A Foundation for Growth - Jourdan Marie Hathaway · PDF fileA Foundation for Growth If the world were a perfect place, ... BLUMENFELD, MD (407) 767-6411 MARK CHAET, MD (407) 228-4774

A Foundationfor Growth

The skill to heal. The spirit to care.

A PLA

CE FO

R CHILDREN

Walt Disney Pavilion at Florida Hospital

for Children

A Foundation for GrowthIf the world were a perfect place,

all children would be healthy, smiling

and free from illness.

But the world isn’t perfect.

What if there was a place where entire

families coping with a threatening childhood

illness could find comfort as well as medical

expertise? What if that place was more like

home and the physicians more like family?

What if a child could be ill, but still play and

act like a child? And, what if it was a place

where the child’s parents could trust that

they were getting unparalleled medical care?

The world may not be a perfect place, but our dream is to make it a

better one. At the Walt Disney Pavilion at Florida Hospital for Children,

the future of medical care for our community’s children is being shaped

into something extraordinary. We

are dreaming of a place where

technology meets care in a unique

way designed for the needs of

families. Together we can make

it a reality. Together, we hold the

future of our children and the

promise of health.

A PLA

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R CHILDREN

W A L T D I S N E Y P A V I L I O N A T F L O R I D A H O S P I T A L F O R C H I L D R E N

The Skill to Heal. The Spirit to Care. Florida Hospital is a not-for-profit provider of

exceptional health care that is supported by generous

donors worldwide. We are built on traditions of expert

skill and an uncompromising spirit to care. These

traditions were established by medical pioneers in 1908

and have continued throughout our century of existence.

Our Special Brand of Kid Care

Even when children are in the hospital,

they want and need to play, to exercise

their imagination and to dream. The place

where dreams come true and the hospital

that exists to heal the mind, body and spirit

have united to create a special place for

children of our community and beyond.

Welcome to the Walt Disney Pavilion at

Florida Hospital for Children.

Table of Contents01 Key Messages

02 Fast Facts and Services Overview

03 Physicians

04 Florida Hospital Foundation Mission

05 Funding Opportunities

06 Pediatric Bone Marrow Transplant

(BMT) Program

07 The Center for Child Development

08 Pediatric Advanced Surgery Program

09 Pediatric Cardiology Program

10 Pediatric Neurology and Epilepsy

Program

11 Neonatology Program

12 Healthy 100 Kids – Our Health

and Wellness Program

13 Florida Hospital for Children

Foundation Board

14 Closing Message

15 Mission DVD

I N T R O D U C T I O N A N D T A B L E O F C O N T E N T S

• Asthma, allergy and immunology

• Bone marrow transplant

• Cardiology

• Childhood development

• Craniofacial surgery

• Dental surgery

• Dermatology

• Diabetes

• Ear, nose and throat

• Emergency medicine

• Endocrinology

• Epilepsy

Pediatric Specialty Services

• Gastroenterology

• Hematology

• Health and weight

management

• Intensive care medicine

• Kidney transplant

• Neonatology

• Nephrology

• Neurofibromatosis

• Neurology

• Neuro-oncology

• Neuropsychology

• Neurosurgery

• Oncology

• Ophthalmology

• Orthopaedics

• Plastic surgery

• Pulmonology

• Radiology

• Rehabilitation

• Sleep disorders

• Surgery

• Urology

A Nurturing Place for Kids to HealThe Walt Disney Pavilion at Florida Hospital for Children is a state-of-the art

facility created just for kids, featuring an assembly of highly skilled pediatric medical

practitioners who have dedicated their lives to helping children of all ages regain their

health and maintain wellness. What’s more, the family-oriented atmosphere not only

promotes healing, but also creates an environment that is soothing and compassionate,

warm and nurturing, to help ease the stress and anxiety associated with a hospital stay.

We encourage the wonder of a child and recognize it as an important motivator for

lifelong learning and healing. Thanks to the hard work of our staff, our board-certified

physicians and the Disney® Imagineers, you’ll quickly see that we have a very different

approach to health care for children. Our entire focus is on healing your child — mind,

body and spirit.

The Walt Disney Pavilion at Florida Hospital for Children is known for:

A team comprised of more than 90 highly trained pediatric sub-specialists, covering

more than 30 pediatric sub-specialties

An 81-bed Neonatal Intensive Care Unit (NICU) with private, family-centered rooms

Children’s Emergency Room staffed 24 hours a day, seven days a week with a state-of-

the-art lighting system that allows patients to create customizable environments

Pediatric imaging services, including PET, 3D imaging, MRI and 64-slice CT

Specially trained therapists known as the Child Life Team that help children cope with

hospitalization through education and play

Music and pet therapy programs (pet therapy program features our furry friend, Murray)

