2017 Winter Companion Newsletter - Alzheimer's Family... · PDF fileEileen Reyes Doris Rosin Robert Runnels Susan Saunders Larry Selner Deborah Selsavage Gerald & MaryAnn Sibley Sue

2016 GOLF TOURNAMENT

I N S I D E

L to R:Bob Tiller,Irene Thompson,Kathleen Winters

We couldn’t do it without you…

Support Groups 4

Services 5

Education Calendar 6

Debbie’s Corner 7

Meet The Board 8

Volunteer Spotlight 8

John Brinker 9

From Your Editor 9

Lake,Sumter, S. Marion 10

Knitters For Charity 11

Upcoming Events 11

AFO Support Walk 12

AFO Golf Tournament 13

Escape Brewing Co. 14

Tour of Brooksville 14

Crisis Management 14

What I’ve Learned 15

After Diagnosis 16

Keep It Simple 18

Reality Check 19

Winter 2017Vol. 19, No. 11

www.seniorshelpingseniors.com AHCA#233133 • AHCA#233151

Companion and Homemaker Services by Seniors for Seniors. Escorted Transportation/Outings • Appointment Scheduling & Reminders

Alzheimer's/Dementia Companionship Support • Light Housekeeping Meal Prep, Planning, Grocery Shopping • Socialization

Call today for a free evaluation and service plan 352-610-9934Citrus, Hernando & W Pasco Countieswww.seniorshelpingseniors.com AHCA#233133 • AHCA#233151

Companion and Homemaker Services by Seniors for Seniors. Escorted Transportation/Outings • Appointment Scheduling & Reminders

Alzheimer's/Dementia Companionship Support • Light Housekeeping Meal Prep, Planning, Grocery Shopping • Socialization

Call today for a free evaluation and service plan 352-610-9934Citrus, Hernando & W Pasco Counties

Thank you for your generosity!Thank you for your generosity!

2 Alzheimer’s Family Organization - Companion

Executive Director Kathleen WintersPresident Matthew Barry, Esquire1st Vice President Sue Simone2nd Vice President Cheryl CourtrightTreasurer John JamisonSecretary Bernie FitzgeraldMembers Kathleen Mengle Greg Perkins Kathy Postiglione

facebook.com/AFO.FL

Scan this QR code with your smartphone. It will take you towww.alzheimersfamily.org. Download a free QR code reader

from the ITunes App Store or Android Market to read the QR code.

Hours: 8:00 a.m. to 4:00 p.m., Mon. – Fri.Office: 461 Mariner Boulevard, Spring Hill, FL 34609Telephone: 352-616-0170Fax: 352-616-0174 • E-Mail: [email protected] Site: www.alzheimersfamily.orgFacebook: www.facebook.com/AFO.FLTwitter: @AlzFamilyOrg

Bonnie Reidy Glen Scharfeld Debbie Selsavage Rick WigginsAdvisory Committee Mildred V. Farmer, M.D. Reverend Jack Long Jim Mathieu, Esq. Deborah O’Leary, R.N., B.C.G. Eileen Poiley, M.S. Sean Scott, Esq.Your County RepresentativeLake/Sumter/Marion Pam Schmitz – 352-396-6927Pasco/N. Hillsborough/N. Pinellas John Brinker – 813-334-3246

Vision StatementAll those with Alzheimer’s or other forms of dementia, and their caregivers, will have a better quality of life.

Mission StatementTo provide educational programs, support services and assistance to caregivers, families and individuals with Alzheimer’s disease and other dementia.

NewsletterEditor: Sue SimoneEditorial Staff: Steve Davis, Beth GarofallouAll material in this newsletter is offered as information to our readers. The Alzheimer’s Family Organization does not warrant, endorse, or recommend any provider, program, or product.Others interested in supporting this publication may call the Organization office at 352-616-0170.The “Companion” is published quarterly by The Alzheimer’s Family Organization located at 461 Mariner Boulevard, Spring Hill, FL 34609. Subscription is free to members and advertisers. The Alzheimer’s Family Organization disclaims any liability for damages resulting from articles, opinions, advertising, or representations expressed or implied in this publication. Any comments or claims are made solely by the individual author and do not necessarily represent the views of any other Alzheimer’s Family Organization member or other persons, living or dead.

The Alzheimer’s Family Organization conforms to the Florida “Solicitations of Contributions Act” pertaining to charitable organizations:“A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE (1-800-HELP FLA) REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE.”

Twitter@AlzFamilyOrg

WORDS FROM THE EXECUTIVEDIREC TOR

ALZHEIMER ’S FAMILY ORGANIZATIONFAMILY IS OUR MIDDLE NAME

Happy New Year to you all! I am hoping that this new year will bring you support, love and companionship. As I reflect on the past twelve months, it is hard to believe that I have been here an entire year already. So much has taken place and so many wonderful changes and events have taken place that it seems like just yesterday I was walking in the door! I feel blessed to be here and strive to ensure that caregivers and their loved ones receive the best supportive services from this organization as possible.

Since the fall issue of The Companion, we have had some wonderful events occur, including Painting with a Purpose, Escape Brewing Fun Day, The Inaugural Tour of Brooksville Bike Event, and our 16th Annual AFO Tampa Bay Charity Golf Tournament. In addition, we have two wonderful new employees who have joined us, and one returning employee in a new position.

We welcome John Brinker back to the organization as our Pasco County Community Educator. John has hit the ground running and truly enjoys his new role and being out in the community and networking with other agencies and new sponsors and members. We

also welcome Denise Damianakes in a newly created position as administra-tive associate and Linda Vilseck in an additional new position of marketing & media specialist! Pam Schmitz, our Community Educator in the south/east area of Lake and Sumter counties, is happy to have the additional support of this new structure! I am very pleased to have these wonderful people as a part of the Alzheimer’s Family Organization family!

As we move forward, to reach all our service areas in a more individualized way, we are in search of some-one who is very familiar with and lives in The Villages. Please feel free to reach out to me if you or someone you know might be interested in joining our family!

I go into this new year with hope, love and compas-sion for each caregiver, regardless of the role you play in the life of a loved one who is affected by Alzheimer’s disease or dementia. To our community partners, please continue to provide the support to caregivers that is so desperately needed as we all walk this journey together.

With Respect, Kathleen

Non-Profit Community Benefit Organization Serving West Central FloridaCovering Citrus, Hernando, Northern Hillsborough, Lake, Southern Marion,

Pasco, Northern Pinellas, and Sumter Counties

Kathleen M. Winters, Executive Director

We try to correctly spell all names. However, if we have not done so, please let us know and we will correctly spell it for our next issue. Also, if you do not want to have your name listed, please let us know when you make your contribution. We appreciate each and every one of you who have donated, contributed, or become members of our Organization. Where would we be without you? Thank you for believing in what we do, and for helping us fulfill our commitment to preserve the independence, quality of life and personal dignity of persons afflicted with Alzheimer’s disease and other related dementias, and their caregivers throughout the Central Florida area.

APPEALSDaniel AndrewsHarold BaerJim DriscollLucille GerberRichard GriffithRichard HarrisonSandy KnappMartha Hyatt TrusteeSusan MoscatelloEdward & Darlene PilarskiJohn & Elizabeth PowandaLeroy SelnerSue SimoneJerry SkovelLinda SudanoLuann SzucsMarvin Ummel

CORPORATE PLUS MEMBERSPublix Super Markets

Charities, Inc.

CORPORATE MEMBERSDow Senior Care-Care PatrolMission Oaks Senior Living,

LLCWaterman VillageZephryhaven Health & Rehab

DONATIONSAtria Park of Bayonet PointAuxillary Post 7845Brick Oven Pizzeria, IncCharity Fund of Timber Pines,

Inc.Community Foundation of

Tampa BayCornerstone Hospice &

Palliative CareEscape Brewing Co.Gary L. Blackwell Charitable

FoundationLinda HansonHigh Point Lions ClubMike Fasano, Pasco County

Tax CollectorAida Norton-PolancoRon PalodiniThe Wawa Foundation

FRIENDS - $100Marilyn R. CampbellWalter & Barbara CovilleNew Covenant Methodist

ChurchLinda SudanoFrani Van Cleve

MEMBERS - $50James & Nancy ApseyLaura ArnoldLinda BecknerOra Belil

Generous Donations & Memberships from August 6, 2016 to December 1, 2016

D O N A T I O N S , C O N T R I B U T I O N S & M E M B E R S H I P S

Alzheimer’s Family Organization - Companion 3

Paul & Barbara BerminghamAda CarabelloAngelina CastelloPhillip & Linda CastleberryGreg ChurchRosemarie CohenJames & Joanne CoolBarbara CopeBarbara CovilleSusanne DaudelinBarbara DavisRonnie DavolioPeter & Lois DayBetty DoranDaniel & Dolores DuganCynthia EglestonFrances FrostJoan FuertesLise GjelstenRay GoreRichard GriffithDonna HaendigesDonald & Shirley HalliseyRuth HeinerLorraine HicksTim Hill InsuranceJanice HillnerRochelle HolcombeJames & Penny HoppeJohn JamisonHans & Lyn JensenDolores Jones & Veronica

