View
215
Download
2
Category
Tags:
Preview:
DESCRIPTION
Â
Citation preview
CREST.BD: The Collaborative RESearch Team to study
psychosocial issues in Bipolar Disorder
Meeting Proceedings Report
June 19 & 20, 2014 | Canmore, Alberta
2
2
Contents:
i. Network Members, Community Partners, Clinician Leads, Trainees & Staff
ii. Context
iii. Meeting Proceedings | Thursday, June 19th 2014
iv. Meeting Proceedings | Friday, June 20th 2014
v. Meeting Evaluation Summary
vi. Final Thought
3
3
i. Network Members as of June 2014 (Those in attendance underlined)
Network Leader: Erin Michalak, PhD, University of British Columbia, Vancouver, BC
Jehannine Austin, PhD, MSc, CCGC/CGC, University of British Columbia, Vancouver, Canada
Steven Barnes, PhD, University of British Columbia, Vancouver, Canada
Lesley Berk, PhD, Deakin University, Melbourne, Australia
Michael Berk, PhD, Deakin University, Melbourne, Australia
Colin Depp, PhD, University of California, San Diego, San Diego, USA
Elliot Goldner, MD, FRCPC, Simon Fraser University, Vancouver, Canada
Steven Hinshaw, PhD, University of California, Berkeley, Berkeley, USA
Catriona Hippman, MSc, CCHC/CGC, University of British Columbia, Vancouver, Canada
Rachelle Hole, PhD, University of British Columbia Okanagan, Kelowna, Canada
Sheri Johnson, PhD, University of California, Berkeley, Berkeley, USA
Steven Jones, PhD, Lancaster University, Lancaster, UK
Nasreen Khatri, PhD, CPsych, Rotman Research Institute, Toronto, Canada
David Kreindler, MD, FRCPC, University of Toronto, Toronto, Canada
Raymond Lam, MD, FRCPC, University of British Columbia, Vancouver, Canada
Sara Lapsley, Forensic Psychiatric Hospital, Coquitlam, BC
Mark Lau, PhD, RPsych, University of British Columbia, Vancouver, BC
Jamie Livingston, PhD, St. Mary’s University, Halifax, Canada
Fiona Lobban, PhD, Lancaster University, Lancaster, UK
Victoria Maxwell, BFA, Crazy for Life Co., Vancouver, Canada
David Miklowitz, PhD, University of California Los Angeles, Los Angeles, USA; Oxford University, Oxford, UK.
Roumen Milev, MD, PhD, FRCPsych(UK), FRCPC, Queen’s University, Kingston, Canada
Greg Murray, PhD, Swinburne University, Melbourne, Australia
Sagar Parikh, MD, FRCPC, University of Toronto, Toronto, Canada
Barbara Pesut, PhD, RN, University of British Columbia Okanagan, Kelowna, Canada
Melinda Suto, PhD, OT, Associate Professor, University of British Columbia, Vancouver, Canada
Ivan Torres, PhD, RPsych, Clinical Associate Professor, University of British Columbia; Research Scientist, British Columbia Mental Health and Addictions
Services, Vancouver, Canada
Samson Tse, PhD, Associate Professor, University of Hong Kong, Hong Kong
Vytas Velyvis, MA, PhD Candidate, Centre for Addiction & Mental Health; University Health Network, Toronto, Canada
Lakshmi Yatham, MBBS, FRCPC, MRCPsych (UK), Professor of Psychiatry and Associate Head of Research and International Affairs, Department of
Psychiatry, University of British Columbia, Vancouver, Canada
Eric Youngstrom, PhD, University of North Carolina, Chapel Hill, USA
4
4
Community Partners in Attendance:
Kaj Korvela, Executive Director, Organization for Bipolar Affective Disorders, Calgary, Canada
Ann Marie MacDonald, Executive Director, Mood Disorders Association of Ontario, Toronto, Ontario
Andrea Paquette, Executive Director, Bipolar Disorder Society of British Columbia, Victoria, Canada
Jennifer Verma, Senior Director, Collaboration for Innovation and Improvement; Canadian Foundation for Healthcare Improvement, Ottawa, Canada
Clinician Leads:
Joanna Cheek, MD, FRCPC, Psychiatrist, Island Health, Co-Lead Physician, University of Victoria Mood & Anxiety Clinic, Victoria, Canada
