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TEN THINGS I HAVE LEARNEDAbout De-identification
cc: Ashim D’Silva - https://unsplash.com/@randomlies?utm_source=haikudeck&utm_medium=referral&utm_campaign=api-credit
Khaled El Emam
1. PRIVACY ENHANCING TECHNOLOGIES (PETs)cc: Y'amal - https://www.flickr.com/photos/17856544@N00
PETS FOR SHARING1. Pseudonymization2. De-identification3. Data Synthesis
4. Federated Analysis5. Secure Computation
cc: Y'amal - https://www.flickr.com/photos/17856544@N00
2. Consent and Other Obligationscc: mlibbe - https://www.flickr.com/photos/27901749@N04
OBLIGATIONS• Consent• Security controls• Privacy controls• Contractual controls
cc: Luna*-- - https://www.flickr.com/photos/58683294@N00
BENEFITS OF PETS• Enable secondary uses and
disclosures that would otherwise not be possible
• Cut operating costs for secondary purposes by reducing obligations -sometimes significantly
cc: Jamie Street - https://unsplash.com/@jamie452?utm_source=haikudeck&utm_medium=referral&utm_campaign=api-credit
3. Identifiability and Zero Riskcc: MTSOfan - https://www.flickr.com/photos/8628862@N05
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
ASSESSING RISK1. No zero risk2. Justification for threshold3. Due diligence on how risk /
probability is measured
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4. Heterogeneity in Practicecc: Andrew Seaman - https://unsplash.com/@amseaman?utm_source=haikudeck&utm_medium=referral&utm_campaign=api-credit
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
threshold
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
threshold
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
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Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
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Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
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Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
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Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
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end-user has no specific preferences on which criterion to optimize on
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
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end-user optimizing on cost reduction and maximizing data utility
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
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end-user optimizing on privacy protection and brand
5. IDENTITY DISCLOSURE ?
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1. Identity disclosure
2. Attribute disclosure
3. Learning something new
4. Membership disclosure
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Identity DisclosureWhat the adversary knows
–Hiroshi is in the data
–Hiroshi is Japanese
What the adversary learns
–Hiroshi is the first record
–Hiroshi’s income
28
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
Attribute DisclosureWhat the adversary
knows
–Hiroshi is in the data
–Hiroshi was born in the
decade 1950-59
What the adversary learns
–Hiroshi has prostate
cancer29
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
Learning Something NewWhat the adversary knows
– Hiroshi is in the data
– Hiroshi was born in the
year 1959
– Hiroshi is male
– Hiroshi has an income of
$120k
What the adversary learns– Hiroshi is the first record
30
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
6. Regulatory Uncertaintyand Inconsistency
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7. SOCIAL LICENSE
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8. CHANGES IN THE ENVIRONMENT
cc: kevin dooley - https://www.flickr.com/photos/12836528@N00
9. ALGORITHMS MATTER
cc: Jacob Joaquin - https://www.flickr.com/photos/61198674@N00
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
threshold
INNOVATION CONTINUEScc: Brett Jordan - https://unsplash.com/@brett_jordan?utm_source=haikudeck&utm_medium=referral&utm_campaign=api-credit
Special Issue onPrivacy Enhancing Technologies
10. Privacy As a Competitive Advantage
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QUESTIONScc: an untrained eye - https://www.flickr.com/photos/26312642@N00
Electronic Health Information Laboratory, CHEO Research Institute, 401 Smyth Road, Ottawa K1H 8L1, Ontario; www.ehealthinformation.ca
kelemam@ehealthinformation.ca
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