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@ExpoNHS│#Expo18NHS
Interoperable citizen-facing apps
Accelerating delivery locally and regionally
Expo 2018
Andy Payne
NHS Digital
@ExpoNHS│#Expo18NHS
The Personal Health Record (PHR) Toolkit supports the delivery of citizen-facing solutions being developed via…
- Integrated Care System population health solutions- LHCRE programme- STP funding- Maternity & Child Health programmes
to establish an integrated digital channel between the citizen and health and care professionals, enabling the citizen to be a peer in their own care team, and support them to live healthier lives for longer
How can this help you to help citizens?
@ExpoNHS│#Expo18NHS
Contributing to the longitudinal record
Longitudinal Personal Health Record
Digital Redbook
Birth Teens 20s 40s 60s 80s
Mental health app
Maternity Digital tool
Sources
Integrated Care Record including
Acute
GP
Mental Health
Community
Social Care Personal
Budget
Social Care
IBD App
Breast Cancer
App
Citizen
Smart Watch
Fitness App
Breast Cancer Screening
Results
CervicalScreening
Results
Well WomanCheckReport
@ExpoNHS│#Expo18NHS
Citizen-facing digital tools – where are we now?
@ExpoNHS│#Expo18NHS
To support local and regional organisations to design
and implement quality citizen-facing digital tools, so that
anyone in England can access the tools they need, when
they need to
Goal
@ExpoNHS│#Expo18NHS
• Support citizen-facing innovation happening at regional &
local levels
• Learn from existing solutions – don’t reinvent the wheel
• Accelerate implementation and adoption
• Promote re-use of nationally provided services at
regional/local level
• Prevent fragmentation and promote interoperability
Toolkit goals - how
@ExpoNHS│#Expo18NHS
What have you asked for?
Key standards useful for the development of PHRs
Guidance on areas such as procurement, interoperability, benefits content for business cases
Case studies on successful PHRs showing good practice and lessons learned
An interactive map showing where existing or in-development PHRs are, with filtering and fields to allow organisations to contact each other for peer to peer sharing.
Preapproved templates such as data sharing agreements
Updates on latest technology impacting PHRs and what the direction of travel for PHRs are
@ExpoNHS│#Expo18NHS
https://digital.nhs.uk/
phrtoolkit
The PHR
Adoption
Toolkit
available now
@ExpoNHS│#Expo18NHS
The PHR Adoption Toolkit – available now
https://digital.nhs.uk/phrtoolkit
@ExpoNHS│#Expo18NHS
The Toolkit – what’s coming?
Delivery Guidance
Interop Standards
Horizon Scanning
Community
Maturity Model
@ExpoNHS│#Expo18NHS
Sign-up to get involved
digital.nhs.uk/phrtoolkit
We need your involvement
Local and Regional PerspectiveWessex / Hants and IOW / Southampton
@ExpoNHS│#Expo18NHS
digital.nhs.uk/phrtoolkit
Thank you! @digipershealth
@ExpoNHS│#Expo18NHS @ExpoNHS│#Expo18NHS
Expo 2018
Adrian ByrneCIO at UHS
Chair of CIO network
INTEROPen board member
@ExpoNHS│#Expo18NHS
@ExpoNHS│#Expo18NHS
• Set out our vision for PHR in 2012
• Implemented an “untethered” model
• A patient centred approach
• Work across the UK – various hospitals
• Have led the development for Prostate Cancer UK
programme
PHR - A new future ?
@ExpoNHS│#Expo18NHS
@ExpoNHS│#Expo18NHS
@ExpoNHS│#Expo18NHS
@ExpoNHS│#Expo18NHS
Cloud based PHR
Patient Portal
Lifestyle
LTC App
Services
Client Portal
Untethered, Open, Personal Health Records
@ExpoNHS│#Expo18NHS 21
Open
Platform
PHR
Front End
ApplicationsOpen APIs
Digitally Mature Personal Health Records (PHRs)
@ExpoNHS│#Expo18NHS
@ExpoNHS│#Expo18NHS
Specialised
Interactive
BroadBasic
• View information
• Newsletters
• General Trust
communications
• Appointment
reminders
• Gathering patient
input e.g.
demographics
• General surveys
e.g.
PROMS/PREMS
• Provide results
• Condition specific
• Targeted surveys e.g.
pre appointment
• Educational Videos
• Reminders for tests/
medication checks
• Protocol driven
information push
• Wearables
• Pre op assessment
• Consent
• Post discharge follow
up
• Support self
management
• Virtual interactions
• Customised surveys
and feedback loops
(red flag questions)
Digital Maturity Model for PHRsbased on KLAS model
@ExpoNHS│#Expo18NHS
HardEasy£
££££
Return
Basic viewing
Niche connected apps
Wellbeing/Lifestyle
Untethered
• Open APIs
• Identity service
• Data sharing
Content management model
Professional level data content
Personal Health RecordsStart Right – or else!
@ExpoNHS│#Expo18NHS
Enabling patient centred care
@ExpoNHS│#Expo18NHS
Open platform
@ExpoNHS│#Expo18NHS
Open platform
x nUHS
@ExpoNHS│#Expo18NHS
OpenPHR is Light on Function
• Allow federated identity for apps
• Control proxy access
• Provide APIs to apps/developers
• Security
• Test environment
@ExpoNHS│#Expo18NHS
OpenPHR is Light on Function
@ExpoNHS│#Expo18NHS
Some practical uses... Online journals
@ExpoNHS│#Expo18NHS
Some practical uses... Electronic document
delivery
@ExpoNHS│#Expo18NHS
Some practical uses... Secure messaging
@ExpoNHS│#Expo18NHS
Some practical uses... Medications
@ExpoNHS│#Expo18NHS
Some practical uses... Clinician approved patient information
@ExpoNHS│#Expo18NHS
@ExpoNHS│#Expo18NHS
@ExpoNHS│#Expo18NHS
@ExpoNHS│#Expo18NHS
Supported Self Management (SSM) Workshop• 3.5 hour workshop
• 8-12 men
• Way of working (Ground rules)
• Introduction to SSM (quiz)
• PSA Tracking & Surveillance
• Health MOT
• Fear of recurrence
• How to contact the clinical team?
@ExpoNHS│#Expo18NHS
Challenges
• Working with the clinical teams – time to develop
content
• Patient engagement
• Patient registration / consent
• Technology
• Lack of national standards
@ExpoNHS│#Expo18NHS
Improved care for staff
New roles Faster
recalls
Safety netMore
effective
@ExpoNHS│#Expo18NHS
Where next?
• Growing use of the My Medical Record
- New use cases, more sites (blueprint)
• Apps ecosystem around OpenPHR
- Open APIs (FHIR etc)
• The STP/LHCRE strategy
@ExpoNHS│#Expo18NHS
• “I was invited to use My health record and asked to weigh myself using the digital scales once a week. As I was going through a rough patch it was good to know that there were people keeping an eye on how I was doing. If my weight went down too low then I would automatically get contacted by a member of the clinical team.
• I also used the messaging function in the system. It is comforting to have a simple way of telling people you are not feeling well” – IBD patient