Rosalind Irving, M.Ed (Counselling Psych), Family Therapist, Community Psychiatric Services, Vancouver, Canada
Sandra Hale, BSc, OT, MSc, University of British Columbia, Vancouver, Canada
Rob Tarzwell, MD, FRCPC, Clinical Assistant Professor, University of British Columbia, Vancouver, Canada
Trainees:
Guillermo Perez Algorta, PhD, Lancaster University, Lancaster, UK
Laurent Coque, PhD, University of British Columbia, Vancouver, Canada
Cindy Holmes, PhD, Simon Fraser University, Vancouver, Canada
Emma Gliddon, PhD Candidate, Deakin University, Melbourne, Australia
Dennis Jasper, RN, BSN, University of British Columbia Okanagan, Kelowna, Canada
Emma Morton, PhD Candidate, Swinburne University, Melbourne, Australia
Alicia Semaka, PhD, (C)CHC, University of British Columbia, Vancouver, Canada
CREST.BD Staff:
Sally McBride, MPH, Knowledge Translation Manager
Nusha Balram Elliott, MA, Research Coordinator
Chandra Jade, BA, Research Assistant
5
5
ii. 2014 CREST.BD Network Meeting Report | Context
The Collaborative RESearch Team to study psychosocial issues in Bipolar Disorder (CREST.BD) is a network of researchers, healthcare providers and
community members. In 2010, CREST.BD was awarded three years of Network Catalyst - Knowledge Translation funding from the Canadian Institutes of
Health Research (CIHR) to support the development of the team into a national network.
Our vision is that we will contribute to a world where people living with BD enjoy optimized health, quality of life (QoL) and minimal stigma across their
lifespan as a result of tailored psychosocial and/or self-management interventions informed by effective psychosocial research and knowledge exchange
(KE) in BD.
Our values serve as guidelines for our conduct and behaviour as we work towards our vision. We value impact, integration, innovation, diversity, equity,
integrity and an orientation towards wellness and resiliency.
In Canmore, Alberta, CREST.BD held its’ third network meeting on
June 19th and 20th, 2014. CREST.BD network meetings are events
where the research network can connect and engage in face-to-
face dialogue about current projects, chart progress and focus on
strategic directions for research and knowledge exchange. A
planning team consisting of core staff and network members put a
significant amount of collaborative planning into organizing the
event. It was indicated in the 2013 Miami meeting evaluation that a
slightly longer meeting would be preferable; therefore, this year’s
meeting was held over 2 days.
This interactive report gives snapshots of the presentations made
by CREST.BD researchers, trainees and staff over the two-day
meeting, points to themes that emerged from the many discussions
facilitated, notes key action items that were decided upon, and
gives an overview of feedback from the meeting evaluation. For full
details of presentations please click on the links throughout our
interactive report to slides (via Slideshare) or videos (via YouTube).
6
6
iii – a. Meeting Proceedings | Thursday, June 19th 2014
Active Welcome | Erin Michalak, Sara Lapsley & Victoria Maxwell
The 24 attending members were welcomed by Network Leader Erin Michalak. Erin shared the purposes of the event: to create connections, share
progress, and create an energetic atmosphere for effective strategic planning and knowledge exchange. Erin also shared the previous year in review.
A decidedly lively haiku poem competition followed, hosted by Sara Lapsley, Peer Support Coordinator at BC Forensic Psychiatric Hospital, and Victoria
Maxwell, Mental Health Educator. Melinda Suto’s team won the competition with this thoughtful gem:
Recovery brings/ a flood full of hopes and dreams,/ muddy and unclear.
