2015 ANNUAL REPORT

Michigan Fall Colors at Taquamenon Falls State Park, GRAFF Mt. Pleasant

June 2016

This page is intentionally blank.

TABLE OF CONTENTS

1 Letter from the Co-Chairs

2 About the MCC

3 State Cancer Burden

4 Cancer Plan for Michigan

6 2015 Annual Survey Results

8 Community Implementation Projects

10 MCC Membership Spotlight

11 Acknowledgements

Dear Partners and Friends, “Couldn’t do it without you.” “You are the apples of our eyes!” These statements reflect the value of you – Michigan Cancer Consortium (MCC) members and partners. Together, you make countless contributions that inform and guide activities and propel the mission of the Michigan Cancer Consortium. MCC members volunteer in different ways and many small or micro-contributions add up to a number of initiatives, products, and results that are reducing the burden of cancer in Michigan. An example are the workgroups, made up of MCC members, who are actively working on four cancer prevention and control priorities:

1) Girls and boys will avoid a number of cancers caused by the HPV virus later in life

2) More adults will be screened for colorectal cancer and have it detected earlier when it is most treatable

3) More adults will be aware of, and have access to, important cancer treatment clinical trials

4) More adults will receive the information they need to successfully plan for a healthy life following cancer treatment

Take a look at the MCC Annual Report for a big picture view of ALL related activities and the impact of the MCC and its members. We’re proud of the MCC’s work and prouder still of the members that make it happen. MCC members have proven they have the will to be difference makers. Thank you to all who are making that difference. Sincerely,

Ernesto Drelichman, MD, FACS Joan Westendorp, OCN, MSN, RN 2016 MCC Co-Chair 2016 MCC Co-Chair

Letter from the Co-Chairs

CALL TO ACTION

The Co-Chairs invite you to: • Visit the MCC dashboard to check

the progress of each priority: michigancancer.org/CancerPlan/Dashboard.html

• Commit to implementing the

strategies of the Cancer Plan and share your activities in the 2016 MCC Annual Survey

• Share this Annual Report with your

colleagues

“MCC provides an invaluable opportunity to network with other cancer care professionals, share resources, initiatives and programs.” Laura Zubeck, MBA, BSN, RN Barbara Ann Karmanos Cancer Institute

1

WHAT IS THE MCC? The Michigan Cancer Consortium (MCC) is a statewide, broad-based partnership. This “organization of organizations” strives to include all public and private entities interested in the fight against cancer. The MCC provides a forum for collaboration to reduce the burden of cancer among the residents of Michigan by achieving the MCC's research-based and results-oriented cancer prevention and control priorities.

The MCC was formed in 1987 to advise the state health agency on its cancer control activities. After its more formal founding in 1998, priorities for cancer control were put in place and the first executive committee was convened. Today, the MCC continues to be a leader in cancer prevention and control.

WHERE IS THE MCC? The MCC has 114 member organizations located around the upper and lower peninsulas of Michigan. A full list of MCC members can be accessed on the MCC website (michigancancer.org).

WHAT DOES THE MCC DO? MCC member organizations work together to improve cancer outcomes for Michigan residents. Together, nationally recognized cancer experts, state health care leaders, health providers, insurers, and representatives of community-based organizations, commit to working on the Michigan Cancer Plan and the MCC’s priorities.

Because of its strong leadership and member participation, the MCC is one of the most robust state cancer prevention and control coalitions in the nation and has received two national awards in recognition of its work. The MCC is recognized in the state as an important source of cancer information and its resources are easily accessible on its website, including:

• Resources for health professionals, patients, and the public

• Clinical trial information • Continuing education • Fact sheets on different types of cancer

for patients and professionals • Information on what people can do to

prevent and detect cancer • Cancer data • Cancer genomics information • Cancer-related communication and

marketing toolkits

About the MCC

“We feel it is important to be connected to, and working with, the statewide efforts to decrease the cancer burden of our communities.” Karen Kaashoek, RN, MBA Catherine’s Health Center

