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    Running Header: INTERNATIONAL STUDENTS WITH DISABILITIES 1

    International Students with

    Disabilities:

    Evaluating barriers to

    accessing social and health

    services on campus

    Yazmn Hernndez Bauelas, Zoe Yu Wang, Timothy Shah, Jason Lee, Adam Kebede

    University of British Columbia

    Planning 515

    April 05, 2011

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    INTERNATIONAL STUDENTS WITH DISABILITIES 2

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    INTERNATIONAL STUDENTS WITH DISABILITIES 3

    Executive Summary

    The purpose of this study is to identify and address the barriers facing international students with

    disabilities at the University of British Columbia (UBC). Specifically, this study addresses the

    barriers international students face in accessing health services on campus. As a collaborative project

    between the two UBC departments: the School of Community and Regional Planning (SCARP) and

    the Access & Diversity (A&D) Office, the research findings are intended for both parties. In

    particular, the findings in this study are meant to: to help the A&D office better understand the

    barriers to health services on campus; provide recommendations for enhanced inclusion and to assist

    the A&D office in their advocacy efforts towards policy advancement and improved service delivery.

    We employed a case study research methodology. The flexible nature of this exploratory study

    allowed the researchers to go in more depth through the semi-structured interviews to inquire about

    how and why the identified barriers are so problematic. We recruited three participants for the study,

    all of whom were international students and male. We conducted a total of four interviews with threeparticipants; one participant was interviewed twice for further clarification of the data and for an

    elaboration of the interview questions. A semi-structured interview style was used because it allowed

    for focused, conversational two-way communication which provided the research team with more

    information and data beyond the scope of the interview questions which appeared to be limited at

    times.

    The major findings in this study pertained to reported barriers from the participants, and the coping

    strategies they use in everyday life. These barriers included lack of knowledge: one participant did

    not know about any services on campus, for example; institutional barriers: two participants had

    issues with institutional rules that inhibited access to a service; stigma: one participant had issueswith perceived stigma and two had issues with the public health care system as they are not used to

    this in their home countries; communication/language : one participant wished for a service to be

    delivered in his native language; financial: one participant had financial issues around paying for a

    diagnostic test. The latter half of the findings are the coping strategies used by the participants, these

    include support networks such as parents, friends, academic/international advisors and residential

    communities. Combined, these networks act as coping mechanisms to ease the academic and

    personal challenges associated with neurological disabilities and mental health issues.

    The coping strategies reported by the participants were powerful and inspiring stories about the

    mechanisms these students use in everyday life to cope with the neurological or mental health illnessthey are living with. These stories and experiences were captured in our study but warrant further

    academic exploration. Our contribution to this area is simply a starting point for the critical research

    that needs to follow. Section 6 provides a detailed list of recommendations we have prepared for the

    A&D office.

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    INTERNATIONAL STUDENTS WITH DISABILITIES 4

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    INTERNATIONAL STUDENTS WITH DISABILITIES 5

    Table of Contents

    1.0: Introduction ...................................................................................................................... 7

    2.0: Literature Review ........................................................................................................... 10

    2.1: Knowledge .............................................................................................................. 11

    2.2: Institutional Barriers................................................................................................ 13

    2.3: Culture ..................................................................................................................... 13

    2.4: Stigma ..................................................................................................................... 14

    2.5: Financial Barriers .................................................................................................... 17

    2.6: Communication Barriers ......................................................................................... 18

    3.0: Methodology................................................................................................................... 20

    3.1: Methods ................................................................................................................... 22

    3.2: Research Limitations ............................................................................................... 25

    4.0: Research Findings .......................................................................................................... 275.0: Discussion & Recommendations .................................................................................... 30

    5.1: Knowledge .............................................................................................................. 30

    5.2: Institutional Barriers................................................................................................ 33

    5.3: Socio-cultural Barriers ............................................................................................ 36

    5.4: Communication ....................................................................................................... 40

    5.5: Financial Barriers .................................................................................................... 41

    5.6: Coping Strategies .................................................................................................... 42

    6.0: List of Recommendations ............................................................................................... 45

    7.0: Conclusion ...................................................................................................................... 48

    Acknowledgements ........................................................................................................ 49Appendices ............................................................................................................................ 56

    Appendix A: Key Informant Interview Guide ............................................................... 57

    Appendix B: Additional Interview Guide ...................................................................... 59

    Appendix C: Registrations with the Access and Diversity Office ................................. 60

    Appendix D: Screening Questionnaire ........................................................................... 61

    Appendix E: Consent Form ............................................................................................ 63

    Appendix F: Recruitment Letter .................................................................................... 66

    Appendix G: Poster ........................................................................................................ 67

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    INTERNATIONAL STUDENTS WITH DISABILITIES 6

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    INTERNATIONAL STUDENTS WITH DISABILITIES 7

    1.0: Introduction

    The Access and Diversity office (A&D office) at the University of British Columbia

    (UBC) works to eliminate structural and attitudinal barriers to those with disabilities. The A&D

    office (2011b) provides disability-related services and accommodations for students, faculty, and

    staff with disabilities. In 2009, the A&D office (2011a) served approximately 1,248 students

    with diagnosed or suspected disabilities. As of 2009, UBC campuses (including Vancouver and

    Okanagan) host 54,125 students, 7,570 of whom are considered international students,

    accounting for almost 14 percent of the student population (UBC Public Affairs, 2009). The

    number of international students at UBC continues to grow, as attracting students from outside

    Canada is a part ofUBCs strategic plan to become a globally renowned institution (Hepburn &

    Pennant, 2011). Within the A&D office (2011a), however, international students are

    underrepresented: 112 studentsor 8.9 percentof those registered with the A&D office hold

    study permits.

    According to the 2009 National College Health Association (NCHA) survey, 36 percent

    of UBC students who completed the survey said they felt so depressed that it was difficult to

    function at least once in the last year (Amos, 2010). According to statistics provided by the A&D

    office (2011a), neurological and mental disabilities are the most common disabilities reported on

    the UBC-Vancouver campus. In 2009, the A&D office (2011a) assisted 427 students with

    neurological disabilities and had 278 cases of mental disabilities; while broad, the two categories

    account for 57 percent ofthe A&D offices registered users. Definitions for the two categories

    provided by the A&D office (2011a) are presented verbatim as follows:

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    INTERNATIONAL STUDENTS WITH DISABILITIES 8

    Neurological disabilities refer to disorders that affect understanding or using language,

    spoken or written, and mathematical calculations, as well as processing speed and

    memory capacities. This category covers learning disabilities, brain injuries, autism

    spectrum disorders, attention deficit disorders and attention deficit hyperactivity disorders.

    The term does not include learning problems that are primarily the result of visual,

    hearing, or motor disabilities, of mental delay, of emotional disturbance, or of

    environmental, cultural, or economic disadvantage.

    Mental illness is a term that describes a broad range of mental and emotional conditions

    that significantly interferes with the performance of major life activities, such as learning,

    working and communicating, among others. Among forms of mental illness are

    generalized anxiety disorders, depression, schizophrenia and other psychiatric disorders.

    As the A&D office continues to strive towards social inclusion on campus, understanding the

    experiences of those affected by neurological and mental health disabilities is imperative.

    During the past two academic years, the A&D office and the School of Community and

    Regional Planning (SCARP) have collaborated on various community based research projects on

    the UBC campus. In January 2011, SCARP's qualitative research methods class embarked on six

    community based community service learning projects with the A&D office. The main

    objectives of our particular project, focusing on international students and disabilities, are as

    follows:

    (1) To understand the experiences of using social and health services on campus for

    international students with disabilities in order to address any barriers;

    (2) To make recommendations for enhanced inclusion; and

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    INTERNATIONAL STUDENTS WITH DISABILITIES 9

    (3) To produce a report that can be used by the A&D office in their advocacy efforts

    towards policy advancement and improved service delivery.

