, UB6 7QL

Tel: 020 8902 2825

Myllet ArmsWestern Avenue, Greenford, UB6 8TE

Tel: 020 8997 4624

Web site: www.wackywarehouse.co.uk

Sports

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Sports

Sports16

Basketball

The Raiders

The Raiders, established in 1998, are the leading wheelchair basketball club in London and the South East. Raiders first team currently compete in the Super League placing the team amongst the top eight teams in the UK. The Raiders second team competes in the 1st Division South and the Raiders third team competes in the 3rd Division South.

Contact detailsFri: 8.00pm – 10.00pm Mile End Leisure Centre, 190 Burdett Road, London E3 4HL

Mon: 7.30pm – 9.30pm Kensington Leisure Centre, Walmer Road, London W11 4PQ

Tel: 020 8550 1794

Email: Contact form on website

Web site: www.raiders.org.uk

The Richmond Knights

Children and young people do not have to have a disability – friends can also go along. They provide specialist basketball wheelchairs. Costs around £5 per session.

Age 10 – 18 years. During term time on a Thursday 5.45pm – 6.45pm.

Contact detailsTeddington Sports Centre, Broom Road, Teddington TW13 9PJ

Tel: 020 8831 6134


Web site: www.richmond.gov.uk

Climbing

Indoor Wall Climbing – Ealing Extreme Ability

An opportunity to experience and learn wall climbing. Sessions cater for young people with learning disabilities and additional needs. Qualified coaching instructors, (experienced at working with special needs climbers) will lead sessions and all safety and climbing equipment is provided. (At present this activity is not suitable for wheelchair users). Run as part of a disability sports project called Extreme Ability targeting young people and adults with additional needs and disabilities enabling them to participate in sports and physical activity opportunities.

Over 14s only.

Contact details West London Academy, Community Sports Centre, Bengarth Road, Northolt,

Tel: 020 8825 6675


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Sports

Westway Sports Centre

An absolutely enormous climbing centre which can seem a little intimidating as everyone else seems to know what they’re doing! However they are very used to differentiation. Call to find out which session would be most appropriate.

Contact details1 Crowthorne Road, London W10 6RP

Tel: 020 8969 0992


Web site: www.westwaysportscentre.org.uk

Bowling

Airport Bowl

Bowling is a great activity for all ages and abilities. For young children or those with mobility problems a ramp can be used to roll the bowling ball. Rails can be raised on the lane to keep balls in play. Bowling by the game or the hour. Up to 6 per lane. Online booking advisable.

Contact detailsBath Road, Harlington, UB3 5AL

Tel: 020 8759 7246

Web site: www.airport–bowl.com

Tenpin Acton

Another great bowling venue. Online booking available and cheaper than booking by phone.

Contact detailsRoyale Leisure Park, Western Avenue, Acton W3 0PA

Tel: 0871 873 2450

Web site: www.tenpin.co.uk

Cycling

Companion Cycling

Companion Cycling offers an opportunity for anybody with special needs to cycle in Bushy Park with either a family member, friend or carer or alternatively with one of their volunteers. They have a wide range of specialised dual cycles and tricycles which enable almost anybody, whatever their age or level of ability, to enjoy the delights of Bushy Park.

There is an annual membership fee of £10 with a £2 charge for an hour–long session. Rides must be pre–booked and volunteers will fit a bicycle to your needs.

Contact detailsThe Stockyard, Hampton, TW12 2EJ

Tel: 020 8979 2003 or 07961 344 542


Web site: www.companioncycling.org.uk

The WiZZBike Foundation

Although the shop on Brentford High Street is now run by Evans. The WiZZbike Foundation continues its excellent work in sourcing and providing bikes for children and adults with disabilities.

Contact detailsCanute House, Durham Wharf Drive, Brentford TW8 8HP

Tel: 020 8569 8088


Web site: www.thewizzbikefoundation.org

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Sports

Football

Ealing Mencap Special Olympics Football

If you like football and are aged 18 or over come and join them every other Sunday afternoon.

Hours: 4.00pm – 5.00pm

Contact detailsGreenford Sports Centre, Lady Margaret Road, Southall UB1 2NP

Tel: 020 8575 2634

Feltham Bees Disabled Football Club

They have several teams. Adults, Under 16’s, Under 12’s and a Girls Team (14 years and over). They are a pan–disability club and cater for those with Down Syndrome, Autism, Cerebral Palsy, Learning Difficulties and more.

Contact detailsFeltham Community College, Browells Lane, Feltham, TW13 7EF

Tel: 020 8831 3032

Web site: www.feltham–bees.co.uk

Feltham Community College – Football in Hounslow

For boys and girls with disabilities and special needs aged 8 – 16 years and older is held on Saturdays from 9.30am –11.00am. During the holidays they run different activities including bowling, fishing, water skiing, cycling and rugby.

Contact detailsFeltham Community College, Browells Lane, Feltham TW13 7EF

Tel: 020 8831 3032 Ray Coleman

West London Panthers

A wheelchair football club. Saturday sessions 10 – 11am (Not every Saturday – call to check dates)

Contact detailsWest London Academy, Bengarth Road, Northolt, UB5 5LQ

Tel: 0845 262 9495

Web site: www.brentfordfccst.com

Horse Riding

AbbeyfieldsEquestrianCentre

There are lessons during the summer holidays and also pony mornings where a group of children go out together, have a lesson and do some grooming.

They have special needs provision. Speak to Sandra regarding special needs riding.

Contact detailsCharville Lane, Hayes, UB4 8PB

Tel: 020 8841 3362


Web site: www.abbeyfields.info

BarnfieldRidingSchool

They have special needs provision. Speak to Jackie Thomas regarding special needs riding.

Contact detailsParkfields Road, Kingston, KT2 5LL

Tel: 020 8546 3616

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Web site: www.barnfieldriding.org

Ealing Riding School

Although not a member of the Riding for The Disabled Association they are happy to organise private lessons for people with disabilities. Give them a call to discuss your needs.