2

One in ten Michiganders reported having received a diagnosis of cancer in the course of their lifetime2*

The proportion of Michigan deaths caused by cancer has been stable from 2009 to 20131

Michigan’s Cancer Burden

In 2012, Michigan's rate of new cancer diagnoses was higher than the national rate

Michigan: 445 new cases for every 100,000 Michiganders United States: 439 new cases for every 100,000 Americans1

From 2011 to 2014, the proportion of Michiganders who reported ever being diagnosed with cancer remained stable2*

New cases of cancer in Michigan fell 2% between 2008 and 20123

Deaths caused by cancer in Michigan fell by 1.1% from 2008 to 20123

Cancer remains the second leading cause of death in Michigan1

*Includes diagnosis of skin cancer (melanoma and basal cell) 1Michigan Cancer Surveillance System and C IN A + Online Cancer in North America 22011-2014 Michigan Behavioral Risk Factor Survey 3State Cancer Profiles of the National Cancer Institute and Centers for Disease Control and Prevention 42014 Michigan Death Certificate Registry

One out of five deaths in Michigan are attributable to cancer4

3

The Cancer Plan for Michigan serves as a guide to reduce the human and economic burden of cancer in the state. This five-year plan is for anyone in the state looking for ways to fight cancer. It is based on evidence and the collective wisdom of a wide range of people and organizations in Michigan. The most recent plan, released in November 2015, pinpoints ways to address the cancer burden in Michigan and will direct cancer control efforts during 2016-2020. The Cancer Plan and all related materials are available at michigancancer.org.

Cancer Plan Elements Goals The Plan has four goals, which are broad statements about the purpose of the Cancer Plan. The goals are modeled after the cancer care continuum.

1. Prevent cancer from occurring. 2. Promote early detection of cancer

using tests that have been shown to reduce mortality.

3. Diagnose and treat all patients using the most effective and appropriate methods.

4. Optimize quality of life for every person affected by cancer.

Objectives In order to achieve the goals, 36 objectives have been set to be completed by 2020. Each objective is specific, measurable, attainable,

relevant, and timed (SMART). The objectives will be used to measure progress in reducing the cancer burden in Michigan.

Strategies Specific steps are outlined to achieve each objective. These strategies are based on research and proven interventions. The Cancer Plan includes a total of 111 strategies.

Pillars The Cancer Plan has four overarching focus areas that should be incorporated into its implementation.

Cancer Plan for Michigan: 2016 - 2020

Policy, systems, and environmental

change

Health equity

Active partnerships Evaluation

4

Revising the Michigan Cancer Plan

The strategy to revise the Cancer Plan spanned one year and involved the collaboration of experts from organizations across the state.

The MCC Evaluation Committee was invaluable in defining a revision process, and identifying desired content, layout, and features to incorporate into the Cancer Plan.

MCC members volunteered for workgroups for each goal of the Cancer Plan and narrowed down the objectives and strategies to include.

The MCC Board of Directors chose one objective per goal in order for the MCC to focus its efforts in implementation of the plan.

A dashboard was created in an effort to display up-to-date information on all 36 objectives in the Plan.

5

About The Survey The MCC Annual Survey is a web-based tool used to collect information from MCC members to track progress of the implementation of the Cancer Plan. The data collection period for the 2015 survey lasted 5 weeks, from January 11 to February 15, 2016. Ninety-seven member organizations responded.

In order to establish a baseline before the Cancer Plan went into effect in 2016, the 2015 survey questions focused on the MCC priority objectives set for 2016-2018. The four priorities are:

When analyzing the results, comparisons were made to the previous years, if data were available. A trend line is included to indicate the general direction of activities. Please note not all MCC members have the priority objectives in their organization mission.

Prevention Cancer prevention includes those steps taken by individuals, organizations, or communities to prevent the development of the disease.

