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Simon Duffy explores the lessons that can be drawn from the UK experience of self-directed support. He outlines the key features of a good system for people, families and professionals in Perth, WA.
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Exploring the reality of self-directed support
Dr Simon Duffy ■ The Centre for Welfare Reform ■ 1st October 2013 ■ Perth, WA
building a better system together
Features of a good system (what to expect, demand, lobby for or build together).
Examples of self-directed support in practice (ideas, stories, models).
How to be strong and supportive of each other (people, families, providers and government).
Beginnings
• 1990 in London, brokerage, individual funding and service design
• 1996 in Glasgow, new models of service provision and Individual Service Fund
• 1999 in Scotland, working on self-directed support with local government
• 2003 in England, led piloting of self-directed support
• 2009, established The Centre for Welfare Reform, global community for social innovation
• trying to combine practice and theory
Simon Duffy, some background
There is not just one kind of institution
we bring the institution with us
Often English de-instutitionalisation
was institutions without the park
Being a citizen is better than being ‘normal’
it lets us be equal and different
Citizenship for all is practical, but requires social change
• always improves outcomes
• always increases demand
• sometimes reduces costs
• system design is critical
40 plus years of self-directed support
Positive NegativeRapid policy and large scale change (700,000 now have budgets).
Breakthroughs in flexibility and awareness of entitlement
System is financially sustainable
Avoided undue reliance on professional brokerage
Development of complex assessment and RAS, eroding trust
Support planning industryLevels of bureaucracy now increasing
Failure to engage providers effectively
System now abused to help with 33% cut in care
recent changes in England
A system of self-directed support is a system of funding for support that helps people to achieve full citizenship. It can have the following qualities:
1.Rights - robust rights that give people effective entitlements
2.Control - person, or someone close to them, controls budget
3.Clarity - systems, rules and budgets are clear
4.Flexibility - budgets can be used in many different ways
5.Ease of Use - it is easy to plan, manage and control assistance
6.Community - person’s contribution to society grows
7.Sustainable - system is affordable, innovative and supported
Questions?
Rights
the government money fallacy...
...money can’t always be theirs
“It’s my life, my human rights”
Can we turn human rights into real entitlements?
What shouldn’t be cashed out?
Are people’s plans public property?
Is there an alternative to the language of entitlement?
Is self-directed support a service or an income adjustment or something else?
Questions
Control
We don’t know enough about abuse; but we do know institutions increase the risk of it and having relationships
reduces the risk of it.
It’s not about doing everything for yourself
Is the system even-handed towards all the control options?
Is changing the point of control an appropriate safeguard?
Can people really be trusted?
Questions
Clarity
Can we do without a RAS?
Why do we want complex assessment systems?
What do we mean by ‘sufficient’ ‘reasonable’ ‘necessary’ ? Necessary for what?
Should we means-test love and community?
Questions
Flexibility
Can people use their money to buy things which are not ‘services’?
Can people use their money flexibly and pool it with their other resources?
Is self-directed support transformational or merely transactional?
Questions
Ease of Use
Community brokerage... not another profession
What purpose is served by complexity?
Can providers evolve to embrace, support and underpin self-directed support?
Do we need a new professionals?
What of social workers and other existing professional groups?
How do you resist the plausible regulation?
Questions
Community
O’Brien’s five basic tasks of support
The changing role of advocacy and development
agencies
We haven’t begun to tap the power of peer support
How do local communities engage with self-directed support?
Is it helpful to abandon the commissioning model?
What helps people connect, contribute and create new solutions?
Questions
Sustainable
Positive change can happen at any levels, but requires the creation of opportunities for innovation
Innovation is complex, evolving and requires different strategies at different stages.
How can you ‘design in’ affordability?
How can system change be both liberating and evolving?
When change is inevitable how do you frame it helpfully?
How can you let everyone to join in?
Questions
Next Steps
As Western Australia develops a system of self-directed support what would I want to contribute?
Peer support - providing information, learning from
others
org
anis
ati
onal polic
ies
to b
ack
innovati
on a
nd c
reati
vit
y
Making sure there is real control and flexibility in how we deliver services - across whole
organisation. Make the block funding flexible.
An online forum for people, families and providers. Plus regular face-to-face events (computers don’t work for everyone)
Engage differently - use ‘entitlement’ - challenge more
People and families - being part of the dialogue of
development - make an input
Quality audits - show how people’s outcomes is the best response to ‘quality’
A p
arity
audit - p
eople
on o
ld sy
stem
Certificated programmes available to understand all of your disability rights, including funding
Decentralised approach
to service provision
Work with bell curve - how to support innovation and the people who are stuck
accept failures
Providers use infrastructure to support peer support
Push for more
innovation & change
watc
h o
ut
for
cuts
a system that is pro-community
inclusion and accessibility
amplify voices for rights: people & parents
MH and elder equity in NDIS
breaking down the age
discriminations
public register for support for financial advice, planning etc.
construct the entitlement argument
How will I contribute?
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