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1 Connecticut Concussion Tracker (CT) 2 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut 75 N. Eagleville Road, U-3156 Storrs, CT 06269-3156 860 486 8338 [email protected] Steven A. Demurjian, Ph.D., Professor Computer Science & Engineering Department University of Connecticut 371 Fairfield Road, U-4155 Storrs, CT 06269-4155 860 486 3719 [email protected] Thomas P. Agresta, M.D., M.B.I, Professor Department of Family Medicine – Medical Informatics University of Connecticut Health Center 263 Farmington Avenue October 9, 2014

1 Connecticut Concussion Tracker (CT) 2 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut

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Page 1: 1 Connecticut Concussion Tracker (CT) 2 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut

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Connecticut Concussion Tracker (CT)2

Joanne Conover, Ph.D., Associate ProfessorDepartment of Physiology and Neurobiology

University of Connecticut75 N. Eagleville Road, U-3156

Storrs, CT 06269-3156860 486 8338

[email protected]

Steven A. Demurjian, Ph.D., ProfessorComputer Science & Engineering Department

University of Connecticut371 Fairfield Road, U-4155

Storrs, CT 06269-4155860 486 3719

[email protected]

Thomas P. Agresta, M.D., M.B.I, ProfessorDepartment of Family Medicine – Medical Informatics

University of Connecticut Health Center263 Farmington Avenue

Farmington, CT 06030-6029860 679 3198

[email protected]

© Copyright 2014, 2015, J. Conover, S. Demurjian, and T. Agresta, University of Connecticut.

October 9, 2014

Page 2: 1 Connecticut Concussion Tracker (CT) 2 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut

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Suite of Applications for Concussion Tracking in support of new CT Law HB5113 Mobile and Web Versions Single system for all CT Schools

• Nurses, Trainers, Coaches, Principals, etc.

Provide Additional Policy/Regulatory Capability Data Collection: Causes, Symptoms, Follow-

up, Return to Class/Participation Track Students from K to 12 Establish Longitudinal Repository Advanced Reporting Capabilities for both

Schools and State

Objectives of (CT)2

Page 3: 1 Connecticut Concussion Tracker (CT) 2 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut

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Initial Screens

*

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Selecting State/City/Town/Region/District/School

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List of All Students/User and Summary

Page 6: 1 Connecticut Concussion Tracker (CT) 2 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut

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Remaining Summary Screens

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Basic Student Info and Cause of Injury

Page 8: 1 Connecticut Concussion Tracker (CT) 2 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut

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Basic Student Info and Cause of Injury

*

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Symptoms within 48 hrs

*

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Following up with Student

*

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Returning to Learn and/or Play

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Reporting Capabilities

Ability to examine data by variety of factors Age Gender Symptoms

Duration Sport

Football, Soccer, Basketball, Hockey, etc. Days lost Region/School

Longitudinal Analysis Tracking trends over time

Under Current Development by M. Morton, CSE4701 Intro to Databases, Honors Project

Page 13: 1 Connecticut Concussion Tracker (CT) 2 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut

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Sample Reports

Page 14: 1 Connecticut Concussion Tracker (CT) 2 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut

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Sample Reports

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Sample Reports

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Next Steps for (CT)2

Establishing (CT)2 Team Involved UConn/UCHC Personnel Department of Education Representatives Identify Schools to Participate in Early Stages

Requirements Gathering for Security Access Survey schools - who enters or accesses data Design security/role based access

User Centric-Design and Implementation Session Reports, user interface, content modifications Deploy Test Version by Dec. 1, 2014 to gather input Objectives:

Put into Hands of Potential Users Admin, Nurses, Coaches, ADs, etc. Adjust UI and Process

Page 17: 1 Connecticut Concussion Tracker (CT) 2 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut

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Current (CT)2 Team

Physiology and Neurobiology Dr. J. Conover/Ms. R. Acabchuk (PhD student)

Computer Science & Engineering Dr. S. Demurjian, Ms. X. Shao (PhD student), Joshua

Diffenderfer (MS Student), M. Morton (Ugrad) Kinesiology

Dr. Lindsay Distefano Nursing and Public Engagement

Dr. Carol Polifroni School Nurse

Ms. L. Demurjian, RN, MBA, Nurse Medical Doctor & Medical Informatics

Dr. Tom Agresta, MD, MBI

Page 18: 1 Connecticut Concussion Tracker (CT) 2 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut

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Interactions with Uconn Athletic Training

Identify Collaborators from UConn AT Potential Usage of (CT)2 by UConn AT

Taking the App into the Field User Interface and Usability Testing Sharing the App with Members at Schools

Nurses, Coaches, Trainers, etc. Suggestions for Changes/Enhancements

What are Other Potential Collaborations?

Page 19: 1 Connecticut Concussion Tracker (CT) 2 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut

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Next Steps for (CT)2

Deploy Wider-Scale Pilot Version Develop Pilot rollout and evaluation strategy Pilot Version Very soon Android application Secure Data Exchange and Encryption in Database UI Design, Performance, and Load Testing Wide Range of Schools – Urban, Suburban, Rural,

Public, Private, etc. Identify Stakeholders and Obtain Feedback

Plan Later Increments Statewide Deployment in Fall 2017 (Very Optimistic) Add iOS version Add Canned and Ad-hoc Reporting Add additional data capture screens to facilitate more

robust reports (total participation in each sport, out of school sports participation – other as requested)

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Connecticut Concussion Tracker Vision

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Other Relevant Issues for (CT)2

Data Retrieval Security Requirements Role-Based Authentication/Access Control Identity Management  Data Storage Requirements 

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Data Retrieval 

Enabling schools to self-evaluate and identify areas for improvement De-identified incident level data available for

canned and ad hoc reports by authorized school users.

De-identified aggregate & comparative reports available for canned and ad hoc reports by authorized school & state users.

Who has access to what type of reports would be determined in concert with Department of Education during project period

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Security Requirements for (CT)2 Encryption: All

Communication (mobile app or web version)

FERPA Compliance:Insure Concussion Records are Available to Parents/Students

HIPAA Compliance: Electronic Medical Records to establish a Backend Repository

Mobile App No Data left on

Phone Encrypted

Transmission Web App

https No Cookies

Backend Storage All HIPAA Fields

Encrypted Take Advantage of

EMR Secured Report

Environment

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Role-Based Authentication/Access Control

Assigning and Maintaining User Privileges: Who will have access to various features such as view

data, update/delete record and close incident? Who will create, assign & manage Admin accounts? Who will assign and maintain user roles? Plans for turnover.

Generic Security Levels: Security Administrator Simple User Advanced User

Identifying Potential Users: Principal, Nurse, Athletic Trainer, Coaches, Administrators, Athletic Director

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Identity Management 

Student ID Maintenance Consider requirement of tracking multiple

incidents for individual students longitudinally If so, student identification be tracked across

schools Long term goals

Track diabetes, asthma, allergies, other health issues

Integration with student health record for complete healthcare record

Page 26: 1 Connecticut Concussion Tracker (CT) 2 Joanne Conover, Ph.D., Associate Professor Department of Physiology and Neurobiology University of Connecticut

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Data Storage Requirements 

Review/finalize App specifications, security, system admin, student ID management, data storage

Items to be determined Intellectual property: work UConn Tech Trans Potential expansion – other states or CT colleges Server location options:

Initial development and staging at UConn Potential hosting of production at UConn (hosting expense

for HIPAA compliance, etc.) Transfer production to State servers

Support staff Software maintenance Yearly updates/improvements