Technology for People with Cognitive Disabilities: the Promise, Pitfalls… · 2014-03-26 · the...

Technology for People with Cognitive Disabilities:

the Promise, Pitfalls, & Push for

Rodney Bell, Principal ASSET Consulting

Innovative Technologies Summit Mar 2014

2 © ASSET Consulting, 2014

Your Take-Aways

Lots of tech for people with I/DD

Big wave of tech challenges us

All can learn to ride tech wave

People with I/DD have a right to technology

Tech is Here for People with I/DD

Smart Mobiles

Assistive Apps

ResidentialSupports

Point-of-Care

… and Changing Everything

ProvidersOrganization

PracticeOperations

Consumer LivesIndependence

SocializationWork & Play

GovernanceWaivers

ReimbursementEthics

The Promise and Pitfall

Abandonment

When Technology Doesn't Work

That'll fix ya !

Techies get a comeuppance

Heavenor Hell?

marketer

salesman

… with a peek at Heaven & Hell

HellHeaven

"Hell looks fun, we'll go there "

Looks Can Be Deceiving

Where's the

Party?SALES DEMO !

Provider IT no longer optional

I/DD, Client Mgmt, EMR …

Web services, Cloud, BYOD

Individual planningPerson-centered Outcome-oriented Cost-based

Provider IT no longer optional

I/DD, Client Mgmt, EMR …

Web services, Cloud, BYOD

Individual planningPerson-centered Outcome-oriented Cost-based

Cost to develop ready technology

Not commercial OH waiver pilot

Point-of-Care IT Cuts Errors, Time

Web services, Cloud IT

Medication administration

Point-of-Care IT Cuts Errors, Time

Web services, Cloud IT

Medication administration

BYOD, Malware configure, firewall, …

Web – also for people w I/DD

SimpleInterfaces

Entertainment

Communication

Web – also for people w I/DD

Simpler Interface

Accessible PC

Email, Browsing

Social Media

Entertainment

Communication

no Internet What?

Get it

Let's Get Social

Facebook

Let's Get Social

Fred Hobbs, Imagine!Colorado"Using Social Media ... Regardless of ... Disability"

Online harm coach

supervise

Independence with Residential Support

Remote Monitoring, Supervision, Communication

Independence with Residential Support

Changes! prepare pilotmanage

EliteCare

Imagine

Advanced Smart Homes Do It All

Sense Activity

Track People

Control Building

Calls, Alerts

Complete IT

Family Portal

EliteCare

Imagine

Advanced Smart Homes Do It All

Sense Activity

Track People

Control Building

Calls, Alerts

Complete IT

Family Portal

Mobiles/Apps Assist Wherever

Communication

Task Prompts

Plan, Remind

WayFinding

Health Monitor

LifeLog

Mobiles/Apps Assist Wherever

Communication

Task Prompts

Plan, Remind

WayFinding

Health Monitor

LifeLog

Not curated reviews

try outstart cheap

Plan Your Day; Talk With Others

Plan, remind activity

Augmentative Communication

Plan Your Day; Talk With Others

Plan, remind activity

Augmentative Communication

Usable? train, coach

Help for Daily Activities

Pick your task

for Step-by-step

Help for Daily Activities

Pick your task

for Step-by-step

Task-specific prioritize

Desktop & Web Help at Home

Plan & Prompt

Simple Desktop

Communicate

Manage Health

Desktop & Web Help at Home

Plan & Prompt

Simple Desktop

Communicate

Manage Health

PC Admin tech supportiPad

Mobiles Show the Way

DirectionPrompts

ReportLocation,

Status

Locate,Inform

Mobiles Show the Way

DirectionPrompts

ReportLocation,

Status

Locate,Inform

No one to help phone call

Theft GPS finds

Do a Job with Work Supports

Task prompts Monitor & prompt

Do a Job with Work Supports

Task prompts Monitor & prompt

Task-specific justify

R&D pilot

Tech is for Families too

Residential

Info Portals

Alerts/reports

Social Media

Video Calls

Tech is for Families too

Residential

Info Portals

Alerts/reports

Social Media

Video Calls

Rare ask for it

Usable? simpler app

Coming Soon to Prime-time

Augmented Reality

Indoor WayFinder

Location Services

Wearables

Wearables Attract Investment

WEARABLES

Fitness

Activity, position,

Context, location

Health

Medical devices

Physiological

Safety

Falling

Someday R&D Will Reach Us

Brain Prosthesis

Autism

Robots

Virtual Reality

Personal Robots

Technology Futures

Virtual realitySocial gaming

Simple web browsingComputer games

At home,day activities

Recreation

Multi-person track’gPredict risks

Monitor & alertStaff checksSafety

Wearable monitors Predict declines

Med Admin supportMonitor, Tele-health

Nurse checksHealth

‘Translations’iPhone/iPad appsAACCommunication

Automatedat Point-of-CarePaper records Documentation

Track plan careBig Data

Field use, “Cloud”Costing

Office useEnterprise IT

Urban SystemsFactory coach

Way-findersPersonal coach

SupervisedWork, community

Connected LifeLogsocial media, video callPhone, in-personSocial Life

Adaptive promptsApps plan/remind ...Staff promptsCognition

Robot, smart camera Smart Homes +Staff, call buttonHome (ADLs)

FutureEmergingTraditional

Really ?

