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Coeliac and coeliacs in Estonia. Aive Antson Chief of Board. 1996 – Dr. Oivi Uibo and Külli Mitt invited families who had child of coeliac disease to join and organised meetings and etc 14.02.1998 – the foundation articles were certified . We are a non-profit organization. - PowerPoint PPT Presentation
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Aive Antson
Chief of Board
*1996 – Dr. Oivi Uibo and Külli Mitt invited families who had child of coeliac disease to join and organised meetings and etc
*14.02.1998 – the foundation articles were certified. We are a non-profit organization.
*Since 1998 – member of the Estonian Chamber of Disabled People
*Since 2006 – member of AOECS (Association of European Coeliac Societies)
*The activities are based on the projects financed from the Foundation of Estonian Disabled People.
*6433.00 is budget of this year from Foundation of Estonian Disabled People. It is 21% less than last year.
* 460.00 memberfees.
*The memberships are
• 10.00 for family a year (irrespective of persons amount in family). So they have free participation in summer camp, Christmas party etc
• singlemother and single pensioners pay 7.00
*The Board includes 2 members:
•Aive Antson
•Riin Jõgi
*There are 115 members in our society.
*46 coeliacs, 2 persons with gluten sensitivity and the others are members of families
*We can buy glutenfree products in big stores – Prisma, Selver, Stockmann
*Glutenfree products are about seven times more expensive than other food
*The trademarks are: Dr. Schär, Orgran, Semper etc.
*We had an important event at September. We opened our counseling cabinet in the house of The Estonian Chamber of Disabled People
• It is open on Tuesdays at 18.00 – 20.00
•We promoted it at newspapers
•Our members are counseling new coeliacs
*So far the cabinet has been visited by 15 coeliacs (often they took family members with them)
*More or less they become members with family
*People get information about the cabinet:
•Homepage
• Internet
•Gastroenterologist
•Newspaper
*Main problems/questions:
• Finding product in stores
•What to use or eat
•Hiden gluten in products
• Lactose tolerance
• Information about society work
•Appling member of the society (half of the cabinet visitors became a member)
*Cooperation with medical staff – gluten sensitivity
*Alternative medicine (acupuncture doctors, blood group diet) diagnose gluten intolerance, but doctors say that it is not disease
*The adult coeliac patients do not receive financial support for the purchase gluten-free food products
*Increase of the assortment of gluten-free products in the stores
*Also support adult coeliac patients
*European Licensing System – symbol
*New material for coeliac
*New information
*Financial support system
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