    This report presents the findings regarding the focal research questionwhat are the

    barriers international students with disabilities face in accessing social and health services on the

    UBC-Vancouver campus? Other topics investigated throughout this project address the

    following sub-questions:

    What are the experiences of international students in accessing social and health services

    on campus?

    What are the key health and social services on campus?

    How do cultural differences impact the experiences of international students?

    What recommendations would international students make to enhance social inclusion?

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    INTERNATIONAL STUDENTS WITH DISABILITIES 10

    2.0: Literature Review

    The literature of fundamental importance to this study pertains to various barriers

    university students with mental health needs or neurological disabilities face in accessing

    services. The literature features discussion of students (both undergraduate and graduate) with a

    particular focus on international students. This section reviews a number of barriers: these

    include the lack of knowledge about a disability or services offered on campus; institutional

    barriers causing high demand on a service and thus lowering its quality; financial barriers

    relating to diagnostic testing and the high expenses of being an international student; the

    debilitating nature of stigma around mental health; and prominent cultural barriers that affect

    access to health services.

    Multiple studies have looked at barriers to health services for those at universities. The

    subjects of these studies have differed, with recent studies published pertaining to medical

    students (Chew-Graham et al., 2003; Tjia et al., 2005; Givens and Tjia, 2002), men (Davies et al.,

    2000), and general student populations (Yorgason et al., 2008). Table 1 summarizes the most

    common barriers found to prevent access to health services in each of the studies: issues which

    were prevalent throughout the research were a lack of time, a lack of confidentiality, and a fear

    for later job prospects. These issues provide a context for the multiplicity of issues faced by

    students with neurological or mental health illnesses that can be prevalent across university

    campuses.

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    INTERNATIONAL STUDENTS WITH DISABILITIES 11

    Table 1: Summary of prior studies on barriers to health services

    Study Population Barriers (in rank order where noted)

    Tjia, Givens, & Shea(2005)

    Depressed medicalstudents

    1. Lack of time2. Not enough sessions with university care3. Stigma4. Negative career impact5. Fear of diagnosis in academic record

    Givens & Tjia (2002) Depressed medical

    students

    1. Lack of time2. Lack of confidentiality3. Afraid no one will understand problems4. (tie) Stigma / Problems not seen as important6. Cost

    Davies et al. (2000) Men 1. Conceal vulnerability, independence2. Lack of knowledge

    3. (tie) Lack of time / no perceived susceptibility5. Advisor lacks credibility

    6. Advisor doesnt understand culture (gay, ethnic)

    7. Cost

    Chew-Graham, Rogers, &

    Yassin (2003)

    Medical students Stress

    Shame, embarrassment in admitting weakness

    Lack of confidentiality

    Later job prospects

    Fear of diagnosis in academic recordYorgason, Linville, &

    Zitzman (2008)

    General population Real behaviours:

    1. Lack of time

    2. Lack of knowledge3. (tie) Did not think services would help /

    embarrassmentHypothetical behaviours:

    1. Lack of time2. Lack of knowledge3. Did not think services would help4. Cost5. Did not want to talk to stranger

    2.1: Knowledge

    The first barrier one must overcome in accessing a service is knowledge: while many

    university students are aware that services exist, a significant numberincluding many of those

    who would benefit from such servicesdo not. This is seen in a survey conducted led by

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    INTERNATIONAL STUDENTS WITH DISABILITIES 12

    Eisenberg (2007), showing that just less than half of undergraduate students in their survey

    would be able to find mental health care on campus, while slightly more (59 percent) knew of

    available free counselling services (p. 597). Among those who tested positive for depression or

    anxiety and who did not use campus services, less than one-third could find mental health care,

    while 53 percent knew of free counselling services (Eisenberg et al., 2007, p. 597). A similar

    study done led by Yorgason (2008) found similar results: 70 percent of students contacted had

    never heard of mental health services, and the majority of those who did seek out the information

    did it on their own (p. 175).

    A study on graduate student mental health led by Hyun (2006) showed that more

    graduate students were aware of services. It was found that nearly three quarters of graduate

    students were aware of these services, and that female graduate students were significantly more

    aware of these services than males (Hyun et al., 2006, pp. 256-7). Furthermore, graduate students

    were found to be more likely to seek out information on their own instead of gaining knowledge

    from friends or advisors, meaning that traditional methods of information dispersion on

    university campusesresidence halls and administrative programsare unlikely to reach then

    (Hyun et al., 2006, p. 261). However, another study led by Hyun (2007) found that although 61

    percent of international graduate students responded that they knew that counseling services

    were available on campus, a percentage significantly lower than the 79 percent knowledge found

    of domestic graduate students (p. 113). This gap in knowledge helped result in a gap in the use of

    counselling services, as domestic students were much more prone to use the services provided by

    the university (Hyun et al., 2007, p. 114).

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    INTERNATIONAL STUDENTS WITH DISABILITIES 13

    2.2: Institutional Barriers

    In a study of early experiences of university students with disabilities in United Kingdom,

    Goode (2007) discussed the institutional barriers for students in accessing on-campus health

    services (pp. 45-46). The slow pace of the bureaucratic process beyond the university and the

    length of time that students needed to wait for reasonable accommodation constituted large

    obstacles in students studies and life. The long waiting list for adequate service, cumbersome

    application forms for service, and the use of unfamiliar bureaucratic terminology have been

    identified as difficulties in accessing service for adolescents with developmental disabilities

    (Betz, 2007, p. 106).

    Similarly, a study led by Wilson (2000) indicated that a lack of coordination and timely

    service from service centres diminished efficiency, failing to providing support and

    accommodation to students with minimal disruption in their academic course work (pp. 45, 47).

    Concerns were also expressed about the lack of formal policy and procedural guidelines, leading

    to services being provided in an inconsistent manner across disability groups (Wilson et al., 2000,

    pp. 39, 45, 50).

    2.3: Culture

    One definition of culture considers it an integrated pattern of human behavior including

    thought, communication, ways of interacting, roles and relationships, and expected behavior,

    beliefs, values, practices, and customs of a group (Taylor, 1997 as cited in Lee, 2003, p. 3).

    Penn et al. (1995) argue that intersections between culture and class affect one's behaviour

    toward health and health care (p. 641). Lee (2003) analyses the findings of Penn et al. (1995) and

    presents five health domains influenced by culture, summarised in Table 2.

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    INTERNATIONAL STUDENTS WITH DISABILITIES 14

    Table 2: Five health domains influenced by culture according to Penn et al. (1995)

    Health domains influenced by culture Definition

    Seeking Health Care Cultural beliefs about disease and majorevents (births and deaths) influencingdecisions about health care

    Preferred Treatment Cultural beliefs about health, illness, andtreatment influencing treatment afterdiagnosis

    Acceptability of Health Care Cultural familiarity or knowledge affectinghealth care acceptability

    Health Behaviour Cultural preferences and values affectingsources of knowledge, use of preventativehealth care, lifestyle

    Interactions with Health Providers Cultural relations, processes affectingindividual and intergroup relations

    Source: Lee (2003), p. 3

    2.4: Stigma

    Collins and Mowbray (2008) explain that university students with mental health issues face

    structural obstacles, ranging from personal discrimination (e.g., lack of awareness or

    understanding from faculty and peers) to gaps in service provision (e.g., inadequate financial aid,

    lack of campus-based mental health services, lack of information about campus services) (p.