Figure 1. Percent of MCC organizations that promoted the use of the HPV vaccine. (MCC Annual Survey 2012-2015)

MCC members indicated that their organizations promoted the use of the HPV vaccine by:

• Increasing community demand, such as client reminders and recall

• Using provider or system-based interventions, such as provider assessment and feedback

• Enhancing access to services by reducing out-of-pocket services or expanding clinic hours

Early Detection Early detection is discovering cancer or a premalignancy before an individual shows disease signs or symptoms. Regular screening examinations save lives by identifying cancers when they are most curable and treatment is most likely successful.

Figure 2. Percent of MCC organizations that promoted colorectal cancer screening. (MCC Annual Survey 2011-2015. Data from 2012 is unavailable.)

In 2015, 57% (60 out of 97) MCC member organizations reported working on activities promoting colorectal cancer screening. These organizations reported using various methods to promote screening, such as:

Increase HPV vaccination rates in Michigan in both females and malesPrevention

Increase colorectal cancer screening rates in Michigan

Early Detection

Increase the percentage of Michigan adults participating in cancer treatment clinical trials

Diagnosis & Treatment

Increase the number of Michigan adults diagnosed with cancer who report receiving a survivorship care plan

Quality of Life

2015 MCC Annual Survey

“One of our organizations targeted males who needed HPV vaccine and increased their rates by 20%.” Jonnie Hamilton, MS, CPNP, RN, CAN Coalition of Michigan Organizations of Nursing

6

• Small media patient education (i.e., video and printed materials such as letters, brochures, & newsletters)

• Client reminder systems • One-on-one patient education (i.e., telephone

or in-person) • Provider reminder and recall systems • Provider assessment and feedback • Reduce structural barriers (i.e., reduce

transportation barriers, modify hours of service, etc.)

Diagnosis and Treatment For patients diagnosed with cancer, access to quality evidence-based treatment is critical. Cancer treatment varies by type of cancer, stage at diagnosis, age of the person undergoing treatment and general health status.

The 2015 Annual Survey introduced the question of “Was your organization involved in promoting the participation of Michigan adults in clinical trials for cancer treatment?” In 2015, 42% (40 out of 97) of MCC member organizations reported using various strategies to increase participation in clinical trials.

Figure 3. Percent of organizations promoting clinical trial participation. (MCC Annual Survey 2015)

Quality of Life

Someone is considered a cancer survivor from the time of diagnosis through treatment and beyond. Health promotion after cancer treatment can improve survival and quality of life.

Figure 4. Percent of organizations promoting survivor care plans. (MCC Annual Survey 2013-2015)

In 2015, 68% (50 out of 97) MCC member organizations reported promoting survivor care plans. These organizations reported using various strategies, such as:

• Promoting the presentation of survivorship information in an appropriate manner to ensure comprehension by patients

• Promoting and supporting the efforts of Michigan providers to meet national standards on distributing survivorship care plans (i.e., ACOS, ASCO, and NCCN)

• Educating providers and patients on evidence based follow-up care for the short-term and late effects of cancer and its treatment in both children and adults

“We refer appropriate patients to hospice and have designated several rooms for this purpose on our oncology floor as well. We have a pain and palliative nurse practitioner who takes referrals and treats accordingly.” Marsha Schmit, RN, BSN, CBCN Hurley Medical Center

“Our community outreach program directly educates about both colon screening and lung cancer screening as part of our large and small community events.” Martha Laatsch, MSW University of Michigan Comprehensive Cancer Center

“We have a website that allows people to find available clinical trials. We advocate for the ability to participate.” Shelly Kiser American Lung Association in Michigan

7

The Michigan Department of Health and Human Services Comprehensive Cancer Control Program provides community grants to increase local cancer prevention and control activities. It continued funding six 2-year projects, many of which are MCC member organizations. Here you will find a snapshot of their work. You can read more about each project at http://1.usa.gov/1TZu0aZ.

