Upload
tim-shah
View
221
Download
0
Embed Size (px)
Citation preview
8/3/2019 515_final_v7
1/67
Running Header: INTERNATIONAL STUDENTS WITH DISABILITIES 1
International Students with
Disabilities:
Evaluating barriers to
accessing social and health
services on campus
Yazmn Hernndez Bauelas, Zoe Yu Wang, Timothy Shah, Jason Lee, Adam Kebede
University of British Columbia
Planning 515
April 05, 2011
8/3/2019 515_final_v7
2/67
INTERNATIONAL STUDENTS WITH DISABILITIES 2
8/3/2019 515_final_v7
3/67
INTERNATIONAL STUDENTS WITH DISABILITIES 3
Executive Summary
The purpose of this study is to identify and address the barriers facing international students with
disabilities at the University of British Columbia (UBC). Specifically, this study addresses the
barriers international students face in accessing health services on campus. As a collaborative project
between the two UBC departments: the School of Community and Regional Planning (SCARP) and
the Access & Diversity (A&D) Office, the research findings are intended for both parties. In
particular, the findings in this study are meant to: to help the A&D office better understand the
barriers to health services on campus; provide recommendations for enhanced inclusion and to assist
the A&D office in their advocacy efforts towards policy advancement and improved service delivery.
We employed a case study research methodology. The flexible nature of this exploratory study
allowed the researchers to go in more depth through the semi-structured interviews to inquire about
how and why the identified barriers are so problematic. We recruited three participants for the study,
all of whom were international students and male. We conducted a total of four interviews with threeparticipants; one participant was interviewed twice for further clarification of the data and for an
elaboration of the interview questions. A semi-structured interview style was used because it allowed
for focused, conversational two-way communication which provided the research team with more
information and data beyond the scope of the interview questions which appeared to be limited at
times.
The major findings in this study pertained to reported barriers from the participants, and the coping
strategies they use in everyday life. These barriers included lack of knowledge: one participant did
not know about any services on campus, for example; institutional barriers: two participants had
issues with institutional rules that inhibited access to a service; stigma: one participant had issueswith perceived stigma and two had issues with the public health care system as they are not used to
this in their home countries; communication/language : one participant wished for a service to be
delivered in his native language; financial: one participant had financial issues around paying for a
diagnostic test. The latter half of the findings are the coping strategies used by the participants, these
include support networks such as parents, friends, academic/international advisors and residential
communities. Combined, these networks act as coping mechanisms to ease the academic and
personal challenges associated with neurological disabilities and mental health issues.
The coping strategies reported by the participants were powerful and inspiring stories about the
mechanisms these students use in everyday life to cope with the neurological or mental health illnessthey are living with. These stories and experiences were captured in our study but warrant further
academic exploration. Our contribution to this area is simply a starting point for the critical research
that needs to follow. Section 6 provides a detailed list of recommendations we have prepared for the
A&D office.
8/3/2019 515_final_v7
4/67
INTERNATIONAL STUDENTS WITH DISABILITIES 4
8/3/2019 515_final_v7
5/67
INTERNATIONAL STUDENTS WITH DISABILITIES 5
Table of Contents
1.0: Introduction ...................................................................................................................... 7
2.0: Literature Review ........................................................................................................... 10
2.1: Knowledge .............................................................................................................. 11
2.2: Institutional Barriers................................................................................................ 13
2.3: Culture ..................................................................................................................... 13
2.4: Stigma ..................................................................................................................... 14
2.5: Financial Barriers .................................................................................................... 17
2.6: Communication Barriers ......................................................................................... 18
3.0: Methodology................................................................................................................... 20
3.1: Methods ................................................................................................................... 22
3.2: Research Limitations ............................................................................................... 25
4.0: Research Findings .......................................................................................................... 275.0: Discussion & Recommendations .................................................................................... 30
5.1: Knowledge .............................................................................................................. 30
5.2: Institutional Barriers................................................................................................ 33
5.3: Socio-cultural Barriers ............................................................................................ 36
5.4: Communication ....................................................................................................... 40
5.5: Financial Barriers .................................................................................................... 41
5.6: Coping Strategies .................................................................................................... 42
6.0: List of Recommendations ............................................................................................... 45
7.0: Conclusion ...................................................................................................................... 48
Acknowledgements ........................................................................................................ 49Appendices ............................................................................................................................ 56
Appendix A: Key Informant Interview Guide ............................................................... 57
Appendix B: Additional Interview Guide ...................................................................... 59
Appendix C: Registrations with the Access and Diversity Office ................................. 60
Appendix D: Screening Questionnaire ........................................................................... 61
Appendix E: Consent Form ............................................................................................ 63
Appendix F: Recruitment Letter .................................................................................... 66
Appendix G: Poster ........................................................................................................ 67
8/3/2019 515_final_v7
6/67
INTERNATIONAL STUDENTS WITH DISABILITIES 6
8/3/2019 515_final_v7
7/67
INTERNATIONAL STUDENTS WITH DISABILITIES 7
1.0: Introduction
The Access and Diversity office (A&D office) at the University of British Columbia
(UBC) works to eliminate structural and attitudinal barriers to those with disabilities. The A&D
office (2011b) provides disability-related services and accommodations for students, faculty, and
staff with disabilities. In 2009, the A&D office (2011a) served approximately 1,248 students
with diagnosed or suspected disabilities. As of 2009, UBC campuses (including Vancouver and
Okanagan) host 54,125 students, 7,570 of whom are considered international students,
accounting for almost 14 percent of the student population (UBC Public Affairs, 2009). The
number of international students at UBC continues to grow, as attracting students from outside
Canada is a part ofUBCs strategic plan to become a globally renowned institution (Hepburn &
Pennant, 2011). Within the A&D office (2011a), however, international students are
underrepresented: 112 studentsor 8.9 percentof those registered with the A&D office hold
study permits.
According to the 2009 National College Health Association (NCHA) survey, 36 percent
of UBC students who completed the survey said they felt so depressed that it was difficult to
function at least once in the last year (Amos, 2010). According to statistics provided by the A&D
office (2011a), neurological and mental disabilities are the most common disabilities reported on
the UBC-Vancouver campus. In 2009, the A&D office (2011a) assisted 427 students with
neurological disabilities and had 278 cases of mental disabilities; while broad, the two categories
account for 57 percent ofthe A&D offices registered users. Definitions for the two categories
provided by the A&D office (2011a) are presented verbatim as follows:
8/3/2019 515_final_v7
8/67
INTERNATIONAL STUDENTS WITH DISABILITIES 8
Neurological disabilities refer to disorders that affect understanding or using language,
spoken or written, and mathematical calculations, as well as processing speed and
memory capacities. This category covers learning disabilities, brain injuries, autism
spectrum disorders, attention deficit disorders and attention deficit hyperactivity disorders.
The term does not include learning problems that are primarily the result of visual,
hearing, or motor disabilities, of mental delay, of emotional disturbance, or of
environmental, cultural, or economic disadvantage.
Mental illness is a term that describes a broad range of mental and emotional conditions
that significantly interferes with the performance of major life activities, such as learning,
working and communicating, among others. Among forms of mental illness are
generalized anxiety disorders, depression, schizophrenia and other psychiatric disorders.
As the A&D office continues to strive towards social inclusion on campus, understanding the
experiences of those affected by neurological and mental health disabilities is imperative.
During the past two academic years, the A&D office and the School of Community and
Regional Planning (SCARP) have collaborated on various community based research projects on
the UBC campus. In January 2011, SCARP's qualitative research methods class embarked on six
community based community service learning projects with the A&D office. The main
objectives of our particular project, focusing on international students and disabilities, are as
follows:
(1) To understand the experiences of using social and health services on campus for
international students with disabilities in order to address any barriers;
(2) To make recommendations for enhanced inclusion; and
8/3/2019 515_final_v7
9/67
INTERNATIONAL STUDENTS WITH DISABILITIES 9
(3) To produce a report that can be used by the A&D office in their advocacy efforts
towards policy advancement and improved service delivery.