    305), to a fear of stigmatisation for disclosing their illness to faculty or peers. While all of these

    barriers can impede ones willingness to access a service, stigma around mental health and

    disabilities appears to be highly severe in the literature. There have been a range of studies

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    INTERNATIONAL STUDENTS WITH DISABILITIES 15

    completed on the subject of stigma as it pertains to mental health, neurological disabilities, and

    accessing services.

    Twardzicki (2008) defines stigma as a sign of disgrace or discredit, which sets a person

    apart from others (p. 69); this reflects that that shame, disgrace, and stigma still are associated

    with mental illness in todays society. Hyun et al. (2007) also report how the stigmatization of

    mental illnesspossibly connected to the decreased recognition ofothers emotional problems

    presents a barrier to access of mental health services (p. 116).

    In discussing the stigmatisation of mental illness, Twardzicki (2008) asserts that young

    people may hold attitudes which are more ill-informed than the rest of the population (p. 68).

    Such negative attitudes toward stigma can create a spiral effect, where mental health is further

    undermined, and making it harder for those with disorders to seek help or treatment; this can

    further negatively affect relationships and ultimately cause the people with the disorder to be

    isolated (Twardzicki, 2008, p. 68).

    Corrigan (2004) discusses how stigma may impede people from seeking or participating in

    mental health services (p. 614). Further, the threat of social disapproval or diminished self-

    esteem (Corrigan, 2004, p. 618) that is associated with having a mental health illness can lead to

    the underutilization of services: this may partially be because those who are labelled mentally ill

    are severely stigmatized beyond the levels of other medical diagnoses (p. 614).

    There is also extensive research on public stigma and self-stigma both can impede a

    student in accessing a mental health or disability service. Corrigan et al. (2006) found that self

    stigma is a process by which public attitudes lead to personal responses and self stigmatization (p.

    882). Self-stigma has been further defined as the internalised impacts of others negative

    attitudes on a person who possesses a devalued characteristic (Rao et al., 2009, p. 586), and has

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    INTERNATIONAL STUDENTS WITH DISABILITIES 16

    been associated with lower use of services, as well as negative personal impacts, including low

    self-esteem, depression, and anxiety.

    Rao et al. (2009) look to ground this term more pragmatically and link it to enacted, or

    public, stigma. This process begins through discrimination from othersthis can include friends,

    colleagues, or classmatesresulting in an awareness of negative stereotypes surrounding a

    persons condition (Rao et al., 2009, p. 586). Eventually, this can evolve into enacted stigma: this

    happens when discriminatory behaviour occurs; when the person with the condition believes in

    the stereotypes surrounding his/her condition and internalises them, the stigma evolves from a

    public stigma to self-stigma (Rao et al., 2009, p. 586). By accepting the stereotypes, self-esteem

    and self confidence tend to drop (Corrigan, 2004, p. 618). As a result, Corrigan (2004) concludes

    that self-stigma results in the avoidance of the label causing stigma, and as a result, a vast

    decrease in willingness to participate in any sort of treatment (p. 618).

    The way in which people manage perceptions of stigma affects their choice to access

    health care. An important step to managing perceptions is self-disclosurein this case, telling

    others about a disorder. For those with disabilities, this is extremely contextual: Olney and

    Brockelman (2003) list situation, life stage, familiarity, and necessity (p. 36) as factors which

    are included in a decision to tell others. Therefore, this becomes a complex decision-making

    process, which allows someone with disabilities to break down stigma by sharing information on

    his terms (Olney & Brockelman, 2003, p. 49).

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    2.5: Financial Barriers

    A study by McClaran and Sarris (1985) identified that international students utilize health

    services less than other students; students identified areas of concern that affect their access to

    services (p. 3). Some of these concerns include insurance policies, communication between

    patients and providers, and information about available health care services (McClaran & Sarris,

    1985, p. 3). Another study by Sharif (1998) on international students in the United States

    identified language, financial issues, and stress as barriers to health care utilization. Furthermore,

    insurance forms and claim procedures also acted as barriers to the use of health care services

    (Sharif, 1998, p. 13).

    Lartey et al. (2009) explored the factors influencing the health behaviour of international

    students at another American university. In their study, surveys were given to 525 international

    students. The response rate was 81 students (15 percent). On the use of health care services, 56

    percent reported not to have used any of the services within the past year; 57 percent of the

    respondents perceived the lack of understanding of insurance policy while 53 percent perceived

    co-payment as barriers to health care utilization services (Lartey et al., 2009, p. 136).

    While this article does not speak directly to personal financial barriers, such as testing

    and documentation, there is a useful discussion around the complication of insurance policies.

    On the note of insurance policies and co-payments, the authors conclude that a better

    understanding of insurance policies will help students use health services easily when they need

    them (Lartey et al., 2009, p. 137). Furthermore, the authors emphasized education as a main

    means of understanding: because students come from cultures with different insurance systems,

    Lartey et al. (2009) reason that there is a obvious need to provide students with a clear

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    INTERNATIONAL STUDENTS WITH DISABILITIES 18

    understanding of the insurance system (p. 137) to increase the number of students who would

    use preventive health services.

    Hyun et al. (2007) also found financial issues to be a barrier to mental health access for

    international graduate students. In their study, international students were more likely to report

    having financial problems and less likely to report having emotional or relationship problems

    than domestic students (Hyun et al., 2007, p. 117). This underscores the different challenges that

    domestic and international students face and suggests university health-care administrators

    should account for these differences in designing counselling programs. Hyun et al. (2007) also

    found that students with better financial confidence were less likely to access counselling,

    suggesting that other factors may play a part in access to preventative health services (p. 113).

    2.6: Communication Barriers

    According to the literature, language is one of the greatest barriers in access to health

    promotion programs for people of non-English speaking backgrounds in Canada. A quantitative

    study conducted by Bowen (2000) correlates official language proficiency with health. Language

    also interacts with other determinants of health, such as race, culture and ethnicity, and is the

    means by which people become acquainted with the health and social services active in their

    community (Agic, 2003, p. 6; Woloshin et al., 1997, p. 476). In turn, effective communication is

    the foundation for adequate health care provision and the management of disabilities.

    Communication difficulties, whether due to cognitive, social, physical impairment or because of

    language difficulties are a significant barrier to accessing health care.

    Yeo (2004) argues that the improvement of communication between patients and

    providers in relation to health disparity consists of cultural competency and communication

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    INTERNATIONAL STUDENTS WITH DISABILITIES 19

    skills (p. 57). Additionally, a report on mental health for ethnically diverse communities found

    that language and cultural factors, along with stigma, a lack of trust, and a lack of understanding

    of the health system are considerable barriers to accessing mental health care in Canada (Agic,

    2003, p. 2). Furthermore, research has found that language barriers are associated with a

    multitude of negative outcomes, including longer wait times at clinics, a lower frequency in

    clinic visits, a lower understanding of doctors, an increased number of emergency room visits,

    and lower satisfaction with health services (Yeo, 2004, p. 59).

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    3.0: Methodology

    We employed a case study research methodology for this project. The project is meant to

    investigate a contemporary phenomenon within its real life context: the current barriers

    international students with disabilities face in accessing social and health services on campus.

    While our research question gets at the what, the flexible nature of this exploratory study

    allowed the researchers to go in more depth through the semi-structured interviews to inquire

    about how and why the identified barriers are so problematic.

