View
56
Download
1
Category
Preview:
Citation preview
MyData in FinlandMaritta Perälä-Heape, Director,
Centre for Health and Technology (CHT),OuluHealth
Centre for Health and Technology (CHT)1. Manages multidisciplinary R&D&I cooperation on personalized health and health technologies in Ouluhealth ecosystem (Oulu, Finland)
2. Supports ecosystem members in progressing solution closer to market and deployment
3. Promotes the innovation capacity by developing agile innovation processes
4. Facilitates strategic cooperation through international innovation networks and partnerships
cht.oulu.fi
OIA partners and ecosystems:- City of Oulu –Attractive active city- University of Oulu-Industry 2026- VTT Technical Research Centre of Finland- ICT and digitalization- Oulu University of Applied Sciences-Agile commercialization- Oulu University Hospital (OYS)-OuluHealth- Technopolis-business park- LUKE (Natural Research Institute Finland)- The Oulu Region Joint Authority for Education (Osekk)
OuluHealth focus areas: - Personalized health and wellbeing- Effective health and social care services and products- World´s smartest university hospital
Oulu Innovation Alliance (OIA) is a strategic cooperation agreement
Building blocks of OuluHealth ecosystem
Innovation platforms:
‒ match-making events
‒ testing and piloting platforms
‒ digital co-creation platforms
‒ biobanks & cohorts
Innovation capacity building:
‒ national and international innovation networks
‒ agile innovation process
R&D&I management:
‒ new strategic spare heads
‒ thematic and multidisciplinary R&D&I
‒ Solutions closer to market
2009 2010 2011 2012 2013 2014 2015 2016 2017 2018
I N N O V A T I O N C A P A C I T Y B U I L D I N G
OIA agreement
Data driven healthcare
Person centricityMyData
Big Data &
cognitive systems
CHTOuluHealth
Future HospitalOuluHealth Labs
Co-creation
Service housing
READiIndico DHR DOB
MIDASYSIWILLE
Regional eHealth strategies in EU
INKA
Big Data strategy
in EU
Need for change in the management of personal data
Antti Poikola, Kai Kuikkaniemi
My Data Principles
Human Centric:
individual in control, transparency to personal data usage, privacy, trust
Usability of Data:
guarantee data portability, machine readable, open formats, APIs, standards
Open Business Environment:
interoperability, possibility to change services without “data locks”
Source: Human Centric Approach for organizing Personal Data; Ministry of Transport & Communication, Finland
MyData and research projects • PDMP
• HIIT, KTK, ETLA. Personal Data Management Platforms. Policy recommendations.
• sMall (EIT):• MyData and Mobility. HIIT ja FVH
• Trusted Cloud HII• Led by F-Secure EIT project
• Digital health Revolution• Large strategic research project in health care sector led by CHT
• Datasta bisnestä ja oivalluksia, • WP:Good long life led by CHT; 6aika
• MIDAS, Meaningful Integration of Data, Analytics and Services; • MyData policy in EU, (VTT, THL, CHT from Finland);H2020
HEALTHCARE TODAY
• Disease management
• Similar services for everybody
• Reactive
• Provider centric
Drivers for the future data driven health care solutions-Selling care vs. selling health
FUTURE HEALTH AND CARE
• Preventive
• Personalized
• Predictive
• Participatory
Governmental programme and answering to the digital challenge in the health field
"People’s right to decide about and monitor their personal information will be enhanced, while ensuring the smooth transfer of data between the authorities." - Finland´s Governmental Strategic Programme May 29, 2015
MyData principles have been considered in national strategies, namely ICT2015 (by Ministry of Employment and the Economy) and Secondary Use of Own Health Related Data (by Ministry of Social Affairs and Health)
Ministry of Socials Affairs and Health strategy: - Information to support well-being and service renewal. eHealth and eSocial Strategy 2020.