This report presents the findings regarding the focal research questionwhat are the
barriers international students with disabilities face in accessing social and health services on the
UBC-Vancouver campus? Other topics investigated throughout this project address the
following sub-questions:
What are the experiences of international students in accessing social and health services
on campus?
What are the key health and social services on campus?
How do cultural differences impact the experiences of international students?
What recommendations would international students make to enhance social inclusion?
8/3/2019 515_final_v7
10/67
INTERNATIONAL STUDENTS WITH DISABILITIES 10
2.0: Literature Review
The literature of fundamental importance to this study pertains to various barriers
university students with mental health needs or neurological disabilities face in accessing
services. The literature features discussion of students (both undergraduate and graduate) with a
particular focus on international students. This section reviews a number of barriers: these
include the lack of knowledge about a disability or services offered on campus; institutional
barriers causing high demand on a service and thus lowering its quality; financial barriers
relating to diagnostic testing and the high expenses of being an international student; the
debilitating nature of stigma around mental health; and prominent cultural barriers that affect
access to health services.
Multiple studies have looked at barriers to health services for those at universities. The
subjects of these studies have differed, with recent studies published pertaining to medical
students (Chew-Graham et al., 2003; Tjia et al., 2005; Givens and Tjia, 2002), men (Davies et al.,
2000), and general student populations (Yorgason et al., 2008). Table 1 summarizes the most
common barriers found to prevent access to health services in each of the studies: issues which
were prevalent throughout the research were a lack of time, a lack of confidentiality, and a fear
for later job prospects. These issues provide a context for the multiplicity of issues faced by
students with neurological or mental health illnesses that can be prevalent across university
campuses.
8/3/2019 515_final_v7
11/67
INTERNATIONAL STUDENTS WITH DISABILITIES 11
Table 1: Summary of prior studies on barriers to health services
Study Population Barriers (in rank order where noted)
Tjia, Givens, & Shea(2005)
Depressed medicalstudents
1. Lack of time2. Not enough sessions with university care3. Stigma4. Negative career impact5. Fear of diagnosis in academic record
Givens & Tjia (2002) Depressed medical
students
1. Lack of time2. Lack of confidentiality3. Afraid no one will understand problems4. (tie) Stigma / Problems not seen as important6. Cost
Davies et al. (2000) Men 1. Conceal vulnerability, independence2. Lack of knowledge
3. (tie) Lack of time / no perceived susceptibility5. Advisor lacks credibility
6. Advisor doesnt understand culture (gay, ethnic)
7. Cost
Chew-Graham, Rogers, &
Yassin (2003)
Medical students Stress
Shame, embarrassment in admitting weakness
Lack of confidentiality
Later job prospects
Fear of diagnosis in academic recordYorgason, Linville, &
Zitzman (2008)
General population Real behaviours:
1. Lack of time
2. Lack of knowledge3. (tie) Did not think services would help /
embarrassmentHypothetical behaviours:
1. Lack of time2. Lack of knowledge3. Did not think services would help4. Cost5. Did not want to talk to stranger
2.1: Knowledge
The first barrier one must overcome in accessing a service is knowledge: while many
university students are aware that services exist, a significant numberincluding many of those
who would benefit from such servicesdo not. This is seen in a survey conducted led by
8/3/2019 515_final_v7
12/67
INTERNATIONAL STUDENTS WITH DISABILITIES 12
Eisenberg (2007), showing that just less than half of undergraduate students in their survey
would be able to find mental health care on campus, while slightly more (59 percent) knew of
available free counselling services (p. 597). Among those who tested positive for depression or
anxiety and who did not use campus services, less than one-third could find mental health care,
while 53 percent knew of free counselling services (Eisenberg et al., 2007, p. 597). A similar
study done led by Yorgason (2008) found similar results: 70 percent of students contacted had
never heard of mental health services, and the majority of those who did seek out the information
did it on their own (p. 175).
A study on graduate student mental health led by Hyun (2006) showed that more
graduate students were aware of services. It was found that nearly three quarters of graduate
students were aware of these services, and that female graduate students were significantly more
aware of these services than males (Hyun et al., 2006, pp. 256-7). Furthermore, graduate students
were found to be more likely to seek out information on their own instead of gaining knowledge
from friends or advisors, meaning that traditional methods of information dispersion on
university campusesresidence halls and administrative programsare unlikely to reach then
(Hyun et al., 2006, p. 261). However, another study led by Hyun (2007) found that although 61
percent of international graduate students responded that they knew that counseling services
were available on campus, a percentage significantly lower than the 79 percent knowledge found
of domestic graduate students (p. 113). This gap in knowledge helped result in a gap in the use of
counselling services, as domestic students were much more prone to use the services provided by
the university (Hyun et al., 2007, p. 114).
8/3/2019 515_final_v7
13/67
INTERNATIONAL STUDENTS WITH DISABILITIES 13
2.2: Institutional Barriers
In a study of early experiences of university students with disabilities in United Kingdom,
Goode (2007) discussed the institutional barriers for students in accessing on-campus health
services (pp. 45-46). The slow pace of the bureaucratic process beyond the university and the
length of time that students needed to wait for reasonable accommodation constituted large
obstacles in students studies and life. The long waiting list for adequate service, cumbersome
application forms for service, and the use of unfamiliar bureaucratic terminology have been
identified as difficulties in accessing service for adolescents with developmental disabilities
(Betz, 2007, p. 106).
Similarly, a study led by Wilson (2000) indicated that a lack of coordination and timely
service from service centres diminished efficiency, failing to providing support and
accommodation to students with minimal disruption in their academic course work (pp. 45, 47).
Concerns were also expressed about the lack of formal policy and procedural guidelines, leading
to services being provided in an inconsistent manner across disability groups (Wilson et al., 2000,
pp. 39, 45, 50).
2.3: Culture
One definition of culture considers it an integrated pattern of human behavior including
thought, communication, ways of interacting, roles and relationships, and expected behavior,
beliefs, values, practices, and customs of a group (Taylor, 1997 as cited in Lee, 2003, p. 3).
Penn et al. (1995) argue that intersections between culture and class affect one's behaviour
toward health and health care (p. 641). Lee (2003) analyses the findings of Penn et al. (1995) and
presents five health domains influenced by culture, summarised in Table 2.
8/3/2019 515_final_v7
14/67
INTERNATIONAL STUDENTS WITH DISABILITIES 14
Table 2: Five health domains influenced by culture according to Penn et al. (1995)
Health domains influenced by culture Definition
Seeking Health Care Cultural beliefs about disease and majorevents (births and deaths) influencingdecisions about health care
Preferred Treatment Cultural beliefs about health, illness, andtreatment influencing treatment afterdiagnosis
Acceptability of Health Care Cultural familiarity or knowledge affectinghealth care acceptability
Health Behaviour Cultural preferences and values affectingsources of knowledge, use of preventativehealth care, lifestyle
Interactions with Health Providers Cultural relations, processes affectingindividual and intergroup relations
Source: Lee (2003), p. 3
2.4: Stigma
Collins and Mowbray (2008) explain that university students with mental health issues face
structural obstacles, ranging from personal discrimination (e.g., lack of awareness or
understanding from faculty and peers) to gaps in service provision (e.g., inadequate financial aid,
lack of campus-based mental health services, lack of information about campus services) (p.
305), to a fear of stigmatisation for disclosing their illness to faculty or peers. While all of these
barriers can impede ones willingness to access a service, stigma around mental health and
disabilities appears to be highly severe in the literature. There have been a range of studies
8/3/2019 515_final_v7
15/67
INTERNATIONAL STUDENTS WITH DISABILITIES 15
completed on the subject of stigma as it pertains to mental health, neurological disabilities, and
accessing services.
