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FUN with HAE!. A Patient Services Story. Patient Services. What are Patient Services? HAE Updates HAE Summit Awareness and Education Patient A ssistance. HAE Updates. What are they? - PowerPoint PPT Presentation
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www.haecanada.org
FUN with HAE!
A Patient Services Story
www.haecanada.org
Patient Services
What are Patient Services? 1.HAE Updates2.HAE Summit3.Awareness and Education4.Patient Assistance
www.haecanada.org
HAE Updates
What are they? •Fun meetings held across the country where you can meet other patients, hear a physician speaker, and get your questions answered. •Often the first time a patient has ever met another patient.•Free food!
www.haecanada.org
HAE Updates
Physician Speaker
Patients & Family!Free Food
www.haecanada.org
HAE Updates
Coming this Fall•Vancouver•Edmonton•SaskatoonComing this Winter•Montreal•Ottawa•KingstonComing this Spring•Regina•Halifax
www.haecanada.org
HAE Summit
What’s the purpose? To unite the national community by once a year bringing patients together from across the country:•To participate in educational sessions •Attend our annual AGM•Hear physician speakers•And meet other patients!
www.haecanada.org
HAE Summit
The Future of the Summit: •The location will change every year. •We hope it will grow into a can’t miss event for HAE patients in Canada!
Like the Stanley Cup!
www.haecanada.org
Awareness and Education
Who do we want to reach?1.Undiagnosed patients2.Diagnosed patients (you guys!)
www.haecanada.org
Awareness and Education
We do this in several ways….One is by creating a presence for the HAE community online via:•Our Website•Social Media•Public Awareness•Participation
www.haecanada.org
Awareness and Education
www.haecanada.org
Awareness and Education
www.haecanada.org
Awareness and Education
www.haecanada.org
Awareness and Education
Social Media:
Facebook.com/HAECanada Twitter.com/HAECanada
www.haecanada.org
Awareness and Education
Public Awareness•Create press releases•Talk to media outlets•Arrange interviews•What do we need?
YOU!
www.haecanada.org
Awareness and Education
You can help!Please send us your stories and
photographs!
Email it to Lucy.harris@haecanada.org
(You can also find me later and get my business card… )
www.haecanada.org
Awareness and Education
• Participation in:
HAE Walk
www.haecanada.org
Patient Assistance
We have patient assistance programs in practice and in production. 1.Comprehensive Care Stop-Gap2.Ancillary Supply Program3.Centers of Excellence
But….you need to be a MEMBER!
www.haecanada.org
How You Can Help
1. Attend HAE Events (updates + summits)2. Follow us on Facebook/Twitter 3. Check the Website frequently (all the time!)4. Write up your patient story and email it to us!5. Sign-up for membership!Bonus: Sign friends/family up for membership!
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