100 Voices for Self Advocates Lists Handout

8/20/2019 100 Voices for Self Advocates Lists Handout

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100 Voices for Self Advocates

Here is how people answered the questions

where they could write their answer

If you could make one change in your life,

what would that be?

Here are the things a number of people all said:

21 people said they were happy or would make no changes

19 people said get a job

13 people said to have their own house or flat

7 people said to not be disabled or to not have autism orepilepsy

6 people said they would like a holiday or more holidays

7 people said to see their family more

6 people said they did not know or not sure

6 people said go out with friends or go out more

5 people said meet more people or make new friends

5 people said have a girl/boyfriend

4 people said more money

4 people said get married

3 people were not sure

2 people said they are happy the way they are


2/26

Here are the other things that people said:

A puppy

At the moment I am quite happy

Attend more events if they were available.

be more indepentant and achieve more Qualifications

Be nicer about different people

be somewhere different

Better health - keep getting abcess on a regular basis

Change day services

Change staff

change the rules and regs where he lives in the flats

Chef

Dont play x-box as much, get a full time job.

Everything!

Get a bath, don't like the shower Get a flat

Go on more trips on aeroplanes

Go to college all week

Go to Guidepost more regularly

Having better health. I don't like people telling g me about myhealth. I feel embarrassed if people say I am fat or my sugarlevels are too high.

Having friends and getting support in paid or volunteering work

Help mam to do more jobs around the house and to be healthy

Help people to play rugby

I don’t get on with a member of staff at my house so I wouldchange this

I have a good life and I would not want to change. I go toMarquis Way and I like it.


3/26

I wish I could travel independently but I have been assessed asneeding staff with me at all times whilst out of the house

I would if i could

I would like another day working at my Monday job.

I would like people to understand my needs better. I can't helpthe way I am. Everybody is different. E.g. I can get frustrated inmeetings because people don't see my disability and I find ithard to communicate in the meetings and then I can get upset orleave the meeting. When this happens it effects the rest of myday and how I feel about the people in the meeting.

I would like to do more work with other people

I would like to get a part time volunteer job

I would like to go abroad after my kidney transplant.

I would like to meet more people and make more friends

I would like to spend the rest of my life with my boyfriends(George)

If it's me I can and could change everyone’s lives for life even ifwe are learning disability or growing old.

Learn to use a sewing machine and use machines more

Learning new things

Less pressure from sixth form

Less support

Live in a house with other people, I currently live alone

Make my house different

more activities

More groups to go to.

More help with home and job opportunities in my local area alsosocial opportunities

More Personal assistant hours

More staff so I can go out especially at weekends

More support in my flat

My name


4/26

Be happy

New legs.

See physio everyday

Stop making stupid mistakes

Stop people banging on my door and chucking stones at mywindow

Support others if I was able to

That's difficult, I would like to lose weight.

To access the communities more.

To be a good help at my church

to be a good volunteer To be able to attend more cooking courses

To be able to go out in the community on my own

To be able to mobilise around my home and outdoors more thanI can

To clean my room more regularly

To go away with my friends and my support worker To have more alicated hours for socialising with support.

To have more control over choices in my life (Andrew is non-verbal)

To help others more

To keep myself fit and healthy

To live in a better - to meet more friends

To live with my mam and for Sunderland football team to win theleague

To not drink

To remember to put clean clothes on and improve on domestictasks.

To see and keep in touch with friends who used to attend day

services with me in the past

to try to support my family as much as I can


5/26

Travel

Try harder at school

Visit the wider community more.

Wake up later

Win lottery

Wish I could see better

Wish my son didn't have learning disability

Would like to go out more if weather fine

Would like to make more things

You would like to be a pilot


6/26

What has changed in your life over the last 5 years

to make it better?

Here are the things many people said

20 people said there was no change

19 people said moving into their own house or flat

11 people said making friends

9 people said they didn’t know or weren’t sure

9 People said volunteering or a work placement

8 people said having more or better support

6 people said becoming more independent

5 people said going to college

4 people said getting a job

3 people said spending more time with family or family support

3 people said being able to speak out more

2 people said a breakout group

2 people said coming to drop-ins

Here are the other things people said

Actions stations (men's group), equal people, Talk-2-us

Am on the next steps programme and I feel I am getting lots from this.

At the moment I really like my key-worker. She has been working

with me for 2 years and I really like her. She helps me to do thethings I want to do.

Attending fulwell community resource centre, Leechmere


7/26

Becoming a learning disability national forum representative

Being a carer has changed my life

Coming to Talk 2 Us, good staff at home

Coming to the in team and Gateshead people and being on the Board

at YVC. Doing different things in the sewing room at fulwell day centre

Everytime my money is right and staff helping me to separate mymoney.