Pediatric oncology programs on the forefront of research and clinical trials

The region’s first neuro-oncology and neurofibromatosis programs designed specifically

with children in mind

Minimally invasive pediatric surgeries resulting in less pain, less scarring and shorter

recovery time

F A S T F A C T S A N D S E R V I C E S O V E R V I E WF A S T F A C T S A N D S E R V I C E S O V E R V I E W

ACADEMIC PEDIATRICS

ALLERGY AND IMMUNOLOGY

ALLERGY AND IMMUNOLOGY

ANESTHESIOLOGY

ROBERT QUIGLEY, MD(407) 646-7070

STEVENROSENBERG, MD

(407) 678-4040

DENISEGONZALEZ, MD(407) 566-0020

ERICKUNICHIKA, MD

(407) 667-0444

SABIHA SIDDIQUI, MD(407) 646-7070

ANNHOLT, MD

(407) 667-0444

CARLOSJACINTO, MD(407) 678-4040

TIMOTHYROEDIG, MD

(407) 667-0444

SANTIAGOMARTINEZ, MD(407) 672-0060

KEVINDE LA ROZA, MD

(407) 667-0444

Schedule an AppointmentAt the Walt Disney Pavilion at Florida Hospital for

Children, our very special brand of care is focused

entirely on providing children with a stress-free

environment in which to heal. At every turn is a

new friend to be found, whether it’s a member of

our world-renowned medical team, our caring Child

Life specialists who explain all the procedures in

kid-friendly terms, our furry pet therapists or our

song-singing Adventure Guide. At the Walt Disney

Pavilion at Florida Hospital for Children, we see

miracles every day. They are the children who

depend on us to deliver the very best pediatric care

in the region.

To schedule an appointment at the Walt Disney

Pavilion at Florida Hospital for Children, call

(407) 303-KIDS (5437), and a member of our team will

assist you.

P H Y S I C I A N SS C H E D U L E A N A P P O I N T M E N T

Experienced, Compassionate Doctors

The physicians at the Walt Disney Pavilion at Florida Hospital for Children are

not only known for their experience and expertise, but their wonderful bedside

manner as well. They know all too well that a hospital can be a very frightening

place for a child, so they work hard to put little ones at ease while providing the

legendary care for which we’re known. Our board-certified physicians adhere to

the highest standards of patient care in a wide variety of sub-specialties.