DavolioMary KoskoskyPavah KucharekRobert LarkinJames LauxTom & Linda LedgerCharles & Donna MackFrank & April MarquesPatty McCaryJorge MedinaKathleen MengleRonald & Mary Jane MergenKathryn ObertJeraldine ParkerRonald & Patricia PasquiniCarole PollardEileen ReyesDoris RosinRobert RunnelsSusan SaundersLarry SelnerDeborah SelsavageGerald & MaryAnn SibleySue SimoneNatalie & Ivan SotoRobert & Mary StubbsBarbara TautfestJoan ThaxtonBill ThompsonThomas Trizna

MemorialsMemorialsAngie Arcari Laura GrigullCecile R. Ayers Richard Ayers & Family Joyce RabideauBeverly Basker Goldstein FamilySally Cook William & JoAnn Backus Marie Elaine Hart Richard & Sylvia KaneRobert Davolio Green Meadow VillageJeanne Greene Suzanne Ackerman Robert & Donna Anderson Florien & Emi Barati Murray & Maggie Bishop Nancy Burns Campbell Family Abbu DiLeonardo Eric & Debbie Greene Carolyn Jensen Barbara Jewell Charlotte Matthews Murphy Family J. Newsom Chris & Christine Perille Ronald & Sally Prime Angela Shea Theile Koalin Co. Olga Topping John & Katherine Whritner Doris WoodwardRichard Johnston Steven & Lila Attrino Jerry & Dolly Curll Robert & Nancy Johnston Terry Johnston Martek Limited

Robert Mancini Leo & Rose LaRochelleMiriam McKinley Jake & Heather LockwoodEladio Menorca Alan & Kim Bennett Bill & Terri Bristol Sean & Amy Burke Steve & Marilyn Cenko Eileen Jango James MiniciQuedell Mills Delores SmithElizabeth Montanez Colin McClayVern Ottman Donald DatiElizabeth Paterno The Gilmartin FamilyAnna Puccio Frank & Victoria Euvino Andre PosaBonnie Sandridge Marty & Mary DzuroDonald Swafford Donna Cain

Marvin UmmelJohn VoldPhyllis WalshIsabella Wightman Christine WightmanEllen Wolf-MuhleckAlbert WreshEd Youngblood

David Clever Arthur & Amy Finkelberg Miranel Swafford Sandra Ricciardi-Day Break

ClubDushan Toshich Ken & Delores McDowellBonnie Ummel Marvin UmmelRobert Wiebalk Thomas Healy Hillsborough Volunteer Fire

Co. #3 Anthony & Judith Kaczor Edward & Cheryl Kovach Harry & Linda Krier Peter Krier Scott Krier Carl & Kathy Leibner Thano & Chrys Matthews Annette Parks & Roslyn

Schleifer Catherine Sigmund Bonny Wiebalk

Golf TournamentIn Memory/ HonorGolf TournamentIn Memory/ Honor

Holiday Medical Associates IMO all Loved Ones

affected by Alzheimer’sEdward & Corrine Kinzer IMO

Craig KinzerBarbara Kleinkopf IMO Steven S. Kleinkopf

Kathleen Mengle IHO Alberta MinnixCarol Pomeroy IHO Nina FedalgoIrving Rubinfield IMO Carolyn RubinfieldPatrick & Kathleen Winters IMO Suzanne Ricci

Timothy Hill fromHigh Point Lions Club presented a check for

$1,000 to Kathleen Winter, AFO Executive Director

Benton House650 16401 Good Hearth Blvd, Clermont, FL 347111st Thursday of the month at 6:30 PMLeader: Pam Schmitz 352-396-6927Bridgewater @ Waterman Village(Free Respite Care During Meeting)500 Waterman Ave., Mt. Dora, FL 32757 3rd Wednesday of the month at 1:30 PMCo-leaders: Chaplain Alan Jones 352-385-1133 Debbie Garay 352-383-0051 x 313Brookdale Clermont650 E. Minnehaha Ave, Clermont, FL 347111st Wednesday of the month at 4:00 PMLeader: Pam Schmitz 352-396-6927Chapel of Christian Faith1401 Paradise Drive, Lady Lake, FL 321593rd Thursday of the month at 10:00 AMLeader: Martha Hyatt 352-748-7633Cooper Memorial LibraryRoom 221 (upstairs)2525 Oakley Seaver Dr., Clermont, FL 347113rd Thursday of the month at 2:00 PMLeader: Deborah Snow 352-406-8465Crane’s View Lodge ALF & Memory1601 Hooks St., Clermont, FL 347112nd & 4th Tuesday of the month at 1:30 PMLeader: Toni Heminger 352-874-1153Elan Senior Living at Spanish Springs930 Alverez Avenue, The Villages, FL 321592nd Wednesday of the month at 2:00 PMLeader: Cathy Jackshaw 352-300-1089Lake Port SquareEast Building Wellness Clinic600 Lake Port Blvd., Leesburg, FL 347482nd Tuesday of the month at 1:30 PMCo-leaders: Allison Church 352-728-8529 Philip Conilio

For Caregivers Dealing with NewlyDiagnosed PatientsAtria Senior Living930 County Rd. 466, Lady Lake, FL 321591st Wednesday of the month at 10:00 AMLeader: Carol McCarthy 352-454-8303

Early Stage Group (for early stage patients)North Lake Presbyterian ChurchFellowship Center Room 2975 Rolling Acres Rd., Lady Lake, FL 321591st and 3rd Thursday of the month at 1:00 PMLeader: Louise Shuey 352-753-8262

North Lake Presbyterian Church975 Rolling Acres Rd., Lady Lake, FL 321591st Wednesday of the month at 1:00 PMLeader: Louise Shuey 352-753-82623rd Wednesday of the month at 1:00 PMCo-leaders: Louise Shuey 352-753-8262 Don Dati 352-259-5363Regency Park Assisted Living andMemory Care(Free Respite Care During Meeting)15000 U.S. Hwy. 441, Eustis, FL 327262nd & 4th Wednesday of the month at 2:00 PMLeader: Rick Wiggins 352-801-6764

CITRUSCornerstone Baptist Church1100 W. Highland Blvd., Inverness, FL3rd Wednesday of the month at 1:30 PMLeader: Debbie Selsavage 352-422-3663Crystal Gem Manor ALFYou Must RSVP10845 W. Gem St., Crystal River, FL 34428Last Tuesday of the month at 1:30 PMJune at 10:30 AMLeader: Debbie Selsavage 352-422-3663Crystal River Library8619 Crystal St., Crystal River, FL 344282nd Tuesday of the month at 1:30 PMJune at 10:30 AMJuly 2nd Wednesday at 1:30 PMLeader: Debbie Selsavage 352-422-3663Highland PlaceYou Must RSVP700 Medical Ct. E., Inverness, FL 344524th Thursday of the month at 2:00 PMLeader: Debbie Selsavage 352-422-3663

HERNANDOBayfront Health BrooksvilleMedical Arts Bldg. – Ste. 12017222 Hospital Blvd., Brooksville, FL 34601Every Monday of the month at 1:00 PMCo-leaders: John Winans 352-232-0081 Donna Alford 813-469-5024Hernando County Mining AssociationEnrichment Center800 John Gary Grubbs Blvd., Brooksville, FL 346013rd Tuesday of the month at 1:00 PMLeader: John Winans 352-232-0081The Residence at Timber Pines3140 Forest Road, Spring Hill, FL 346063rd Monday of the month at 2:00 PMLeader: Glen Scharfeld 352-835-7191Spring Hill HospitalMedical Arts Bldg. – Ste. 10510441 Quality Drive, Spring Hill, FL 346092nd Wednesday of the month at 1:00 PMLeader: John Winans 352-232-0081Sterling House of Spring Hill Assisted Living10440 Palmgren Lane, Spring Hill, FL 346081st Wednesday of the month at 2:30 PMLeader: John Winans 352-232-0081Timber Pines Country Club – Oak Room(Gated Community – must register with Sue to attend)6872 Timber Pines Blvd., Spring Hill, FL 346062nd Thursday of the month at 10:00 AMLeader: Sue Simone 203-725-6888

HILLSBOROUGHHorizon Bay of Lutz414 East Chapman Road, Lutz, FL 335494th Wednesday of the month from 10AM to 11AMCo-leaders: Theresa Jackson 813-246-4120

LAKEAvante at Leesburg Nursing & Rehab Center(Free Respite Care During Meeting – RSVP to Dori)2000 Edgewood Ave., Leesburg, FL 347483rd Thursday of the month at 1:00 PMLeader: Doreen Watson-Beard 352-217-6476

Southpointe Baptist Fellowship25900 US Hwy. 27, Leesburg, FL 347481st Monday of the month at 2:00 PMCo-leaders: Pamela Schmitz 352-396-6927United Congregational Church302 N. St. Claire Abrams Ave., Tavares, FL 327782nd Wednesday of the month at noonCo-leaders: Cheryl Fletcher 352-409-5360 Lori Wintersdorf 352-267-4205

CENTRAL PASCOFlorida Hospital Wesley ChapelWellness Center - 2600 Bruce B. Downs Blvd.Wesley Chapel, FL 335441st Tuesday of the month at 10:00 AMCo-leaders: Michele Bonneville 813-991-7524 Lynelle Bonneville Cathy Bickham 813-618-0578

