in + care Campaign Kick-Off Webinar October 26, 2011

1

in+care CampaignKick-Off Webinar

October 26, 2011

2

Laura W. Cheever, MD, ScM

Chief Medical Officer,HAB Deputy Associate

Administrator

3

Agenda

• Welcome & Introductions, 5min• Campaign Expectations and Update,

10min• Intro to Campaign Measures, 20min• Data Reporting, 10min• Local Quality Champions, 5min• Consumer Involvement, 5min• Q & A Session, 5min

4

in+care Campaign Expectations & Update

Clemens Steinbock

5

This in+care Campaign is designed to facilitate local, regional and state-level efforts to retain more HIV patients in care and to prevent HIV patients falling out of care while building and sustaining a community of learners among Ryan White providers.

6

Campaign Framework• participation in the Campaign is voluntary

and Ryan White grantees across all funding streams and sub-grantees are invited to join

• participating agencies enroll for a 12-month commitment

• routine reporting of performance data on up to 4 uniform Campaign-related measures

• routine submission of a simple progress report to highlight improvement strategies and challenges

7

Campaign Framework• monthly webinars provide content expertise and

promote peer sharing• routine retention journal clubs by renowned

researchers to review recent publications • participating agencies have access to coaches for

support• regional/local meetings of Campaign participants are

held with the help of Quality Champions, where possible

• content-specific affinity group webinars/Study Groups are conducted and facilitated by peer providers

• consumer are involved as partners in this Campaign

8

in+care Participants by Zip Code (as per Oct 26, 2011)

9

247 HIV providers representing

220 HIV programs in 133 cities and across 41 States/Territories

have joined the Campaign so far

10

caring for 294,298 people living with HIV

11

% of Grantees by Part Ryan White Funding (n=182)

12

# of Programs by Caseload of Unduplicated Patients per Year (n=222)

13

How Do You Rate the Agency’s Level of QI Experience? (n=215)

14

To What Extent Has Your Agency Recently Engaged in Retention Activities? (n=215)

15

Introduction to in+care Campaign Measures

Bruce Agins, MD, MPH

16

Technical Working Group

• Chaired by Drs. Bruce Agins and Laura Cheever

• Comprised of distinguished experts in the field of retention, including clinical experts, researchers, national stakeholders and other strategic thinkers from the Ryan White and other health care communities

• Committee was charged to prioritize and suggest 4 retention measures to be used for this Campaign

17

1) Gaps in Care

Definitions of terms as used in the numerators and denominators of this document:Patient – a patient of any age diagnosed with HIV/AIDSProvider – a health care professional who is licensed in their jurisdiction to

prescribe ARV therapy, i.e., MD, PA, or NPVisit – an outpatient/ambulatory medical visit with a health care professional

who is licensed in their jurisdiction to prescribe ARV therapyExclusion criteria:Patients who are documented to be deceased, incarcerated, moved away, or transferred care during the 12-month measurement period are to be excluded from measurement

18

2) Visit Frequency

Definitions of terms as used in the numerators and denominators of this document:Patient – a patient of any age diagnosed with HIV/AIDSProvider – a health care professional who is licensed in their jurisdiction to

prescribe ARV therapy, i.e., MD, PA, or NPVisit – an outpatient/ambulatory medical visit with a health care professional

who is licensed in their jurisdiction to prescribe ARV therapyExclusion criteria:Patients who are documented to be deceased, incarcerated, moved away, or transferred care during the 12-month measurement period are to be excluded from measurement

19

3) Patients New to Care

Definitions of terms as used in the numerators and denominators of this document:Patient – a patient of any age diagnosed with HIV/AIDSProvider – a health care professional who is licensed in their jurisdiction to

prescribe ARV therapy, i.e., MD, PA, or NPVisit – an outpatient/ambulatory medical visit with a health care professional

who is licensed in their jurisdiction to prescribe ARV therapyExclusion criteria:Patients who are documented to be deceased, incarcerated, moved away, or transferred care during the 12-month measurement period are to be excluded from measurement