P H Y S I C I A N S P H Y S I C I A N S

ANESTHESIOLOGY CARDIOLOGY HOSPITALISTS

CARDIOLOGY INTENSIVE CARE/HOSPITALISTS

EMERGENCY MEDICINE NEONATOLOGY

GASTRO-ENTEROLOGY NEONATOLOGY

BONE MARROWTRANSPLANT INFECTIOUS DISEASES

CHILDHOODDEVELOPMENT

DENTAL SURGERY

EMERGENCYMEDICINE

ENDOCRINOLOGYGASTRO-

ENTEROLOGY

HEMATOLOGY/ONCOLOGY HOSPITALISTS NEPHROLOGY

KENNETHSPALDING, MD(407) 667-0444

AYODEJI OTEGBEYE, MD(407) 894-8768

AGUSTIN RAMOS, MD

(407) 581-6080

AARONGODSHALL, MD(407) 894-8556

DENNISHERNANDEZ,

MDMedical Director(407) 303-9732

CARLOSALANA, MD

(407) 303-1602

SANJAYKHUBCHANDANI, MD

(407) 438-3557

LEWISOTERO, MD

(407) 303-1602

PAULGORDON, MD Medical Director(407) 303-2080

OLUDAPO SOREMI, MD

(407) 894-8768

SANDRACELY, MD

Medical Director(407) 898-6005

PAULHALCZENKO, MD

(407) 894-8556

JORGE DAABOUL, MDMedical Director(407) 896-2901

WINSLADE A.BOWEN, MD

(407) 303-1602

CLIFFORDSELSKY, MD


THOMASWISWELL, MD(407) 303-1602

ROBERT E.TAINSH, JR., MD(407) 667-0444

RALUCA PAPADOPOL, MD

(407) 894-8768

SUMBAL SATTAR, MD

(407) 902-2866

BENGUEDES, MD


SHAKUNTALA JANWADKAR, MD

(407) 303-9732

HILTONBERNSTEIN, MD

(407) 303-1602

FOUADHAJJAR, MD


D. JIMRAWLINGS, MD(407) 303-1602

THOMASCARSON, MD(407) 902-2866

CATHYLAMPRECHT, MD

AFSOONELMORE, DDS(407) 629-6464

HEIDIHERRERA, MD(407) 894-8556

KONDA REDDY, MD

(407) 896-2901

NEAL GOLDBERG, MD

(407) 303-1602

VIVEKDESAI, MD

(407) 894-8768

ROBERTMATHIAS, MD(407) 896-2836

JORGEGARCIA, MD

(407) 581-6080

DAWNSOKOL, MD

AUDREYBOWEN, MD

(407) 303-9732

ALBERTSALTIEL, MD


SANGEETABHARGAVA, MD

(407) 898-1210

EDUARDO J.LUGO, MD

(407) 303-1602

SHANI-KAY CHAMBERS, MD

(407) 894-8768

BRENDA MONTANE, MD(407) 896-2836

P H Y S I C I A N SP H Y S I C I A N S

NEUROLOGY OTOLARYNGOLOGYPLASTIC

SURGERY

NEUROLOGY

NEUROSURGERY

RADIOLOGY

OPTHALMOLOGY SURGERY UROLOGYWEIGHT

MANAGEMENT

ORTHOPAEDIC SURGERY

PULMONARY AND SLEEP DISORDERS

PULMONARY AND SLEEP DISORDERSNEUROPSYCHOLOGY

OTOLARYNGOLOGY

KARENBAKER, MD

(407) 897-3544

IZAKKIELMOVITCH, MD

(407) 422-4921

MURTUZAKOTHAWALA, MD

(407) 897-3544

SHIVANIVERMA, MD

(407) 898-2767

ERIC TRUMBLE, MDMedical Director(407) 236-0006

CHRISTOPHERANDERSON, MD(407) 303-7280

RAYMUNDWOO, MD


DINADAHAN, MD

(407) 208-0708

FRANKSTIEG, MD

(407) 647-4601

MICHELLEDOLSKE, PhD(407) 303-7991

GREGORYLOGSDON, MD(407) 303-1944

ROBERT S.GOLD, MD

(407) 767-6411

W. RALEIGHTHOMPSON, MD


MICHAEL KEATING, MDMedical Director(407) 303-5781

ANGELAFALS, MD

Medical Director (407) 303-9200

CHERYLCOTTER, MD(407) 253-1000

CARLBARR, DO


JAMES KOSKO, MD

(407) 253-1000

ANANTHIRATHINAM, MD

(407) 218-4444

JANECOOK, DO

(407) 303-1944

LOUISBLUMENFELD, MD

(407) 767-6411

MARKCHAET, MD

(407) 228-4774

WILLIAM ZINK, MD

(407) 894-0088

ASHRAFEL-BOHY, MD(407) 649-1848

AKINYEMIAJAYI, MD

(407) 898-2767

PATRICKGORMAN, PsyD(407) 644-7792

PETERSALAZAR, MDMedical Director(407) 303-1944

JAMIEIKEDA, MD

(407) 767-6411

JOSHUAGOTTSCHALL, MD


JASNAKOJIC, MD

(407) 649-1848

KIMBERLYJUSTICE, PhD(407) 898-2767

MICHAELWESTERVELD, PhD


LAURA VARICH, MD


ADAMFENICHEL, MD(407) 647-2287

ERIC JARYSZAK, MD(407) 253-1000

ORTHOPAEDIC SURGERY

LIFESTYLE SHOT HERE/NO DOC

Funding Opportunities Support from our community is what really brings the Florida Hospital experience full

circle. Generosity and compassion from people like you keep our community thriving.

With the support of financial contributions, there are many ways to make a difference

that enable us to better serve the community about which we care so much.

Here is an at-a-glance view of our Walt Disney Pavilion at Florida Hospital for

Children funding priorities. Moreover, the following pages serve to show what happens

beyond the numbers. Hear firsthand how these programs truly change lives.

Pediatric Bone Marrow Transplant (BMT)

The Walt Disney Pavilion at Florida Hospital for Children is the only site in Central Florida with an approved pediatric transplant unit. Our highly skilled team utilizes bone marrow and cord blood transplantation to treat everything from cancer to sickle cell and 70 other blood related diseases. Studies show that patients who receive transplants close to home heal better, not to mention the reduced strain on the family unit by not having to travel out of town. Donors have the opportunity to save a life by providing a transplant to someone who otherwise could not afford it.

Center for Child Development (CCD)

The CCD provides diagnostic evaluations, medical management and support to premature infants and children with behavioral and developmental problems. It is the only site in Central Florida providing these services in a comprehensive setting. While the CCD treats more than 2,400 patients each year, there are

another 1,500 children who have to be turned away due to limited space and professional staff. The CCD team utilizes a holistic approach to treat children and treats the poor and vulnerable, including uninsured premature infants, who comprise more than half the population. The CCD is in desperate need to expand to reduce the six-month waiting list and keep up with the demand for services.

Pediatric Neurology and Epilepsy

The Walt Disney Pavilion at Florida Hospital for Children is becoming a Level IV Epilepsy Center, which is the highest designation for pediatric epilepsy. With the addition of a leading neurosurgeon in summer 2011, a pediatric epileptologist, as well as a 3T, high-tech operating suite, the Walt Disney Pavilion at Florida Hospital for Children is positioned to become a destination hospital for pediatric neurology. Our goal is to build a program that will provide the best treatment for all neurology needs in the Central Florida community and beyond, as well

as conduct research studies that will ultimately lead to the cure of epilepsy.

Neonatal Intensive Care Unit (NICU)

With the expansion of the Walt Disney Pavilion at Florida Hospital for Children, our Level II NICU unit on the second floor is in need of renovation and new equipment. The goal is to provide the same high-standard ambient environment that we have on the rest of the pediatric floors.

Healthy 100 Kids

Healthy 100 Kids is a unique program designed to teach children and families how to live healthier lives, and combat the epidemic of childhood obesity and the related health complications. The program is growing by leaps and bounds, and we are looking for partners to stand with us as we expand and grow. Philanthropic and strategic partnerships are key for the growth of this program, since more than 80 percent of

our patients are uninsured.

Working to Provide a Margin of ExcellenceSince 1908, the Florida Hospital mission has been to

extend a healing ministry that makes our community

a healthier place to live. We are fulfilling this mission

by building the most advanced health care programs

and services in Central Florida.