Everything. joining the classes/support groups I go to

Found myself a boyfriend, meeting new friends.

Getting engaged being with my fiance and helping my flatmate movein.

Getting more settled in my home, interacting with my carers

Go out more at night

Go to daybreak

Going to be an uncle

Going to day centre

Going to the Larchfield community site.

Got a rescue dog 'Simba'

Got my own home, I have a girlfriend, I have money to spen

Got own flat

Having a new grandchild

Having help to make life better

Having a fiance, getting engaged.

i am not sure - I haven’t been on holidays for years

I broke my leg it took a while to get better.

I do more sport exercise during the day, and I do photography

I don't stay in my room as much as I used to.

I don’t work I get out more. I went to London with my Direct Payment banked

hours. I have more choice and control now I have Direct Payments.


8/26

I had a hip replacement. Now I can walk without any pain.

I have joined the Harvesting Help group and made new friends

I have learnt to recognise that when I am not feeling too well. I havethe confidence to approach the staff for help and support.

I have made new friends I have more savings now, new senior who listens, a member of staff

has left who I felt I was uncomfortable around.

I have moved into my new home and I have been here 5 years. Ihave 24 hr support staff if needed where before I lived on my own

I have started at the breakout group and have new friends

I joined community links and involvement now also Gateshead

people.

I like coming to Gied post

I like going to the health focus group

I like where i am living

If I get bullied I can tell the staff and they help me straight away

Joined darts team

Joining mencap

Joining the darts team at the local club.

Just happy the way it is

Just moved into a better place with better staff

Knowing i have autism not just dyslexia

Ladybirds, (action stations), equal people, talk 2 us

Learning how to decide what I want to do in life.

Leaving Dilston College. I see my mam more. I can see my dadmore.

Left Durham centre

Living here

Living with shared lives carer

Meeting Sanet at YVC and gaining support

Mens group talk-2-us, getting a zero hour contract job at the stadium


9/26

of light

Met new people - moved to Larchfield/working

More friends, better place to live

More people to take me out and more self confident.

Moved back home with my mam Working at Birtley hub.

Moving to Anthony Road, improving my skills

Moving to Anthony Road, improving my skills and having more controlover my life

Moving to Anthony road, improving my skills, implementing and usingPECS system to help me to communicate better

Moving to our new flat in Daffodil house.

Moving to rosilyn

My home getting decorated particularly my room.

My support has improved

New people I meet

Not having to go to the Grove respite Nothing already good

Recently lost mother therefore at the moment life is hard and in aperiod of change

Recently my nephew was born

Seeing different people

Since I hear about cuts when I still work at Upsall to CumberlandResouce Centre thats in Middlesbrough.

Since I've moved back home with my Mam it's been better for me.

Still the same

Support after my wife died.

The staff

The support I receive that helps with my everyday needs

Unsure

Walk-in shower installed


10/26

We go out

Went on holiday on a plane

With staff support I will continue to live at Mendip Drive

Work part time now. Opportunity to volunteer-volunteering now. Also I

got more friends. Good support from a care agency. Youth club


11/26

What would make the biggest difference for you to lead the best life

possible?

Here are the things lots of people said

18 people said getting a job

12 people said nothing

10 people said they did not know

8 people said to have a boyfriend or girlfriend

8 people said more money

8 people said they are happy with their life as it is

6 people said getting their own flat

5 people said more understanding from support orprofessionals

5 people said to see more of their family

4 people said to get married

4 people said to have more support

4 people didn’t understand the question

4 people said friendship or meeting new friends

4 people said for people to listen to them

4 people said to be more independent

3 people said having a flat with or near friends

3 people said sports or exercise

3 people said to move from where they are now

2 people said continuing to get their current support


12/26

Here are the other things people said:

A blue badge for parking

Allotments Being more able to meet my friends for a game of pool

Also, to be able to go out alone at night and not feel scared.

Being motivated to go out independently and without promptsoff staff.

Better co-ordination

Carry on doing what I am doing Change my self

Closer banks

Do more training

Enjoy what I do in my spare time

For staff to be able to understand me.

For things to remain the same within my life Gateshead people

Cook better meals

Learning to play the guitar

Getting a more varied structure of activities in my week

Getting another day with my Monday job.

Better memory

Better mobility

Buses being on time when I go out

Give up drinking

Go out with friends and to be accepted in the community

Going out more to discos

Going to the centre on the bus going to church and visitingTony


13/26

He is happy the way are and has problems

Having good friends to talk to

Having people visit me more often

Having the support I need to keep developing my

independence and finding stranger friendships Helping people

I am looking forward to the day centre moving.

I have the best support from staff so i can access thecommunity and activities I like.

I want to go into supported living where I have my own frontdoor and don't have to share with others

I want to have more health focus groups I think the meetingsare good.

