£10k - You’re Amazing!!!

Hello Everyone and welcome to our April e-bulletin.

Things are a little strange at the moment but we want to reassure you that we are still here and working hard as ever.

We are very much focussed on the we can's rather than the we cannot's. We’re excited to give you the first glimpse of our fantastic new Lung Handbook and also share

some of the amazing things our community got up to for the 2.6 challenge. We are also announcing the launch of our new survey COVID & MY CARE and would really like

to hear of your experiences

We may be on lockdown but we won’t let you down

Thanks for reading NCUK

Thank you for raising £10,000 for NCUK!!! #Twopointsixchallenge

The Covid-19 pandemic has had a devastating effect on charities, with the cancellation of thousands of events and the loss of billions in fundraising income. In response, the organisers of the biggest mass-participation sports events across the country came together to create a new campaign to raise vital funds to help to save the UK’s charities. They created the ‘2.6 Challenge’ which took place on the 26th April, what should should have been the 40th anniversary of the London Marathon. Read more

New Lung Handbook!

We’re excited to give you the first glimpse of our fantastic new Lung Handbook! 

Consistent, reliable, accurate information is essential to enabling patients to make informed decisions about their care, treatments and life choices.

Read Lung Handbook here

Mindful Mondays

Feeling worried or stressed out? Wondering if Mindfulness is just a ‘bit weird’ - or if it might be helpful? We’ve got something for that! 

AMEND and Neuroendocrine Cancer UK Counselling Services are teaming up to offer a series of '10 at 10’: Mindful Mondays.

Check our social channels at 10am every Monday to join in, or click here

Covid and My Care Survey 

At at time when COVID-19 is dominating the headlines, our priority remains focused on supporting our community. We recognise that many of you have had changes to your care, and it is vitally important that your voice is still heard.

We would be very grateful if you could spend a little time to fill in this important survey. It should take around 7 minutes to complete. Thank you

Compassionate Travel Grant   We are very aware that there are costs associated with getting to and from hospital appointments, especially for investigations and treatments. We really want to be able to support our community, and have therefore developed a compassionate travel welfare fund. 

Read more about the fund, and how to apply, here

Virtual Natters  

NCUK Natter Support Groups are local community based meetings that offer an opportunity to meet others in your area, who are also affected by Neuroendocrine Cancer; patients, family, friends and supporters. Whilst at present we cannot meet in person, we can meet online and by phone. We have set up Zoom Natter meetings for as many of our scheduled meetings as possible.

Join a Virtual Natter!

Pen Llyn Ultras  

We were kindly donated 10 free places to us for the Pen Llyn Ultras this year by our patient Huw, but now COVID19 has destroyed all plans, he's set up a virtual race instead. He's not long set his fundraising page up and already had £1700 donated! What a hero! He wants to raise £100,000 for us this year.

Read more here

Bequeathed

Free wills, valuable advice

Make your will with our partners, Bequeathed. Simply follow the steps to create a will online. It’s a free service

To find out more, visit this page

Financial Advice Clinics

In addition to Bequeathed and their free will service, our resident Financial Advice Guy, John, is offering free Zoom clinics to help with any finance queries you may have.

Do you have some financial questions that need answering? John may be able to help, take a look here

Don't Sit on a Worry! 

Times may be a little strange and you may not want to 'bother' anybody with non Covid medical issues, but don't forget that we are all here for you! 

If something is bothering you or doesn't feel quite right, don't ignore it! The NCUK team are here to help with any questions you may have, and our nurse helpline is till open. Your MDT team are also still on hand for any medical assistance you may need so please don't hesitate to get in touch. 

INCA Newsletters

In these exceptional circumstances worldwide, the 8th INCA Summit was adapted to a virtual format and took place on Thursday, April 2nd. Read about the Summit and much more in the March and April Newsletters.

#GivingTuesdayNow

In support of global fundraising day - #GivingTuesdayNow - we will be challenging the nation to do their part and #DeclutterAndDonate on Tuesday 5th May.

By decluttering at home, you can donate their unwanted Books, CDs, DVDs and Games through trade-in site and app Ziffit, and 100% of the trade value will go directly to your good cause. It’s that simple! Get involved!

Goodbye Irfan Khan

“The unexpected makes us grow, which is what the past few days have been about. Learning that I have been diagnosed with NeuroEndocrine Tumour as of now has admittedly been difficult, but the love and strength of those around me and that I found within me has brought me to a place of hope.” Irfan Khan 2018

Read more here

We send our condolences to the families and friends of all HCP and key workers who have lost their lives to COVID19, and also to the family, friends and global

community on the death of Irfan Khan.