BARRY-EATON DISTRICT HEALTH DEPARTMENT Ask-Advise-Connect: A Rural M ichigan Success Story

In response to high rates of tobacco use in Barry and Eaton counties, the Barry-Eaton District Health Department promoted tobacco cessation through use of the Ask-Advise-Connect (AAC) program in physician and dental offices. Providers connected patients directly to the Quitline during their visits. They found that then more patients were actually using the services. By the end of the grant, about 250 patients accepted the connection to the Quitline and the majority of providers found AAC to be beneficial.

DISTRICT HEALTH DEPARTMENT 10 The Power of PhotoVoice to Invoke Interest and Discussion about the HPV Vaccine PhotoVoice has been used to bring awareness to many topics using voices, opinions, and views told through photography. The HPV vaccine PhotoVoice project sparked continuous improvement focused on increasing vaccination that will continue past the end of the project. District Health Department 10 (DHD10) is committed to decreasing the region’s cancer rates and will work to accomplish this goal, which includes continuing to promote the HPV vaccine and using the HPV PhotoVoice in future marketing campaigns.

DISTRICT HEALTH DEPARTMENT 10 Worksite Wellness: I t Works! District Health Department 10 began an initiative to build capacity for wellness programs at local businesses and encouraged worksites to implement policy, systems, and environmental changes to make it easier for employees to adopt healthy lifestyles. DHD10 staff used creative recruiting strategies to inform and encourage worksites to take advantage of the DHD10 resources. By building relationships in the business community, using evidence-based tools and promoting a culture of health, employers are able to help improve the health, productivity, and morale of their employees.

INGHAM COUNTY HEALTH DEPARTMENT Tobacco and You: Weekly Quit-Tobacco Support

This program successfully offered community members a non-judgmental atmosphere to share struggles and successes while moving toward becoming tobacco-free. It used research-based curriculum and weekly carbon monoxide monitoring and facilitation was conducted by Peer Support Specialists. One participant asked if they wanted him to quit on the first session and their answer was no, maybe within one year. After group, he suggested they call it “Talking About-Thinking About-Quitting”. This no-pressure catch-phrase is now shared with many prospective clients!

Community Implementation Projects

8

INTER-TRIBAL COUNCIL OF MICHIGAN, INC. Native American Youth Tobacco Screening and Cessation: Policy and System Change American Indian populations in Michigan have higher smoking rates than the state average and smoking starts at an earlier age. The Inter-Tribal Council of Michigan, Inc. partnered with two tribes to develop medical and dental clinic policies to screen youth for commercial tobacco use and to refer tobacco users to appropriate treatment services. This resulted in 1) increased knowledge and capacity for tribal clinic providers to screen, educate and refer young patients for cessation services and resources, such as the youth-targeted QuitLine; and 2) increased screening and referral rates within the two clinics.

MCLAREN OAKLAND Empowering, Educating, & Supporting those Affected by Cancer through P.A.T.H Workshops

PATH (Personal Action Toward Health) also known as The Stanford Chronic Disease Self-Management Program, helps people learn self-management techniques for long-term health conditions. This free 6-week workshop was offered in convenient community locations. PATH was launched for those affected by cancer in January 2013. Despite many challenges, 24 PATH workshops were executed, 250 participants were recruited, and 84% of participants completed the workshop. All participants stated they would continue to use at least one of the self-management tools learned and would recommend the workshop to friends and family.

ST. JOSEPH MERCY HEALTH SYSTEM, ANN ARBOR Volunteers 'Link' Cancer Patients to Psychosocial Support Services

St. Joseph Mercy Health System-Ann Arbor (SJMH), American Cancer Society (ACS) and Cancer Support Community (CSC) partnered to provide psychosocial support for cancer patients. ACS and CSC ran volunteer training and offered support but were not on-site to oversee the program. The result was inconsistent volunteer recruitment, retention and support. The Program Coordinator was essential in developing the “Link” program to enrich the existing program. Prior to the Link program only 15 SJMH cancer patients were referred for resources each month. This number grew steadily to a high of 118 patients per month.

