UCSF Informatics Day 2014 - Jocel Dumlao, "REDCap / MyResearch"

A Brief Overview ofMyResearch and REDCap

SystemsJocel Dumlao

Client Outreach Specialist, ARS

UCSF Informatics Day

June 10, 2014

Academic Research Systems

To serve the needs of the UCSF research community by providing:• an integrated repository of HIPAA-

compliant clinical and life sciences data• a centralized, secure, professionally

managed infrastructure for the storage and management of research data

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What is MyResearch?• Data hosting service• Virtual desktop environment• Secure, HIPAA-compliant• Collaborative - for UCSF researchers, staff, and

affiliates• Cost?

Why MyResearch?• Security, data protection• Solution to prevent data breaches

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Toolkit

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Secure Shared Drive

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Continuous Improvements

• VMWare Horizon View Client• MyTransfer

• A new, web-based file transfer tool

• New software & tools added to the Toolbox:• Newest additions: R, MatLab• SPSS v. 21 and Missing Values, Categories and AMOS modules

• Stata SE version 13 • SAS 9.4 • TreeAge 2013 • Cohort Selection Tool, Dental Data Explorer, UC ReX,

Research Data Browser

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Cohort Selection Tool(Integrated Data Repository)

UC ReX Data Explorer

Research Data Browser

Clinical Data Research Request

• Submit a request for restricted identified data, summary statistics

• Will require CHR approved protocol• Programmer will work on the request and

deliver data to your MyResearch account• Currently no cost – recharge to begin in

summer/fall 2014

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What is REDCap?• Building surveys and

data collection forms• Rapid development• Web-based, Secure,

HIPAA-compliant• Reliable, Available• For UCSF

researchers, staff, and affiliates

• Cost?

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• 1,055 organizations in 81 countries for more than 115,000 projects by over 149,000 users

• At UCSF, 3,089 users with 3,409 projects

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• Types of projects:• Single or Multiple Surveys projects• Traditional projects - classic model with data entry

forms• Longitudinal – multi-use data entry forms, abstract

time points• Longitudinal Project + Scheduling module - multi-

use data entry forms, defined time points

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• Features:• Auto-validation, calculated fields, file uploading,

branching/skip logic, and survey stop actions• Manage a contact list of survey respondents or create

a simple survey link• Export data to common data analysis packages• Modules include Scheduling, Randomization, Data

Resolution Workflow • Ad Hoc Reporting• Data Access Groups• Continuous improvement: last upgrade was on May 22

Training

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ARS offers training in REDCap and MyResearch: • MyResearch 101 Overview

• Getting started with MyResearch and using the major tools• REDCap 101 Beginner

• Creating/editing data collection instruments• REDCap 202 Intermediate

• How to use REDCap tools and apps to get more from your project

Each class is usually held twice a month. Both traditional classroom and webinar sessions are available. For schedules and registration, log in to https://learningcenter.ucsfmedicalcenter.org or contact its-arssupport@ucsf.edu for assistance.

• REDCap/MyResearch Drop-In Clinics• Last Wednesday of each month, 11am to 1pm, rotating locations

Academic Research Systems

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Questions? 

Academic Research Systems

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Jocel DumlaoClient Outreach SpecialistPhone: (415) 502-2105Email: jocel.dumlao@ucsf.eduGroup Email: its-arssupport@ucsf.edu