Contact details17–19 Gunnersbury Avenue, Ealing, W5 3XD

Tel: 020 8992 3808

Goulds Green Riding School

They are an inclusive riding school and are experienced with children who have special needs.

Contact detailsThe Stables, Goulds Green, Hillingdon, UB8 3DG

Tel: 01895 446256


Web site: www.gouldsgreenridingschool.co.uk

Wormwood Scrubs Pony Centre

The Wormwood Scrubs Pony Centre was founded as a registered charity in 1989 to provide riding lessons, equine assisted therapy and horse care lessons to children and young people. It is situated on the edge of Wormwood Scrubs, an oasis of green in the inner city London borough of Hammersmith and Fulham and serves a diverse community from a range of social, economic and ethnic backgrounds, including people with disabilities. By working and caring for the animals, children learn how to work and integrate with each other within

a broad, supportive educational experience and in a safe, structured environment.

Contact detailsWoodmans Mews, London W12

Tel: 020 8740 0573


Web site: www.wormwoodscrubsponycentre.co.uk

Martial Arts

Grange Judo Club

Judo classes for children and young adults with additional needs and disabilities. Every Thursday in term times from 6.30pm–7.30pm. Can drop in for sessions. Lessons held at Hayes Rugby Club, Kingshill Avenue, Hayes

Contact detailsc/o 144 Fairholme Crescent, Hayes, UB4 8QY

Tel: 07802 425711


Web site: www.grangejudo.com

Multi Sports

Active Ealing

Active Ealing organises activities and competitions for people with disabilities of all ages and abilities. The aim is to provide activities and facilities that are accessible to everyone.

Contact detailsTel: 020 8825 6675Email: [email protected] site: www.ealing.gov.uk/services/leisure/ events/leisure_activities/disabilities.html

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Sports

Brentford FC Community Sports Trust

Although football is the name it’s certainly not the only game on offer here. The trust offer a variety of weekend and after school sports clubs including football, kayaking, indoor climbing, kurling, boccia, table tennis and powerchair football.

Have a look at the website for more information on what the trust has on offer.

Contact detailsHalf Acre House, 37 Half Acre, Brentford TW8 8BH

Tel: 020 8326 7030


Web site: www.brentfordfccst.com

Extreme Ability – Multi Sport

Sessions for people with disabilities and additional/supported needs aged 14 years and above. Includes Climbing, Curling, Boccia, Tri–Golf, Table Tennis and Basketball. Siblings, friends and family welcome to participate. Check for dates and times as these change throughout the year. Contact detailsWest London Academy, Bengarth Road, Northolt UB5 5LQ

Tel: 020 8825 6675


Extreme Ability – Multi Sport

Sessions for people with disabilities and additional/supported needs aged 14 years and above. Siblings, friends and family welcome to participate. Individual and group bookings welcome.

Phone for dates and times as these change throughout the year.

Contact detailsTwyford Sports Centre, Twyford Crescent, Acton W3 9PP

Tel: 020 8825 6675


Greenhouse Schools Project

Sports and Arts programmes for children aged 11 – 16 years, including children with disabilities.

Contact details2D Woodstock Studios, 36 Woodstock Grove, London W12 8LE

Tel: 020 8576 6118


Web site: www.greenhouseschools.org

Gym training

Gym training (special needs and recovery session) This session is ideal for people with disabilities or those recovering from injury or serious illness. Suitable for wheelchair users. Users can enjoy quality time in the gym.

Sat: 10.00am – 11.00am

Contact detailsGreenford Sports Centre, Lady Margaret Road, Southall UB1 2NP

Tel: 020 8575 9157


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Sports

PACE Charitable Trust

PACE is a voluntary organisation promoting the inclusion of young disabled people in sports and leisure activities. It was established in June 2004 following a consultation with young disabled people and their families.

They cater for young disabled people between the ages of 13 and 25 years old, their friends and siblings.

They aim to promote social inclusion by providing opportunities for disabled young people, their friends and siblings, to access and participate in inclusive sports and games. It also aims to empower young disabled people to become actively involved in the decision making processes affecting their lives.

PACE provides training opportunities for its members to develop sports leadership skills with a view to leading sessions. Their training has been provided by The London Sports Forum for Disabled People. They have developed strong links with the London Sports Forum and Active Ealing.

PACE also promotes creativity through inclusive dance and art workshops.

Every 2nd and 4th Saturday of the month, 2.00pm to 4:30pm.

Contact detailsHavelock Community Centre, Trubshaw Road, Southall, UB2 4XW

Tel: 07930 748 280


Web site: www.pacezone.org.uk

Other Sports

Disability Snow Sport UK

DSUK is a people centred organisation which believes that anyone regardless of their disability can take part in and enjoy snow sport. They have been going since 1976 and have many highly trained instructors and volunteers. Activities are available in the UK and overseas.

Contact detailsCairngorm Mountain, Aviemore, PH22 1RB

Tel: 01479 861272


Web site: www.disabilitysnowsport.org.uk

Werewolves of London

The Werewolves of London Special Ice hockey club offers a special/additional needs ice hockey programme for children and adults who have learning disabilities or additional needs due to Autistic Spectrum Disorders, Down Syndrome and other learning disabilities.

Beginners and non–skaters aged from 5 years up to and including adults are all welcome!

Contact detailsStreatham Ice Arena, 386 Streatham High Road, London SW16 6HT

Tel: 020 8644 1998

Web site: www.werewolvesoflondon.org.uk

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Sports

Sailing and Watersports

Albany Park Canoe & Sailing Centre

They have an inclusive policy for special needs children but it is advisable to speak to them to discuss the child’s specific needs. They have lots of options available and also run a youth club, which is inclusive.

Contact detailsAlbany Park Road, Kingston KT2 5SL

Tel: 020 8549 3066

Web site: www.albanypark.co.uk

British Disabled Waterski Association

The BDWSA will teach people to ski regardless of their disability. Their aim is to introduce newcomers to the sport who, due to their disability would not have considered the challenge previously possible. They hold regular beginner’s days but booking is advisable as they can get very busy. Give them a ring or check their website for more information and charges.