EAST PASCOHeritage Park37135 Coleman Avenue, Dade City, FL 335254th Tuesday of the month at 4:00 PMCo-leaders: Nila Premer 352-567-8615 Mary Beth LumbraZephyr Haven Health & Rehab Center38250 Avenue A, Zephyrhills, FL 335424th Monday of the month at 3:00 PMLeader: Chap. George Carpenter 813-782-5508

WEST PASCOThe Cottages5905 Pine Hill Road, Port Richey, FL 346681st Wednesday of the month at 1:00 PMLeader: Vicky Hudgins 727-364-3214First Baptist Church New Port Richey6800 Trouble Creek Road, New Port Richey, FL 346532nd Thursday of the month at 1:00 PMLeader: Lois Peterman 727-849-4210Grand Villa6120 Congress St., New Port Richey, FL 346531st Wednesday of the month at 6:00 PMLeader: Carole Pollard 727-937-6943Oakview Terrace7220 Baillie Dr., New Port Richey, FL 34653Last Tuesday of the month at 11:00 AMLeader: Dina Giannet 727-842-9899Regional Medical Center Bayonet Point14000 Fivay Rd., Hudson, FL 346671st Tuesday of the month at 10:00 AMLeader: Laura Arnold 727-863-0176 727-808-2053Villas at Sunset Bay7423 Kauai Loop, New Port Richey, FL 346531st Wednesday of the month at 1:00 PMand Last Wednesday at 6:00 PMCo-leaders: Laurie Piarce 727-359-0637

People touched by Alzheimer’s diseaseand other related disorders come together in a non-judgmental,

safe environment to vent their frustrations, share copingtechniques, learn more about the disease and discover

what resources are available to them.

Support Groups Continuedon bottom of page 58

AFO SUPPORT GROUPS


1. Respite Care Financial Assistance Program

The Respite Care Financial Assistance Program provides assistance to Organiza-tion members and their loved ones. The caregiver arranges their own respite care services using either in-home services provided through a home health agency, a neighbor or friend, or institutionally-based short term respite, such as adult day care, ALF, nursing home care. Call the office for eligibility requirements.

2. Wanderer’s Identification Program

This program helps identify, with a pen-dant or bracelet, a wandering person who suffers from memory loss and quickly returns them to their home or facility. Available for purchase.

3. Scent Kit Program This Human Scent Preservation Kit is

offered per request, as a one-time op-portunity to members of the AFO and available for purchase to non-members ($12 + shipping) who have loved ones with memory impairment. This kit allows for locating loved ones (or even children) that have wandered away from home using trained bloodhounds. The kit can stay preserved in a double insulated jar for up to 5 years. Please contact our office for more information.

4. Support Groups Our support groups are for family mem-

bers, caregivers and others interested in learning more about Alzheimer’s disease and how to cope. The meetings are free and everyone is welcome. For program information and to verify meeting date and time, please use phone contacts listed under the group name. List on page 4.

5. Resource Line The Resource Line provides a telephone

service to persons wanting information about caring for a loved one with Al-zheimer’s disease or related dementias. Please see page 2 for a listing of your county representatives.

6. Interactive Website Our website is a one-stop resource—easy

to use and full of helpful hints such as up-to-date community information, links and interactive video.

7. Caregiver Days/Seminars Training provided for family caregivers

and professional care providers to those suffering from Alzheimer’s disease and related dementias.

8. Trainings ALF, Hospice and Home Health Agency

Dementia Specific Trainings are available to professionals. Training is approved by the Dept. of Elder Affairs.

9. Speakers Bureau Alzheimer’s Family Organization mem-

bers are available to speak to community groups.

10. Social Research Encouraging and supporting research

into causes, improved diagnosis, therapy, cures for and prevention of Alzheimer’s disease and related disorders.

11. Emergency Placement Planning Directives

This service for our members will help ease caregivers’ minds. Emergency Place-ment Directives allows the caregiver the opportunity to ensure that, in the event of an emergency to the caregiver, the dementia patient will be cared for.

12. Pardon My Companion Card This allows the caregiver the opportunity

to offer a card containing information about Alzheimer’s disease and an expla-nation concerning any unusual behavior by the Alzheimer’s disease patient while in public.

13. Do Not Resuscitate Order (DNRO Forms)

A form used to identify people who do not wish to be resuscitated in the event of respiratory of cardiac arrest. It is a physician’s order, signed and dated. In order to be legally valid, this form MUST be printed on YELLOW legal paper prior to being completed. EMS and medical personnel are only required to honor the form if it is printed on YELLOW legal paper.

14. Alzheimer’s Related Books Available for viewing at the Organization

office. The book “36 Hour Day” is also available for $10.00 plus shipping.

15. Resource Lists Essential listings and contact informa-

tion for Alzheimer’s related facilities, programs, and services.

16. Memory Screenings A simple and safe evaluation tool

that checks memory. It can indicate whether an additional checkup by a qualified healthcare professional is needed.

17. Facebook Go to www.facebook.com/AFO.FL

18. Twitter @AlzFamilyOrg

For more information please call352-616-0170.

Support Groups continued from page 4

A F O S E R V I C E S


SUMTERBrookdale Place at Freedom PointeRSVP to 352-674-39501700 El Camino Real, The Villages, FL 321592nd Wednesday of the month at 1:00 PMLeader: Zullie Oliveras 352-674-3950

Buffalo Crossings ALF3890 Woodridge Drive, The Villages, FL 321623rd Tuesday of the month at 10:00 AMLeader: Sharon Schactman 352-350-1538

Homewood of Freedom Pointe1475 El Camino Real, Lady Lake, FL 321594th Tuesday of the month at 11:00 AMRSVP to 352-750-3800Co-leaders: Zullie Oliveras 352-750-3800 Rhonda Rea 352-396-9156

Mission Oaks10780 N US Hwy 301, Oxford, FL 344842nd Monday of the month at 2:00 PMLeader: Cheryl Fletcher 352-409-5360

New Covenant United Methodist Church(Free Respite Care During Meeting)3470 Woodridge Drive, The Villages, FL 32162Every Thursday of the month at 10:00 AMCo-leaders: Louise Shuey 352-753-8262 Rochelle Holcombe 352-259-1243 Diane Golab 352-751-1219 Leslie Switzer 352-274-3673 Ken Stewart 352-350-2960

For Caregivers Who Have PlacedTheir Loved OnesNew Covenant United Methodist ChurchRoom 1 (Free Respite Care During Meeting)3470 Woodridge Drive, The Villages, FL 32162First Thursday of the month at 10:00 AMLeader: Jackie Kuhn Duham 352-259-1243

Sumter Place in the Villages(Free Respite Care During Meeting)1550 Killingsworth Way, The Villages, FL 321623rd Wednesday of the month at 1:30 PMLeader: Dawn Gregory 352-674-3501

For more information please call 352-616-0170Would you like to advertise in this Newsletter?


AFO EDUCATION 2017

Support Group Orientation / In-ServiceFor New/Present Support Group Leaders • Present Leaders Only Need to Attend 11:30 am to 12:30 pm

Free to the Public • 9:30 am to 12:30 pm • Refreshments Will Be ServedCALL OFFICE FOR LOCATION AND DATES

Caregiver LearningMembers $10 • Non Members $15 • 10:00 am to 2:00 pm

Includes Continental Breakfast and LunchØ Senior Helpers Mobile Virtual Dementia Tour will be available at some events.

East Pasco - January 27 Bayfront Health Dade City, 13100 Fort King Hwy., Dade City, FL 33525Sumter - March 3 New Covenant United Methodist Church, 3470 Woodridge Dr., The Villages, FL 32162South Lake - April 21 First United Methodist Church Wesley Center, 950 7th Street, Clermont, FL 34711Pinellas - May 19 TBDWest Pasco - June 16 TBDCitrus - July 28 TBDHernando - August 25 TBDN. Hillsborough - Sept. 15 TBDEast Lake - October 13 TBD

Dementia and Alzheimer’s Training

State Required Dementia-Specific TrainingAlzheimer’s Family Organization’s (AFO) Dementia-Specific curriculum has been approved by the Florida Policy

Exchange Center On Aging (FPECA) for the Florida Department of Elder Affairs for purposes of meeting the training requirement of S.400.452, F.S. and Rule 58A-5.0191, F.A.C.

Our trainers…• Are committed to serving caregivers and patients.• Relate to the needs of your staff.• Their knowledge is based on the latest research and data.• Are part of a community based local organization – a resource that continues after the training is completed.

The Alzheimer’s Family Organization does not endorse the services of any informational speakers.Presentations are for educational purposes only.

SPONSORSHIPS ARE AVAILABLEYOU MUST REGISTER FOR ALL EDUCATIONAL EVENTS

Call 352-616-0170 | Go to www.alzheimersfamily.org

LAKE COUNTY• Waterman Village• Bay Parmacy Long Term Care• Cornerstone Hospice & Palliative Care• Lake Medical ImagingSOUTH LAKE COUNTY• First United Methodist Church Wesley Center• Compass Research• Cornerstone Hospice & Palliative Care

Thank You For Your Support • Educational Events• Encompass Home Health• Lake County Adult Activity Center• Senior Helpers• Superior Residences of ClermontWEST PASCO COUNTY• Regional Medical Center Bayonet Point –

Hudson• Grand Villa Assisted Living, New Port Richey • Meridien Research

HERNANDO COUNTY• The Residence at Timber Pines• Seniors Helping SeniorsCITRUS COUNTY• Citrus Memorial Hospital• Meridien Research• Avante• Mederi CAREtenders

SUMTER COUNTY• New Covenant United Methodist Church • Compass Research• Concierge Home Care• Cornerstone Hospice & Palliative Care• Lexington Park • Senior Helpers• United Healthcare


DEBBIE’S CO R NER Debbie Selsavage,President and CEO,Coping with Dementia, LLC

What to Do if Abuse is ReportedThis month we had a question from an assisted liv-

ing facility: “We have a family member who complains about

another man who has a loved one here. He claims the man treats her roughly, and he wants us to ban him from visiting. What should we do?”

