Royal Society of Medicine

Patients as Partners

Radboud REshape & Innovation Center

donderdag 5 juli 12

Lucien Engelen (@lucienengelen)

Radboud University Medical Centre, The Netherlands

Head Regional Emergency NetworkDirector Radboud REshape & Innovation CenterAdvisory to the Executive Committee

NOT a doctor, and extremely IMpatient ;-)

donderdag 5 juli 12

Mohammed (Al-Ubaydli) ís right !

donderdag 5 juli 12

Mohammed (Al-Ubaydli) ís right ! patients know best

donderdag 5 juli 12

is only constant system

donderdag 5 juli 12

is only constant system over 250 communities by 2015

donderdag 5 juli 12

Crowdsourcing Adolescent Young Adults community

Tossing in some innovations Crowdfunding (WILL change HC) Gutfeeling

donderdag 5 juli 12

How many of you are here because they are :

donderdag 5 juli 12

doctors ?

donderdag 5 juli 12

doctors ?

policymakers ?

donderdag 5 juli 12

doctors ?

policymakers ?

management ?

donderdag 5 juli 12

doctors ?

policymakers ?

management ?

researchers ?

donderdag 5 juli 12

doctors ?

policymakers ?

management ?

researchers ?

patients ?

donderdag 5 juli 12

Medicine X Stanford

Medicine 2.0 Harvard

TEDMED Wash DC

Doctors 2.0 Paris

TEDxMaastricht

World PD conference

National Health Debate

donderdag 5 juli 12

Medicine X Stanford

Medicine 2.0 Harvard

TEDMED Wash DC

Doctors 2.0 Paris

TEDxMaastricht

World PD conference

National Health Debate

donderdag 5 juli 12

Health 1.0

Health 2.0

Participatory Medicine

Participatory Healthcare

from Health1 . 0 to Participatory Healthcare

donderdag 5 juli 12

Health 1.0

Health 2.0

Participatory Medicine

Participatory Healthcare

from Health1 . 0 to Participatory Healthcare

Radboud REshape & Innovation Centerfound 46 definitions of Health 2.0

donderdag 5 juli 12

Radboud REshape : dare to dream ... dare to do ... dare to fail ...

donderdag 5 juli 12

Engelen, Derksen 2010

donderdag 5 juli 12

Engelen, Derksen 2010

donderdag 5 juli 12

Shift happening in Media

donderdag 5 juli 12

Shift happening in regimes

donderdag 5 juli 12

Use of SoMe by hospitals in Europe and USA (%)

Youtube Twitter Facebook Linkedin

Preliminary results EUPeriod: Sep 2010 - Feb 2011 *NL FB = HyvesUSA: Data of Ed Bennet www.ebennett.org

donderdag 5 juli 12

Use of SoMe by hospitals in Europe and USA (%)

Germany Switzerland Austria Sweden Norway UK Netherlands USA

Youtube Twitter Facebook Linkedin

Preliminary results EUPeriod: Sep 2010 - Feb 2011 *NL FB = HyvesUSA: Data of Ed Bennet www.ebennett.org

donderdag 5 juli 12

Crowdsourcing = outsourcing

donderdag 5 juli 12

Wisdom of the crowds

donderdag 5 juli 12

Wisdom of the crowds

Crowd funding

donderdag 5 juli 12

Ask the crowd for help

donderdag 5 juli 12

Passed 100.000 downloads

17.5000 AED’s in Database

Soon blind spots and geo-send to dispatch

Run by UMC so in-dependent non-commercial

Worldwide coverage

donderdag 5 juli 12

Joined now :

donderdag 5 juli 12

Joined now :

donderdag 5 juli 12

Joined now :

donderdag 5 juli 12

Joined now :

20.000 AED volunteers

actively crowdsourcing

donderdag 5 juli 12

Joined now :

Would LOVE to collaborate i.e. with :

donderdag 5 juli 12

Joined now :

Would LOVE to collaborate i.e. with :

donderdag 5 juli 12

Prof. Dr. Bas BloemConsulting NeurologistRadboud University Medical Centre

donderdag 5 juli 12

We’ve asked the help of PD patients :over 50 patient-opinions 321.000 impressions

donderdag 5 juli 12

We’ve asked the help of PD patients :over 50 patient-opinions 321.000 impressionswithin 24 hours

donderdag 5 juli 12

www.parkinsonsvoice.org

donderdag 5 juli 12

co-founder INTEL, Any Grove PD patienthad a lot of data, Max ran algorithmsClaimes now 99% accurate

donderdag 5 juli 12

Goal 10.000in 3 days 3.500 recordings Max Little, TED Fellow : maxl@mit.edu

co-founder INTEL, Any Grove PD patienthad a lot of data, Max ran algorithmsClaimes now 99% accurate

donderdag 5 juli 12

MyHealthstory.me

donderdag 5 juli 12

MyHealthstory.me

donderdag 5 juli 12

MyHealthstory.me

Dr Roni Zeiger MDa.k.a.

donderdag 5 juli 12

MyHealthstory.me

Dr Roni Zeiger MDa.k.a.

donderdag 5 juli 12

Empower patients

Disrupt healthcare

No add. hardware

Secure

Recording

donderdag 5 juli 12

Neurologist

optionRelative at work

option Physiotherapist other clinic

The Patient is offered virtual hospital visit and or group consult from Multi Disciplinary MS Team

“”

Patient at home

donderdag 5 juli 12

So, we often THINK we

know what our patients

need, want or looking

for, but we DON’T !

donderdag 5 juli 12

ChiefListeningOf!cer

donderdag 5 juli 12

Radboud REshape & Innovation Center900 people , 3500 waitinglist, 35 locations worldwide

donderdag 5 juli 12

February 4th, 2013Radboud REshape & Innovation Center

donderdag 5 juli 12

www.patienstscrowds.com

donderdag 5 juli 12

crowdfunding for health(care)

donderdag 5 juli 12

organize patients(groups) to design & fund research

donderdag 5 juli 12

organize patients(groups) to design & fund research

non-geographical

donderdag 5 juli 12

Patients are least utilized resources in HC

donderdag 5 juli 12

you can’t keep up with speed of technology

donderdag 5 juli 12

you can’t keep up with speed of technology

The crowd will change HC dramatically

donderdag 5 juli 12

Building a kind of Swiss Army knife

donderdag 5 juli 12

This is whereall the

magic happens

donderdag 5 juli 12

This is whereall the

magic happensYour

comfortzone

donderdag 5 juli 12

REshape : Dare to dream ... Dare to do ...

Dare to fail ...

donderdag 5 juli 12

REshape : Dare to dream ... Dare to do ...

Dare to fail ...

donderdag 5 juli 12

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