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How Parent Advocacy Groups Can Support EHDI Programs
Barbara Raimondo, J.D.
American Society for Deaf Children
Camp Hill, Pennsylvania
Faculty Disclosure Information
In the past 12 months, I have not had a significant financial interest or other relationship with the manufacturer(s) of the product(s) or provider(s) of the service(s) that will be discussed in my presentation
This presentation will (not) include discussion of pharmaceuticals or devices that have not been approved by the FDA or if you will be discussing unapproved or "off-label" uses of pharmaceuticals or devices.
American Society for Deaf Children
Founded in 1967 by ParentsEducatorsDeaf community
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Mission Statement
The American Society for Deaf Children supports and educates families of deaf and hard of hearing children and advocates for high quality programs and services.
What We OfferThe Endeavor800 942 ASDCBiennial conventions
Florida School for the Deaf and the Blind June 28 – July 2, 2007
Parent training and information
Federal advocacy
Areas of Interest
Newborn hearing screening and intervention
Individuals with Disabilities Education ActNo Child Left Behind ActCaptioningTelephone Relay Systems Emergency PreparednessEverything else
Coalitions and ActivitiesConsortium for Citizens with DisabilitiesCouncil on Education of the DeafDeaf and Hard of Hearing Consumer Advocacy
NetworkIDEA PartnershipNational AgendaNational Association of State Directors of
Special Education - Deaf and Hard of Hearing Students’ Educational Guidelines
National Deaf Education ProjectSensory Disabilities Roundtable
What We Can Do
Participate in conferences and meetings
Write and/or review material you publish
Share information about EHDI activities with our members
Promote member involvement in EHDI activities
What You Can Do
Pay Money
Join parent organizations Compensate parents
Cover parents’ expenses
What You Can Do (con’t)
Pay Attention
Parents have specific issues that they are concerned about, including: – ensuring that parents receive full information– linking parents with parent to parent support– linking identification with intervention– ensuring that quality intervention exists– paying for hearing aids
(Go for the) Pay-off
A more integrated system
A system that is more responsive to families’ needs
A more effective system
A system that results in A system that results in age appropriate age appropriate language and language and academic growth for academic growth for all deaf & hard of all deaf & hard of hearing childrenhearing children
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