Contact detailsTony Edge Centre, Heron Lake, Hythe End, Wraysbury, TW19 6HW

Tel: 01784 483664


Web site: www.bdwsa.org.uk

Extreme Ability – Kayaking

An opportunity to experience and learn how to kayak. Sessions cater for young people with disabilities offering a fun and exciting introduction to this water sport

There are a number of boats and kayak’s available including ‘sit on top boats’ for novice kayakers, double kayaks for two people, Canadian Canoes for up to four people. For canal and river sessions, please bring a change of clothes. Ages 14 years and over.

Locations

Acton Swimming BathsSalisbury Road, Acton W3 8NW

Brentford Lock,At corner of Commerce Road and High Street, Brentford TW8 8HP

Brentford Boating ArchUnit, 5 Kew Bridge Arches, Strand on the Green, London W4 3NG

Contact detailsTel: 020 8825 6675 – Active Ealing


Hillingdon Outdoor Activity Centre

Everyone is welcome regardless of age, ability or aspirations. For individuals there is annual membership, boat parking, day membership and equipment hire. A full range of RYA, BCU and NSSA courses in Sailing, Windsurfing and Kayaking are available. There are also a number of thriving clubs and the centre facilitates year round dinghy racing.

Contact detailsDews Lane, Harvil Road, Harefield, UB9 6JN

Tel: 01896824171


Web site: www.hoac.net

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Sports

Thames Young Mariners

Thames Young Mariners has been offering courses to young people for many years. Experienced, qualified instructors deliver all the courses and in some cases accreditation can be achieved. Courses are available during the school holidays (Easter, summer half term and the summer holidays).

They have an inclusive policy, ring them for a chat.

Contact detailsRiverside Drive, Richmond, TW10 7RX

Tel: 01372 378 901


Wimbledon Park Sailing Club

They have an inclusive policy for special needs children but it is advisable to speak to them to discuss the child’s specific needs. Parents/carers are expected to look after children at break times. Summer courses must be booked through the council on 020 8545 3235.

Contact detailsHome Park Road, Wimbledon, SW19 7HX

Tel: 020 8947 4894 Erica Bishop


Sports Associations

Interactive – disability equality in sport

Interactive promotes the sporting interests of the one million disabled young people and adults in the Greater London area. Their purpose is to ensure that all disabled

people have more opportunities to get involved in a sport at a level of their choice.

There is a great News and Events section on the site which is worth checking for sporting activities!



Web site: www.interactive.uk.net

Sportability

As they say so succinctly – “Sport for People with Paralysis”

People with conditions such as spinal cord injury, stroke, MS, cerebral palsy and others, are able to participate in a variety of sports – scuba diving, sailing, archery, angling, abseiling, quad–biking, gliding, clay pigeon shooting, and more.

Again this is how they qualify their aims –

It is not about creating elite sportsmen and women. It is about trying something new and different. It is about the adrenaline rush, putting the buzz back into a life corralled by the wheelchair, taking the ‘dis’ out of disability and focusing on ability. To inspire the thought, “If I can do this, what else can I achieve?”

Contact detailsLaynes House, 626–628 Watford Way, London NW7 4RS

Tel: 020 8969 0089

Web site: www.sportability.org

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Sports

Table Tennis

Extreme Ability – Table Tennis

Sessions for people with disabilities and additional/supported needs aged 14 years and above. Phone for dates and times as these change throughout the year. Contact detailsWest London Academy, Bengarth Road, Northolt, UB5 5LQ

Tel: 020 8825 6675


Extreme Ability – Table Tennis

Sessions for people with disabilities and additional/supported needs aged 14 years and above. Phone for dates and times as these change throughout the year. Contact detailsSouthall Sports Centre, Beaconsfield Road, Southall, UB1 1DP

Tel: 020 8825 6675


Table Tennis with Ealing Mencap

Table Tennis on a Monday morning from 11.00am to 12.00 pm for people aged 16 and over at Southall Sports Centre. You can just play for fun or get some expert advice from their professional coach Jon who can help you to improve your game.

Contact detailsSouthall Sports Centre, Beaconsfield Road, Southall, UB1 1DP

Tel: 020 8567 9185

Notes

ComplementaryTherapies

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Complementary Therapies

Complementary 17 Therapies

This section describes some of the complementary or alternative therapies that are available. P.E.S.T.S., EalingHELP and Ealing Council do not favour or recommend any particular therapy and information is presented here to allow parents to make their own choice. The Henry Spink organisation, listed below, provides information about a wide range of such therapies.

ABA (Interventions for children with Autism)

What is ABA? “Applied” means practice, rather than research or philosophy. “Behaviour analysis” may be read as “learning theory,” that is, understanding what leads to (or doesn’t lead to) new skills. (This is a simplification: ABA is just as much about maintaining and using skills as about learning.) It may seem odd to use the word “behaviour” when talking about learning to talk, play, and live as a complex social animal, but to a behaviourist all these can be taught, so long as there are intact brain functions to learn and practice the skills. (That is the essence of the recovery hypothesis - that for many children, the excesses and deficits of autism result largely from a learning ‘blockage,’ which can be overcome by intensive teaching.) Please use the website link for more detailed information.

Contact detailsWeb site: rsaffran.tripod.com/aba.html

bibic

bibic offers practical family partnerships and through their assessment of your child, following which they can provide subsequent coaching and mentoring programming for the whole family. They hope to answer some of your concerns and provide practical solutions for you to regain control. They work with children who may have complex conditions from brain injury to autism, cerebral palsy to challenging behaviour and global developmental delay to ADHD. Even if you are simply not sure of what is possibly wrong, bibic can offer you help and support. They have over 37 years of experience, knowledge and trust. bibic aim to show families how to bring out the best in their children, how to build their children’s skills and independence in ways that will benefit all their lives, putting the family back in control.

