SUMMER 2017 UPDATE Kidney Transplant Fast Track Study ... · SUMMER 2017 UPDATE Kidney Transplant...

SUMMER 2017 UPDATE Kidney Transplant Fast Track Study University of Pittsburgh

Center for Research on Healthcare

Kidney Transplant Fast Track Study

230 McKee Place, Suite 600

Pittsburgh, PA 15213

We welcome your comments,

suggestions, or questions.

E-mail: Bornemannk@upmc.edu

Call: 412-692-2678

Mail: University of Pittsburgh

Center for Research on Healthcare

230 McKee Place, suite 600

Pittsburgh, PA 15213

Dr. Larissa

Myaskovsky

Principal Investigator

Kellee

Kendall

Project Coordinator

Emilee

Croswell

Research Assistant

Corinne

Hendrock

Research Assistant

KIDNEY TRANSPLANTATION WORD SEARCH

Overcoming the

Stumbling Blocks

of Kidney Disease

Jim Dineen gives an

account of his mental

process and the 10 chal-

lenges he overcame to win his battle

with kidney disease. Go to RSNhope.org

and enter Web ID 378 in the upper

right hand corner box.

Do you know who

is sitting next to

you in dialysis?

Wendy Rodgers describes

techniques to connect

with other patients, such as the learning

process and encouragement. Read her

article by visiting on the RSN web site. Go

toRSNhope.org and enter Web ID 233 in

the upper right hand corner box.

Please visit our research study website for the answer to this word search:

kidneytransplantresearchstudy.wordpress.com/word-search-answers/.

READING CORNER

Fast Track Study

UNIVERSITY OF PITTSBURGH

SUMMER 2017 UPDATE

Kidney Transplant

A BIANNUAL PUBLICATION OF THE UNIVERSITY OF PITTSBURGH KIDNEY TRANSPLANT FAST TRACK STUDY TEAM

The kidney transplant research team appreciates your help

with our study and hopes you have had a wonderful spring

and fun filled start to the summer season. We are looking

forward to warmer and sunnier days ahead. We hope to

take a little of your time to update you on the progress of

our study as we approach the three year mark.

Your participation in this study will help us better under-

stand how to reduce transplant evaluation times and how

to increase the rates of kidney transplantation as well as

to understand how people make decisions about their

treatment options for kidney transplantation.

To date, 921 participants have been enrolled in our study,

and 901 of those have completed their first interview. Of

the 901 participants who completed their first interview,

514 completed their second and final interview. Our goal

is to recruit and interview 368 more participants by

September 2018. So far, 37% percent of the participants

in our study are women and 63% percent are men. The

average age of study participants is 58 years old, with an

overall range in age of 20 to 89. Your continued participa-

tion is what really makes our research a success!

Thank you for your support of our project.

Sincerely, Dr. Larissa Myaskovsky and the Kidney Transplant Fast Track Research Team

Kellee Kendall (formerly Bornemann)

is the Project Coordinator for the Kid-

ney Transplant Fast Track Study. You

may have met her during a clinic visit

or spoken to her over the phone. Kel-

lee has been working on Dr. My-

askovsky’s research team for the past

6 years. During that time, she com-

pleted a Master of Public Health degree in Behavioral and

Community Health Sciences at the University of Pittsburgh

and has helped coordinate four different research studies.

Kellee just got married this summer and is excited for the

future, both personally and professionally. In Kellee’s spare

time, she enjoys cooking, camping, and traveling.

Kellee Kendall, MPH

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RESEARCH STUDY PROGRESS

Dr. Larissa Myaskovsky had the

opportunity to present a poster

based on the work of our research

study at the 17th Annual American

Transplant Congress in Chicago, IL

on May 1st, 2017. Entitled,

“Protocol of the KTFT-TALK study

to reduce racial disparities in kid-

ney transplant evaluation and living

donor kidney transplantation” the

poster highlighted the study’s re-

search design and methods. It was the first in what we hope to be

many publications and presentations that come out of our re-

search. The May 1st presentation generated a lot of interest from

transplantation researchers and clinicians all over the world and

may lead to national collaborations with other transplant centers

across the US or with transplant centers in other countries. During

the session, Dr. Myaskovsky was particularly proud to report the

high response rates for our research interviews from all our study

participants. She is really grateful for the hard work of the research

team and for the efforts of patient participants like you!

OUR RESEARCH AT THE AMERICAN

TRANSPLANT CONGRESS 2017

UNIVERSITY OF PITTSBURGH

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A recent Warner

Brothers movie,

“Going in Style,” fea-

tured kidney health

and organ donation

on the big screen!

This blockbuster com-

edy tells the story of three lifelong friends – Willie

(Morgan Freeman), Joe (Michael Caine) and Al (Alan

Arkin) – who plan a heist on the bank that absconded

with their pension funds. Meanwhile, Willie keeps his

dialysis and kidney health under wraps until he realiz-

es he needs a kidney transplant.

The National Kidney Foundation partnered with Warn-

er Brothers to promote the movie’s release in April,

which coincided with National Kidney Month. The pro-

motion included raising awareness about the NKF pro-

gram “The Big Ask: The Big Give,” a free educational

program that teaches patients how to ask friends and

family about living kidney donation. For more infor-

mation, please visit: www.kidney.org/news/kidney-

health-going-to-hollywood.

Each year, faith groups across the United States edu-cate the public about organ, eye, and tissue donation by observing the National Donor

Sabbath. To learn how you can get involved in your community, please visit www.donatelife.net/nds.