We are in a new era of medical progress. Here at

Florida Hospital, we have made great strides in

cancer research, bone marrow transplants, fighting

childhood diseases and bringing lifestyle medicine to

the residents of Central Florida.

Generous support to the Florida Hospital Foundation keeps our hospitals

on the cutting edge of technology. Thoughtful gifts of all sizes make possible the

equipment and research our doctors and scientists need to make the important

discoveries today that will help build a healthier tomorrow.

Today, more than ever, Florida Hospital’s programs depend on contributions from our

patients and friends. Your gifts can help tremendously in achieving the highest standard

of health care. We are a not-for-profit hospital. You can feel confident the dollars we

earn and the decisions we make benefit the people who live within our community.

F L O R I D A H O S P I T A L F O U N D A T I O N M I S S I O NF L O R I D A H O S P I T A L F O U N D A T I O N M I S S I O N

PhysicianHighlight

Advanced Pediatric Surgery. Rapid Recovery. Nationally known for our pediatric surgery program, the Walt Disney Pavilion at

Florida Hospital for Children has performed more minimally invasive surgeries than

any other hospital in the region. Thanks

to these advances in surgery, children

are able to recover quicker and

experience fewer complications. Many

procedures just require a few stitches

to close. Everyone on our surgical team

– from the board-certified surgeons and

pediatric specialists to the pediatric

nurses – is focused on the same goal:

healing pediatric surgery patients

through the power of medicine, the

gift of compassion and the belief that

miracles happen every day.

The Vision for Program Funding Support One of the defining visions of the Walt Disney Pavilion at Florida Hospital for

Children is to create a nationally and internationally recognized center for pediatric

surgical advancement focused on innovative technology and quality outcomes. To

this end, the Walt Disney Pavilion at Florida Hospital for Children has joined with

the Nicholson Center for Surgical Advancement to establish the Center for Advanced

Pediatric Surgery. This Center is built on the platform of providing our patients

with the latest in minimally invasive surgical techniques and the latest training and

education for our physicians. The Center for Advanced Pediatric Surgery focuses on

areas of surgery, including ENT (ear, nose, and throat), epilepsy, gastroenterology,

general pediatric surgery, neurosurgery and urology and will expand into additional

specialties in the near future. Your donation would help us expand into these new

specialties as well as help provide the equipment and resources needed for surgical

training and education.

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Expertise in performing advanced minimally invasive surgery is vital. It ensures that the techniques and strategies used do not affect the child’s ability to grow properly and gives them the best chance at returning to everyday normal activities as quickly as possible. For more than five decades, Florida Hospital has performed a wide range of ground-breaking surgeries giving families hope and encouragement for healing.

“We try to perform all surgical procedures using minimally invasive techniques whenever possible,” Raleigh Thompson, MD, says. “From major procedures like thoracic surgery to more common procedures such as gastro-intestinal and sinus surgery, advancements in technology allow us to operate with tiny incisions in almost any area of surgical specialization. For these children, that means reduced pain, smaller scars and expedited recovery. For us, that means a job well done.”“Take for instance esophageal atresia,” he continues. “This is a life-threatening congenital defect that prevents a newborn from being able to eat due to a structural abnormality of the esophagus. Surgery is the only treatment. Up until pretty recently, this meant using a rib spreader and cutting through muscles. It was a very invasive procedure. Today, we can use a minimally invasive surgical technique that requires a tiny three-millimeter incision that barely leaves a scar. We were one of the first hospitals to start using that technique.” The Center for Advanced Pediatric Surgery offers training on these techniques to surgeons around the world. In addition to onsite courses, there are four new pediatric operating rooms opening that are equipped to transmit live surgical feeds. This connectivity allows these advances in surgery, many of which are developed right here, to be taught worldwide. “Newest on the horizon is the use of robotics for pediatric surgery,” Dr. Thompson says. “We are one of only a few hospitals in the country that are equipped with the technology to use robotics in this area. We are exploring computer models and developing new procedures that are truly on the forefront of surgery.”

W. Raleigh Thompson, MDCenter for Advanced Pediatric Surgery

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Providing a Unique Approach to Child-friendly Oncology Care The Walt Disney Pavilion at Florida

Hospital for Children provides a full range

of pediatric hematology, oncology and

bone marrow transplantation education,

research, treatment and care. We

understand that having to deal with cancer

can be very overwhelming both physically

and mentally. This is true not only for the

child, but for the entire family as well.

As such, we are committed to providing

comprehensive care with heartfelt

compassion for children suffering from pediatric

cancers and blood disorders. This commitment is

evident in our integrated, interdisciplinary teams

that deliver specialized treatment, as well as in

our unique Disney®-themed healing environment

where we deliver our special brand of kid care.

Bone Marrow TransplantsCertain cancers that affect the blood may require

a bone marrow transplant. As Central Florida’s

only pediatric bone marrow program, children are

treated by the best minds in the field of stem cell

transplants. Our highly trained team has access to the latest research therapies and

techniques available. Working closely with family members and the child, we have

developed a program that offers the very latest advances in transplant medicine while

being ever mindful that our young patients need extra care every step of the way.

