1 The Prime Minister’s Challenge on Dementia & 2013, G8 Dementia Legacy Making it Happen Gill Ayling Head of Global Action Against Dementia Department

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The Prime Minister’s Challenge on Dementia &

2013, G8 Dementia Legacy Making it Happen

Gill Ayling Head of Global Action Against Dementia

Department of Health, UK

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• The Key Challenges• The Dementia

Journey

1.The Prime Minister’s Challenge on Dementia

2.Progress to date• 2013, G8 Legacy –

Making it Happen• Q&A

Global Action Against Dementia

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Key Challenges

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The Dementia Journey

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• Dementia is a growing global challenge & is one of the most important health and care issues the world faces as the population ages

• Worldwide, 44 million people have dementia, with almost two thirds

living in low- and middle-income countries. Every year, there are 7.7 million new cases. No government can ignore the problem but nor can any organisation – dementia is a challenge for us all.

• In England there are 670,000 people who have dementia, this number will double in the next 30 years

• Among the over 55s, dementia is feared more than any other illness

• Costs an estimated £19 billion a year – higher than the costs of cancer, heart disease or stroke

• National Dementia Strategy Feb 2009

• Prime Minister’s Challenge March 2012

• G8 Summit December 2013

• Global Action Against Dementia 2014 onwards


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Dementia: The PM’s Challenge

• Health and Care

• Dementia Friendly

Communities

• Research


The Prime Minister’s Challenge on Dementia

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Progress to date: Health and Care

• NHS England national ambition on diagnosis rates: Aim by 2015 for two-thirds of people with dementia to have a diagnosis, with appropriate post diagnosis support

• Commissioning for Quality and Innovation: Over 4,000 referrals a month which will contribute to improving diagnosis rates for dementia

• Direct Enhanced Service: Changes to GP contract from 01 April 2014, to incentivise more pro-active targeting of people with dementia risk

• £90m package to improve access to diagnosis (DES/CQUIN)

• £50m funding to create dementia-friendly environments in health and care


Progress to Date: Health and Care

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Dementia Friendly Communities

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We learnt from the Japanese model who have a great sense of community and used this to raise awareness and support for people in communities


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• Dementia Friends: Almost 5,000 people signed up to train as volunteer Dementia Friends Champions. Over 90,000 Dementia Friends. Leading businesses to train 190,000 Dementia Friends

• Dementia friendly places: Over 50 communities signed up as working towards becoming dementia-friendly.

• Dementia Friends Campaign: launching Spring 2014.

• Dementia friendly finance services charter: launched in October 2013



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Dementia Research

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We learnt from the Japanese model who have a great sense of community and used this to raise awareness and support for people in communities deliver “s”


10Global Action Against Dementia

Research

• Government funded dementia research in England

has almost doubled, from £28.2 million in 2009/10 to

£52.2 million in 2012/13.

• £20 million funding awarded in July 2012 to six projects

looking at areas including living well with dementia,

promoting independence and managing agitation.

• £9.6m investment in brain scanning by MRC for a pilot

study involving 8,000 volunteers.

Progress to Date: Research

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2013, G8 Dementia LegacyMaking it Happen

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We learnt from


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• The G8, otherwise known as the Group of Eight, is an assembly of world leaders who meet annually to discuss global issues.

• Each year, the G8 holds a Leaders’ Summit, in which Heads of State and Government of member countries meet to discuss and attempt to reconcile global issues.

• Although the G8 is best known for its annual summits, it works throughout the year to tackle important contemporary topics such as the economy and climate change.

• The G8 discusses and creates global policies. However, adherence to these policies is not obligatory, and other countries can decide whether or not to obey.


UK Presidency of 2013, G8 Scope of our Legacy

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• Support UK in establishing Envoy – stimulate innovation and attract finance

• Expand dementia research funding

• Improve information sharing and open access

• Develop a co-ordinated global research action plan

• Review and improve incentives for research.

• Support improvements in care and services

• Through civil society, reduce stigma, exclusion and fear

• Use legacy events to develop and embed partnership working

• Take stock in US in February 2015


What the Declaration Requires

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Where are we right now?

• Envoy appointed & most of Council identified

• First meeting of the World Dementia Council

• All G7 countries engaged, bilaterals held with France & Germany

• Group formed of countries holding legacy events

• Ten non-G7 countries, including China and India, asked to nominate reps for UK legacy event

• Working with OECD and others to provide a stronger platform for information sharing

• Working with national & international Alzhiemer’s & NGOs to establish a Global Alzheimer’s and Dementia Action Alliance


Progress to Date

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• Big tent• Distributed leadership• Keep sightlines high• Build sustainability


Making it HappenKey Principles

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• The regulatory environment

• The role of reimbursement, pricing and incentives

• The scope for greater collaboration

• How to foster more enterprise & talent

• Societal contribution


Main Areas of Focus

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• Summit has given global community renewed sense of purpose and focus

• We should be able to make quite rapid progress on preventative science and improved care & support

• A number of countries have strong research infrastructure

• On disease modification, answers may lie in existing research programmes for other conditions


Reasons to be Cheerful

18 Global Action Against Dementia

Documents

1 The Prime Minister’s Challenge on Dementia & 2013, G8 Dementia Legacy Making it Happen Gill Ayling Head of Global Action Against Dementia Department