Banning a family member for any reason is a radical solution, especially if it is based on a complaint from a person who might not have experience or professional training in elder and memory care. What you are hear-ing is his opinion, and you need to check it out.

First, one of your experienced staff, Director of Nurs-ing, or Administrator should observe what is going on. If you think the man is indeed rough with his loved one, most likely it is out of ignorance and not malicious intent. Get with him and discuss the techniques of a Positive Approach to Care. Likely, the situation will improve.

If you believe the man is truly a threat to the safety of his loved one and does not want to improve his be-havior, then you can take action. Keep in mind that if you ban him, he may remove his loved one from your facility, in which case you have not solved a problem; you have only relocated it. Whatever happens, keep notes and chart it in detail.

As for the man who has made the complaint, get back to him and explain how you have handled it. If you have confirmed there is not real problem, this man needs to mind his own business, although you must covey that advice as tactfully as possible.

Finally, you may need to get the two family members together under the Administrator’s supervision and let them talk it out. You understand that emotions are often raw in family members and caretakers living with this difficult disease. Maybe they will find they have more in common than they realize. Try to help them understand that we need to have compassion for one another as caregivers—not just for the loved one living with dementia.

Does Memory Loss Always Mean Alzheimer’s or Dementia?

I do many speaking engagements and have been asked many questions, but there is always a more common question that keeps coming up:

I am becoming more forgetful, does this mean I have Alzheimer’s or dementia?

Although memory loss is the most common and the most noticeable sign, it does not mean you have dementia or Alzheimer’s disease. Memory problems can be attributed to many issues: care-giving stress, medica-tions, dehydration, being sleep deprived, vitamin and nutrition deficiencies, thyroid and various infections.

When you are unsure of health issues, it is always advisable to consult your physician. Ask for some blood work to be done to address the issues listed. If this blood work comes back with no issues, you may want to request an MRI to rule out any other issues that may be causing the symptoms you are experiencing.

When trying to get a diagnosis of Alzheimer’s or dementia we have to rule out what it is not, and then we can come to a likely determination that it could be a memory issue such as Mild Cognitive Impairment (MCI), Dementia or the disease of Alzheimer’s.

We do have declining memory as we get older, but through these tests, you can see if that the decline you may be experiencing could be more than what is normal for your age.

There is another option to this question, which is to get a free memory screening performed by a research company such as Meridien Research or Compass Re-search. They will spend a good amount of time with you going through several memory tests and screening techniques to provide you with information of what is happening based on the testing. This is information that you can bring to your physician and go from there.

Please take care of yourself, and do not wait to find out what may be happening.


A FO INFOR MATIO N

Deborah Snow has been an AFO volunteer serving as a Caregiver Support Group Leader in Clermont since 2009. Her passion has always been to be an advocate and resource to the senior population in her community and beyond, so the role of support group leader was a perfect fit. Deborah also started a Parkinson’s Disease Support Group for the diagnosed patient and their families in 2009, which she facilitates in Clermont.

Deborah has served on the planning committee for South Lake County Caregiver Day with AFO for the past four years and assists in coordinating the event with in-formative speakers, sponsors, and promoting attendance of caregivers. She was also recently appointed to serve on the Patient and Family Advocacy Committee at Orlando Health’s South Lake Hospital in Clermont. This committee develops ideas and suggestions to help improve hospital stays for the patient, family and caregiver.

Deborah is one of the original founders of H.I.N.T. and serves as its Committee Chair. HINT is a Healthcare Pro-fessionals Networking group which has a monthly lunch meeting in Clermont for Lake, Sumter, Marion and Orange County healthcare professionals.

Deborah has lived in Clermont for 33 years and is a gradu-ate of Florida Southern College with a Bachelor of Science in Business Administration and Management. She also earned her Certified Senior Advisor designation in 2009. She has a diverse background in the healthcare industry in skilled home health and long term care facilities and is now work-ing in the research industry as a Community Liaison/Trained Memory Assessor for Compass Research. Compass has Clinic Sites in Orlando, The Villages and Melbourne, where they conduct neuro clinical trial studies for memory loss/ Alzheimer’s Disease; Mild Cognitive Impairment, Alzheimer’s Disease Prevention; and Parkinson’s Disease. Compass also partners with AFO on many community events.

Deborah describes her role as a Caregiver Support Group leader as fulfilling and meaningful. Through this role, she is able to make a difference in a caregiver’s journey by pro-viding them with the resources they need to make better informed decisions.

VOLUNTEER SPOTLIGHT

By Pam SchmidtzBy Sue Simone, Editor

Meet The Board –A Series:

Kathleen Mengle has been an AFO volunteer since 2011 and is now serving on the Board. She is also a member of our Fund Development/Special Events Committee and chaired the Tampa Bay Golf Tournament this past November.

Kathleen hails from South New Jersey – a REAL Jersey girl! She moved to Florida 16 years ago and fell in love our weather, our lifestyles and saw the opportunity to start her own senior care business – Elder Assistance. Kathleen has a degree in Heath Care Administration and is now back in school to enhance her credentials.

32 years ago, a strong calling led Kathleen to join the Future Nurses of America through which she became a Hospice volunteer. To satisfy this desire to help others while putting herself through college, Kathleen was hired by a Health Care Agency as a hands-on caregiver. When she left 7 years later to move to Florida, she was managing their 3 New Jersey offices. After two years as office manager of a Florida home care agency, Kathleen made the courageous decision to start her own agency. Elder Assistance is a licensed home health care agency operating in the New Port Richey area: http://www.elderassistance.us/home.html

“My mother told me that if you enjoy what you do, you will never work a day of your life. I know that is true; I feel so lucky to be able to serve others and give back,” Kathleen says. “I was adopted at the age of four, and just a few months later my father passed away. My mother (who was my maternal grandmother) raised me on her own. She instilled in me the power of hard work and the love of caring. Because of these lessons, I feel like I have never worked a day in my life.”

Like many of us, Kathleen wants to help other people dealing with Alzheimer’s disease because she is caring for her 96-year-old mom who has Alzheimer’s.

She has a beautiful 26-year-old daughter, a 20-year-old niece that is like her own, her amazing mom, AND the loving support of a man…and now their family includes his three wonderful children as well. She also serves on the Board of the Pasco Aging Network and enjoys scrapbooking and walking, which helps to clear her mind.

Kathleen, we are so blessed to have you, and thank you for all you do for AFO.

KathleenMengle

Deborah Snow


461 Mariner BoulevardSpring Hill, FL 34609

Telephone: 352-616-0170Toll-free: 888-496-8004

Fax: 352-616-0174Cell: 727-207-7377

www.alzheimersfamily.orgwww.facebook.com/AFO.FLwww.twitter@AlzFamilyOrg

[email protected]

A FO INFOR MATIO N

John Brinker: AFO’s New Community EducatorJohn Brinker was born and raised in Oak Ridge,

Tennessee (aka “The Secret City”), home of the “The Manhattan” project. He served in the US Air Force as a Security Team Leader in the 321st Strategic Air Com-mand squadron guarding ICBM Missiles at Grand Forks Air Force Base in North Dakota from 1973 to 1978. After his discharge from the Air Force, moved to Columbus, Ohio, where he received an Associates Degree in Busi-ness Management from Columbus State Community College. After graduation, John was offered a Logistics Management position at Dickey Scales Inc. here in the Tampa Bay area in 1990, so he made the move to Sunny Florida. As a child, he and his family had spent many summers vacationing in Panama City and St. Petersburg, so he was really ready for a change in climate.

After 23 years working with various IT computer service/radiology service organizations within the Tampa Bay area, John landed a part-time position with the Alzheimer’s Family Organization through a temp

agency in January of 2013 and was hired on as an employee in June of the same year. His mother and his Fiancés father, who have both passed, both had dementia, so when he ac-cepted the position at AFO, he felt that for the first time in his life, he was doing some-thing worthwhile by helping caregivers who struggle on a daily basis managing the care of their loved ones.

Since coming on board, he has been promoted to Community Educator for the North Hillsborough, North Pinellas and Pasco County community. Since AFO’s move to the new office in Spring Hill, He feels that with the devoted, hardworking staff members, Board of Directors and Executive Director, AFO will be able to accomplish its mission and meet the ongoing needs of the caregivers we serve in the surrounding areas. John says, “I am honored to be a part of the AFO team!”

No matter how long you’ve known AFO, there are probably some things you don’t know about us…• “Family is our Middle Name” and the Alzheimer’s

Family Organization (AFO) has, through your gener-ous support, been helping people understand and deal with the challenges of Alzheimer’s and other Dementias since 1995.

• We are the only non-profit Alzheimer’s organization that uses all of your donations to support you, your families and your neighbors, right here in our own local communities.

