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Eelen S. MA 1 , , Bauwens S. MA 2 , Distelmans W. MD PhD 2 , Hensmans B. MSc 3 , Vanderlinden L. BA 4 , Verzelen A. MA 5 , Mathys R. MD 5 1. 1. Cédric Hèle institute vzw, Minderbroedersgang 12, 2800 Mechelen, Belgium Cédric Hèle institute vzw, Minderbroedersgang 12, 2800 Mechelen, Belgium 2. Academic Hospital Free University of Brussels, Oncology Centre, Laarbeeklaan 101, 1090 Brussel, Belgium 2. Academic Hospital Free University of Brussels, Oncology Centre, Laarbeeklaan 101, 1090 Brussel, Belgium 3. Adecco, Medical and Science Europe, Noordkustlaan 8, 1702 Groot-Bijgaarden, Belgium 3. Adecco, Medical and Science Europe, Noordkustlaan 8, 1702 Groot-Bijgaarden, Belgium 4. University Hospital Catholic University Louvain, Social Service, Herestraat 49, 3000 Leuven, Belgium 4. University Hospital Catholic University Louvain, Social Service, Herestraat 49, 3000 Leuven, Belgium 5. ZNA Middelheim, Oncology Centre, Lindendreef 1, 2020 Antwerpen, Belgium 5. ZNA Middelheim, Oncology Centre, Lindendreef 1, 2020 Antwerpen, Belgium The The Cédric Hèle institute Cédric Hèle institute Flemish* Institute of Psychosocial Oncology BACKGROUND BACKGROUND The need to expand and increase the quality of psychosocial care in oncology is The need to expand and increase the quality of psychosocial care in oncology is substantial, also in Belgium. substantial, also in Belgium. Not enough cancer patients nor their relatives have access to professional Not enough cancer patients nor their relatives have access to professional psychosocial support. psychosocial support. Moreover a lot of caregivers feel the need to deepen the psychosocial dimension of Moreover a lot of caregivers feel the need to deepen the psychosocial dimension of their interventions. their interventions. A team of specialised caregivers shared their knowledge and started to exchange their A team of specialised caregivers shared their knowledge and started to exchange their experiences and best experiences and best practices in the field of psychosocial oncology. practices in the field of psychosocial oncology. Under the impulse of the Flemish League against Cancer (Vlaamse Liga tegen Kanker), an Under the impulse of the Flemish League against Cancer (Vlaamse Liga tegen Kanker), an institute for institute for psychosocial oncology was founded: the Cédric Hèle institute. psychosocial oncology was founded: the Cédric Hèle institute. The Cédric Hèle institute the ‘Cellekes’ (European Cultural Heritage), Minderbroedersgang 12, 2800 Mechelen, Belgium [email protected] www.cedric-heleinstituut.be METHODS METHODS The daily board of the institute is a multidisciplinary team of specialised The daily board of the institute is a multidisciplinary team of specialised caregiviers. caregiviers. Objectives and methods are discussed, in close cooperation with the care providers, and Objectives and methods are discussed, in close cooperation with the care providers, and policy agents. policy agents. Trainingcourses are evidence-based. Moreover, the experience and didactic skills of the Trainingcourses are evidence-based. Moreover, the experience and didactic skills of the trainers are monitored. Same day assessment is always performed and taken into account. trainers are monitored. Same day assessment is always performed and taken into account. RESULTS RESULTS The Cédric Hèle institute already organised several courses for The Cédric Hèle institute already organised several courses for different target groups. different target groups. A few examples are: A few examples are: - trainingsessions for social workers trainingsessions for social workers - communication training for nurses communication training for nurses - workshop ‘breaking bad news’ for doctors workshop ‘breaking bad news’ for doctors - in association with the Flemish universities, the Institute in association with the Flemish universities, the Institute launched in 2006 a two- launched in 2006 a two- year trainingprogramm in psycho-oncology for masters in psychology year trainingprogramm in psycho-oncology for masters in psychology and medical doctors. and medical doctors. OBJECTIVES OBJECTIVES The Cédric Hèle institute has the following The Cédric Hèle institute has the following objectives: objectives: - Towards caregivers Towards caregivers organise and coördinate training in organise and coördinate training in psychosocial care psychosocial care create and support an inter- and create and support an inter- and intradisciplinary network of caregivers intradisciplinary network of caregivers inventory existing scientific research, inventory existing scientific research, encourage interesting research, and make the encourage interesting research, and make the results accessible to a broader audience results accessible to a broader audience - Towards cancer patients Towards cancer patients create a platform to communicate the create a platform to communicate the psychosocial needs of both the cancer patients, psychosocial needs of both the cancer patients, as well as their relatives as well as their relatives - Towards governmental institutions Towards governmental institutions identify and communicate needs in identify and communicate needs in psychosocial oncology psychosocial oncology ACKNOWLEDGEMENTS We thank the parents of Cédric for their believe in the institute. The Cédric Hèle institute could be founded thanks to the support of the national society ‘Vlaamse Liga tegen Kanker’ *Flanders is the Dutch-speaking part of *Flanders is the Dutch-speaking part of Belgium Belgium