Year in Review | Sally McBride
Knowledge Translation (KT) Manager, Sally McBride, gave an overview of the CREST.BD
network’s KT presence over the 2013/14 year. Her presentation included numbers on reach by
online platform (e.g., website, Twitter, community events). Sally also included her analysis of
which of these is going well and which can be improved upon.
Highlights
37,390 view of the CREST.BD website
841 Twitter followers and 484 Facebook “likes”
4 community events with over 200 attendees in total
3,700 view of the Delphi study recruitment web page
5,170 views of the 13 presentations on our Slideshare profile
Strategic Plan Process Review | Erin Michalak
The CREST.BD Strategic Plan was introduced at the Toronto network meeting in 2012, with the themes of Research, KE, Structure and Governance
identified at the Montreal mini-meeting the same year. By 2014 the Strategic Plan had been consulted upon with the National Advisory Group and
submitted to the network for approval.
A draft annual workplan for 2014/15 was produced in the summer of 2014. A goal for the Canmore meeting was to fully populate the document with
input from all network members.
7
7
Introduction to 2014/15 Workplan | Greg Murray
Greg Murray reminded the group that the CREST.BD workplan is an agreed-upon summary of what the network will be working on in the short and
medium term. Throughout the Canmore meeting, core staff noted issues and ideas relating to the 2014/15 workplan. The workplan helps to maintain
cohesiveness and direction within the network.
Highlights
The workplan will help support people, time, money, infrastructure, knowledge and skill: the meeting is the time to incorporate missing pieces
The workplan should relate to mission and vision clearly and directly
Sustainability must be tackled in the workplan document
Optimising Work Plans | Jennifer Verma
Jennifer Verma is the Senior Director for the Canadian Foundation for Healthcare Improvement’s
(CFHI) Collaboration for Innovation and Improvement Program. Her role at CFHI includes
responsibility for start-up of large-scale health system improvement partnerships across Canada.
Jennifer shared best practices for strategic planning.
Highlights
Strategic planning benefits from people who respect one another for their range of qualities
Work planning requires a willingness to set, then try a course of action, knowing it will have
to be tweaked or even overhauled as events unfold
Vision and Mission are a cardinal compass point: North stays put, but the path to get there
(the work plan) may require correction en route
Which organizational activities yield the highest impacts and returns?
8
8
Update & Consult on Research Working Group | Greg Murray
At the 2013 meeting in Miami, the need was identified for a Research Working Group (RWG). The RWG is a forum within the network designed to
make strategic decisions around research and to give momentum to ideas. The RWG, which meets quarterly, has quickly proved to be an effective
engagement tool.
Update from Trainee Lead | Jehannine Austin
Jehannine Austin is the Canada Research Chair in Translational Psychiatric Genomics. She gave an update about where trainees fit in the network, and
possible directions for moving forward and improving the trainee experience.
Highlights
Trainees who find work and ‘graduate’ from their trainee positions shall be invited to
join the network as full members
May be beneficial to conceptualize definition of ‘trainee’ more broadly and be more
inclusive with boundaries of the definition to attract a more diverse range of
candidates (e.g., from business, journalism and non-traditional programs)
What metrics should we have in place to gauge outputs of trainees and ‘graduation’?
What can we use that information for? What institutional/CIHR guidelines exist?
Kickstarter Project | Steven Barnes
Steven Barnes is an Instructor in the UBC Department of Psychology. Steven shed light on
crowd sourced funding and generated discussion on a potential CREST.BD Kickstarter project.
Highlights
Venue to combine arts and research, including different perspectives and contexts
Initial video and strategic plan would need to be developed for any idea
Looking thoughtfully for an intern could be beneficial
9
9
PechaKuchas
Concise, 6 minute and 40 second presentations, the PechaKuchas presentation is an engaging way to structure a multi-speaker panel. 7 network members
and 1 trainee used PechaKuchas to give research overviews.