    VanWynsberghe & Kahn (2007) explain how case study research calls for an intensive

    and in-depth focus on the specific unit of analysis and generally requires a much smaller sample

    size than survey research. The small sample size in this project makes it difficult to generalize

    our findings, but case study research is not meant to focus on generalisability. Case studies focus

    more on contextual detail and extendibility; it also aims to enrich a readers understanding of a

    phenomenon by extending the readers experience (VanWynsberghe & Kahn, 2007, p. 4). With

    only three participants in the study, we decided to use a case study research approach to focus on

    the experiences, behaviours and challenges of the participants in light of our main research focus.

    The experiences of the participants allowed our research team to create themes and codes

    to categorize the findings, which are discussed at length in the subsequent section. A thoroughly

    conducted case study research project recognizes that the involvement of human participants will

    generate data and stories upon which the researcher reflects and writes about. As our intention

    was to grasp a comprehensive and in-depth understanding of the barriers international students

    face, case study research is well justified.

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    Outreach Strategy

    The process of recruiting participants was a difficult albeit gratifying process. We

    received ethics approval for our requested amendments in early February. We requested a series

    of amendments to change certain terminology in our recruitment letter and our projects purpose

    to make the study as unambiguous and open as possible. We made specific amendment requests

    to ethics to include more flexible terminology such as students who self-identify with a non-

    dominant Canadian culture. Moreover, we have also included space forstudents who may not

    have a diagnosed disability but claim to have an impairment that affects their daily life. In

    essence, the need for these changes stemmed from group consensus and deep reflection about

    what we would like to get out of this project.

    Once we received ethics approval, we proceeded to circulate our recruitment letter to

    several academic departments including but not limited to geography, economics, psychology

    and engineering. We figured it would be helpful to utilize the networks of our fellow graduate

    school friends from these respective departments to circulate our recruitment letter. We also

    passed along our study to the listservs of the A&D office and International House. Our ethics

    approval also permitted us to utilize posters as a recruiting strategy. We did not put up too many

    posters; these were limited to a bulletin board in International House.

    Analyzing the Data

    We utilized a coding structure that broke down the barriers as themes (see Table 3). We

    initially used a comparative case study approach to make connections and relationships. But after

    some discussion, we elected not to use this approach to ensure the anonymity and confidentiality

    of the research participants. We broke up the reported barriers into themes to present the findings

    in a succinct and presentable way, and to maximize the level of analysis.

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    3.1: Methods

    Semi-Structured Interviews

    We completed three semi-structured interviews in our study. All three participants were

    male and of Latin American ethnicity. One participant had a mental health problem (depression),

    the other participants had neurological disabilities (learning processing disorder and attention

    deficit hyperactivity disorder (ADHD). The participant with depression is a visiting international

    student who has not accessed any of the social or health services on campus since he arrived.

    Only one female student expressed interest in our study but we did not successfully recruit her.

    Before we actually conducted the interviews with our participants, we forwarded the interview

    guide to our A&D office advisor to review the nature of the questions and to receive feedback on

    how to make them clearer and better focused. The ultimate purpose of using semi-structured

    interviews was to learn about the various barriers international students with disabilities face in

    accessing social and health services on campus (see Appendix A).

    Until the interviews, our groups understanding of mental health and neurological

    disabilities as barriers to service was constructed through reading the literature and other case

    studies across North American campuses. On a more practical level, the semi-structured

    interviews provided more of the context to UBC and the participants experiences with accessing

    services here. The use of a semi-structured interview style employed an open framework

    allowing for focused, conversational two-way communication.

    The flexible nature of semi-structured interviews can confirm what is already known but

    also provide the opportunity for further learning (Mason, 2002, p. 62). Mason (2002) explains

    that semi-structured interviews are conversations with a purpose (p. 62). Our intention was to

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    INTERNATIONAL STUDENTS WITH DISABILITIES 23

    construct or reconstruct knowledge as opposed to excavating it. The use of probing questions

    proved to be useful in soliciting information from the participants. When participants seemed

    perplexed by certain questions in our interview guide, we resorted to our probing questions to

    simplify what we were asking our participants. Our fieldnotes and continuous group debriefs,

    allowed group members to reflect about how the interview went and how we can improve for the

    next time.

    Questions that generated the most data from our interviews included questions 8 and 11.

    These questions were are there barriers you have encountered in accessing health and social

    services that relate to being a non-domestic/international student?Question 11 was in general,

    how do you feel about the experience of approaching/trying to approach the on-campus

    social/health services? Both of these questions targeted the very nature of qualitative research

    which focuses on the experiences, behaviours and feelings of the research participants, whoever

    they might be. As semi-structured interviews are a flexible approach to seek information, we

    thought of questions on the spot in light of the conversations we were having with the research

    participants.

    While we recruited three participants overall, our group decided to interview the first

    participant twice. The first interview with the participant, while valuable in that in generated data

    and helped build rapport, did not provide us with all of the information we had hoped for. In

    essence, going through the interview with this participant allowed the group to test the research

    instrument and ultimately give us a better understanding of the clarity and direction of the

    questions. We did not provide the participant with enough information about the studys purpose.

    We did e-mail all of the participants the interview guide prior to conducting the interview, but

    the first participant did not understand the studys purpose, nor did he understand the questions

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    we asked him. Upon reflection from the first interview, our group developed another set of eight

    questions that were specific to participant one and re-interviewed him (See Appendix B). These

    questions were not necessarily a deviation from the original interview guide, but were presented

    in a clearer and simpler fashion to allow the participant to digest them and respond in a more

    complete manner.

    Fieldwork Diary

    Following each interview, the interviewers were somewhat consistent in writing a

    fieldwork diary. The purpose of this method was to reflect on how the interview went and to

    evaluate our relationship with the research participant. Case study research uses afieldwork diary

    to record the researchers observations, conversations and maps. Diaries are useful for examining

    the researchers engagement in the process (Dowling, 2005, p. 22). In a research process, the

    researcher becomes steeped in data, but at the same time cultivates analytical distance to enable

    thinking about the data and to allow the imagination to work to see patterns in the detail, or how

    apparently unrelated items might be connected (Pratt, 2006).

    Pratt (2006) continues with discussing how a variety of devices might be used to aid this

    distancing, for example, a research diary containing personal reflections on the research, ones

    own involvement in and feelings about it. Fieldwork diaries have helped our research team work

    hard to achieve 'analytic distance' from the role, to set aside taken-for-granted assumptions and to

    see oneself in the role. Reflexivity has been crucial in the fieldwork diary process.

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    3.2: Research Limitations

    A first limitation we faced was that all three of our participants were male and Latin

    American. While not all Latin American countries share a culture, they are more similar to each

    other than they are to other cultures around the world. Furthermore, we lacked a female

    perspective on the issues; studies have shown that male and female responses to disability and

    coping can be vastly different from one another (Davies et al., 2000, p. 259). As a result, having

    only one gender limited the data garnered from the interviews.

    Another limitation we faced was the inability to transcribe interviews due to the ethics

    review. Because of this, interviews were recorded by hand, through note taking; thus, some of

    the rigour was lost before the analysis began, as participants could not be quoted word-for-word,

    and some meanings may have be inadvertently changed or lost early in the process. As a result,

    none of the quotes provided are truly quotations, and while we did follow-up with participants in

    areas where we were unclear, it is possible that interpretation could have been done during the

    transcription of the interview.

    In qualitative research there is a process called participant checking whereby the

    interview transcript can be given to the participant for vetting or authorizing (Dunn, 2005, p. 98).

    This process can not only improve the quality of the transcript but it also continues the

    involvement of the participants in the research process and provides them with their own record

    of the interview (p. 98). We did not forward the transcripts to our research participants because

    of time constraints; thus, this can be seen as a limitation in our study.