Twardzicki (2008) defines stigma as a sign of disgrace or discredit, which sets a person
apart from others (p. 69); this reflects that that shame, disgrace, and stigma still are associated
with mental illness in todays society. Hyun et al. (2007) also report how the stigmatization of
mental illnesspossibly connected to the decreased recognition ofothers emotional problems
presents a barrier to access of mental health services (p. 116).
In discussing the stigmatisation of mental illness, Twardzicki (2008) asserts that young
people may hold attitudes which are more ill-informed than the rest of the population (p. 68).
Such negative attitudes toward stigma can create a spiral effect, where mental health is further
undermined, and making it harder for those with disorders to seek help or treatment; this can
further negatively affect relationships and ultimately cause the people with the disorder to be
isolated (Twardzicki, 2008, p. 68).
Corrigan (2004) discusses how stigma may impede people from seeking or participating in
mental health services (p. 614). Further, the threat of social disapproval or diminished self-
esteem (Corrigan, 2004, p. 618) that is associated with having a mental health illness can lead to
the underutilization of services: this may partially be because those who are labelled mentally ill
are severely stigmatized beyond the levels of other medical diagnoses (p. 614).
There is also extensive research on public stigma and self-stigma both can impede a
student in accessing a mental health or disability service. Corrigan et al. (2006) found that self
stigma is a process by which public attitudes lead to personal responses and self stigmatization (p.
882). Self-stigma has been further defined as the internalised impacts of others negative
attitudes on a person who possesses a devalued characteristic (Rao et al., 2009, p. 586), and has
8/3/2019 515_final_v7
16/67
INTERNATIONAL STUDENTS WITH DISABILITIES 16
been associated with lower use of services, as well as negative personal impacts, including low
self-esteem, depression, and anxiety.
Rao et al. (2009) look to ground this term more pragmatically and link it to enacted, or
public, stigma. This process begins through discrimination from othersthis can include friends,
colleagues, or classmatesresulting in an awareness of negative stereotypes surrounding a
persons condition (Rao et al., 2009, p. 586). Eventually, this can evolve into enacted stigma: this
happens when discriminatory behaviour occurs; when the person with the condition believes in
the stereotypes surrounding his/her condition and internalises them, the stigma evolves from a
public stigma to self-stigma (Rao et al., 2009, p. 586). By accepting the stereotypes, self-esteem
and self confidence tend to drop (Corrigan, 2004, p. 618). As a result, Corrigan (2004) concludes
that self-stigma results in the avoidance of the label causing stigma, and as a result, a vast
decrease in willingness to participate in any sort of treatment (p. 618).
The way in which people manage perceptions of stigma affects their choice to access
health care. An important step to managing perceptions is self-disclosurein this case, telling
others about a disorder. For those with disabilities, this is extremely contextual: Olney and
Brockelman (2003) list situation, life stage, familiarity, and necessity (p. 36) as factors which
are included in a decision to tell others. Therefore, this becomes a complex decision-making
process, which allows someone with disabilities to break down stigma by sharing information on
his terms (Olney & Brockelman, 2003, p. 49).
8/3/2019 515_final_v7
17/67
INTERNATIONAL STUDENTS WITH DISABILITIES 17
2.5: Financial Barriers
A study by McClaran and Sarris (1985) identified that international students utilize health
services less than other students; students identified areas of concern that affect their access to
services (p. 3). Some of these concerns include insurance policies, communication between
patients and providers, and information about available health care services (McClaran & Sarris,
1985, p. 3). Another study by Sharif (1998) on international students in the United States
identified language, financial issues, and stress as barriers to health care utilization. Furthermore,
insurance forms and claim procedures also acted as barriers to the use of health care services
(Sharif, 1998, p. 13).
Lartey et al. (2009) explored the factors influencing the health behaviour of international
students at another American university. In their study, surveys were given to 525 international
students. The response rate was 81 students (15 percent). On the use of health care services, 56
percent reported not to have used any of the services within the past year; 57 percent of the
respondents perceived the lack of understanding of insurance policy while 53 percent perceived
co-payment as barriers to health care utilization services (Lartey et al., 2009, p. 136).
While this article does not speak directly to personal financial barriers, such as testing
and documentation, there is a useful discussion around the complication of insurance policies.
On the note of insurance policies and co-payments, the authors conclude that a better
understanding of insurance policies will help students use health services easily when they need
them (Lartey et al., 2009, p. 137). Furthermore, the authors emphasized education as a main
means of understanding: because students come from cultures with different insurance systems,
Lartey et al. (2009) reason that there is a obvious need to provide students with a clear
8/3/2019 515_final_v7
18/67
INTERNATIONAL STUDENTS WITH DISABILITIES 18
understanding of the insurance system (p. 137) to increase the number of students who would
use preventive health services.
Hyun et al. (2007) also found financial issues to be a barrier to mental health access for
international graduate students. In their study, international students were more likely to report
having financial problems and less likely to report having emotional or relationship problems
than domestic students (Hyun et al., 2007, p. 117). This underscores the different challenges that
domestic and international students face and suggests university health-care administrators
should account for these differences in designing counselling programs. Hyun et al. (2007) also
found that students with better financial confidence were less likely to access counselling,
suggesting that other factors may play a part in access to preventative health services (p. 113).
2.6: Communication Barriers
According to the literature, language is one of the greatest barriers in access to health
promotion programs for people of non-English speaking backgrounds in Canada. A quantitative
study conducted by Bowen (2000) correlates official language proficiency with health. Language
also interacts with other determinants of health, such as race, culture and ethnicity, and is the
means by which people become acquainted with the health and social services active in their
community (Agic, 2003, p. 6; Woloshin et al., 1997, p. 476). In turn, effective communication is
the foundation for adequate health care provision and the management of disabilities.
Communication difficulties, whether due to cognitive, social, physical impairment or because of
language difficulties are a significant barrier to accessing health care.
Yeo (2004) argues that the improvement of communication between patients and
providers in relation to health disparity consists of cultural competency and communication
8/3/2019 515_final_v7
19/67
INTERNATIONAL STUDENTS WITH DISABILITIES 19
skills (p. 57). Additionally, a report on mental health for ethnically diverse communities found
that language and cultural factors, along with stigma, a lack of trust, and a lack of understanding
of the health system are considerable barriers to accessing mental health care in Canada (Agic,
2003, p. 2). Furthermore, research has found that language barriers are associated with a
multitude of negative outcomes, including longer wait times at clinics, a lower frequency in
clinic visits, a lower understanding of doctors, an increased number of emergency room visits,
and lower satisfaction with health services (Yeo, 2004, p. 59).
8/3/2019 515_final_v7
20/67
INTERNATIONAL STUDENTS WITH DISABILITIES 20
3.0: Methodology
We employed a case study research methodology for this project. The project is meant to
investigate a contemporary phenomenon within its real life context: the current barriers
international students with disabilities face in accessing social and health services on campus.
While our research question gets at the what, the flexible nature of this exploratory study
allowed the researchers to go in more depth through the semi-structured interviews to inquire
about how and why the identified barriers are so problematic.
VanWynsberghe & Kahn (2007) explain how case study research calls for an intensive
and in-depth focus on the specific unit of analysis and generally requires a much smaller sample
size than survey research. The small sample size in this project makes it difficult to generalize
our findings, but case study research is not meant to focus on generalisability. Case studies focus
more on contextual detail and extendibility; it also aims to enrich a readers understanding of a
phenomenon by extending the readers experience (VanWynsberghe & Kahn, 2007, p. 4). With
only three participants in the study, we decided to use a case study research approach to focus on
the experiences, behaviours and challenges of the participants in light of our main research focus.