, Eelen S. MA 1, Bauwens S. MA 2, Distelmans W. MD PhD 2, Hensmans B. MSc 3, Vanderlinden L. BA 4, Verzelen A. MA 5, Mathys R. MD 5 1. Cédric Hèle institute

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Page 1: , Eelen S. MA 1, Bauwens S. MA 2, Distelmans W. MD PhD 2, Hensmans B. MSc 3, Vanderlinden L. BA 4, Verzelen A. MA 5, Mathys R. MD 5 1. Cédric Hèle institute

Eelen S. MA1, , Bauwens S. MA2, Distelmans W. MD PhD2, Hensmans B. MSc3, Vanderlinden L. BA4, Verzelen A. MA5, Mathys R. MD5

1.1. Cédric Hèle institute vzw, Minderbroedersgang 12, 2800 Mechelen, BelgiumCédric Hèle institute vzw, Minderbroedersgang 12, 2800 Mechelen, Belgium2. Academic Hospital Free University of Brussels, Oncology Centre, Laarbeeklaan 101, 1090 Brussel, Belgium2. Academic Hospital Free University of Brussels, Oncology Centre, Laarbeeklaan 101, 1090 Brussel, Belgium3. Adecco, Medical and Science Europe, Noordkustlaan 8, 1702 Groot-Bijgaarden, Belgium3. Adecco, Medical and Science Europe, Noordkustlaan 8, 1702 Groot-Bijgaarden, Belgium4. University Hospital Catholic University Louvain, Social Service, Herestraat 49, 3000 Leuven, Belgium4. University Hospital Catholic University Louvain, Social Service, Herestraat 49, 3000 Leuven, Belgium5. ZNA Middelheim, Oncology Centre, Lindendreef 1, 2020 Antwerpen, Belgium5. ZNA Middelheim, Oncology Centre, Lindendreef 1, 2020 Antwerpen, Belgium

The The Cédric Hèle instituteCédric Hèle institute Flemish* Institute of Psychosocial Oncology

BACKGROUNDBACKGROUND

The need to expand and increase the quality of psychosocial care in oncology is substantial, also in Belgium. The need to expand and increase the quality of psychosocial care in oncology is substantial, also in Belgium. Not enough cancer patients nor their relatives have access to professional psychosocial support. Not enough cancer patients nor their relatives have access to professional psychosocial support. Moreover a lot of caregivers feel the need to deepen the psychosocial dimension of their interventions. Moreover a lot of caregivers feel the need to deepen the psychosocial dimension of their interventions.

A team of specialised caregivers shared their knowledge and started to exchange their experiences and bestA team of specialised caregivers shared their knowledge and started to exchange their experiences and bestpractices in the field of psychosocial oncology.practices in the field of psychosocial oncology.Under the impulse of the Flemish League against Cancer (Vlaamse Liga tegen Kanker), an institute forUnder the impulse of the Flemish League against Cancer (Vlaamse Liga tegen Kanker), an institute forpsychosocial oncology was founded: the Cédric Hèle institute.psychosocial oncology was founded: the Cédric Hèle institute.

BACKGROUNDBACKGROUND

The need to expand and increase the quality of psychosocial care in oncology is substantial, also in Belgium. The need to expand and increase the quality of psychosocial care in oncology is substantial, also in Belgium. Not enough cancer patients nor their relatives have access to professional psychosocial support. Not enough cancer patients nor their relatives have access to professional psychosocial support. Moreover a lot of caregivers feel the need to deepen the psychosocial dimension of their interventions. Moreover a lot of caregivers feel the need to deepen the psychosocial dimension of their interventions.

A team of specialised caregivers shared their knowledge and started to exchange their experiences and bestA team of specialised caregivers shared their knowledge and started to exchange their experiences and bestpractices in the field of psychosocial oncology.practices in the field of psychosocial oncology.Under the impulse of the Flemish League against Cancer (Vlaamse Liga tegen Kanker), an institute forUnder the impulse of the Flemish League against Cancer (Vlaamse Liga tegen Kanker), an institute forpsychosocial oncology was founded: the Cédric Hèle institute.psychosocial oncology was founded: the Cédric Hèle institute.