    Our ethics approval only allowed for the use of interviews and of mapping as data

    collection methods. Throughout our research we found out that mapping was not an adequate

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    tool to capture the experience of the research participants. Out of the three participants we spoke

    with, one had never accessed a service at all, one only accessed the A&D office, and the third

    participant had accessed counselling and the A&D office. Although mapping the existing

    services on campus would be a great way to promote awareness and allow for the dissemination

    of information visually, we felt that this was outside the scope of our research.

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    4.0: Research Findings

    While our initial intent was to explore barriers to both social and health services on

    campus, our participants focused on discussing barriers to accessing health care services. The

    various barriers reported are presented in Table 3. These barriers are somewhat consistent with

    the findings in the literature.

    Barriers such as financial, institutional, lack of knowledge/information, socio-cultural and

    stigma all were mentioned in the course of the study. A particular and perhaps unique finding in

    the socio-cultural category is in regard to the beliefs and perceptions about private and public

    health care. This issue, along with other findings, are summarized in Table 3 and will be

    discussed and analyzed in Section 5.

    Table 4 summarises the coping strategies used by the participants. While coping

    strategies are not barriers, we feel that coping is an alternative to seeking official care. While

    participants identified several barriers to accessing health services, they also explained various

    mechanisms they use to cope with the disabilitywith accessing services being one of many

    coping mechanisms.

    The quotes presented in Tables 3 and 4 are approximations of what the participant said

    during the interview; as mentioned in the limitations section, we were not allowed to record

    interviews, and as such, were unable to take down what the participants said word-for-word. We

    have attempted to reconstruct sentences from the noteswhile the results are presented as

    quotations, we would like to make clear that they are paraphrases, and unequivocally state that

    despite the appearance of quotation marks, they are not direct quotations.

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    Table 3: Barriers to accessing on-campus services

    Barrier to accessing services Sub-themes Participants' insights (Paraphrased)

    Communication Language My psychiatrist advised me to treat myself with therapy here [...] language would be a barrier that is difficult for

    therapy. In psycho-therapy you have to express yourself, and it's very difficult.

    inancialDifficulties affording a servicehat can help participants cope

    with disability

    My retesting period lapsed and I needed to get tested again, the lady at the A&D office was nice enough to use herdiscretion and I was able to sign up again otherwise it would cost me thousands of dollars.

    UBC wanted me to get re diagnosed, but I am not okay with paying $2000. Plus, I need to convince doctors to givea prescription and that cost me $200 for one months supply. [Insurance] wont cover it without a diagnosis

    nstitutional

    roblems in the system that makedifficult to access a service

    My previous school complied with all the recommendation from the testing centre. UBC only offers someaccommodations of those recommended for my condition.

    My diagnosis from home is not recognized by UBC

    I have gone for counselling and this service is not equipped for the number of people that use the service. They onldrop-ins, and they have 2 month waiting lists [...] Two years ago, I met with a counsellor I really liked, but shes gonafter a semester; lack of continuity is the problem.

    Lack of informationarticipant is unaware of theervice or do not know how toccess it

    Concerning the access to services at UBC, I didnt know that UBC provides help and mental health service to studeWhen I heard of the study, I learned the services existed.

    I did not find out through my orien tation, but I didn't tell [my advisor or people around me] about my disability eith

    I would have liked to have some information [during the application process]; Im sure the information is availableI got none provided to me during the application process

    ocio-Culturalhe influence of peoples health

    eliefs, values and perception ofealth problems rooted in one'sulture or society

    Transferable

    health carebeliefs

    I never use public health care services in [my home country or at my undergraduate university] because I have acceprivate therapy there [...] generally,private health care is better than public where I come from

    I went to the Clinic in the Village, just because I wanted to see if I had a problem. This is private clinic, I am quite

    satisfied. My parents think that the health care in Canada is really bad [...] they would rather fly me home than me going to t

    hospital here.

    tigmaPerception ofstigma

    If I dont explain to people, they look at my low energy and they will think this guy is lazy... they don't often assocwith a disease, it is often confused with a persons character.

    I don't want people to know, if people notice (for example, people will notice me going to a different location for aexam), they will think I am faking my disability. They wont believe me.

    I feel that people think I am dumber because I use the services [such as the A&D office].

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    Table 4: Coping Strategies

    Coping Strategies Participants Insights (Paraphrased)

    Previous Knowledge:Use previous knowledgeor experience

    I try to recall what I learnt from previous therapy, because I was treated for 1.5 years [] I try to use my previousknowledge from therapy [to cope with disabilities].

    Drugs:

    Use drugs (medication,cigarette, coffee, etc.)

    I take medicines, you get used to medicines when you have disabilities. [] But I also used to smoke. These are mytwo basic supports, friends and cigarettes. [] I use a lot of coffee to cope with that and cigarettes. I dont smoke much[] in a way, I want to make efficient use of this [limited amount of] energy. I try to use it in my work. Just you know,have your cigarettes and coffee and go to work.

    Medicine gets rationed []Im almost out now, but Im saving it up for the exams.

    Coping through rationing, [I] know when theres going to be a hard day [] [I] learn when to use [the drugs], how touse them.

    Family:Seek help from familymembers

    In first term I didnt bother to find resources, but I didn't do well with my tests [] and then I spoke with my mom sheencouraged me to look. And I found services online.

    Friends & Community:Seek help from friends orcommunity

    I look for my friends here, Ive made good friends here. Thats the community that I talk about. [] A place like thisis a place for people with disabilities. It is a more tight community. You are surrounded with great people. [] Theactivities of community, because we have breakfast together [] you talk and you expand your social networks. Otheractivities, we get together, we play soccer [] If you feel like you belong to a group of people, this is important.

    Something you are used to, I guess, when you are friends it is something you can joke about. [...] I guess you cantchange the system so you just make fun of it.

    [My department]is better because its smaller department, smaller classes. I study better in groups I have a couplefriends to study together with. [] [I study] just on my own or with friends.

    Academic Advisors:Seek help from teachers or

    Academic Advisor of thedepartment

    I have academic advising and international advising. [] I could get a note taker but it costs more money so I dontdo that. I ask teachers for their notes.

    My academic advisor has been helpful. I like being in a small faculty with more one-on-one interaction. It feels verypersonalized.

    Accessing Service:Access service andaccommodations fromservice providers

    Socially, I just live with it; with academics, at my old school they just gave me unlimited time. With the SATs I gotdouble time. Here they [the A&D office] give me more time for test.

    The A&D advisor is helpful, [she] agreed to register me on a semester basis to get benefits.

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    5.0: Discussion & Recommendations

    The section will begin with a discussion of the findings. We will draw connections

    between the findings of our case studies, and relate our discussion back to the literature. After

    looking at each barrier in our study mentioned in the literature review, we will provide

    recommendations that are directly relevant to the findings which can help the A&D office with

    their advocacy efforts. All recommendations are summarized without discussion in Section 6.

    5.1: Knowledge

    Lack of knowledge in this study is defined as not knowing which services are available.

    Our interviews revealed that there was a gap in knowledge of services when the students first

    arrived on campus; although the participants had disabilities which they were aware of, and had

    been treated for in their home country, none were aware of the presence of the A&D office or

    any other service when they first arrived at university. As a result, none of our participants were

    officially treated in their first term at UBC: while services were available for them to access, not

    knowing that they existed was the major barrier in the lack of access.

    These experiences line up well with a study authored by Goode (2007) on the initial

    experiences of university students: she found that students had been unaware of what support

    was on offer and how to access it readily (p. 41), a problem which is exacerbated if a student

    needs access to a service in the middle of the term. Furthermore, the study states that the

    accessibility of information sent prior to enrolment is overestimated; as a result, there are

    unrealistic assumptions placed on newcomers, who are expected to know what insiders already

    at the school know from being involved in the university (Goode, 2007, p. 46).