Contact detailsKnowle Hall, Bridgewater, TA7 8PJ

Tel: 01278 684 060


Web site: www.bibic.org.uk

Brain Gym

Brain Gym® is an educational, movement based programme which uses simple movements to integrate the whole brain, senses and body, preparing the person with the physical skills they need to learn effectively. It can be used to improve a wide range of learning, attention and behaviour skills.

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Contact detailsEducational Kinesiology UK Foundation, 12 Golders Rise, Hendon, London, NW4 2HR

Tel: 020 8202 3141


Web site: www.braingym.org.uk

Brainwave South East

The Brainwave programme is aimed at realising the potential of children with developmental delay, a brain injury or a genetic condition, and who are between 6 months and 12 years old. Your child will be assessed at the centre nearest to you by a team of therapists, who will design a daily exercise programme which is suited specifically to your child. The objective is to achieve progress in all areas: physical, cognitive and developmental.

Contact detailsBeechen House, Rear of 16 Newland St, Witham CM8 2AQ

Tel: 01376 505290


Web site: www.brainwave.org.uk

Foundation for Paediatric Osteopathy

Osteopathy is a system of diagnosis and treatment which works with the structure and function of the body.

The maintenance of good mechanical function is essential to good health. Problems in the framework of the body can disturb the circulatory system or nerves to any part of the body, and affect any aspect of health.

Osteopaths work to restore the structure and function of the body to a state of balance and harmony, so helping the whole person.

What is Cranial Osteopathy?

Cranial osteopathy is a refined and subtle type of osteopathic treatment that encourages the release of stresses and tensions throughout the body, including the head.

It is a gentle yet extremely effective approach and may be used in a wide range of conditions for people of all ages, from birth to old age.

Osteopaths may have different specialities including sports injuries, paediatrics, and visceral osteopathy (treating the internal organs of the body). Cranial osteopathy embraces all of these.

Have a look at the Sutherland Society website (www.cranial.org.uk) for more information.

Contact details15 Woodbridge Street, London, EC1R 0ND

Tel: 0207 490 5510


Web site: www.fpo.org.uk

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Music Therapy

Music therapy is based on the understanding that all people have an innate responsiveness to music, that this instinct can remain in spite of physical, cognitive or emotional handicap, and that it can be used to build a relationship between the therapist and the client. Music therapists talk of the rhythm of their heartbeat, melody in the spoken voice, and turn-taking in the interaction between an infant and its mother as evidence that musicality is a basic human characteristic.

The idea is that everyone can respond to music, no matter how ill or disabled. The unique qualities of music as therapy can enhance communication, support change, and enable people to live more resourcefully and creatively.

Music therapy is a creative therapy using musical improvisation to form a therapeutic relationship. Clients need no previous musical experience.

See entries for Ealing Music Therapy and Otakar Kraus

PEACH

PEACH (Parents for the Early Intervention of Autism in Children) is a national charity which provides support and information to parents of children with autism.

Whether you are a parent of a child with autism, a professional, a practitioner already in this field, or quite simply interested, this site will:

introduce you to autism and give you • guidance on obtaining a diagnosis;

talk about early behavioural • intervention and how it could work for your child;

introduce you to the work of peach • and invite you to become a peach member;

explain how they support tutors and • established practitioners as well as parents;

inform you about training and • resources that will develop your skills and knowledge;

give you hope for the future of your • child.

Contact detailsThe Brackens, London Road, Ascot, SL5 8BE

Tel: 01344 882248


Web site: www.peach.org.uk

The Bobath Approach

The Bobath approach to the management of children with cerebral palsy was pioneered and developed by Dr Karel and Mrs Berta Bobath. Begun in the 1940’s the Bobath Concept is now well known and accepted in many countries as one of the leading approaches.

The main aim of treatment is to encourage and increase the child’s ability to move and function in as normal a way as possible. More normal movements cannot be obtained if the child stays in a few positions and moves in a limited or disordered way. The aim of management is to help the child to change his abnormal postures and movements so that he or she is able to

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comfortably adapt to the environment and develop a better quality of functional skills.

Change is Possible

Each child’s postural (muscle) tone is changeable, not only in relation to activity and moods, but also in response to being handled.

The first stage towards achieving functional activity is to enable the child with spasticity to be less stiff and the child with athetosis to gain some control over their posture and movement.

Therapists can help parents to understand their child’s needs. They are shown the most appropriate ways or positioning in helping their child to move and to incorporate these into the child’s daily life.

Contact detailsThe Bobath Centre, Bradbury House, 250 East End Road, East Finchley, London, N2 8AU

Tel: 020 8444 3355


Web site: www.bobath.org.uk

The Henry Spink Foundation

The Henry Spink Foundation is an independent charity created to help families of children with severe disabilities of all kinds. They provide information on conventional and complementary/alternative medicine, therapies and research relating to a very wide range of physical and mental disorders. They gather information from practitioners, specialists, associations and centres of excellence all over the world in order to provide detailed information from their

database. Particularly focussing on children, the Foundation also helps adults.

They also have a Resource Centre which can help. They say the following:

“Whatever the diagnosis (or even if there is no diagnosis) they hope to offer useful, detailed information which it may be difficult to source anywhere else. If you need a fuller picture of a condition, the names of possible treatment centres, the latest research on nutritional medicine, information about new drugs or suggestions for complementary therapies or the names of organisations which can help you further - simply ask us for information.”

Contact detailsc/o Montgomery Swann, Scotts Sufferance Wharf, 1 Mill Street, London SE1 2DE


Web site: www.henryspink.org

Notes

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The Listening Centre (Lewes)

The aim of the Tomatis method is to improve the auditory system. People who can hear sounds may not be able to take in the full spectrum of these sounds, which means they might find it difficult to listen properly. According to Dr Tomatis this happens when muscles are not working properly and through auditory stimulation it is possible to retrain the muscles of the inner ear so that it can function without distortion.

