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A Centre of Excellence in
Dementia Care
for York Region
AS York’s Vision for the Future
January, 2012
The Alzheimer Society of York Region (AS York) will establish a new Centre of Excellence in Dementia Care for York Region to support individuals with dementia and their caregivers.
A client-centred and environmentally inviting facility that will provide comprehensive, innovative, leading edge programs and services that address the disease from pre-diagnosis to end-of-life care New Centre of Excellence is based on a report commissioned by AS York to identify best practices in quality dementia care This new vision will offer complete continuum of community services – unlike anything that currently exists in York Region
Overnight Respite
Sensory Gardens
Centre of Excellence in Dementia Care
Dementia Café
Integrated Care
Delivery
Therapeutic Living Centre
Alzheimer’s Learning Institute
Early
Diagnosis
Caregiver Wellness
The Present Imperative
Within a generation, the increase of people living with
dementia could potentially have a crippling effect on
families, our health care system and our economy
The Present Imperative Existing community services fall short of existing demand, despite
increased programming through A@H and other LHIN initiatives
Wait times for entrance into AS York DAY Centre programs have
increased to as high as nine months; Longer wait times and shortage
of active day centre days increases burden and stress on caregiver
and potentially accelerate the pace of the disease
Requests for information on ADRD at an all time high
Dementia is leading condition for LTC
By 2016, individuals affected by Alzheimer’s disease and related
dementias in the Central LHIN will grow by 35% - higher than the
national average
The Present Imperative
From 2008 to 2038, the cumulative cost of dementia in
Canada is projected to be $872 billion, through:
• direct health care costs [like medication, and physician & hospital
costs]
• unpaid caregiver opportunity costs [which are the wages that could
have been earned by informal caregivers, were they able to
participate in the labour force]
• indirect costs associated with the provision of unpaid care – such as
the lost corporate profits and wages that result from the reduction in
labour productivity for both the individual with dementia and the
provider of informal care).
Alzheimer Society of York Region
AS York is part of the leading nation-wide charitable
health organization for ADRD both in terms of program
delivery and advocacy
AS York has been actively supporting individuals and
families coping with ADRD for more than 25 years
Alzheimer Society of York Region
We continue to meet the demands and challenges in
more timely and effective ways that reach out to a
broader and increased number of people
We do so by providing the best quality care for people
with dementia and their families and to continually
improve and learn about new services …
RANGE AND DIVERSITY OF CURRENT PROGRAM PARTNERS
Acute Care (Community) - York Central Hospital ADP
- Baycrest
- Regional Geriatric Programs
- GEM nurses in York hospitals
York Region Police - Wandering Registry
- Project Lifesaver
Alzheimer Chapters
and Associations -ASC (Safely Home)
-ASO (PPAC, OEC, F/R)
- AST, ASGSC
Community Support Services
- CHATS
- Circle of Care
- Parkview Services to Seniors
--CSSN Steering Committee
- C-LHIN Dementia Network
Regional Municipality York - Maple Health Centre ADP
- Keswick Gardens ADP
- IPOP program
Long Term Care
- Parkview Home
- The Woodhaven
- Maple Health Centre
CCAC -Day program eligibility
-B of C project
-DWTC
Current Service Delivery
Client Ethnic Composition
• D.A.Y. program participants from 35 different ethnic communities or nationalities as identified by their families:
• Aboriginal (Chippewa First Nation), Albanian, Barbadian, Bermudian, British, Chinese, Columbian, Danish, Filipino, Finnish, German, Greek, Guatemalan, Hungarian, Indian, Iraqi, Iranian, Irish, Italian, Jamaican, Jewish, Lebanese, Maltese, Peruvian, Polish, Portuguese, Scottish, Slovakian, Slovenian, South African, Sri Lankan, Swedish, Trinidadian, Venezuelan, Vietnamese.
AS York Staff Diversity
• AS York staff addressed clients’ needs in Cantonese, Mandarin, Farsi, Hindi, Punjabi, Gujarati, Tamil, Italian, Polish, French, and Spanish.