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    Our participants experiences with the application and orientation process reflect the

    latter point: while we are not certain how much information is provided prior to enrolment or the

    beginning of classes, it is clear that none was retained by our participants at the beginning of the

    term; as a result, they had to learn which services could accommodate their disabilities further

    along in their studies. While one participant stated that he is certain that information is readily

    available, he was not provided any during the application process. Furthermore, two of the

    participants had attended orientations for international students; neither was aware of any

    accommodation being mentioned during the orientation process. Finally, for the two participants

    who accessed services, one did so through a referral from International House, while another

    found applicable services on the internet.

    Studies tend to support these ideas, especially for international students. Hyun et al.

    (2007) found that there are barriers for international students with respect to the transmission of

    information (p. 117). With respect to how information is found, it is possible that the internet is

    becoming the norm: a study led by Cam Escoffery in 2005 found that almost three-quarters of

    students surveyed reported that they used the internet to find health information (pp. 184-5).

    Given that the use of the internet has increased and become more widespread since that point,

    websitesboth of the university and the facultiescan play an important role in giving students

    knowledge about health and social services on campus.

    The recommendations regarding knowledge are as follows:

    The A&D office and other health services should provide more information upfront, such

    as during the orientation process, making services visible, and allowing for students to be

    aware of the existence of services on campus. While this can be done at larger

    orientations, it may be preferable to do so in smaller venues with each faculty, so that

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    students would be more aware of where to seek help when necessary. We suggest that a

    student assistant could be hired in order to help raise awareness in the different

    departments of the university.

    We recommend that student staff from the A&D office take some time during orientation

    to inform new undergraduate and graduate students about the A&D office and the

    diversity of the UBC student body. It should be stressed that there are a number of

    students with mental health illnesses and neurological disabilities on campus, and to be

    mindful that universities are diverse, open-minded, and accessible places.

    To reduce the level of perceived stigma felt by students with mental health and neurological

    disabilities, it would be useful to increase information and educational efforts about campus

    mental health and neurological disability services such as the A&D office. As such, we suggest

    that information provided by the A&D office may take the following forms:

    A multifaceted approach ought to be used in order to increase knowledge; aside from

    orientations, there may need to be flyers around campus and in residence halls to raise

    awareness. Furthermore, the internet should be used in order to raise awareness, with

    easy-to-access information readily available on university web pages heavily

    trafficked by students.

    We suggest the introduction and design of programs for increased education with

    input from students, including graduate students, international students, and students

    who are currently using services. This information should include recognition of

    mental health issues, including symptoms of depression and other disorders, as this

    may not be readily understood in all cultures. Such information would help in raising

    awareness and allowing for knowledge regarding mental health, while also giving the

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    A&D office and other services a presence on campus beyond just service provision.

    Further, it would provide information and context about the diversity of students at

    UBC and the various challenges they have in their academic and personal life

    Education specific to international students about mental health, including coping and

    stress relief strategies, and about recognizing mental health problems should be a

    priority for UBC. Students can also act as peer mentors to not only provide

    information on how to cope with stress and exam anxiety. This could reinforce that

    all students have their own personal challengesone of which may be related to

    mental health.

    5.2: Institutional Barriers

    In this case, institutional barriers are defined as issues or problems within UBC which

    make it difficult for international students to access services. We identified two barriers through

    our research. The first barrier is associated with non-acceptance of diagnosis documents from

    foreign countries: one participant failed to receive accommodation from the A&D office,

    because his diagnosis from home is not recognized by UBC. International students with

    diagnosis documents not accepted by the university must be re-diagnosed in Canada, a costly

    procedure. In some cases, although documentation of the diagnosis is accepted, institutional

    barriers continue to persist. As one participant said, UBC only offers some accommodations of

    those recommended for my condition.

    Mental disorders and illnesses vary in definition and thus, can be diagnosed differently in

    different cultures (Lin & Cheung, 1999, p. 774). The most used assessment tool for mental health,

    the Diagnostic and Statistical Manual of Mental Disorders developed by the American

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    Psychiatric Association, has been questioned for its definition of mental disorders and decisions

    regarding certain conditions and if they can be legitimately considered as a mental disorder

    (Wakefield, 1992, p. 232). The lack of universal definitions and assessments of mental disorders

    or illnesses across countries results in the difficulty of accepting diagnosis documentation from

    foreign medical systems using different or non-compatible standards and measurements.

    A second barrier identified is the lack of continuity of care in certain health services on

    campus. Continuity of care, a key indicator of health care performance, relates to both past and

    present care and its conformity with therapeutic needs of the client (Hermann, 2000, p. 136; Bass

    & Windle, 1972, p. 110). Cohen and Sanders (1995) further defined the continuity of care as a

    guarantee that the care is implemented and coordinated by one and the same person (p. 124). One

    of our participants commented on his disappointing experience with a mental health care service

    on campus as a counsellor with whom he had a positive experience [is] gone after a semester.

    The practicum system in this particular UBC service has thus caused a discontinuity of service,

    which results in negative emotional reactions to some service users, including our participant.

    Counselling students do not often stay for a long period of time after the completion of their

    practicum: such constant turnover makes it difficult to guarantee continuity of care, something

    the participant had to unfortunately experience.

    The conflict between a high demand for the counselling service and limited personnel

    was also been pointed out by a participant, a problem which is consistent with an article in the

    Ubyssey regarding depression in UBC students and mental health services on campus

    (Wakefield, 2011). The long application process and waiting list for services, mentioned by

    Goode (2007), is identical to ourparticipants description of the two month waiting list for

    mental health service at UBC (pp. 45-46).

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    Institutional barriers come from the system level and cannot be resolved in a short period

    of time. In addition, removing these barriers require collaborative actions between different

    service providers, as well as higher levels of the bureaucracy, since for the most part,

    institutional barriers are not caused by and cannot be solved by one particular service provider.

    Thus, we understand that the A&D office is unable to unilaterally change issues found on this

    front; thus, we suggest some advocacy actions which the office may be able to take.

    The recommendations regarding institutional barriers are as follows:

    The A&D office should advocate for funding ensuring continuity of service by providing

    consistent and adequate service to students. Students should be able to receive all the

    different services that they need, even if the system is fragmented. Many different service

    providers must be involved for full accommodation and treatment. In addition, services

    should collaboratively direct students who are unable to receive service in a timely

    manner to other same-level, if not better, mental health services on or off campus.

    The A&D office should collaborate with other health services on or off campus to

    establish a system to allow for mental health diagnosis documentation from other

    countries not currently accepted by UBC. We understand that this may have to be done at

    a level higher than UBC; however, the ultimate goal would be that barriers caused by

    differences in medical systems do not hinder the access of international students to

    adequate services on campus. A first step towards this could be the creation of an

    inventory of the types of documentation that are not accepted by UBC, and the

    differences in diagnosis.

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    5.3: Socio-cultural Barriers

    Socio-cultural barriers refer to the influence that cultural and social settings have in

    affecting ones beliefs, perceptions, and behaviour. Throughout the three cases we explored, we

    identified two socio-cultural barriers: stigma and beliefs regarding health care provision.

    Stigma

    One participant stated that he did not want his friends or classmates to know that he

    accessed the A&D office for his neurological disability; he was worried that they would judge

    him and think he was dumber or faking his condition. These beliefs, whether true or not, do

    not appear to be abnormal for someone with a mental health need or neurological disability. This

    is related to the threat of social disapproval or diminished self-esteem associated with self-

    stigma of a mental health illness; this has been shown to lead to service underutilisation

    (Corrigan, 2004). Although the participant accesses the A&D office for his neurological

    disability, the perceived stigma around this generates negative thoughts including his beliefs

    around being dumber or faking it.