Conditions that may respond to the Tomatis Method:

ADHD•

Autism•

Cerebral palsy•

Children with learning difficulties•

Depression•

Down syndrome•

Dyslexia•

Dyspraxia, ME, Tinnitus.•

These sites will help you find out more about the Tomatis Method.

www.soundlistening.com

www.mozartcenter.com

Contact detailsThe Listening Centre (Lewes), Maltings Studio, 16A Station Street, Lewes BN7 2DB

Tel: 01273 474 877


Web site: www.listeningcentre.co.uk

National Institute of Conductive Education

The Foundation for Conductive Education is a national charity established in 1986 to bring Conductive Education from Hungary to the UK. The National Institute of Conductive Education opened in 1995 and is the Foundation’s centre of excellence, where the teaching system is practised and developed.

The National Institute of Conductive Education offers the following:

Parent and Child Service•

School Services for children, • comprising a nursery group and a primary age group.

Sessional and Training Services for • adults.

Research•

Training: a comprehensive range of • professionally oriented, skills-based training courses at all levels, including a BA in Conductive Education and Accredited Skills Training.

The National Library of Conductive Education which is located at the National Institute and is the open access academic collection of Conductive Education and associated subjects.

Contact detailsCannon Hill House, Russell Road, Moseley B13 8RD

Tel: 0121 449 1569


Web site: www.conductive-education.org.uk

Page 183


Notes

Page 184

Glossary

Glossary

Academies

Academies are all ability independent schools established by sponsors from business, faith or voluntary groups working in highly innovative partnerships with central Government and local education partners. Sponsors and the DCSF provide the capital costs for the Academy. Running costs are met in full by the DCSF. They provide free education to secondary age pupils of all abilities, including provision for children with special educational needs and have state of the art facilities, through which they offer a broad and balanced curriculum including a Specialism. Some CTCs have become Academies.

ABA

Applied Behaviour Analysis. A way of enabling learning and development. The programme involves teaching linguistic, cognitive, social and self help skills across all settings and breaking these skills down into small tasks that are taught in a highly structured and hierarchical manner. The focus is on rewarding or reinforcing desired behaviours and ignoring, re-directing or discouraging inappropriate behaviours.

ADHD and ADD

Attention Deficit Hyperactivity Disorder and Attention Deficit Disorder. ADHD and ADD refer to a range of behaviours associated with attention span. These may range from impulsiveness, restlessness and hyperactivity as well as inattentiveness.

Annual Review

A yearly review of a statement of SEN.

ASD

Autistic Spectrum Disorder, difficulties with social communication, making friends or relating to adults.

BESD

Behavioural, Emotional and Social Difficulty.

Carer

For the purpose of the Code of Practice (CoP) a carer is a person named by a local authority to care for a child for whom the social services department has parental responsibility.

Child Development Team (CDT)

A team consisting of various professionals to whom your child may be referred for assessment and therapies.

Code of Practice (CoP)

A guide to Local Education Authorities and schools about the help which can be given to children with Special Educational Needs. Local Education Authorities and schools must have regard to the CoP when dealing with a child with Special Educational Needs.

Community schools

In a community school:

the local education authority owns the • land and buildings, but the governing body is responsible for running the school;

the local education authority funds • the school;

the local education authority employs • the staff;

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Glossary

the local education authority provides • support services, for example, psychological services and special educational needs services;

the pupils have to follow the national • curriculum;

the admissions policy is usually • determined and administered by the local education authority.

Connexions

A service to help all young people aged 13 to 19 years prepare for the transition to adult life.

CTC (City Technology College)

CTCs are independent all-ability, non fee-paying schools for pupils aged 11 – 18 years. Their purpose is to offer pupils of all abilities in urban areas across England the opportunity to study a curriculum geared towards the world of work. The City Technology College (CTC) scheme has now come to an end and there will be no new CTCs and a number of CTCs have already become Academies.

DCSF

Department for Children, Schools and Families.

Differentiated Learning

The class teacher creates learning opportunities that are slightly different from the National Curriculum.

Early education settings

All preschool education provision such as nursery classes and schools, day nurseries and play groups.

Educational Psychologist (EP)

A psychologist employed by the Local Authority. He or she will play an important role in assessing your child’s educational needs and give advice to schools.

Foundation School

In a Foundation school the governing body is the employer and the admissions authority not the local authority. The school’s land and buildings are either owned by the governing body or by a charitable foundation.

Foundation Special School

A Foundation Special schools is a special school equivalent of the mainstream Foundation school catering wholly or mainly for children with statutory statements of special educational needs.

Foundation Stage

This begins when children reach the age of 3 and continues until the end of the reception year.

HI

Hearing Impairment

Inclusion

This is when children with Special Educational Needs are included in mainstream schools.

Independent School

An Independent School is any school which provides full time education for 5 or more pupils of compulsory school age, which is not maintained by a local authority or a non-maintained special school.

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Glossary

Independent School approved for SEN Pupils

An independent school approved for SEN pupils is a special school equivalent of an Independent School catering wholly or mainly for children with statutory statements of special educational needs. It has been approved by the DCSF for SEN provision.

Independent Special School

An Independent Special School is equivalent to an Independent School catering wholly or mainly for children with statutory statements of special educational needs.

Individual Education Plan (IEP)

This is a plan for a child, examining what they can do now, what they need to do next and how this is going to be achieved.

Learning Support Assistant (LSA)

An assistant providing in-school support for pupils with Special Educational Needs and/or disabilities. A Learning Support Assistant will normally work with a particular pupil or pupils, providing close support to those teaching him or her.

Local Authority (LA)

A local government body, responsible for providing education, carrying out statutory assessments and maintaining statements.

Mainstream

Used to define typical age appropriate development and education, i.e. for children without any educational needs, e.g. mainstream school.

Maintained schools

A local education authority maintained school is one that is funded by the local

education authority and will fall into one of the following categories:

Foundation School•

Community School•

Voluntary Controlled School•

Voluntary Aided School•

Nursery School. •

MLD

Moderate Learning Difficulties. This includes children who have difficulty with some of the work in school, and with keeping up with other children their age.

MSI

Multi-Sensory Impairment.

Named Officer

The person at the Local Authority (LA) who deals with your child’s case.