Ministry of Transport and Communications: - MyData principles- MyData Whitepaper: https://
www.lvm.fi/documents/20181/859937/MyData-nordic-model/2e9b4eb0-68d7-463b-9460-821493449a63?version=1.0
We willcontribute to the change in the control of data in favor of
the individual explore health-related data from genomics to digital
footprintdevelop successful personal data movement across
systems and servicesbuild pilots/service scenarios of new service concepts study the business logics and consumer involvement invite actors to join the Mydata ecosystem
Digital Health Revolution (DHR)Unique approach to develop future MyData based health services
Digital Health Revolution
Human-centric health care
New tools for development of personalized health and wellbeing solutions
MAKING VALUE OF PERSONAL ANALYTICS
CONNECTING DATA TO SERVICES
LIBERATING DATA
MYDATA
www.digitalhealthrevolution.fi
Digital Health Revolution - main research tracks
Riitta Sallinen, FIMMDHR pilotriitta.sallinen@helsinki.fi
Minna Pikkarainen, UO/VTTServices and Businessminna.pikkarainen@oulu.fi
Harri Honko,TUTTechnology and Regulationharri.honko@tut.fi
Maritta Perälä-Heape, CHT/OuluHealthManagement maritta.perala-heape@oulu.fi
Antti Poikola,HIITMyData Ecosystem Wideningantti.poikola@gmail.com
Olli Kallioniemi, FIMMDHR pilotolli.kallioniemi@helsinki.fi
HEALTH CHECK-UP 1.0
Next generation HEALTH CHECK-UP 2.0 and WELL-BEING PLAN
MEDICAL HISTORY LAB TESTSDOCTOR’S APPOINTMENT
• Blood samples• Possible other tests based on the
known medical history
Form• Health history based on
customer’s memory • Health self-assessment
Analysing & processing the risk factors
• Laboratory results• Physical health• Ergonomics
Wellbeing trainer
view
Health nurse view
Health care provider invites customer for a visit when risk levels rise Early intervention
Continuous feedback and guidance
HEALTH ACCOUNT
Building the showcases, infrastructure tools & demos for MyData transformation
MyD
ata
Prin
cipl
es
Tool
s fo
r Dem
onst
ratio
n
MyD
ata
Tran
sfor
mat
ion
Human centric control of dataPortable dataOpen business environmentCo-creation
Technological DemosKnow how in Regulation Business frameworkMyData clinicMyData Alliance
Use casesDHR pilotCustomer journeysModelling the business ecosystemModelling the service ecosystem
MYDATA CLINIC
STEP 1 – INTRODUCTION TO MYDATA
STEP 2 – END USER AND BUSINESS VALUE ANALYSIS
STEP 3 – TECHNICAL AND REGULATORY ANALYSIS
STEP 4 – TOWARDS MYDATA ECOSYSTEM
CONTENT
MYDATA BASED SERVICE REALISATION AND VERIFICATION
• MyData principles• Ideas, needs and
capabilities of the company / organisation
• Deepening customer understanding
• Defining MyData based service scenarios
• Value creation networks and business models
• Technical specification• Defining data
management from regulative point of view
• Iterative development of the final concept, testing and co-creating with the users of the service
OUTCOMES
• Understanding of the possibilities of a MyData based solution
• Understanding of the main customers and stakeholders
• Customer journey• Value network analysis• Business model canvas
• MyData compliant technical architecture draft
• Identified barriers
Finalised:• Service concept• Technical architecture• Prototype• Business model
Digital Health Revolution – pilot study:Next Generation Health Check-Up and Systems Monitoring for Personalized Wellness
Prof. Olli KallioniemiRiitta Sallinen, Anu Kiuru, Timo Miettinen et al.
• How to collect digital health and wellness data?
• How to analyze such data?• How to return key actionable data to
people in order to coach individuals towards better health?
Healthquestionnaire
Health check-up
Clinicallab tests(blood, urine)
Feces samples→ 16S rDNA
Quantified selfmeasurements: Withings, Moves,RescueTime
Digitalfootprints:S Group, K-Plus
Saliva samples→ cortisol
100 participants (age 25-59)
GenomicsProteomicsMetabolomicsTranscriptomics
Prof. Olli KallioniemiRiitta Sallinen, Heidi Virtanen
Prof. Leroy Hood (the Institute of Systems biology, Seattle):
”Medicine gets up close and personal if personal health data is fed back to participants via life coaches”
MyData approach changes the service design and role of care givers
Lisää tarvittaessa alatunnisteteksti
Personal health accounts and on line health profiling tools:• To support, motivate and encourage a more healthy lifestyle or more
healthy choices
• To assist in learning from past situations
• Easy access
Actionable data in the citizen’s everyday situations
Illustrate MyData use cases through concepts, designs and demos
20
Augmented reality view to MyData
Dual-sided tablet for doctor patient interaction
MyData future dentist
Prof. Jonna Häkkilä/
MyData operator
Data sources:Health check-ups (taken
samples);Self taken samples;
Activity and sleep measurements;
Digital footprint data;Work time (computer time);
Fitness tests
Data source:eQuestionnaires
Data sink:Personal Health account (Terveystili UI)Data sink:Biobank
Harri Honko/
Case: Data management via MyData operator
Current ’consent scene’ in Hämeenlinna
Taltioni
Duodecim EBMeDS
(Processor)Kanta
Consent flow
Data flow
Source
Data usingService
End-user account
Minunterveyteni.fi Alusta
W2E
Elisaetämittaus
Taltioni Uoma App
Duodecim STAR
eOmahoito
Omakanta
Effica
Polar, etc.
iOS Health App
ConsentManager
MyData-consent management model in Finland
National- EHR- Kanta
Minunterveyteni.fi
LocalPTJ
Omakanta + PHR
Self managemnt
services
ElisaHome
monitoring
Biobanks, Genome center, data sinks, and analytics
Third sector, private sector
Polar, etc.
MyData Operator
MyHealth on-line services...
Consent flow
Data flow
Source
Data usingService
End-user account
ConsentManager
Public sector
SERVICE HOUSING
COLLECTIONDATA
INTEGRATION ANALYTICS
DATAPREPARATION VISUALISATION Midas
Secure Interoperable Data Architecture
Platform
Member State Policy Makers & Citizens
Member State Policy Makers & Citizens
cht.oulu.fi
https://twitter.com/ouluhealth
https://www.facebook.com/chtoulu/
Centre for Health and Technology - Your innovation partner in data-driven health care
Recommended