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2019 THE COMPANION SUMMER - OneLegacy · PDF file The Donate Life Dedication Garden is open! If decorating does not seem to be a good fit for you or if you have family members that

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  • THE COMPANION One Life. One Choice. One Gift. SU

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    SUMMER DO-IT-YOURSELF (DIY) MEMORIAL PROJECT: BOX OF MEMORIES Ages: Everyone! It can be especially fun to share memories with friends and family.

    Purpose: To create a small box full of drawings, words, and/or photos that remind you of your loved one and the memories you shared. During difficult moments of missing your loved one, you can use the Box of Memories to talk about your loved one as a group or for individual reflection. It can also be useful for children to use the Box of Memories to address any anxiety or fears about “forgetting” their loved one. Because the box is small, it can be taken along in a handbag, a backpack or even kept in the car.

    Completed Box of Memories

    Steps:

    1. Decorate the outside of an empty tin box using glue, decorative paper, stickers, markers, etc.

    2. Recreate pictures or symbols of your loved one any way you like.

    a. Draw/color a memory of your loved one or something that reminds you of them.

    b. Cut out a picture or word from a magazine or news- paper that reminds you of them.

    3. Place memories (paper and pictures) inside your Box of Memories.

    4. Use your Box of Memories to have alone time remem- bering your loved one, or share memories with friends and family.

    Supplies needed:

    • Small box with lid (empty mint or candy tin works well)

    • Glue

    • Scissors

    • Paper (drawing paper, decorative paper, etc.)

    • Markers, crayons, pens, etc.

    • Stickers

    • Old magazines or newspapers

    • Photos of your loved one

  • THE COMPANION

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    HAVE YOU EVER WONDERED, “WHAT HAPPENED TO MY LOVED ONE’S ORGANS, EYES AND/OR TISSUES THAT WERE DONATED FOR RESEARCH?”

    Recently, a donor family shared their story about their life, their family, and their son’s organs and

    tissues being studied for research during this podcast http:// www.radiolab.org/story/grays-donation/. Thomas Gray died six days after he was born due to anencephaly, a fatal birth defect where the brain and skull did not fully develop. Sarah and Ross Gray made the decision to donate Thomas’ organs and tissues for research. As a result, Thomas’ corneas, retina, cord blood and liver were studied and have lead to numerous discoveries. When Sarah talks about her journey, she states, “We need each other. Bereaved families need a way to find hope in the midst of a crisis. Researchers need tissue in order to advance medicine and science.” Through Thomas’ research donation, Sarah said, “The way I see it, our son got into Harvard, Duke, and Penn. He has a job. He is relevant to the world. I only hope my life can be as relevant.”

    About OneLegacy Research Partners: OneLegacy partners with innovative research organizations from all over the country. By partnering with different research organizations and medical facilities, OneLegacy offers a variety of new and innovative ways in which donors and their families can save and enhance lives beyond traditional transplantation. Current OneLegacy partners include:

    • The National Disease Research Interchange (NDRI) is an organization that matches available diseased and healthy organs, eye and tissue with research projects around the country. OneLegacy donors have gifted heart, liver, pancreas, lungs and kidneys to these studies to advance treatments for diabetes, HIV, Cystic Fibrosis and heart disease. For example, lungs recovered from patients with Cystic Fibrosis have given researchers the opportunity to develop the first drug to target the underlying cause of Cystic Fibrosis.

    • Cytonet works closely with OneLegacy to utilize donated livers by recovering high quality liver cells and transplanting them into patients with liver diseases, especially babies waiting for a liver transplant. If the liver is not used for this process, it is used for continuing their research with the infusion of these liver cells.

    • The International Institute for the Advancements of Medicine (IIAM) works closely with prominent research programs through medical schools and medical research facilities to study donated organs and tissues and find breakthroughs in treatments for many illnesses such as asthma, cancer, diabetes and many more. For example, hearts are being studied to enable researchers to develop a durable, prosthetic heart valve to improve blood flow in patients with aortic stenosis. Currently, the only treatment for these patients is open heart surgery.

