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2 www.diabetes.org/advocacy 1-800-DIABETES
General Advocacy Goals
• Increase federal and state funding for diabetes prevention, treatment and research
• Prevent diabetes and improve the availability of accessible, adequate and affordable health care
• Eliminate discrimination against people with diabetes at school, work, and elsewhere in their lives
3 www.diabetes.org/advocacy 1-800-DIABETES
From General Goals to a
Legislative Agenda Federal and state legislative priorities are:
• Determined annually
• Drafted by the Legislative Subcommittee, a sub-group of the Advocacy Committee, with input from Diabetes Advocates around the country
• Approved by Advocacy Committeeand Board of Directors
4 www.diabetes.org/advocacy 1-800-DIABETES
Criteria For Determining
Legislative Priorities
• Adherence to ADA mission and intended impact on people with diabetes
• Adherence to ADA Strategic Plan
• Political reality and actual impact on people with diabetes
• Impact on and support of diabetes community and other stakeholders
• Availability of resources
5 www.diabetes.org/advocacy 1-800-DIABETES
Three Tiers of Priorities • Tier I - Highest priority activities;
ADA involved as a key player, either leading efforts or as a critical partner.
• Tier II - ADA consistently engaged, with less expenditure of resources; might lead or could be one of many partners in a wider coalition effort.
• Tier III – Activities to which ADA will lend its name, but will not play a major or very proactive role.
6 www.diabetes.org/advocacy 1-800-DIABETES
2010 Federal Tier I Priorities
Federal Funding • CDC: Division of Diabetes Translation• NIH: National Institute of Diabetes and
Digestive and Kidney Diseases• Special Diabetes Program• Innovative funding opportunities in other
federal agencies
Health Reform Passage/Implementation• Coverage• Quality• Prevention
ADA Diabetes Bills• Diabetes Prevention Act• Diabetes Screening and Medicaid Savings
Act
7 www.diabetes.org/advocacy 1-800-DIABETES
Health Care Reform:Ongoing Efforts
Ensure pending federal health care reform legislation meets the needs of people with, and at risk for, diabetes:
•Fighting discrimination faced by people with diabetes in the insurance market.
•Including wellness and prevention provisions within health reform.
•Grassroots health reform campaign including e-mail, social media, webinars, and videos:
– brought over 63,000 people to an issue-focused website
– resulted in 28,000 people signing a petition calling for health reform.
8 www.diabetes.org/advocacy 1-800-DIABETES
2010 Federal Tier II
PrioritiesDiabetes Bills
• Eliminating Disparities in Diabetes Prevention and Access to Care Act
• Gestational Diabetes Act
• Diabetes Treatment and Prevention Act
Stem Cell Research
Wellness & Prevention
• Nutrition
• Physical Activity/Fitness
• Obesity Reduction
9 www.diabetes.org/advocacy 1-800-DIABETES
2010 Federal Tier II
PrioritiesDiabetes Relevant Issues
• Congressional Budget Office (CBO) Scoring on prevention cost/benefit
Health Entitlement Programs
• Medicare
• Medicaid
Discrimination Issues
10 www.diabetes.org/advocacy 1-800-DIABETES
2010 Federal Tier III
PrioritiesDiabetes & Co-morbidity Bills
• Including but not limited to: Home Infusion Therapy, Catalyst Bill, Prosthetic Parity and School Nurse Funding (Pilot)
Diabetes Relevant Issues
• National Diabetes Coordinator
11 www.diabetes.org/advocacy 1-800-DIABETES
Influencing State Public Policy
• State priorities are outlined generally through the national committee structure
• However, the actual activities in each state should reflect the individual needs, opportunities and threats in that state.
• Legislative activity for each state should be determined through discussions between the volunteer Advocacy Chair and the staff State Advocacy Director
12 www.diabetes.org/advocacy 1-800-DIABETES
2010 State Tier I Priorities
Health Insurance Coverage/Protection
• Diabetes Cost Reduction Act (passage and preventing rollbacks)
• Medicaid Coverage
Diabetes Prevention & Control Program Funding
School Diabetes Care
Private Driver’s Licenses
• Oppose Laws and/or State Action with Blanket Treatment of People with Diabetes
13 www.diabetes.org/advocacy 1-800-DIABETES
2010 State Tier II
Priorities Health Promotion
• School Based (health education, physical education, healthy foods)
• Menu Labeling
State-Level Research Activities
• Diabetes-Specific and Stem Cell Research
• Protecting Stem Cell Research
14 www.diabetes.org/advocacy 1-800-DIABETES
2010 State Tier III
Priorities
Other Relevant Diabetes Research, Prevention, and Discrimination Issues
•Smoke-Free Environment
15 www.diabetes.org/advocacy 1-800-DIABETES
Legal Advocacy
Work to end discrimination in:– Schools and Day Care Centers– Employment– Correctional Institutions– Public Accommodations
Four step approach: – Educate– Negotiate– Litigate– Legislate
Training and resources:– For lawyers, health care professionals,
and advocates – Address ways to prevent discrimination
or stop ongoing discrimination.
16 www.diabetes.org/advocacy 1-800-DIABETES
AdvocacySuccesses
Restrictions lifted on federal funding for embryonic stem cell research
The American Recovery and Reinvestment Act (stimulus bill), resulted in an additional:•$10 billion for NIH•$1 billion for prevention & wellness at DHHS•$19 billion for health information technology. •$87 billion to states to make up for Medicaid shortfalls.
Reauthorization and expansion of SCHIP: •providing health insurance to seven million children of families who otherwise could not afford coverage.
Strengthened public policies that address prevention through health promotion:•13 state bills passed to improve nutrition & physical education. •Menu labeling laws passed in eight jurisdictions. •Agreement reached on federal menu labeling legislation that is pending as a part of the larger health reform package.
17 www.diabetes.org/advocacy 1-800-DIABETES
Nonprofit Lobbying
As a nonpartisan, nonprofit 501(c)(3):
We cannot:• endorse candidates• show preferential treatment to elected
representatives or political parties
We can: • give our issues preferential treatment• meet with public officials• invite public officials to our events as
long as we follow specific rules
18 www.diabetes.org/advocacy 1-800-DIABETES
Sharing your Stories How does diabetes affect you?
• ADA needs compelling stories from you and others in your community
• Stories are a great way to help illustrate our message to the public
• Members of Congress and state officials are always interested to know who diabetes effects and how
Tell your story at: stopdiabetes.com
19 www.diabetes.org/advocacy 1-800-DIABETES
AdvocacyAction
Center We need your voice!
• Sign up to receive advocacy updates and alerts at:
– www.diabetes.org/TakeAction
• Timely information on federal and state legislation:
• Suggested messages for elected officials
• Email alerts so you can make your voice heard on time-sensitive issues
20 www.diabetes.org/advocacy 1-800-DIABETES
Community Leadership
Board Support
Support ADA’s advocacy agenda • Respond to state and federal Action
Alerts• Attend State Lobby Days and Call to
Congress
Recruit new Diabetes Advocates• Provide opportunities for people to sign
up and take action at every event• Recruit health care professionals and
attorneys• Identify community members with
relationships with elected officials
Write letters to the editor and Op Eds
Visit your elected officials as a Diabetes Advocate
21 www.diabetes.org/advocacy 1-800-DIABETES
Questions?
Go to: www.diabetes.org/advocacy
Call your State Advocacy Director:
1-800- 676- 4065Randi Chapman x 3082 [email protected] De La Garza x 6017 [email protected] Habbe x 3457 [email protected] Lanier x 4364 [email protected] Keller x 7207 [email protected] Murdock x 7415 [email protected]