    While we cannot be completely certain in describing the stigma process associated with

    our research participant, we feel it is similar to a process described by Rao et al. (2009). The

    participant had mentioned negative comments from his parents; as a result, he has been well-

    aware of the negative stereotypes regarding his condition. It is possible that he has slowly

    internalised these stereotypes and led to self-stigma: this is possible because of his reactionthe

    idea that having a disability could make others perceive him to be dumber is something which

    shows that he has negative feels about his own condition. As a result, it is possible that he has

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    internalised the idea of stigma, and has led to self-stigmathus moving through the stages of

    how stigma affects people presented in Rao et al. (2009, p. 586).

    We can only speculate on this finding because we did not obtain any more information

    from the participant; however, more work must be carried out on this particular topic with UBC

    students with a mental health or neurological disability. This should be done both quantitatively

    and qualitatively with a larger sample size to generate a holistic understanding of perceived

    stigma and the strategies universities could use to better address them. Despite our small sample,

    we have come up with some recommendations that we advise the A&D office to consider.

    The recommendation regarding stigma is as follows:

    In addition to the provision of more information, the A&D office could partner with UBC

    Housing and create a section in the August resident advisor (RA) training to better inform

    RAs about social and health services on campus. Moreover, RAs should spend some time

    when their students first arrive to explain services provided by UBC to all groups,

    including students with mental health and neurological disabilities. This can reinforce the

    idea of diversity to the student body, generate awareness about these issues, enhance

    inclusion, and minimize perceived stigma.

    Private and Public Health Care

    Strong views on the superior quality of private health care vis--vis the public system

    were something which was mentioned during two of the interviews. Two participants held strong

    opinions that private health care is better than public health care; however, neither have had a

    personal experience with the Canadian health care system. This finding is significant as previous

    research has found that unfamiliarity with a given country's health care system discourages use

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    by culturally different patients (Hoang & Erickson, 1985, p. 229). For instance, Canada's

    universal health care system is significantly different from other systems such as the two-tier

    system or the US-style consumer driven care system (Gladwell, 2005, p. 44). Thus, this can be a

    large barrier in to use, as there is not an intuitive understanding of the Canadian health care

    system for many international students. Furthermore, in countries where private or two-tier

    health care systems are in place, private health care services are seen, in general as superior to

    the public system (Alves & Timmis, 2001, p. 24). Thus, the public health care system in Canada

    may be unsettling to international students from countries with such systems.

    The most striking finding in our interviews was perhaps that neither of the research

    participants have experienced the Canadian health care system. Both participants referred to

    horror stories they have heard about the Canadian health care system from third parties. In one

    case, the stories were from friends personal experience accessing care; for the other participant,

    the stories came from his parents. This participant said: my parents think that the health care in

    Canada is really bad [. . .] they would rather fly me [home] than me going to the hospital here

    despite his parents also never having used the Canadian health care system. His parents'

    assessment of the quality of care is solely based on their opinion of the performance of Canadian

    doctors practicing abroad, specifically, in the participants home country.

    Although there are no studies on health care perceptions and international students

    access to care, research regarding cultural beliefs and immigrants to Canada has explored this

    issue at length. In general, studies have shown that immigrants experiences and construction of

    health care from their country of origin heavily influence their perceptions and expectations of

    Canadian health care (Carrasco et al., 2009, p. 7). The literature available on this issue points at a

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    complex cycle of misinformation and cultural beliefswhen combined, these issues become a

    significant barrier to accessing health care services.

    If participants are used to private health care, their perception and expectation of the

    public health care system may be inadequate. Furthermore, when participants rely on other

    international students or their parents to assess the quality of Canadas care, they may never

    receive access to information necessary to familiarize themselves with the way the public system

    functions, which may in turn foster dissatisfaction with the system. The 1995 Penn et al. analysis

    of the interrelation between culture and class named this barrier acceptability of health care (p.

    641); interestingly, when asked directly if they thought culture was a factor in the barriers to

    accessing health care, the two participants both said no.

    One of the participants who used private health care at home stated that he did so because

    it is better; he also mentioned that he does not know if that is true of Canada. He elaborated on

    his choice of health care by saying he normally chooses services based on proximity to his on

    campus residence. However, the only one time he has felt ill, he went to a private health clinic

    off campus. As researchers, we often found ourselves trying to inquire about the reasons behind

    the participants actions, choices, and strategies for coping. In this case, however, the participants

    were reluctant to share details or did not think those details were relevant to the barriers they

    experience in accessing health care.

    The recommendations regarding health care provision are as follows:

    Further research must be undertaken to investigate the preconceptions and health care

    beliefs that international students bring with them when they arrive to Canada. While

    much work has been done on immigrants, there is little research looking at

    international students in a university setting.

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    During orientation, international students should be provided with a description of

    what Canada's public health care system offers and the way it functions.

    The International Student Handbook should make an effort to explain to students the

    characteristics of health provision in Canada such as: the average waiting time for

    appointment, the de facto one question per visit policy in clinics, prescription and

    refill processes for medicine, referral system for access to specialized doctors, and

    other ideas which non-Canadians may not be familiar with.

    5.4: Communication

    Language was identified by one participant as a significant deterrent from accessing mental

    health services. In Canada, the provision of linguistically appropriate health promotion and care

    hasbeen identified as necessary to address the existing disparities and ensure equal access to all

    the resources (Agic, 2003, p. 2). The participant mentioned that he was discouraged from

    seeking help as the type of therapy he needs would require him to speak in his native tongue for

    it to be effective. For this participant, psychotherapy was about expressing one's thoughts and

    feelings; he felt that he would be very limited in his capacity to express those feelings if he were

    to do this in English. Previous research has also identified language capacity and comfort level

    for psychotherapy as a barrier to accessing this service (Leong & Lau, 2001, pp. 207-209).

    International students at UBC possess different levels of comfort and competency in the English

    language; as such, this barrier may only be applicable for certain students.

    We do not feel that we have enough information to make a recommendation on the issue

    of communication and language proficiency. More research is needed to identify possible

    solutions for this barrier: it is not feasible to provide counselling and psychotherapy in all

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    languages; however, varied accommodations can be designed for people in this situation. It

    would be important to look at best practices among other university campuses, including those in

    non-English speaking countries, to see how language barriers to accessing health care services

    have been addressed.

    5.5: Financial Barriers

    In this project, financial barriers are defined as difficulties affording a service that can help

    a student cope with a mental health need or neurological disability. One participant noted that the

    cost of diagnostic testing was overwhelming when told that it would cost $2,000 for diagnostic

    testing in Canada, despite having documentation from his home country. As a result, the

    participant was discontent and highly stressed. Sharif (1998) found that international students

    identified language, financial issues, and stress as barriers to health care utilization (p. 11). Hyun

    et al. (2007) also found financial issues to be a barrier to mental health access for international

    graduate students; international students were found to be more likely to report having financial

    problems than domestic students (p. 113).

    While neither study speaks directly to the financial stress around diagnostic testing, they

    nonetheless point to stress surrounding finances, which can include higher tuition payments or

    thousands of dollars in payment toward diagnostic testing. While the A&D office is aware of the

    high cost of diagnostic testing for students with neurological disabilities, we found that the

    student was unaware that the documentation from his home country would not be accepted in

    Canada, and worse yet, it would cost $2,000 to receive proper documentation. This amount can

    be substantial for any student, domestic or international, but when paying higher tuition fees, it

    can be even more financially burdensome.