The experiences of the participants allowed our research team to create themes and codes
to categorize the findings, which are discussed at length in the subsequent section. A thoroughly
conducted case study research project recognizes that the involvement of human participants will
generate data and stories upon which the researcher reflects and writes about. As our intention
was to grasp a comprehensive and in-depth understanding of the barriers international students
face, case study research is well justified.
8/3/2019 515_final_v7
21/67
INTERNATIONAL STUDENTS WITH DISABILITIES 21
Outreach Strategy
The process of recruiting participants was a difficult albeit gratifying process. We
received ethics approval for our requested amendments in early February. We requested a series
of amendments to change certain terminology in our recruitment letter and our projects purpose
to make the study as unambiguous and open as possible. We made specific amendment requests
to ethics to include more flexible terminology such as students who self-identify with a non-
dominant Canadian culture. Moreover, we have also included space forstudents who may not
have a diagnosed disability but claim to have an impairment that affects their daily life. In
essence, the need for these changes stemmed from group consensus and deep reflection about
what we would like to get out of this project.
Once we received ethics approval, we proceeded to circulate our recruitment letter to
several academic departments including but not limited to geography, economics, psychology
and engineering. We figured it would be helpful to utilize the networks of our fellow graduate
school friends from these respective departments to circulate our recruitment letter. We also
passed along our study to the listservs of the A&D office and International House. Our ethics
approval also permitted us to utilize posters as a recruiting strategy. We did not put up too many
posters; these were limited to a bulletin board in International House.
Analyzing the Data
We utilized a coding structure that broke down the barriers as themes (see Table 3). We
initially used a comparative case study approach to make connections and relationships. But after
some discussion, we elected not to use this approach to ensure the anonymity and confidentiality
of the research participants. We broke up the reported barriers into themes to present the findings
in a succinct and presentable way, and to maximize the level of analysis.
8/3/2019 515_final_v7
22/67
INTERNATIONAL STUDENTS WITH DISABILITIES 22
3.1: Methods
Semi-Structured Interviews
We completed three semi-structured interviews in our study. All three participants were
male and of Latin American ethnicity. One participant had a mental health problem (depression),
the other participants had neurological disabilities (learning processing disorder and attention
deficit hyperactivity disorder (ADHD). The participant with depression is a visiting international
student who has not accessed any of the social or health services on campus since he arrived.
Only one female student expressed interest in our study but we did not successfully recruit her.
Before we actually conducted the interviews with our participants, we forwarded the interview
guide to our A&D office advisor to review the nature of the questions and to receive feedback on
how to make them clearer and better focused. The ultimate purpose of using semi-structured
interviews was to learn about the various barriers international students with disabilities face in
accessing social and health services on campus (see Appendix A).
Until the interviews, our groups understanding of mental health and neurological
disabilities as barriers to service was constructed through reading the literature and other case
studies across North American campuses. On a more practical level, the semi-structured
interviews provided more of the context to UBC and the participants experiences with accessing
services here. The use of a semi-structured interview style employed an open framework
allowing for focused, conversational two-way communication.
The flexible nature of semi-structured interviews can confirm what is already known but
also provide the opportunity for further learning (Mason, 2002, p. 62). Mason (2002) explains
that semi-structured interviews are conversations with a purpose (p. 62). Our intention was to
8/3/2019 515_final_v7
23/67
INTERNATIONAL STUDENTS WITH DISABILITIES 23
construct or reconstruct knowledge as opposed to excavating it. The use of probing questions
proved to be useful in soliciting information from the participants. When participants seemed
perplexed by certain questions in our interview guide, we resorted to our probing questions to
simplify what we were asking our participants. Our fieldnotes and continuous group debriefs,
allowed group members to reflect about how the interview went and how we can improve for the
next time.
Questions that generated the most data from our interviews included questions 8 and 11.
These questions were are there barriers you have encountered in accessing health and social
services that relate to being a non-domestic/international student?Question 11 was in general,
how do you feel about the experience of approaching/trying to approach the on-campus
social/health services? Both of these questions targeted the very nature of qualitative research
which focuses on the experiences, behaviours and feelings of the research participants, whoever
they might be. As semi-structured interviews are a flexible approach to seek information, we
thought of questions on the spot in light of the conversations we were having with the research
participants.
While we recruited three participants overall, our group decided to interview the first
participant twice. The first interview with the participant, while valuable in that in generated data
and helped build rapport, did not provide us with all of the information we had hoped for. In
essence, going through the interview with this participant allowed the group to test the research
instrument and ultimately give us a better understanding of the clarity and direction of the
questions. We did not provide the participant with enough information about the studys purpose.
We did e-mail all of the participants the interview guide prior to conducting the interview, but
the first participant did not understand the studys purpose, nor did he understand the questions
8/3/2019 515_final_v7
24/67
INTERNATIONAL STUDENTS WITH DISABILITIES 24
we asked him. Upon reflection from the first interview, our group developed another set of eight
questions that were specific to participant one and re-interviewed him (See Appendix B). These
questions were not necessarily a deviation from the original interview guide, but were presented
in a clearer and simpler fashion to allow the participant to digest them and respond in a more
complete manner.
Fieldwork Diary
Following each interview, the interviewers were somewhat consistent in writing a
fieldwork diary. The purpose of this method was to reflect on how the interview went and to
evaluate our relationship with the research participant. Case study research uses afieldwork diary
to record the researchers observations, conversations and maps. Diaries are useful for examining
the researchers engagement in the process (Dowling, 2005, p. 22). In a research process, the
researcher becomes steeped in data, but at the same time cultivates analytical distance to enable
thinking about the data and to allow the imagination to work to see patterns in the detail, or how
apparently unrelated items might be connected (Pratt, 2006).
Pratt (2006) continues with discussing how a variety of devices might be used to aid this
distancing, for example, a research diary containing personal reflections on the research, ones
own involvement in and feelings about it. Fieldwork diaries have helped our research team work
hard to achieve 'analytic distance' from the role, to set aside taken-for-granted assumptions and to
see oneself in the role. Reflexivity has been crucial in the fieldwork diary process.
8/3/2019 515_final_v7
25/67
INTERNATIONAL STUDENTS WITH DISABILITIES 25
3.2: Research Limitations
A first limitation we faced was that all three of our participants were male and Latin
American. While not all Latin American countries share a culture, they are more similar to each
other than they are to other cultures around the world. Furthermore, we lacked a female
perspective on the issues; studies have shown that male and female responses to disability and
coping can be vastly different from one another (Davies et al., 2000, p. 259). As a result, having
only one gender limited the data garnered from the interviews.
Another limitation we faced was the inability to transcribe interviews due to the ethics
review. Because of this, interviews were recorded by hand, through note taking; thus, some of
the rigour was lost before the analysis began, as participants could not be quoted word-for-word,
and some meanings may have be inadvertently changed or lost early in the process. As a result,
none of the quotes provided are truly quotations, and while we did follow-up with participants in
areas where we were unclear, it is possible that interpretation could have been done during the
transcription of the interview.
In qualitative research there is a process called participant checking whereby the
interview transcript can be given to the participant for vetting or authorizing (Dunn, 2005, p. 98).
This process can not only improve the quality of the transcript but it also continues the
involvement of the participants in the research process and provides them with their own record
of the interview (p. 98). We did not forward the transcripts to our research participants because
of time constraints; thus, this can be seen as a limitation in our study.
Our ethics approval only allowed for the use of interviews and of mapping as data
collection methods. Throughout our research we found out that mapping was not an adequate
8/3/2019 515_final_v7
26/67
INTERNATIONAL STUDENTS WITH DISABILITIES 26
tool to capture the experience of the research participants. Out of the three participants we spoke
with, one had never accessed a service at all, one only accessed the A&D office, and the third
participant had accessed counselling and the A&D office. Although mapping the existing
services on campus would be a great way to promote awareness and allow for the dissemination
of information visually, we felt that this was outside the scope of our research.
