A Young Person’s A Young Person’s experienceexperience

Sophie BroereSophie Broere

Trustee CLICSargentTrustee CLICSargent

Talking cancer dayTalking cancer day

• 99thth February 2008 February 2008

• Many young people on- and off-Many young people on- and off-treatmenttreatment

• 15 topics15 topics

Friendship, Support and Friendship, Support and SocialisingSocialising• Staying in contact with friendsStaying in contact with friends

- Internet- Internet

- Information- Information

• Gaining new friendshipsGaining new friendships

- Regular meetings- Regular meetings

EntertainmentEntertainment

• Equipment loans – Play stations, Equipment loans – Play stations, DVD/Videos etcDVD/Videos etc

EducationEducation

• School:School: * Positive experiences* Positive experiences

- Home tutoring - Home tutoring - Teachers on ward liaised with school - Teachers on ward liaised with school

TeachersTeachers- Schools flexible and aware what’s going - Schools flexible and aware what’s going

onon* Negative experiences* Negative experiences

- Better communication- Better communication- Keep up not catch up- Keep up not catch up- Post 16: more funding- Post 16: more funding- Increasing understanding- Increasing understanding

Age appropriateAge appropriate

• ChoiceChoice

• ListeningListening

• LanguageLanguage

IndependenceIndependence

• ChoiceChoice

• OverprotectionOverprotection

• InformationInformation

FamilyFamily

• OverprotectionOverprotection

• SiblingsSiblings

MedicalMedical

• CommunicationCommunication

• LanguageLanguage

• Awareness GPAwareness GP

FoodFood

• DieticiansDieticians

• Quality of foodQuality of food

• Solution?Solution?

Financial supportFinancial support

• InformationInformation

FertilityFertility

• GenderGender

Peer Peer Support/Mentor/AdvocatSupport/Mentor/Advocatee

• Social support Social support groupsgroups

• Buddy systemsBuddy systems

Long-term EffectsLong-term Effects

• InformationInformation

• Follow upFollow up

• TransitionTransition

FitnessFitness

• End of treatmentEnd of treatment

• Physiotherapist/Personal Physiotherapist/Personal trainertrainer

InsuranceInsurance

• Getting insurance (health, life, Getting insurance (health, life, travel, care)travel, care)

• AwarenessAwareness

EmploymentEmployment

• QualificationsQualifications

• AwarenessAwareness

ConclusionConclusion

• Many issues during and after treatmentMany issues during and after treatment

• Many issues appear to be manageableMany issues appear to be manageable

• Discussion with service users vitalDiscussion with service users vital

ANY QUESTIONS??ANY QUESTIONS??