Note in Lieu

A document the Local Authority (LA) may produce, describing your child’s Special Educational Needs, explaining why a statement is not needed and setting out what should be provided for your child.

Occupational Therapy (OT)

Occupational therapists have a special understanding of the skills children need to play, learn and look after themselves e.g. feeding, drawing, writing etc. They can develop programmes to help children overcome their difficulties in these areas. They can also advise on specialist equipment such as chairs, wheelchairs and any adaptations you may need in your home.

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Glossary

PD

Physical Disability

Physiotherapy

The method of treatment which employs physical and natural measures, such as light, heat, water etc. Therapists are trained to assess motor abilities and to carry out treatment to promote better movement and bodily strength. They will also advise on aids and appliances.

PMLD

Profound and Multiple Learning Difficulties.

Parent Partnership Service

A service provided by the Local Authorities, which encourages partnerships between parents, Local Education Authorities, schools, voluntary organisations and other agencies.

School Action

At School Action, a child should be given support that is either extra to and/or different from that which the school gives through its usual differentiation. The school’s special educational needs co-ordinator (SENCO) and the teacher(s) collect all the information about the child and ask parents for more information. Once it has been decided what help to offer a child, this should be recorded on an Individual Education Plan (IEP), which should be reviewed regularly. You should be involved at all stages.

School Action Plus

If progress on School Action is inadequate, a child should move on to School Action Plus. At this stage the help will be more intensive and outside specialists will be involved, e.g. speech therapist, etc. They will give support,

advice and help set new targets for your child’s Individual Education Plan (IEP).

Short Breaks/Respite

The provision of services which provide breaks for parents of children with special needs. Care may be given in the child’s home, in the home of a respite foster family or in residential establishments. Short breaks are provided by social services departments, voluntary organisations or by support groups run by parents.

SLCN

Speech, Language and Communication Needs. This includes children who have difficulty expressing themselves or understanding what others are saying.

SLD

Severe Learning Difficulties. This includes children who have difficulty developing basic skills.

Special Educational Needs Code of Practice

A guide for early education settings, state schools and Local Education Authorities on the help they can give to children with special educational needs.

Special Educational Needs Coordinator (SENCO)

Every school has one of these. They are members of staff who are responsible for managing the Special Educational Needs of the school.

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Glossary

Special Educational Needs Tribunal

(SENDIST)

An independent body that hears appeals against decisions made by Local Education Authorities on statutory assessments and statements.

Special Educational Provision

The extra or different help given to children with Special Educational Needs.

Special School

A school that is just for children with Special Educational Needs.

SpLD

Specific Learning Difficulties (e.g. Dyslexia)

Statement of Special Educational Needs

A legally binding document that sets out a child’s educational needs and all the extra help they should get.

Statutory Assessment

A very detailed examination of a child’s Special Educational Needs, which may lead to a Statement or a Note in Lieu.

Transition Plan

A plan drawn up after the Year 9 Annual Review of a statement. It sets out the steps needed to move from school to adult life.

Unit or Centre

An educational establishment attached to a state school, providing specialist support for Children with Special Educational Needs. Each unit or centre will usually focus on one or two particular areas of need such as language for example.

VI

Visual Impairment

Voluntary aided schools

Voluntary aided schools are usually called religious schools or faith schools. In a voluntary aided school:

The land and buildings are normally • owned by a charity, often a religious organisation such as a church, but the governing body is responsible for running the school

The school is funded partly by the • local education authority, partly by the governing body and partly by the charity

The governing body employs the staff•

The local education authority provides • support services

The pupils have to follow the national • curriculum

The admissions policy is determined • and administered by the governors in consultation with the local education authority and other relevant schools in the area.

Voluntary controlled schools

A voluntary controlled school can also be called a religious or faith school.

In a voluntary controlled school:•

The land and buildings are owned by • a charity, often a religious organisation such as a church

The charity appoints some of the • members of the governing body,

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Glossary

but the local education authority is responsible for running the school

The school is funded by the local • education authority (the local education authority employs the staff

The local education authority provides • support services

The pupils have to follow the national • curriculum

The admissions policy is usually • determined and administered by the local education authority.

Voluntary schools

There are two types of voluntary schools:-

Controlled•

Aided•

Voluntary Organisations

Usually charities, which provide help and advice that is often linked to particular needs.

Page 190

Index

Index

A useful checklist with all the entries within the handbook arranged in alphabetical order.

1 Voice 1133Cs Counselling Service 783H Fund 1324Mation 892000 Club 128

AABA Interventions children Autism 178Abbeyfields Equestrian Centre 170Ability Hub 89AbilityNET 89AblePlay 122ACE (Advisory Centre for Education) 105Acorn Educational 123Action for Kids 58Action for Sick Children 92Active Ealing 171Activenture (London Youth) 132Acton Library 155Acton Swimming Baths 152Advice Guard (Citizen’s Advice Bureau) 92AFASIC 113After 16 124Airport Bowl 169Albany Park Canoe & Sailing Centre 174Allenby Primary School 48Amanda Action Kids 143AMICI Dance Theatre Company 144Amusica 123The Annual Review, The 41Arthritis Care 116Arts 140Art Spider 92ASBAH 116ASD Friendly 116Ashford Community Farm 146

Askability 92A Special Child in the Family 103Aspect 91Asperger’s Syndrome Foundation 128ASSIST 78Association of Speech & Language Therapists 114Asylum Aid 73Asylum Aid 92Audiblox 105Autism Friendly Cinema Screenings 140

BBadaguish Centre 133Barnfield Riding School 170Basketball 168Battersea Park Adventure Playground 161Battersea Park One O’Clock Club 161Beck Theatre, The 140Befriending / Buddying 27Behaviour Management 15Belvue School 50Bereavement 88Beyond Play 123bibic 178Big Tree, The 93Blissymbol Communication (UK) 114Blue Badge Map, The 60Blue Badge Scheme 59Bocketts Farm Park 146Bobath Approach, The 180Bowling 169Brain Gym 178Brainwave South East 179BREAK 133Breatheon UK 116Brent and Ealing Wheelchair Service 58Brentford FC Community Sports Trust 172Brentford Fountain Leisure Centre 152British Disabled Waterski Association 174British Dyslexia Association (BDA) 117Brooks Farm 147Bunny Park, The 161