8/3/2019 515_final_v7
27/67
INTERNATIONAL STUDENTS WITH DISABILITIES 27
4.0: Research Findings
While our initial intent was to explore barriers to both social and health services on
campus, our participants focused on discussing barriers to accessing health care services. The
various barriers reported are presented in Table 3. These barriers are somewhat consistent with
the findings in the literature.
Barriers such as financial, institutional, lack of knowledge/information, socio-cultural and
stigma all were mentioned in the course of the study. A particular and perhaps unique finding in
the socio-cultural category is in regard to the beliefs and perceptions about private and public
health care. This issue, along with other findings, are summarized in Table 3 and will be
discussed and analyzed in Section 5.
Table 4 summarises the coping strategies used by the participants. While coping
strategies are not barriers, we feel that coping is an alternative to seeking official care. While
participants identified several barriers to accessing health services, they also explained various
mechanisms they use to cope with the disabilitywith accessing services being one of many
coping mechanisms.
The quotes presented in Tables 3 and 4 are approximations of what the participant said
during the interview; as mentioned in the limitations section, we were not allowed to record
interviews, and as such, were unable to take down what the participants said word-for-word. We
have attempted to reconstruct sentences from the noteswhile the results are presented as
quotations, we would like to make clear that they are paraphrases, and unequivocally state that
despite the appearance of quotation marks, they are not direct quotations.
8/3/2019 515_final_v7
28/67
Running Header: INTERNATIONAL STUDENTS WITH DISABILITIES 28
Table 3: Barriers to accessing on-campus services
Barrier to accessing services Sub-themes Participants' insights (Paraphrased)
Communication Language My psychiatrist advised me to treat myself with therapy here [...] language would be a barrier that is difficult for
therapy. In psycho-therapy you have to express yourself, and it's very difficult.
inancialDifficulties affording a servicehat can help participants cope
with disability
My retesting period lapsed and I needed to get tested again, the lady at the A&D office was nice enough to use herdiscretion and I was able to sign up again otherwise it would cost me thousands of dollars.
UBC wanted me to get re diagnosed, but I am not okay with paying $2000. Plus, I need to convince doctors to givea prescription and that cost me $200 for one months supply. [Insurance] wont cover it without a diagnosis
nstitutional
roblems in the system that makedifficult to access a service
My previous school complied with all the recommendation from the testing centre. UBC only offers someaccommodations of those recommended for my condition.
My diagnosis from home is not recognized by UBC
I have gone for counselling and this service is not equipped for the number of people that use the service. They onldrop-ins, and they have 2 month waiting lists [...] Two years ago, I met with a counsellor I really liked, but shes gonafter a semester; lack of continuity is the problem.
Lack of informationarticipant is unaware of theervice or do not know how toccess it
Concerning the access to services at UBC, I didnt know that UBC provides help and mental health service to studeWhen I heard of the study, I learned the services existed.
I did not find out through my orien tation, but I didn't tell [my advisor or people around me] about my disability eith
I would have liked to have some information [during the application process]; Im sure the information is availableI got none provided to me during the application process
ocio-Culturalhe influence of peoples health
eliefs, values and perception ofealth problems rooted in one'sulture or society
Transferable
health carebeliefs
I never use public health care services in [my home country or at my undergraduate university] because I have acceprivate therapy there [...] generally,private health care is better than public where I come from
I went to the Clinic in the Village, just because I wanted to see if I had a problem. This is private clinic, I am quite
satisfied. My parents think that the health care in Canada is really bad [...] they would rather fly me home than me going to t
hospital here.
tigmaPerception ofstigma
If I dont explain to people, they look at my low energy and they will think this guy is lazy... they don't often assocwith a disease, it is often confused with a persons character.
I don't want people to know, if people notice (for example, people will notice me going to a different location for aexam), they will think I am faking my disability. They wont believe me.
I feel that people think I am dumber because I use the services [such as the A&D office].
8/3/2019 515_final_v7
29/67
INTERNATIONAL STUDENTS WITH DISABILITIES 29
Table 4: Coping Strategies
Coping Strategies Participants Insights (Paraphrased)
Previous Knowledge:Use previous knowledgeor experience
I try to recall what I learnt from previous therapy, because I was treated for 1.5 years [] I try to use my previousknowledge from therapy [to cope with disabilities].
Drugs:
Use drugs (medication,cigarette, coffee, etc.)
I take medicines, you get used to medicines when you have disabilities. [] But I also used to smoke. These are mytwo basic supports, friends and cigarettes. [] I use a lot of coffee to cope with that and cigarettes. I dont smoke much[] in a way, I want to make efficient use of this [limited amount of] energy. I try to use it in my work. Just you know,have your cigarettes and coffee and go to work.
Medicine gets rationed []Im almost out now, but Im saving it up for the exams.
Coping through rationing, [I] know when theres going to be a hard day [] [I] learn when to use [the drugs], how touse them.
Family:Seek help from familymembers
In first term I didnt bother to find resources, but I didn't do well with my tests [] and then I spoke with my mom sheencouraged me to look. And I found services online.
Friends & Community:Seek help from friends orcommunity
I look for my friends here, Ive made good friends here. Thats the community that I talk about. [] A place like thisis a place for people with disabilities. It is a more tight community. You are surrounded with great people. [] Theactivities of community, because we have breakfast together [] you talk and you expand your social networks. Otheractivities, we get together, we play soccer [] If you feel like you belong to a group of people, this is important.
Something you are used to, I guess, when you are friends it is something you can joke about. [...] I guess you cantchange the system so you just make fun of it.
[My department]is better because its smaller department, smaller classes. I study better in groups I have a couplefriends to study together with. [] [I study] just on my own or with friends.
Academic Advisors:Seek help from teachers or
Academic Advisor of thedepartment
I have academic advising and international advising. [] I could get a note taker but it costs more money so I dontdo that. I ask teachers for their notes.
My academic advisor has been helpful. I like being in a small faculty with more one-on-one interaction. It feels verypersonalized.
Accessing Service:Access service andaccommodations fromservice providers
Socially, I just live with it; with academics, at my old school they just gave me unlimited time. With the SATs I gotdouble time. Here they [the A&D office] give me more time for test.
The A&D advisor is helpful, [she] agreed to register me on a semester basis to get benefits.
8/3/2019 515_final_v7
30/67
INTERNATIONAL STUDENTS WITH DISABILITIES 30
5.0: Discussion & Recommendations
The section will begin with a discussion of the findings. We will draw connections
between the findings of our case studies, and relate our discussion back to the literature. After
looking at each barrier in our study mentioned in the literature review, we will provide
recommendations that are directly relevant to the findings which can help the A&D office with
their advocacy efforts. All recommendations are summarized without discussion in Section 6.
5.1: Knowledge
Lack of knowledge in this study is defined as not knowing which services are available.
Our interviews revealed that there was a gap in knowledge of services when the students first
arrived on campus; although the participants had disabilities which they were aware of, and had
been treated for in their home country, none were aware of the presence of the A&D office or
any other service when they first arrived at university. As a result, none of our participants were
officially treated in their first term at UBC: while services were available for them to access, not
knowing that they existed was the major barrier in the lack of access.
These experiences line up well with a study authored by Goode (2007) on the initial
experiences of university students: she found that students had been unaware of what support
was on offer and how to access it readily (p. 41), a problem which is exacerbated if a student
needs access to a service in the middle of the term. Furthermore, the study states that the
accessibility of information sent prior to enrolment is overestimated; as a result, there are
unrealistic assumptions placed on newcomers, who are expected to know what insiders already
at the school know from being involved in the university (Goode, 2007, p. 46).
