1

Richard EcclesHead of Commissioning LD

NHS Lincolnshire – With inspiration from from Douglas

Adams

A HITCHHIKERS GUIDE TO DATA COLLECTION

2

A Note from the Author

3

Our heroes

4

Meet the Vogons

InformationGovernance

Too hard to doDifferent IT

systemsNo LD register

Takes too long

No benefit

5

The solution

?

6

Don’t Panic Data can be collected

from Primary care systems

You can run reports from Health check templates

NHS numbers allow you to explore Acute activity

With consent you can have a central register

7

The Answer is 42 but what was the question again?

• Use clear definitions• Use an existing

information set• Focus on Primary

care first to collect and compare QOF data

8

Why Bother?• Data + Knowledge

= intelligence

• Can you really afford to be the last to know when things are going wrong

9

Data uses – Mapping services

10

Data uses – Health profiling

11

Data uses – Access to screening

12

Using the registers to identify acute activity

Primary Diagnosis Elective Non Elective All Elective Non

Elective All

Infectious & Parasitic Diseases 1.8% 1.0% 0.2% 0.9% 0.5%Cancer 7.6% 0.7% 3.5% 21.9% 1.6% 14.1%Endocrine - Diabetes 1.3% 1.1% 1.2% 0.1% 0.5% 0.3%Endocrine - Other 1.0% 2.4% 1.8% 1.1% 0.8% 1.0%Diseases of Blood 3.5% 1.1% 2.1% 2.6% 0.9% 2.0%Mental Disorders 3.5% 4.8% 4.3% 0.2% 1.9% 0.8%Diseases of the Nervous System 8.9% 12.8% 11.2% 2.8% 2.3% 2.6%Circulatory Disease - CHD 1.1% 0.7% 1.4% 3.9% 2.4%Circulatory Disease - Heart Failure 1.5% 0.9% 0.0% 0.8% 0.3%Circulatory Disease - Stroke 1.1% 0.7% 0.1% 1.4% 0.6%Circulatory Disease - Other 3.2% 1.8% 2.3% 3.5% 3.9% 3.6%Disease of Respiratory System - COPD & Asthma 0.7% 0.4% 0.2% 2.0% 0.9%Disease of Respiratory System - Other 1.3% 8.6% 5.6% 1.4% 3.5% 2.2%Disease of Digestive System 21.9% 8.1% 13.8% 14.9% 8.1% 12.3%Disease of GU System 6.7% 4.6% 5.5% 8.1% 5.3% 7.0%Pregnancy & Childbirth 4.2% 2.5% 1.4% 22.8% 9.7%Diseases of Skin & Subcutaneous Tissue 2.5% 3.1% 2.9% 1.9% 1.9% 1.9%Disease of Musculoskeletal System 6.0% 2.6% 4.0% 14.5% 3.6% 10.3%Congenital Anomolies 3.5% 1.4% 0.3% 0.0% 0.2%Symptom and Signs 5.4% 19.4% 13.7% 6.3% 17.8% 10.7%Injury & Poisoning 2.5% 17.0% 11.1% 1.6% 12.5% 5.8%Suicide and Self Inflicted Injury 0.0% 0.0%Diseases of Eye and Adnexa 11.1% 0.4% 4.8% 9.1% 0.5% 5.8%Other 10.2% 1.1% 4.8% 6.3% 3.3% 5.1%Grand Total 100.0% 100.0% 100.0% 100.0% 100.0% 100.0%

Learning Disabilities Other

13

Acute Activity

0

40

80

120

160

200

240

280D

ASR

Per

1,0

00

Learning Disabilities

Other

1.Emergency Admissions for Adults (16+) – 2009/10

14

1.A&E attendances for Adults (16+) – 2009/10

0

100

200

300

400

500

600

700

800D

ASR

Per

1,0

00

Learning Disabilities

Other

Supporting Consortia development

15

Thank you for listening

And Remember Don’t Forget your Towel