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Presentation at Expert meeting on Strategic Directions in CALD dementia research in Australia (DCRC) September 2008
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Copyright Alzheimer’s Australia NSW
Dementia is a National Health Priority
CALD CarersBenedicte Cruysmans
Multicultural Dementia Consultant/Educator Alzheimer’s Australia NSW
presentation at Expert meeting on Strategic Directions in CALD dementia research in Australia
Primary Dementia Collaborative Research CentreCoogee, 17 September 2008
Copyright Alzheimer’s Australia NSW
Dementia is a National Health PriorityPerspective
• Psychology – human experience
• Multicultural background and migration as an adult
• Aged Care: Ethno-specific (5y) , Multicultural (20y) , Dementia CALD (1y-)
Copyright Alzheimer’s Australia NSW
Dementia is a National Health PriorityCALD Carers
• Diverse with unique circumstances and personal attributes
• Groups with similar cultural traditions and beliefs
• All share the impact of the migration experience
Copyright Alzheimer’s Australia NSW
Dementia is a National Health Priority
Main Recommendation for Research
Identify the best approaches toCommunity, Family and Carers
Awareness and Education
ContentFormats
Dissemination Strategies
Copyright Alzheimer’s Australia NSW
Dementia is a National Health PriorityCONTENT
• Targets low formal education/literacy
• Practical
• Everyday language
• Equally supportive of the person with dementia and the main carer
• Constructive and motivating
• Reduces the stigma
Copyright Alzheimer’s Australia NSW
Dementia is a National Health PriorityCONTENT
• Easily shared within the family and outside with friends and community
• Used between family carers and care workers
• Used by GPs after formal diagnosis
• Easy to teach via train-the-trainer
• Standard and quality controlled, yet flexible
Copyright Alzheimer’s Australia NSW
Dementia is a National Health PriorityFORMATS
• Simple, user friendly
• Words and images
• Appealing, respectful and dignifying
• Easily accessible
• Can be shared
• Multimedia and multiple formats
Copyright Alzheimer’s Australia NSW
Dementia is a National Health PrioritySTRATEGIES
Bring together complementary expertise
Consider equity and access
Provide economy of scale
Copyright Alzheimer’s Australia NSW
Dementia is a National Health PriorityDesired Outcome
Better understanding of condition and its impact
Reduced stigma
Practical, constructive and supportive environment
Improved access to services
Copyright Alzheimer’s Australia NSW
Dementia is a National Health Priority
Alzheimer’s Australia NSWrepresenting the interests of
all people living with dementia
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