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34 th Annual Fall Conference: September 20, 2014 Speaker: Randy Henniger , CRC survivor and ostomate Topic: Beating CRC Cancer and Surviving the Cure Or “ Under the knife: A patient’s perspective ”. You know you’re a bowel disease sufferer when…. • You have a favorite "Ensure" flavor. - PowerPoint PPT Presentation
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34th Annual Fall Conference: September 20, 2014Speaker: Randy Henniger, CRC survivor and ostomate
Topic: Beating CRC Cancer and Surviving the CureOr
“Under the knife: A patient’s perspective”
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You know you’re a bowel disease sufferer when…
• You have a favorite "Ensure" flavor.
• People ask about your guts, before they ask about your family.
• You have more photos of your insides that the outsides.
• You have a spare pair of underwear in your bag/pocket.
• You get directions around the nearest restroomsThank you all for picking “poop” as your career…LOL
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1986:Stage III rectal cancer-age 30
Surgery, radiation, permanent colostomy
“Mrs. Henniger, your husband will
most likely be dead in 6 months.”
+8 days from DX to surgery
+ Down for 4 days
+11 days in hospital
+90 days back to work
2014: Permanent urostomy-age 59
+ Up and walking hours after surgery
+ 5 days in hospital
+ 7 days back to work
Surviving the Cure: ED, Peripheral Neuropathy, Bladder
Dysfunction
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Patient Support Needs
Diagnosis
100 yard dashCONFUSION
Treatment
440 relayENERGY BANK
SurvivalMarathonVictim or Victor?
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Diagnosis Make a decision
Ostomy as an option Gathering resources
Peer programs Online communities
www.ostomy.org www.inspire.ostomy.org Facebook groups: Colontown
Preparing emotionally “We don’t love you for how you go to the
bathroom!” “It’s better than the alternative: BEING DEAD!”
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Treatment & Recovery Pre-Op
Stoma marking Not at the belt line-PLEASE!
Talk to an ostomate Wear some products Try on your clothes Share with your partner?
Post-op: Meet your rosebud..so sorry! Recovery: Physical, emotional and
spiritual
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Survival
Acceptance Physical changes & EMOTIONS
Relationships & Image Activities: Just do it! Irrigation: a lost art?
Can I or can’t I? Thick skin/humor Accidents will happen! Join a support community Sharing our stories
Changing public opinion
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Active Ostomates: No Limits
SurfingHikingBikram hot yogaRaftingSCUBABiking
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Thank you for ALL you do!
14 million cancer survivors/1 million ostomatesWe would not be here without you!!!
MyContact Info
QUESTIONS DURING LUNCH???
