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ONLINE CONFERENCE. music STIMULATION AS ALZHEIMER’S DISEASE THERAPY: BENEFITS ON INFORMAL CAREGIVERS . Monsonís-Payá , I., Garcés, J., Durá . E., Vidal, P. INDEX. Introduction Social and institutional context Progress Project Alzheimer Objectives Target groups - PowerPoint PPT Presentation
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ONLINE CONFERENCE
MUSIC STIMULATION AS ALZHEIMER’S DISEASE THERAPY: BENEFITS ON INFORMAL CAREGIVERS
Monsonís-Payá, I., Garcés, J., Durá. E., Vidal, P.
INDEX
Introduction Social and institutional context Progress Project Alzheimer
Objectives Target groups Training modules and intergenerational activities
Data collection Evaluation and findings Conclusion
Introduction To discuss an explanatory research designed to contribute to
the maintenance and reconstruction of social ties through activities focused on dependency and care for people with Alzheimer’s disease.
Research question: The extent to which assistance to people with AD contributes to unburden informal caregivers
Progress programme (VS/2011/162): “Alzheimer: Tremplin Intergénérationnel d’Insertion Sociale et Professionnelle”:
(VP/2010/007/0129).
Social and institutional contextPopulation age range Dementia prevalence60-64 years old 0.6 %>70 years old 10.9 %>95 years old 46.3 %
Alzheimer 7.7 %
Specific medical attention Respite units Public senior residences “Law on Promotion of Personal Autonomy and Care for Dependent
Persons” To guarantee informal caregivers’ rights in both psychological and financial
areas.
Social and institutional context Current scenario
urgent public interventions to assist people with a disease are increasingly required
Women without professional qualification are in charge of taking care of their relatives This contributes to burden these informal
caregivers physically, psychologically and financially
Social and institutional contextThe indirect impact of lack of support and training
Premature institutionalization; violence against patients; social exclusion of patients and informal caregivers; etc.
Non appropriated care
Lack of support, training and
communication skills
Caregiver’s burden
Progress Project Alzheimer Objective
Increasing the provision of social and health assistance to people with AD and their informal caregivers
Respond to the social demand of labour inclusion of young people and the increasing risk of exclusion of women without qualification or with difficulties to access to labour field.
Progress Project Alzheimer Target groups
People with Alzheimer’s disease
Social relationship
Cognitive function - stimulation activities
Informal caregivers
Social support network
Social relationships
People in risk of social and labour
exclusionSocial inclusion
and labour guidance
Employment opportunities
Training
Progress Project Alzheimer Training modules content
1. Introduction to gerontology
2. Introduction to Alzheimer’s disease
3. Informal Care and informal caregivers
4. Support and services for Alzheimer’s disease
5. Individual approach to AD: communication, music therapy and orientation to reality
General training
Specialized training
Progress Project Alzheimer Intergenerational and practical activities
Visits to patients and their caregivers 2h30min each session.
Music therapy as a key activity for cognitive stimulation
Data collection Non-experimental design: pre-test and post-test
comparisons (without comparison group) and post-test analysis (including context analysis).
Quantitative techniques: questionnaires Qualitative techniques: interviews and participant
observation Context analysis: using both primary and secondary
information resources. Not statistically, but representatively
Evaluation and findings Regarding informal caregivers
Reduced psychological and social burden Preventing social relationship breakdown
Regarding trainees Increased skills to access labour field. Provide further access to other training programmes. Increase willingness to work with AD’s patients
Conclusion Overall stakeholder/participant satisfaction Recommendation: lower duration and increase number
of training sessions. Approximation between informal caregivers and people
in risk of social and labor exclusion.
Thank you
Irene Monsonís: irene.monsonis@uv.es
Jorge Garcés: jordi.garces@uv.es
Estrella Durá: estrella.dura@uv.es
Patricia Vidal: patricia.vidal@uv.es
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