• Our 47 Support Groups are led by locally based vol-unteers, who we train and who all have their own dementia journey to share.

• Our educational programs teach caregivers how to be more effective in dealing with difficult behaviors and communication problems, keep people up to date with the latest research findings and help oth-ers navigate the legal complexities of living with dementia in a household.

• We want caregivers to know, “You are not alone”, you are not doing anything incorrectly, and we have resources that may help you.

• We are sincerely grateful to our members, volunteers and staff, none of whom we can do without.

• Our organization only works because of the donations from our Volunteers, whether it be in time, energy or

money. • We have volunteers serving on committees such as: - Marketing/Newsletter - Education - Finance - Fund Development/Special Events• We have volunteers who help us in the office. They

may fold, staple, file, or other.• We have volunteers who work on specific fundraising

events, including our: - Villages Walk - Bike Tour - Fashion Show - Pasco Challenge - Golf Tournament• We have volunteers who sell raffle tickets, man the

registration tables, provide direction, get baskets to be auctioned, seek sponsorships for our events, and much, much more.

• You don’t need any special experience to volunteer with us, and if you do have special talents you are willing to share, then we want you, too.

• We want to help you. If you have questions about Alzheimer’s and other Dementias, please write to me. If you would like to share your successes and/or chal-lenges as a caregiver, we would love to get to know you. Write to: [email protected]

You can know more about us here:www.alzheimersfamily.org, facebook.com/AFO or come visit us at 461 Mariner Blvd., Spring Hill, FL 34609

From Your Editor: DID YOU KNOW?


Community Educator’s Report:Lake, Sumter and South Marion Counties

By Pam SchmidtzThe past several months in Lake, Sumter and South

Marion Counties have been a whirl of activities. We have participated in several health fairs, community events and presentations.

In September, we worked with the Sumter County Sheriff’s Department, introducing the “SCENT JARS”. A morning and afternoon program, open to the general public, was held at Mission Oaks in Oxford. I would like to thank Cheryl Courtright and Shelly Caulkins for their hospitality. Mission Oaks provided a venue for the program and refreshments. The SCENT JARS are free to Sumter County residents who are caring for a loved one with dementia. You can contact the Sumter County Sheriff’s Department (352-569-1600) for additional information.

October had us participating in an educational event in Mount Dora. We held our Caregiver Day at Water-man Village. We would like to thank Chaplain Alan Jones and Debbie Garay for all their work as well as Waterman Village for hosting the event and providing a delicious luncheon. It was a full day of learning for the participants. They learned about the most current research being conducted from Marieke Cajal, PhD with Compass Research. Debbie Selsavage, with Cop-ing With Dementia, offered tips on communication and challenging behaviors. Debbie offered verbal and visual demonstrations on how to cope with negative behaviors. Deputy Walter Wolf from the Lake County Sheriff’s Department addressed the many senior pro-grams available. He focused on Safety Net, the Vial of Life and other programs that are free to Lake County

residents. We also would like to thank the sponsors of this event. Without their support, we would not be able to do educational events for the caregivers. A big THANK YOU to Waterman Village, Bay Pharmacy, Cornerstone Hospice & Palliative Care and Lake Medical Imaging.

November, which is Alzheimer’s Awareness Month, had us presenting the Annual Candle Light Vigil at Homewood of Freedom Point in The Villages. I would like to thank Jolynn Carl, Director of Homewood As-sisted Living, for extending their hospitality and al-lowing us to have this service on their beautiful patio. They also provided refreshments for the attendees. I also have to thank the “committee” – Courtney Schmidt, Carol McCarthy, Don Dati and Jackie Preston—for doing the Roll Call and Pastor Keith Koppenhofer with Hope Lutheran Church for offering an invocation. Beautiful background music was provided by saxophonist Jay Guess. It was a beautiful evening with the sun setting as we lit the candles and acknowledged those currently dealing with Alzheimer’s and those who have passed. There weren’t too many dry eyes in the house when a poem, “Mother Where Are You”, was read. This poem was written by Pavah Kucharek, who attends a support group in Clermont. Pavah gave us her permission to read the poem, which is very moving.

I’m exhausted just reading all the things we have been doing to bring awareness to the community and education to the caregivers…but we aren’t done yet. Remember that our 5th Annual Walk, scheduled for Feb-ruary 25, 2017 at The Villages Polo Field. See you there.

HAPPY NEW YEAR!

A FO INFOR MATIO N

HealthcareSolutions

LifeHealth

AnnuitiesInsurance Group, LLCH

Phone: 352-650-2608 [email protected]

Timothy Hill, CLTCLicensed Agent


February 25, 2017 Alzheimer’s Family Support Walk The Villages Polo Field 703 N. Buena Vista Blvd, The Villages

U P C O M I N G E V E N T S S A V E T H E D AT EMarch 11, 2017 Pasco Challenge Jay B Starkey Wilderness Park 10500 Wilderness Park Blvd, New Port Richey

For more information: www.alzheimersfamily.org

Knitters For Charity Now Supports AFOKnitters For Charity was formed out of a small group

of women meeting at the Hudson Library on Friday mornings to knit for the military overseas. In November of 2010, when they learned that the troops were no longer allowed to wear items made by civilians as part of their uniforms, they decided to stay together and make things for charity instead. There were eight in the begin-ning, seven of which are still active today, but now the roster of active members numbers over 100, including women from several countries, many parts of the United States and from all walks of life. During the six years since the group’s inception, they have never missed a Friday, even if the library was closed. In November of this year, they had already donated over 26,000 items!

A few of the charities supported by this amazing group include cancer centers, hospice, assisted liv-ing & memory care facilities, pregnancy care centers, domestic abuse shelters, animal shelters, neonatal units at several hospitals, Eckerd Raising Hope, Fox Hollow Elementary School, the Seafarer’s Center, A Woman’s Place, Head Start, Pasco Sheriff ’s Department and now the Alzheimer’s Fam-ily Organization.

Items made by the group include afghans, shawls, hats, gloves, scarves, washcloths, toys, layette items (booties, blankets, sweaters, etc.), chemo hats, slippers, memory mats, and “twiddle muffs”. When KFC first started out, it was mainly for the purpose of knitting and crocheting things, but in the past six years they have had donations of fabric as well, so now there are women sewing hospital gowns, bibs (adult and child), summer chemo hats, dolls and toys, walker and wheel chair bags, and more. These

women are always bringing ideas to the group for new items to make and new charities to help.

Knitters For Charity meets on Fridays at the Hudson Library when the doors open at 11:00 a.m. They work until 1:00 p.m. These women have become true friends and enjoy the company of each other and those who want to share the love of crafting and giving. It is a chatty, friendly, interesting group of women who truly enjoy what they are doing. Visitors or new members are welcome. Donations of yarn or fabric are always appreciated.

For more information, please contact Jerrie Hoge at (727)863-7309 or via e-mail at [email protected] , or contact the Hudson Library of Pasco County.

A FO INFOR MATIO N


U P C O M I N G E V E N T S

alzfamily.org/afowalk facebook.com/afo.fl twitter@AlzFamilyOrg 352-616-0170

SPONSORSHIP OPPORTUNITIES Co-Name Sponsor: $10,000 • Diamond: $5,000

Platinum: $2,500 • Gold: $1,000 Silver: $500 • Bronze: $250

Co-Name Sponsor PARADY LIFE & ANNUITY

Gold Sponsors Lily USA

Neurology Center of Excellence United Health Care

Silver Sponsor New Covenant United Methodist Church

Bronze Sponsor MVP Athletic Club

Saturday, February 25, 2017 The Villages Polo Field 703 N Buena Vista Blvd,

The Villages 9 AM Start Time

And

Presents

5th Annual Alzheimer’s Family Support Walk 1/4 Mile Walk • 1.5 Mile Walk

• Golf Cart Rally • Activities & Entertainment

Thank You for your Support!

We Walk Because We Care

WALK DETAILS 9 AM – 3 PM Pre-registration & Goody bag

pick at New Covenant United Methodist 8 AM day of registration Free goody bag t-shirt (While supplies last.

Shirt size guaranteed if registered by 1/23/2017)

Trophies for 1st, 2nd, 3rd place teams with the most walkers

Trophies for 1st, 2nd, 3rd place for the best decorated golf cart

Visit alzfamily.org/afowalk for a mail-in entry form

Online registration: alzfamily.org/afowalkers or by phone 352-616-0170

Participants MUST SIGN entry form

Online registration: alzfamily.org/afowalkers

Or to pay by credit card Call 352-616-0170

Please make checks payable & mail to: Alzheimer’s Family Organization, Inc.

461 Mariner Blvd. Spring Hill, FL 34609

REGISTRATION INFORMATION Junior (6-12 yrs.) $10 ( under 6, free admission) Adults $20 Golf Cart Rally $20 In memory of $20: In Honor of $20: _________________________

*In Memory/Honor of name paque deadline is Feb. 3, 2017

Volunteer & Walk $15 Team $15/person (min. of 10 walkers)

Volunteer or Sponsor Now











And

Presents































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Presents































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Presents































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And

Present



Thank You for Your Support!


WALK DETAILS • 2/24/17 - 9 AM – 3 PM Pre-registration &

Goody Bag pick up at New Covenant United Methodist Church

• 8 AM day of registration • Free goody bag & t-shirt (While supplies last.