8/3/2019 515_final_v7
31/67
INTERNATIONAL STUDENTS WITH DISABILITIES 31
Our participants experiences with the application and orientation process reflect the
latter point: while we are not certain how much information is provided prior to enrolment or the
beginning of classes, it is clear that none was retained by our participants at the beginning of the
term; as a result, they had to learn which services could accommodate their disabilities further
along in their studies. While one participant stated that he is certain that information is readily
available, he was not provided any during the application process. Furthermore, two of the
participants had attended orientations for international students; neither was aware of any
accommodation being mentioned during the orientation process. Finally, for the two participants
who accessed services, one did so through a referral from International House, while another
found applicable services on the internet.
Studies tend to support these ideas, especially for international students. Hyun et al.
(2007) found that there are barriers for international students with respect to the transmission of
information (p. 117). With respect to how information is found, it is possible that the internet is
becoming the norm: a study led by Cam Escoffery in 2005 found that almost three-quarters of
students surveyed reported that they used the internet to find health information (pp. 184-5).
Given that the use of the internet has increased and become more widespread since that point,
websitesboth of the university and the facultiescan play an important role in giving students
knowledge about health and social services on campus.
The recommendations regarding knowledge are as follows:
The A&D office and other health services should provide more information upfront, such
as during the orientation process, making services visible, and allowing for students to be
aware of the existence of services on campus. While this can be done at larger
orientations, it may be preferable to do so in smaller venues with each faculty, so that
8/3/2019 515_final_v7
32/67
INTERNATIONAL STUDENTS WITH DISABILITIES 32
students would be more aware of where to seek help when necessary. We suggest that a
student assistant could be hired in order to help raise awareness in the different
departments of the university.
We recommend that student staff from the A&D office take some time during orientation
to inform new undergraduate and graduate students about the A&D office and the
diversity of the UBC student body. It should be stressed that there are a number of
students with mental health illnesses and neurological disabilities on campus, and to be
mindful that universities are diverse, open-minded, and accessible places.
To reduce the level of perceived stigma felt by students with mental health and neurological
disabilities, it would be useful to increase information and educational efforts about campus
mental health and neurological disability services such as the A&D office. As such, we suggest
that information provided by the A&D office may take the following forms:
A multifaceted approach ought to be used in order to increase knowledge; aside from
orientations, there may need to be flyers around campus and in residence halls to raise
awareness. Furthermore, the internet should be used in order to raise awareness, with
easy-to-access information readily available on university web pages heavily
trafficked by students.
We suggest the introduction and design of programs for increased education with
input from students, including graduate students, international students, and students
who are currently using services. This information should include recognition of
mental health issues, including symptoms of depression and other disorders, as this
may not be readily understood in all cultures. Such information would help in raising
awareness and allowing for knowledge regarding mental health, while also giving the
8/3/2019 515_final_v7
33/67
INTERNATIONAL STUDENTS WITH DISABILITIES 33
A&D office and other services a presence on campus beyond just service provision.
Further, it would provide information and context about the diversity of students at
UBC and the various challenges they have in their academic and personal life
Education specific to international students about mental health, including coping and
stress relief strategies, and about recognizing mental health problems should be a
priority for UBC. Students can also act as peer mentors to not only provide
information on how to cope with stress and exam anxiety. This could reinforce that
all students have their own personal challengesone of which may be related to
mental health.
5.2: Institutional Barriers
In this case, institutional barriers are defined as issues or problems within UBC which
make it difficult for international students to access services. We identified two barriers through
our research. The first barrier is associated with non-acceptance of diagnosis documents from
foreign countries: one participant failed to receive accommodation from the A&D office,
because his diagnosis from home is not recognized by UBC. International students with
diagnosis documents not accepted by the university must be re-diagnosed in Canada, a costly
procedure. In some cases, although documentation of the diagnosis is accepted, institutional
barriers continue to persist. As one participant said, UBC only offers some accommodations of
those recommended for my condition.
Mental disorders and illnesses vary in definition and thus, can be diagnosed differently in
different cultures (Lin & Cheung, 1999, p. 774). The most used assessment tool for mental health,
the Diagnostic and Statistical Manual of Mental Disorders developed by the American
8/3/2019 515_final_v7
34/67
INTERNATIONAL STUDENTS WITH DISABILITIES 34
Psychiatric Association, has been questioned for its definition of mental disorders and decisions
regarding certain conditions and if they can be legitimately considered as a mental disorder
(Wakefield, 1992, p. 232). The lack of universal definitions and assessments of mental disorders
or illnesses across countries results in the difficulty of accepting diagnosis documentation from
foreign medical systems using different or non-compatible standards and measurements.
A second barrier identified is the lack of continuity of care in certain health services on
campus. Continuity of care, a key indicator of health care performance, relates to both past and
present care and its conformity with therapeutic needs of the client (Hermann, 2000, p. 136; Bass
& Windle, 1972, p. 110). Cohen and Sanders (1995) further defined the continuity of care as a
guarantee that the care is implemented and coordinated by one and the same person (p. 124). One
of our participants commented on his disappointing experience with a mental health care service
on campus as a counsellor with whom he had a positive experience [is] gone after a semester.
The practicum system in this particular UBC service has thus caused a discontinuity of service,
which results in negative emotional reactions to some service users, including our participant.
Counselling students do not often stay for a long period of time after the completion of their
practicum: such constant turnover makes it difficult to guarantee continuity of care, something
the participant had to unfortunately experience.
The conflict between a high demand for the counselling service and limited personnel
was also been pointed out by a participant, a problem which is consistent with an article in the
Ubyssey regarding depression in UBC students and mental health services on campus
(Wakefield, 2011). The long application process and waiting list for services, mentioned by
Goode (2007), is identical to ourparticipants description of the two month waiting list for
mental health service at UBC (pp. 45-46).
8/3/2019 515_final_v7
35/67
INTERNATIONAL STUDENTS WITH DISABILITIES 35
Institutional barriers come from the system level and cannot be resolved in a short period
of time. In addition, removing these barriers require collaborative actions between different
service providers, as well as higher levels of the bureaucracy, since for the most part,
institutional barriers are not caused by and cannot be solved by one particular service provider.
Thus, we understand that the A&D office is unable to unilaterally change issues found on this
front; thus, we suggest some advocacy actions which the office may be able to take.
The recommendations regarding institutional barriers are as follows:
The A&D office should advocate for funding ensuring continuity of service by providing
consistent and adequate service to students. Students should be able to receive all the
different services that they need, even if the system is fragmented. Many different service
providers must be involved for full accommodation and treatment. In addition, services
should collaboratively direct students who are unable to receive service in a timely
manner to other same-level, if not better, mental health services on or off campus.
The A&D office should collaborate with other health services on or off campus to
establish a system to allow for mental health diagnosis documentation from other
countries not currently accepted by UBC. We understand that this may have to be done at
a level higher than UBC; however, the ultimate goal would be that barriers caused by
differences in medical systems do not hinder the access of international students to
adequate services on campus. A first step towards this could be the creation of an
inventory of the types of documentation that are not accepted by UBC, and the
differences in diagnosis.
8/3/2019 515_final_v7
36/67
INTERNATIONAL STUDENTS WITH DISABILITIES 36
5.3: Socio-cultural Barriers
Socio-cultural barriers refer to the influence that cultural and social settings have in
affecting ones beliefs, perceptions, and behaviour. Throughout the three cases we explored, we
identified two socio-cultural barriers: stigma and beliefs regarding health care provision.
Stigma
One participant stated that he did not want his friends or classmates to know that he
accessed the A&D office for his neurological disability; he was worried that they would judge
him and think he was dumber or faking his condition. These beliefs, whether true or not, do
not appear to be abnormal for someone with a mental health need or neurological disability. This
is related to the threat of social disapproval or diminished self-esteem associated with self-
stigma of a mental health illness; this has been shown to lead to service underutilisation
(Corrigan, 2004). Although the participant accesses the A&D office for his neurological
disability, the perceived stigma around this generates negative thoughts including his beliefs
around being dumber or faking it.