QoL Tool Project | Erin Michalak
Erin Michalak , CREST.BD Network Leader and Associate Professor in the UBC Department of Psychiatry, presented on the Quality of Life (QoL) Scale
Tool and on transforming the QoL scale into an online tool that will move it the hands of people living with BD. Watch Erin’s video
SHIP Project | Victoria Maxwell
Victoria Maxwell, Mental Health Educator, Consultant, Actor and Writer, and Researcher on the SHIP project, introduced the Ship project, a
comprehensive online Wellness Centre tailored for people who live with BD. Watch Victoria’s video
10
10
Delphi Study | Melinda Suto
Melinda Suto is Assistant Professor of Occupational Science and Occupational Therapy at UBC.
Melinda gave an update on the Delphi Self-Management project, including a summary of top
self-management strategies from Round 2 of the Delphi survey. Watch Melinda’s video
Bipolar Youth Action Project | Andrea Paquette
Andrea Paquette is Executive Director of the Bipolar Disorder Society of BC and Co-Lead
Researcher, along with Erin Michalak, on the Bipolar Youth Action Project (BYAP). Andrea gave
an overview of the BYAP, recently
funded by the Vancouver Foundation.
Watch Andrea’s video
MoodSwings 2.0 | Emma Gliddon
Emma Gliddon is a PhD Candidate in the Deakin University School of Medicine. Emma discussed
her learnings from working start to finish on the development process of the MoodSwings online
intervention, now in the recruitment stage. Watch Emma’s video
Integrated Anxiety Intervention Trial | Steven Jones
Steven Jones is Co-Director of the Spectrum Centre for Mental Health Research at Lancaster
University. Steven discussed treatment of co-morbid conditions in BD and lessons learned from
Spectrum’s Integrated Anxiety Intervention Trial. Watch Steven’s video
11
11
Metacognition Study | Ivan Torres
Ivan Torres is Clinical Associate Professor in the UBC Department of Psychiatry and a Researcher at BC Mental Health and Addictions Services. Ivan
shared preliminary data on metacognition and its place in determining quality of life. Watch Ivan’s video
ORBIT | Greg Murray
Greg Murray is Professor and Head of Psychological Sciences and Statistics at Swinburne University. Greg introduced the Online Recovery-Focused
Bipolar Intervention (ORBIT), a mindfulness-based self-help intervention designed for people living with late stage BD. Watch Greg’s video
12
12
iv – Meeting Proceedings | Friday, June 20th 2014
Breakout session: PCORI Application | Colin Depp (Chair)
A draft Letter of Intent was generated for the Patient Centred Outcomes Research Institute (PCORI)
Eugene Washington Engagement Award is a natural fit for the network. Sheri Johnson phoned in.
The Mood Patient-Powered Research Network (BD and MDD), under the direction of Dr. Andrew
Nierenberg is a registry of people living with BD and MDD, with the intention of integrating the patients
as a community as well as being a gateway to patient-driven research and trials. The Mood Network is
making good headway but is lacking in the community engagement piece required to recruit their
targeted 50,000 users in the next year.
CREST.BD has substantial knowledge and tools to
share with the Mood Network in terms of
community engagement. This would align with the
priorities of both networks and improve research
and capacity for community engagement for both
groups.
There was consensus on a CREST.BD peer researcher credentialed program, with the intention being
to train peer researchers in community engagement in mental health research. This would be
potentially done across four hubs in the U.S., with one CREST.BD network member and one trainee
attached to each site.
Breakout session: CREST.BD Book | Jamie Livingston (Chair)
The group shared thoughts about content, directions and ideas for a book authored by the
CREST.BD network. The results of the survey put forth prior to the meeting were circulated while
Jamie Livingston guided a discussion.
There was general consensus that a book produced by the network would be most helpful if directed towards healthcare providers and people who live
with BD and their supports. A natural fit would be for the content to include pieces on the network’s research.