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    The recommendation regarding financial barriers is as follows:

    Create a special fund for diagnostic testing on campus that can provide money for

    students not currently eligible for funding. If students must pay for their testing, look into

    different payment strategies or financing opportunities that can come out of this funding

    pool for testing that cannot be paid for upfront as a lump sum.

    5.6: Coping Strategies

    Coping has been defined as how people regulate their behaviour, emotion, and orientation

    under conditions of psychological stress (Skinner and Wellborn, 1994, p. 112). In our study, we

    found that participants use a range of coping strategies. Assessing coping strategies and their

    effectiveness is complicated, as responses to stressors depend on life experiences, as well as

    other factors, including cumulative mental and physical health. Our research identified six broad

    coping strategies which are explored throughout this section.

    Previous Knowledge

    One participant mentioned that in order to cope with his disability he incorporates the

    strategies, exercises and suggestions he received from his therapist while he had access to

    psycho-therapy back in his home country.

    Drugs

    The use of drugsboth prescription and non-prescriptionwas a coping strategy used by

    two participants; one participant mentioned cigarettes and coffee as his most commonly used

    strategy for coping. However, the more worrying finding in this topic was to hear the story of a

    participant who rations his prescription medication as the lack of a Canadian diagnosis prevents

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    his from receiving the same prescription medicine in Canada. Understanding the coping

    strategies of stigmatized individuals requires one to understand their unique experiences and

    circumstances. While rationing medication seems like a stressor itself, this strategy speaks of the

    many ways in which existing barriers to accessing health services affects the life choices made

    by international students.

    Family

    One participant mentioned he called her mother once he encountered difficulties

    functioning within the UBC academic context. It is important to mention this was not the case

    for all participants: one of our participants clearly stated that his family simply could not help

    him cope with his disability; thus, he chose to rely on his friends and the community around him

    instead.

    Friends and the UBC Community

    Seeking help from friends and the community is a coping strategy used by all three

    participants. The participants all mentioned how their friends and the UBC community, either

    academic or residential, support their studies and life. When they have a couple of friends to

    study with, have breakfast together in the residential community, or to simply get together

    with friends, they develop a sense of belonging, which helps them through their respective

    difficulties. One participant told us that upon transferring from a large department to a smaller

    one with fewer students, he found that he liked the smaller classes, where he was able to made

    friends with others in his department.

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    Academic Advisors

    Two participants mentioned that they approached advisors when they had problems. One

    participant commented on his experience with an academic advisor in his department as being

    helpful. He favoured the one-on-one interactions between students and his advisor, and finding

    that it was personalized and a better support for him.

    The A&D Office and Other Services

    Two participants mentioned their access to the A&D office for accommodations. One

    participant did not know about the A&D office until he finished his first semester and found

    information about the A&D office online. He commented on the A&D advisor as being helpful

    during his registration with the office each semester. Another participant was satisfied with the

    extended time allocated to his exams as accommodation from the A&D office.

    Our recommendation involving coping strategies is as follows:

    The A&D office could promote strategies that focus on healthy and positive coping

    strategies that incorporate skill development for new students. This could be done

    through orientations, student handbooks, workshops, roundtable discussions, blogs,

    newsletters, etc.

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    6.0: List of Recommendations

    To make it easier for the reader, this section is a collection of all of the recommendations we have listed in the Section 5.

    Table 5: Recommendations

    Barriers Recommendations

    Knowledge

    The A&D office and other health services should provide more information upfront, such asduring the orientation process, making services visible, and allowing for students to be awareof the existence of services on campus. While this can be done at larger orientations, it maybe preferable to do so in smaller venues with each faculty, so that students would be moreaware of where to seek help when necessary. We suggest that a student assistant could behired in order to help raise awareness in the different departments of the university.

    We recommend that student staff from the A&D office take some time during orientation toinform new undergraduate and graduate students about the A&D office and the diversity ofthe UBC student body. It should be stressed that there are a number of students with mentalhealth illnesses and neurological disabilities on campus, and to be mindful that universitiesare diverse, open-minded, and accessible places.

    Strategies to include information may take the following forms:

    A multifaceted approach ought to be used in order to increase knowledge; aside from

    orientations, there may need to be flyers around campus and in residence halls to raiseawareness. Furthermore, the internet should be used in order to raise awareness, with easy-to-access information readily available on university web pages heavily trafficked by students.

    We suggest the introduction and design of programs for increased education with input fromstudents, including graduate students, international students, and students who are currentlyusing services. This information should include recognition of mental health issues, includingsymptoms of depression and other disorders, as this may not be readily understood in allcultures. Such information would help in raising awareness and allowing for knowledgeregarding mental health, while also giving the A&D office and other services a presence oncampus beyond just service provision. Further, it would provide information and contextabout the diversity of students at UBC and the various challenges they have in their academic

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    and personal life

    Education specific to international students about mental health, including coping and stressrelief strategies, and about recognizing mental health problems should be a priority for UBC.Students can also act as peer mentors to not only provide information on how to cope withstress and exam anxiety. This could reinforce that all students have their own personalchallengesone of which may be related to mental health.

    Institutionalbarriers

    The A&D office should advocate for funding ensuring continuity of service by providingconsistent and adequate service to students. Students should be able to receive all the differentservices that they need, even if the system is fragmented. Many different service providersmust be involved for full accommodation and treatment. In addition, services shouldcollaboratively direct students who are unable to receive service in a timely manner to othersame-level, if not better, mental health services on or off campus.

    The A&D office should collaborate with other health services on or off campus to establish asystem to allow for mental health diagnosis documentation from other countries not currentlyaccepted by UBC. We understand that this may have to be done at a level higher than UBC;however, the ultimate goal would be that barriers caused by differences in medical systems donot hinder the access of international students to adequate services on campus. A first steptowards this could be the creation of an inventory of the types of documentation that are notaccepted by UBC, and the differences in diagnosis.

    Socio-culturalbarriers

    Stigma

    In addition to the provision of more information, the A&D office could partner with UBCHousing and create a section in the August resident advisor (RA) training to better informRAs about social and health services on campus. Moreover, RAs should spend some timewhen their students first arrive to explain services provided by UBC to all groups, includingstudents with mental health and neurological disabilities. This can reinforce the idea ofdiversity to the student body, generate awareness about these issues, enhance inclusion, andminimize perceived stigma.

    Beliefs onhealth careprovision

    Further research must be undertaken to investigate the preconceptions and health care beliefsthat international students bring with them when they arrive to Canada. While much work hasbeen done on immigrants, there is little research looking at international students in auniversity setting.

    During orientation, international students should be provided with a description of what

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    Canada's public health care system offers and the way it functions.

    The International Student Handbook should make an effort to explain to students thecharacteristics of health provision in Canada such as: the average waiting time forappointment, the de facto one question per visit policy in clinics, prescription and refillprocesses for medicine, referral system for access to specialized doctors, and other ideaswhich non-Canadians may not be familiar with.

    Communication

    More research is needed to identify possible solutions for this barrier: it is not feasible toprovide counselling and psychotherapy in all languages; however, varied accommodationscan be designed for people in this situation. It would be important to look at best practicesamong other university campuses, including those in non-English speaking countries, to seehow language barriers to accessing health care services have been addressed.

    Financial barriers

    Create a special fund for diagnostic testing on campus that can provide money for s tudentsnot currently eligible for funding. If students must pay for their testing, look into differentpayment strategies or financing opportunities that can come out of this funding pool fortesting that cannot be paid for upfront as a lump sum.

    Coping strategies The A&D office could promote strategies that focus on healthy and positive co