The Vision for Program Funding Support Our vision is for our pediatric bone marrow transplant (BMT) program to be one of a

kind. The Walt Disney Pavilion at Florida Hospital for Children is the only hospital

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in Central Florida with a Certificate of Need from the Department of Health for these

services. The goal is to create a leading program close to home for patients who have

the need for a bone marrow and related transplants. In the world of the transplant

patient, the first 100 days are critical for survival, and studies show dramatically

increased survival rates in patients who are treated close to home and close to their

families. Having a dedicated

pediatric bone marrow transplant

program in Central Florida is a

tremendous and much-needed

asset to the community.

P E D I AT R I C B O N E M A R ROW T R A N S P L A N T ( B M T ) P RO G R A M

Jessica is a survivor. “I used to have beautiful long curly hair that I wore down,” she

shares. “One day I wore my hair in a ponytail. My mom noticed that my neck was very

swollen. She took me to the doctor, and he suspected I contracted cat scratch disease

from my new kitten. I was given some antibiotics and told that if the swelling didn’t

go away in a few days, to come back for a biopsy.”

This was the beginning of a pediatric cancer journey for

13 year-old Jessica. After the antibiotics failed to help

the swelling, a biopsy revealed she had leukemia. Jessica

was in desperate need of a bone marrow transplant that

would deliver healthy bone marrow stem cells into her

body.

“My life changed really quick,” she says. “All of a sudden

I had to go to the hospital every two weeks, and I was on

many different types of medications that made me sick.

I couldn’t do any of the stuff I was used to doing because

I was tired and weak all the time. Even though I was

scared about the transplant, I wanted to do it so I could

feel better.”

At 15 years old, Jessica underwent a bone marrow

transplant at the Walt Disney Pavilion at Florida

Hospital for Children. Her family anxiously awaited the

return of their once bubbly and energetic daughter. They

held on to a strong faith in God and put their trust in

Jessica’s oncology team. After many difficult months in

the hospital, Jessica emerged a cancer-free teenager who quickly focused on her next

big challenge — getting her drivers’ license.

“When I was in the hospital, I would imagine what it would feel like to be back in my

own bed,” Jessica says. “Sometimes it felt like I would never get to go home. But, the

nurses and doctors helped me to stay positive. I just kept thinking about all the good

things that awaited me when it was all over. Now I feel totally normal again and just

have to get check-ups every six months.”

P E D I AT R I C B O N E M A R ROW T R A N S P L A N T ( B M T ) P RO G R A M

Jessica’s StoryJessica,Pediatric Cancer Survivorand Bone Marrow Patient

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Sometimes it felt like I

would never get to go

home. But, the nurses and

doctors helped me to stay

positive. Now I feel totally

normal again. — JESSICA

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Heartfelt Cardiac Care for Children The Walt Disney Pavilion at Florida Hospital for Children’s multidisciplinary cardiac

approach provides a wealth of services to pediatric heart and vascular patients. From the

most common exams to extremely rare procedures, we have earned a national reputation

as a leader in the advancement of cardiovascular care. Depending on the child’s

situation, these surgeries can be minimally invasive or even performed robotically. As a

high-volume heart hospital, our pediatric surgeons perform complex heart and vascular

surgeries with a frequency that builds experience. What’s more, the team makes every

effort to reduce anxiety and stress so children aren’t scared.

Our comprehensive pediatric cardiac

program includes imaging services,

invasive and non-invasive procedures,

interventional cardiology, cardiac surgery,

vascular surgery, electrophysiology program,

cardiac rehabilitation and research. In

addition, Florida Flight I, an emergency air

ambulance, is available 24 hours a day, seven

days a week. We also staff our in-house

catheterization laboratory around the clock

for immediate emergency angioplasty to save

heart muscle tissue for critical heart patients.

The Vision for Program Funding Support Beyond the cardiac services currently

being offered, the Walt Disney Pavilion at

Florida Hospital for Children is seeking to

develop a Pediatric Open Heart Program and

Pediatric Cardiac Catheterization Program.

The pediatric open heart surgery program is

needed to complete the continuum of care

for congenital heart disease (CHD) patients

and to promote the further development

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Traveling for medical care has affected the family of Breck McCarl. “Our daughter Breck was born at the Florida Hospital Celebration Health back in 2001,” her father, Matt McCarl, shares. “Soon after birth, she began having pulmonary problems and was transferred to Florida Hospital Orlando. She was subsequently diagnosed with pulmonary atresia and tetrology of fallot and had to be transferred to St. Joseph’s Hospital in Tampa for open heart surgery.”

“Due to complications, we spent the next three months in cardiac ICU at St. Joseph’s,” he says. “Worst of all, we had to repeat the surgery every few years, and will continue to do so throughout her life. So far she has had three open heart surgeries and has spent a total of over nine months in ICU at St. Joseph’s.”

“She also has to have regular heart catheterizations as well, not to mention regular check-ups,” Matt continues. “We have to travel all the way to Tampa for all of these services. It has been a huge hardship on our family to have to travel so far. We have literally driven thousands of miles over the years traveling back and forth.”