Shirt size guaranteed if registered by 1/23/2017) • Trophies for 1st, 2nd, 3rd place teams with the

most walkers • Trophies for 1st, 2nd, 3rd place for the best

decorated golf cart • Visit alzfamily.org/afowalk for a mail-in entry

form • Online registration: alzfamily.org/afowalkers

or by phone 352-616-0170 • Participants MUST SIGN entry form





REGISTRATION INFORMATION Junior (6-12 yrs.) $10 ( under 6, free admission) Adults $20 Golf Cart Rally $20 In memory of $25 - $1,000 In Honor of $25-$1,000 *In Memory/Honor of name plaque deadline is Feb. 3, 2017 Volunteer & Walk $15 Team $15/person (min. of 10 walkers)












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A F O E V E N T S

16th Annual AFO Tampa Bay Charity Golf TournamentThe 16th Annual Alzheimer’s Family Organization

Tampa Bay Charity Golf Tournament was held on Sat-urday, November 5th at Seven Springs Golf & Country Club in New Port Richey. Our platinum co-name spon-sor this year was, once again, Full Circle Financial, LLC. We are most grateful to owners Irene Thompson and Robert Tiller of Full Circle Financial for their dedication and continued commitment to AFO. Irene and Bob have supported our organization since the inception of this charity event, giving of their time and knowledge to ensure the event is always a success. There are no words that can truly express the gratitude that the Board of Directors, staff and myself have for your kindness and commitment. Thank you so very much!

The day was filled with good laughs, a great deal of wildlife, great food provided by Argento’s Italian Bistro and sincere comradery. Mark Haluska and his staff at Seven Springs provided the golfers with a smoothly run tournament as well as a beautiful course to play on. Thank you!

Sponsors:Silver Heather Hill Health Care, Linsey Eye Care, New Port

Richey Rotary Club, Solaris Health Care Bayonet Point, Tampa Bay Times, Integrated Medical Center of Florida, LLC, Construction Pro’s LLC, Gulf Harbors Provisions, Gulfside Hospice & Pasco Palliative Care, Space Age Signs

Bronze Medical Center of Trinity, Regional Medical Center

of Bayonet Point, Seniors Helping Seniors, Fast Track Computer Solutions, The Villas at Sunset Bay, New Image Dermatology, Element Financial, Acupet Vet-erinary Care, Mark L. Obman, DDS, PA, Grand Villa of New Port Richey, Daily Group Inc.

Copper Complete Property Services, Inc. William R. Demers & Co.Water Sponsor Judi Pobst of Keller Williams

A huge thank you to each of them as they support the work we do here at AFO! We know that without the sponsors for our events, we would not be able to provide the services that so greatly needed within our local communities.

Additionally, I wish to once again thank our commit-ted volunteers, who work tirelessly to support us year-round. Volunteers are the backbone of this organization, and be sure that we are very aware of this!

Volunteers:Tony Casella, Debbie Fitch-Casella, Carol Pomeroy,

Inna Wilmer, Pam, Mary Woody, Marian & Alan Richie, Brandy Weber, Linda Sudano, Adele Durone, Pat Winters, Greg Damianakas, Pam Charbaneau, terry & Kerry Miller, Linda Tiller, Jeanene MacLean, Mary Donovan, Woody Wood, Liz Fullerton, Steve Urani, Judy Hayes, Terry Katz, Risa Demers, Theresa Madonia, Kathleen Mengle, Sue Simone, Greg Perkins, John Jamison, Sharon Flynn, Michelle Lembo, Angelo Setta & Amber Tirey. A special thank you to The Life Care Center of New Port Richey for hosting our monthly meetings and their generosity.

Winners:

Team with Highest Score: Bob Tiller, Keith Balsley, Grandon Gill & Dana Parks

Longest Drive Men: Dustin Taylor

k 1st Place Team:

Mike Phillips, Dustin Taylor,

Chuck Lembo & Zack Levitt

l 2nd Place Team: Mike Paolicelli, Tim Piasecny, Tony Giordano & Jim King

k 3rd Place Team:

Rudy Diaz,Brian Jackson,

Jake Mitchell & Angelo Setta

l Longest Drive Ladies:Judi Pobst

k Closest to

the Pin:David Yablecki


I N T H E K N O W

A F O E V E N T S

Escape Brewing Fun DayAlzheimer’s Family Organization 2016 golf tourna-

ment committee organized a fun-filled day of games, prizes, pizza, and craft brew at Escape Brewing Company in Trinity on October 8th. The weather was beautiful and the comradery even better. Escape Brewing Company and Brick Oven Pizza, the hosts of the event, were gener-ous and kind to put on such a great day for AFO’s cause.

Inaugural Tour of BrooksvilleAlzheimer’s Family Organization held their Annual

Tour of Brooksville on October 22. Cyclists left from Tom Varn Park in Brooksville and riders completed 32 miles of 60-mile bike ride through scenic Hernando County. The weather was very cooperative and the participants could see a few deer along the way. At the end of the ride, participants could purchase food from Hot Box Pizza Truck & Pura Vida Organic Food Truck. We started out with a small group this year, but we hope as the event matures, the number of cyclists will increase. We would like to thank our sponsors: Signs by Connie (Adam Butler), Humana (Tanya Dingman), Crank Works (Patricia Laird), Ultimate Logo (Michael Reh) and Tampa Bay Times for their support of this event.

We would like to extend a sincere thank you to the Brooksville Police Department’s Sgt. Ed Serrano for his time and assistance the day of the event, as well as our dedicated volunteers who made this event come together: Deb Selsavage, Greg Perkins, Tanya Dingman, Kathy Marti, Carol Pomeroy, Debbie Fitch-Casella and Tony Casella.

Alzheimer’s Family Organization (AFO)Annual Meeting

January 24, 2017Hernando County • Call our office to register

Alzheimer’s Family Organization (AFO)Annual Meeting

January 24, 2017Hernando County • Call our office to register

As per Meriam Webster, the (several) relevant defi-nitions of crisis include: “a paroxysmal attack of pain, distress, or disordered function” and “an unstable or crucial time or state of affairs in which a decisive change is impending, especially one with the distinct possibility of a highly undesirable outcome.”

If you are caring for a loved-one with dementia or other catastrophic illness or disease, it’s likely not a mat-ter of if, but when you will experience a crisis situation. As such time, the ultimate resolution or outcome of the crisis will be dependent upon your level of planning and preparedness for it.

While some crises may be more common than oth-ers, the possibilities are infinite, depending on your life circumstances and other variables.

The best way to mitigate the impact of a crisis is to:• Establish a definitive, yet adaptive protocol to imple-

ment, depending on specific nature of crisis• Actively enlist the assistance of as many family mem-

bers/loved-ones as possible in an auxiliary caregiving capacity.

• Assign a willing, trustworthy family member as Power of Attorney/Health Care Surrogate in the event you

Crisis ManagementBy Steve Davis, M.S.

become physically or mentally incapacitated• Establish a healthy, appropriate exercise program and

diet for yourself and loved-one• Incorporate realistic, effective stress management

techniques into your daily routines• Create an extensive community-based support net-

work to include various agencies, friends, healthcare professionals, etc. Support groups can be among the most beneficial, providing invaluable knowledge, trial/error experience advice, comradery, and possibly even respite

• Above all, DO NO HARM. Ensure that the health/safety of yourself and loved-one is taken care of at all times

Teacher - “If I take a potato and divide it into two parts, then into four parts, and each of the four parts into two parts, what would I have?

Little Emily - “Potato salad!”

Laugh Lines

I N T H E K N O W


Some Of What I Have Learned So FarBy Alan Jones D. Min., Chaplain of Waterman Village

My adult years could be described as a time of learning and guiding for the loving care for others. I continue to learn. Follow-ing are just a few things I have learned which might normalize your experience and give you some hope.

I have learned that dementia takes one to the limit of human capacity to love. The frustration is overwhelming as persons begin to deal with their loss of memory and loved ones begin to deal with illogical behaviors and repetitions of questions and reminders. The journey begins with a vacuum of knowledge and fear of the unknown. A “new normal” does not exist because the “normal” continuously changes.

I have learned that dementia illnesses are terminal with a continual decline of cognition, behaviors and relational awareness. Physical pain seems to be minimal until the very last stages of life when the body and the brain can no longer sustain existence. The emotional pain is constant and manifests with peaks and valleys of energy. Depression is inevitable. Is it any wonder that dementia illnesses are a dreaded diagnosis and we all look for a miracle cure?

With the above bleak picture of reality, let me share with you that living with dementia is a revelation of love and the depth of the human spirit to endure. The first help is to realize that you are not alone. Open yourself up to friendships and alliances with your physician, medical personnel and pharmacist who care for you professionally. Communicate with your family, many will not believe and will deny the problem, but don’t give up on them. In form your friends and as you learn of declining abilities due to the dementia, keep your friends educated about what and how to relate to you and your loved one. And find yourself a Support Group where you feel safe to talk about your situation and feelings and give kindness and attentive ear to others who are in the same boat.

The second discovery you will make is that your creativity to come up with interventions will have no end. You will find some of the most novel and fun ways to cope and help your loved one. It is so important to reduce anxiety and stay as positive as you can. Fake phone calls, made up songs, locking the refrigerator door, disconnecting the car battery, and therapeutic

fibs are just a few of the tricks of the trade. It is like trying to out fox a fox. Make it fun for yourself and your loved one.