NKF Patient Fundraising/TEAM Kidney:

team.kidney.org

NKF Kidney Living Magazine:

www.kidney.org/patients/KidneyLiving

Ticket to Work employment services: www.rsnhope.org/

Go to RSNhope.org and enter Web ID 688

in the upper right hand corner box.

Email: support@chooseworkttw.net Call: 1-866-968-7842

WeKAN (Kidney Advocacy Network): www.rsnhope.org/advocacypublic-policy

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RESOURCES

THE RENAL SUPPORT NETWORK

THE NATIONAL KIDNEY FOUNDATION

ESRD (End Stage Renal Disease) Network Program:

www.esrdncc.org

Email: nccinfo@hsag.com Call: 844-472-4250

ESRD NATIONAL COORDINATING CENTER

RSN ESSAY CONTEST CKD patients can enter an annual essay contest hosted by RSN! This year’s topic is “describe a positive decision that you have made about your healthcare." Priz-es will be issued to first, second, and third place winners and winning essays will be published. The submission deadline is August 10, 2017. To enter the contest, please visit www.rsnhope.org/essaycontest.

Mango Health for iPhone, Android, and Apple Watch takes care of your daily health routine to make it fun, easy, and rewarding. App features include: reminders to take your medicine and keep up with healthy habits, drug interaction info, a health history, and points and rewards just for taking care of you. Visit www.mangohealth.com for more information and to download the free app.

MANGO HEALTH MEDICATION PHONE APP

Hartwood Acres The 34th Annual Family

Polo match to benefit Family

House will be a fun-filled day

for the whole family. Please

visit www.familyhouse.org/

polo.

SEPT. 9, 2017

NOV. 5, 2017

NKF KIDNEY WALK

The Pittsburgh Zoo

and PPG Aquarium

Please visit www.kidney.org/offices/nkf-serving-

alleghenies or donate.kidney.org/site/TR.

NOV. 10-12, 2017

NATIONAL DONOR SABBATH

NKF GFR Calculator: www.kidney.org/professionals/KDOQI/gfr_calculator

SUMMER 2017 UPDATE Kidney Transplant Fast Track Study

Preparation: To make the marinade, measure

the peach jam into a small microwave safe bowl

and heat for 10 to 15 seconds to liquefy. Add the

olive oil, lemon juice, Mrs. Dash® herb seasoning

and salt. Stir until well blended. Rinse the chicken

thighs and pat dry with a paper towel. Cut each

thigh into 4 pieces and place in a zip-top bag. Add

3 tablespoons marinade to the chicken pieces.

(Reserve 2 tablespoons marinade to use on vege-

tables.) Seal the zip-top bag and refrigerate to

marinate. Cut the vegetables into even bite-sized

pieces for the kebabs (zucchini-8 slices; yellow

squash-8 slices; red pepper-16 pieces; onion-

varies). Place them in a medium bowl and add

reserved marinade. Stir to coat the vegetable

pieces. Thread the vegetables and chicken pieces

onto skewers (4 large or 8 small skewers). Heat

the grill to medium heat. Place the skewers on

the grill and cook covered for 12 to 15 minutes.

Dialysis cartoon by Peter Quaife, The Lighter Side of Dialysis.

TRAVELING TIPS FOR DIALYSIS PATIENTS

For some dialysis patients travel can lead to a boost in morale and well-being, but may require many weeks of planning. Most dialysis centers are experienced with arranging hemodialysis or peri-toneal treatments away from home and can help ensure you receive quality care when you are traveling. Please visit, www.kidney.org/atoz/content/traveltip, to help answer some frequently asked travel questions.

TIPS FOR LIVING DONORS AND CAREGIVERS

This article features suggestions for plans during

pre-donation, preparing for surgery and post-donation,

as well as an online resource known as “Lotsa Helping

Hands.” Please visit www.kidney.lotsahelpinghands.com

and www.kidney.org/transplantation/infotips to read more.

CONSIDERING BECOMING A LIVING DONOR?

Kati Walker, NKF Peers Living Donor Mentor,

describes her detailed experiences of giving a

kidney to her children’s school principal. Visit

www.kidney.org//content/considering-becoming-living-donor-talk-

someone-who’s-donated to read Kati’s story.

Call NKF Peers: 1-855-653-7337 Email: nkfpeers@kidney.org

TIPS FOR CONSIDERING LIVING DONATION

This NKF initiative illustrates different ways to ask your loved ones about donating a kidney. The initiative emphasizes how to make the ask, provides samples of letters to friends and family, and five ways to inspire living kidney donation. Please visit, www.kidney.org/transplantation/livingdonors, to watch the PSA as well as other inspirational links.

HELPFUL TIPS

Recipe created exclusively for DaVita.com by DaVita

dietitian Sara from California. Before using this reci-

pe, please consult a registered dietitian to verify that

this recipe is appropriate for your nutritional needs.

Please visit www.davita.com/recipes/chicken-

and-turkey/chicken-and-summer-vegetable-

kebabs/r/5186 for this recipe and many more.

CHICKEN AND SUMMER

VEGETABLE KEBABS

Ingredients:

1 tbsp. peach jam, 2 tbsp. olive oil,

1 tsp. Mrs. Dash® herb seasoning blend,

2 tbsp. lemon juice, 1/4 tsp. salt,

1 pound boneless skinless chicken thighs,

1 med. zucchini, 1 red bell pepper,

1 med. onion, 1 med. yellow summer squash

Serving size: 1 large or 2 small kebabs

Portions: 4

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