A Matter of Heart

Matt McCarl, Fatherof a Pediatric Cardiology Patient

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We have to travel all the way to Tampa for

[cardiac] services. It has been a huge hardship on our family to have

to travel so far. We have literally driven thousands

of miles. — MATT

of regional CHD care. This new program will eliminate the need for cardiac patients

to drive out of market to other unfamiliar hospitals to seek care. It will enhance

the transition of care for adult congenital heart patients, and it will allow Orlando-

based pediatric cardiologists to serve their patients closer to home rather than

all parties having to travel to Tampa

where an existing program resides.

Project costs must be funded through

foundation efforts and are estimated at

$10,995,614. The program is projected

to be operational by June 1, 2012.

George Palmer, MD, Medical Director of

Thoracic and Cardiovascular Surgery at

Florida Hospital Orlando, understands

the importance of this. “My colleagues

and I are extremely well trained and

highly experienced to treat patients

with acquired cardiovascular disease,” he says. “The congenital heart population,

however, poses unique challenges. I believe that the addition of a proper congenital

heart surgery program will indeed vastly elevate the care of our adult population as

well as the pediatric population. I look forward to the synergy of pediatric colleagues

to enable one treatment of both congenital and adult cardiovascular diseases. The

Walt Disney Pavilion at Florida Hospital

for Children is positioned to provide to

this growing patient population a team

of congenital heart physicians in synergy

with our existing adult cardiovascular

physicians. This will allow patients

complete cardiac care from birth

onward.”

P E D I A T R I C C A R D I O L O G Y P R O G R A M

Myrtha suspected her son was different when he was two years old. “José hated the swing,” she says. “At age three, Seminole County did an evaluation, and he was enrolled at a Pre-K school for children with disabilities. We spent a lot of time praying for José. We long suspected that he had autism, but we weren’t sure.”

This was the beginning of a childhood development journey for her son. José was born at Winter Park Memorial Hospital with Pierre Robyn Syndrome, a facial abnormality. At six months old, he had his first surgery, enabling him to gain some weight. Following the surgery, he had to sleep on his stomach and wear a special corset for a long time.

“We went from neuropsychologist to psychiatrist, from neurologist to cardiologist, and it was finally recommended that we see a developmental pediatrician,” Myrtha says. “We made an appointment with Sandra Cely, MD, who diagnosed José with Asperger’s Syndrome.”When José and Myrtha started with Dr. Cely, José was aggressive and prone to temper tantrums and shaking. Since then, there has been a huge change in behavior. José is now doing well in school and working on his social-interaction skills with many successful changes. His mom says he is a survivor.

“I truly credit Dr. Cely as having a major positive impact on the life of my son,” Myrtha shares. “She is compassionate, loves what she does and always gives 100 percent. She really listens, takes her time and tells the truth. I’m glad that she doesn’t sugar coat the reality of our situation, while still giving us hope. Dr. Cely is one of the few physicians throughout our journey with a true calling. It is evident that she is in it for the right reasons, and she treats everyone who seeks her help — including many children who otherwise wouldn’t be served the right way.”

Myrtha and José’s Story

José,Center for Childhood Development Patient

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Focusing on Childhood Development

The Walt Disney Pavilion at Florida Hospital

for Children offers an interdisciplinary childhood

development program, providing diagnostic

evaluations for young children with developmental

and behavioral concerns. This comprehensive

outpatient program treats patients who are

afflicted with neuromotor, physical, emotional,

psychosocial and behavioral development issues.

Many patients are autistic or suffer from ADHD

and other problems, placing them at risk socially

and academically.

The pediatric specialists observe, test and counsel families about the various

developmental and behavioral conditions these children may be displaying. This

assessment includes an extensive review of school reports and past medical

history, family questionnaires and observations, and an examination of the child.

The childhood development team will then prepare a comprehensive care plan,

which may include medical, developmental,

educational and/or psychological evaluations

with specific suggestions on how to implement

the recommendations.

The Vision for Program Funding Support The Center for Child Development is in dire need

to expand the facility and staff to accommodate

the 2,000 patients we are not able to currently

see. Your donation would enable the Center

to expand the program, educate families on

early interventions and resources, and provide

community outreach.

I truly credit Dr. Cely as having a major positive impact on my son’s life.

She is compassionate, loves what she does and always

gives 100 percent. — MYRTHA

Healthy Kids Start HereHealthy 100 Kids is a Walt Disney Pavilion at Florida

Hospital for Children health and wellness initiative

designed to help kids stay active and provide parents

with valuable information, tools and resources to help

their child live a longer, healthier and happier life.

The Healthy 100 Kids difference is a wholistic lifestyle

and weight-management program that addresses each

aspect of physical and mental wellbeing, not only for

children, but for the entire family as well.

It’s far more than simply providing families with

the knowledge to effect change — it’s an entire

team dedicated to helping them take action.

Our physicians, clinicians and medical staff will

tailor a program with the goal of giving children

the best chance of living to a Healthy 100. The

interconnectivity between nutrition, fitness,

relaxation, relationships and body image will lay

the foundation for new household habits. While

there may be short-term incremental goals,

we offer all participants long-term support and

encouragement through a variety of means because we know that “staying healthy” is

a lifetime commitment.