Give yourself a break. Superman is not a true story. There are times when you need distance and time away from your loved one to continue to have energy and resilience to provide care. Use family, friends, elder day care centers and other opportunities to give yourself some respite. Trust that your loved one will be OK and survive your absence. When you return from a few hours away or a few days they will be glad to see you.

Get educated ASAP. There are many community resources available, sheriff’s office, AFO, Alzheimer’s Foundation of America, Alzheimer’s Association, and so forth. There is plenty of literature free from all these sources and many books are written and available in most book stores. You become the expert on your loved one’s dementia. You will know more than your doctor.

I believe in the sanctity of life. I am not of a mind that euthanasia is appropriate for end of life. I have been privileged to witness some of the most heart touching moments of love shortly before death. When you love to completion, death comes and then you are ready to resume living into a new chapter of life. You have no regrets and the struggle with dementia has become a loving memory.

I am sorry that you may have to deal with demen-tia illness. I have helped to care for my mother-in-law (d. 2009) and now my father is 1,200 miles away in a nursing home with advancing dementia and crippling arthritis. My heart is filled with gratitude for the life and the love I have been privileged to experience with these incredible people. I honor them every day of my life and I have no regrets. May you have the awareness that your love is the best and have no regrets for what you did or did not do.

Alan Jones, D. Min. is the senior chaplain at Water-man Village in Mount Dora, Florida. Alan is endorsed by the Adventist Chaplain Ministry and is an ordained minister in the SDA Church. He pastored congregations in Pennsylvania, Nebraska and Kansas from 1974 to 1991, served as chaplain for the past 25 years in an acute care hospital, hospice and the last 18 years at Waterman Village. He is a facilitator of Support Groups and Director of the Brain Wellness Academy for Seniors.

I N T H E K N O W

After the Diagnosis, Planning CareBy Leilani Doty, PhD

After a careful medical exam indicates a diagnosis of Alzheimer’s disease or other type of progressive dementia, such as cardiovascular dementia, Lewy body dementia, one of the frontal-temporal dementias, etc., planning for care becomes critical. Of course, first are some immediate essentials:• Emotional support for the person with the diagnosis

and the family to deal with and accept the diagnosis and consider its impact on the family

• Education about the condition and realistic expecta-tions about the type and rate of decline in abilities – every person differs.

• Following the physician’s recommended treatments, such as to stop some medicines that interfere with memory and brain function, to start a new medicine or vitamin to help memory function; to start physical therapy to improve balance and walking, and/or to try occupational therapy for adaptive tools or safety-proofing the home setting. The physician may stop driving privileges or request a special comprehensive driving evaluation to ensure that driving skills are still safe.

• Shifting to a healthy lifestyle, including healthy diet, drinking enough water, regular physical exercise, daily brain exercise, positive relationships, fun leisure, doing activities/tasks to provide a sense of purpose and worth, and healthy sleep (a CPAP if sleep apnea is present), etc.

Next comes care planning!Care planning should focus on the interests, priorities,

abilities and safety of the person with the diagnosis and the appropriate helper. Starting early with care planning allows the person with the diagnosis to communicate during a time of better functioning. Thus, that person can explore choices, express preferences, and clearly state any decisions. Plans for adapting the home set-ting and routines and gathering information about program supports such as support groups, educational caregiver sessions, senior center resources, day care centers, and in-home help should focus on keeping that person’s function as independent as possible for as long as possible.

General Tips for At-Home• Tips for early on: Early memory problems may

benefit from reminders such as a note, a calendar on the bulletin board, a timer on a clock, watch, or smart-phone that buzzes, a reminder phone call or a

friendly word from a family member, neighbor, friend, or volunteer.

• Tips for change later on: Occasional assistance may help as needed with a task or filling in a word during conversation. Setting up simple steps may involve laying out clothing to wear for an outing and keeping directions or requests to one-at-a-time. Also helpful: a daily schedule of interesting activities, positive, funny short stories especially about family members or close friends, interesting topics to dis-cuss, sayings, music, songs, and pictures, especially old family photos. Caregiver respite is important.

• Tips for much later on: Constant assistance and supervision should occur in a safe home or facil-ity. Simple reminders about who the helper is (“I help you” or “I love you” or “I take care of you”) may connect when the person with dementia does not recognize family members or other caregivers. Self-feeding, chewing and swallowing may benefit from the caregiver’s one-word reminders to: “Bite”, “Chew”, “Swallow” and repeat “Swallow”. Comfort may result from a simple walk, pleasant music, petting a gentle cat or dog, a soothing backrub or arm massage, and a positive, relaxed visit with smiles and few words from a loved one. Regular caregiver respite is essential.

Legal and Financial MattersLegal and financial matters should be tackled early

on because both of those topics may impact so many other decisions. To find trustworthy legal and financial experts, check their work and educational backgrounds, specialty, membership in their professional association, and reputation with other families in your community.

Legal decisions in Florida such as establishing Du-rable Power of Attorney for Health or Finances may benefit from the expertise of a Certified Elder Law Attorney to guide in health and personal care plan-ning including: advance directives; lifetime planning; family issues; public benefits and insurance, etc. (www.floridabar.org).

A Certified Eldercare Financial Advisor may guide organizing finances such as direct deposits of retire-ment income, direct bank-payment of bills, and financial planning such as considering future costs (i.e., costs for medicines, relying on other means of transportation, and assisted living or long-term care costs) and benefits (such as veteran’s benefits). Contact the Financial Plan-ning Association at 1-800-322-4237 or www.onefpa.

16 Alzheimer’s Family Organization - CompanionAfter, continued on page 17.

I N T H E K N O W


org/ or www.plannersearch.org/ for more information.Families should think ahead and be ready to adapt to

changes in their loved one at the first signs of further decline and disability. The home and routines should always be safe, simple, interesting and pleasant. Plan-ning ahead should involve long-term management issues that involve making decisions about preferences, the health of all family members, financial and legal planning, transportation alternatives, and safety issues.

Back-up plansThe person with the diagnosis and the family

member(s)/significant other(s) should plan for the fu-ture, especially for a care team and back-up plans in case of emergencies. Emergencies may involve accidents (i.e., injuries from falling or a motor vehicle collision), sudden health changes (i.e., serious infections, a heart attack or stroke) or a weather crisis (i.e., hurricanes, tor-nadoes, power outages, evacuations to other cities, etc.). • Regular Shelter: Ahead of time, learn if local shelter

(evacuation center) can handle people with memory disorders, other health conditions, or pets. During a weather crisis, go to the shelter early to settle in a quiet back corner area near restrooms and away from windows, exits, the registration table, and other busy areas. See http://elderaffairs.state.fl.us/doea/disaster.php and read the Florida Disaster Preparedness Guide for Elders at: http://elderaffairs.state.fl.us/doea/pubs/EU/disaster_guide.pdf.

• Special Needs Shelter: Pre- Register for a special needs shelter in your county if you need assistance evacuating, need electricity or oxygen for life sus-taining equipment, refrigeration for medication, or have cognitive impairment or mobility issues that require special assistance. Caregivers must also be registered. Call Elder Helpline for local Special Needs Shelter 1-800-96-ELDER (1-800-963-5337).

Some National and Florida Resources• Alzheimer’s Association, Inc.: 1-800-800-272-3900;

www.alz.org• Alzheimer’s Disease Education & Referral Center (AD-

EAR): 1-800-438-4380; www.nia.nih.gov/Alzheimers/AlzheimersInformation/AboutUs.htm

• Alzheimer’s Family Organization: 352-616-0170. Fax: 352-616-0174. Email: [email protected]; www.alzheimersfamily.org/

• Eldercare Locator: 1-800-677-1116; www.eldercare.gov• Florida DOEA: 850-414-2000; www.elderaffairs.state.fl.us• Florida Elder Helpline: 1-800-963-5337; 1-800-955-

8771 TDD; 1-800-955-8770 (Voice)

• Alzheimer’s Association, Inc.: 1-800-800-272-3900; www.alz.org

Jimison Checklist on Family Matters (2016 edition)The following checklist should help to organize family matters and plan ahead.

Money & FinancesOrganize money matters early and with trusted people.q Cash flow, safe, bank & other money accounts

(Location? Keys or combination? Co-signer?)q Checking, savings, money market, fund beater, IRA,

CDq Safety deposit box; safe (Keys or combination to

open? Co-signer?)q Social security (direct deposit) or pension (if under

age 66, social security disability):q Check, mailed home or direct depositq Change the representative payee?

Legal MattersContact attorney or financial expert about: q Durable power of attorney (DPA) for: Finances,

Health, Springing DPA (start date) q Living will; health surrogate; full code; prehospital

DNR (Do Not Resuscitate); plan emergency medical care - www.mydirectives.com; plan end-of-life issues - www.theconversationproject.org

q Trust fundsq Legal changes, update when: move to another state,

stay in different states more than a few weeks each year, change in caregiver(s)

q Guardianship Plan ahead to avoid the need for guardianship.

