1 Slide 1 Follow-up of Refer Babies in the Universal Newborn
Hearing Screen Program: Strategies for Family Support Brenda
Sommer, RN Pediatrix Newborn Hearing Screen Program Sunrise,
Florida Follow-up of Refer Babies in the Universal Newborn Hearing
Screen Program: Strategies for Family Support Brenda Sommer, RN
Pediatrix Newborn Hearing Screen Sunrise, Florida Slide 2 2 Faculty
Disclosure Information In the past 12 months, I have not had a
significant financial interest or other relationship with the
manufacturer(s) of the product(s) or provider(s) that will be
discussed in my presentation. This presentation will (not) include
discussion of pharmaceuticals or devices that have not been
approved by the FDA or if you will be discussing unapproved or
off-label uses of pharmaceuticals or devices. Slide 3 3 Goals of
the Universal Newborn Hearing Screen Program: 1. Hearing screen
within first month of life 2. Audiological diagnosis by three
months of life 3. Intervention by six months of life Slide 4 4
Hearing Screen is done=Refer Slide 5 5 Success in Screening and
Providing Early Intervention for our Babies Success begins in the
hospital capture rate, missed decrease false positive parent
education for late onset hearing loss data management is essential
Close the gap between the baby with a refer and
diagnosis/intervention Slide 6 6 Education is critical. Importance
of pre-hearing screen education: verbal and visual Importance of
family involvement during the hearing screen Importance of support
from the medical team: pediatrician, nurses Importance of
post-hearing screen education and family support Empower family
with knowledge. Slide 7 7 Refer Baby Follow-up: Verify parents
contact information with them Set up audiology appointment Notify
Pediatrician Provide parents with written information including:
audiologists name address phone number directions to office date
and time of the appointment instructions for preparation of infant
for testing Perform state reporting Call to remind parents of the
appointment Slide 8 8 So Many Obstacles. Change of babys last name
Change of Residence/Phone Number Change Parents (i.e. Adoption,
Grandparents) Change of Health Status Change of pediatrician Lack
of Audiology Resources Providers who Refuse Medicaid Babies Parents
Fear Bill Collectors; ignore letters Lack of transportation Lack
Understanding the Need to Follow Up Language Barriers Emotional
Response of Family Slide 9 9 Family Response to Refer Feelings of
loss Depression Anger Blame Denial Guilt Sense of powerlessness
Slide 10 10 Team Effort to Support Family Newborn Hearing Screen
Program Audiologist Pediatrician ENT EHDI Programs Community
Resources Other families, support groups Slide 11 Ineligible
Medical Constraints Parent Refusal Death Transfer Out LOST Send
Certified Letter Not Screened Infants Tracked Abnormal Normal
NEWBORNS Screened Not Screened Infants Tracked Ineligible Medical
Constraints Parent Refusal Death Transfer Out SCREENING By one
month of life Slide 12 Abnormal Normal Infants with Risk Factors to
Audiologist Abnormal Normal Diagnosis Process Ineligible Medical
Constraints Parent Refusal Death Transfer Out LOST Send Certified
Letter DIAGNOSTIC By three months of life Slide 13 Confirmed
Abnormal Normal Diagnosis Process Ineligible Medical Constraints
Parent Refusal Death Transfer Out LOST Send Certified Letter
DIAGNOSTIC By three months of life Slide 14 No intervention
Ineligible Medical Constraints Parent Refusal Death Transfer Out
LOST Send Certified Letter Intervention Treatment Intervention Long
Term Follow-up Ineligible Medical Constraints Parent Refusal Death
Transfer Out LOST Send Certified Letter INTERVENTION Confirmed
Abnormal By six months of life Slide 15 15 Screen Today for a
Better Tomorrow Slide 16 16 Reference List
http://www.jcih.org/jcih2000.pdf
http://www.jcih.org/jcih2000.pdf