Page 191

Index

CCafe Koochi 150Calvert Trust 133Cambian Education 106Camp Mohawk 162Carers Allowance 70Carers Centre 78Carer’s Emergency Card 78Carers UK 93Care Quality Commission, The 93Cassionbury Park (Watford) 162Castlebar School 49Central Middlesex Hospital 18Cerebra (Positively Different) 94The Challenging Behaviour Foundation 94Chelsea & Westminster Hospital 18Chickenshed 144Child Bereavement Charity 88Children at School 36Children in Need Team 32Children’s Centres and Nurseries with Specialist Provision 46Children’s Commissioner 94The Child Development Team 13Children’s Disability Register 32The Children’s Legal Centre (CLC) 74The Children’s Trust (Tadworth) 95Children with Disabilities Team 32Child Tax Credit and Working Families Tax Credit 71Child Trust Fund vouchers 71Choice and Voice 95Choice Support 96Choosing and Changing Schools 44Christians Against Poverty 96Climbing 168Closing the Gap 89Clothing & Footwear 88Colleges 53Colour Muse 111Community and Leisure Activities 27Community care packages 26Community Dentist 18

Community Paediatric Consultants and Registrars 13Companion Cycling 169The Compassionate Friends (TCF) 88Computer Cab 61Computers / IT 89Concept Training 96Contact a Family 73Contact a Family Autism Group 79Contact a Family – Ealing 79Contact a Family – Southall 79Coral Reef 152Coram’s Fields 162Coston Primary School 49Counselling 91Crafts 142Creating Solutions 117Creative Movement Classes 144Crelling Harnesses for the Disabled 91CReSTed 117Crick Software 90Crossroads 128Cycling 169

DDance and Theatre Groups 143DC Educational Service 106Deaf Children’s Society 128Definition Special Educational Needs 36Demand 91Dial A Ride 61Diana, Princess of Wales Playground 162Differentiated Learning 37Dimensions 96Direct Payments 28Direct Payments 72Disability Alliance 96Disability Law Service, The 74Disability Living Allowance (DLA) 68Disability Now 97Disability Snow Sport UK 173Disabled Person’s Railcard 61Dissimilis 111

Page 192

Index

Do2Learn 106Dormers Wells Leisure Pool 153Downsed International 118Down’s Heart Group 117Down’s Syndrome Association 117downsyndromeOK 118Drake Music Project, The 112Drayton Green Primary School 49Dyslexia Action 118Dyspraxia Foundation, The 118

EEaling Allergy Support Group 80Ealing Bladder and Bowel Health Service 17Ealing Central Library 156Ealing Centre for Independent Living 74Ealing Centre for Independent Living 80Ealing Crossroads – Caring for Carers 80Ealing Down Syndrome Group 80Ealing Dyslexia Association 81Ealing Dyslexia Association 118Ealing Early Years Childcare and Play 81Ealing Family Link Scheme 26Ealing Family Link Sitting Service 27Ealing, Hammersmith and West London College 53Ealing Hospital 19Ealing Mencap 81Ealing Mencap Special Olympic Football 170Ealing Mencap Travel Training Project 62Ealing Music Therapy Project 129Ealing Parents Forum 81Ealing Riding School 171Early Support Keyworkers 14Early Years Action 45Early Years Action Plus 45Early Years Consultants 44Early Years/Pre–school 44Educational Psychology Service (EPS) 42Ehlers–Danlos Support Group 118Elyons Foundation 119Energy Saving Trust 33Epilepsy Action 119

Epilepsy Action West London 82Equality and Human Rights Commission 75Equals 106Equipment & Aids 91ESCAN 12ESCAN Housing Surgery 33Exemption from Congestion Charge 62Exemption from Road Tax 62Extended Schools in Ealing 131Extreme Ability - Dance 145Extreme Ability – Kayaking 174Extreme Ability – Multi Sport 172Extreme Ability – Table Tennis 176

FFamily Fund Trust 97Family Information Service 82Farms and Animals 146Feltham Bees Disabled Football Club 170Feltham Community College 170Fledglings 91Football 170Foundation for Paediatric Osteopathy 179Fragile X Society 119Free Cinema Tickets 140Freedom Pass 62Freightliners City Farm 147Futureversity 132

GGabbitas 106Gateway Clubs 129General 150Genetic Interest Group 97Get Kids Going 58GFCF Diet (Gluten Free Casein Free) 113Gifford Primary School 49Goulds Green Riding School 171GPs 17Graeae Theatre Company 146Grange Judo Club 171Great Ormond Street Hospital (GOSH) 19Greenford Library 156

Page 193

Index

Greenhouse Schools Project 172Gunnersbury Park 163Gurnell Leisure Centre 154Guy’s Hospital 20Gym training 172

HHanwell Library 156Healthcare Travel Costs Scheme 63Heartline Association 120Heathrow Gym and Sensory Room 163Heathrow Special Needs Farm 148Hemihelp 120The Henry Spink Foundation 181HE Special 107Hillingdon Outdoor Activity Centre 174Holidays with Help 134Home Library Service 157Horse Riding 170Hospitals 18Hounslow Urban Farm 148Housing Needs, Access and Support 34Housing Options 97How to access short breaks 28Hyperactive Children’s Support Group 120

II CAN 114Impact Theatre Co 145Inclusion 107Inclusive Technology 90Income Support 71Independent Schools in Ealing 51The Individual Educational Plan 40Indoor Wall Climbing 168Information & Support 92Insights Independent School 51Interact 146Interactive – disability equality in sport 175Interconnections 98Introduction 36IPSEA 107

JJohn Chilton School 50Joseph Rowntree Foundation 107Joy of Sound 111Jubilee Gardens Library 157