I would like help and support to live with my boyfriend

I would like to have some weekend respites at The Grove

I would to make difference be a member at the Wednesdayclub

If everyone around me was well If I could read and write

Just to be happy

Kept attending gym at Fulwell community resource centre

Learn to drive

Look after myself keep myself clean and tidy.

Make me better

Making new friends at the Wednesday club at Wesley Church

More allocated hours.

More buses

More choice, things that you can decide for yourself

More college

More college to see my friends

More help with my money


14/26

More opportunities like going out more

More social activities to meet people so I am not sociallyisolated and rely constantly on the paid staff that support me.

My kidney transplant

Nana stop worrying to me and keep quiet Need more advice

New legs (and new job - part-time)

Not having epilepsy

Owning a car

Peace and quiet

Places and social events where I could meet men Saving up money to do nice things

Social outlet

Win the lottery. I would like to go to South Africa to visit familybecause I was born there.

Stay healthy and keep fit

To be able to do things on my own without being held back To be able to live with my parents on a permanent basis

To be everybody's enjoyment in their world.

To be list and 12 hours clock - easier to understand time-tablesif people in shops would listen to people with learningdisabilities

To continue the way I am now as I am happy

To do everyday things e.e do the dishes and dry them

To do more volunteering

To enjoy every day

to get rid of my debt

To go our when I want to, to continue with living at AnthonyRoad and for me to continue to keep in contact with my family,

having over night stays

To go out more


15/26

To go out when I want to

To go shopping with friends

To have transport of my own

to know more people

to look after my sisters as much as possible

have children

To participate in more activities as i like new challenges

To work more

Walking

Win the lottery

Wish I didn't have learning disability

Wish my son didn't have learning disability


16/26

What things are important about where you live?

Here are the things that lots of people said

49 people said shops

36 people said family or family support

30 people said friends

19 people said busses or transport

16 people said to feel safe

9 people said living in a nice or nice and quiet place

8 people said good neighbours 7 people said having their own room

8 people said having their own place or living with friends

8 people said nothing, not sure, didn’t know or couldn’t think

6 people said the pub

5 people said places to eat

4 people said being safe 2 people said places to meet new people

Here are the other things that people said

Nobody can just walk in there are camera's for safety

A roof over my head, good food to eat, people I can talk to,work in different areas - I feel safe here in Larchfield.

Access to the building

Affordable

Being happy, and living there and having the support aroundme

Being more independent


17/26

More buses needed.

cameras/security

Can get help when needed

Clean

clearing up the house

Close to church and a bus stop. Close to brother and family

Close to family - less traffic more police on the beat - close tobanks - good bus service

Close to the day centre I attend every day

Close to the town

College, doctors, dentist Comfy, warm friendly staff, have the feeling of independence.

Concierge staff

Darts at the local pub, shopping centre, bus

Easy to get to workshops and voluntary work ( I can walkthere)

Enough support I like Dog

Arts and crafts.

Gateshead people

Good area near bus routes and Gateshead town

Good facilities for shopping entertainment and socialising

Playstation 4 Happy because of the the Management and key person

happy life there, seeing my parents

Happy with staff and other tenant. Like the area.

Having a nice comfortable bed to sleep in

Having a park and duck (quiet)

help from staff, independence, going out.

helping out in the house


18/26

I can get the taxi and transport because my sister is at work.

I go out I have 2 voluntary jobs nearby

My staff support me to go out.

I know the area and places nearby.

I was born in Middlesbrough

I like helping out around the house

I live by myself, I have family who live in Co. Durham

i live with people i get on with and have known for many years

I need to an area that I feel safe and not get bullied

I need to feel safe and protected

I used to go to the swimming baths

It is a lovely area, with nice friendly neighbour's

It is a lovely quiet area

It is important that other people can't come in my room.

It is important that I live near my family and my owncommunity. Having my own space

It is important to live near my day service. It is important thatI live in my own community

It's alright. I love it

It's nice and relaxing

I like the staff

Live in a friendly place

Living in Daffodil House - I enjoy it Living with others

Local bank

Money

My brother lives close. I live near gateshead. I live nearTeam valley

My home My personal things in there

My food, the workshop


19/26

My independence and getting around the house

My support staff to support me in anything I choose to do.

Near local town and not far from place. Have to go in the car,but still not far from places.

Family bedroom. Good staff

I've lived there since I was born

No I don't like area

Laundry

Parks

Peaceful and quiet and no problems People in the community are help people with learning

disabilities

Places to socialise

Doctors, social services building, hospital

Being cared for complaints and talked about and reportedrepairs are completed.