While we cannot be completely certain in describing the stigma process associated with
our research participant, we feel it is similar to a process described by Rao et al. (2009). The
participant had mentioned negative comments from his parents; as a result, he has been well-
aware of the negative stereotypes regarding his condition. It is possible that he has slowly
internalised these stereotypes and led to self-stigma: this is possible because of his reactionthe
idea that having a disability could make others perceive him to be dumber is something which
shows that he has negative feels about his own condition. As a result, it is possible that he has
8/3/2019 515_final_v7
37/67
INTERNATIONAL STUDENTS WITH DISABILITIES 37
internalised the idea of stigma, and has led to self-stigmathus moving through the stages of
how stigma affects people presented in Rao et al. (2009, p. 586).
We can only speculate on this finding because we did not obtain any more information
from the participant; however, more work must be carried out on this particular topic with UBC
students with a mental health or neurological disability. This should be done both quantitatively
and qualitatively with a larger sample size to generate a holistic understanding of perceived
stigma and the strategies universities could use to better address them. Despite our small sample,
we have come up with some recommendations that we advise the A&D office to consider.
The recommendation regarding stigma is as follows:
In addition to the provision of more information, the A&D office could partner with UBC
Housing and create a section in the August resident advisor (RA) training to better inform
RAs about social and health services on campus. Moreover, RAs should spend some time
when their students first arrive to explain services provided by UBC to all groups,
including students with mental health and neurological disabilities. This can reinforce the
idea of diversity to the student body, generate awareness about these issues, enhance
inclusion, and minimize perceived stigma.
Private and Public Health Care
Strong views on the superior quality of private health care vis--vis the public system
were something which was mentioned during two of the interviews. Two participants held strong
opinions that private health care is better than public health care; however, neither have had a
personal experience with the Canadian health care system. This finding is significant as previous
research has found that unfamiliarity with a given country's health care system discourages use
8/3/2019 515_final_v7
38/67
INTERNATIONAL STUDENTS WITH DISABILITIES 38
by culturally different patients (Hoang & Erickson, 1985, p. 229). For instance, Canada's
universal health care system is significantly different from other systems such as the two-tier
system or the US-style consumer driven care system (Gladwell, 2005, p. 44). Thus, this can be a
large barrier in to use, as there is not an intuitive understanding of the Canadian health care
system for many international students. Furthermore, in countries where private or two-tier
health care systems are in place, private health care services are seen, in general as superior to
the public system (Alves & Timmis, 2001, p. 24). Thus, the public health care system in Canada
may be unsettling to international students from countries with such systems.
The most striking finding in our interviews was perhaps that neither of the research
participants have experienced the Canadian health care system. Both participants referred to
horror stories they have heard about the Canadian health care system from third parties. In one
case, the stories were from friends personal experience accessing care; for the other participant,
the stories came from his parents. This participant said: my parents think that the health care in
Canada is really bad [. . .] they would rather fly me [home] than me going to the hospital here
despite his parents also never having used the Canadian health care system. His parents'
assessment of the quality of care is solely based on their opinion of the performance of Canadian
doctors practicing abroad, specifically, in the participants home country.
Although there are no studies on health care perceptions and international students
access to care, research regarding cultural beliefs and immigrants to Canada has explored this
issue at length. In general, studies have shown that immigrants experiences and construction of
health care from their country of origin heavily influence their perceptions and expectations of
Canadian health care (Carrasco et al., 2009, p. 7). The literature available on this issue points at a
8/3/2019 515_final_v7
39/67
INTERNATIONAL STUDENTS WITH DISABILITIES 39
complex cycle of misinformation and cultural beliefswhen combined, these issues become a
significant barrier to accessing health care services.
If participants are used to private health care, their perception and expectation of the
public health care system may be inadequate. Furthermore, when participants rely on other
international students or their parents to assess the quality of Canadas care, they may never
receive access to information necessary to familiarize themselves with the way the public system
functions, which may in turn foster dissatisfaction with the system. The 1995 Penn et al. analysis
of the interrelation between culture and class named this barrier acceptability of health care (p.
641); interestingly, when asked directly if they thought culture was a factor in the barriers to
accessing health care, the two participants both said no.
One of the participants who used private health care at home stated that he did so because
it is better; he also mentioned that he does not know if that is true of Canada. He elaborated on
his choice of health care by saying he normally chooses services based on proximity to his on
campus residence. However, the only one time he has felt ill, he went to a private health clinic
off campus. As researchers, we often found ourselves trying to inquire about the reasons behind
the participants actions, choices, and strategies for coping. In this case, however, the participants
were reluctant to share details or did not think those details were relevant to the barriers they
experience in accessing health care.
The recommendations regarding health care provision are as follows:
Further research must be undertaken to investigate the preconceptions and health care
beliefs that international students bring with them when they arrive to Canada. While
much work has been done on immigrants, there is little research looking at
international students in a university setting.
8/3/2019 515_final_v7
40/67
INTERNATIONAL STUDENTS WITH DISABILITIES 40
During orientation, international students should be provided with a description of
what Canada's public health care system offers and the way it functions.
The International Student Handbook should make an effort to explain to students the
characteristics of health provision in Canada such as: the average waiting time for
appointment, the de facto one question per visit policy in clinics, prescription and
refill processes for medicine, referral system for access to specialized doctors, and
other ideas which non-Canadians may not be familiar with.
5.4: Communication
Language was identified by one participant as a significant deterrent from accessing mental
health services. In Canada, the provision of linguistically appropriate health promotion and care
hasbeen identified as necessary to address the existing disparities and ensure equal access to all
the resources (Agic, 2003, p. 2). The participant mentioned that he was discouraged from
seeking help as the type of therapy he needs would require him to speak in his native tongue for
it to be effective. For this participant, psychotherapy was about expressing one's thoughts and
feelings; he felt that he would be very limited in his capacity to express those feelings if he were
to do this in English. Previous research has also identified language capacity and comfort level
for psychotherapy as a barrier to accessing this service (Leong & Lau, 2001, pp. 207-209).
International students at UBC possess different levels of comfort and competency in the English
language; as such, this barrier may only be applicable for certain students.
We do not feel that we have enough information to make a recommendation on the issue
of communication and language proficiency. More research is needed to identify possible
solutions for this barrier: it is not feasible to provide counselling and psychotherapy in all
8/3/2019 515_final_v7
41/67
INTERNATIONAL STUDENTS WITH DISABILITIES 41
languages; however, varied accommodations can be designed for people in this situation. It
would be important to look at best practices among other university campuses, including those in
non-English speaking countries, to see how language barriers to accessing health care services
have been addressed.
5.5: Financial Barriers
In this project, financial barriers are defined as difficulties affording a service that can help
a student cope with a mental health need or neurological disability. One participant noted that the
cost of diagnostic testing was overwhelming when told that it would cost $2,000 for diagnostic
testing in Canada, despite having documentation from his home country. As a result, the
participant was discontent and highly stressed. Sharif (1998) found that international students
identified language, financial issues, and stress as barriers to health care utilization (p. 11). Hyun
et al. (2007) also found financial issues to be a barrier to mental health access for international
graduate students; international students were found to be more likely to report having financial
problems than domestic students (p. 113).
While neither study speaks directly to the financial stress around diagnostic testing, they
nonetheless point to stress surrounding finances, which can include higher tuition payments or
thousands of dollars in payment toward diagnostic testing. While the A&D office is aware of the
high cost of diagnostic testing for students with neurological disabilities, we found that the
student was unaware that the documentation from his home country would not be accepted in
Canada, and worse yet, it would cost $2,000 to receive proper documentation. This amount can
be substantial for any student, domestic or international, but when paying higher tuition fees, it
can be even more financially burdensome.