“GDAHC is moving toward a more focused approach on creating health equity and eliminating health disparities by addressing the social determinants of health. We would like to continue a membership with the MCC because of this common focus as it relates specifically to cancer.” Lisa Braddix, MPH Greater Detroit Area Health Council

“Membership enhances our ability to give the most comprehensive resources to health centers, and gives us the opportunity to learn about partnering organizations, program initiatives, and overall mission of the state.” Sara Koziel Michigan Primary Care Association

9

Membership Satisfaction The MCC Annual Survey gathers information from MCC members to evaluate their satisfaction with the Consortium and its activities.

In 2015, members identified three main benefits they value from being associated with the MCC:

Spirit of Collaboration Awards Every year since 2001, the MCC has presented its highest honor — the MCC Spirit of Collaboration Award — to member organizations that have done outstanding collaborative work to significantly move comprehensive cancer control activities forward in our state. The award was presented at the MCC Annual Meeting on November 4, 2015.

Congratulations to the 2015 awardees!

Colorectal Cancer Prevention and Detection Initiative

Pictured: Ernesto Drelichman, MD, FASC, MCC Co-Chair Mitzi Cardona, CPM, American Cancer Society

Homaira Treviño, Community Health and Social Services Center, Inc. Susan Hoppough, PhD, RN, MCC Co-Chair

The Michigan Surgical Quality Collaborative Colorectal

Cancer Surgery Initiative Pictured: Ernesto Drelichman, MD, FASC, MCC Co-Chair

Samantha Hendren, MD, MPH, University of Michigan Health System Susan Hoppough, PhD, RN, MCC Co-Chair

Honorable Mention

Colorectal Cancer Co-Branded Screening Reminder

Initiative Pictured: Ernesto Drelichman, MD, FASC, MCC Co-Chair

Tom Rich, American Cancer Society Susan Hoppough, PhD, RN, MCC Co-Chair

MCC Membership Spotlight

“I have enjoyed the increased activity and representation of sites and perspectives throughout MCC, including at the Board level.” Connie Szczepanek, RN, BSN Cancer Research Consortium of West Michigan

10

2015 BOARD OF DIRECTORS Ernesto Drelichman, MD, FACS Co-Chair St. John Providence Health System

Susan Hoppough, PhD, RN Co-Chair Mercy Health Saint Mary's

Aaron Scholnik, MD, FACP Immediate Past Co-Chair UP Health System - Marquette Cancer Center

Joan Westendorp, MSN, RN Secretary West Michigan Cancer Center

Evelyn Barrack, PhD Michigan Breast Cancer Coalition

Robert Chapman, MD Henry Ford Health System

Sally Cory, MA, BA Kent County Health Department

Kim Harrison, MHSA CaretMD (Physician Resource Management, Inc.)

Elisabeth Heath, MD Barbara Ann Karmanos Cancer Institute/ Wayne State University

Carolyn Johnston, MD University of Michigan Comprehensive Cancer Center

Brian Lane, MD, PhD Spectrum Health Cancer Program

Tom Rich, MPH American Cancer Society, Inc., Lakeshore Division

Thomas Lanni, Jr, FACHE Beaumont Health System

Ann Schwartz, PhD, MPH Barbara Ann Karmanos Cancer Institute/ Wayne State University