KKew Bridge Steam Museum 150Keytools – Making IT easier. 90Kidscape 108KIDS Chelsea Playground 163Kids Cookery School, The 142KIDS Ealing Young Carers Project 82Kids Out 134King George’s Fields Playscape 164

LL’Arche Communities 98Law for All 72Learning Curve 124Learning / Education 105Leisure Centres and Swimming 151Libraries 155Listening Centre (Lewes), The 182Little Art Room, The 143Livability 98Local Groups / translation 82Log Cabin, The 129, 131London Councils – Taxicard Section 63Londonplay 164London SEN Mediation Service 108London Wetland Centre 150London Zoo 148Look Out Discovery Centre, The 149Lyric Hammersmith 141

MMacIntyre 98Makaton Charity, The 115Mandeville School 50Marble Hill Park One O’Clock Club and Adventure Playground 165Margaret Dance Academy 145

Page 194

Index

Martial Arts 171Maths Extra 108Matthew’s Friends 113Melody 112Mencap 99Meningitis Trust 120MERU 92Me Too & Co (Richmond) 83Moberly Sports and Education Centre 164Mobile Library Service 157Moorfields at Ealing Hospital 20Moorfields Eye Hospital 20Motability Scheme 64Multi Sports 171Music 111Music Therapy 180

NNanogames 90NASEN 108National Autistic Society 120National Centre for Independent Living 99National Centre Young People Epilepsy 121National Children’s Bureau 99National Deaf Children’s Society 121National Family Carer Network 99National Institute Conductive Education 182National Society for Epilepsy, The 121NATSPEC 111Network 81 108New Chiswick Pool 154NHS Direct – 0845 4647 100Northala Fields 164Northfields Library 158Northolt Leisure Centre 154Northolt Leisure Centre Library 158Northolt Library 158North West Thames Genetic Services 16NSPCC 100Nutrition 113

OOCD UK 121

Odds Farm Park 149Oily Cart 141One for Us 100Online version 60Orchyd 134Otakar Kraus Music Trust 112Other Sports 173Out of Borough Placements 52Overnight and day care 26

PPACE Charitable Trust 173Paediatric Audiology 16Paediatric Dietitian 16Paediatric Occupational Therapy 14Paediatric Physiotherapy 14Paediatric Speech and Language Therapy 15Paper version 60Parent Line Plus 100Parent Partnership Service, The 39Parents in Touch 83Parent to Parent 101Passenger Assistance National Rail 64Patient Advice & Liaison Service (PALS) 22PEACH 180People First 101People You May Meet at School 40Prince’s Trust, The 102Perivale Library 159Personal Travel Advisors 136P.E.S.T.S 83PHAB 101Pharmacists/Chemists 18Pilgrimage Trust 136Pitshanger Library 159Playgrounds and Parks 161Polka Theatre 141Portage 44Pre–School Learning Alliance 45Primary Schools with Specialist Provision 48Princess Royal Trust for Carers 102Pyramid Educational (PECS) 114

Page 195

Index

QQuest 88 59

RRackety’s 88RADAR 134Raiders, The 168Rathbone 109Ravenscourt Park 165READY 64Reflections Project 165Remploy 102Repairs & Adaptations Service 34Residential services 25Respond 91Reviewing the short break provision 29Richmond Knights, The 168Richmond upon Thames College 54RJ Cooper and Associates 90Royal Association for Deaf people 130Royal Marsden Children’s Unit, The 22Royal National Institute for Deaf 122Royal National Institute of the Blind 122Royal National Orthopaedic Hospital 21Royal Orthopaedic Hospital 21Ruislip Miniature Railway 151

SSAFE 16Sailing and Watersports 174Scope 84Scout Holiday Homes Trust, The 136SEBDA 102Secondary Schools Specialist Provision 50SEN and Disability Tribunal 42SEN Legal 109Sense – UK Deafblind Charity 122SEN Teacher 109Short break services (Easy Table) 30Shooting Star Children’s Hospice, The 26Siblu 135Sibs 103Signing In Deaf Club 84

Singing Hands 114Sitting service 27Snakes and Ladders 166Social Care Online 74SOS!SEN 110Southall Library 159South Thames College 55Special Educational Needs Admin 38Special Education Needs Transport 43Specialist Health Visitor 13Special Kids in the UK 103Special Olympics Great Britain 103Speech & Communication 113Sportability 175Sports Associations 175Springhallow School 50St Ann’s School 51Statutory Assessment 37STEPS 124St John’s Handicapped Children’s Trust 135St John’s Primary School 50St Thomas’ Hospital 21Support for Living 84Sure Start Acton 84Sure Start South Northolt 85Sybil Elgar School 51Syndromes & Conditions 116

TTable Tennis 176Table Tennis with Ealing Mencap 176Talking Point 115Teachernet 110Teddington Pool 154Tenpin Acton 169Thames Valley Adventure Playground (TAPLOW) 166Thames Young Mariners 175Therapeutic short breaks 28The WiZZBike Foundation 169Three Wings Trust 85Tourettes Action 122Toy libraries 160

Page 196

Index

Toys, Games & Sensory Equipment 122Trans–active 124Transition 124Transition Information Network (TIN) 125Transport for London 65TreeHouse 103Trefoil 137Tropical Zoo, The 150Turtle Key Arts 142Twenty One & Co 85Ty Glyn Davis Trust 137Types of short breaks 25

UUnicorn Theatre 142

VVitalise 137

WW13 Youth Club 130Wacky Warehouse 166Watercress Line 151Watermans Art Centre 142Werewolves of London 173West Ealing Library 160West London Panthers 170West Middlesex University Hospital 22West Thames College 56Westway Sports Centre 169What is a short break? 24Wheelchair Dance Sport 146Whizz–Kidz 59Wills and Trust Funds 75Wimbledon Park Sailing Club 175Winston’s Wish 88Wood End Library 160Working Families 75Working Families 104Wormwood Scrubs Pony Centre 171

YYoung Ealing 104Young Foundations 104Young Mencap 104Young Minds 104

5th edition 2010

Documents

Addition Needs Handbook