8/3/2019 515_final_v7
42/67
INTERNATIONAL STUDENTS WITH DISABILITIES 42
The recommendation regarding financial barriers is as follows:
Create a special fund for diagnostic testing on campus that can provide money for
students not currently eligible for funding. If students must pay for their testing, look into
different payment strategies or financing opportunities that can come out of this funding
pool for testing that cannot be paid for upfront as a lump sum.
5.6: Coping Strategies
Coping has been defined as how people regulate their behaviour, emotion, and orientation
under conditions of psychological stress (Skinner and Wellborn, 1994, p. 112). In our study, we
found that participants use a range of coping strategies. Assessing coping strategies and their
effectiveness is complicated, as responses to stressors depend on life experiences, as well as
other factors, including cumulative mental and physical health. Our research identified six broad
coping strategies which are explored throughout this section.
Previous Knowledge
One participant mentioned that in order to cope with his disability he incorporates the
strategies, exercises and suggestions he received from his therapist while he had access to
psycho-therapy back in his home country.
Drugs
The use of drugsboth prescription and non-prescriptionwas a coping strategy used by
two participants; one participant mentioned cigarettes and coffee as his most commonly used
strategy for coping. However, the more worrying finding in this topic was to hear the story of a
participant who rations his prescription medication as the lack of a Canadian diagnosis prevents
8/3/2019 515_final_v7
43/67
INTERNATIONAL STUDENTS WITH DISABILITIES 43
his from receiving the same prescription medicine in Canada. Understanding the coping
strategies of stigmatized individuals requires one to understand their unique experiences and
circumstances. While rationing medication seems like a stressor itself, this strategy speaks of the
many ways in which existing barriers to accessing health services affects the life choices made
by international students.
Family
One participant mentioned he called her mother once he encountered difficulties
functioning within the UBC academic context. It is important to mention this was not the case
for all participants: one of our participants clearly stated that his family simply could not help
him cope with his disability; thus, he chose to rely on his friends and the community around him
instead.
Friends and the UBC Community
Seeking help from friends and the community is a coping strategy used by all three
participants. The participants all mentioned how their friends and the UBC community, either
academic or residential, support their studies and life. When they have a couple of friends to
study with, have breakfast together in the residential community, or to simply get together
with friends, they develop a sense of belonging, which helps them through their respective
difficulties. One participant told us that upon transferring from a large department to a smaller
one with fewer students, he found that he liked the smaller classes, where he was able to made
friends with others in his department.
8/3/2019 515_final_v7
44/67
INTERNATIONAL STUDENTS WITH DISABILITIES 44
Academic Advisors
Two participants mentioned that they approached advisors when they had problems. One
participant commented on his experience with an academic advisor in his department as being
helpful. He favoured the one-on-one interactions between students and his advisor, and finding
that it was personalized and a better support for him.
The A&D Office and Other Services
Two participants mentioned their access to the A&D office for accommodations. One
participant did not know about the A&D office until he finished his first semester and found
information about the A&D office online. He commented on the A&D advisor as being helpful
during his registration with the office each semester. Another participant was satisfied with the
extended time allocated to his exams as accommodation from the A&D office.
Our recommendation involving coping strategies is as follows:
The A&D office could promote strategies that focus on healthy and positive coping
strategies that incorporate skill development for new students. This could be done
through orientations, student handbooks, workshops, roundtable discussions, blogs,
newsletters, etc.
8/3/2019 515_final_v7
45/67
INTERNATIONAL STUDENTS WITH DISABILITIES 45
6.0: List of Recommendations
To make it easier for the reader, this section is a collection of all of the recommendations we have listed in the Section 5.
Table 5: Recommendations
Barriers Recommendations
Knowledge
The A&D office and other health services should provide more information upfront, such asduring the orientation process, making services visible, and allowing for students to be awareof the existence of services on campus. While this can be done at larger orientations, it maybe preferable to do so in smaller venues with each faculty, so that students would be moreaware of where to seek help when necessary. We suggest that a student assistant could behired in order to help raise awareness in the different departments of the university.
We recommend that student staff from the A&D office take some time during orientation toinform new undergraduate and graduate students about the A&D office and the diversity ofthe UBC student body. It should be stressed that there are a number of students with mentalhealth illnesses and neurological disabilities on campus, and to be mindful that universitiesare diverse, open-minded, and accessible places.
Strategies to include information may take the following forms:
A multifaceted approach ought to be used in order to increase knowledge; aside from
orientations, there may need to be flyers around campus and in residence halls to raiseawareness. Furthermore, the internet should be used in order to raise awareness, with easy-to-access information readily available on university web pages heavily trafficked by students.
We suggest the introduction and design of programs for increased education with input fromstudents, including graduate students, international students, and students who are currentlyusing services. This information should include recognition of mental health issues, includingsymptoms of depression and other disorders, as this may not be readily understood in allcultures. Such information would help in raising awareness and allowing for knowledgeregarding mental health, while also giving the A&D office and other services a presence oncampus beyond just service provision. Further, it would provide information and contextabout the diversity of students at UBC and the various challenges they have in their academic
8/3/2019 515_final_v7
46/67
INTERNATIONAL STUDENTS WITH DISABILITIES 46
and personal life
Education specific to international students about mental health, including coping and stressrelief strategies, and about recognizing mental health problems should be a priority for UBC.Students can also act as peer mentors to not only provide information on how to cope withstress and exam anxiety. This could reinforce that all students have their own personalchallengesone of which may be related to mental health.
Institutionalbarriers
The A&D office should advocate for funding ensuring continuity of service by providingconsistent and adequate service to students. Students should be able to receive all the differentservices that they need, even if the system is fragmented. Many different service providersmust be involved for full accommodation and treatment. In addition, services shouldcollaboratively direct students who are unable to receive service in a timely manner to othersame-level, if not better, mental health services on or off campus.
The A&D office should collaborate with other health services on or off campus to establish asystem to allow for mental health diagnosis documentation from other countries not currentlyaccepted by UBC. We understand that this may have to be done at a level higher than UBC;however, the ultimate goal would be that barriers caused by differences in medical systems donot hinder the access of international students to adequate services on campus. A first steptowards this could be the creation of an inventory of the types of documentation that are notaccepted by UBC, and the differences in diagnosis.
Socio-culturalbarriers
Stigma
In addition to the provision of more information, the A&D office could partner with UBCHousing and create a section in the August resident advisor (RA) training to better informRAs about social and health services on campus. Moreover, RAs should spend some timewhen their students first arrive to explain services provided by UBC to all groups, includingstudents with mental health and neurological disabilities. This can reinforce the idea ofdiversity to the student body, generate awareness about these issues, enhance inclusion, andminimize perceived stigma.
Beliefs onhealth careprovision
Further research must be undertaken to investigate the preconceptions and health care beliefsthat international students bring with them when they arrive to Canada. While much work hasbeen done on immigrants, there is little research looking at international students in auniversity setting.
During orientation, international students should be provided with a description of what
8/3/2019 515_final_v7
47/67
INTERNATIONAL STUDENTS WITH DISABILITIES 47
Canada's public health care system offers and the way it functions.
The International Student Handbook should make an effort to explain to students thecharacteristics of health provision in Canada such as: the average waiting time forappointment, the de facto one question per visit policy in clinics, prescription and refillprocesses for medicine, referral system for access to specialized doctors, and other ideaswhich non-Canadians may not be familiar with.
Communication
More research is needed to identify possible solutions for this barrier: it is not feasible toprovide counselling and psychotherapy in all languages; however, varied accommodationscan be designed for people in this situation. It would be important to look at best practicesamong other university campuses, including those in non-English speaking countries, to seehow language barriers to accessing health care services have been addressed.
Financial barriers
Create a special fund for diagnostic testing on campus that can provide money for s tudentsnot currently eligible for funding. If students must pay for their testing, look into differentpayment strategies or financing opportunities that can come out of this funding pool fortesting that cannot be paid for upfront as a lump sum.
Coping strategies The A&D office could promote strategies that focus on healthy and positive co