To Keep Pace with Technology …

“It takes all the running you can do, to keep in the same place. … to get somewhere else, you must run at least twice as fast”

Through the Looking Glass Lewis Carroll

Elenore Abbott

RedQueenEffect

Big Wave of New Technology

seandavey.com

Internet users

Mobile phone use

Devices Connected to Internet

World Economic Forum

Connected Wearables

Healthcare Devices

Machine to Machine Connections

Technology is Fast Improving

Personal Devices

Connectivity

The Cloud

Automation

Tracking

Software & Data

User Interfaces

What's Driving Tech Change

-> Exponential increases in computing

Economics and miniaturization

Moore's Law: Doubling rates

Transistors per chip – 18 months

World Data Storage – 12 monthsTransmission bandwidth – 9 months

Leads to other improvement

Cost, power, size halved every 18 months

Enabled by $10B Fab Plants

Intel Ronler Acres, Oregon - expanding

and 450 mm wafers

with 14 nanometer process

Makes Tech Affordable for All

$10 Smart phone?

with Astounding Potential

Time magazine

Computers >> Brain … Singularity

Unbalanced Pace of Change

Why Tech Adoption Takes Time

Stakeholders

Complexity -Interface …

Pitfalls

Manage the project, coordinate stakeholders

Tech Doesn't Just Happen … Yet

Manage Tech Adoption to Get Benefits

Best Practices for Tech Adoption

Tech is strategic

Integrate w/ facility & practice

Manage risks

Smart process

Prepare for change

Support & Improve

USER CENTEREDUSER CENTERED

Technology Hype vs. Maturity

Gartner Hype Cycle – 2013

Hype Cycle for Disability Tech

Social media

Remote monitor

Office IT

AugmentedReality

IndoorWayfind

UrbanNavigate

Pt-of-Care IT

PersonalRobots

TherapyRobots

Cognitive Assist

SmartHome

Wearables

Predictive Models

WorkSupport

Daily AssistTherapy VR

Where will you board the tech wave?

Know your risk aversion, tech competence

Techsavvy

Risk adverse

Adaptive

Resilient

Early Adopter

Typical

Can You Ride the Tech Wave ?

ANCOR Links, NADSP Frontline Initiative

Overwhelmed by the Leading Edge?

Don't try a wave too big for you

surfertoday.com

Had a bad experience with Tech?

Work your way up to big waves

Wonder what to avoid?

… rides that won’t make it

Concerned About Tech Risks?

Avoid danger in the waves

Does Your Project Seem Too Big?

Teamwork can drive a big boat

Tech too much to do alone?

Get a little help from your friends

Not Sure How To Do Tech ?

Learn from other riders …

Trouble Managing Tech Adoption?

Right size your projects

Is Your Tech Too Weak ?

Get a more powerful board

Wonder where to start?

Find an easy wave

Consumers Struggling with Tech?

Beginners can use help

Tech Too Hard for Some People?

The Right Size Wave is Fun

Has Tech Left Someone Behind?

Some waves everyone can ride

Overtaken by Trailing Edge of Tech?Andy Johnson-Laird, Wescon, 1979

Don't be left out. Start paddling !

Soon You'll be an Expert Surfer

New Tech Challenges Governance

Reimbursement ?

Internet/web ?!

iPad v AAC

Reimbursement ?

Internet/web ?!

iPad v AAC

general PC DME

many apps comm

cool disabled

Reimbursement ?

DSP labor v Remote monitor

$$$ $Invasive PrivateGroup home Apartment

Waiver RM services

Share savings with providers

CMS receptive

Make Tech > 2% of Reimbursement

UIC Study of HCBS waivers

Tech Monetization ?

thru 3rd party beneficiaries

e.g., Social Impact Bonds

Regs/policy inhibit change

Revisit ethics

Tech Enables More Autonomy

PrivacyGroup Living

Independent LivingStaff Keeps Safe

Community InclusionCare Settings

FriendsCare-givers

Right of AssociationControl Contacts

Want Good Help for Change?

Next Conference: October 9, 2014

Coleman Institute

State of the States Informs Policy

Fiscal Effort by Disability - US

per $1000 of aggregate personal income

Fiscal Effort by Disability - NC

per $1000 of aggregate personal income

I/DD Fiscal Effort Trend - NC

I/DD Fiscal Effort Trend - US

Candidates for Remote Monitoring ?

The Push for Equal Rights

Why Push for Equal Rights ?

28 million

Entitled to inclusion

Tech inaccessible

But necessary

Funding access

Benefits society

The Push for Equal Rights

150+ organizations endorsed :

AAIDD, The Arc, ANCOR, SABE, SLN, …

Colorado legislature resolution

Dr. Braddock's article

"The Rights of People With Cognitive Disabilities to Technology and Information Access"

AAIDD Inclusion 1:2, p.95

Copies of Declaration & Article here

Endorse @ www.colemaninstitute.org

References

Strategies for Equal Technology Access, Bell

HCBS Waivers: a nationwide study , Rizzolo et al

ANCOR LINKS, Bell“Top Ten Guidelines for Adopting New Technology“Riding the Technology Waves” “Making Technological Investments" p16

Presentations, BellEmerging Technology, ARRM Tech Showcase, 2012Smart Homes, Coleman Institute Conference 2008

Technology for People with Cognitive Disabilities: the Promise, Pitfalls… · 2014-03-26 · the...

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