Jane Severson, RN, MSN, MHSA University of Michigan Comprehensive Cancer Center

Mary Jo Voelpel DO, FACOI, FACNM Michigan Osteopathic Association

Dana Zakalik, MD Beaumont Health System

SPECIAL THANKS TO 2015 MCC Evaluation Committee

million Thanks a

2015 MEMBER ORGANIZATIONS Absenger Cancer Education Foundation ACCESS Community Health Center Alpena Regional Medical Center-Alpena Cancer Center American Cancer Society Cancer Action Network American Cancer Society, Inc. Lakeshore Division American College of Surgeons American Lung Association of Michigan Area Agency on Aging 1-B Barbara Ann Karmanos Cancer Inst./Wayne State Univ. Barry-Eaton District Health Department Beaumont Health System Blue Cross Blue Shield of Michigan Botsford Cancer Center Bronson Battle Creek Calhoun County Cancer Control Coalition Calhoun County Public Health Department Cancer Research Consortium of West Michigan Cancer Services Cancer Support Community of Greater Ann Arbor CaretMD (Physician Resource Management, Inc) Catherine's Health Center Central Michigan District Health Department City on a Hill Health Clinic Coalition of Michigan Organizations of Nursing Covenant HealthCare Cancer Care Center Davenport University Dickinson Iron District Health Department District Health Department #10 District Health Department #2 District Health Department #4 Genesee County Health Department Genesys Hurley Cancer Institute Gilda's Club Grand Rapids Gilda's Club Metro Detroit Greater Detroit Area Health Council HAP Midwest Health Plan Health Alliance Plan Health Department of Northwest Michigan HealthPlus of Michigan Healthy Asian Americans Project Henry Ford Health System Hills and Dales General Hospital Hospice & Palliative Care Association of Michigan Hurley Medical Center Huron County Health Department Ingham County Health Department Inter-Tribal Council of Michigan, Inc. Kalamazoo County Health and Community Services Dept. Kent County Health Department Kirkhof College of Nursing Luce-Mackinac-Alger-Schoolcraft District Health Dept. Macomb County Health Department Marquette County Health Department Mary Free Bed Rehabilitation Hospital McLaren Cancer Institute-Clarkston McLaren Central Region McLaren Home Care Group

McLaren Northern Region McLaren South Central Region McLaren Southeast Region McLaren Western Region Mercy Cancer Network Mercy Health Saint Mary's Michigan Academy of Family Physicians Michigan Academy of Nutrition and Dietetics Michigan Association for Local Public Health Michigan Breast Cancer Coalition Michigan Cancer Genetics Alliance Michigan Center for Rural Health Michigan Health & Hospital Association Michigan Institute of Urology-Men's Health Foundation Michigan Osteopathic Association Michigan Ovarian Cancer Alliance Michigan Physical Therapy Association Michigan Primary Care Association Michigan Public Health Association Michigan Radiological Society Michigan Society of Hematology and Oncology Michigan Society of Pathologists Michigan State Medical Society Michigan State University-Breslin Cancer Center Mid Michigan District Health Department MidMichigan Medical Center - Midland MPRO Munson Healthcare National Association of Hispanic Nurses, MI Chapter National Kidney Foundation of Michigan Oakwood Healthcare System, Inc., Cancer Center Oncology Nursing Society-Ann Arbor Chapter Patient Advocates for Advanced Cancer Treatments Pfizer Inc. Priority Health Prostate Cancer Coalition of Michigan Providence Cancer Institute Public Health Muskegon County Saginaw County Department of Public Health Sanilac County Health Department Sisters Network Greater Metropolitan Detroit Chapter Sparrow Cancer Center Spectrum Health Cancer Program St. John Providence Health System St. Joseph Mercy / Oakland Susan G Komen Michigan The Leukemia & Lymphoma Society -Michigan Chapter Tobacco-Free Michigan Tuscola County Health Department UnitedHealthcare Community Plan University of Detroit Mercy School of Dentistry University of Michigan Comprehensive Cancer Center University of Michigan School of Public Health UP Health System - Marquette Cancer Center West Michigan Cancer Center Western Upper Peninsula District Health Department Z.I.A.D. Healthcare for the Underserved, Inc.

11

Michigan Cancer Consortium www.michigancancer.org

877-588-6224

This publication was supported in part by funding from the Centers for Disease Control and Prevention (CDC) Cooperative Agreement 5U58DP003921. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the CDC.