    • City of Hope, Prodo Laboratories and Network for Pancreatic Organ Donors with Diabetes (nPod) study donated pancreases to better understand the disease process in type 1 diabetes and/or the use of islet cell transplantation as a treatment for type 1 diabetes. This treatment transplants the cells from the pancreas which are responsible for insulin production into diabetic patients. With islet cell transplantation, often times, the diabetic patient is no longer dependent on insulin.

    Organ, Eye and Tissue Donations for Research by Anna Binder

    Thomas Gray (Photo: Mark Walpole)

    Donated organs, eyes and tissue have a tremendous positive impact and are priceless, vital contributions to medical advancement. From improving recovery techniques to exploring the therapeutic potential of human cells and then creating new forms of treatment, our research partners are consistently developing and improving their investigations to maximize the gift of life that has been given to them.

    What OneLegacy Does: Once authorization for research is provided by the donor or by the donor’s family, OneLegacy then works to designate approved research partners and projects, and assists with the recovery process.

  • One Life. One Choice. One Gift.

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    • Cryolife uses heart valves to teach surgeons how to perform life-saving heart valve transplants, which can positively impact the lives of numerous heart patients.

    • OneLegacy Eye Bank provides corneal tissues for research to teach surgeons and recovery technicians about cornea recovery and transplant which positively impacts donors and patients for years to come.

    Like donating for transplant, we hope that donating for research brings comfort and hope, knowing your loved one’s contribution is helping people who benefit from these medical advances. If you have any questions about your loved one’s donation, please contact Donor Family Aftercare at 1-800- 423-7220 or at familycare@onelegacy.org.

    Free Grief Support Monthly Workshops on Saturday mornings 10am to 12pm

    All ages welcome (children starting at age 3 ½).

    English or Spanish speaking adults welcome.

    SPECIAL UPCOMING EVENTS

    la ReserveFechalaReserveFecha

    Donate Life Night at Dodger Stadium

    Date: Saturday, September 21

    Time: 6:10pm

    Dodgers vs. Colorado Rockies

    Month Downtown Los Angeles Orange Redlands

    SEPTEMBER 9/14/19 9/21/19 No group

    OCTOBER: Día de Los Muertos “Day of the Dead” Craft Workshop 10/12/19 10/19/19 10/19/19

    NOVEMBER: Surviving the Holidays Craft Workshop 11/9/19 11/16/19 11/16/19

    DECEMBER 12/14/19 12/21/19 No group

    JANUARY 1/11/20 1/18/20 No group

    SAVE THE DATE “IT’S TIME FOR DODGER BASEBALL!”

  • THE COMPANION

    OneLegacy currently has over 8,000 donor family members on our mailing list. We send our newsletter out by mail and email. Families remain on our mailing list for three years following their loved one’s donation.

    If you would like to remain on our mailing list and your loved one donated in 2016, please call or email us at 800-423-7220 or familycare@onelegacy.org. When emailing or leaving a message, please provide your name, the name of your donor and a phone number where you can be reached in case we have a question.

    We will be pleased to keep all interested donor families on our mailing list so that you will then continue to receive The Companion which helps us to connect with donor families and provide information on upcoming events and opportunities.

    IMPORTANT ANNOUNCEMENT ABOUT DONOR FAMILY MAILING LIST

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    This year’s parade theme, The Power of Hope, honors the opportunity to look beyond challenges of the moment and light a path to a brighter future. The 2020 Donate Life Rose Parade® float, “Light in the Darkness”, shares the Power of Hope by highlighting Southeast Asia’s Diwali, or the Festival of Lights, a celebration of light shining in darkness. Organ, eye, and tissue donation is often the first spark of light families see when in their darkest of moments, the opportunity to honor their loved ones’ legacy provides hope and light to both grieving donor families and grateful recipients.

    We invite you to help bring the Donate Life Rose Parade Float to life! For the first time, we are hosting one decorating shift in November and we will have three shifts in December. The donor family decorating shifts are scheduled for Sunday, November 17th from 12pm – 4pm; Thursday, December 26th from 7:30am – 12:30pm and 1pm – 6pm; and Saturday, December 28th from 1pm – 6:30pm. We will begin taking sign-ups on October 7th at 9am.

    In an effort to accommodate the growing number of famil

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