20

4) Viral Suppression

Definitions of terms as used in the numerators and denominators of this document:Patient – a patient of any age diagnosed with HIV/AIDSProvider – a health care professional who is licensed in their jurisdiction to

prescribe ARV therapy, i.e., MD, PA, or NPVisit – an outpatient/ambulatory medical visit with a health care professional

who is licensed in their jurisdiction to prescribe ARV therapyExclusion criteria:Patients who are documented to be deceased, incarcerated, moved away, or transferred care during the 12-month measurement period are to be excluded from measurement

21

Campaign Measures

• Frequency of Visits (every 6 months)• Gaps in Care (no visit in the last 6

months)• Patients New to Medical Provider

(every 4 months)• Viral Suppression (last VL, <200

copies/ml, all pts in care)

22

in+care CampaignData Reporting

Jane Caruso

23

Campaign Database• Allows participating agencies to self-report

their performance data on this online application

• Individual agencies need to register to access the database

• Form a group of grantees, which would allow them to generate group reports, such as HIVQUAL regional groups, collaboratives, networks

• Immediate access • to individual scores trended over time• to regional/national benchmarking

reports• to reports based on common search

criteria• to group scores of established groupings

• Coaches have access to individual/groups scores to better assist participating agencies

24

Registration

25

Data Entry

26

Data Entry

27

Data Reporting

28

• First Data Collection Submission Deadline: December 1, 2011

• Measurement Period: 10/01/2010 – 09/30/2011

• Access to in+care Campaign Database: incareCampaign.org

(‘+submit data’) • Testing of in+care Database:

till November 4, 2011 - data are deleted on 11/14

• Database Instructions: incareCampaign.org

Data Collection Details

29

Progress Report FormA) What recent interventions have you tried to improve

retention rates? What measurable results, if any, did you have?

Focus on identifying those out of care; re-engaging individuals back into care; preventing those in care from falling out of care

B) What are the major recent barriers/challenges you are facing in achieving higher retention rates?

Focus on barriers your consumers have identified, challenges that your providers have identified; underlying system issues in your organization

C) What lessons did you learn that would be helpful to others? Focus on recent discoveries that made a vast difference to your retention efforts; tools, forms (please attach); observations from provider and consumers

D) What technical assistance needs to you have for NQC, HAB and our Campaign coaches?

30

Local Quality Champions

Michael Hager

31

Local Quality ChampionsCreate peer learning opportunities for HIV

providers1. Meet locally face-to-face/virtual to discuss

retention issuesTakes advantage of existing meeting structures and communities of learning, including HIVQUAL Regional Groups, cross-Part meetings, network meetings

2. Build regional peer exchanges with minimal input by Campaign coaches

3. Extend the reach and impact of the Campaign

32

Quality Champions Wanted!

Responsibilities of Quality Champions:• Conduct at least 2 face-to-face meetings/calls• Reach out to local HIV providers; NQC will assist• Provide logistical support for these meetings• Facilitate the discussions and chair the meetings• Report activities back to Campaign staff

Sign-up to become a Quality Champions – incare@NationalQualityCenter.org

33

Consumer Engagement in the in+care Campaign

Bob Tracy

34

Promote awareness among consumers about the Campaign and how to improve health by being in care

Encourage self-care among consumers

Reaching out to consumers and step up as partners in quality improvement activities

Partners in+care

35

Web Site. Resources. Announcements. Consumer Corner. Sign-up to be in+care partners.

Tools. in+care poster and brochure.

Training. Consumer webinar series for individuals and groups. Quality Academy.

Stories and Tips. People living with HIV sharing in+care stories and tips.

Consumer Engagement

36

Time for Questions and Answers

37

• Campaign Webinar: November 9, 2011 at 12pm ET

• Meet the Author – Dr. Edward Gardner: November 16, 2011 at 12pm ET

• First Data Collection Submission Deadline: December 1, 2011

Next Steps

38

Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floorNew York, NY 10007Phone 212-417-4730incare@NationalQualityCenter.org

incarecampaign.orgyoutube.com/incarecampaign