Family BusinessSomeone (maybe a Geriatric Care Manager) must handle:q Regular bills: [ ]Utilities [ ]Rent/mortgage [ ]Car

repair [ ]Yard care [ ]Pet care [ ]Insuranceq Back up plans. If something happens (hurricane, fire,

etc.),what is the family backup plan? Who helps? List items to toss into a box or suitcase for emergency evacuation: important papers, water, medicines, clothing, incontinence items, food, first aid kit, pet food, Silver Alert information, etc.

q Enroll in local emergency, special needs shelter with driver license/ID two emergency contacts

After, continued from page 16.

After, continued on page 18.

I N T H E K N O W

Keep It SimpleBy Beth Garofallou

The mission of AFO is to help caregivers and those who have loved ones with Alzheimer’s or other de-mentia by offering education, resources, and guidance in coping with the disease in as healthy a way as pos-sible—with the goal of a better quality of life for both the loved one and the caregiver. One of the best ways to do this is to learn to adapt to a constantly changing situation. This is made much easier if you simplify as much as possible. Simplifying life helps you manage change smoothly rather than battling through it. Here are some ways to simplify:• Develop a routine – Routines establish consistency,

which reduces confusion on the part of your loved one and frustration on your part. They take the pressure off daily living. Use visual reminders and schedules where possible—they’re much easier for you to re-member, too.

• Allow enough time…for everything – Not allowing enough time for a task is stressful enough; you do not need that added stress as a caregiver. Accept that everything will likely take longer than expected, and plan for it. You’ll both be happier for it!


q Wallet-size page: brief Health Record: allergies, major illness, surgery, medicines, etc.; ICE (In Case of Emergency) number on cell phone with health info & contacts

q Medicine (Dose? Where is medicine located in home? Who renews & picks up refills?

q Help with grocery shopping, bills, cooking, cleaning, laundry,home repairs,yard, travel

q Real estate (Location of property and deeds? Co-owners?)

InsuranceKnow policy schedule, location and agent. CHECK WAIVERS & CO-PAYS!!q House; property q Disabilityq Life Insurance q Medicaidq General Medical q Carq Dental q Theftq Veterans medical q Fire q Medicare q Floodq Long-term care

SafetySafety-proof the home. Plan ahead for crises: re-move firearms; lock up or remove sharp knives, razors, scissors, sharp tools & appliances with cut-ting edges, etc.q Drivers must be safe! Plan ahead for other trans-

portation. q Identity bracelet/necklace for missing persons [Sil-

ver Alert (FL)]; locks on doors, fenced yard, recent photo on file, Medic-Alert/Safe Return Program;

patient-caregiver bracelet set available; Life Line; ICE (In Case of Emergency) medical & contact info (1-877-564-6423)

q Address hoarding; reduce clutterq ABUSE Registry (abuse,neglect,threat/exploitation),

Florida hotline 1-800-962-2873; TDD1-800-453-5145q National Suicide Prevention Lifeline 24/7,1-800-273-

8255; www.suicidepreventionlifeline.org/gethelp.aspx

In Event of DeathKnow and honor person’s preferencesq Summary of assetsq Funeral & memorial service details & People to

notifyq Autopsy for diagnosisq Cemetery lot (Deed? Location?)

Leilani Doty,PhD, Director, Univ. of FL Memory Disorder Clinic, 352-273-5620, Box 100236,Gainesville, FL 32610-0236.Partial funding: FL Dept. of Elder Affairs, Alzheimer’s Disease Initiative.Adapted from Pat Jimison & Shellie Brassler,1982 original list; Alzheimer’s & Dementia Resource Center, Orlando, FL.


Simple, continued on page 19.

An Alzheimer’s PoemDo not ask me to remember.Don’t try to make me understand.Let me rest and know you’re with me.Kiss my check and hold my hand.I’m confused beyond your concept.I am sad and sick and lost.All I know is that I need you to be with me at all cost.Do not lose your patience with me.Do not scold or curse or cry.I can’t help the way I am acting.Can’t be different though I try.Just remember that I need you,That the best of me is gone.Please don’t fail to stand beside me,Love me ‘til my life is done.

I N T H E K N O W

Those of us facing the challenges of Alzheimer’s disease face a number of difficult issues, not the least of which is, “What do I tell my family? And how am I going to do it?”

That was an issue for me as well, and I put off tell-ing my family anything for a long time. They lived a distance away from us and were not privy to the day-to-day struggles we were experiencing and, of course, I didn’t want to burden them unnecessarily. That was a big mistake and one I urge others not to make.

By not telling my family what I was going through, I robbed myself of their comfort and concern, but most of all, I deprived myself of a sounding board—someone to share the little things with, before they grew to be insurmountable. The medical world has proven that the greatest help anyone can give to caregivers is a listening ear. In fact, they did a study in New York over a five-year period, only to discover that the most effec-tive tool they could offer was a 24-hour help line for caregivers to access. The amazing thing was that the number of times caregivers called that line was much less than they had anticipated. However, just knowing that line was there for them gave those same caregiv-ers more comfort and confidence than anything else.

Now, what do you tell your family? You could start by telling them your loved-one has been diagnosed with Alzheimer’s. However, actions speak louder than words, so don’t expect them to believe you—at least

not at first. Many families will be in denial, so rather than arguing, why not invite them to come and visit for a weekend? Then find an excuse to leave them alone with the patient for a while. That can be a real eye-opener.

It’s not so much what you tell your family as how you tell them. In fact, you could always send them an easy-to-read book on the subject. I can recommend a few, but just avoid the medical and technical ones or those that promise an easy cure.

In the end, all you can do is explain simply and kindly what is happening to their loved one and how it affects you. If they refuse to believe you, don’t push it. They also need time to process—just as you did. Above all, speak with love—not anger or criticism—emphasizing the fact that the patient is not responsible for their ac-tions. They need to know that it’s nobody’s fault, on either side, and that you are struggling to cope with it.

They will come around eventually—some sooner than others—but it takes time to accept the inevitable. Try not to be hurt by their reaction—remember how you felt at first—because, in most cases, they can be-come a comfort to you as time passes and the disease worsens. Just remember, a shared burden is always lighter.

Marian Ritchie is an author, speaker, and Alzheimer’s Advocate – [email protected]

REALITY CHECK: What, How, and When to Tell Your Familythat Your Loved One Has Alzheimer’s

By Marian Ritchie


• Take advantage of peak times – If you watch, you’ll notice you’re loved one has “peak times” where he or she is more calm and amenable. Once you have determined this pattern, schedule more significant tasks or activities, such as running errands or even taking some personal time (the one exception is doc-tors’ appointments—see below), during these times.

• Schedule appointments early – Doctors can run late, so schedule appointments either first thing in the morning or right after lunch. Call ahead to make sure the doctor is on schedule; you do not want to show up too early and risk your loved one becoming tired and agitated.

• Limit the number of choices – Too many choices may be agitating to you and your loved one—over-whelming for them and unnecessary extra work for

you. While you want to allow your loved one choices (to maintain as much independence as possible), consider narrowing the field to 2 or 3.

• Keep distractions to a minimum – You probably feel this, too: If the TV is on, you can’t focus on what someone is saying. This is doubly true for your loved one. To get them to focus, keep distractions out of the mix—not just the TV, but other people talking, appliances operating, etc. You’ll find this will help you, too.

• Set realistic expectations – This is a big one. Accept that you cannot do everything you did before—and be ok with that. This is a time to follow the “Don’t sweat the small stuff” rule. Believe it or not, your loved one will be OK if he or she wants to wear the same shirt two days in a row! With every decision that comes your way, put it to that test—for both you and your interactions with your loved one.



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461 Mariner BoulevardSpring Hill, FL 34609352-616-0170E-mail: [email protected] Site: www.alzheimersfamily.org

HAVE YOU MOVED???If your address has changed,

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How to Make a Bequest to the Alzheimer’s Family Organization

Enclosed is my tax deductible donation of $ _________Please dedicate my donation in honor of/in memory of:(Name) ___________________________________And notify: Name ____________________________Address __________________________________City _________________ State _____ Zip ________Sent by ___________________________________Address ___________________________________City _________________ State _____ Zip ________

The Alzheimer’s Family Organization needs your support to carry on all of the services we offer including support groups, the Helpline, the Newsletter and other activities to assist families coping with Alzheimer’s disease and other dementias.q YES, I would like to be a volunteer for the Alzheimer’s Family Organization.q YES, I would like to support the work of the Alzheimer’s Family Organization through

membership, which entitles me to receive the newsletter, updates on research and notification of caregiver days/seminars.

Name __________________________________________________________Address _______________________________________ County __________City _______________________________ State ______ Zip _____________Home Phone ___________________ Email ____________________________Enclosed is my tax deductible membership contribution of:q $50 Memberq $100 Friendq $500 Lifetimeq $1000 Alzheimer’s Angel

q $300 Corporate (organization, agency, nursing home or ALF)

q $500 Corporate Plus (organization, agency, nursing home or ALF)

Speak with your attorney about the advantages of estate planning and how your will can benefit both your loved ones and the Alzheimer’s Family Organization. If you already have a will, your lawyer may add a codicil to it. If you don’t have a will, the bequest can be included when your will is drafted.

We accept MasterCard, Visa

and Discover

Twitter@AlzFamilyOrg

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Documents

2017 Winter Companion Newsletter - Alzheimer's Family... · PDF fileEileen Reyes Doris Rosin Robert Runnels Susan Saunders Larry Selner Deborah Selsavage Gerald & MaryAnn Sibley Sue