The Vision for Program Funding Support The Walt Disney Pavilion at Florida Hospital for Children is building the most

comprehensive program for the prevention of childhood obesity in the nation. Our

goal during the next five years is to help thousands of overweight and obese children

reverse the obesity trend and set them on track for a healthy lifestyle. Your support

would give low-income children and families access to program activities that promote

healthy eating and exercise, build self esteem and provide peer support. This program

is made possible by linking up with key partners, including Annika Sorenstam, the

Orlando Magic Youth Foundation and the Martin Andersen-Gracia Andersen Foundation.

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Stephanie Butler and Her Son

Stephen

H E A LT H Y 10 0 K I D S , O U R H E A LT H A N D W E L L N E S S P RO G R A M

Stephanie Butler began a health and wellness journey for her son Stephen. “I knew we needed to do something for Stephen,” she shares. “It was a critical time in his life to make a change and establish healthy habits. He was unhappy, and we had tried everything.”

Stephen was an overweight middle school student with low energy and a declining self esteem. After several failed attempts and an urge from Stephen’s pediatrician, Stephanie turned to the Healthy 100 Kids program at the Walt Disney Pavilion at Florida Hospital for Children.“It helped me make lifestyle changes,” she says. “It wasn’t just another diet. In other programs, you lose weight, and after two months, you go back to your old lifestyle. Plus, you just exercise like a robot. In this program, you have fun and you meet friends.” Stephen was able to get back on the path of health and wellness. Beyond losing weight,

he has more energy and can play football at school. Where participating in sports was once a challenge, he now looks forward to just being a regular kid.

“It helps you with your self esteem,” he says. “It makes you feel happy. It’s not just because you lose weight that you are happy, but because you are healthy and can do stuff like everyone else.”

Stephen Butler,Healthy 100 Kids Patient

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I knew we needed to do

something for Stephen. It

was a critical time in his

life to make a change and

establish healthy habits.

He was unhappy, and we

had tried everything.

— STEPHANIE

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P E D I A T R I C N E U R O L O G Y A N D E P I L E P S Y P R O G R A M

It took an incident during a car ride home for Diane Futch to seek medical advice for her son Hunter. “I guess the first time I really thought something was wrong was when he turned 16, and we were driving home,” she shares. “We drove around this lake, only 10 blocks from our house, and he suddenly went from one side of the road to the other side of the road. We knew then he had to go to the doctor.”

This was the beginning of a neurological medical journey for Hunter. He was experiencing confusional episodes related to seizures. Carl Barr, DO, did an in-office EEG, and Hunter had a seizure during the test.

Physicians performed an MRI that showed a lesion in his right temporal lobe. After a variety of medications failed to stop the seizures, Hunter bravely asked for a surgical procedure to remove the lesion. John and Diane were very apprehensive about surgery, but when the monitoring program showed an increase in seizures, the family decided to move forward and put their trust in neurosurgeon Eric Trumble, MD.

“When the surgery was over and the doctor told us it that it was cancer, but that they were confident they had gotten it all, we were so relieved,” his mother says. “Thank God it has been a smooth recovery. It

couldn’t have gone any smoother. It was like a miracle. We are just so grateful to Florida Hospital and the doctors.”

“In two weeks and I was perfectly back to normal,” Hunter says. “It was really fast and I got back to doing the normal things I used to do.”

Hunter Futch,Neurology Patient

In two weeks, I was perfectly back to normal.

It was really fast, and I got back to doing the normal

things I used to do. — HUNTER

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son Hunter

Providing the Best in Child-friendly Neurological Care

The Walt Disney Pavilion at Florida Hospital for Children

is a recognized leader in pediatric neurological education,

research, treatment and care. Our goal is to be a

destination program for pediatric brain tumors and seizure

disorders with demonstrated clinical excellence and

family-centered care — advancing the program to national

pre-eminence. Our state-of-the-art neuroscience program

provides superior outcomes for patients, made possible

because every care provider is board certified with at

least 10 years experience in this specialty. Our team’s

expertise, when combined with the latest technological

advances, allows us to improve patient outcomes through

more accurate diagnoses, more effective interventions

and ground-breaking clinical treatments.

Epilepsy ProgramChild neurologists at the Walt Disney Pavilion at Florida Hospital for Children are

specialists of the brain, spinal cord, peripheral nerves and muscles. Children are

treated for all types of neurological problems, including epilepsy. Families come for

world-renowned care and excellence in monitoring and treating seizures related to

epilepsy. Because these epileptic seizures can have many root causes, the neurology

team uses a multidisciplinary approach to treatment, including surgical approaches to

intractable epilepsy, supported by rehabilitative strategies.

The Vision for Program Funding Support Our vision at the Walt Disney Pavilion at Florida Hospital for Children is to become

a destination hospital for pediatric neuroscience care. With the addition of a leading

neurosurgeon, a pediatric epileptologist and a state-of-the-art 3T operating suite,

we will be able to provide the highest quality care by becoming a Level IV epilepsy

center, the highest level of epilepsy care a center may receive. It is our goal to build

neuroscience programs that will provide the best treatments for all neurological needs

in the community of Central Florida and beyond, as well as conduct research studies

that will ultimately lead to the cure of epilepsy.

P E D I A T R I C N E U R O L O G Y A N D E P I L E P S Y P R O G R A MPE

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Michelle Schneggenburger and Her Son RJ

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RJ Schneggenburger,NICU patient

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It was an exciting time for mom-to-be Michelle Schneggenburger. “Everything seemed to be going along normally,” she says. “One day, I just felt a bit off. I saw a tiny spot of blood and thought it better to be safe than sorry, so I had my husband take me to the hospital.”