A well-received idea was to target healthcare worker and community member audiences simultaneously in the format of a dialogue with alternating
chapters written by peer researchers or people with lived experience and their families and healthcare providers.
13
13
It was agreed upon that the book should not focus on CREST.BD’s history or formation. The book could give a snapshot of the network and point towards
the network’s greater body of work. The group agreed that the focus should be upon research made accessible and interesting through story telling.
Several network members noted the importance of cultivating diverse and international appeal in terms of authorship and applicability across cultures.
Discussion: Breakout session feedback | All
Empowered World Online Community (EWOC) | Steven Barnes
The Empowered World Online Community (EWOC) arose at the 2013 Miami meeting and grew into a larger idea involving the creation and support of
an online community/tool for people living with BD. Steven outlined the goals, requirements and potential challenges of a project such as this.
Watch Steven’s video
Highlights
EWOC would: involve community members in research and KE, disseminate
psychosocial treatments and interventions and address stigma and isolation
The site would be include a responsive design, integrated social media
capabilities, social networks and data visualizations
Multiple language support and user privacy considerations would be
important considerations
Team Building | Sara Lapsley
Sara Lapsley is BC Forensic Psychiatric Hospital’s Peer Support Coordinator and a
peer researcher in the network. Sara meticulously organized a scavenger hunt that
gave attendees a much-needed opportunity to sprint through the lodge grounds.
14
14
2014/15 Workplan | Sally McBride, All
To close, the group collaboratively developed a draft of a workplan for the upcoming year. Attendees noted action items, tasks and key ideas arising
from the meeting. Upon returning to Vancouver, the points from this discussion were incorporated into the workplan, which details the actions that the
CREST.BD network will undertake in the coming year. Both the 2014-2015 CREST.BD Workplan and the 2014-2019 CREST.BD Strategic Plan are
available on the CREST.BD website.
The Workplan hearkens back to the 5 key strategic priority areas detailed in the 2014-2019
CREST.BD Strategic Plan:
1. Research and KE Excellence
Create and advance knowledge and understanding of the psychosocial factors associated with BD to
contribute to health and QoL for people with BD through discovery, dissemination and application of
research within and across disciplines and sectors.
2. Community Involvement
Engage people with lived experience of BD and their supports in collaboration among researchers,
healthcare providers and other stakeholders to increase the usefulness of BD psychosocial research and
KE. Expand science on community involvement in BD research.
3. Capacity Building
Strengthen capacity for psychosocial BD research and KE within our network membership, partners and affiliates.
4. International Engagement and Recognition
Participate with global partners and affiliates to enhance reach and impact of BD psychosocial research and KE. Establish network as an international
leader in psychosocial BD research and KE.
5. Sustainability
Ensure that the Network is sustainable and accountable to its stakeholders.
15
15
v – Meeting Evaluation Summary
14 participants completed post-meeting evaluations. 93% indicated that opportunities for
networking and to suggest actions for moving forward after the meeting were good or excellent.
84% indicated that the meeting venue was good or excellent. 100% indicated that the following
aspects of the meeting were good or excellent:
opportunities to learn about CREST.BD research, present and future
opportunities to learn about new CREST.BD members
opportunities to learn about progress since 2013 meeting
opportunities for participation
Highlights of key learnings or impacts
“That our group is making some difference in the lives of people living with BD… and part
of our success is due to our community engaged methodology”
“Strengthened linkages with UK group”
“Discussion of the activities and research
projects in the context of the strategic plan
was useful”
Some suggestions for improvements or changes
“More structured tasks paired with someone I didn’t know well. Would like to hear more from the trainees”
“It would have been nice to review each section [of the workplan] in a systematic way, even though some items… are in progress.”
16
16
vi – Final Thought
ORBIT!
This report written by Nusha Balram Elliott, Erin Michalak and the CREST.BD Network.
Recommended