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Authors: Karl Witty, Peter Branney, Kate Bullen, Alan White, Ian Eardley
Putting data on the internet: recruitment processes and challenges for the Patients’
Experiences of Penile Cancer (PEPC) healthtalkonline audio-visual interview
study
‘Free’‘Convenient’‘Interactive’
Bruns et al., 2012
The Internet as Dissemination
www.healthtalkonline.org
Ethical Issues
PenileCancer
Figure 2: diagram of penis anatomy from: http://men.webmd.com/picture-of-the-penis
www.healthtalkonline.org
www.healthtalkonline.org
Recruitment results• 10 participants from the
local specialist centre• 18 from the other 8
centres• No participants recruited
due to promotional materials.
• Low ethnic diversity• 1 dropped out
Recruitment Methods• Face-to-face contact with consenting patients
at a local specialist centre• Urology Supra-network MDTs
– 240 recruitment packs sent to 9 teams across the UK
• Passive techniques– Web promotion– Advert in Metro free newspaper– E-mail contact with GPs on Dipex database
Concluding Issues• Risks of putting findings online are
acceptable to some• Importance of one-to-one rapport for
negotiating involvement and anonyminity and confidentiality
• Need to include ‘research advocate’ clinicians in informed consent process
Witty, K., Branney, P., Bullen, K., White, A., & Eardley, I. (2012). Putting data on the Internet: recruitment process and challenges for the Patients’ Experiences of Penile Cancer (PEPC) healthtalkonline audio-visual study. In, D. Giles (convener), Qualitative psychological research online: methodological advances. Qualitative Methods in Psychology conference, Connaught Rooms, London, 18th-20th April 2012.
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