School

Schools, low crime

Sports centre

Bank, close to these places

Post offices) (doc's)

Bingo

Library

Staff available for support

Support from people close to you e.g. friends

That I feel safe and get along with the people I live with

The area and local amenities

The people and the surroundings The staff that help me

The support I receive that helps with my everyday needs


20/26

Live in a quiet area, nest to a church and I like that

Things for people with learning disabilities to do

Lots to do, workshops.

To being community and interesting in everyone's vision in to

the father To have consistent staff support/same staff being included in

the community access to public transport.

TV

Skate park

Working on the site


21/26

People who said yes to whether they thought they had the same

chances as someone without a learning disability said it was

because

Here are the things a number of people said:

14 people said because their staff or support helps them

6 people said they did not know or were unsure

4 people said because their friends help them

4 people said because they are independent or feel in charge oftheir life

3 people said they think so

3 people said they feel equal or get treated the same as anyoneelse

2 people said because a family member helps them

2 people said because everyone should be treated the same 2 people said because they have a voluntary job

Here are other things that people said:

Because I make my own choices and because I have abilities todo things myself.

Because I often do the right thing

Because I'm doing things I like doing and if you like doing thingskeep doing it. We all have to take risks in life.

Because we like to be to same as other people Because we would like to be as other people


22/26

Can't understand question

Everyone has the same chances

Feels everyone is equal

I always feel I know what is happening around my area

I am able to do what I want to and happy

I am treated the same way as anybody else would be treated.

I do lots of things

I don’t like being left out

I feel happy with my life

I feel more open in myself

I feel we all have to be equal.

I get lots of help from people.

I am very rarely in the house bored with nothing to do

I have shared lives

I have work and socialise and support when needed

I participate in all daily activities, I have full control over my life

and how I choose to live it

I think people without a disability don’t understand what we gothrough

If anybody upsets me I can tell the staff

I'm alright

It is the support I get and help

Most of the time I would say I have the same chances as peoplewho don’t have a learning disability

My advocate helps me

My mobility stops me from doing some things

My tutor

people are treat equally and given equal support


23/26

People who said no to whether they thought they had the same

chances as someone without a learning disability said it was

because

Here are the things several people said:

10 people said because they have a disability or learning disability

3 people said because they don’t have or can’t get a job

2 people said they don’t know

Here are the other things people said:

A lot of services have closed.

About the same

Because i don't easily understand what is being said straight awayand i don't look disabled so no concessions are made

Because I don't have a house of my own

Because I have not had the opportunity to choose where I live and

who I want to live with. I want my own home like my brother, not tolive with other people.

Because I sometimes don’t understand what people want me to do

Because I sometimes feel my ability to do things holds me back, ican't just go out and do things, book a holiday etc

Because I'm thick

Because of circumstances

because other people think i can't do stuff but i can and talking tome as a child


24/26

Because some people can travel further than I am able toindependently go.

Because the might be unsure what they want to do.

Because you cannot do the same thing as people who have not gota learning disability.

Being treat the same as anyone else, changing attitudes towardsPWLD

Bit of both of any kind.

Can't do my own shopping have to wait for staff to come and help

Can't go out with friends like my brother does

Education, Friendship, Relationship

Everyone is different and treat bad sometimes

Everyone's different but have chance to do what they can.

Hard to find paid work because of learning disability.

Hard to get a job. I miss working

Harder to get things due to now knowing what to do

Helpful people, I like to help people

I can’t learn like others do

I enjoy my life but need support.

I feel as though I've been let down most of my life through notgetting the right help at school

I feel I am treated fairly in my life

I get mixed up with money

I like to be my own boss. I don't like people telling me what to do.

I think people who do not have a learning disability have morechoice in life.

I think we often miss out on the same opportunities as others when itcomes to finding the right work and building the same relationship.

Also generally understanding regular documentation is morechallenging.

Information

Information isn't easy for people with learning disabilities e.g. times


25/26

tables

Living where I don't want to live

More less able

My individual/personal budget has decreased meaning I am

depending on my mum more, so no I don't. Any oppurtunities I getcomes through organisations I am already involved in or I search forthem myself.

Only sometimes I feel I do

People see us as different

People with a learning disability find things hard so they may needsupport and access to work only for a year. People need it all the

time People without learning disability have more choice themselves

There are no dating agencies or friendship clubs in my area forpeople like me

Want to go out more with friends

Want to go out myself

We need more community facilities where I don't become sociallyisolated.


26/26

People who didn’t answer yes or no to whether they thought they

had the same chances as someone without a learning disability said

it was because

8 people said they did not know or were not sure

The other answers people gave were:

A right

About the same Bit of both of any kind.

Can't understand question

Depends, some people can be funny. I'm quiteindependent but others who need more help.

I think I get the same choices.

He was born with learning disability Not all the time

Only sometimes I feel I do

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100 Voices for Self Advocates Lists Handout