This was the beginning of a NICU medical journey for Michelle and her baby boy. At 24 weeks, she was experiencing pre-term labor and was immediately admitted into the Labor and Delivery High-risk Unit to ensure she had the best care possible.

On September 12, three weeks into her stay, she delivered her son, RJ, at 27 weeks. He weighed only one pound, 13 ounces, and was 13 inches long. His prematurity resulted in many severe medical challenges that required immediate surgery and long-term intensive care in the NICU.

“He had five surgeries before he even reached two pounds,” Michelle says. “He was so sick for so long. But, no one ever said ‘give up.’ One day, his nurse told me that RJ’s strength would come from me. Right then and there I made the decision to give him my unwavering hope for survival. His medical team gave me the honest facts and told me when he had a bad night, but they also told me to keep going.”After five arduous months in the NICU, RJ went home with medical equipment and a fighting spirit. It’s been seven years since that day, and he is now enjoying all the wonders of the world.

“I can’t believe my eyes when I see him,” Michelle says. “He is my miracle. It was such a long road, and it’s not over yet. He has cerebral palsy and hydrocephalus, so he’s still under the great care of Florida Hospital.”

Giving Babies a Chance to Live a Full and Healthy Life The birth of a child is one of the greatest miracles

of life. A new addition to the family is a time

of celebration, joy and love as the newborn is

welcomed into the world by family, friends and

loved ones. Unfortunately, there are times when

things don’t go as planned, and the baby needs

an extra level of care that only a skilled team of physicians,

nurses and specialists can provide. When these issues do arise, the Neonatal Intensive

Care Unit (NICU) at the Walt Disney Pavilion at Florida Hospital for Children is here.

There is a feeling of unbridled hope that every child who comes through our doors has the

chance to live a full and healthy life. We see miracles happen every day, thanks to the

dedicated efforts of our medical professionals, amazing advances in medicine, and the

tremendous power of prayer.

The Critical First Hours of LifeThe first hours and days of a baby’s life can have a tremendous impact on their ability to

grow strong and healthy. We are extremely proud of our record of successfully treating

premature, small or sick babies, including those who face immediate and critical health

issues. Our goal throughout is to improve outcomes for these babies, providing them with

every opportunity available to lead a normal, healthy life. Because critical care situations

don’t happen on a set schedule, our NICU is staffed 24 hours a day, seven days a week

by an experienced team of highly trained neonatologists, neonatal nurses, respiratory

therapists and pharmacists. These professionals are focused entirely on the care of

critically ill infants.

The Vision for Program Funding Support When a baby comes into the world, there are times when they need an extra helping

hand. We are extremely proud of our record of successfully treating premature or sick

babies in our Neonatal Intensive Care Unit (NICU). It is our goal to continue to renovate

and support the development of the NICU, providing patients and their newborns with a

state-of-the-art facility and environment that soothes both the newborn and new mother.

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Your Generous SupportWe are so grateful to our friends and leaders in the community who have generously

supported the Walt Disney Pavilion at Florida Hospital for Children to help provide

everything from toys and games in the playrooms to helping fund high-tech surgical

suites and clinical programs that save children’s lives. Our philanthropic partners

allow us to provide the most advanced technology and the finest medical care

available for our pediatric patients.

To learn how you can help, contact the Florida Hospital Foundation and ask for the

Florida Hospital for Children Development Officer. Your donation will truly make a

difference in the lives of babies and children in our community and beyond.

H O W T O D O N A T E

Our contact information:2809 North Orange Avenue

Orlando, FL 32804(407) 303-2784

To donate online, visit www.Foundation.

FloridaHospital.com/

F L O R I D A H O S P I T A L F O R C H I L D R E N F O U N D A T I O N B O A R D

Florida Hospital for Children Foundation Board

Afsoon Elmore, DDS, Board Member

Alex Martins, Board Member

Andrew Davis, Board Member

Beth Hercules, Board Member

Brea Barnes, Board Member

Charles Cole, Board Member

Chick Gregg, Board Member

Dan Gavin, Board Member

Darla Morse, Board Member

Dick J. Batchelor, Board Chair

Garrett Jones, Board Member

Harold Mills, Board Member

James MacPhee, Board Member

Jim Binder, Board Member

Karl Nebel, Board Member

Laura Jones, Board Member

Lindy Benton, Board Member

Lisa Gregg, Board Member

Michael M. Ward, Board Member

Russell Slappey, Board Member

Steve Nichols, Board Member

Thomas P. Warlow, Board Member

Thomas Rascoe, Honorary Board Member

William J. Hercules, Board Member

FHFC

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601 EAST ROLLINS STREET

ORLANDO, FL 32803

WWW.FLORIDAHOSPITALFORCHILDREN.COM

(407) 303-KIDS (5437)

Documents

A Foundation for Growth - Jourdan Marie Hathaway · PDF fileA Foundation for Growth If the world were a perfect place, ... BLUMENFELD, MD (407) 767-6411 MARK CHAET, MD (407) 228-4774