View
133
Download
1
Category
Preview:
Citation preview
Palliative and End of Life Care for People on the Autism
SpectrumUsing Personal Experiences to Create Practice Resources
Jill Ferguson and Val Laurie
... with the help and insights of the friends, family and support staff of Stephane
‘Stories give us a deeper insight into lived experience- past, present and
imagined futures’IRISS Insights 23: the role of storytelling in practice
As we explore the individual narratives and life trajectories of the people we know and support, their experiences will influence and help shape current and future support.
Key Themes
Practice suggestions
Sign posting information
Discussion Groups
Transcribe filmed conversations
PhysicalDiagnosis and Prognosis/ Identifying and Managing Symptoms/ Pain Management and Medication/ Advanced Care Planning/ Home-Hospital-Hospice
PsychologicalSupporting Understanding/ Minimising stress/ the impact of loss of wellbeing and independence/ Identifying emotional responses/ creating positive experiences
How do the people on the
autism spectrum you know or
support express feelings of;
fear, depression, anger?
Are they able to label and articulate
those feelings?
SocialSocial support networks/ redefining roles and relationships/ peer support/ family support/ staff support/ Balancing the social needs of the person with others
SpiritualReligious needs and wishes/ Cultural customs and beliefs/ personal significance and meaning/ Selfhood/ Reflections on past, present and future
Recommended