• AS York Staff also from urban, suburban and rural backgrounds
Our Unique Client Integration Service Model
• Our Caregiver Support and Education Program provide the
following services to clients in cognitively-impaired day centre
programming across the Region:
• Continuity for clients
• Navigation throughout the disease process
• Links to other community supports
• Standardized admission process and assessment process
• On going involvement during clients participation in day respite services
• Follow up after day program discharge
• Resource to partners to ensure quality and best practice approaches
Result: AS York 2010 - 2011 Service
D.A.Y. Centres
• 3 day program sites (Thornhill, Newmarket and Stouffville)
• 14,590 units of day program delivered
• 254 cognitively impaired participants serviced at programs
• average length of time spent in day programs = 14 months
• 5,246 rides provided for program participants
Support and Education
• 1,795 families serviced by AS York Caregiver Support and Education Team
• 7,303 counselling hours provided
• 60 support groups facilitated
• 15 family education sessions facilitated of Dementia Foundations series (3 sessions per series)
• 11.845 individuals were reached at community education and awareness events
Partnerships & Integration • 28,320 cognitively impaired day program spaces filled in York Region
• 4,226 hours of caregiver support and education provided to our partner agencies
• All 9 cognitively impaired day centre programs in York are directly connected to AS York Service Model
The Future Imperative
AS York to establish a Centre of Excellence in York
Region to support individuals with dementia and their
caregivers
A facility that will provide comprehensive, innovative,
leading edge programs and services that address the
disease from pre-diagnosis to end of life care
Best Practices in Quality
Dementia Care
New Centre of Excellence based on a report commissioned by AS York to identify best practices in quality dementia care
Information gathered from key experts and supported by a national and international literature review
Report outlined evidence-based or best known practices for person-centred dementia care for the continuum of service, from initial public awareness and prevention to end of life care
Best Practices in Quality
Dementia Care
This report demonstrated that there is no single program that is “the best one” and that a range of supports are required for people with dementia and their caregivers as the disease progresses
The design and delivery of effective and efficient human services and supports that will maximize the health and quality of life for people with dementia and their families becomes the focus
Best Practices in Quality
Dementia Care
Recommendations for consideration as described in the
report include:
• Placing greater onus on early stage programming to mitigate the on-
set of the disease
• Placing greater onus on late stage programming to allow people to stay in the community longer
• The creation of an Alzheimer Learning Institute
• Additional supports for caregivers
• The addition of the First Link program
Looking Forward –
New Centre of Excellence
Looking Forward –
New Centre of Excellence
Design Guidelines
Externally, the new facility will create a sense of comfort and confidence for caregivers as they arrive to leave their loved one at the D.A.Y. Centre
The external façade will have a similar effect on individuals with dementia making them feel comfortable and at ease in being left at the D.A.Y. Centre by their loved one
Design Guidelines
Internally, program spaces will duplicate the look and feel
of an inviting and comfortable home
Sensory gardens and patios will create fabulous outdoor
living spaces with walking paths and a variety of plants to
stimulate the senses and to attract butterflies, dragon
flies, lady bugs, humming birds etc – promotes mental
and physical stimulation and the general well-being of
day centre participants
We envision our new facility to be an uplifting place that provides service excellence in supporting individuals with dementia and their families with:
• A Caregiver Wellness Centre
• A Therapeutic Living Centre
• Overnight Respite
• A Dementia Café
• The Alzheimer Learning Institute
• Additional cognitively impaired day centres (developed offsite)
Gold Standard for Service
Excellence
How it all fits together-
Building Memories Outcome
Dementia Café & First Link – Education and early interventions can mitigate the progress of the disease and will encourage families tand individuals to seek earlier diagnosis
Alzheimer Learning Institute – a classroom and resource centre to promote the prevention or delay of the onset of dementia while increasing public and professional awareness about dementia and dementia care
How it all fits together
Building Memories Outcome
Caregiver Wellness Centre – enhanced support services that alleviate the stress and burden commonly associated with the role
A focus on caregiver support could result in reduced economic costs of up to 5.3% and a reduction of caregiver time¹
[1] Rising Tide – The Impact of Dementia on Canadian Society. Alzheimer Society of Canada, January 2010
How it all fits together
Building Memories Outcome
Therapeutic Living Centre - Demonstration project of how environmental and design enhancements will enable persons living with dementia and their caregivers to live well.
Overnight Respite - A safe and secure home environment which is custom designed to support persons coping with progressive cognitive impairment. Qualified and professional staff, specially trained to care for and be sensitive to the needsof the families coping with dementia.
How it all fits together
The Alzheimer Society of York Region will achieve the following outcomes:
• Healthy lifestyles that help prevent dementia
• More people seeking early diagnosis and intervention
• Improved capacity for people with dementia to live well, with dignity
• Increased knowledge about dementia
• Skilled and seamless dementia workforce
• Integrated care delivery
Questions / Comments
Loren Freid, Executive Director
Andrea Ubell, Senior Manager, Programs & Client Services
Lynn Conforti, Manager of Fund Development
Thank you!
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