The Cédric Hèle institute the ‘Cellekes’ (European Cultural Heritage),

Minderbroedersgang 12, 2800 Mechelen, Belgium

[email protected] www.cedric-heleinstituut.be

METHODSMETHODSThe daily board of the institute is a multidisciplinary team of specialised caregiviers. The daily board of the institute is a multidisciplinary team of specialised caregiviers. Objectives and methods are discussed, in close cooperation with the care providers, and policy agents.Objectives and methods are discussed, in close cooperation with the care providers, and policy agents.

Trainingcourses are evidence-based. Moreover, the experience and didactic skills of the trainers are monitored. Same Trainingcourses are evidence-based. Moreover, the experience and didactic skills of the trainers are monitored. Same day assessment is always performed and taken into account.day assessment is always performed and taken into account.

METHODSMETHODSThe daily board of the institute is a multidisciplinary team of specialised caregiviers. The daily board of the institute is a multidisciplinary team of specialised caregiviers. Objectives and methods are discussed, in close cooperation with the care providers, and policy agents.Objectives and methods are discussed, in close cooperation with the care providers, and policy agents.

Trainingcourses are evidence-based. Moreover, the experience and didactic skills of the trainers are monitored. Same Trainingcourses are evidence-based. Moreover, the experience and didactic skills of the trainers are monitored. Same day assessment is always performed and taken into account.day assessment is always performed and taken into account.

RESULTSRESULTS

The Cédric Hèle institute already organised several courses for different target groups. The Cédric Hèle institute already organised several courses for different target groups. A few examples are: A few examples are:

- trainingsessions for social workerstrainingsessions for social workers- communication training for nursescommunication training for nurses- workshop ‘breaking bad news’ for doctorsworkshop ‘breaking bad news’ for doctors- in association with the Flemish universities, the Institute launched in 2006 a two- in association with the Flemish universities, the Institute launched in 2006 a two- year trainingprogramm in psycho-oncology for masters in psychology and medical doctors.year trainingprogramm in psycho-oncology for masters in psychology and medical doctors.

RESULTSRESULTS

The Cédric Hèle institute already organised several courses for different target groups. The Cédric Hèle institute already organised several courses for different target groups. A few examples are: A few examples are:

- trainingsessions for social workerstrainingsessions for social workers- communication training for nursescommunication training for nurses- workshop ‘breaking bad news’ for doctorsworkshop ‘breaking bad news’ for doctors- in association with the Flemish universities, the Institute launched in 2006 a two- in association with the Flemish universities, the Institute launched in 2006 a two- year trainingprogramm in psycho-oncology for masters in psychology and medical doctors.year trainingprogramm in psycho-oncology for masters in psychology and medical doctors.

OBJECTIVESOBJECTIVES

The Cédric Hèle institute has the following objectives:The Cédric Hèle institute has the following objectives:

- Towards caregiversTowards caregivers• organise and coördinate training in psychosocial careorganise and coördinate training in psychosocial care• create and support an inter- and intradisciplinary network of create and support an inter- and intradisciplinary network of caregiverscaregivers• inventory existing scientific research, encourage interesting inventory existing scientific research, encourage interesting research, and make the results accessible to a broader research, and make the results accessible to a broader audienceaudience

- Towards cancer patientsTowards cancer patients• create a platform to communicate the psychosocial needs of create a platform to communicate the psychosocial needs of both the cancer patients, as well as their relativesboth the cancer patients, as well as their relatives

- Towards governmental institutionsTowards governmental institutions• identify and communicate needs in psychosocial oncologyidentify and communicate needs in psychosocial oncology

OBJECTIVESOBJECTIVES

The Cédric Hèle institute has the following objectives:The Cédric Hèle institute has the following objectives:

- Towards caregiversTowards caregivers• organise and coördinate training in psychosocial careorganise and coördinate training in psychosocial care• create and support an inter- and intradisciplinary network of create and support an inter- and intradisciplinary network of caregiverscaregivers• inventory existing scientific research, encourage interesting inventory existing scientific research, encourage interesting research, and make the results accessible to a broader research, and make the results accessible to a broader audienceaudience

- Towards cancer patientsTowards cancer patients• create a platform to communicate the psychosocial needs of create a platform to communicate the psychosocial needs of both the cancer patients, as well as their relativesboth the cancer patients, as well as their relatives

- Towards governmental institutionsTowards governmental institutions• identify and communicate needs in psychosocial oncologyidentify and communicate needs in psychosocial oncology

ACKNOWLEDGEMENTSWe thank the parents of Cédric for their believe in the institute.

The Cédric Hèle institute could be founded thanks to the support of the national society ‘Vlaamse Liga tegen Kanker’

*Flanders is the Dutch-speaking part of Belgium*Flanders is the Dutch-speaking part of Belgium